Re: Re: My new protocol is ready

[Guest guest]

Personally, I have tried pink noise. Granted it was downloaded from iTunes, it didn't help me at all. It was actually kind of annoying. I prefer white noise.

To: Soundsensitivity Sent: Tue, October 19, 2010 9:33:48 AMSubject: Re: My new protocol is ready

Dr. ,I worked with Dr. Margaret Jastreboff about 2 1/2 yrs ago for about 3 months. She determined that I was NOT a candidate for the white noise ear training, which costs $2000, but I have all the classic symptoms of 4S. I was quite disappointment in her lack of follow-up. She ultimately said it was psychological and that I should learn to live with it. So although she and her and her husband are the trailblazers in the tinnitus and hyperacusis arena, they seem to know little about the condition you so accurately have called "Selective Sound Sensitivity Syndrome." I would not reccommend their solutions.Would Pink Sound therapy be pitch based, as opposed to volume based? Because, pitch is the key to my soft sound sensitivity. If so, I'd be interested in trying it. I read somewhere that listening to Mozart for 3 hours a day helps. Spencer>> I have gone ahead with the plan to provide an online protocol for hyperacusis and for tinnitus. > > I have called it The Pink Sound Protocol.> > If you have an interest in this, please feel free to visit my new website at www.pinksound.info> > This is based on 3 years of experimentation with using an personal listener and Pink Sound to help improve tolerance and to help habituate tinnitus.> > This has not been used with 4S patients, however, it might prove helpful, I have not explored much there, as I believe the white noise generators are the best option, however they are quite pricey and it will be interesting to see if this option at less than $200, works in some fashion for this

group. > > That will be the next project, to compile a packet on 4S, its affiliates and sub sets and expand into what has been tried and what seems to be most effective from a multi sensory basis.> > Dr. Marsha , Audiologist>

[Guest guest]

Pink noise was tough for me as well.  I prefer brown noise oddly...

 

Personally, I have tried pink noise. Granted it was downloaded from iTunes, it didn't help me at all. It was actually kind of annoying. I prefer white noise.

To: Soundsensitivity

Sent: Tue, October 19, 2010 9:33:48 AMSubject: Re: My new protocol is ready 

Dr. ,I worked with Dr. Margaret Jastreboff about 2 1/2 yrs ago for about 3 months. She determined that I was NOT a candidate for the white noise ear training, which costs $2000, but I have all the classic symptoms of 4S. I was quite disappointment in her lack of follow-up. She ultimately said it was psychological and that I should learn to live with it. So although she and her and her husband are the trailblazers in the tinnitus and hyperacusis arena, they seem to know little about the condition you so accurately have called " Selective Sound Sensitivity Syndrome. " I would not reccommend their solutions.

Would Pink Sound therapy be pitch based, as opposed to volume based? Because, pitch is the key to my soft sound sensitivity. If so, I'd be interested in trying it. I read somewhere that listening to Mozart for 3 hours a day helps.

Spencer>> I have gone ahead with the plan to provide an online protocol for hyperacusis and for tinnitus.

> > I have called it The Pink Sound Protocol.> > If you have an interest in this, please feel free to visit my new website at www.pinksound.info

> > This is based on 3 years of experimentation with using an personal listener and Pink Sound to help improve tolerance and to help habituate tinnitus.> > This has not been used with 4S patients, however, it might prove helpful, I have not explored much there, as I believe the white noise generators are the best option, however they are quite pricey and it will be interesting to see if this option at less than $200, works in some fashion for this

group. > > That will be the next project, to compile a packet on 4S, its affiliates and sub sets and expand into what has been tried and what seems to be most effective from a multi sensory basis.>

> Dr. Marsha , Audiologist>

[Guest guest]

Hi ,I was just curious about what listening to Mozart for 3 hours a day would do? I like Mozart but that's A LOT of Mozart. Also, I never cared for the violin concertos, might this be an issue of pitch or frequency? Just curious...Also, have you checked out the hyperacusis.net, they are very well informed about the Jastreboffs over there and really enjoy stimulating debates about psychological solutions. Just be sure to read the ground rules first, especially the one about treating others with respect. I found out the hard way, I was banned for insulting Rob, who is apparently a VIP. But Rob getting on my nerves is a personality flaw on my part, something to work on, everyone else greatly appreciates his desire to help. But since my hard drive seems to be on it's way out

anyhow, my time on the internet is soon to be very curtailed, and I can't afford to buy a new one right now, so I will just have to let it go.To: Soundsensitivity Sent: Tue, October 19, 2010 9:33:48 AMSubject: Re: My new protocol is ready

Dr. ,

I worked with Dr. Margaret Jastreboff about 2 1/2 yrs ago for about 3 months. She determined that I was NOT a candidate for the white noise ear training, which costs $2000, but I have all the classic symptoms of 4S. I was quite disappointment in her lack of follow-up. She ultimately said it was psychological and that I should learn to live with it. So although she and her and her husband are the trailblazers in the tinnitus and hyperacusis arena, they seem to know little about the condition you so accurately have called "Selective Sound Sensitivity Syndrome." I would not reccommend their solutions.

Would Pink Sound therapy be pitch based, as opposed to volume based? Because, pitch is the key to my soft sound sensitivity. If so, I'd be interested in trying it. I read somewhere that listening to Mozart for 3 hours a day helps.

Spencer

>

> I have gone ahead with the plan to provide an online protocol for hyperacusis and for tinnitus.

>

> I have called it The Pink Sound Protocol.

>

> If you have an interest in this, please feel free to visit my new website at www.pinksound.info

>

> This is based on 3 years of experimentation with using an personal listener and Pink Sound to help improve tolerance and to help habituate tinnitus.

>

> This has not been used with 4S patients, however, it might prove helpful, I have not explored much there, as I believe the white noise generators are the best option, however they are quite pricey and it will be interesting to see if this option at less than $200, works in some fashion for this group.

>

> That will be the next project, to compile a packet on 4S, its affiliates and sub sets and expand into what has been tried and what seems to be most effective from a multi sensory basis.

>

> Dr. Marsha , Audiologist

>