Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 I agree, and I also got the feeling she felt I was insulting her intelligence. My position remains strong.....if I felt the kids's FP doc and CNP had more knowledge about TSC than me, I would be happy to let them do the research, but the longer I am in this TSC group...I see a common thread...a great deal of healthcare providers (Dr.s and nurses) have very little knowledge about TSC and seem completely disinterested in learning!!!! What happens to the patient/child with no advocate? Sometimes I just get fuming mad! I need to calm down before Mon. because if I make her (Marilyn, the CNP) mad again...I just know she won't order Macy's MRI! > So in other words she feels like you are better off not knowing If Macy has the same problem. Be sure it would be different story if it was her child. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2003 Report Share Posted March 6, 2003 It's amazing...What did people do before the internet?! I don't know what life would have been without it.. -- research I agree, and I also got the feeling she felt I was insulting her intelligence. My position remains strong.....if I felt the kids's FP doc and CNP had more knowledge about TSC than me, I would be happy to let them do the research, but the longer I am in this TSC group...I see a common thread...a great deal of healthcare providers (Dr.s and nurses) have very little knowledge about TSC and seem completely disinterested in learning!!!! What happens to the patient/child with no advocate? Sometimes I just get fuming mad! I need to calm down before Mon. because if I make her (Marilyn, the CNP) mad again...I just know she won't order Macy's MRI! > So in other words she feels like you are better off not knowing If Macy has the same problem. Be sure it would be different story if it was her child. > > Not Medical Advice. We Are Not Doctors. Need help with the list? Email kathy@...,michelle@tetheredcord com, rick@... Quote Link to comment Share on other sites More sharing options...
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