Re: Need Help!--Liver Specialist/ Heptologist in Central cal?

[Guest guest]

I believe you are new here, welcome. In my opinion, no family

practice doctor is qualified to handle a case like your mother's.

Also, I question the nurses. No iv should be left in for 6 days. I

had one left in for 5 days once because they thought I was going home

the next day and it got put off and then put off again. I still have a

spot where it was, but it didn't get infected, just got a bigger hole.

I was told that three days was the norm for an iv. Since her

stomach is swollen, what is their basis for saying she doesn't have

acities. That is a symptom of acities. Could you make an appointment

with one of the doctors where you want to take her, have a copy of the

treatment she has received so far, blood work, etc. Tell him you

would prefer her to be in his hospital but local hospital isn't

cooperating. I know if you walk out AMA another hospital will

hesitate to take you. I was sent to SunRise hospital in Las Vegas for

emergency gall bladder surgery by the er in Lake havasu. Two days

later I still hadn't seen the surgeon and the care was lousy. I

borrowed a cell phone and told Ed to he had 5 hours to make the 4 hour

trip to come pick me up. I also called my insurance to make sure they

would cover me at the Lake Havasu hospital when I got back there.

Talked to a friend who is a nurse and she recommended walking out.

And, by the way, that is what you have to do, they will not provide a

wheel chair. So, in your mother's case, if you do take her out ama, i

would suggest you take one with you, sounds like she would have

trouble making it. They would not give me a pain shot after they

found out I was leaving either, but guess who showed up just as I was

getting ready to leave. The surgeon who was supposed to have done

emergency surgery two days before.He said if I left, I might die

before I reached the nearest hospital whcih was 3 hours away.in the

direction we were going. He did give me pain meds but I had to pick

them up at a pharmacy on the way out of town, and of course as in most

drug stores, the pharmacy was way in the back, and they insisted on

seeing me before dispensing. When we reached havasu, they were

wondering what I was doing back there, said I looked pretty good, I

had dressed to leave the hospital, put on my wig and looked pretty

normal. But they did draw some blood, and when the results came back,

their tone completely changed, made arrangements to admit me and by

that time didn't have to have the emergency big scar surgery but got

the four point surgery.

Even the cleaning lady and a lab tech said the hospital had really

gone down hill and my roommates family also took her out of there.

She and they were all nurses, and didn't trust the hospital to take

care of her. Flew her all the way to Kansas City. The phone in my

room didn't owrk, and they got upset when I asked for one which did.

When I walked out to the nurses station to talk to a friend who was

going to send my medical info to them, I was about to fall when I got

there, all the nurses laughed, nobody got me a chair, had to find one

myself. And nobody helped me back to my room. It was like a horror

movie.

I think if you talk to the doctor you want before hand, your mom won't

have to go through whaI I did, and they will be waiting for her.

Maybe they can even send an ambulance to transport her. I will be

praying for you and your mom. Jan

>  Hi- My Mom  has been in the hospital for 4 wks.  She has Cirrhosis- Stage 4

 and HE. Her course has been complicated because she became septic due to an

infected iv that was not changed for 6 days. So again her Bili started going up

again from the infection. When she was admitted it was 22, now  its going up and

down again @ 18. her ammonia has came down at 42 as of yesterday. She is on

Lactulose three times daily, Prednisone 20mg, and Ancef now that her blood

cultures have been clear  with no growth for 6 days now. they put her back on

albumin twice a day with lasix and aldactone cause her legs are huge. My Mom

drank quite heavily for the past 4 yrs, is on Methadone for pain pill addiction

and  they are weaning her from that currently. She  became jaundice - total

orange within 2 days, and since shes been here her belly is soo swollen. her abd

us have showed that her liver is getting larger bot No ASCITEs- that is what

worrries me. She is finally having a liver biopsy today or tommorrow due to the

high iron levels-initially they thaought she had genetic hemachromotosis- the

lab for that was negative as of last wk.

>

> My concern is she is being cared for by her reg family Dr- who is clueless and

a nut, I think predjudice when it comes to her alcoholism. the gastro dr did not

come in for 12 days straight while my mom has been here. The drs are really

crappy here. The transfer to UCSF was denied because my mom hasnt been sober for

6 mos, which we knew she isnt qualified yet. We requested to transfer to a

bigger fRESNO WAS DENIED also, because of what reason unknown. She was given a n

oupatient appt for a GI specialist  THE END OF MARCH! my moms breathing is

terrible her oxygen sat is 80% without the 5 lpm she is on, due to liver

pressing on her lungs the R>L. i dont think my mom will make it to March at this

point.

>

> I was told by  other family members of other patients - as soon as my mom is

discharged take her straight to Fresno Community ER and they will admit her and

she will see the specialist sooner that way. Fresno is also part of UCSF- i also

want her to see a Heptologist ASAP. Does anyone live in central cal? My Mom is

only 52 and I beleive that care that she has received to far is not right. She

is getting worse resp wise and the jaundice is coming back.

>

>

> Any advise - I would greatly appreciate! She needs help.

>

>  We have argued with the case manager, social workers and nurses on an every

day basis- nothing has been done. they told me -if i take her AMA, it could look

bad later.

>

>  Thank you and May god bless all of you-

>

> Dee

>

>

>

> ------------------------------------

>

> Group Email:    livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

my husband has esld. Recently he has been feeling very bloated. His belly is

normally fat, but he is complaining more now, and he feels it is bloated and

says he has difficulty breathing upon exertion. Are Ascites anything to worry

about? I'm not sure this is what he has, but I suspect this. Just wanna know

if there is any treatment he should seek. Thanks Bonnie Lee

________________________________

To: livercirrhosissupport

Sent: Thu, January 27, 2011 8:05:12 PM

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

I believe you are new here, welcome. In my opinion, no family

practice doctor is qualified to handle a case like your mother's.

Also, I question the nurses. No iv should be left in for 6 days. I

had one left in for 5 days once because they thought I was going home

the next day and it got put off and then put off again. I still have a

spot where it was, but it didn't get infected, just got a bigger hole.

I was told that three days was the norm for an iv. Since her

stomach is swollen, what is their basis for saying she doesn't have

acities. That is a symptom of acities. Could you make an appointment

with one of the doctors where you want to take her, have a copy of the

treatment she has received so far, blood work, etc. Tell him you

would prefer her to be in his hospital but local hospital isn't

cooperating. I know if you walk out AMA another hospital will

hesitate to take you. I was sent to SunRise hospital in Las Vegas for

emergency gall bladder surgery by the er in Lake havasu. Two days

later I still hadn't seen the surgeon and the care was lousy. I

borrowed a cell phone and told Ed to he had 5 hours to make the 4 hour

trip to come pick me up. I also called my insurance to make sure they

would cover me at the Lake Havasu hospital when I got back there.

