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Pam, I know that my nsg who did my last surgery (in albuquerque, nm) now is

in Cleveland (I'm not sure where). His name is Dr. Benzel & for

whatever it is worth, I recommend him. Sorry this post is so late. Been

sick & have now gotten around to reading the stuff.

Jen

>

>

>

>for those who have gone to the Cleveland clinic what Dr's are there and how

>was your treatment, the reason I am asking is my sister has an appt there

>in early aug,

>thanks

>pamH

>

>

>------------------------------------------------------------------------

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Guest guest

Pam, I know that my nsg who did my last surgery (in albuquerque, nm) now is

in Cleveland (I'm not sure where). His name is Dr. Benzel & for

whatever it is worth, I recommend him. Sorry this post is so late. Been

sick & have now gotten around to reading the stuff.

Jen

>

>

>

>for those who have gone to the Cleveland clinic what Dr's are there and how

>was your treatment, the reason I am asking is my sister has an appt there

>in early aug,

>thanks

>pamH

>

>

>------------------------------------------------------------------------

>WACMA Site: http://www.pressenter.com/~wacma

>Your Personal support group member page:

>http://www.eGroups.com/group/chiari/

>**Avoid List Congestion:

>Unsubscribe from this list: mailto:chiari-unsubscribeegroups

>Contact list mgmt: mailto:chiari-owneregroups

>

_______________________________________________________________

Get Free Email and Do More On The Web. Visit http://www.msn.com

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  • 3 weeks later...

Hi Dee! Must tell you I HAVE to sleep on at least TWO big pillows or I am

awakened with a pounding headache. Also, I am having lots of trouble with

my hip and when I get up whichever side I have been sleeping on is numb.

Another problem is if my leg is in the " wrong position " I am awakened with

the most horrible pain in my hip -- sometimes I am frozen in one spot trying

just to get rolled over.

Not sure if this helps but I can certainly appreciate what Tabitha is going

through!

Phoenix, AZ

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Hi Dee! Must tell you I HAVE to sleep on at least TWO big pillows or I am

awakened with a pounding headache. Also, I am having lots of trouble with

my hip and when I get up whichever side I have been sleeping on is numb.

Another problem is if my leg is in the " wrong position " I am awakened with

the most horrible pain in my hip -- sometimes I am frozen in one spot trying

just to get rolled over.

Not sure if this helps but I can certainly appreciate what Tabitha is going

through!

Phoenix, AZ

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Hi Dee,

I sleep on 2 or 3 pillows- if I fall off I get a headache, too. It IS related. The csf pools in the brain if I'm flat and increases the pressure. You may want to try raising the head of her bed a little. I tried, but didn't work too well with a water bed! LOL

Blessings,

in VA

question

Hi all, Dee here (Tabitha's mom), i have another question. smile. do you sleep flat or on pillows? Tabitha sleeps on several pillows, if she slides off the pillows, she is up crying with a headache. the ngs said this is not a chiari headache. i was wondering about the rest of you. also, she has been complaining of her hip or where her leg hooks on has been hurting. and her leg has been going numb, she wants me to carry her all the time now . he said this is not from the chiari either and then he said he would see her in a year to redo the mri.... they are so wonderful!!!!!

love to all,

love dee and tabitha

WACMA Site: http://www.pressenter.com/~wacma Your Personal support group member page: http://www.eGroups.com/group/chiari/ **Avoid List Congestion: Unsubscribe from this list: mailto:chiari-unsubscribeegroups Contact list mgmt: mailto:chiari-owneregroups

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  • 3 weeks later...

Hi guys.... Pardon my ignorance, but I am stumped on this terminology.

A woman that I have been writing to asked about a :

fenestration of the 4th ventricle

I don't have a clue. Anyone?????

Thanks Sally

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  • 1 year later...
Guest guest

Hi Jan,

I test 2 hours after I eat. You are going to spike, but what you want to

know is if it is going down after the spike. Some people check more often,

before they eat, an hour after they eat and 2 hours after they eat. That

way they know exactly what the food has done to their bg. It is entirely up

to the individual and how comfortable they are testing.

