Re: 'THIS' has to get some attention soon

[Guest guest]

I totally disagree. Research the way forwards, moving to understanding. And to have the best effect positive mind frame must come with it. Presently the hope that one day there will be a cure, iif not for me than for my children, is enough to keep me fighting this fight.I would rather believe in a dream and fight for it than to just complain and give up.And btw, we are getting closer to cures for a lot of the items you listed below, if anything that should give us hopeSent from my BlackBerry® smartphone on 3Date: Mon, 29 Mar 2010 13:43:11 -0700 (PDT)To: <Soundsensitivity >Subject: Re: 'THIS' has to get some attention soon I hate to be the nay sayer here but I have to wonder if research will even be the answer. We can all cry research but they've been researching cancer for decades. They've been researching aids for decades, muscular dystrophy, tourettes, etc, etc, and while they have created some small headway, some various drugs, treatments that help to a degree, they have never found cures. Remission doesn't always last and some people's bodies are resistant to treatments. So....i think there are a lot of people with this pie in the sky idea that recognition by the NIH will somehow magically reverse our condition. 'Research' is not a magic word. They might not find a cure for us either. So while I do want to be recognized because I want to be able to explain to people why I am the way I amand have them understand me, and I feel that we should be researched, I for one am glad that I can sit on my duff and whine because, at the end of the day, that is the only real medicine we have. TammyFrom: Kathy Howe <k.howecomcast (DOT) net>To: Soundsensitivity Sent: Sat, March 27, 2010 5:18:00 PMSubject: RE: 'THIS' has to get some attention soon I'm so sorry how badly you suffer with this. I'm sorry that you are losing relationships and not getting to live a "normal" life. I will keep you in my prayers that you can find peace. And you are right--someone needs to figure this out! WE NEED RESEARCH!! 'THIS' has to get some attention soon today is sat., march 27th, i just read all the posts about how we are 'not' being recognized, my sound sensitivies have gotten so bad that i actually thought of having my psychiatrist put me in the hospital because i was constantly raging over sounds where i live and saying 'i'd rather live in a padded cell'....... .... but then i thought, what will they do for me in the hospital???? i have 'tried' to stay hopeful because i have an opportunity to see an audiologist but down deep, i don't think that is the answer so have put that on hold, no offense to him, it's just that i've learned from all of us here that it's probably just 'masking' and nothing that would really help. i believe in god so the 'only' way i am getting through is praying. this has affected my whole life and relationships, i just lost one and 'this' was part of the reason. SOMEone has to know how we can bring this out. donnie

[Guest guest]

If there is a God he/she is one sick and demented SOB...

Subject: 'THIS' has to get some attention soonTo: Soundsensitivity Date: Saturday, March 27, 2010, 1:05 PM

today is sat., march 27th, i just read all the posts about how we are 'not' being recognized, my sound sensitivies have gotten so bad that i actually thought of having my psychiatrist put me in the hospital because i was constantly raging over sounds where i live and saying 'i'd rather live in a padded cell'....... .... but then i thought, what will they do for me in the hospital???? i have 'tried' to stay hopeful because i have an opportunity to see an audiologist but down deep, i don't think that is the answer so have put that on hold, no offense to him, it's just that i've learned from all of us here that it's probably just 'masking' and nothing that would really help. i believe in god so the 'only' way i am getting through is praying. this has affected my whole life and relationships, i just lost one and 'this' was part of the reason. SOMEone has to know how we can bring this out. donnie

[Guest guest]

I agree, RIchard. There are so many bizarre conditions and diseases out there that they have found causes and treatments for. I pay a lot of taxes and feel that my daughter has every right for grant money to be allocated to find the cause this condition. Sometimes it angers me when I hear of the stupid research studies they do and waste so much money doing them. This condition affects so so many people and the quality of their lives. It needs to be researched! They might not find anything tangible, but I want them to at least try!!

'THIS' has to get some attention soon

today is sat., march 27th, i just read all the posts about how we are 'not' being recognized, my sound sensitivies have gotten so bad that i actually thought of having my psychiatrist put me in the hospital because i was constantly raging over sounds where i live and saying 'i'd rather live in a padded cell'....... .... but then i thought, what will they do for me in the hospital???? i have 'tried' to stay hopeful because i have an opportunity to see an audiologist but down deep, i don't think that is the answer so have put that on hold, no offense to him, it's just that i've learned from all of us here that it's probably just 'masking' and nothing that would really help. i believe in god so the 'only' way i am getting through is praying. this has affected my whole life and relationships, i just lost one and 'this' was part of the reason. SOMEone has to know how we can bring this out. donnie

[Guest guest]

Mmmm yes, and that is why we, people with 4s, need to stand up

and be heard. We are the ones suffering this, if we don’t fight for research,

who will?.

Lets be honest, we are the masters of this course, we can choose

to guide it or let it guide it self.

I would say, one has a better ending than the other

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of Kathy Howe

Sent: Tuesday, 30 March 2010 11:18 AM

To: Soundsensitivity

Subject: RE: 'THIS' has to get some attention soon

I agree, RIchard. There are so many bizarre conditions and

diseases out there that they have found causes and treatments for. I pay

a lot of taxes and feel that my daughter has every right for grant money to be

allocated to find the cause this condition. Sometimes it angers me when I

hear of the stupid research studies they do and waste so much money doing

them. This condition affects so so many people and the quality of their

lives. It needs to be researched! They might not find anything

tangible, but I want them to at least try!!

'THIS' has to get some attention soon

today is sat., march 27th, i just read all the

posts about how we are 'not' being recognized, my sound sensitivies have gotten

so bad that i actually thought of having my psychiatrist put me in the hospital

because i was constantly raging over sounds where i live and saying 'i'd rather

live in a padded cell'....... .... but then i thought, what will they do for me

in the hospital???? i have 'tried' to stay hopeful because i have an

opportunity to see an audiologist but down deep, i don't think that is the

answer so have put that on hold, no offense to him, it's just that i've learned

from all of us here that it's probably just 'masking' and nothing that would

really help. i believe in god so the 'only' way i am getting through is

praying. this has affected my whole life and relationships, i just lost one and

'this' was part of the reason. SOMEone has to know how we can bring this out.

donnie