Talked to a friend who is a nurse and she recommended walking out.

And, by the way, that is what you have to do, they will not provide a

wheel chair. So, in your mother's case, if you do take her out ama, i

would suggest you take one with you, sounds like she would have

trouble making it. They would not give me a pain shot after they

found out I was leaving either, but guess who showed up just as I was

getting ready to leave. The surgeon who was supposed to have done

emergency surgery two days before.He said if I left, I might die

before I reached the nearest hospital whcih was 3 hours away.in the

direction we were going. He did give me pain meds but I had to pick

them up at a pharmacy on the way out of town, and of course as in most

drug stores, the pharmacy was way in the back, and they insisted on

seeing me before dispensing. When we reached havasu, they were

wondering what I was doing back there, said I looked pretty good, I

had dressed to leave the hospital, put on my wig and looked pretty

normal. But they did draw some blood, and when the results came back,

their tone completely changed, made arrangements to admit me and by

that time didn't have to have the emergency big scar surgery but got

the four point surgery.

Even the cleaning lady and a lab tech said the hospital had really

gone down hill and my roommates family also took her out of there.

She and they were all nurses, and didn't trust the hospital to take

care of her. Flew her all the way to Kansas City. The phone in my

room didn't owrk, and they got upset when I asked for one which did.

When I walked out to the nurses station to talk to a friend who was

going to send my medical info to them, I was about to fall when I got

there, all the nurses laughed, nobody got me a chair, had to find one

myself. And nobody helped me back to my room. It was like a horror

movie.

I think if you talk to the doctor you want before hand, your mom won't

have to go through whaI I did, and they will be waiting for her.

Maybe they can even send an ambulance to transport her. I will be

praying for you and your mom. Jan

> Hi- My Mom has been in the hospital for 4 wks. She has Cirrhosis- Stage 4

> and HE. Her course has been complicated because she became septic due to an

>infected iv that was not changed for 6 days. So again her Bili started going up

>again from the infection. When she was admitted it was 22, now its going up

and

>down again @ 18. her ammonia has came down at 42 as of yesterday. She is on

>Lactulose three times daily, Prednisone 20mg, and Ancef now that her blood

>cultures have been clear with no growth for 6 days now. they put her back on

>albumin twice a day with lasix and aldactone cause her legs are huge. My Mom

>drank quite heavily for the past 4 yrs, is on Methadone for pain pill addiction

>and they are weaning her from that currently. She became jaundice - total

>orange within 2 days, and since shes been here her belly is soo swollen. her

abd

>us have showed that her liver is getting larger bot No ASCITEs- that is what

>worrries me. She is finally having a liver biopsy today or tommorrow due to the

>high iron levels-initially they thaought she had genetic hemachromotosis- the

>lab for that was negative as of last wk.

>

> My concern is she is being cared for by her reg family Dr- who is clueless and

>a nut, I think predjudice when it comes to her alcoholism. the gastro dr did

not

>come in for 12 days straight while my mom has been here. The drs are really

>crappy here. The transfer to UCSF was denied because my mom hasnt been sober

for

>6 mos, which we knew she isnt qualified yet. We requested to transfer to a

>bigger fRESNO WAS DENIED also, because of what reason unknown. She was given a

n

>oupatient appt for a GI specialist THE END OF MARCH! my moms breathing is

>terrible her oxygen sat is 80% without the 5 lpm she is on, due to liver

>pressing on her lungs the R>L. i dont think my mom will make it to March at

this

>point.

>

> I was told by other family members of other patients - as soon as my mom is

>discharged take her straight to Fresno Community ER and they will admit her and

>she will see the specialist sooner that way. Fresno is also part of UCSF- i

also

>want her to see a Heptologist ASAP. Does anyone live in central cal? My Mom is

>only 52 and I beleive that care that she has received to far is not right. She

>is getting worse resp wise and the jaundice is coming back.

>

>

> Any advise - I would greatly appreciate! She needs help.

>

> We have argued with the case manager, social workers and nurses on an every

>day basis- nothing has been done. they told me -if i take her AMA, it could

look

>bad later.

>

> Thank you and May god bless all of you-

>

> Dee

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Unbelievable, Jan!  It is so hard for me to imagine what some people have to go

thru with sub standard care.  My husband had the best drs and nurses you could

ever imagine.  He had his transplant in Hershey Medical Center in hershey,

PA.  Every single person we met there, right down to the maintenance people

were all very professional and respectful to us.  Before his transplant, we had

been in there for 35 days straight before they sent him home to wait for a

liver.  While he was in surgery my son and his girlfriend were sitting with

me.  Every person who walked by the waiting area said hello to me, and some of

them got into conversations with me.  Finally my son asked me " who are all

these people " ? to which I responded, " that's the guy who brings dad a newspaper

every morning, and that's the lady who transports him for xrays and that's one

of the nurses on the floor and that's the social worker, resident dr, etc. "  

You get the picture? 

Everyone there knew us and cared about us.  To this day they are like our

extended family.  When my husband had to be in for 2 days in Nov. (because he

had shingles)  they called from the e.r. to tell the nurses on the floor he was

being admitted, and when we got up to the floor they had my cot all ready so I

could room in with him.  I told them it was the best hotel in town and wondered

when they would start putting mints under the pillow.  Wish everyone had as

good care as he has.  Jackie

>  Hi- My Mom  has been in the hospital for 4 wks.  She has Cirrhosis- Stage

4  and HE. Her course has been complicated because she became septic due to an

infected iv that was not changed for 6 days. So again her Bili started going up

again from the infection. When she was admitted it was 22, now  its going up

and down again @ 18. her ammonia has came down at 42 as of yesterday. She is on

Lactulose three times daily, Prednisone 20mg, and Ancef now that her blood

cultures have been clear  with no growth for 6 days now. they put her back on

albumin twice a day with lasix and aldactone cause her legs are huge. My Mom

drank quite heavily for the past 4 yrs, is on Methadone for pain pill addiction

and  they are weaning her from that currently. She  became jaundice - total

orange within 2 days, and since shes been here her belly is soo swollen. her abd

us have showed that her liver is getting larger bot No ASCITEs- that is what

worrries me. She is

finally having a liver biopsy today or tommorrow due to the high iron

levels-initially they thaought she had genetic hemachromotosis- the lab for that

was negative as of last wk.

