Re: Test Results are back ..

[Guest guest]

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

>  I got my test results back on Friday..I dont have hep. A or B or c thank

GOD...I have to go and get shots to prevent me from getting those and test shows

the reason i have cirrosis is my body is insulin resistance and my pancreas is

producing too much insulin and my liver cant get rid of the sugar and that what

caused the fatty liver to develop...I am very worried and I dont know what to

expect...but I know GOD has a plan and he will never forsake me . I know he can

and will heal me ....so please pray for me and my family  I have 2 young

children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email:    livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Can you live without a pancreas?  Lyncia

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 6:55:47 PM

Subject: Re: Test Results are back ..

 

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

>  I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family  I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email:    livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

I searched online and found that it is possible to live without a

pancreas. But there are also other enzymes which have to be replaced

when it is removed. They have also done some transplants, but they

have't had a good result with them. Jan

> Can you live without a pancreas?  Lyncia

>

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Wed, February 16, 2011 6:55:47 PM

> Subject: Re: Test Results are back ..

>

>

> Great to hear no hep virus. I would probably ask the dr. if they

> couldn't just take out that pancreas, and then take insulin shots for

> a normal level of insulin. But then he might look at me as if I were

> crazy. It is especially important for someone in your situation to

> get help with somethig like this since yo have people depending on

> you. Not to say everybody with it isn't important in some way. This

> disease has changed my life in so many ways, and amazingly quite a few

> of them have been for the better. I have 4 grown children, 14

> grandchildren and 1 great grandson. And the children especially still

> need help, and I have been able to have 2 grandchildren stay with me

> for periods of time as they moved from childhood to adulthood. An

> intermediate step from home with mom to home of their own. There are

> blessings to be found. I am sure it will bring your family closer

> together as you all pull to work this out. And of course prayers for

> all of you. That is almost a given here as everybody is in need of

> prayer as we ride this roller coaster of life with liver disease. Jan

>

> On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

> wrote:

>> Hey Friends

>>  I got my test results back on Friday..I dont have hep. A or B or c thank

>>GOD...I have to go and get shots to prevent me from getting those and test

shows

>>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>>producing too much insulin and my liver cant get rid of the sugar and that

what

>>caused the fatty liver to develop...I am very worried and I dont know what to

>>expect...but I know GOD has a plan and he will never forsake me . I know he

can

>>and will heal me ....so please pray for me and my family  I have 2 young

>>children and wife that depend on me everyday.

>>

>> Thanks !!

>>

>>

>>

>> ------------------------------------

>>

>> Group Email:    livercirrhosissupport

>> web address:

>> http://groups.yahoo.com/group/livercirrhosissupport/

>>

[Guest guest]

Hi Donny:  Do you take insulin?  My husband is also diabetic and that's how he

got cirrhosis, from fatty liver.  Since his liver transplant his blood sugar

has been real good, in the 100's.  He takes a sliding scale of humalog at meals

and lantus at bedtime.  Jackie

Subject: Test Results are back ..

To: livercirrhosissupport

Date: Wednesday, February 16, 2011, 7:42 PM

 

Hey Friends

I got my test results back on Friday..I dont have hep. A or B or c thank GOD...I

have to go and get shots to prevent me from getting those and test shows the

reason i have cirrosis is my body is insulin resistance and my pancreas is

producing too much insulin and my liver cant get rid of the sugar and that what

caused the fatty liver to develop...I am very worried and I dont know what to

expect...but I know GOD has a plan and he will never forsake me . I know he can

and will heal me ....so please pray for me and my family I have 2 young children

and wife that depend on me everyday.

Thanks !!

[Guest guest]

Here is what I know on the subject. The pancreas is what produces digestive

juices so we can digest food. These juices would digest us, except that they mix

together at just the right strength and time, and inject them in to the

digestive tract.

http://en.wikipedia.org/wiki/Pancreas

People who do not have a pancreas do not do very well. Life gets very

complicated with out one. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 5:57:18 PM

Subject: Re: Test Results are back ..

Can you live without a pancreas? Lyncia

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 6:55:47 PM

Subject: Re: Test Results are back ..

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

I am sorry I even mentioned taking it out. I know it was a serious

subject, but I have trouble sometimes being serious, and if a doctor

had told me that, I probably would have come back with just exactly

what I said in that post. My kidney doctor told me that since we know

my anemia isnt caused by low iron, and the procrit shots aren't doing

the job of getting it back to normal, at the most they keep it from

going down any more, he was going to refer me to a hematologist for a

bone marrow test to find out what was causing it. . I told him I

didn't want one, they hurt. He doesn't speak English well or

understand the nuances of the English language, so of course I had to

quickly tell him that of course I would have the test if that is what

he thought I needed, but I wasn't looking forward to it because I

heard they really hurt. I haven't looked online yet to see what a bone

marrow test can show as I have been too busy on Farmville. I admit

it, I am addicted, and it is all my son's fault because he invited me

after I said I would never do it. Or maybe I am just using that as an

excuse. Jan

>    Here is what I know on the subject. The pancreas is what produces digestive

> juices so we can digest food. These juices would digest us, except that they

mix

> together at just the right strength and time, and inject them in to the

> digestive tract.

> http://en.wikipedia.org/wiki/Pancreas

> People who do not have a pancreas do not do very well. Life gets very

> complicated with out one. Love, Bobby

>

>

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Wed, February 16, 2011 5:57:18 PM

> Subject: Re: Test Results are back ..

>

>

> Can you live without a pancreas?  Lyncia

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Wed, February 16, 2011 6:55:47 PM

> Subject: Re: Test Results are back ..

>

>

> Great to hear no hep virus. I would probably ask the dr. if they

> couldn't just take out that pancreas, and then take insulin shots for

> a normal level of insulin. But then he might look at me as if I were

> crazy. It is especially important for someone in your situation to

> get help with somethig like this since yo have people depending on

> you. Not to say everybody with it isn't important in some way. This

> disease has changed my life in so many ways, and amazingly quite a few

> of them have been for the better. I have 4 grown children, 14

> grandchildren and 1 great grandson. And the children especially still

> need help, and I have been able to have 2 grandchildren stay with me

> for periods of time as they moved from childhood to adulthood. An

> intermediate step from home with mom to home of their own. There are

> blessings to be found. I am sure it will bring your family closer

> together as you all pull to work this out. And of course prayers for

> all of you. That is almost a given here as everybody is in need of

> prayer as we ride this roller coaster of life with liver disease. Jan

>

> On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

> wrote:

>> Hey Friends

>>  I got my test results back on Friday..I dont have hep. A or B or c thank

>>GOD...I have to go and get shots to prevent me from getting those and test

shows

>>

>>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>>producing too much insulin and my liver cant get rid of the sugar and that

what

>

>>caused the fatty liver to develop...I am very worried and I dont know what to

>>expect...but I know GOD has a plan and he will never forsake me . I know he

can

>

>>and will heal me ....so please pray for me and my family  I have 2 young

>>children and wife that depend on me everyday.

>>

>> Thanks !!

>>

>>

>>

>> ------------------------------------

>>

>> Group Email:    livercirrhosissupport

>> web address:

>> http://groups.yahoo.com/group/livercirrhosissupport/

>>

[Guest guest]

Bobby I found the memorial page on facebook for and put in a friends

request, is this right or is it different being a group than an individual

person?

