Guest guest Posted November 24, 2010 Report Share Posted November 24, 2010 I so agree with you Joan!!! Since I had the liver surgery just this past April, I am certainly aware of the pain etc. that I went through after the surgeon had cut an 11 inch backwards L, to do the resection. I just could not imagine myself allowing that kind of thing to help me!!! ________________________________ Hi Bev Thanks for your input, and all of your reasons are my same reasons for refusing a living donor. I could never live with it if something happened to someone I love because they were trying to save me. The people who have offered and I have refused them all do not understand even though I try to explain it, they think I am being a stupid martyr or something. But that is not it at all, it is caring about people and not wanting anyone in jeopardy so we are really at a cross roads because I don't understand why they don't understand my reasons and they don't understand my reasons. But it comes down to being my decision and I have told my family doctor and my specialist and my power of attorney that if I end up in a coma or something bad it does not in anyway change my decision and they are not to do a live liver transplant under any circumstances. Joan ________________________________ To: livercirrhosissupport Sent: Wed, November 24, 2010 4:38:23 PM Subject: Re: My mothers restlessness and Insomnia....any suggestions? joan i don't know if it makes a difference but i asked my surgeon if i could use a living donor my brother was willing to give me part of his.but was told th at in tx they don't do living donors for livers i would have to go baack to the east coast.and then afre talking it over when the dr and wa tching a film the risdk are really hi for the donor more so thenh the recipient .and i could not de al with anything happening to a nyone trying to save me it would be devistating for me. bev,tx ________________________________ To: livercirrhosissupport Sent: Tue, November 23, 2010 10:42:48 AM Subject: Re: My mothers restlessness and Insomnia....any suggestions? Hi Gloria: i am curious about your response here to having liver cancer, I did not know until recently that most people with advanced cirrosis get liver cancer. I am going for an ultra sound on the 8th because of all of the back pain I have been having. Does anyone elses back ache all the time? My family doctor and specialist keep telling me that it would have nothing to do with my illness, that it does not cause back aches, what do you guys feel about that? I was asked by my specialist if I had any candidates for a live liver donor Gloria and I said no even though a few people have offered, I would prefer a deceased donor. Why do you feel so differently about it than I do. Why not a deceased donor is there something you know that I don't, probably lots I am sure. A lot of people on this site talk about there transplants, did most use live or donor livers? And does it make any difference to the outcome? Hope all is well with you Gloria, and sorry about your sucky weather it is sunny and 14 here today, just the most beautiful day, despite the back ache I have been outside most of the morning with my 2 year old granddaugher to enjoy it while we can. Thanks everyone for everything, Joan ________________________________ To: livercirrhosissupport Sent: Mon, November 22, 2010 10:55:04 PM Subject: Re: My mothers restlessness and Insomnia....any suggestions? Bobby Yes, what you say here makes a whole lot of sense to me as well! However, about the liver transplant thing!! Now with the cancer causing a lot of concern, who knows what I might have to face. I still don't think I could accept a liver; but, I might really think through the possibility of a living donor. Don't know tho. Gloria ________________________________ Gloria, there is a facinating show on the history channel which shows the history of how drugs became illegal. This didnt happen over night. One at a time, they different drugs came under scrutiny. Some were outlawed for good reason. LSD really has no medical use. Highly purified cocaine will just kill the crap out of you so I agree with it being illegal. Meth too. But flowers and leaves should in my opinion be as legal as alcohol. In Peru, people chew coca leaves and get the same kick as a cup of coffee. A little pick me up, if you will. Poppies are the only substance on the earth that will actually sooth pain. I am not talking about little aches and such, but I am talking about real, dibilitating,take your breath away pain. Poppies contain 50 different alkaloids known to alleviate pain, with zero toxicity. Crayons are more poisonous. Pot is said to have much medicinal value, though I never cared for it myself. We have over the years succumbed to voices which have convinced us of the evils of these things, with much of the hysteria being unfounded. Oh, well. I just wanted to make sure that no one in the group was un aware of the seriousness of the catch 22 of medical marajuana, and Dave brings up a good point-they will not give you a transplant if you've been partaking. I know that this isnt a problem for you, but there are others for whom it may be. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Fri, November 19, 2010 9:16:06 PM Subject: Re: My mothers restlessness and Insomnia....any suggestions? Bobby You know that I agree with you wholeheartedly!! I have to wonder what percentage of society actually suffer from the worst of the legal drugs, alcohol. I can bet that it is a whole lot higher than we'd like to admit. However, does that give the right to the governments to outlaw it because of that percentage that misuse it?? Then go out from there with the cocoa or poppies. If (or when) my time comes to need heavy pain meds and I learned that either the cocoa or the poppy could help take it away - then guess what?? Gloria ________________________________ I am starting to see things much different than I used to. I believe that coca leaves in their natural form, poppies as well as marijuana are natural medicines given to us by our creator. We have the right to use them for the purpose intended, but unfortunately we have forfeited those rights. Alcohol when taken in moderation is safe and even healthy, but unlike the other three mentioned,it is toxic,where coca, poppies and marijuana are all non toxic. These are just my personal opinions. I have been reading a lot about the subject lately. Even one hundred years ago, things were so so much different. The majority of addicts were middle aged house wives. People were quite sure that the problem of drug addiction was just horrible and couldnt get any worse, so we must enact the strictest controls and laws to eradicate the problem. Oh, my how we have screwed this one up! I'd better shut up before I say too much. I am sure people see where I am coming from. Bobby ________________________________ To: livercirrhosissupport Sent: Fri, November 19, 2010 3:30:42 PM Subject: Re: My mothers restlessness and Insomnia....any suggestions? I totally agree with Bobby Joan! Alcohol will make you violent, aggressive. Marijuana makes you mellow. Alcohol ruins families, relationships and your health. As far as I know.......this isn't the case with marijuana. I guess it could ruin a marriage if one decides they hate it and doesn't want anything to do with it. BTW, I don't use it myself but did some in college. I don't understand why the gubment does what it does concerning this. Makes no sense to me to send a grannie to jail for growing a little in her garden to ease her pain. Not to mention tying up our court systems busting the teenagers for having a joint in their car. Roni > I did not know that it was still illegal to use marijuana for > medical reasons > in the States. I thought with the talk of cookies and such that it > must of been > made legal for medical reasons. I am so sorry that it is not, here > in Canada you > can get 5 grams a month with a prescription from a doctor. With of > course a > better part of your life spent filling out forms and such first and > although I > do not use it (yet) I know of many people for other conditions such > as cancers > that use it and it helps so much. Eases pain, relaxes them, helps > them rest and > increases appetite so what is so bad about that? I sound like a > weirdo don't I, > but I agree with Bobby you can get all the booze you want which > helps no one > with anything and yet you cannot get something that would help. I'll > probably > get arreted the next time I try to cross the border! lol > > And bobby at this point anything is possible lol > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, November 19, 2010 7:01:38 AM > Subject: Re: My mothers restlessness and > Insomnia....any suggestions? > > > In my home town of Denver, the lines at the DMV are out of hand. > This is because > > that is where you go to obtain a special licence to grow medical > marajuana for > the dispensaries. There are signs all up and down the main street in > the > neighborhood where I grew up, 10 miles directly south of Mile High > stadium, and > on the street which it is located, hundreds of signs mark the > locations of > dispensaries for marajuana, brownies, cookies, tablets, you name it. > The catch > is that already several of them have been raided federal agents with > machine > guns, and shooting flash bang grenades... at grandmothers! Marijuana > is still a > federal crime here. In the entire copuntry, and NO mercy for medical > use is to > be expected, whatsoever. > I would caution anyone who obtaines marajuana for medical use that > it is still > in fact against the law, and there is no such thing as get out of > jail free > cards. > > The world is truely upside down with alcohol, a drug so lethal, it > was recently > given a status as more dangerous than methamphetamine, is available > just down > the street, and possesion of marajuana will land you in federal > prison, a felon, > > unable to ever collect social security, or vote. Caution. Everyone > should > decide for themselves. I do not want to see