>

> My concern is she is being cared for by her reg family Dr- who is clueless and

a nut, I think predjudice when it comes to her alcoholism. the gastro dr did not

come in for 12 days straight while my mom has been here. The drs are really

crappy here. The transfer to UCSF was denied because my mom hasnt been sober for

6 mos, which we knew she isnt qualified yet. We requested to transfer to a

bigger fRESNO WAS DENIED also, because of what reason unknown. She was given a n

oupatient appt for a GI specialist  THE END OF MARCH! my moms breathing is

terrible her oxygen sat is 80% without the 5 lpm she is on, due to liver

pressing on her lungs the R>L. i dont think my mom will make it to March at this

point.

>

> I was told by  other family members of other patients - as soon as my mom is

discharged take her straight to Fresno Community ER and they will admit her and

she will see the specialist sooner that way. Fresno is also part of UCSF- i also

want her to see a Heptologist ASAP. Does anyone live in central cal? My Mom is

only 52 and I beleive that care that she has received to far is not right. She

is getting worse resp wise and the jaundice is coming back.

>

>

> Any advise - I would greatly appreciate! She needs help.

>

>  We have argued with the case manager, social workers and nurses on an every

day basis- nothing has been done. they told me -if i take her AMA, it could look

bad later.

>

>  Thank you and May god bless all of you-

>

> Dee

>

>

>

> ------------------------------------

>

> Group Email:    livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Hi Bonnie:  My husband had ascites too before he got his new liver.  They did

a procedure called paracentesis where they drain the fluid off the abdomen and

then give albumin thru an iv to keep things stable.  He was on a schedule where

they would drain him every two weeks.  It does help.  Not only does it make

him more comfortable and relieve the pressure on the abdominal organs but it

also keeps the fluid from going into his lungs.  You should find out from your

dr about this.  His liver dr gave him a script and all we had to do was go to

the hospital once every 2 weeks and they do it on an outpatient basis.  Keep in

touch and let us know how you make out with this.  Keeping you in prayer. 

Jackie

> Hi- My Mom has been in the hospital for 4 wks. She has Cirrhosis- Stage 4

> and HE. Her course has been complicated because she became septic due to an

>infected iv that was not changed for 6 days. So again her Bili started going up

>again from the infection. When she was admitted it was 22, now its going up and

>down again @ 18. her ammonia has came down at 42 as of yesterday. She is on

>Lactulose three times daily, Prednisone 20mg, and Ancef now that her blood

>cultures have been clear with no growth for 6 days now. they put her back on

>albumin twice a day with lasix and aldactone cause her legs are huge. My Mom

>drank quite heavily for the past 4 yrs, is on Methadone for pain pill addiction

>and they are weaning her from that currently. She became jaundice - total

>orange within 2 days, and since shes been here her belly is soo swollen. her

abd

>us have showed that her liver is getting larger bot No ASCITEs- that is what

>worrries me. She is finally having a liver biopsy today or tommorrow due to the

>high iron levels-initially they thaought she had genetic hemachromotosis- the

>lab for that was negative as of last wk.

>

> My concern is she is being cared for by her reg family Dr- who is clueless and

>a nut, I think predjudice when it comes to her alcoholism. the gastro dr did

not

>come in for 12 days straight while my mom has been here. The drs are really

>crappy here. The transfer to UCSF was denied because my mom hasnt been sober

for

>6 mos, which we knew she isnt qualified yet. We requested to transfer to a

>bigger fRESNO WAS DENIED also, because of what reason unknown. She was given a

n

>oupatient appt for a GI specialist THE END OF MARCH! my moms breathing is

>terrible her oxygen sat is 80% without the 5 lpm she is on, due to liver

>pressing on her lungs the R>L. i dont think my mom will make it to March at

this

>point.

>

> I was told by other family members of other patients - as soon as my mom is

>discharged take her straight to Fresno Community ER and they will admit her and

>she will see the specialist sooner that way. Fresno is also part of UCSF- i

also

>want her to see a Heptologist ASAP. Does anyone live in central cal? My Mom is

>only 52 and I beleive that care that she has received to far is not right. She

>is getting worse resp wise and the jaundice is coming back.

>

>

> Any advise - I would greatly appreciate! She needs help.

>

> We have argued with the case manager, social workers and nurses on an every

>day basis- nothing has been done. they told me -if i take her AMA, it could

look

>bad later.

>

> Thank you and May god bless all of you-

>

> Dee

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

I am really sorry you are going through all of this. I do know that the system

is very unfriendly to abusers of substances. I am a recovering alcoholic, sober

4 years, 4 months, 13 days. You seem to have a grasp on all the pertinent

important information, and you have made the same moves I would have. I was the

sole caretaker for a lady, here in Denver who was my kindred spirit. Her name

was Ardis Lorraine and she passed away on August 3 2006.

I was able to get her a preliminary evaluation only because she was an impatient

at the time at CU, Denver, and I demanded it or threatened to just take her upon

discharge right downstairs to the ER and knew they would re admit her that same

day. They did not want me to do that so to appease me, they let her see the

hepatologist after a 30 day stay in a nursing facility. When she did see the

hepatologist, she was re-admited in renal failure. I have to admit that it was

nice to have her on the transplant floor, just because of the huge amount of

respect given in that place. The " tone " of the nursing staff is so serene and

respectful up there. University if Colorado is a good hospital and they are

friendly and competent, but the transplant floor is different. One has a better

chance of surviving in a place like that just because the staff is more alert

and attentive. She was deemed to not be a candidate and we asked for hospice,

and she made us a wish list of all the things she wanted before she died. We got

all them for her expect cinnibon, (ran out of time) and vodka tonic and

Budweiser was on that list. She sipped a beer on her last day. That was how she

wanted it.

You seem to be between a rock and a hard place. Let me ask this question, has

your mom said that she is willing to get sober?

Love, Bobby, moderator

http://onethreezeroonethree.blogspot.com/ ( the story of my loved one)

________________________________

To: livercirrhosissupport

Sent: Thu, January 27, 2011 2:37:51 PM

Subject: Need Help!--Liver Specialist/ Heptologist in

Central cal?

Hi- My Mom has been in the hospital for 4 wks. She has Cirrhosis- Stage 4 and

HE. Her course has been complicated because she became septic due to an infected

iv that was not changed for 6 days. So again her Bili started going up again

from the infection. When she was admitted it was 22, now its going up and down

again @ 18. her ammonia has came down at 42 as of yesterday. She is on Lactulose

three times daily, Prednisone 20mg, and Ancef now that her blood cultures have

been clear with no growth for 6 days now. they put her back on albumin twice a

day with lasix and aldactone cause her legs are huge. My Mom drank quite heavily

for the past 4 yrs, is on Methadone for pain pill addiction and they are

weaning her from that currently. She became jaundice - total orange within 2

days, and since shes been here her belly is soo swollen. her abd us have showed

that her liver is getting larger bot No ASCITEs- that is what worrries me. She

is finally having a liver biopsy today or tommorrow due to the high iron

levels-initially they thaought she had genetic hemachromotosis- the lab for that

was negative as of last wk.