And since this is my place for information I need some. I had a colonoscopy,

routine as my mother had bowel cancer. Well I apparently had a few polyps this

time and one of them came back positive for cancer. They know they did not get

all of it because the polyp did not have clean edges. Now the doctor who looks

after this for me and who has for years said that he will not go back in and get

the rest of it till my cirrosos doctor tells him it is okay. And that I can

understand, but he said that other than physically removing as much as they can

by disection he would never do chemo or radiation or any other therapy on me as

I would not survive it.

And basically said that since I am dying anyway and the cirrosis will kill me

faster than bowel cancer I should try and just forget about it. Is this the

norm? Has anyone been treated successfully for cancer when they are in ESLD? I

have not yet met with a transplant team but he also said that having cancer

would make me unacceptable for a transplant. Is this true? I know that being a

Canuck things are different north of the border but basically all of the info I

have recieved here has helped me here a lot. I guess illness doesn't know about

borders.

As always thanks a million everyone, Joan

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 1:28:38 AM

Subject: Re: Test Results are back ..

Here is what I know on the subject. The pancreas is what produces digestive

juices so we can digest food. These juices would digest us, except that they mix

together at just the right strength and time, and inject them in to the

digestive tract.

http://en.wikipedia.org/wiki/Pancreas

People who do not have a pancreas do not do very well. Life gets very

complicated with out one. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 5:57:18 PM

Subject: Re: Test Results are back ..

Can you live without a pancreas? Lyncia

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 6:55:47 PM

Subject: Re: Test Results are back ..

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Don't be sorry Jan. I took you as serious, because it is one option. There are

several organs we can live without, like one kidney, your spleen, and even part

of your liver. My family members are always asking if they cant just take out my

spleen because it hurts, but when you look in the literature, the standard

remedys for liver disease are not hard to find, and there doesnt seem to be a

lot of deviation from the standard of care, transplant when decompenstion puts

the risk of dying from complications as higher than the risk of dying from the

transplant. They always say the " risks outweight the benefits " with the more

uncommon procedures.

I cant blame you for distracting your self with farm ville. A lot of my friends

do it.

Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 1:14:38 AM

Subject: Re: Test Results are back ..

I am sorry I even mentioned taking it out. I know it was a serious

subject, but I have trouble sometimes being serious, and if a doctor

had told me that, I probably would have come back with just exactly

what I said in that post. My kidney doctor told me that since we know

my anemia isnt caused by low iron, and the procrit shots aren't doing

the job of getting it back to normal, at the most they keep it from

going down any more, he was going to refer me to a hematologist for a

bone marrow test to find out what was causing it. . I told him I

didn't want one, they hurt. He doesn't speak English well or

understand the nuances of the English language, so of course I had to

quickly tell him that of course I would have the test if that is what

he thought I needed, but I wasn't looking forward to it because I

heard they really hurt. I haven't looked online yet to see what a bone

marrow test can show as I have been too busy on Farmville. I admit

it, I am addicted, and it is all my son's fault because he invited me

after I said I would never do it. Or maybe I am just using that as an

excuse. Jan

> Here is what I know on the subject. The pancreas is what produces digestive

> juices so we can digest food. These juices would digest us, except that they

>mix

> together at just the right strength and time, and inject them in to the

> digestive tract.

> http://en.wikipedia.org/wiki/Pancreas

> People who do not have a pancreas do not do very well. Life gets very

> complicated with out one. Love, Bobby

>

>

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Wed, February 16, 2011 5:57:18 PM

> Subject: Re: Test Results are back ..

>

>

> Can you live without a pancreas? Lyncia

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Wed, February 16, 2011 6:55:47 PM

> Subject: Re: Test Results are back ..

>

>

> Great to hear no hep virus. I would probably ask the dr. if they

> couldn't just take out that pancreas, and then take insulin shots for

> a normal level of insulin. But then he might look at me as if I were

> crazy. It is especially important for someone in your situation to

> get help with somethig like this since yo have people depending on

> you. Not to say everybody with it isn't important in some way. This

> disease has changed my life in so many ways, and amazingly quite a few

> of them have been for the better. I have 4 grown children, 14

> grandchildren and 1 great grandson. And the children especially still

> need help, and I have been able to have 2 grandchildren stay with me

> for periods of time as they moved from childhood to adulthood. An

> intermediate step from home with mom to home of their own. There are

> blessings to be found. I am sure it will bring your family closer

> together as you all pull to work this out. And of course prayers for

> all of you. That is almost a given here as everybody is in need of

> prayer as we ride this roller coaster of life with liver disease. Jan

>

> On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

> wrote:

>> Hey Friends

>> I got my test results back on Friday..I dont have hep. A or B or c thank

>>GOD...I have to go and get shots to prevent me from getting those and test

>shows

>>

>>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>>producing too much insulin and my liver cant get rid of the sugar and that

what

>

>>caused the fatty liver to develop...I am very worried and I dont know what to

>>expect...but I know GOD has a plan and he will never forsake me . I know he

can

>

>>and will heal me ....so please pray for me and my family I have 2 young

>>children and wife that depend on me everyday.

>>

>> Thanks !!

>>

>>

>>

>> ------------------------------------

>>

>> Group Email: livercirrhosissupport

>> web address:

>> http://groups.yahoo.com/group/livercirrhosissupport/

>>

[Guest guest]

Any individual can start thier own group. Adding people seemed kind of hard,

cause I tried to add Penny and some others here, but it woldnt recognize that

she is in my friend list. Others in my friend list popped right up when I

clicked " add people to this group " . I would assume that if you look up me on

face book, you could join from my page, or yo might need to " request " friends

with me. No problem. though, just send the request and Ill add you.

Without pissing off to many people, just let me say that you are being fed a

line of poopoo. , Jackie's husband had to have chemo in order to make his

liver cancer tumors smaller, and only then wouold they do a transplant. Thier

thinking is that the cancer spreads after it reaches a certain size, and if they

get the tumors to shrink, it would buy him time to get a liver transplant before

his tumor spreads outside the liver. It is true that in the US, certain cancer

will disqualify you for a transplant. BUT, primary liver cancer if it is smaller

than 5 CM will GET you a transplant, and in fact send you to the front of the

line. When they say that chemo or radiation WILL kill you, how do they know? Do

they know your MELD score? or Childs PUGH score? Did they base this assesment on

those scores? If not, how would they know that you are dying? When I get this

kind of malfeasance going on, I always get a second opinion. I have been to a

few quacks, and always FIRE them, and let a real doctor take over. What your

doctor said sounds very cynical, and it sounds as if you are not worth their

time, cause you are just going to die anyway. WOW. That is a shitty attitude.

Sorry. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 9:21:06 AM

Subject: Re: Test Results are back ..

Bobby I found the memorial page on facebook for and put in a friends

request, is this right or is it different being a group than an individual

person?

And since this is my place for information I need some. I had a colonoscopy,

routine as my mother had bowel cancer. Well I apparently had a few polyps this

time and one of them came back positive for cancer. They know they did not get

all of it because the polyp did not have clean edges. Now the doctor who looks

after this for me and who has for years said that he will not go back in and get

the rest of it till my cirrosos doctor tells him it is okay. And that I can

understand, but he said that other than physically removing as much as they can

by disection he would never do chemo or radiation or any other therapy on me as

I would not survive it.

