Re: Re: Surgery????

[Guest guest]

I have that too but rather enjoy it, I change the volume the songs words etc and often at these times I think in different voices from my own. Interesting stuff Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Thu, 05 Aug 2010 05:12:36 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Surgery???? so, probably not even worth a trip to the otologist? i also have hyperacusis and tinnitus but that is NOTHING compared to the sound sensitivity. i also hear music at night sometimes (in my head) like roaring 20's music and other times i hear what sounds like muffled news on t.v. somewhere far away. i remember having 'that' when i was a kid too and calling for my folks to ask 'who has the radio on'....they would assure me, no one did. i still heard it. >> Randall, hello!> > Superior Canal Dehiscence is a rare condition wherein the thin layer of bone between the vestibular canal and the brain erodes and leaves an opening there that can end up allowing interaction, mostly compressing the vestibular canal and stopping the flow of fluid in that thin tube. The vestibular organ tells us which way our head is located in space, sideways, straight up, etc., we use gravity seeking jelly-masses topped with crystals resting on sensory cells! > > Yup we have crystals, otoliths, in our inner ear, but not in the hearing part, just the balance part.> > Special tests locate these rare cases and then a surgery is done often to lay in some new bone there and cover up the vestibular canal. > > I have not seen one of these that I know of in 13 years. : )> > Very rare. And often one of the big symptoms is dizziness and vertigo, imbalance, eye movements, rather than hearing loss, tinnitus or hyperacusis...> > So the idea of having one is quite low, really, and would probably present in a very particular and compelling way.> > As to the tubes in the ears because of fluctuating amounts of fluid collecting in that air-filled middle ear space...well that is one major cause OF hyperacusis itself! When the fluid fills the ear, it acts like a perfect earplug and the brain says, hey turn up the sound! and then the fluid clears and the brain says, hey TOO LOUD!> > Having tubes inserted into the ear drum is a simple office procedure for adults (I have had 3 sets myself so I know) and can often eliminate that nasty fluid issue and then we have air moving in there and the eardrum is in its normal position and over time, the hyperacusis can improve,> > I hope this is clear.> > BTW, this has nothing to do with 4S in my opinion. SCD and middle ear fluid do not seem to play a role in 4S.> > Dr. >

[Guest guest]

Dr. J, thanks for the response. I'm constantly having to hold my nose

and unplug my ears. And the fluid in each ear doesn't always feel

balanced and that can be disorienting. I wonder if the tubes would be

helpful? I'm very wary of doing that. The only thing I find that helps

with the high pitched tinnitus I hear all the time is brown noise sound

generators. -Randall