My concern is she is being cared for by her reg family Dr- who is clueless and a

nut, I think predjudice when it comes to her alcoholism. the gastro dr did not

come in for 12 days straight while my mom has been here. The drs are really

crappy here. The transfer to UCSF was denied because my mom hasnt been sober for

6 mos, which we knew she isnt qualified yet. We requested to transfer to a

bigger fRESNO WAS DENIED also, because of what reason unknown. She was given a n

oupatient appt for a GI specialist THE END OF MARCH! my moms breathing is

terrible her oxygen sat is 80% without the 5 lpm she is on, due to liver

pressing on her lungs the R>L. i dont think my mom will make it to March at this

point.

I was told by other family members of other patients - as soon as my mom is

discharged take her straight to Fresno Community ER and they will admit her and

she will see the specialist sooner that way. Fresno is also part of UCSF- i also

want her to see a Heptologist ASAP. Does anyone live in central cal? My Mom is

only 52 and I beleive that care that she has received to far is not right. She

is getting worse resp wise and the jaundice is coming back.

Any advise - I would greatly appreciate! She needs help.

We have argued with the case manager, social workers and nurses on an every day

basis- nothing has been done. they told me -if i take her AMA, it could look bad

later.

Thank you and May god bless all of you-

Dee

[Guest guest]

Ascites is very serious and can cause spontaneus bacterial peritonitis. He

should be seen ASAP. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Thu, January 27, 2011 7:25:17 PM

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

my husband has esld. Recently he has been feeling very bloated. His belly is

normally fat, but he is complaining more now, and he feels it is bloated and

says he has difficulty breathing upon exertion. Are Ascites anything to worry

about? I'm not sure this is what he has, but I suspect this. Just wanna know

if there is any treatment he should seek. Thanks Bonnie Lee

________________________________

To: livercirrhosissupport

Sent: Thu, January 27, 2011 8:05:12 PM

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

I believe you are new here, welcome. In my opinion, no family

practice doctor is qualified to handle a case like your mother's.

Also, I question the nurses. No iv should be left in for 6 days. I

had one left in for 5 days once because they thought I was going home

the next day and it got put off and then put off again. I still have a

spot where it was, but it didn't get infected, just got a bigger hole.

I was told that three days was the norm for an iv. Since her

stomach is swollen, what is their basis for saying she doesn't have

acities. That is a symptom of acities. Could you make an appointment

with one of the doctors where you want to take her, have a copy of the

treatment she has received so far, blood work, etc. Tell him you

would prefer her to be in his hospital but local hospital isn't

cooperating. I know if you walk out AMA another hospital will

hesitate to take you. I was sent to SunRise hospital in Las Vegas for

emergency gall bladder surgery by the er in Lake havasu. Two days

later I still hadn't seen the surgeon and the care was lousy. I

borrowed a cell phone and told Ed to he had 5 hours to make the 4 hour

trip to come pick me up. I also called my insurance to make sure they

would cover me at the Lake Havasu hospital when I got back there.

Talked to a friend who is a nurse and she recommended walking out.

And, by the way, that is what you have to do, they will not provide a

wheel chair. So, in your mother's case, if you do take her out ama, i

would suggest you take one with you, sounds like she would have

trouble making it. They would not give me a pain shot after they

found out I was leaving either, but guess who showed up just as I was

getting ready to leave. The surgeon who was supposed to have done

emergency surgery two days before.He said if I left, I might die

before I reached the nearest hospital whcih was 3 hours away.in the

direction we were going. He did give me pain meds but I had to pick

them up at a pharmacy on the way out of town, and of course as in most

drug stores, the pharmacy was way in the back, and they insisted on

seeing me before dispensing. When we reached havasu, they were

wondering what I was doing back there, said I looked pretty good, I

had dressed to leave the hospital, put on my wig and looked pretty

normal. But they did draw some blood, and when the results came back,

their tone completely changed, made arrangements to admit me and by

that time didn't have to have the emergency big scar surgery but got

the four point surgery.

Even the cleaning lady and a lab tech said the hospital had really

gone down hill and my roommates family also took her out of there.

She and they were all nurses, and didn't trust the hospital to take

care of her. Flew her all the way to Kansas City. The phone in my

room didn't owrk, and they got upset when I asked for one which did.

When I walked out to the nurses station to talk to a friend who was

going to send my medical info to them, I was about to fall when I got

there, all the nurses laughed, nobody got me a chair, had to find one

myself. And nobody helped me back to my room. It was like a horror

movie.

I think if you talk to the doctor you want before hand, your mom won't

have to go through whaI I did, and they will be waiting for her.

Maybe they can even send an ambulance to transport her. I will be

praying for you and your mom. Jan

> Hi- My Mom has been in the hospital for 4 wks. She has Cirrhosis- Stage 4

> and HE. Her course has been complicated because she became septic due to an

>infected iv that was not changed for 6 days. So again her Bili started going up

>again from the infection. When she was admitted it was 22, now its going up

and

>

>down again @ 18. her ammonia has came down at 42 as of yesterday. She is on

>Lactulose three times daily, Prednisone 20mg, and Ancef now that her blood

>cultures have been clear with no growth for 6 days now. they put her back on

>albumin twice a day with lasix and aldactone cause her legs are huge. My Mom

>drank quite heavily for the past 4 yrs, is on Methadone for pain pill addiction

>and they are weaning her from that currently. She became jaundice - total

>orange within 2 days, and since shes been here her belly is soo swollen. her

abd

>

>us have showed that her liver is getting larger bot No ASCITEs- that is what

>worrries me. She is finally having a liver biopsy today or tommorrow due to the

>high iron levels-initially they thaought she had genetic hemachromotosis- the

>lab for that was negative as of last wk.

>

> My concern is she is being cared for by her reg family Dr- who is clueless and

>a nut, I think predjudice when it comes to her alcoholism. the gastro dr did

not

>

>come in for 12 days straight while my mom has been here. The drs are really

>crappy here. The transfer to UCSF was denied because my mom hasnt been sober

for

>

>6 mos, which we knew she isnt qualified yet. We requested to transfer to a

>bigger fRESNO WAS DENIED also, because of what reason unknown. She was given a

n

>

>oupatient appt for a GI specialist THE END OF MARCH! my moms breathing is

>terrible her oxygen sat is 80% without the 5 lpm she is on, due to liver

>pressing on her lungs the R>L. i dont think my mom will make it to March at

this

>

>point.

