Re: Thanks for the insight

[Guest guest]

Hi Judy, I am so thankful you have a wonderfully supportive hubby and

family. That makes so much difference in how we are able to cope. Although

I lost my husband last year (to liver disease), I have two wonderful sisters

and brothers-in-law as well as a niece and 4 nephews who are so special and

help me out every day.

Like you I am in the early stages of cirrhosis. I am not taking the

lactulose yet, but feel it probably won't be very long before that must

begin. I have finally found a wonderful Hepatologist and that has made all

the difference for me. The doctor that we used with my husband has

relocated is practice to Ft. and I've had a hard time finding

another that could even remotely compare to him.

I think you have a good understandingn of what goes on with this disease and

have a good support system in place, as well as a doctor who is ready and

willing to help you. These are all great assets in dealing successfully

with this disease. I look forward to getting to know you better and our

mutual aid to each other.

Please know I am praying for you and your family.

Many hugs...................

Diane C from TN

http://auntdisexperimentallife.blogspot.com/

>

>

>

>

> Hi I am Judy, a 58 year old female from KY. I have only written once, I

> rea=

> d all the posts though and have gained a lot of ensight. In the last few

> postings, I was able to see what en=

> d stage liver disease does to a person. I didn't know that in some people

> i=

> t got that bad. I hope it is a long time off before I, or my family, has

> to=

> deal with this.I am now having trouble right now trying to think about wha=

> t I am trying to say and with the spelling of words. so excuse the

> mistakes=

> . The words don't come into my mind as easy as they used to. I have lost=

> some cognitive skills and I have brain fog. A lot of trouble remembering t=

> things. My hubby and I try to laugh sometimes about my memory..I get to

> watc=

> h movies over again and hardly remember what they were about. lol..

>

> My doctor says I have NASH,and the beginning of cirrhosis, It's confusing

> f=

> or me. I'm not sure exactly if I am there yet, but pretty close from what

> m=

> y hep doc says. And, when he writes things on the paper I take to the fro=

> nt desk or for tests he wants done, he writes cirrhosis on it. I have not =

> had a biopsy in 4 years when My gastro. doc. did it, who I went to first

> th=

> ought it was autoimmune hep. He said on a scale of 1-10 my liver was disea=

> sed to 7.

>

> Of course then I started seeing a Hepatitis specialist and from the biopsy

> =

> he said it was NASH. I have had an ultrasound and am having another one

> bef=

> ore I go back in the winter. My levels are nearly normal so that is good.

> H=

> e said that at this time he does not believe a biopsy would be necessary

> as=

> long as I have the ultrasounds

>

> I am taking Lactalose because of the confusion and mental fogginess. Speak=

> ing of the poop medicine, lol. I have had a couple incidences,once in

> publi=

> c, yuck, but I think my body is getting used to the dosages, how much to t=

> ake, when, etc. Can anyone give me some insight on this. I do think

> clearer=

> when I am taking it.

>

> I feel pretty good There are days of fatigue and depression, and the foggi=

> ness. It's hard to accept all this but my family is wonderfully

> understandi=

> ng.

>

> I would like support and hope I can help someone else if I can.

> I studied a lot about this disease when I first found out I had it and got

> =

> a very good book, but I can't concentrate now too much. My hubby is

> wonderf=

> ul about helping me remember and things that used to be easy for. He is a=

> blessing.

>

> I just went on and on,I have been wanting to write, but didn't think I

> coul=

> d get the words all together or spell them.. thank God for spell check.

> I hope I can get some insight into that big word encephalopathy, which Wil=

> lie, my husband just spelled for me.

>

> Thanks for listening.

>

> Judy

>

> .

>

>

>