any one get caught up > with a charge! > Good luck, Helen.. > > Love, Bobby > > P.s,Joan- isnt ther a North America, Central America, and South > America? In > other words, are you sure that you arent one? lol > > ________________________________ > > To: livercirrhosissupport > Sent: Thu, November 18, 2010 3:02:58 PM > Subject: Re: My mothers restlessness and > Insomnia....any suggestions? > > curious as all get out, marijuana cookies??? I thought we were a > little more > free thinking up here in the north country but I have never heard of > this can't > wait to hear what everyone has to say. May have to become an > american Eh bobby. > lol > > ________________________________ > > To: livercirrhosissupport > Sent: Thu, November 18, 2010 2:08:36 PM > Subject: Re: My mothers restlessness and > Insomnia....any suggestions? > > Thank you, > > I called the doc today and she has prescribed elavil which is like > an anti > depressant aswell as something that treats insomnia....will pick it > up later and > > pray it works for her tonight. I also want to contact a Medical > Marijuana Doctor > > to see if its possible to try some medical marijuana cookies. I have > heard great > > things about them for insomnias. My Mum lives in New York so I have > to bring her > > to New Jersey to a new doctor for that. Has anyone tried these > cookies before or > > heard of them? > Thanks again for your input, it really helps. > Helen > > ________________________________ > > To: livercirrhosissupport > Sent: Thu, November 18, 2010 1:12:18 PM > Subject: Re: My mothers restlessness and > Insomnia....any suggestions? > > I am sorry to tell you but my last episode of severe insomnia were I > was lucky > to get two hours a night lasted for months. My specialist and family > dodctor > tried different medications but even with some really strong ones I > only got > maybe 4 hours. And it was not 4 hours in a row it was half hour > here, an hour > there constantlty up and down like your Mom. Even my dogs got > irritated with me > and would do that low growl in the back of there throats when I > would get up, > and I discovered that they are really wimps and will not walk in the > early > morning hours like 2 or 3. lol I hope for your sake that your moms > does not last > > anywere near this long, even now i don't sleep well, maybe 6 hours a > night and > still up and down a couple of times. I miss a good nights sleep, but > my family > doctor says sleep is over rated but I do not agree with her. > > I doubt a good nights sleep will ever happen again for me, I never > used to watch > > TV now I know all of the shows. Joan > > ________________________________ > > To: livercirrhosissupport > Sent: Thu, November 18, 2010 12:44:22 PM > Subject: Re: My mothers restlessness and > Insomnia....any suggestions? > > It lasted a long time for me. I don't remember how long it lasted, > but it was a > > long time. I slept outside in the two person swing because somehow > it eased the > > pain. > > Please go and tell her doctor that her meds are not working. > > Lyncia > > > > > Subject: My mothers restlessness and > Insomnia....any > suggestions? > To: livercirrhosissupport > Date: Wednesday, November 17, 2010, 5:01 PM > > Hello, > I am trying to take care of my mother who has complications due to > liver > failure. I won't go into everything as all of you know already the > various > complications associated with this horrible disease. I really feel > sorry for > those of you who do not have enough help or support. My heart goes > out to you, > as I really believe you need all the help you can get from your > families. > > I am at my wits end at the moment because my mother cannot sleep. > She sleeps for > > maybe 2 hours with the help of Ambian 2x10mg, Melatonin, Valium .25 > I understand > > the chemical reaction going on in the blood and this is the cause of > her > insomnia. But worse is that she cannot just sit and relax while she > is awake. > Her body/brain will not let her rest and she is really exhausted and > so am I. > She is up and down off the couch, in and out of bed every 30 seconds > ( I timed > how long she can sit still) I have to walk with her, up and down the > apartment > as I am afraid she will fall from exhaustion or that her legs will > go from > underneath her. She is not in pain as we have pain patches thank > goodness. But > this very serious restlessness is driving me and her crazy. Any > suggestions > would be appreciated. > > Just so you know. She takes Antibiotic and a little Lactulose to > keep the bowels > > moving. > > She walks and talks like she is drunk but she is not, again I know > this is the > chemicals talking or the sick liver really. Anyhow, would love to > get her some > relief from her misery so again any help or suggestions would be > greatly > appreciated. > > She has been in the hospital 4 times since March with Hepatic > Encephalogy and > pain. > > Quote Link to comment Share on other sites More sharing options...
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