There is no right or wrong way of doing it. If you are happy with the times

you check, then that is right for you.

Friends,

Co-Moderator

Type 2

Question

> Hi everyone, I see that most of you know what foods do what to your blood

> levels. How do you go about testing to see? I test before every meal and

at

> bed time. Should I be testing 2 hours after a meal to see what happened? I

am

> very confused about this. Could someone please give me some advice. I

really

> want to learn what various foods do to my bag's. Thanks, Jan

>

> To leave this list please go to diabetes-unsubscribe

> Hope you come back soon!

>

>

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  • 2 months later...
Guest guest

No I haven't checked my bg yet. I don't have a monitor at home.

Money is tight and insurance won't cover it. Dh gets paid Friday, so

hopefully we can get one then. The few times I checked it, I

borrowed my neighbor's as she is diabetic also. I just don't want to

bother her all the time to borrow her monitor. Besides, we've

already priced them and the strips alone are very expensive so I

don't want to use hers unless it's an emergency.

Beth

> > I have a question that you all may or may not be able to answer.

> When you all were first diagnosed, did you have more bad days than

> good? I'm sure it's different for each person. I went from

feeling

> bad yesterday to being very sick and in the hospital last night.

> Today I felt better but now I'm feeling bad again (not as bad as

last

> night). I didn't think I should feel bad that often. I am going

to

> look for a new Dr tomorrow as my PCP won't treat my diabetes. He

led

> me to believe it was no big deal. I hope a new Dr will be able to

> help me with this. I hate feeling so out of control.

> >

> > Beth

> >

> >

> >

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Guest guest

Hi Beth,

My husband paid $69.95 for his monitor (TheraSense FreeStyle) and he did

receive a $40 rebate.

" Competition for scarce human energy is the cause of all conflict between

people " - Redfield

Re: Question

>

> > As far as monitors go, I was told that it's a matter of

> preference.

>

>

> Hi Beth,

>

> It is a matter of preference. My doctor recommended the One Touch

> Sure Step by Lifescan. I'm happy with it.

>

> Lots of times, there will be a rebate when buying the monitor. In

> fact, the monitor will be free with the purchase of strips.

>

> Eunice

>

>

> To leave this list please go to diabetes-unsubscribe

> Hope you come back soon!

>

>

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Guest guest

Hi Beth,

My husband paid $69.95 for his monitor (TheraSense FreeStyle) and he did

receive a $40 rebate.

" Competition for scarce human energy is the cause of all conflict between

people " - Redfield

Re: Question

>

> > As far as monitors go, I was told that it's a matter of

> preference.

>

>

> Hi Beth,

>

> It is a matter of preference. My doctor recommended the One Touch

> Sure Step by Lifescan. I'm happy with it.

>

> Lots of times, there will be a rebate when buying the monitor. In

> fact, the monitor will be free with the purchase of strips.

>

> Eunice

>

>

> To leave this list please go to diabetes-unsubscribe

> Hope you come back soon!

>

>

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Guest guest

Beth---

I have to pay for my own supplies so I looked for the cheapest strips. The

monitor is a one time purchase but the strips you must buy over and over, so

I figured my cheapest way to go was buying the monitor that used the

cheapest strips. I initially bought the AccuCheck and I liked it. Then

Walmarts started carrying ReliOn. The monitor was about $10 and the strips

are about $20 per 50. The biggest drawback is it doesn't keep record of

date, time and result.....but I can do that in a notebook.

Debbie

Re: Question

> No I haven't checked my bg yet. I don't have a monitor at home.

> Money is tight and insurance won't cover it. Dh gets paid Friday, so

> hopefully we can get one then. The few times I checked it, I

> borrowed my neighbor's as she is diabetic also. I just don't want to

> bother her all the time to borrow her monitor. Besides, we've

> already priced them and the strips alone are very expensive so I

> don't want to use hers unless it's an emergency.

>

> Beth

>

>

> > > I have a question that you all may or may not be able to answer.

