Re: Question for

[Guest guest]

At times, yes, enough to know they weren't always asleep and often very aware of

what

was going on around them. The conversation as such often only involved

answering

questions with simple 1 or 2 words. I've shared this story before of taking my

mother to

the chaplain's service in her nh. She sat in her wheelchair, head drooped

forward, eyes

closed, mouth open, looking to all intents as if she was sound asleep. The

chaplain asked

the group if any of them remembered walking through trilliums in the spring. My

mom's

hand slowly went up. I know she loved trilliums and had often mentioned going

to a

particular wooded area as a young person to walk among them. The chaplain

looked at

me, eyebrows raised, and I to her. Mom was in there right to the end whether

she could

respond on a given day or not.

> >

> > From: Raquel Asay <la.melense@ yahoo. com>

> > Subject: Question for

> > To: LBDcaregivers@ yahoogroups. com

> > Date: Monday, August 25, 2008, 11:35 AM

> >

> > Hi, , and all of my�friends! I know that sometime ago I read about

using

> Exelon together with Razadine and Namenda or Aricept. I asked then if that was

done in

> some cases, and I THINK you and somebody else answered affirmatively and

sent�me

a

> link where I could find information. I don't know what I did with it. Can you

send it

again,

> please? The new neurologist that saw Sherman last month for the first time

told me very

> frankly that she is a GENERAL neurologist and not very familiar with LBD.

Today I talked

to

> her again and she said she's " waiting for information " about using those drugs

together,

> that she hasn't heard about it nor read anything that justifies it. Maybe I

can help her

> educate herself a little more...

> > Another question: Has any in our group had the experience of a negative

reaction to

> Provigil? I started it according to doctor's orders by 100 mg, but I noticed

he was having

> some hallucinations or strange dreams and I stopped it. Then I read here that

somebody

> was taking 50 mg and was doing OK, so I started again, and it seemed to work.

After a

> week I increased the dose to 100 mg and again his behavior has become very

strange -

> he's talking a lot of non-sense (which he wasn't doing before), imagining

things that

> people -real people- have said to him (that they haven't), and even told me

the physical

> therapist was flirting with him! Could that be the Provigil?� I asked the

doctor today

> on�our phone conversation, and she said " Maybe. Why don't you stop it to see

what

> happens? I could also be that the dementia is progressing, blah, blah,

blah " .��He

> doesn't show ANY symptoms of a physical problem, infection, etc. No fever, no

> listleness,�no

> > increase/decrease in�urination nor change of color, and he is eating well.

> > Any ideas?

> > Still praying for all of you! My love to all,

> > Raquel

> >

> >