Re: PSC STUDIES/Seminar

[Guest guest]

The psychiatrist at UCLA that we saw during Phil's evaluation wanted to use

him in a study using MRIs (maybe it was MRCP) but I don't know what for.

The problem was that Phil couldn't take part because he can have MRIs. Also

I wonder why the psychiatrist was doing it. Maybe it had something to do

with the brain and the brain fog. That would have been interesting. I'll

have to ask McGlothin tomorrow when we go to the seminar if they asked

her.

If anyone has any questions they want us to ask let me know. It is being

put on by ALF and I think is on Liver transplant research or something like

that. Phil & 's hep doctor and the hep doctor on the UCLA transplant

team are speakers.

Peg

Romlein wrote:

> I think it is relatively recent, but I don't know exactly when

> or in what journal, I think the person who posted it (a hepC

> patient awaiting a liver) could supply that information if

> asked.

>

> The report does say that LFT's improve when using Actigall. Just

> the progress of PSC didn't change in the big (105 patients)

> study. However, the small study with a higher dosage (20mg/kg)

> did have some patients show improvement and a slower disease

> progression. The reviewer seemed to write that small study off

> and I think based the final conclusion on the bigger study.

> Tim

>

> --- Peggy Alfeld wrote:

> >

> > Tim,

> > When was this written? It seems to me that the people in this

> > group that

> > are taking higher doses of Actigall are doing better. Do you

> > think that

> > this is just a fluke and they are in the normal up and down of

> > the PSC? It

> > would be interesting to get a real picture of our group and

> > their doses and

> > status with the disease.

> >

> > Peg

> >

> > Romlein wrote:

> >

> > >

> >

> http://www.delphi.com/n/mb/message.asp?webtag=livertransplant & msg=80.1

> > > contain a review of Ursodeoxycholic Acid in the Treatment if

> > > Primary Biliary Chirrhosis and Primary Sclerosing

> > Cholangitis.

> >

> >

> >

> >

> >

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