>

> I was told by other family members of other patients - as soon as my mom is

>discharged take her straight to Fresno Community ER and they will admit her and

>she will see the specialist sooner that way. Fresno is also part of UCSF- i

also

>

>want her to see a Heptologist ASAP. Does anyone live in central cal? My Mom is

>only 52 and I beleive that care that she has received to far is not right. She

>is getting worse resp wise and the jaundice is coming back.

>

>

> Any advise - I would greatly appreciate! She needs help.

>

> We have argued with the case manager, social workers and nurses on an every

>day basis- nothing has been done. they told me -if i take her AMA, it could

look

>

>bad later.

>

> Thank you and May god bless all of you-

>

> Dee

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Jackie - I have had care and caring like that in the other hospitals I

have been in, which is what shocked me so much about SunRise. I

found out later that a resident of my town, Quartzsite had been a

patient there for three weeks before she died. They never did find

out what was wrong with her, and when the family asked for an autopsy

to determine the cause of death, they were told they would have to pay

for it as the hospital wouldn't ask for one. I couldn't believe it.

At the hospital in Havasu, when I was checking in and out like a

bouncing ball for awhile, one time when I went by the nurses station

on the cardio ward, they all stood there and said welcome back, nice

to see you, then thinking a little bit they changed it to sorry you

had to come back. made me laugh.

I hate it too, that some people have to go through things like that,

so that is why I told the story, hoping our new member would be able

to do something for her mother. It is great her mother has her. I

was in Las Vegas without a cell phone, knew nobody there, and if my

roommate's sister hadn't let me use her cell phone, I don't know what

would have happened. I found out later that friends and relatives who

called were told I was sleeping. The helicopter crew didn't want to

bring along my bag with my stuff in it like cell phone, book, clothes,

etc. I knew that someone lost her glasses either on the helicopter or

at the hospital a short time before that. After experiencing both, I

have no doubt where her glasses were lost.

We had a meeting here with the closest hospital management shortly

after I went through the ordeal. The problem is that people in Las

Vegas know not to go to that hospital, so they have empty beds. They

make contracts with lower trauma level hospitals to take their

patients. I was under the impression they were going to cancel that

contract after our meeting because many of us spoke up about how

terrible it was. And they may have cancelled it, but I just found out

2 weeks ago that another lady from our chrch had been sent there. We

put her on our prayer list, for both her medical condition and because

of where she had been sent. Even if they don't have a contract, if

the other hospitals in Phoenix and Palm Springs are full, they might

have to send them there. One good thing for me, since I walked out

AMA, they won't take me again. Thank you God. Jan

On Thu, Jan 27, 2011 at 7:36 PM, Jackie Ellermann

wrote:

> Unbelievable, Jan!  It is so hard for me to imagine what some people have to

go thru with sub standard care.  My husband had the best drs and nurses you

could ever imagine.  He had his transplant in Hershey Medical Center in hershey,

PA.  Every single person we met there, right down to the maintenance people were

all very professional and respectful to us.  Before his transplant, we had been

in there for 35 days straight before they sent him home to wait for a liver. 

While he was in surgery my son and his girlfriend were sitting with me.  Every

person who walked by the waiting area said hello to me, and some of them got

into conversations with me.  Finally my son asked me " who are all these people " ?

to which I responded, " that's the guy who brings dad a newspaper every morning,

and that's the lady who transports him for xrays and that's one of the nurses on

the floor and that's the social worker, resident dr, etc. "   You get the picture?

>  Everyone there knew us and cared about us.  To this day they are like our

extended family.  When my husband had to be in for 2 days in Nov. (because he

had shingles)  they called from the e.r. to tell the nurses on the floor he was

being admitted, and when we got up to the floor they had my cot all ready so I

could room in with him.  I told them it was the best hotel in town and wondered

when they would start putting mints under the pillow.  Wish everyone had as good

care as he has.  Jackie

>

>

>>  Hi- My Mom  has been in the hospital for 4 wks.  She has Cirrhosis- Stage 4

 and HE. Her course has been complicated because she became septic due to an

infected iv that was not changed for 6 days. So again her Bili started going up

again from the infection. When she was admitted it was 22, now  its going up and

down again @ 18. her ammonia has came down at 42 as of yesterday. She is on

Lactulose three times daily, Prednisone 20mg, and Ancef now that her blood

cultures have been clear  with no growth for 6 days now. they put her back on

albumin twice a day with lasix and aldactone cause her legs are huge. My Mom

drank quite heavily for the past 4 yrs, is on Methadone for pain pill addiction

and  they are weaning her from that currently. She  became jaundice - total

orange within 2 days, and since shes been here her belly is soo swollen. her abd

us have showed that her liver is getting larger bot No ASCITEs- that is what

worrries me. She is

>  finally having a liver biopsy today or tommorrow due to the high iron

levels-initially they thaought she had genetic hemachromotosis- the lab for that

was negative as of last wk.

>>

>> My concern is she is being cared for by her reg family Dr- who is clueless

and a nut, I think predjudice when it comes to her alcoholism. the gastro dr did

not come in for 12 days straight while my mom has been here. The drs are really

crappy here. The transfer to UCSF was denied because my mom hasnt been sober for

6 mos, which we knew she isnt qualified yet. We requested to transfer to a

bigger fRESNO WAS DENIED also, because of what reason unknown. She was given a n

oupatient appt for a GI specialist  THE END OF MARCH! my moms breathing is

terrible her oxygen sat is 80% without the 5 lpm she is on, due to liver

pressing on her lungs the R>L. i dont think my mom will make it to March at this

point.

>>

>> I was told by  other family members of other patients - as soon as my mom is

discharged take her straight to Fresno Community ER and they will admit her and

she will see the specialist sooner that way. Fresno is also part of UCSF- i also

want her to see a Heptologist ASAP. Does anyone live in central cal? My Mom is

only 52 and I beleive that care that she has received to far is not right. She

is getting worse resp wise and the jaundice is coming back.

>>

>>

>> Any advise - I would greatly appreciate! She needs help.

>>

>>  We have argued with the case manager, social workers and nurses on an every

day basis- nothing has been done. they told me -if i take her AMA, it could look

bad later.

>>

>>  Thank you and May god bless all of you-

>>

>> Dee

>>

>>

>>

>> ------------------------------------

>>

>> Group Email:    livercirrhosissupport

>> web address:

>> http://groups.yahoo.com/group/livercirrhosissupport/

>>

[Guest guest]

Thanks Jackie, Do you know if Ascites can complicate anything if they dont get

drained?