And basically said that since I am dying anyway and the cirrosis will kill me

faster than bowel cancer I should try and just forget about it. Is this the

norm? Has anyone been treated successfully for cancer when they are in ESLD? I

have not yet met with a transplant team but he also said that having cancer

would make me unacceptable for a transplant. Is this true? I know that being a

Canuck things are different north of the border but basically all of the info I

have recieved here has helped me here a lot. I guess illness doesn't know about

borders.

As always thanks a million everyone, Joan

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 1:28:38 AM

Subject: Re: Test Results are back ..

Here is what I know on the subject. The pancreas is what produces digestive

juices so we can digest food. These juices would digest us, except that they mix

together at just the right strength and time, and inject them in to the

digestive tract.

http://en.wikipedia.org/wiki/Pancreas

People who do not have a pancreas do not do very well. Life gets very

complicated with out one. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 5:57:18 PM

Subject: Re: Test Results are back ..

Can you live without a pancreas? Lyncia

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 6:55:47 PM

Subject: Re: Test Results are back ..

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Kind of off the subject, but I have serious doubts about going the transplant

option.  I have had several friends recently waiting on the list, and they are

so sick.  When I think of going through the near end waiting on the list, the

reality of having a successful transplant, but eventually reaching that extreme

sickness again.  Just seems like going near to the end twice.  Once will be

to

many for me.  Am I wrong or misinformed.  Not meaning to be a bummer, but just

curious about that. 

 Dave

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 2:20:06 PM

Subject: Re: Test Results are back ..

 

Any individual can start thier own group. Adding people seemed kind of hard,

cause I tried to add Penny and some others here, but it woldnt recognize that

she is in my friend list. Others in my friend list popped right up when I

clicked " add people to this group " . I would assume that if you look up me on

face book, you could join from my page, or yo might need to " request " friends

with me. No problem. though, just send the request and Ill add you.

Without pissing off to many people, just let me say that you are being fed a

line of poopoo. , Jackie's husband had to have chemo in order to make his

liver cancer tumors smaller, and only then wouold they do a transplant. Thier

thinking is that the cancer spreads after it reaches a certain size, and if they

get the tumors to shrink, it would buy him time to get a liver transplant before

his tumor spreads outside the liver. It is true that in the US, certain cancer

will disqualify you for a transplant. BUT, primary liver cancer if it is smaller

than 5 CM will GET you a transplant, and in fact send you to the front of the

line. When they say that chemo or radiation WILL kill you, how do they know? Do

they know your MELD score? or Childs PUGH score? Did they base this assesment on

those scores? If not, how would they know that you are dying? When I get this

kind of malfeasance going on, I always get a second opinion. I have been to a

few quacks, and always FIRE them, and let a real doctor take over. What your

doctor said sounds very cynical, and it sounds as if you are not worth their

time, cause you are just going to die anyway. WOW. That is a shitty attitude.

Sorry. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 9:21:06 AM

Subject: Re: Test Results are back ..

Bobby I found the memorial page on facebook for and put in a friends

request, is this right or is it different being a group than an individual

person?

And since this is my place for information I need some. I had a colonoscopy,

routine as my mother had bowel cancer. Well I apparently had a few polyps this

time and one of them came back positive for cancer. They know they did not get

all of it because the polyp did not have clean edges. Now the doctor who looks

after this for me and who has for years said that he will not go back in and get

the rest of it till my cirrosos doctor tells him it is okay. And that I can

understand, but he said that other than physically removing as much as they can

by disection he would never do chemo or radiation or any other therapy on me as

I would not survive it.

And basically said that since I am dying anyway and the cirrosis will kill me

faster than bowel cancer I should try and just forget about it. Is this the

norm? Has anyone been treated successfully for cancer when they are in ESLD? I

have not yet met with a transplant team but he also said that having cancer

would make me unacceptable for a transplant. Is this true? I know that being a

Canuck things are different north of the border but basically all of the info I

have recieved here has helped me here a lot. I guess illness doesn't know about

borders.

As always thanks a million everyone, Joan

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 1:28:38 AM

Subject: Re: Test Results are back ..

Here is what I know on the subject. The pancreas is what produces digestive

juices so we can digest food. These juices would digest us, except that they mix

together at just the right strength and time, and inject them in to the

digestive tract.

http://en.wikipedia.org/wiki/Pancreas

People who do not have a pancreas do not do very well. Life gets very

complicated with out one. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 5:57:18 PM

Subject: Re: Test Results are back ..

Can you live without a pancreas? Lyncia

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 6:55:47 PM

Subject: Re: Test Results are back ..

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Good answer, Bobby!  I just read it to and we both agree, if you run into

a quack or cynical dr, run--do not walk--to find another caring professional who

will help you.  After had his chemo he did get very sick, and as a matter

of fact wound up in the hospital.  One of the drs in his local liver group came

in and told us that quite frankly we shouldn't pin our hopes on a transplant. 

After a short conversation I ushered him out of the room and " thanked him for

his time. " (in the hopes that he would never darken our doorstep again)  Then I

told my husband that we believe in a God who cares about people, not

statistics.  If He wants to have a liver, he will get one.  He knows when

and where it's coming from.  Well, you all know the outcome of that. 

Transplant May 26, 2010.  I believe the same is true for all of us.  We don't

have expiration dates stamped on the soles of our feet.  Never, never give

up!  Praying for you,

Joan.  Love, Jackie

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Dave

I have always said, since the beginning or my battle with Hep C and then the

cancer - that I will not have a transplant. Now, after saying that, I am also

not in any kind of jeopardy where they are going to suggest one either.

I am currently 60 yrs old. Last year, my life was totally dumped upside down

and I didn't know how to get off the roller coaster. It sort of ended with the

sudden death of my husband on Christmas Eve. Then, right at the beginning of

the new year (the 1st) we learned that my youngest brother had been diagnosed

with inoperable colon cancer. Eight days later, they were finally having a

Celebration of Life for my husband and we find out that the brother has cancer

all through him. His days were definitely numbered. Well, you know what

happened 18 days later.

At his service, just before it started, I stood up and looked behind me - there

were over600 people there!!! Can you believe that he touched the lives of more

than 600 people in (I know that you know where that is)?? If anyone

deserved a transplant, it would have been him; but it was away too late.

Me, it'll be liver cancer that will take me out! Well, spiritually I'm fine

with that!! Battling the Hep C was hard work for 6 years. Then, I just get the

damn virus beaten out of me and along comes cancer!!!! I'll continue to do what

I can about the HCC; but, I am not going to take a liver from a young person

that then wouldn't have to go through the horrible pain of the liver shutting

down. I've lived my life - good and bad. I've made my peace inside. Most days

I am at peace with everyone and everything around me.

The odds of surviving liver cancer for 5 years are sure not good; but, it is

what it is. My Higher Power knows what is going on and I just need to show up

and let him guide me wherever I have to go.

Gloria

________________________________

Kind of off the subject, but I have serious doubts about going the transplant

option. I have had several friends recently waiting on the list, and they are

so sick. When I think of going through the near end waiting on the list, the

reality of having a successful transplant, but eventually reaching that extreme

sickness again. Just seems like going near to the end twice. Once will be to

many for me. Am I wrong or misinformed. Not meaning to be a bummer, but just

curious about that.

