Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 This is a post from a new member that only owners and mods got so I am sending on to all. This is from Means. I don't know if I was supposed to e-mail back or go to the website.This was a little easier so I hope an email is okay this time. I have never gotten involved with a chat group before, but I feel like I need this one. I am almost 37, divorced female with three children.My ten year old son, eight year old daughter, and five year old little boy keep me very busy! A little too busy sometimes for how I feel. I have been feeling bad for a long time, but it wasn't until last year that I was diagnosed with Fibromyalgia. I am still learning what it is. I get very little sleep, I'm often cranky, and then I feel guilty for not wanting to do anything fun with my kids. I have started to realize what an emotional wreck I have become. I get teary so easily. It is costing me my job. I just got moved from my regular position to doing mail! I'm sure you can imagine how that makes me feel. I was always a smart woman, making the good grades through high school and college, but now I am feeling like I can no longer trust my judgment. I am sad. I have a messy house. And I have felt so alone for a long time. I need friends and some one to tell the truth to. Some one that will still want me around even through I can be a drag. I hope I can get to know others who can relate to me and who will help me understand more about this disease that I have. I thank God for the fact there is a support group for this, I was praying there would be. Thank you for doing this.God bless all of you. Love & God Bless! /Wolf~President I'm diagonally parked in a parallel universe. " Therefore encourage one another and build each other up, just as in fact you are doing. " 1 Thessalonians 5:11 Now as I always say this at the end of my e-mails: IF GOD BRINGS YOU TO IT. HE WILL BRING YOU THROUGH IT. This has became my philosophy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 hi teresa, welcome to the group. i'm new to the group also. i have only recently been diagnosed w/fibro. i'm still probably in the earlier stages or i have a mild case, b/c i'm in pain, but not in as much pain as most ppl here. mild pain meds still help me. i do light exercise also. i'm not working at present b/c i keep getting sick. you should try for disability at your job if it is getting to hard for you or try to get SSD. but if you make too much right now they will not consider you. or you could try cutting down your hours at work. i did that for a few years b/c of my lympedema. but then even that got to hard. i know what you are going thru. it's really hard to keep up w/the family when you feel so awful. of course your house is messy. when you get off of work your too darn tired to anything w/anybody. a good idea is to assign your kids chores to help w/the house. they are just the right age to start. (my now adult kids, who still live w/me and my husband, started at the tender age of 5 or 6, helping me do simple chores). by the time, my kids were age 10, they cleaned their own rooms, did dishes, vacuumed and took out the garbage (even when i couldn't afford an allowance). i told my kids, i fed and diapered your butts for all those years, its your turn to do it for me. besides it teaches them responsibility and if you house is still messy, well tough. your sick and thats that. if ppl don't understand then thats there problem. as long as its not so dirty that they could take your children away from you then your fine. my kids grew up that way and my son is fairly lazy, but my daughter is nuts about clean. so it all works out. they still do chores and help out around here until they move out and get their own places. so don't worry about it. that's the least of your worrys right now. you can also ask relatives to help you deal w/the clean up. if they complain set them to work. if the refuse tell them to put up or shut up. when the kids visit their father (if he has visitation rights) that is when you really should get all the rest you can. forget the house, forget the car, forget everything and just