________________________________

To: livercirrhosissupport

Sent: Thu, January 27, 2011 9:44:25 PM

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

Hi Bonnie: My husband had ascites too before he got his new liver. They did a

procedure called paracentesis where they drain the fluid off the abdomen and

then give albumin thru an iv to keep things stable. He was on a schedule where

they would drain him every two weeks. It does help. Not only does it make him

more comfortable and relieve the pressure on the abdominal organs but it also

keeps the fluid from going into his lungs. You should find out from your dr

about this. His liver dr gave him a script and all we had to do was go to the

hospital once every 2 weeks and they do it on an outpatient basis. Keep in

touch and let us know how you make out with this. Keeping you in prayer.

Jackie

> Hi- My Mom has been in the hospital for 4 wks. She has Cirrhosis- Stage 4

> and HE. Her course has been complicated because she became septic due to an

>infected iv that was not changed for 6 days. So again her Bili started going up

>again from the infection. When she was admitted it was 22, now its going up and

>down again @ 18. her ammonia has came down at 42 as of yesterday. She is on

>Lactulose three times daily, Prednisone 20mg, and Ancef now that her blood

>cultures have been clear with no growth for 6 days now. they put her back on

>albumin twice a day with lasix and aldactone cause her legs are huge. My Mom

>drank quite heavily for the past 4 yrs, is on Methadone for pain pill addiction

>and they are weaning her from that currently. She became jaundice - total

>orange within 2 days, and since shes been here her belly is soo swollen. her

abd

>

>us have showed that her liver is getting larger bot No ASCITEs- that is what

>worrries me. She is finally having a liver biopsy today or tommorrow due to the

>high iron levels-initially they thaought she had genetic hemachromotosis- the

>lab for that was negative as of last wk.

>

> My concern is she is being cared for by her reg family Dr- who is clueless and

>a nut, I think predjudice when it comes to her alcoholism. the gastro dr did

not

>

>come in for 12 days straight while my mom has been here. The drs are really

>crappy here. The transfer to UCSF was denied because my mom hasnt been sober

for

>

>6 mos, which we knew she isnt qualified yet. We requested to transfer to a

>bigger fRESNO WAS DENIED also, because of what reason unknown. She was given a

n

>

>oupatient appt for a GI specialist THE END OF MARCH! my moms breathing is

>terrible her oxygen sat is 80% without the 5 lpm she is on, due to liver

>pressing on her lungs the R>L. i dont think my mom will make it to March at

this

>

>point.

>

> I was told by other family members of other patients - as soon as my mom is

>discharged take her straight to Fresno Community ER and they will admit her and

>she will see the specialist sooner that way. Fresno is also part of UCSF- i

also

>

>want her to see a Heptologist ASAP. Does anyone live in central cal? My Mom is

>only 52 and I beleive that care that she has received to far is not right. She

>is getting worse resp wise and the jaundice is coming back.

>

>

> Any advise - I would greatly appreciate! She needs help.

>

> We have argued with the case manager, social workers and nurses on an every

>day basis- nothing has been done. they told me -if i take her AMA, it could

look

>

>bad later.

>

> Thank you and May god bless all of you-

>

> Dee

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Yes Dee I live in Los Banos My doc is at Stanford Just let me know and I will

give you some info. Ron

[Guest guest]

yes, it can.  I'm no dr so all I can tell you is what I learned from what they

told me.  You have to keep fluid from building up inside the body because it

will cause the heart to have to work real hard and it can also get into the

lungs.  's liver dr told us it was important to keep him as dry as possible

and recommended that he be drained every 2 weeks.  It's a simple procedure. 

It's done on an outpatient basis.  Hope this answers your question.  Jackie

> Hi- My Mom has been in the hospital for 4 wks. She has Cirrhosis- Stage 4

> and HE. Her course has been complicated because she became septic due to an

>infected iv that was not changed for 6 days. So again her Bili started going up

>again from the infection. When she was admitted it was 22, now its going up and

>down again @ 18. her ammonia has came down at 42 as of yesterday. She is on

>Lactulose three times daily, Prednisone 20mg, and Ancef now that her blood

>cultures have been clear with no growth for 6 days now. they put her back on

>albumin twice a day with lasix and aldactone cause her legs are huge. My Mom

>drank quite heavily for the past 4 yrs, is on Methadone for pain pill addiction

>and they are weaning her from that currently. She became jaundice - total

>orange within 2 days, and since shes been here her belly is soo swollen. her

abd

>

>us have showed that her liver is getting larger bot No ASCITEs- that is what

>worrries me. She is finally having a liver biopsy today or tommorrow due to the

>high iron levels-initially they thaought she had genetic hemachromotosis- the

>lab for that was negative as of last wk.

>

> My concern is she is being cared for by her reg family Dr- who is clueless and

>a nut, I think predjudice when it comes to her alcoholism. the gastro dr did

not

>

>come in for 12 days straight while my mom has been here. The drs are really

>crappy here. The transfer to UCSF was denied because my mom hasnt been sober

for

>

>6 mos, which we knew she isnt qualified yet. We requested to transfer to a

>bigger fRESNO WAS DENIED also, because of what reason unknown. She was given a

n

>

>oupatient appt for a GI specialist THE END OF MARCH! my moms breathing is

>terrible her oxygen sat is 80% without the 5 lpm she is on, due to liver

>pressing on her lungs the R>L. i dont think my mom will make it to March at

this

>

>point.

>

> I was told by other family members of other patients - as soon as my mom is

>discharged take her straight to Fresno Community ER and they will admit her and

>she will see the specialist sooner that way. Fresno is also part of UCSF- i

also

>

>want her to see a Heptologist ASAP. Does anyone live in central cal? My Mom is

>only 52 and I beleive that care that she has received to far is not right. She

>is getting worse resp wise and the jaundice is coming back.

>

>

> Any advise - I would greatly appreciate! She needs help.

>

> We have argued with the case manager, social workers and nurses on an every

>day basis- nothing has been done. they told me -if i take her AMA, it could

look

>

>bad later.

>

> Thank you and May god bless all of you-

>

> Dee

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Ascites is very serious and can cause spontaneus bacterial peritonitis. IT CAN

COMPLICATE EVERYTHING.

He

should be seen ASAP. Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Fri, January 28, 2011 6:30:13 AM

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

Thanks Jackie, Do you know if Ascites can complicate anything if they dont get

drained?