Dave

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 2:20:06 PM

Subject: Re: Test Results are back ..

Any individual can start thier own group. Adding people seemed kind of hard,

cause I tried to add Penny and some others here, but it woldnt recognize that

she is in my friend list. Others in my friend list popped right up when I

clicked " add people to this group " . I would assume that if you look up me on

face book, you could join from my page, or yo might need to " request " friends

with me. No problem. though, just send the request and Ill add you.

Without pissing off to many people, just let me say that you are being fed a

line of poopoo. , Jackie's husband had to have chemo in order to make his

liver cancer tumors smaller, and only then wouold they do a transplant. Thier

thinking is that the cancer spreads after it reaches a certain size, and if they

get the tumors to shrink, it would buy him time to get a liver transplant before

his tumor spreads outside the liver. It is true that in the US, certain cancer

will disqualify you for a transplant. BUT, primary liver cancer if it is smaller

than 5 CM will GET you a transplant, and in fact send you to the front of the

line. When they say that chemo or radiation WILL kill you, how do they know? Do

they know your MELD score? or Childs PUGH score? Did they base this assesment on

those scores? If not, how would they know that you are dying? When I get this

kind of malfeasance going on, I always get a second opinion. I have been to a

few quacks, and always FIRE them, and let a real doctor take over. What your

doctor said sounds very cynical, and it sounds as if you are not worth their

time, cause you are just going to die anyway. WOW. That is a shitty attitude.

Sorry. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 9:21:06 AM

Subject: Re: Test Results are back ..

Bobby I found the memorial page on facebook for and put in a friends

request, is this right or is it different being a group than an individual

person?

And since this is my place for information I need some. I had a colonoscopy,

routine as my mother had bowel cancer. Well I apparently had a few polyps this

time and one of them came back positive for cancer. They know they did not get

all of it because the polyp did not have clean edges. Now the doctor who looks

after this for me and who has for years said that he will not go back in and get

the rest of it till my cirrosos doctor tells him it is okay. And that I can

understand, but he said that other than physically removing as much as they can

by disection he would never do chemo or radiation or any other therapy on me as

I would not survive it.

And basically said that since I am dying anyway and the cirrosis will kill me

faster than bowel cancer I should try and just forget about it. Is this the

norm? Has anyone been treated successfully for cancer when they are in ESLD? I

have not yet met with a transplant team but he also said that having cancer

would make me unacceptable for a transplant. Is this true? I know that being a

Canuck things are different north of the border but basically all of the info I

have recieved here has helped me here a lot. I guess illness doesn't know about

borders.

As always thanks a million everyone, Joan

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 1:28:38 AM

Subject: Re: Test Results are back ..

Here is what I know on the subject. The pancreas is what produces digestive

juices so we can digest food. These juices would digest us, except that they mix

together at just the right strength and time, and inject them in to the

digestive tract.

http://en.wikipedia.org/wiki/Pancreas

People who do not have a pancreas do not do very well. Life gets very

complicated with out one. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 5:57:18 PM

Subject: Re: Test Results are back ..

Can you live without a pancreas? Lyncia

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 6:55:47 PM

Subject: Re: Test Results are back ..

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Amen, my experation date was 9 years ago. Ha Ha I am still around.

And have handled a lot more problems since unrelated to the cirrhosis

which was diagnosed at that time. Maybe I should stop in that office

the next time I am in Yuma if the dr. is still there. Jan

On Thu, Feb 17, 2011 at 4:49 PM, Jackie Ellermann

wrote:

> Good answer, Bobby!  I just read it to and we both agree, if you run into

a quack or cynical dr, run--do not walk--to find another caring professional who

will help you.  After had his chemo he did get very sick, and as a matter

of fact wound up in the hospital.  One of the drs in his local liver group came

in and told us that quite frankly we shouldn't pin our hopes on a transplant. 

After a short conversation I ushered him out of the room and " thanked him for

his time. " (in the hopes that he would never darken our doorstep again)  Then I

told my husband that we believe in a God who cares about people, not

statistics.  If He wants to have a liver, he will get one.  He knows when

and where it's coming from.  Well, you all know the outcome of that.  Transplant

May 26, 2010.  I believe the same is true for all of us.  We don't have

expiration dates stamped on the soles of our feet.  Never, never give up! 

Praying for you,

>  Joan.  Love, Jackie

>

>

>> Hey Friends

>> I got my test results back on Friday..I dont have hep. A or B or c thank

>>GOD...I have to go and get shots to prevent me from getting those and test

shows

>>

>>

>>

>>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>>producing too much insulin and my liver cant get rid of the sugar and that

what

>

>>caused the fatty liver to develop...I am very worried and I dont know what to

>>expect...but I know GOD has a plan and he will never forsake me . I know he

can

>

>>and will heal me ....so please pray for me and my family I have 2 young

>>children and wife that depend on me everyday.

>>

>> Thanks !!

>>

>>

>>

>> ------------------------------------

>>

>> Group Email: livercirrhosissupport

>> web address:

>> http://groups.yahoo.com/group/livercirrhosissupport/

>>

[Guest guest]

Very well said Gloria..I feel very much the same way. Dave

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 6:05:01 PM

Subject: Re: Test Results are back ..

 

Dave

I have always said, since the beginning or my battle with Hep C and then the

cancer - that I will not have a transplant. Now, after saying that, I am also

not in any kind of jeopardy where they are going to suggest one either.

I am currently 60 yrs old. Last year, my life was totally dumped upside down

and I didn't know how to get off the roller coaster. It sort of ended with the

sudden death of my husband on Christmas Eve. Then, right at the beginning of

the new year (the 1st) we learned that my youngest brother had been diagnosed

with inoperable colon cancer. Eight days later, they were finally having a

Celebration of Life for my husband and we find out that the brother has cancer

all through him. His days were definitely numbered. Well, you know what

happened 18 days later.

At his service, just before it started, I stood up and looked behind me - there

were over600 people there!!! Can you believe that he touched the lives of more

than 600 people in (I know that you know where that is)?? If anyone

deserved a transplant, it would have been him; but it was away too late.

Me, it'll be liver cancer that will take me out! Well, spiritually I'm fine

with that!! Battling the Hep C was hard work for 6 years. Then, I just get the

damn virus beaten out of me and along comes cancer!!!! I'll continue to do what

I can about the HCC; but, I am not going to take a liver from a young person

that then wouldn't have to go through the horrible pain of the liver shutting

down. I've lived my life - good and bad. I've made my peace inside. Most days

I am at peace with everyone and everything around me.

The odds of surviving liver cancer for 5 years are sure not good; but, it is

what it is. My Higher Power knows what is going on and I just need to show up

and let him guide me wherever I have to go.

Gloria

________________________________

Kind of off the subject, but I have serious doubts about going the transplant

option. I have had several friends recently waiting on the list, and they are

so sick. When I think of going through the near end waiting on the list, the

reality of having a successful transplant, but eventually reaching that extreme

sickness again. Just seems like going near to the end twice. Once will be to

many for me. Am I wrong or misinformed. Not meaning to be a bummer, but just

curious about that.

