Guest guest Posted March 3, 2000 Report Share Posted March 3, 2000 Hi Group, Sorry that I haven't been very active lately. Wednesday morning, my aunt called to tell us that my great uncle had passed away, (from florida), and that she would be calling us back later that night with information on where to send flowers. Later that night, she called back.. and as I was preparing to get a pen and a piece of paper, she informed me that my great aunt had passed away that afternoon. My great aunt, and my grandmother (who I was very close to) looked like twins. After my grandmother passed away, I became very close to my great aunt, because of the bond that we both shared with my grandmother. For several years, she had had problems with her heart, and had broken a hip. I find comfort in knowing that she's in Heaven, and no longer feeling pain. If you could though, please keep my Father in your prayers. I can't imagine what he must be going through. Within one year, he's lost a sister, his wife, his brother, and now an uncle and aunt. I had my colonoscopy yesterday. It went really well, until I woke up during the procedure. It was quite painful, but not as bad as waking up with a tube in your throat. I remember using quite a bit of profanity, and having my arms restrained by the nurses, until the DR. gave me more meds to put me back out. My O2 level did drop some, along with my blood pressure, but it came back up quickly... so I didn't have to stay in recovery as long as I usually do. Is there another med they can use instead of Demoral (sp?). Even though this drug can be quite fun <grin>, I seem to have a reaction to it everytime it is used. Okay, even though my post is quite long... I would like to remind everyone how important it is to change subject lines, create a new e-mail anytime there is a lot of " replies " , and if necessary, send the e-mail directly to whom it is written. As most of you know, I fought against turning this group into mainly a " technical " one a few months ago. I really don't want to lose the support part of the group, and I agree that it's nice to talk about things that have nothing to do with PSC, but with the group growing almost daily, it's important to keep the other members in mind when posting. One thing that I find is helpful, is reading through all of the mail, deleting the things you don't want to respond to, then trying to respond to everything else in one e-mail. I try to do this myself, but sometimes get in a hurry. I don't want to lose any members, or limit the amount of members for this support group. Each one of you, is what makes this support group so successful. Also <more nagging> if you haven't filled out the database, PLEASE DO! Sorry for going on and on and on and on......... Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 Ezra Hello, just thought I would like to give you some info about Yale. The research that is being done at Yale is all Hep C related. The Doctor involved in this research is Victor Navarro, MD he is also very supportive of the Ct Chapter of ALF. To my knowledge there are no experts on PSC at Yale or in the area. or anyone who is particularly interested in this disease. If anyone knows any differently please let me know. Reggie(22 year old son has PSC/UC) Re: A few updates >Sandy, > >You mentioned the other day that you are seeing a doctor at Yale. Since Yale >seems to have an esteemed digestive disorders center (one of the 10 or 12 >National Institutes of Health affiliated centers in the country), I thought >I'd ask which doctor you see there and whether he/she has mentioned anything >about liver-related research they may be involved with. Thanks, Ezra > >------------------------------------------------------------------------ >Special Offer-Earn 300 Points from MyPoints.com for trying @Backup >Get automatic protection and access to your important computer files. >Install today: >http://click./1/2344/5/_/24674/_/953647059/ > >eGroups.com Home: /group// > - Simplifying group communications > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2000 Report Share Posted March 25, 2000 Reggie, Thank you for sharing that information. About a year ago I looked at Yale's website (I forget whether it was for the med school or Yale New Haven Hospital), and found the names of several doctors/faculty who are interested in biliary disease. Unfortunately when I have tried in the past couple of days to find the information again the website freezes me out; for some reason, I cannot access the faculty research pages or even the academic departments within the med school. So, if you could try to check the site, perhaps you will have better luck (maybe the problem has something to do with my browser?), and if you do it would be really helpful if you copy the names and research interests of the doctors. I think there were at least two and perhaps three of them who did relevant work. Thanks very much in advance, Ezra Hello, just thought I would like to give you some info about Yale. The research that is being done at Yale is all Hep C related. The Doctor involved in this research is Victor Navarro, MD he is also very supportive of the Ct Chapter of ALF. To my knowledge there are no experts on PSC at Yale or in the area. or anyone who is particularly interested in this disease. If anyone knows any differently please let me know. Reggie(22 year old son has PSC/UC) >> Quote Link to comment Share on other sites More sharing options...
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