Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 Katy, Fatty tissue liver disease is for many a precursor of cirrhosis, so it wasnt that the cirrhosis problem was missed the first time, it just may have been understated, or maybe they didn't explain it very well to you. I have been told that mine is slow growing, have no idea when it started, like you not an alcoholic but I did have drinks at social occassions, not to excess, wish all the people here who have cirrhosis could have my aversion to getting drunkl Some people end up in the emergency room and find out they need a transplant, or are at the end stage. If you can qualify for a transwould think that it would be easier for the patient and everyone around them to have it go fast. Since I have to live, or die with mine I am glad it is going slow. Some of us here think prayers are priceless so thankyou for the gift, It is appreciated. Jan > About two years ago, I was diagnosed with Fatty Liver Disease. Yes, I'm > fat. > > Then, a year ago (when I had decent insurance)I was being checked for > kidney stones and, oddly enough, my heretofore unknown cirrhosis showed up > on the scan. I don't know if cirrhosis can progress THAT quickly...may have > been a missed diagnosis. > > Anyway, fourth-stage. Really painful. Enlarged spleen. Spider nevi (I > look like I have the measles...sigh), bruising, bruising, bruising, > day/night reversal (I HATE that!) etc. Starting with the pitting edema in > my ankles and lower legs. > > I've never been a drinker, so there's nothing to improve in THAT area of my > life. (I'm Mormon...I REALLY don't drink. Thank heavens my Doctor knows me > well enough to believe me...other Doctors want to put all liver problems on > drinking.) I'm fat, and have been told that, whilst losing weight will help, > I'm dying anyway, so enjoy some ice cream. > > Oh and I'm female and 54. Lost my job two years ago, husband's pay was cut > by 40% and our insurance now has a $3,000 deductible. I am officially po'. > Any cheap suggestions? California won't help because I make $4 too much a > week to qualify. I can't afford our electric bill...how much poorer can we > be? I haven't lit a heater in almost 13 years, just to save money. (And I > can just hear the ghost of my depression-era Dad, telling me to " put on a > sweater and turn down the heat! Money doesn't grow on trees! " LOL) > > As an ex-hospice nurse, I'm aware of the " icky-ness " of end-stage liver > disease. Sooooo not looking forward to that. I'm trying " denial " but that > will only hold up so long. > > Any ideas welcomed. > > You're all in my (for what they're worth) prayers, > > Kate > > > > > ------------------------------------ > > Group Email: livercirrhosissupport > web address: > http://groups.yahoo.com/group/livercirrhosissupport/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 kate, my name is beverly i was diAgnosed with cirrhosis in 2008 and yes i was a heavy dranker.i like you were in denial but after 5 months of isolating myself was not going to make the problem disappear so i had to go to an out patient recovery center for alcohol i had to be clean for 1 yr and the i would be put on a transplant waiting list its now been 1 yr on the list and i am still waiting .as far as your finances you need to talk to your liver dr and they should be able to help you find some programs to help with the medical issues you can also try the national liver association,i also use ntf go to there website national transplant fund they have lots of good advise.hope this helps.and yes prays also do help you just have to keep the faith. god bless bev,tx ________________________________ To: livercirrhosissupport Sent: Sat, January 1, 2011 2:41:37 PM Subject: Question(s) Â About two years ago, I was diagnosed with Fatty Liver Disease. Yes, I'm fat. Then, a year ago (when I had decent insurance)I was being checked for kidney stones and, oddly enough, my heretofore unknown cirrhosis showed up on the scan. I don't know if cirrhosis can progress THAT quickly...may have been a missed diagnosis. Anyway, fourth-stage. Really painful. Enlarged spleen. Spider nevi (I look like I have the measles...sigh), bruising, bruising, bruising, day/night reversal (I HATE that!) etc. Starting with the pitting edema in my ankles and lower legs. I've never been a drinker, so