Dave

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 2:20:06 PM

Subject: Re: Test Results are back ..

Any individual can start thier own group. Adding people seemed kind of hard,

cause I tried to add Penny and some others here, but it woldnt recognize that

she is in my friend list. Others in my friend list popped right up when I

clicked " add people to this group " . I would assume that if you look up me on

face book, you could join from my page, or yo might need to " request " friends

with me. No problem. though, just send the request and Ill add you.

Without pissing off to many people, just let me say that you are being fed a

line of poopoo. , Jackie's husband had to have chemo in order to make his

liver cancer tumors smaller, and only then wouold they do a transplant. Thier

thinking is that the cancer spreads after it reaches a certain size, and if they

get the tumors to shrink, it would buy him time to get a liver transplant before

his tumor spreads outside the liver. It is true that in the US, certain cancer

will disqualify you for a transplant. BUT, primary liver cancer if it is smaller

than 5 CM will GET you a transplant, and in fact send you to the front of the

line. When they say that chemo or radiation WILL kill you, how do they know? Do

they know your MELD score? or Childs PUGH score? Did they base this assesment on

those scores? If not, how would they know that you are dying? When I get this

kind of malfeasance going on, I always get a second opinion. I have been to a

few quacks, and always FIRE them, and let a real doctor take over. What your

doctor said sounds very cynical, and it sounds as if you are not worth their

time, cause you are just going to die anyway. WOW. That is a shitty attitude.

Sorry. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 9:21:06 AM

Subject: Re: Test Results are back ..

Bobby I found the memorial page on facebook for and put in a friends

request, is this right or is it different being a group than an individual

person?

And since this is my place for information I need some. I had a colonoscopy,

routine as my mother had bowel cancer. Well I apparently had a few polyps this

time and one of them came back positive for cancer. They know they did not get

all of it because the polyp did not have clean edges. Now the doctor who looks

after this for me and who has for years said that he will not go back in and get

the rest of it till my cirrosos doctor tells him it is okay. And that I can

understand, but he said that other than physically removing as much as they can

by disection he would never do chemo or radiation or any other therapy on me as

I would not survive it.

And basically said that since I am dying anyway and the cirrosis will kill me

faster than bowel cancer I should try and just forget about it. Is this the

norm? Has anyone been treated successfully for cancer when they are in ESLD? I

have not yet met with a transplant team but he also said that having cancer

would make me unacceptable for a transplant. Is this true? I know that being a

Canuck things are different north of the border but basically all of the info I

have recieved here has helped me here a lot. I guess illness doesn't know about

borders.

As always thanks a million everyone, Joan

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 1:28:38 AM

Subject: Re: Test Results are back ..

Here is what I know on the subject. The pancreas is what produces digestive

juices so we can digest food. These juices would digest us, except that they mix

together at just the right strength and time, and inject them in to the

digestive tract.

http://en.wikipedia.org/wiki/Pancreas

People who do not have a pancreas do not do very well. Life gets very

complicated with out one. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 5:57:18 PM

Subject: Re: Test Results are back ..

Can you live without a pancreas? Lyncia

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 6:55:47 PM

Subject: Re: Test Results are back ..

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

I'm 60 also Gloria.  I have already out lived so many of my friends that have

had this disease.  I already feel ahead of the game.  I enjoy your

spirituality

and know from where some tenants of it arise, I believe.  Your reality may be

my

future according to the doc's.  They always raise the cancer issue as a future

concern for me.  I do not fear death, just the process, so I hope my process

will be quick when and how it comes.  I am sorry for your recent family

losses. 

Some I never get over it seems, just have learned to live with them. 

 Dave

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 6:05:01 PM

Subject: Re: Test Results are back ..

 

Dave

I have always said, since the beginning or my battle with Hep C and then the

cancer - that I will not have a transplant. Now, after saying that, I am also

not in any kind of jeopardy where they are going to suggest one either.

I am currently 60 yrs old. Last year, my life was totally dumped upside down

and I didn't know how to get off the roller coaster. It sort of ended with the

sudden death of my husband on Christmas Eve. Then, right at the beginning of

the new year (the 1st) we learned that my youngest brother had been diagnosed

with inoperable colon cancer. Eight days later, they were finally having a

Celebration of Life for my husband and we find out that the brother has cancer

all through him. His days were definitely numbered. Well, you know what

happened 18 days later.

At his service, just before it started, I stood up and looked behind me - there

were over600 people there!!! Can you believe that he touched the lives of more

than 600 people in (I know that you know where that is)?? If anyone

deserved a transplant, it would have been him; but it was away too late.

Me, it'll be liver cancer that will take me out! Well, spiritually I'm fine

with that!! Battling the Hep C was hard work for 6 years. Then, I just get the

damn virus beaten out of me and along comes cancer!!!! I'll continue to do what

I can about the HCC; but, I am not going to take a liver from a young person

that then wouldn't have to go through the horrible pain of the liver shutting

down. I've lived my life - good and bad. I've made my peace inside. Most days

I am at peace with everyone and everything around me.

The odds of surviving liver cancer for 5 years are sure not good; but, it is

what it is. My Higher Power knows what is going on and I just need to show up

and let him guide me wherever I have to go.

Gloria

________________________________

Kind of off the subject, but I have serious doubts about going the transplant

option. I have had several friends recently waiting on the list, and they are

so sick. When I think of going through the near end waiting on the list, the

reality of having a successful transplant, but eventually reaching that extreme

sickness again. Just seems like going near to the end twice. Once will be to

many for me. Am I wrong or misinformed. Not meaning to be a bummer, but just

curious about that.

Dave

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 2:20:06 PM

Subject: Re: Test Results are back ..

Any individual can start thier own group. Adding people seemed kind of hard,

cause I tried to add Penny and some others here, but it woldnt recognize that

she is in my friend list. Others in my friend list popped right up when I

clicked " add people to this group " . I would assume that if you look up me on

face book, you could join from my page, or yo might need to " request " friends

with me. No problem. though, just send the request and Ill add you.

Without pissing off to many people, just let me say that you are being fed a

line of poopoo. , Jackie's husband had to have chemo in order to make his

liver cancer tumors smaller, and only then wouold they do a transplant. Thier

thinking is that the cancer spreads after it reaches a certain size, and if they

get the tumors to shrink, it would buy him time to get a liver transplant before

his tumor spreads outside the liver. It is true that in the US, certain cancer

will disqualify you for a transplant. BUT, primary liver cancer if it is smaller

than 5 CM will GET you a transplant, and in fact send you to the front of the

line. When they say that chemo or radiation WILL kill you, how do they know? Do

they know your MELD score? or Childs PUGH score? Did they base this assesment on

those scores? If not, how would they know that you are dying? When I get this

kind of malfeasance going on, I always get a second opinion. I have been to a

few quacks, and always FIRE them, and let a real doctor take over. What your

doctor said sounds very cynical, and it sounds as if you are not worth their

time, cause you are just going to die anyway. WOW. That is a shitty attitude.

Sorry. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 9:21:06 AM

Subject: Re: Test Results are back ..

Bobby I found the memorial page on facebook for and put in a friends

request, is this right or is it different being a group than an individual

person?