________________________________

To: livercirrhosissupport

Sent: Thu, January 27, 2011 9:44:25 PM

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

Hi Bonnie: My husband had ascites too before he got his new liver. They did a

procedure called paracentesis where they drain the fluid off the abdomen and

then give albumin thru an iv to keep things stable. He was on a schedule where

they would drain him every two weeks. It does help. Not only does it make him

more comfortable and relieve the pressure on the abdominal organs but it also

keeps the fluid from going into his lungs. You should find out from your dr

about this. His liver dr gave him a script and all we had to do was go to the

hospital once every 2 weeks and they do it on an outpatient basis. Keep in

touch and let us know how you make out with this. Keeping you in prayer.

Jackie

> Hi- My Mom has been in the hospital for 4 wks. She has Cirrhosis- Stage 4

> and HE. Her course has been complicated because she became septic due to an

>infected iv that was not changed for 6 days. So again her Bili started going up

>again from the infection. When she was admitted it was 22, now its going up and

>down again @ 18. her ammonia has came down at 42 as of yesterday. She is on

>Lactulose three times daily, Prednisone 20mg, and Ancef now that her blood

>cultures have been clear with no growth for 6 days now. they put her back on

>albumin twice a day with lasix and aldactone cause her legs are huge. My Mom

>drank quite heavily for the past 4 yrs, is on Methadone for pain pill addiction

>and they are weaning her from that currently. She became jaundice - total

>orange within 2 days, and since shes been here her belly is soo swollen. her

abd

>

>

>us have showed that her liver is getting larger bot No ASCITEs- that is what

>worrries me. She is finally having a liver biopsy today or tommorrow due to the

>high iron levels-initially they thaought she had genetic hemachromotosis- the

>lab for that was negative as of last wk.

>

> My concern is she is being cared for by her reg family Dr- who is clueless and

>a nut, I think predjudice when it comes to her alcoholism. the gastro dr did

not

>

>

>come in for 12 days straight while my mom has been here. The drs are really

>crappy here. The transfer to UCSF was denied because my mom hasnt been sober

for

>

>

>6 mos, which we knew she isnt qualified yet. We requested to transfer to a

>bigger fRESNO WAS DENIED also, because of what reason unknown. She was given a

n

>

>

>oupatient appt for a GI specialist THE END OF MARCH! my moms breathing is

>terrible her oxygen sat is 80% without the 5 lpm she is on, due to liver

>pressing on her lungs the R>L. i dont think my mom will make it to March at

this

>

>

>point.

>

> I was told by other family members of other patients - as soon as my mom is

>discharged take her straight to Fresno Community ER and they will admit her and

>she will see the specialist sooner that way. Fresno is also part of UCSF- i

also

>

>

>want her to see a Heptologist ASAP. Does anyone live in central cal? My Mom is

>only 52 and I beleive that care that she has received to far is not right. She

>is getting worse resp wise and the jaundice is coming back.

>

>

> Any advise - I would greatly appreciate! She needs help.

>

> We have argued with the case manager, social workers and nurses on an every

>day basis- nothing has been done. they told me -if i take her AMA, it could

look

>

>

>bad later.

>

> Thank you and May god bless all of you-

>

> Dee

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Im sorry to hear that there aRE OTHER CRAPPY HOSPITALS OUT THERE! They are

totally not helpful in managing my Moms Liver, the gi dr is never around and

the faMILY practice dr is an idiot for nothelping us find another gi dr or

someone helpful. i am just counting the days till we are outta here- Wed now due

the fever my mom had yesterday after the biopsy. they did a blood culture and

it wont be read until 24 hrs for growth. Praying the sepsis isnt coming back!

This am her oxygen sats are down @ 78%, with no o2, and 90% on 4 liters.

From the enlarged liver pressing on her lungs, the ultrasound last wk showed no

ascites, just hepatomegaly. (enlarged liver) her belly is big, but her feet

have gone down a bit today.

My Mom needs to be somewhere where they have physicians that can treat her

competently and know about sick livers.

Ron- Please let me know the name of the stanford dr that you see and if you

have a GI Dr locally there in los Banos ? How long did it take to get a referral

there?

Thank you all for your kind words and advise! Praying for all of you-

Thanks Dee

[Guest guest]

Hi Dee. My pcp refered me to Stanford.It did not take long before I was seen. I

had my liver biopsy and a some blood work there, but my CT and ultra sounds and

most of my bloodwork are done here in Los Banos, it is a Liver transplant clinic

they have there. My doc name is Walid s Ayoub he is a heptologist there.

>

>

> Im sorry to hear that there aRE OTHER CRAPPY HOSPITALS OUT THERE! They are

totally not helpful in managing my Moms Liver, the gi dr is never around and

the faMILY practice dr is an idiot for nothelping us find another gi dr or

someone helpful. i am just counting the days till we are outta here- Wed now due

the fever my mom had yesterday after the biopsy. they did a blood culture and

it wont be read until 24 hrs for growth. Praying the sepsis isnt coming back!

>

> This am her oxygen sats are down @ 78%, with no o2, and 90% on 4 liters.

> From the enlarged liver pressing on her lungs, the ultrasound last wk showed

no ascites, just hepatomegaly. (enlarged liver) her belly is big, but her feet

have gone down a bit today.

>

> My Mom needs to be somewhere where they have physicians that can treat her

competently and know about sick livers.

>

> Ron- Please let me know the name of the stanford dr that you see and if you

have a GI Dr locally there in los Banos ? How long did it take to get a referral

there?

>

> Thank you all for your kind words and advise! Praying for all of you-

> Thanks Dee

>

[Guest guest]

JUST AN update on My Mom-

THINGS ARE NOT GOOD- MY MOM IS IN ICU ON A VENT. We have been here for 3 days

now, Her sats kept going down, they are doing a bronch today to find out what is

causing the increaSING CONSOLIDATIONS IN HER LUNGS. Dr things might be the

sepsis she had settled in lungs.

IT has been a very rough few days, they took her to surgery to take her gall

bladder out, surgeon said gallbaldder wasnt too sick, its her liver that is

causing the trouble, said its the sickest liver that he has seen, and doenst

think its gonna last 6 mos. She got accepted as a transfer to SF hospital-

have to ask what the name is- isnt not ucsf- they declined her again. Just

found out 10 min ago.

ICU Dr soo smart, things move very quickly here, she at this point isnt staBLE

enough to transport, due to the lung issues. Her bili is now down to 12.8. was

18 last wk.

Please everyone pray for my mom Cheri- that her lungs heal and we are able to

get treatment for her liver.

Keep You All Posted!

Thanks- Dee

>

>

[Guest guest]

Praying for your Mom and also praying really hard for you for strength. What an

ordeal but if it helps to know that we are thinking of you and praying I am more

than happy to help in this small way. And yes please keep us posted.