sleep. you could also ask family to help you w/taking care of the kids more. let them visit grammy or umpa more so you can rest. otherwise, i totally understand what you are going thru. a suggestion on another group to find more friends was to find the local chapter of fibromyalgia in your area and go to their meetings so you can meet new ppl there. most of my friends know i have been sick forever so i haven't really lost any of my friends and if i did just b/c i got sick i would tell them that they weren't very good friends anyway. after all, ppl that dump you when you are sick are just fairweather friends anyway. i stick my mine thru thick and thin and i expect them to do the same by me. good luck and hope you are feeling better soon, nancy in reno ps. where are you located? > This is a post from a new member that only owners and mods got so I am sending on to all. This is from Means. > > I don't know if I was supposed to e-mail back or go to the website.This was a little easier so I hope an email is okay this time. I have never gotten involved with a chat group before, but I feel like I need this one. I am almost 37, divorced female with three children.My ten year old son, eight year old daughter, and five year old little boy keep me very busy! A little too busy sometimes for how I feel. I have been feeling bad for a long time, but it wasn't until last year that I was diagnosed with Fibromyalgia. I am still learning what it is. I get very little sleep, I'm often cranky, and then I feel guilty for not wanting to do anything fun with my kids. I have started to realize what an emotional wreck I have become. I get teary so easily. It is costing me my job. I just got moved from my regular position to doing mail! I'm sure you can imagine how that makes me feel. I was always a smart woman, making the good grades through high school and college, but now I am feeling like I can no longer trust my judgment. I am sad. I have a messy house. And I have felt so alone for a long time. I need friends and some one to tell the truth to. Some one that will still want me around even through I can be a drag. I hope I can get to know others who can relate to me and who will help me understand more about this disease that I have. I thank God for the fact there is a support group for this, I was praying there would be. Thank you for doing this.God bless all of you. > > Love & God Bless! > > /Wolf~President > > I'm diagonally parked in a parallel universe. > > " Therefore encourage one another and build each other up, > just as in fact you are doing. " > > 1 Thessalonians 5:11 > > Now as I always say this at the end of my e-mails: > > IF GOD BRINGS YOU TO IT. > > HE WILL BRING YOU THROUGH IT. > > This has became my philosophy. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 hi teresa, welcome to the group. i'm new to the group also. i have only recently been diagnosed w/fibro. i'm still probably in the earlier stages or i have a mild case, b/c i'm in pain, but not in as much pain as most ppl here. mild pain meds still help me. i do light exercise also. i'm not working at present b/c i keep getting sick. you should try for disability at your job if it is getting to hard for you or try to get SSD. but if you make too much right now they will not consider you. or you could try cutting down your hours at work. i did that for a few years b/c of my lympedema. but then even that got to hard. i know what you are going thru. it's really hard to keep up w/the family when you feel so awful. of course your house is messy. when you get off of work your too darn tired to anything w/anybody. a good idea is to assign your kids chores to help w/the house. they are just the right age to start. (my now adult kids, who still live w/me and my husband, started at the tender age of 5 or 6, helping me do simple chores). by the time, my kids were age 10, they cleaned their own rooms, did dishes, vacuumed and took out the garbage (even when i couldn't afford an allowance). i told my kids, i fed and diapered your butts for all those years, its your turn to do it for me. besides it teaches them responsibility and if you house is still messy, well