And since this is my place for information I need some. I had a colonoscopy,

routine as my mother had bowel cancer. Well I apparently had a few polyps this

time and one of them came back positive for cancer. They know they did not get

all of it because the polyp did not have clean edges. Now the doctor who looks

after this for me and who has for years said that he will not go back in and get

the rest of it till my cirrosos doctor tells him it is okay. And that I can

understand, but he said that other than physically removing as much as they can

by disection he would never do chemo or radiation or any other therapy on me as

I would not survive it.

And basically said that since I am dying anyway and the cirrosis will kill me

faster than bowel cancer I should try and just forget about it. Is this the

norm? Has anyone been treated successfully for cancer when they are in ESLD? I

have not yet met with a transplant team but he also said that having cancer

would make me unacceptable for a transplant. Is this true? I know that being a

Canuck things are different north of the border but basically all of the info I

have recieved here has helped me here a lot. I guess illness doesn't know about

borders.

As always thanks a million everyone, Joan

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 1:28:38 AM

Subject: Re: Test Results are back ..

Here is what I know on the subject. The pancreas is what produces digestive

juices so we can digest food. These juices would digest us, except that they mix

together at just the right strength and time, and inject them in to the

digestive tract.

http://en.wikipedia.org/wiki/Pancreas

People who do not have a pancreas do not do very well. Life gets very

complicated with out one. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 5:57:18 PM

Subject: Re: Test Results are back ..

Can you live without a pancreas? Lyncia

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 6:55:47 PM

Subject: Re: Test Results are back ..

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

I thank God for all of you.  Everything you share gives me insight into what my

brother is dealing with and what lies ahead.  My question for you all is this:

is severe stomach cramping associated with this disease.  My brother was

complaining about it today, but resistant to my suggestion that he ask his

doctor.

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

It can cause cramping, especially with ascites or wrong foods...there are so

many complications associated with this deal...if it is persistent he should

likely check with the doc. Dave

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 8:40:31 PM

Subject: Re: Test Results are back ..

 

I thank God for all of you.  Everything you share gives me insight into what my

brother is dealing with and what lies ahead.  My question for you all is this:

is severe stomach cramping associated with this disease.  My brother was

complaining about it today, but resistant to my suggestion that he ask his

doctor.

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

I dont think you are wrong at all. I know some who were sicker after the

transplant, and others who went right up to the edge, and then got well, and

live a normal life. Real, one of our members here went to the hospital,

feeling really not too bad at all, but her number was called, and she got her

liver, then a complication put her back in the hospital, and she nearly died,

and said that she was so so much sicker after the transplant. Now she is fine

that I know of. My dear loved one Ardis choose to drink like a fish, and she

didnt last very long, and really was sick for only about two years, really

unable to enjoy life for about two months. I think about it all the time, and we

have these kind of talks all the time. I am like you. It's the suffering I don't

think I can do. Last weekend I was in so much pain, I dont think I have ever had

pain like that even after surgery! This is despite morphine for my pain. I could

eat a pound of it on days like that, but it wouldnt make any difference. Bob

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 4:28:06 PM

Subject: Re: Test Results are back ..

Kind of off the subject, but I have serious doubts about going the transplant

option. I have had several friends recently waiting on the list, and they are

so sick. When I think of going through the near end waiting on the list, the

reality of having a successful transplant, but eventually reaching that extreme

sickness again. Just seems like going near to the end twice. Once will be to

many for me. Am I wrong or misinformed. Not meaning to be a bummer, but just

curious about that.

Dave

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 2:20:06 PM

Subject: Re: Test Results are back ..

Any individual can start thier own group. Adding people seemed kind of hard,

cause I tried to add Penny and some others here, but it woldnt recognize that

she is in my friend list. Others in my friend list popped right up when I

clicked " add people to this group " . I would assume that if you look up me on

face book, you could join from my page, or yo might need to " request " friends

with me. No problem. though, just send the request and Ill add you.

Without pissing off to many people, just let me say that you are being fed a

line of poopoo. , Jackie's husband had to have chemo in order to make his

liver cancer tumors smaller, and only then wouold they do a transplant. Thier

thinking is that the cancer spreads after it reaches a certain size, and if they

get the tumors to shrink, it would buy him time to get a liver transplant before

his tumor spreads outside the liver. It is true that in the US, certain cancer

will disqualify you for a transplant. BUT, primary liver cancer if it is smaller

than 5 CM will GET you a transplant, and in fact send you to the front of the

line. When they say that chemo or radiation WILL kill you, how do they know? Do

they know your MELD score? or Childs PUGH score? Did they base this assesment on

those scores? If not, how would they know that you are dying? When I get this

kind of malfeasance going on, I always get a second opinion. I have been to a

few quacks, and always FIRE them, and let a real doctor take over. What your

doctor said sounds very cynical, and it sounds as if you are not worth their

time, cause you are just going to die anyway. WOW. That is a shitty attitude.

Sorry. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 9:21:06 AM

Subject: Re: Test Results are back ..

Bobby I found the memorial page on facebook for and put in a friends

request, is this right or is it different being a group than an individual

person?

And since this is my place for information I need some. I had a colonoscopy,

routine as my mother had bowel cancer. Well I apparently had a few polyps this

time and one of them came back positive for cancer. They know they did not get

all of it because the polyp did not have clean edges. Now the doctor who looks

after this for me and who has for years said that he will not go back in and get

the rest of it till my cirrosos doctor tells him it is okay. And that I can

understand, but he said that other than physically removing as much as they can

by disection he would never do chemo or radiation or any other therapy on me as

I would not survive it.

And basically said that since I am dying anyway and the cirrosis will kill me

faster than bowel cancer I should try and just forget about it. Is this the

norm? Has anyone been treated successfully for cancer when they are in ESLD? I

have not yet met with a transplant team but he also said that having cancer

would make me unacceptable for a transplant. Is this true? I know that being a

Canuck things are different north of the border but basically all of the info I

have recieved here has helped me here a lot. I guess illness doesn't know about

borders.

As always thanks a million everyone, Joan

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 1:28:38 AM

Subject: Re: Test Results are back ..

Here is what I know on the subject. The pancreas is what produces digestive

juices so we can digest food. These juices would digest us, except that they mix

together at just the right strength and time, and inject them in to the

digestive tract.

http://en.wikipedia.org/wiki/Pancreas

People who do not have a pancreas do not do very well. Life gets very

complicated with out one. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 5:57:18 PM

Subject: Re: Test Results are back ..

Can you live without a pancreas? Lyncia

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 6:55:47 PM

Subject: Re: Test Results are back ..

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

AMEN. And hats off for a can do attitude, never giving up. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 4:49:34 PM

Subject: Re: Test Results are back ..

Good answer, Bobby! I just read it to and we both agree, if you run into a

quack or cynical dr, run--do not walk--to find another caring professional who

will help you. After had his chemo he did get very sick, and as a matter

of fact wound up in the hospital. One of the drs in his local liver group came

in and told us that quite frankly we shouldn't pin our hopes on a transplant.

After a short conversation I ushered him out of the room and " thanked him for

his time. " (in the hopes that he would never darken our doorstep again) Then I

told my husband that we believe in a God who cares about people, not

statistics. If He wants to have a liver, he will get one. He knows when

and where it's coming from. Well, you all know the outcome of that. Transplant

May 26, 2010. I believe the same is true for all of us. We don't have

expiration dates stamped on the soles of our feet. Never, never give up!