> > When you all were first diagnosed, did you have more bad days than

> > good? I'm sure it's different for each person. I went from

> feeling

> > bad yesterday to being very sick and in the hospital last night.

> > Today I felt better but now I'm feeling bad again (not as bad as

> last

> > night). I didn't think I should feel bad that often. I am going

> to

> > look for a new Dr tomorrow as my PCP won't treat my diabetes. He

> led

> > me to believe it was no big deal. I hope a new Dr will be able to

> > help me with this. I hate feeling so out of control.

> > >

> > > Beth

> > >

> > >

> > >

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Guest guest

Beth---

I have to pay for my own supplies so I looked for the cheapest strips. The

monitor is a one time purchase but the strips you must buy over and over, so

I figured my cheapest way to go was buying the monitor that used the

cheapest strips. I initially bought the AccuCheck and I liked it. Then

Walmarts started carrying ReliOn. The monitor was about $10 and the strips

are about $20 per 50. The biggest drawback is it doesn't keep record of

date, time and result.....but I can do that in a notebook.

Debbie

Re: Question

> No I haven't checked my bg yet. I don't have a monitor at home.

> Money is tight and insurance won't cover it. Dh gets paid Friday, so

> hopefully we can get one then. The few times I checked it, I

> borrowed my neighbor's as she is diabetic also. I just don't want to

> bother her all the time to borrow her monitor. Besides, we've

> already priced them and the strips alone are very expensive so I

> don't want to use hers unless it's an emergency.

>

> Beth

>

>

> > > I have a question that you all may or may not be able to answer.

> > When you all were first diagnosed, did you have more bad days than

> > good? I'm sure it's different for each person. I went from

> feeling

> > bad yesterday to being very sick and in the hospital last night.

> > Today I felt better but now I'm feeling bad again (not as bad as

> last

> > night). I didn't think I should feel bad that often. I am going

> to

> > look for a new Dr tomorrow as my PCP won't treat my diabetes. He

> led

> > me to believe it was no big deal. I hope a new Dr will be able to

> > help me with this. I hate feeling so out of control.

> > >

> > > Beth

> > >

> > >

> > >

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  • 1 month later...

Madge:

My readings would be the same as yours if I drank OJ and ate a donut,

except probably further into outer space!

I don't have any answers but I do have several more questions! Is

your friend on any medication? If so, what meds is she taking? Also,

on what basis was her diagnosis made - fasting bg's, two hour glucose

tolerance test, a1c? I'm happy for her but at the same time I'm

thinking perhaps the diagnosis, given her responses to ingesting

high carbs, may be suspect.

Carol Warman

_____________________________________________________________

> As some of you know, I have a friend who was recently diagnosed.

> Well, sometimes I really get upset!!! because like today, she had

> orange juice and a donut at work this morning. Two hours later her

> bg was just 4 points higher than when she started. I forget the

> readings but they were in the normal range in the low 100's.

Perhaps

> I am a bit jealous?! Maybe so.

> Now my question is: Is only a four point rise normal? Is this

> really accurate? Orange juice will send me to the moon and the

donut

> along with it will fly me probably to Pluto and leave me there.

> Thanks for listening to me let off some steam!!! I am happy for

her

> if this stays normal but am not real happy for me :(

> Madge

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In a message dated 9/1/01 7:30:55 PM Eastern Daylight Time, Madge910@...

writes:

> I have read what Joslin was doing, however I thought the standard for

>

Hi Madge,

The information my doctor gave me was fasting to be between 80-120 and 2 hrs

after a meal to be less than 160. She wanted my HbA1c to be less than 7.

Very seldom do I have a fasting bg of 80 or above and not too often do I have

a reading 160 or more two hrs after eating, but there have been a couple of

times I've been as high as 238. One time I ate a slice of apple pie (Company

Christmas Dinner and the other when I ate sugar-free yogurt, large portion.)

Madge, you will get your numbers down to where you want them. In the

meantime, don't worry too much about them, because worrying will cause them

to be higher. When do you go for your next HbA1c test?