tough. your sick and thats that. if ppl don't understand then thats there problem. as long as its not so dirty that they could take your children away from you then your fine. my kids grew up that way and my son is fairly lazy, but my daughter is nuts about clean. so it all works out. they still do chores and help out around here until they move out and get their own places. so don't worry about it. that's the least of your worrys right now. you can also ask relatives to help you deal w/the clean up. if they complain set them to work. if the refuse tell them to put up or shut up. when the kids visit their father (if he has visitation rights) that is when you really should get all the rest you can. forget the house, forget the car, forget everything and just sleep. you could also ask family to help you w/taking care of the kids more. let them visit grammy or umpa more so you can rest. otherwise, i totally understand what you are going thru. a suggestion on another group to find more friends was to find the local chapter of fibromyalgia in your area and go to their meetings so you can meet new ppl there. most of my friends know i have been sick forever so i haven't really lost any of my friends and if i did just b/c i got sick i would tell them that they weren't very good friends anyway. after all, ppl that dump you when you are sick are just fairweather friends anyway. i stick my mine thru thick and thin and i expect them to do the same by me. good luck and hope you are feeling better soon, nancy in reno ps. where are you located? > This is a post from a new member that only owners and mods got so I am sending on to all. This is from Means. > > I don't know if I was supposed to e-mail back or go to the website.This was a little easier so I hope an email is okay this time. I have never gotten involved with a chat group before, but I feel like I need this one. I am almost 37, divorced female with three children.My ten year old son, eight year old daughter, and five year old little boy keep me very busy! A little too busy sometimes for how I feel. I have been feeling bad for a long time, but it wasn't until last year that I was diagnosed with Fibromyalgia. I am still learning what it is. I get very little sleep, I'm often cranky, and then I feel guilty for not wanting to do anything fun with my kids. I have started to realize what an emotional wreck I have become. I get teary so easily. It is costing me my job. I just got moved from my regular position to doing mail! I'm sure you can imagine how that makes me feel. I was always a smart woman, making the good grades through high school and college, but now I am feeling like I can no longer trust my judgment. I am sad. I have a messy house. And I have felt so alone for a long time. I need friends and some one to tell the truth to. Some one that will still want me around even through I can be a drag. I hope I can get to know others who can relate to me and who will help me understand more about this disease that I have. I thank God for the fact there is a support group for this, I was praying there would be. Thank you for doing this.God bless all of you. > > Love & God Bless! > > /Wolf~President > > I'm diagonally parked in a parallel universe. > > " Therefore encourage one another and build each other up, > just as in fact you are doing. " > > 1 Thessalonians 5:11 > > Now as I always say this at the end of my e-mails: > > IF GOD BRINGS YOU TO IT. > > HE WILL BRING YOU THROUGH IT. > > This has became my philosophy. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 dear karen, w/3 kids you are also probly eligible for welfare, child support and medicaid. best to apply for them even if you get employment insurance, b/c its never enough and sometimes you will get a bit extra from welfare. nobody likes dealing w/welfare but they sure are better than nothing. you will definitely be eligible for food stamps and medicaid for the kids if nothing else. also if you apply for SSD (social security disability) you will be eligible for medicaid (even if you are married, i just found this out today). so do all that and i'm sure you will be fine. also make sure you