Re: Surgery Success? Mayo Exp?

August 1, 1999

Hi Meribeth,

I have not gone to Mayo, but i just wanted to let you know that i could

not take Diamox either. I didn't realize till i was on it about 5 weeks

that it made me totally lathargic, decreased my alertness and cognitive

ability and i basically felt like a dufus on it. God Bess those of you

who don't get these side-effects from it.

I wonder a lot of someone's gonna stop me and ask me if i'm drunk too.

I imageine, among other symptoms, you must be dealing with vertigo and

drop attacks like me, if you have difficulty staying upright in malls

and with walking etc.

Just wanted to let you know i can VERY CLOSELY relate to your

suffering. Good luck in your search for wellness and assistance

kim

<7o2cqm$qru-egroups> wrote:

> Hello Everyone!

>

> I am getting my nerve up to ask for a referral to Mayo Rochester.

> Hopefully my HMO will be cooperative. At Mayo I would like a thorough

> history, exam, additional tests if needed and a lot of questions

> answered. I have 4-5mm ACM. If anyone else has been to Mayo Rochester

> please share your experience with me. This feels like a huge decision

> to me. My severe symptoms started in May 1999. Neurologist put me on

> Diamox which probably did help somewhat but I got pretty sick on it.

> Low quality of life. I feel like myself again without Diamox but I am

> very limited to short spurts of physical exertion. My head feels

> pressure/floating all the time but it isn't unbearably painful. Did

> any of you find relief and recovery from decompression surgery?

> Specific examples:

> Can you go shopping for an hour without collapsing or go for a short

> walk without being stopped by people who think you are drunk ( This

> hasn't happened but it might:) )?

> Another thing--Did any of you have an epidural for childbirth a few

> months before your symptoms started?

>

> Thanks

> Meribeth in MI

Recommended Posts