there's nothing to improve in THAT area of my life. (I'm Mormon...I REALLY don't drink. Thank heavens my Doctor knows me well enough to believe me...other Doctors want to put all liver problems on drinking.) I'm fat, and have been told that, whilst losing weight will help, I'm dying anyway, so enjoy some ice cream. Oh and I'm female and 54. Lost my job two years ago, husband's pay was cut by 40% and our insurance now has a $3,000 deductible. I am officially po'. Any cheap suggestions? California won't help because I make $4 too much a week to qualify. I can't afford our electric bill...how much poorer can we be? I haven't lit a heater in almost 13 years, just to save money. (And I can just hear the ghost of my depression-era Dad, telling me to " put on a sweater and turn down the heat! Money doesn't grow on trees! " LOL) As an ex-hospice nurse, I'm aware of the " icky-ness " of end-stage liver disease. Sooooo not looking forward to that. I'm trying " denial " but that will only hold up so long. Any ideas welcomed. You're all in my (for what they're worth) prayers, Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 Hi Kate: Just read your message and it breaks my heart. I'm Jackie. My husband, also had fatty liver (from diabetes) which progressed to cirrhosis. He never drank either. He had lost his job when he was 59, and planned on looking for another one after a few months on un-employment. To make a long story short, he went for a physical and they discovered he had 95% blockages in 2 of his arteries and 90% in 2 others. He was a heart attack waiting to happen. After having open heart surgery (4 way bypass) we applied for disability. He was turned down, and I saw an ad on tv for Binder & Binder. I figured 'what the heck? It can't hurt to try'. Again, long story short- they got disability for him, which made him eligible for Medicare. Then in 2007 he had bleeding varicies in his esophagus. In 2009 he was diagnosed with 3 cancerous tumors in the right lobe of his liver. He was treated with chemoembolization and received a new liver on May 26th, 2010. Please don't give up. Can you apply for disability? I understand end stage liver disease meets the criteria for disability. Then once you are on Medicare you can be evaluated at a transplant center. I pray you will be able to get disability and eventually be transplanted like my husband was. Please let me hear from you. My email address is jckellermann@.... Jackie Subject: Question(s) To: livercirrhosissupport Date: Saturday, January 1, 2011, 5:41 PM  About two years ago, I was diagnosed with Fatty Liver Disease. Yes, I'm fat. Then, a year ago (when I had decent insurance)I was being checked for kidney stones and, oddly enough, my heretofore unknown cirrhosis showed up on the scan. I don't know if cirrhosis can progress THAT quickly...may have been a missed diagnosis. Anyway, fourth-stage. Really painful. Enlarged spleen. Spider nevi (I look like I have the measles...sigh), bruising, bruising, bruising, day/night reversal (I HATE that!) etc. Starting with the pitting edema in my ankles and lower legs. I've never been a drinker, so there's nothing to improve in THAT area of my life. (I'm Mormon...I REALLY don't drink. Thank heavens my Doctor knows me well enough to believe me...other Doctors want to put all liver problems on drinking.) I'm fat, and have been told that, whilst losing weight will help, I'm dying anyway, so enjoy some ice cream. Oh and I'm female and 54. Lost my job two years ago, husband's pay was cut by 40% and our insurance now has a $3,000 deductible. I am officially po'. Any cheap suggestions? California won't help because I make $4 too much a week to qualify. I can't afford our electric bill...how much poorer can we be? I haven't lit a heater in almost 13 years, just to save money. (And I can just hear the ghost of my depression-era Dad, telling me to " put on a sweater and turn down the heat! Money doesn't grow on trees! " LOL) As an ex-hospice nurse, I'm aware of the " icky-ness " of end-stage liver disease. Sooooo not looking forward to that. I'm trying " denial " but that will only hold up so long. Any ideas welcomed. You're all in my (for what they're worth) prayers, Kate Quote Link to comment Share on other sites More sharing options...
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