get to that drs appt and i will wish you well. hugs, nancy, newly diagnosed in reno, nevada. > HELLO, THIS IS KAREN AGAIN. I HAVE RECEIVED SO MANY E-MAILS, IT IS INCREDIBLE! I HAVEN'T MADE MUCH OF A DENT IN READING THEM YET, BUT SOMETHING HAPPENED TO ME YESTERDAY AND I WOULD LIKE TO SHARE. I GOT FIRED YESTERDAY. I HAVE ALWAYS BEEN A GOOD EMPLOYEE, A HARD WORKER, AND I DON'T EVEN KNOW WHAT I DID WRONG. THE BOSS SAID THAT I JUST DIDN'T FIT IN. I LEFT WITH MY HEAD HANGING, NOT SURE WHAT I'LL DO, NOT UNDERSTANDING WHAT I DID TO LOOSE MY JOB. KNOWING THAT I HAVE A HARD ROAD AHEAD. I AM SURE THAT GETTING TEARY ON THE JOB HAD SOMETHING TO DO WITH IT. MY FEELINGS HAVE BEEN MUCH TOO SENSITIVE. I WISH I WERE DIFFERENT. I HAVE A DR'S APPOINTMENT THURS AND I AM SURE THAT I NEED TO BE ON AN ANTIDEPRESSANT, BUT I HAVE NO CLUE AS TO WHICH ONE WOULD HELP ME. PLEASE GIVE ME ADVICE AS TO WHAT I SHOULD ASK MY DOCTOR ABOUT FOR DEPRESSION AND FOR EXHAUSTION AND PAIN. I KNOW I NEED HELP. I DID NOT KNOW ABOUT THIS FOG I KEEP HEARING ABOUT, BUT I DO LOOSE THINGS, AND MY TRAIN OF THOUGHT, VERY > EASILY. AM I GOING TO BE ABLE TO GET SOME HELP, LIKE DISABILITY OR SOMETHING? I DON'T KNOW HOW I WILL BE ABLE TO GET AND KEEP ANOTHER JOB FEELING AND ACTING THE WAY I DO. I HAVE THREE KIDS, HOW AM I GOING TO MAKE ENDS MEET? I KNOW ALL OF US HAVE AN ASSORTMENT OF PROBLEMS AND I DON'T MEAN TO BURDEN ANYONE WITH MINE, SO IF I AM TOO NEEDY, JUST " GENTLY " LET ME KNOW AND I'LL TRY NOT TO THINK ONLY OF MYSELF. I HOPE THAT I MAY BE A HELP TO OTHERS TOO, MAYBE MORE SO WHEN I HAVE LEARNED TO COPE BETTER. I APPRECIATE ALL WHO HAVE E- MAILED ME AND I VALUE THE INFORMATION YOU GIVE. THANKS TO ALL AND GOD BLESS YOU ALL AND YOUR FAMILIES. FROM KAREN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 no medicade if u are old. My dear husband is on ssd and we pay alllllllllllllll ins... so there is built in age descrimination. dash Re: Post from a new member! dear karen, w/3 kids you are also probly eligible for welfare, child support and medicaid. best to apply for them even if you get employment insurance, b/c its never enough and sometimes you will get a bit extra from welfare. nobody likes dealing w/welfare but they sure are better than nothing. you will definitely be eligible for food stamps and medicaid for the kids if nothing else. also if you apply for SSD (social security disability) you will be eligible for medicaid (even if you are married, i just found this out today). so do all that and i'm sure you will be fine. also make sure you get to that drs appt and i will wish you well. hugs, nancy, newly diagnosed in reno, nevada. > HELLO, THIS IS KAREN AGAIN. I HAVE RECEIVED SO MANY E-MAILS, IT IS INCREDIBLE! I HAVEN'T MADE MUCH OF A DENT IN READING THEM YET, BUT SOMETHING HAPPENED TO ME YESTERDAY AND I WOULD LIKE TO SHARE. I GOT FIRED YESTERDAY. I HAVE ALWAYS BEEN A GOOD EMPLOYEE, A HARD WORKER, AND I DON'T EVEN KNOW WHAT I DID WRONG. THE BOSS SAID THAT I JUST DIDN'T FIT IN. I LEFT WITH MY HEAD HANGING, NOT SURE WHAT I'LL DO, NOT UNDERSTANDING WHAT I DID TO LOOSE MY JOB. KNOWING THAT I HAVE A HARD ROAD AHEAD. I AM SURE THAT GETTING TEARY ON THE JOB HAD SOMETHING TO DO WITH IT. MY FEELINGS HAVE BEEN MUCH TOO SENSITIVE. I WISH I WERE DIFFERENT. I HAVE A DR'S APPOINTMENT THURS AND I AM SURE THAT I NEED TO BE ON AN ANTIDEPRESSANT, BUT I HAVE NO CLUE AS TO WHICH ONE WOULD HELP ME. PLEASE GIVE ME ADVICE AS TO WHAT I SHOULD ASK MY DOCTOR ABOUT FOR DEPRESSION AND FOR EXHAUSTION AND PAIN. I KNOW I NEED HELP. I DID NOT KNOW ABOUT THIS FOG I KEEP HEARING ABOUT, BUT I DO LOOSE THINGS, AND MY TRAIN OF THOUGHT, VERY > EASILY. AM I GOING TO BE ABLE TO GET SOME HELP, LIKE DISABILITY OR SOMETHING? I DON'T KNOW HOW I WILL BE ABLE TO GET AND KEEP ANOTHER JOB FEELING AND ACTING THE WAY I DO. I HAVE THREE KIDS, HOW AM I GOING TO MAKE ENDS MEET? I KNOW ALL OF US HAVE AN ASSORTMENT OF PROBLEMS AND I DON'T MEAN TO BURDEN ANYONE WITH MINE, SO IF I AM TOO NEEDY, JUST " GENTLY " LET ME KNOW AND I'LL TRY NOT TO THINK ONLY OF MYSELF. I HOPE THAT I MAY BE A HELP TO OTHERS TOO, MAYBE MORE SO WHEN I HAVE LEARNED TO COPE BETTER. I APPRECIATE ALL WHO HAVE E- MAILED ME