Liz

[Guest guest]

Hi Liz!

Your message to the lady (I just remember her name, but is very worried

about her fiance was absolutely wonderful -- right on the money!!

Maybe you should be our spokeswoman when a message like this comes in. I

just didn't have words to soothe her enough. I do hope she stays with the

group because it will make her life much, much easier -- and her fiance.

Hugs,

Biddy

Re: Hereditary????

> Hi,

>

> My name is Liz and my husband was diagnosed with PSC last year. Like you I

> was very depressed and at the time of his diagnosis, felt as though our

> entire future was shot down, along with all the plans we had envisioned.

> Now, I am learning to take things one day at a time. Although I don't

know

> what is ahead of us, I do know that right now all is well, and I don't

want

> to waste this precious time agonizing over what may be in the future.

None

> of us knows what our fate may be, but I choose to believe that, as one of

> our group members said so well, that my husband will die with PSC, but not

> from it. Sure I have my bad days, but being a part of this group has

helped

> tremendously, in terms of support and information, and in letting me see

how

> fortunate we are right now that he is doing so well. I hope you will find

> some comfort here, and please know that if you would like to e-mail me

> personally, I would be happy to talk to you.

>

> Liz

>

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