Eunice

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---I am thinking here. I think her two fastings for the dr. were just

above normal. However, when I had checked her sugar in between dr.

visits after breakfast was in the 200's. After her second fasting

test the doctor prescribed glucophage XL 500mg once a day in the

evening. Ever since her readings have all been normal range except

once it was in the 150's after lunch. One day I think it was also up

following the thicker crust slice of pizza. She even called the

monitor place to make sure it was working properly. Seems to be.

Mine seems to be 40 points higher than hers. They also told her

different fingers give different readings? This was after she told

them she dropped 20 points after taking reading a second time because

the first one seemed to high, I think it was in the 170's. I don't

understand all this. How can redoing it one after the other change

the reading 20 points? It that case I should keep doing mine til I

get a reading I like!!!! And isn't it all the same blood, no matter

which hand or finger? This is confusing!!!!

Today for dinner I tried the Romaine lettuce as " bread " and spread it

with tuna/mayo and folded it over to make a sandwich. Not bad!!!!

Romaine was never on my top ten list but I rather enjoyed it!!! I

can use egg salad, cream cheese or a salad mixture of cucumbers

sliced thin, iceburg lettuce and tomato, pepper strips as a filling

as well and of course turkey and cheese would be good also!!! The

possibilities are endless. Thanks to whoever it was for that

suggestion, I forget what list I read it on. I am about done with

bread except for french toast which I will have once in a great

while.

The soy milk I use is called WestSoy and has only 5 carbs in 8 oz.

I was surprised at the difference in brand names and the amount of

carbs each contained. There is quite a variance.

<adge

In diabetes@y..., " Carol Warman " <cswarman@l...> wrote:

> Madge:

>

> My readings would be the same as yours if I drank OJ and ate a

donut,

> except probably further into outer space!

>

> I don't have any answers but I do have several more questions! Is

> your friend on any medication? If so, what meds is she taking?

Also,

> on what basis was her diagnosis made - fasting bg's, two hour

glucose

> tolerance test, a1c? I'm happy for her but at the same time I'm

> thinking perhaps the diagnosis, given her responses to ingesting

> high carbs, may be suspect.

>

> Carol Warman

> _____________________________________________________________

> > As some of you know, I have a friend who was recently diagnosed.

> > Well, sometimes I really get upset!!! because like today, she had

> > orange juice and a donut at work this morning. Two hours later

her

> > bg was just 4 points higher than when she started. I forget the

> > readings but they were in the normal range in the low 100's.

> Perhaps

> > I am a bit jealous?! Maybe so.

> > Now my question is: Is only a four point rise normal? Is this

> > really accurate? Orange juice will send me to the moon and the

> donut

> > along with it will fly me probably to Pluto and leave me there.

> > Thanks for listening to me let off some steam!!! I am happy for

> her

> > if this stays normal but am not real happy for me :(

> > Madge

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---I am thinking here. I think her two fastings for the dr. were just

above normal. However, when I had checked her sugar in between dr.

visits after breakfast was in the 200's. After her second fasting

test the doctor prescribed glucophage XL 500mg once a day in the

evening. Ever since her readings have all been normal range except

once it was in the 150's after lunch. One day I think it was also up

following the thicker crust slice of pizza. She even called the

monitor place to make sure it was working properly. Seems to be.

Mine seems to be 40 points higher than hers. They also told her

different fingers give different readings? This was after she told

them she dropped 20 points after taking reading a second time because

the first one seemed to high, I think it was in the 170's. I don't

understand all this. How can redoing it one after the other change

the reading 20 points? It that case I should keep doing mine til I

get a reading I like!!!! And isn't it all the same blood, no matter

which hand or finger? This is confusing!!!!

Today for dinner I tried the Romaine lettuce as " bread " and spread it

with tuna/mayo and folded it over to make a sandwich. Not bad!!!!

Romaine was never on my top ten list but I rather enjoyed it!!! I

can use egg salad, cream cheese or a salad mixture of cucumbers

sliced thin, iceburg lettuce and tomato, pepper strips as a filling

as well and of course turkey and cheese would be good also!!! The

possibilities are endless. Thanks to whoever it was for that

suggestion, I forget what list I read it on. I am about done with

bread except for french toast which I will have once in a great

while.

