Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 Hi Bobby, We are seriously thinking about moving to the Fort area in about a year. I got back with my ex fiance and I must say we are doing wonderful! He really did stick by me when I first got sick and we had only been dating 4 months at that time! He was at the hospital every day all day. I'll send you another friend invite on facebook........my name is Rhonda. Look forward to hanging with you and Sharon in a year or so! Hehe. Much love, Roni > Hi, Roni. I do check face book every day or so. Are we hooked up on > there? If > not, send me a private email so I can find you. UCHSC is a pretty big > transplant center, one of the top rated ion the world. The wait time > is a lot > faster than bigger regions like west coast and east coast, but not > as fast as > say, Iowa or Nebraska. My PCP wanted me to get a transplant out in > Kansas, > because I would get one rather fast there, but we are never going to > move, or at > least thats how it feels. If you come out here, make sure you look > me up so we > can be friends. I'll take you to see Dr Burton, my hepatologist, he > is the > associate professor at Cu, and second in command in the transplant > program. He > is a really good guy. I have complained about him in the past, but > in reality, > you could do much much worse in a doctor. > > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, July 23, 2010 8:00:48 AM > Subject: Re: Worried about my mom > > Hi Bobbie, > > I feel pretty good most days.....just hate not having any energy alot > of the time. I'm so glad you have been a tad better! Just a tad > helps alot, huh? I'm seriously thinking of moving to Colorado in > about a year. You live in Denver area right? Are chances better in > getting a transplant in CO than in other states? I saw you on > Facebook.........don't know if you get on there alot. > > Much love, > Roni > > > > > Thank you Roni! How have you been feelin? I've been a tad better, > > but my spleen > > got bigger and this summer has been a challenge. Love, Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, July 21, 2010 6:02:03 PM > > Subject: Re: Worried about my mom > > > > Bobby, > > I just love your attitude and view of life! I hope you find the help > > and support you and your mother need Candace! It's out there for > > sure! A gastroenterologist also knows quite a bit about liver > disease > > and can help you. > > > > Much love, > > Roni > > > > > > > > > Dear Candace, my very best friend in the whole world was like your > > > mom is now. > > > She was being seen at Denver General,the teaching hospital here in > > > Denver, which > > > is the big " public " hospital. It is a really good trauma center, > and > > > of you have > > > a gunshot wound to the head or chest, your chances are greatly > > > improved if you > > > are taken there. But Ardis didnt have a gunshot wound at all, she > > > had end stage > > > liver disease like your mom. She needed a liver transplant and no > > > one told us. > > > No one ever told us at all. That hospital is not good for much > else > > > after all. > > > After her social security came in, I took her to a very very good > > > private > > > doctor. He told us that Ardis' only chance was across the > streeet at > > > the > > > University of Colorado Health sciences center. Since it is staffed > > > by the very > > > same people who work at the " public hospital " I was sceptical. > But I > > > took her > > > there and asked at first and then later demanded a liver > transplant > > > evaluation. > > > My friend Ardis Lorraine was given a chance for this special > > > appointment! Even > > > though she was an alcoholic in denial, and in the very last stages > > > of liver > > > disease, she saw the head professor of the largest and best liver > > > transplant > > > program in the rocky mountain region. The very first liver > > > transplant was done > > > right there at CU. > > > > > > The same doctor whom saw my friend is now in charge of my case. My > > > friend and > > > loved one was regarded as just as important as any other patient , > > > no matter how > > > affluent or poor. You mom has not seen the head transplant surgeon > > > at the > > > transplant center near you, but she should, and as soon as > possible. > > > > > > I firmly believe that Ardis was employed my God to show the way to > > > living a > > > longer life for those who have end stage liver disease. I am > > > lighting the road > > > for you today, and it is only because Ardis and I traveled this > same > > > road in the > > > pitch black darkness in the summer of 2006. She went home to be > with > > > Jesus on > > > August 3rd that summer, but there were many important lessons > > > learned. She did > > > not die in vain, nor do any of us. Please take your mother to the > > > very largest > > > regional medical center in your state, and when she is admitted, > ask > > > for a > > > social worker, and ask for a " LIVER TRANSPLANT EVALUATION " . Love, > > > Bobby and > > > good luck. > > > > > > ________________________________ > > > > > > To: livercirrhosissupport > > > Sent: Tue, July 20, 2010 12:18:41 PM > > > Subject: Re: Worried about my mom > > > > > > I live close to Knoxville and town bout an hour and a half > to > > > two hours > > > away. No she is not on a transplant list because no doctors told > her > > > she could > > > get on one. She didn;t know anything bout it til I told her. She > > > went to her > > > family dr yesterday and he's getting her blood results from > > > hospital. Shes > > > calling today to make appt with her gastronologist. All the dr > just > > > act like its > > > no big deal and its all in her head. Like she's making a bigger > deal > > > out of it > > > than it is. They don't want to listen to her. She just keeps > feeling > > > worse. She > > > is sick all the time and she keeps getting sharp pains in her side > > > kind of like > > > spasms. Now her teeth are hurting and I think one is infected. She > > > is so > > > emotional that you cant talk to her without her crying. Im doing > > > everything I > > > can but these dr are really upseting me. I don't like to be rude > and > > > usually > > > agree with what they say but this is my moms life and they arent > > > taking it > > > serious. I swear if something > > > happens and I find out they didnt do everything they could there > > > will be a big > > > scene made. I dont understand if they took an oath to help people > > > why are they > > > not helping her? She is so tired of being treated llike this that > > > she is about > > > ready to just give up and if you knew my mom you'd know she's a > > > fighter. All of > > > this angry towards drs and trying to find one to help is taking > > > precious time > > > away from us that we will never get back. Sorry to keep ranting on > > > Im just > > > upset. Hope all of you are well. My thoughts and prayers are with > > > you all. > > > > > > Candace > > > > > > > > > > > > > > > > > > > > > Yes she has insurance so I don't see what the big deal is to run > > > some tests > > > > and find out whats going on. Im not a very assertive person but > > > when it > > > > comes to my loved ones suffering you bet I can be. She still > > > hasn't heard > > > > anything about the blood work they did at er. This was on Fri. > > > Should we go > > > > up there in person to get answers. It feels to me that they > don't > > > even want > > > > to try to figure out whats going on or how to make it alittle > > > better for > > > > her. I live in east TN and we have a specialty hospital and > really > > > good drs. > > > > Now if I can get them to do something before its to hard on > her or > > > its too > > > > late. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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