Joan

________________________________

To: livercirrhosissupport

Sent: Thu, February 3, 2011 12:28:20 PM

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

JUST AN update on My Mom-

THINGS ARE NOT GOOD- MY MOM IS IN ICU ON A VENT. We have been here for 3 days

now, Her sats kept going down, they are doing a bronch today to find out what is

causing the increaSING CONSOLIDATIONS IN HER LUNGS. Dr things might be the

sepsis she had settled in lungs.

IT has been a very rough few days, they took her to surgery to take her gall

bladder out, surgeon said gallbaldder wasnt too sick, its her liver that is

causing the trouble, said its the sickest liver that he has seen, and doenst

think its gonna last 6 mos. She got accepted as a transfer to SF hospital-

have to ask what the name is- isnt not ucsf- they declined her again. Just

found out 10 min ago.

ICU Dr soo smart, things move very quickly here, she at this point isnt staBLE

enough to transport, due to the lung issues. Her bili is now down to 12.8. was

18 last wk.

Please everyone pray for my mom Cheri- that her lungs heal and we are able to

get treatment for her liver.

Keep You All Posted!

Thanks- Dee

>

>

[Guest guest]

Dee........my thoughts and prayers are with your mom and most especially with

YOU!!! Being a caretaker is a very stressful job.......take care of you too if

you can!!

Donna

Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

JUST AN update on My Mom-

THINGS ARE NOT GOOD- MY MOM IS IN ICU ON A VENT. We have been here for 3 days

now, Her sats kept going down, they are doing a bronch today to find out what is

causing the increaSING CONSOLIDATIONS IN HER LUNGS. Dr things might be the

sepsis she had settled in lungs.

IT has been a very rough few days, they took her to surgery to take her gall

bladder out, surgeon said gallbaldder wasnt too sick, its her liver that is

causing the trouble, said its the sickest liver that he has seen, and doenst

think its gonna last 6 mos. She got accepted as a transfer to SF hospital-

have to ask what the name is- isnt not ucsf- they declined her again. Just

found out 10 min ago.

ICU Dr soo smart, things move very quickly here, she at this point isnt staBLE

enough to transport, due to the lung issues. Her bili is now down to 12.8. was

18 last wk.

Please everyone pray for my mom Cheri- that her lungs heal and we are able to

get treatment for her liver.

Keep You All Posted!

Thanks- Dee

>

>

[Guest guest]

Keeping you and your mom, and all involved in prayer.  Hoping they will be able

to get her condition stable and under control for where you all need to be.  I

know how difficult and frustrating it is being a caregiver and trying to move

those " mountains " .  Praying that a little bit at a time, God will give you

everything that is needed.  Please stay in touch as often as you can and keep

us all posted.  I think I speak for all of us as i say we are here for you. 

Love and prayers, Jackie

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

To: livercirrhosissupport

Date: Thursday, February 3, 2011, 12:28 PM

 

JUST AN update on My Mom-

THINGS ARE NOT GOOD- MY MOM IS IN ICU ON A VENT. We have been here for 3 days

now, Her sats kept going down, they are doing a bronch today to find out what is

causing the increaSING CONSOLIDATIONS IN HER LUNGS. Dr things might be the

sepsis she had settled in lungs.

IT has been a very rough few days, they took her to surgery to take her gall

bladder out, surgeon said gallbaldder wasnt too sick, its her liver that is

causing the trouble, said its the sickest liver that he has seen, and doenst

think its gonna last 6 mos. She got accepted as a transfer to SF hospital- have

to ask what the name is- isnt not ucsf- they declined her again. Just found out

10 min ago.

ICU Dr soo smart, things move very quickly here, she at this point isnt staBLE

enough to transport, due to the lung issues. Her bili is now down to 12.8. was

18 last wk.

Please everyone pray for my mom Cheri- that her lungs heal and we are able to

get treatment for her liver.

Keep You All Posted!

Thanks- Dee

>

>

[Guest guest]

Praying for us all.

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

To: livercirrhosissupport

Date: Thursday, February 3, 2011, 12:28 PM

 

JUST AN update on My Mom-

THINGS ARE NOT GOOD- MY MOM IS IN ICU ON A VENT. We have been here for 3 days

now, Her sats kept going down, they are doing a bronch today to find out what is

causing the increaSING CONSOLIDATIONS IN HER LUNGS. Dr things might be the

sepsis she had settled in lungs.

IT has been a very rough few days, they took her to surgery to take her gall

bladder out, surgeon said gallbaldder wasnt too sick, its her liver that is

causing the trouble, said its the sickest liver that he has seen, and doenst

think its gonna last 6 mos. She got accepted as a transfer to SF hospital- have

to ask what the name is- isnt not ucsf- they declined her again. Just found out

10 min ago.

ICU Dr soo smart, things move very quickly here, she at this point isnt staBLE

enough to transport, due to the lung issues. Her bili is now down to 12.8. was

18 last wk.

Please everyone pray for my mom Cheri- that her lungs heal and we are able to

get treatment for her liver.

Keep You All Posted!

Thanks- Dee

>

>

[Guest guest]

hi dee, you & your mom have my prayers.

god bless

bev,tx

________________________________

To: livercirrhosissupport

Sent: Thu, February 3, 2011 1:33:44 PM

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

 

Praying for your Mom and also praying really hard for you for strength. What an

ordeal but if it helps to know that we are thinking of you and praying I am more

 

 

 

 

 

 

 

 

 

 

than happy to help in this small way. And yes please keep us posted.

Joan

________________________________

To: livercirrhosissupport

Sent: Thu, February 3, 2011 12:28:20 PM

Subject: Re: Need Help!--Liver Specialist/ Heptologist

in Central cal?

JUST AN update on My Mom-

THINGS ARE NOT GOOD- MY MOM IS IN ICU ON A VENT. We have been here for 3 days

now, Her sats kept going down, they are doing a bronch today to find out what is

causing the increaSING CONSOLIDATIONS IN HER LUNGS. Dr things might be the

sepsis she had settled in lungs.

IT has been a very rough few days, they took her to surgery to take her gall

bladder out, surgeon said gallbaldder wasnt too sick, its her liver that is

causing the trouble, said its the sickest liver that he has seen, and doenst

think its gonna last 6 mos. She got accepted as a transfer to SF hospital-

have to ask what the name is- isnt not ucsf- they declined her again. Just

found out 10 min ago.

ICU Dr soo smart, things move very quickly here, she at this point isnt staBLE

enough to transport, due to the lung issues. Her bili is now down to 12.8. was

18 last wk.

Please everyone pray for my mom Cheri- that her lungs heal and we are able to

get treatment for her liver.

Keep You All Posted!

Thanks- Dee

>

>