The soy milk I use is called WestSoy and has only 5 carbs in 8 oz.

I was surprised at the difference in brand names and the amount of

carbs each contained. There is quite a variance.

<adge

In diabetes@y..., " Carol Warman " <cswarman@l...> wrote:

> Madge:

>

> My readings would be the same as yours if I drank OJ and ate a

donut,

> except probably further into outer space!

>

> I don't have any answers but I do have several more questions! Is

> your friend on any medication? If so, what meds is she taking?

Also,

> on what basis was her diagnosis made - fasting bg's, two hour

glucose

> tolerance test, a1c? I'm happy for her but at the same time I'm

> thinking perhaps the diagnosis, given her responses to ingesting

> high carbs, may be suspect.

>

> Carol Warman

> _____________________________________________________________

> > As some of you know, I have a friend who was recently diagnosed.

> > Well, sometimes I really get upset!!! because like today, she had

> > orange juice and a donut at work this morning. Two hours later

her

> > bg was just 4 points higher than when she started. I forget the

> > readings but they were in the normal range in the low 100's.

> Perhaps

> > I am a bit jealous?! Maybe so.

> > Now my question is: Is only a four point rise normal? Is this

> > really accurate? Orange juice will send me to the moon and the

> donut

> > along with it will fly me probably to Pluto and leave me there.

> > Thanks for listening to me let off some steam!!! I am happy for

> her

> > if this stays normal but am not real happy for me :(

> > Madge

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---Hi Carol,

I have read what Joslin was doing, however I thought the standard for

a 2 hr. diabetic reading was no higher than 140, a number that I

don't see!!!! I would have to eat almost zilch to get 140 ! Forget

where I read that, here maybe?

Actually on my friends goals list that the Dr. gave her, 140 was the

highest reading after meals to have.

However, since really watching the carbs I have found I am doing much

much better and in time may be able to get a really good reading

after meals.

My husband is calling our dr. to see if she will refer him or us to a

diabetic nutrionist. I feel he really needs it and I could benefit

as well. He has sodium, cholesterol, protein, potassium, blood

sugar to watch and it is about driving us nuts. His sugar is out of

control and the Endo. didn't call back yesterday which I thought she

should since he called her and asked to speak to her about the

insulin dosages and I had faxed all the numbers to her.

Enough of my rambling incoherrently here!

Madge

In diabetes@y..., " Carol Warman " <cswarman@l...> wrote:

> Madge:

>

> The Joslin Diabetes Center guidelines show that two hour post

> prandials < 180 are acceptable for diabetics. For non-diabetics,

> their two hour post prandial guidline is < 140. Please see the

> following URL:

>

> http://www.joslin.org/education/library/wbggoal.html

>

> These guidelines are constantly being reevaluated. Several months

> ago, their two hour post prandial guideline for diabetics was

> < 160 but they raised that to 180 recently.

>

> It sounds like your friend may be in the " pre diabetic " , or

impaired

> glucose tolerance, stage. It seems to me that her doctor is

treating

> her very conservatively. This is not necessarily a bad thing.

>

> Carol Warman

> ____________________________________________________________

> >After her second fasting

> > test the doctor prescribed glucophage XL 500mg once a day in the

> > evening. Ever since her readings have all been normal range

except

> > once it was in the 150's after lunch.

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Madge:

I hope that you are able to take a diabetic nutrition class and that

you find it to be as valuable as I did. Despite the fact that I

lowered the daily allowance they had suggested (they had not

accounted for my forced inactivity), the explanation of the effect of

carbohydrates on blood sugar really drove the point home, so to

speak.

Between the class and the food supplements I've been taking, my

numbers have really improved over the past six months. My fasting

reading this morning was 103. This is an all time low for me.

Carol

_______________________________________________________________

> My husband is calling our dr. to see if she will refer him or us to

a

> diabetic nutrionist.