AND I VALUE THE INFORMATION YOU GIVE. THANKS TO ALL AND GOD BLESS YOU ALL AND YOUR FAMILIES. FROM KAREN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 no medicade if u are old. My dear husband is on ssd and we pay alllllllllllllll ins... so there is built in age descrimination. dash Re: Post from a new member! dear karen, w/3 kids you are also probly eligible for welfare, child support and medicaid. best to apply for them even if you get employment insurance, b/c its never enough and sometimes you will get a bit extra from welfare. nobody likes dealing w/welfare but they sure are better than nothing. you will definitely be eligible for food stamps and medicaid for the kids if nothing else. also if you apply for SSD (social security disability) you will be eligible for medicaid (even if you are married, i just found this out today). so do all that and i'm sure you will be fine. also make sure you get to that drs appt and i will wish you well. hugs, nancy, newly diagnosed in reno, nevada. > HELLO, THIS IS KAREN AGAIN. I HAVE RECEIVED SO MANY E-MAILS, IT IS INCREDIBLE! I HAVEN'T MADE MUCH OF A DENT IN READING THEM YET, BUT SOMETHING HAPPENED TO ME YESTERDAY AND I WOULD LIKE TO SHARE. I GOT FIRED YESTERDAY. I HAVE ALWAYS BEEN A GOOD EMPLOYEE, A HARD WORKER, AND I DON'T EVEN KNOW WHAT I DID WRONG. THE BOSS SAID THAT I JUST DIDN'T FIT IN. I LEFT WITH MY HEAD HANGING, NOT SURE WHAT I'LL DO, NOT UNDERSTANDING WHAT I DID TO LOOSE MY JOB. KNOWING THAT I HAVE A HARD ROAD AHEAD. I AM SURE THAT GETTING TEARY ON THE JOB HAD SOMETHING TO DO WITH IT. MY FEELINGS HAVE BEEN MUCH TOO SENSITIVE. I WISH I WERE DIFFERENT. I HAVE A DR'S APPOINTMENT THURS AND I AM SURE THAT I NEED TO BE ON AN ANTIDEPRESSANT, BUT I HAVE NO CLUE AS TO WHICH ONE WOULD HELP ME. PLEASE GIVE ME ADVICE AS TO WHAT I SHOULD ASK MY DOCTOR ABOUT FOR DEPRESSION AND FOR EXHAUSTION AND PAIN. I KNOW I NEED HELP. I DID NOT KNOW ABOUT THIS FOG I KEEP HEARING ABOUT, BUT I DO LOOSE THINGS, AND MY TRAIN OF THOUGHT, VERY > EASILY. AM I GOING TO BE ABLE TO GET SOME HELP, LIKE DISABILITY OR SOMETHING? I DON'T KNOW HOW I WILL BE ABLE TO GET AND KEEP ANOTHER JOB FEELING AND ACTING THE WAY I DO. I HAVE THREE KIDS, HOW AM I GOING TO MAKE ENDS MEET? I KNOW ALL OF US HAVE AN ASSORTMENT OF PROBLEMS AND I DON'T MEAN TO BURDEN ANYONE WITH MINE, SO IF I AM TOO NEEDY, JUST " GENTLY " LET ME KNOW AND I'LL TRY NOT TO THINK ONLY OF MYSELF. I HOPE THAT I MAY BE A HELP TO OTHERS TOO, MAYBE MORE SO WHEN I HAVE LEARNED TO COPE BETTER. I APPRECIATE ALL WHO HAVE E- MAILED ME AND I VALUE THE INFORMATION YOU GIVE. THANKS TO ALL AND GOD BLESS YOU ALL AND YOUR FAMILIES. FROM KAREN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Kristy, you really should tell all this to your Congressman and to your Senator. I know Medicaid is usually a state thing, but it is supported by federal dollars. Whenever I have a problem with a federal agency, I communicate with my representatives. Also the time, a military jet buzzed the therapeutic riding place, I asked my Congressman to please do something. Dillion, I think. > Dillon, > > The elderly can get Medicaid to help cover nursing home care. > We tried to do so for my grandma before she died in 2000 but the > wait would have been too long and as it turned out when we > finally tried for it for her and sent the papers in she died. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Kristy, you really should tell all this to your Congressman and to your Senator. I know Medicaid is usually a state thing, but it is supported by federal dollars. Whenever I have a problem with a federal agency, I communicate with my representatives. Also the time, a military jet buzzed the therapeutic riding place, I asked my Congressman to please do something. Dillion, I think. > Dillon, > > The elderly can get Medicaid to help cover nursing home care. > We tried to do so for my grandma before she died in 2000 but the > wait would have been too long and as it turned out when we > finally tried for it for her and sent the papers in she died. Quote Link to comment Share on other sites More sharing options...
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