Praying for you,

Joan. Love, Jackie

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

I am really sorry about your husband! Did I already tell you that? I do not

remember hearing about it. I only knew you were really mad because he wasnt very

supportive of you in this really hard time. You have survived. At the Rocky

Mountain cancer center here in Denver, there are pictures of cancer survivors on

the walls. I know that they can never know for sure of cancer will come back,

but still they fight like you are. Transplant is one option. You have a right to

choose what ever you want to choose. I respect your choice. When I was first

diagnosed, I thought I had to get on that list at any cost, but now I feel much

much different. I do not know what I would choose to day if I had to. Gloria,

can they at least try to cut out the tumor?

Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 5:05:01 PM

Subject: Re: Test Results are back ..

Dave

I have always said, since the beginning or my battle with Hep C and then the

cancer - that I will not have a transplant. Now, after saying that, I am also

not in any kind of jeopardy where they are going to suggest one either.

I am currently 60 yrs old. Last year, my life was totally dumped upside down

and I didn't know how to get off the roller coaster. It sort of ended with the

sudden death of my husband on Christmas Eve. Then, right at the beginning of

the new year (the 1st) we learned that my youngest brother had been diagnosed

with inoperable colon cancer. Eight days later, they were finally having a

Celebration of Life for my husband and we find out that the brother has cancer

all through him. His days were definitely numbered. Well, you know what

happened 18 days later.

At his service, just before it started, I stood up and looked behind me - there

were over600 people there!!! Can you believe that he touched the lives of more

than 600 people in (I know that you know where that is)?? If anyone

deserved a transplant, it would have been him; but it was away too late.

Me, it'll be liver cancer that will take me out! Well, spiritually I'm fine

with that!! Battling the Hep C was hard work for 6 years. Then, I just get the

damn virus beaten out of me and along comes cancer!!!! I'll continue to do what

I can about the HCC; but, I am not going to take a liver from a young person

that then wouldn't have to go through the horrible pain of the liver shutting

down. I've lived my life - good and bad. I've made my peace inside. Most days

I am at peace with everyone and everything around me.

The odds of surviving liver cancer for 5 years are sure not good; but, it is

what it is. My Higher Power knows what is going on and I just need to show up

and let him guide me wherever I have to go.

Gloria

________________________________

Kind of off the subject, but I have serious doubts about going the transplant

option. I have had several friends recently waiting on the list, and they are

so sick. When I think of going through the near end waiting on the list, the

reality of having a successful transplant, but eventually reaching that extreme

sickness again. Just seems like going near to the end twice. Once will be to

many for me. Am I wrong or misinformed. Not meaning to be a bummer, but just

curious about that.

Dave

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 2:20:06 PM

Subject: Re: Test Results are back ..

Any individual can start thier own group. Adding people seemed kind of hard,

cause I tried to add Penny and some others here, but it woldnt recognize that

she is in my friend list. Others in my friend list popped right up when I

clicked " add people to this group " . I would assume that if you look up me on

face book, you could join from my page, or yo might need to " request " friends

with me. No problem. though, just send the request and Ill add you.

Without pissing off to many people, just let me say that you are being fed a

line of poopoo. , Jackie's husband had to have chemo in order to make his

liver cancer tumors smaller, and only then wouold they do a transplant. Thier

thinking is that the cancer spreads after it reaches a certain size, and if they

get the tumors to shrink, it would buy him time to get a liver transplant before

his tumor spreads outside the liver. It is true that in the US, certain cancer

will disqualify you for a transplant. BUT, primary liver cancer if it is smaller

than 5 CM will GET you a transplant, and in fact send you to the front of the

line. When they say that chemo or radiation WILL kill you, how do they know? Do

they know your MELD score? or Childs PUGH score? Did they base this assesment on

those scores? If not, how would they know that you are dying? When I get this

kind of malfeasance going on, I always get a second opinion. I have been to a

few quacks, and always FIRE them, and let a real doctor take over. What your

doctor said sounds very cynical, and it sounds as if you are not worth their

time, cause you are just going to die anyway. WOW. That is a shitty attitude.

Sorry. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 9:21:06 AM

Subject: Re: Test Results are back ..

Bobby I found the memorial page on facebook for and put in a friends

request, is this right or is it different being a group than an individual

person?

And since this is my place for information I need some. I had a colonoscopy,

routine as my mother had bowel cancer. Well I apparently had a few polyps this

time and one of them came back positive for cancer. They know they did not get

all of it because the polyp did not have clean edges. Now the doctor who looks

after this for me and who has for years said that he will not go back in and get

the rest of it till my cirrosos doctor tells him it is okay. And that I can

understand, but he said that other than physically removing as much as they can

by disection he would never do chemo or radiation or any other therapy on me as

I would not survive it.

And basically said that since I am dying anyway and the cirrosis will kill me

faster than bowel cancer I should try and just forget about it. Is this the

norm? Has anyone been treated successfully for cancer when they are in ESLD? I

have not yet met with a transplant team but he also said that having cancer

would make me unacceptable for a transplant. Is this true? I know that being a

Canuck things are different north of the border but basically all of the info I

have recieved here has helped me here a lot. I guess illness doesn't know about

borders.

As always thanks a million everyone, Joan

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 1:28:38 AM

Subject: Re: Test Results are back ..

Here is what I know on the subject. The pancreas is what produces digestive

juices so we can digest food. These juices would digest us, except that they mix

together at just the right strength and time, and inject them in to the

digestive tract.

http://en.wikipedia.org/wiki/Pancreas

People who do not have a pancreas do not do very well. Life gets very

complicated with out one. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 5:57:18 PM

Subject: Re: Test Results are back ..

Can you live without a pancreas? Lyncia

________________________________

To: livercirrhosissupport

Sent: Wed, February 16, 2011 6:55:47 PM

Subject: Re: Test Results are back ..

Great to hear no hep virus. I would probably ask the dr. if they

couldn't just take out that pancreas, and then take insulin shots for

a normal level of insulin. But then he might look at me as if I were

crazy. It is especially important for someone in your situation to

get help with somethig like this since yo have people depending on

you. Not to say everybody with it isn't important in some way. This

disease has changed my life in so many ways, and amazingly quite a few

of them have been for the better. I have 4 grown children, 14

grandchildren and 1 great grandson. And the children especially still

need help, and I have been able to have 2 grandchildren stay with me

for periods of time as they moved from childhood to adulthood. An

intermediate step from home with mom to home of their own. There are

blessings to be found. I am sure it will bring your family closer

together as you all pull to work this out. And of course prayers for

all of you. That is almost a given here as everybody is in need of

prayer as we ride this roller coaster of life with liver disease. Jan

On Wed, Feb 16, 2011 at 5:42 PM, donnywilliams2006

wrote:

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

I do not understand what could possibly be the harm in sharing with the doctor a

complication, such as an uncomfortable thing as a stomach cramp. I write down

all my aches and pains, and funny happenings. Some of them were missed, and I

was misdiagnosed as not having liver disease.

So far I have been diagnosed with biliary diskinesia when cirrhosis was really

the culprit.

