Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Welcome to the group! I don't know of anyone here in a trial for that agent (BMS188667 = CTLA4-Ig), but not everyone here posts. I see in the business news that Repligen and BMS are fighting over the patents, so there must be something good going on there, LOL. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Hi all. > > I ran across your group while I was looking for information on a > drug study that I have been participating in for Bristol Myers / > Squib. Reading through some of the posts here for the last few days > has helped to shed some light on my condition , as well as provide > some perspective. Even though my friends and family are understanding > about my condition , it is still hard for them to relate . I look > forward to reading about the different treatments that are > available , as well as how others in the same boat as I cope with the > situation. > > I have a question , I have just completed the trial phase of a new > biological from Bristol Myers/ Squib which is designated BMS188667. > I was wondering if anyone here participated in the same study , or > knows where I could look to find any feedback on it? I just completed > the trial phase , and I have the feeling I was getting the placebo > as there was no real improvement , and even a flare up in January > which did further joint damage. Either that or the drug just doesn't > work for me. Any help on this would be greatly appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 I would like to welcome you to the group. We all our trying to cope the best we know how. It is great to be able to talk to others who know how you feel, and what you go through. take care Tawny > > I ran across your group while I was looking for information on a > drug study that I have been participating in for Bristol Myers / > Squib. Reading through some of the posts here for the last few days > has helped to shed some light on my condition , as well as provide > some perspective. Even though my friends and family are understanding > about my condition , it is still hard for them to relate . I look > forward to reading about the different treatments that are > available , as well as how others in the same boat as I cope with the > situation. > > I have a question , I have just completed the trial phase of a new > biological from Bristol Myers/ Squib which is designated BMS188667. > I was wondering if anyone here participated in the same study , or > knows where I could look to find any feedback on it? I just completed > the trial phase , and I have the feeling I was getting the placebo > as there was no real improvement , and even a flare up in January > which did further joint damage. Either that or the drug just doesn't > work for me. Any help on this would be greatly appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 What is it? Is it similar to Humira? Hope everyone is okay, been busy here as usual but I'm still reading everything, just not much time to post. Our three little doggies have had lots of vet visits in the past week. Two had their teeth cleaned and a few pulled, one had an ear infection that just wouldn't go away. Finally on her 3rd check it is gone. It was so hard to leave the two for their cleaning as they have to put them out, do IV's, etc. I was so afraid they would not wake up but they are fine now. It seems little dogs (they are 3-7 pounds) have more teeth problems than big dogs. I now have to start trying to brush their teeth, besides using the enzyme rinse. Welcome everyone new. This group is great! If anyone talks to tell her to please sign back on. We all need each other here. Got my 5th Humira shot last night. It hurt just as bad as all the others but I think it was a little quicker this time. I'm not sure if my husband is getting quicker or if the burning was just a little shorter this time. It is working for me. My hands hardly hurt at all now and are barely swollen. My knees are okay too. Not perfect of course but I'm not limping and can walk the steps just fine! I'm staying away from potatoes and white bread also, those both seem to cause me pain and swelling. TGIF! Becky [ ] Hi all. > > I ran across your group while I was looking for information on a > drug study that I have been participating in for Bristol Myers / > Squib. Reading through some of the posts here for the last few days > has helped to shed some light on my condition , as well as provide > some perspective. Even though my friends and family are understanding > about my condition , it is still hard for them to relate . I look > forward to reading about the different treatments that are > available , as well as how others in the same boat as I cope with the > situation. > > I have a question , I have just completed the trial phase of a new > biological from Bristol Myers/ Squib which is designated BMS188667. > I was wondering if anyone here participated in the same study , or > knows where I could look to find any feedback on it? I just completed > the trial phase , and I have the feeling I was getting the placebo > as there was no real improvement , and even a flare up in January > which did further joint damage. Either that or the drug just doesn't > work for me. Any help on this would be greatly appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 Hi , I don't have any advice for you, but I just wanted to say that I'm in a similar place. My son is almost 4 months, and has plagio (maybe very mild brachy too, but we're not focused on that). We've been doing repositioning, lots more tummy time and upright time, stretches for his torticollis, etc. more aggressively for the last month. We think it's helped somewhat, but aren't convinced it'll eventually lead to self-correction. We're trying to figure out where in the northern NJ area to get him evaluated for a possible helmet, in part due to insurance concerns. My son also has eczema, although it's mild on his head, so I understand the skin concerns. Good luck with your son, I hope the helmet does its job before too long. -- > > Hello, > I've been reading and keeping up with you all for the last two months. My son Beaux is almost four months old, and I've been trying repositioning, to no avail, for his brachy/plagio. We visited Cranial Tech in Dallas yesterday and found everyone to be very helpful and friendly. My son was diagnosed as moderate for brachy/plagio, has a slight right neck tilt, and mild facial and ear assymetry. > > I'm a little overwhelmed by everything, but I know by banding him I am doing the best for him. My biggest concern is skin problems because he already has scalp eczema....although it is mild. > > My clinician thinks we can take care of this with one band, anywhere between 4 - 7 weeks (although I know that's just an estimate), and since he's so young, we will be doing weekly adjustments. > > I just wanted to formally introduce myself to the group. I know I'll need some support throughout this process. > > Thanks! > > Quote Link to comment Share on other sites More sharing options...
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