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Something I don't understand. Why is a reading of 180 2 hours after a meal ok

for a diabetic and not a non diabetic. From what I understand any reading

above 140 is causing damage to our bodies. Do we as diabetics have to settle

for high readings?

Two hours after a meal your blood sugar should be back down to within normal

range, which is below 120. Why would I ever let a Doctor or anyone else tell

me a reading of 180 is ok when it's causing damage, isn't that something we

are fighting to avoid in the long run?

Just my point of view

Ali

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In a message dated 9/2/01 2:10:38 PM Eastern Daylight Time,

katiebearalicat2@... writes:

> Do we as diabetics have to settle

> for high readings?

>

Hi Ali,

I don't think any person with diabetes wants a high reading, but sometimes,

no matter what a person does, they still get high readings. After someone

has been diagnosed, it takes a while to get medicines adjusted, to learn what

they can and cannot eat, etc. Some people with diabetes can exercise more

than others. Also, there are people with diabetes that have other medical

problems and/or on other medications that prevent them from having a normal

reading.

It is also true that a non-diabetic can have a reading of over 200 for

several days. It happened to a friend of mine. She was in the hospital and

the doctor was going to start her on insulin when she came home. He decided

to do another test after a few days and her sugars were normal. My mom fell

last year and had a concussion. When we got her to the hospital, her BG was

43. She does not have diabetes.

We all try to control our BG's by doing the best that we can. For some

people it is easier than for others.

Eunice

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In a message dated 9/2/01 2:10:38 PM Eastern Daylight Time,

katiebearalicat2@... writes:

> Do we as diabetics have to settle

> for high readings?

>

Hi Ali,

I don't think any person with diabetes wants a high reading, but sometimes,

no matter what a person does, they still get high readings. After someone

has been diagnosed, it takes a while to get medicines adjusted, to learn what

they can and cannot eat, etc. Some people with diabetes can exercise more

than others. Also, there are people with diabetes that have other medical

problems and/or on other medications that prevent them from having a normal

reading.

It is also true that a non-diabetic can have a reading of over 200 for

several days. It happened to a friend of mine. She was in the hospital and

the doctor was going to start her on insulin when she came home. He decided

to do another test after a few days and her sugars were normal. My mom fell

last year and had a concussion. When we got her to the hospital, her BG was

43. She does not have diabetes.

We all try to control our BG's by doing the best that we can. For some

people it is easier than for others.

Eunice

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I totally agree. Shoot for non diabetic numbers.

E

dx'd 2/16/01-T2

hbA1c 2/16/01= 11.7

hbA1c 4/20/01=6.7

hbA1c 6/26/01= 5.0

44 yrs old,diet & exercise

Something I don't understand. Why is a reading of 180 2 hours after a meal

ok

for a diabetic and not a non diabetic. From what I understand any reading

above 140 is causing damage to our bodies. Do we as diabetics have to

settle

for high readings?

Two hours after a meal your blood sugar should be back down to within normal

range, which is below 120. Why would I ever let a Doctor or anyone else

tell

me a reading of 180 is ok when it's causing damage, isn't that something we

are fighting to avoid in the long run?

Just my point of view

Ali

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I totally agree. Shoot for non diabetic numbers.

E

dx'd 2/16/01-T2

hbA1c 2/16/01= 11.7

hbA1c 4/20/01=6.7

hbA1c 6/26/01= 5.0

44 yrs old,diet & exercise

Something I don't understand. Why is a reading of 180 2 hours after a meal

ok

for a diabetic and not a non diabetic. From what I understand any reading

above 140 is causing damage to our bodies. Do we as diabetics have to

settle

for high readings?

Two hours after a meal your blood sugar should be back down to within normal

range, which is below 120. Why would I ever let a Doctor or anyone else

tell

me a reading of 180 is ok when it's causing damage, isn't that something we

are fighting to avoid in the long run?

Just my point of view

Ali

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In a message dated 09/02/2001 9:04:08 PM Central Daylight Time,

ERWachter@... writes:

<< I just lost a dear friend

to cancer this morning. >>

Sure sorry to hear this Eunice. My prayers are with you and your friends

family.

linda/kc

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