I have been diagnosed with having a " sore back " when it was a fracture on the 8

anterolateral rib,

and diagnosed with a cold when I had hepatopulmonary syndrome.

Every bit of information is a tiny piece of the puzzle. Maybe if you read this

post to your brother, he might change his mind. These doctors are only human.

They have a very hard job, and we sbhould do all we can to help them out. After

all it is in our best interest.

But I guess it is his business in the end. Scientifically, I have never heard of

cramping in the stomach as a part of liver disease itself. The stomach is

connected to the digestive tract, so I guess they are related, but I really have

nothing else besides that.

Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 7:40:31 PM

Subject: Re: Test Results are back ..

I thank God for all of you. Everything you share gives me insight into what my

brother is dealing with and what lies ahead. My question for you all is this:

is severe stomach cramping associated with this disease. My brother was

complaining about it today, but resistant to my suggestion that he ask his

doctor.

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

//***////////////   When I saw my blood doctor he started out asking me if I

have any strange craving, for ice example..I said not for ice but for

cantelope..at least  craving lopes like an obvession...every day a would head

straight to the icebox and hav/e a bowl, and this went on everyday, allday. for

years...  by this last fall I waS Eating sometimed 3 a day,,,I know all the

cashiers would say here comes the cantelope man ,,after last iron tranfusion i

didn't eat it er just ended up throwijg it away,,,doc says igf i start craving

it again we will know i again need iromsharing with the doctor a

complication, such as an uncomfortable thing as a stomach cramp. I write down

all my aches and pains, and funny happenings. Some of them were missed, and I

was misdiagnosed as not having liver disease.

So far I have been diagnosed with biliary diskinesia when cirrhosis was really

the culprit.

I have been diagnosed with having a " sore back " when it was a fracture on the 8

anterolateral rib,

and diagnosed with a cold when I had hepatopulmonary syndrome.

Every bit of information is a tiny piece of the puzzle. Maybe if you read this

post to your brother, he might change his mind. These doctors are only human.

They have a very hard job, and we sbhould do all we can to help them out. After

all it is in our best interest.

But I guess it is his business in the end. Scientifically, I have never heard of

cramping in the stomach as a part of liver disease itself. The stomach is

connected to the digestive tract, so I guess they are related, but I really have

nothing else besides that.

Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 7:40:31 PM

Subject: Re: Test Results are back ..

I thank God for all of you. Everything you share gives me insight into what my

brother is dealing with and what lies ahead. My question for you all is this:

is severe stomach cramping associated with this disease. My brother was

complaining about it today, but resistant to my suggestion that he ask his

doctor.

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

hi i am beverly i have sever cramping or the call it musle spamsome in my left

said it feels like a baby moving mr dr gave me something for it hope that was

somr meds it it is not

bev

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 10:21:13 PM

Subject: Re: Test Results are back ..

 

I do not understand what could possibly be the harm in sharing with the doctor a

complication, such as an uncomfortable thing as a stomach cramp. I write down

all my aches and pains, and funny happenings. Some of them were missed, and I

was misdiagnosed as not having liver disease.

So far I have been diagnosed with biliary diskinesia when cirrhosis was really

the culprit.

I have been diagnosed with having a " sore back " when it was a fracture on the 8

anterolateral rib,

and diagnosed with a cold when I had hepatopulmonary syndrome.

Every bit of information is a tiny piece of the puzzle. Maybe if you read this

post to your brother, he might change his mind. These doctors are only human.

They have a very hard job, and we sbhould do all we can to help them out. After

all it is in our best interest.

But I guess it is his business in the end. Scientifically, I have never heard of

cramping in the stomach as a part of liver disease itself. The stomach is

connected to the digestive tract, so I guess they are related, but I really have

nothing else besides that.

Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, February 17, 2011 7:40:31 PM

Subject: Re: Test Results are back ..

I thank God for all of you. Everything you share gives me insight into what my

brother is dealing with and what lies ahead. My question for you all is this:

is severe stomach cramping associated with this disease. My brother was

complaining about it today, but resistant to my suggestion that he ask his

doctor.

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

The critical problem with my brother is that he

doesn't trust anyone.  He is starting to like his

doctor, but thinks the dr. is a mindreader who

should know what he needs without him having

to share his symptons.  He is an untreated

schizophrenic who normally refuses any help

he doesn't seek himself.  He thinks the dr. is

wrong about limiting his salt intake, as long

as his water is down, he sees no harm in re-

stricting his salt intake.

Yesterday he told me that if this is how he's

gonna have to live (in pain) he's not going to

do it.  He didn't say suicide, and knowing this

is a standard line of his (has never attempted

suicide) I don't give it much weight.

There's no telling him anything.  He gets annoyed

and immediately puts me in my place.  (like

I need or deserve that).

Sorry, just venting my frustration.

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Dear June,

Has your brother been diagnosed with hepatic encephalopathy? It could be part of

the reason for his unreasonable demeanor. Telling him how wrong about the salt

restriction seems like a no go for you, even though you are right. Kidneys hold

on to the salt, and salt likes water. That is exactly what my hepatologist told

us.

Even if you drink less water, which is really bad unless the doctor tells you to

do that, the body will still retain water. Drinking water actually flushes out

your kidneys which are doing extra duty with filtering since the liver is

impaired. The can take on some extra filtering, which would normally be the job

of the liver, but they cant replace the liver totally. This is where

encephalopathy comes in. If your brother is not drinking enough water, his

electrolytes can get out of balance. Humans are basically a big battery. Nerves

are just wires, and everything runs off the ability to transmit signals through

them. If your brother cannot follow the doctors instructions, them unfortunatly

he will end up hospitalized, and having his electrolytes balanced by IV. A

cirrhotic patient can end up with 50 gallons of fluid built up in the belly and

technically dehydrated, needing infusions of potassium, and other electrolytes.

What a mess. Good luck, love, Bobby

________________________________

To: livercirrhosissupport

Sent: Fri, February 18, 2011 6:10:05 AM

Subject: Re: Test Results are back ..

The critical problem with my brother is that he

doesn't trust anyone. He is starting to like his

doctor, but thinks the dr. is a mindreader who

should know what he needs without him having

to share his symptons. He is an untreated

schizophrenic who normally refuses any help

he doesn't seek himself. He thinks the dr. is

wrong about limiting his salt intake, as long

as his water is down, he sees no harm in re-

stricting his salt intake.

Yesterday he told me that if this is how he's

gonna have to live (in pain) he's not going to

do it. He didn't say suicide, and knowing this

is a standard line of his (has never attempted

suicide) I don't give it much weight.

There's no telling him anything. He gets annoyed

and immediately puts me in my place. (like

I need or deserve that).

Sorry, just venting my frustration.

> Hey Friends

> I got my test results back on Friday..I dont have hep. A or B or c thank

>GOD...I have to go and get shots to prevent me from getting those and test

shows

>

>

>

>

>

>

>

>the reason i have cirrosis is my body is insulin resistance and my pancreas is

>producing too much insulin and my liver cant get rid of the sugar and that what

>caused the fatty liver to develop...I am very worried and I dont know what to

>expect...but I know GOD has a plan and he will never forsake me . I know he can

>and will heal me ....so please pray for me and my family I have 2 young

>children and wife that depend on me everyday.

>

> Thanks !!

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>