Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 , I was glad to see that you posted again. I would like to help you, but I can only post what works for me and as we are all so individual except all being in pain, it is hard for me to advise you. I am 53, I have had this illness at least 7 years, my husband thinks maybe longer as he saw signs back in my 30's, when I was a runner. He noticed that I have muscle pain that was quite a bit more than it should be. I was diagnosed in June 2000, and I had being trying to figure out why I was in so much pain since about Oct 1999. The first thing I did after being diagnosed was to read everything I could on the subject. I either bought or checked out from the library every book about FMS that I could lay my hands on. A few months later, I joined a couple of support groups so I could get some feedback from others who are experiencing this illness. I found out that there seemed to be quite a range of disablity among people with FMS and for a few years, I was close to my regular self. Each year, It is apparent that I am in more pain. Anyway, enough about me. Question: Tell me about what you are able to do, such as what is your typical day or week like? Question: What are your resources, do you have family or good friends that can help you? Question: Other than pain, what problems are you having with FMS? Remember, I am not a doctor, just a well informed fibro person. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Dear , You might want to consider an anxiety medication such as xanax to help you through the panic attacks. I personally take .25 mg. Xanax 3 times a day, and it all but eliminates my fears of being out in public. I never found a supplement that would work even a little. jigss amd rauers. Sharon - Memphis, TN Phone " ..and with his stripes, we ARE healed! " Isaiah 53:5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Dear , This phobia you describe sounds a lot like agrorophobia (? sp), which is a fear of going out into any kind of situation where you will be in a crowd of any kind. I suffer from several phobias myselff, the least rational of which is a terrifying fear of IVs of any sort. However, I was just in the hospital laast week for surgery for kidney cancer, and I managed to overcome it for the two days I was in the hospital. Part of the reason for overcoming this fear was the pain that I was in. My dilaudid was being dellivered via IV pump, and it was bad enough even with the IV pump.... I did not want to try it without it. I also suffer from fear of crowds, especially in shopping malls. This fear does not extend to stores like WalMart, which is why I say that if WalMart doesnt have it, then I don;t need it. Heres hoping for some pain free daays ahead. hugs and prayers, Sharon - Memphis, TN Phone " ..and with his stripes, we ARE healed! " Isaiah 53:5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 ---Joan, I have been in touch with Sharon lately. She is recouperating from her surgery and is in a major FM flare. She has been helping me get my meds from Canada and other sources. (over $900/month) She is an angel with wings, I do believe. I'll email her and tell her she is sorely missed. Probably she just can't sit at her 'puter very long. carolyn b In Fibromyalgia_Support_Group , " jobob2 " <Jobob2@c...> wrote: > Hey,has anyone heard from Sharon Thronberry lately? Iv'e tried to e-mail her privately to no avail. I knew she had kidney surgery and was'nt doing well. I'm worried about her. ANYONE please drop me an e-mail. > Thanks, Joan Bobbitt > Jobob2@c... > Re: Re: Helping > > > Dear , > > This phobia you describe sounds a lot like agrorophobia (? sp), which > is a fear of going out into any kind of situation where you will be in a > crowd of any kind. I suffer from several phobias myselff, the least > rational of which is a terrifying fear of IVs of any sort. However, I > was just in the hospital laast week for surgery for kidney cancer, and I > managed to overcome it for the two days I was in the hospital. Part of > the reason for overcoming this fear was the pain that I was in. My > dilaudid was being dellivered via IV pump, and it was bad enough even > with the IV pump.... I did not want to try it without it. I also suffer > from fear of crowds, especially in shopping malls. This fear does not > extend to stores like WalMart, which is why I say that if WalMart doesnt > have it, then I don;t need it. Heres hoping for some pain free daays > ahead. > > hugs and prayers, > > > Sharon - Memphis, TN > Phone > > " ..and with his stripes, we ARE healed! " Isaiah 53:5 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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