Re: Jacquelyn and Hep C

[Guest guest]

I'm very interested in how she is doing, I have thought about asking if

anyone knew how she was and planned to post the question this a.m. So let me

know please.

About the Hep C patient, in all likelyhood it wasn't a good liver. Went to a

dinner/discussion last week on Hep C, we have a few patients with it in our

office. Anyway the lady Melcher told us that a lot (can't remember %)

of livers are infected with Hep C. Also, they will give a Hep C patient an

infected liver before they will give them a noninfected liver this is because

the liver that they plan to transplant has more years left in it than the

liver the patient already has and they will give someone whose liver was

damaged due to meds the healthy liver first. I found this discussion very

interesting but am now worried about even getting my sons hair cut as it is

possible to get Hep C this way due to possible blood on the clippers that may

have been from someone who had Hep C and got cut then the next person gets a

nick and lo, you have transmission. I was very surprised at all the

different ways there are to contract this disease which is on the rise and is

expected or already has surpassed HIV as far as the # of infected persons.

Many don't realize they have it until they hav had it for years. The

speaker advised everyone who has never been tested to get tested. Anyway

didn't want to scare anyone but the figures were/are staggering and with all

PSCers have to deal with this is just another thing to worry about.

Spring

[Guest guest]

Spring,

I don't understand why everyone isn't vaccinated for Hep C as well as A & B.

The

doctor had Phil vaccinated but when I asked if I should be he said that I

couldn't spread it to Phil once he's vaccinated. That's great - what about me.

I guess it's okay for me to get the stuff cause I don't have PSC. I have been

tested because I was transfused in 1991 but like you said you can get this stuff

anywhere.

Jacquelyn saw a endocrinologist that also is on staff at Baylor. He seemed very

interested in finding a resolution to her problems and is doing another venogram

through her neck, instead of the groin, while she is standing, not laying, and

studying her records thoroughly. She has normal blood pressure when she lies

down

but as soon as she stands up it skyrockets. He also found that when she took a

breath her heart stopped. Her GI doctor sent a note telling him that they were

looking for a solution short of replacing the liver (which by the way, she has

never had one sign of rejection) which they think is probably too large - hence

it is crushing the vena cava. She seemed impressed with this doctor but a

little

apprehensive since he is on the same staff of the other doctors at Baylor and

afraid that maybe he won't confront them if necessary. She continues to go on

with her life dispite all this serious stuff. That includes chasing the kids,

doing the household stuff, taking a 5 day trip with her husband, putting

together

fishing lures for their business, and supporting a friend who's husband had some

serious medical problems (hospitalized) while she is about to have a baby.

They have her on an extremely strong medication to control the pain and diarreha

caused by her colon, another problem that they can't seem to get a handle on. He

Gyne suggested adhesions but for some reason they aren't exploring this. She

has

such incredible faith in God which I am convinced is giving her the strength to

live her life dispite these problems. At this point I can only believe that God

is keeping her going because it is truly a miracle that she is functioning the

way she does with this serious situation.

She forgot to ask him about removing part of the liver as Aubrey suggested and

will do so next time she sees or talks to him.

Peg