new member

[Guest guest]

It was kinda scary that before we were even married, my hubby could finish my

sentences for me. It comes in handy.

in Jax

<><><><><>

Re: New Member

...It drives my husband nuts when I start a sentence and can't finish it...he

says " spit it out! " . I search my mind, trying to figure out what it is I

was saying. When I tell him I forgot, he said " no, you just don't want to

say it " . ...

TIA,

cyn

[Guest guest]

my name is nancy, 44yrs old, married w/two adult kids, 3 cats and i

live in reno, nevada. i used to live in the bay area like whitney.

but upper bay in san francisco. i asked my GP to give me a test for

fibro and diabetes. she gave me a test for lupus (i had a disk

shaped rash all over my body and she saw it) and diabetes. i was

fine for the diabetes, but came up positive for lupus. she said

something about it might be a false positive. well, i looked it up

on the internet and found i had most of the symptoms. she sent me to

a rheumatologist.

i went to the rheumy dr today and she told me no you probably dont

have lupus (i guess those symptoms are just chopped liver then) and

started poking and prodding me. next thing i know she says i test

positive for fibro. i said are you sure. she gave me a pamphlet and

i read it. yes i have fibro (but i still think i also have lupus,

b/c where are those other symptoms coming from? well, ill deal

w/that later). but until i get another counter diagnosis or firm

negative from the blood test she sent me to take, ill consider

myself as having the lupus (discoid and SLE for short) as the first

test said.

i also have lymphedema (LE for short), raynaud's disease and asthma.

i'm not working and recently re-applied for SSD (i had some trouble

and ended up giving up earlier) i thought you couldnt have it if you

got married and the LE wasnt enough even w/a lawyer by their

standards to get the SSD. but now i think it will go thru, even if i

have to get a lawyer.

i think im in a fibro flare up right now. i've been dealing w/pain i

havent had to deal w/before just in the last few months and the

fibro test certainly didnt help.lol!

it is nice to meet you all and im glad to be in your group. anything

you can tell me about controlling fibro and working with it, sure

will help. the dr told me that i should stop taking melatonin as it

is from the brains of cows and other animals and i could get mad cow

or something. (frankly i think she is off her rocker) lol!

thanx,

nancy

[Guest guest]

> I have had bowel problems, terrible pain in my elbows, heel pain, and vision

problems. Some of these subside and then return. Then, there is the 'fog'! I

thought that it was a side effect of menopause-I lost my hormones and mind

at the same time! This 'fog' affects my work and I am concerned that I may

not keep my job if it continues.

> I really need a support group and thank you all for the opportunity to share

and learn.

> Thanks

>

,

Welcome to this support group. Your health problems sound just like

what all of us are experiencing. I have fibro fog so bad sometimes that it

really upsets me. The only thing that keeps me going is my sense of

humor....Are you taking anything for the pain or on any special therapies?

What type of work do you do?

I am Penny, I live in Wisconsin, am married to Chuck and I am 53 years

old. I have three children; -28, -25 and 13. I have had

fms since about 1996, but was finally diagnosed in June 2000. I am trained

as a Sales Rep, but now am working freelance as a newspaper

correspondent, plus I do some photo work and I have won the last three

contests that I have submitted photos to. I garden, read, watch DVD's and I

do some character acting in community theater. I let my inner child come out

and play often. Have a great day!! Penny

[Guest guest]

dear linda,

i'm new to the group also and just newly diagnosed. altho how long i

have actually had it is anybodies guess. i would for sure say at

least since the radical hysterectomy 7yrs ago. i also have

lymphedema, possible lupus or lupus like symptoms, raynauds disease

and asthma. i'm 44yrs old. you will really like this group.

everybody has been really cool here.

nancy in reno, nevada

> Hi, my name is , I am 50 years old and was diagnosed with

Fibro about 10 years ago. I remember long before that time that I

was suffering from something that most Drs could not figure out and

so I was labled a hypochondriac.

> I supposedly had 'Mono' off and on while in high school, but that

was only a guess on their part. Then, an osteopath told me that I

was experiencing 'real' pain! Hooray! There was finally someone

who believed that I really did hurt.

> This past year has been the worst for me. Usually the pain would

be occasional, especially when the stress level got too high or I

let myself get rundown. However, I had a very stressful winter and

the pain is a part of my daily life. I have been experiencing

strange symptoms too. This past week, I had a day where my muscles

felt weak, as though I couldnt even hold a pen to write, or my legs

might not hold me. After several hours this passed, but it was

frightening just the same.

> I have had bowel problems, terrible pain in my elbows, heel pain,

and vision problems. Some of these subside and then return. Then,

there is the 'fog'! I thought that it was a side effect of

menopause-I lost my hormones and mind at the same time! This 'fog'

affects my work and I am concerned that I may not keep my job if it

continues.

> I really need a support group and thank you all for the

opportunity to share and learn.

> Thanks

>

>

>

>

> " When you arise in the morning, give thanks for the morning light,

for your life and strength. Give thanks for your food and the joy

of living. If you see no reason for giving thanks, the fault lies

with yourself. "

> Tecumseh, ee Chief

>

[Guest guest]

are you allergic or have you ever investigated sulfites for your

lymphedemea? My sister has it and found that cutting out lots of stuff like

tons of carbs and sulfites has helped the lymphedemea a lot. dash

Re: New Member

dear linda,

i'm new to the group also and just newly diagnosed. altho how long i

have actually had it is anybodies guess. i would for sure say at

least since the radical hysterectomy 7yrs ago. i also have

lymphedema, possible lupus or lupus like symptoms, raynauds disease

and asthma. i'm 44yrs old. you will really like this group.

everybody has been really cool here.

nancy in reno, nevada

> Hi, my name is , I am 50 years old and was diagnosed with

Fibro about 10 years ago. I remember long before that time that I

was suffering from something that most Drs could not figure out and

so I was labled a hypochondriac.

> I supposedly had 'Mono' off and on while in high school, but that

was only a guess on their part. Then, an osteopath told me that I

was experiencing 'real' pain! Hooray! There was finally someone

who believed that I really did hurt.

> This past year has been the worst for me. Usually the pain would

be occasional, especially when the stress level got too high or I

let myself get rundown. However, I had a very stressful winter and

the pain is a part of my daily life. I have been experiencing

strange symptoms too. This past week, I had a day where my muscles

felt weak, as though I couldnt even hold a pen to write, or my legs

might not hold me. After several hours this passed, but it was

frightening just the same.

> I have had bowel problems, terrible pain in my elbows, heel pain,

and vision problems. Some of these subside and then return. Then,

there is the 'fog'! I thought that it was a side effect of

menopause-I lost my hormones and mind at the same time! This 'fog'

affects my work and I am concerned that I may not keep my job if it

continues.

> I really need a support group and thank you all for the

opportunity to share and learn.

> Thanks

>

>

>

>

> " When you arise in the morning, give thanks for the morning light,

for your life and strength. Give thanks for your food and the joy

of living. If you see no reason for giving thanks, the fault lies

with yourself. "

> Tecumseh, ee Chief

>