Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Thank you for your post-I know that none of us can know what the future has to hold, but I think those of us with chronic illnesses, after years of uncertainty and hardship, always look for some kind of " guarantee " that we will not be alone when it gets to be more than we can bear by ourselves. I feel comforted by the fact that my boyfriend has been here for the worst of it so far, so maybe that should be all I need to know when I wonder if he will be here for the rest. After considering your question about whether I could be there if his health situation changed I realized that yes, I would. I guess most people, even those without the challenge of a chronic illness, want to believe that the person we choose to spend our lives with with act a certain way or do a certain thing in any given situation based on their love for us, but we all know that the " for better or worse, in sickness and in health " can be the hardest part of the marriage vows to fulfill. I do appreciate the opportunity to look at " both sides " , so to speak, and to remember that while I would want that type of loyalty from him, I should also be willing to be that loyal myself. Best wishes to you, and Happy New Year! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi Tuesday, You may like to look at http://www.drrind.com/scorecardmatrix/asp which may help you sort out what symptom is caused by what. Subject: Hi - Working out and getting the appropriate treatment i.e. treatment that would mimic the resulting remission of symptoms following the synacthen test is going to be the first challenge. Anyways - I didn't intend to write as much as this so won't witter on any more ... just really wanted to say Hi. Tuesday ************ Please sign this petition on the 10 Downing Street website http://petitions.pm.gov.uk/SS-SNRI-Anomaly/ Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Hi Tuesday, Cautious use of liquorice might get your aldosterone up again... use for one or two days then stop... and don't over-do it long term either.. best wishes Bob > > Hi Tuesday - and welcome to our Forum. I hope you get all the help and support you need here. > > What an interesting story, and I hope you find the reason why you suddenly felt so well after your short synacthen test. > > The synacthen test is to see if your adrenal glands are capable of producing enough cortisol. This test is to stimulate the adrenal glands. The stimulus for the test is a drug called Synacthen 250mcgs which is injected into a muscle in your leg or buttock after the first sample of blood has been taken and then more blood samples are taken to see the effect. Very occasionally people with allergies may feel faint. If you have diabetes, this test might cause a temporary rise in your blood glucose levels for a few days after the test. I wonder if it was the actual injection of Synacthen that was responsible for your good feeling. It might be something you could discuss with your doctor. > > Sheila > > > I'm a newbie to this forum .. but not to the internet and forums per > se .. I just wanted to introduce myself. I entered the self help > group scenario from a different direction to some or possibly most > people here - from the medication and prescription drug boards. > > I have had what I know is an endocrine disorder for most of my adult > life - maybe longer - but my current involvement on the internet came > about because I had an adverse drug reaction (ADR) to a prescription > medication 9 years ago and am still trying to regain my physical > health. > > Prior to the ADR I had managed the thyroid / adrenal problem with > diet, supplements and very occasional short term ( 2 months max) > courses of very low physiological doses of prednisolone twice > prescribed on the NHS when I got so low I developed bronchitis and > three times obtained through private clinics. > > During the 9 years I have seen 2 NHS Endo's and 1 private (chosen & > referred by GP - total waste) . although he did arrange a short > Synacthen test which was carried out on the NHS. The test showed > that my adrenals were working ---well obviously they were . I was > still breathing!!--- therefore in their opinion warranted no further > follow up. > > I have also seen two `endo sympathetic' Dr's ... but unfortunately > due to family commitments that have dominated my time and compromised > my physical and financial resources for the past 5 years ... I am > only now trying to restart addressing health issues - both original > and ADR residual - that I had been trying to tackle previously. > > Unfortunately the ADR has complicated things .. I still have the > original underlying endo symptoms .. but also have additional > residual ADR symptoms ... separating the two has proved difficult - > personally and especially with the medical profession ... endo > sympathetic and definitely within the realms of main stream medicine, > who are now even more wary of treating anything. > > The one thing that has kept me going through this was the resulting > very temporary and totally unexpected remission of 90% of all > symptoms --original and residual-- ADR that happened following the > Synacthen test; for two days I felt almost normal this reduced over > the following three days and then I slept for nearly a whole week. > > But this has never been explained ... and the possibility of this > positive side effect to the test indicating uptake, conversion, > pituitary or hypothalamus problems .. was outside the NHS endo's and > GP's rational !!! > > So where am I now .. I'm having new complete blood and saliva testing > done (first ones done in 2000) and from there I'm not sure . although > I know by addressing the original symptoms I will only have the > residual ADR symptoms to either try and resolve or live with. > > Working out and getting the appropriate treatment i.e. treatment that > would mimic the resulting remission of symptoms following the > synacthen test is going to be the first challenge. > > Anyways - I didn't intend to write as much as this so won't witter on > any more ... just really wanted to say Hi. > > Tuesday > > ************ > > Please sign this petition on the 10 Downing Street website > > http://petitions.pm.gov.uk/SS-SNRI-Anomaly/ > > > > > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.20.7/1285 - Release Date: 18/02/2008 05:50 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 I think one thing many of us tend to forget Tuesday is that if you are not secreting a particular hormone, for whatever reason, the only option is to replace that hormone and if your doctor isn't bothering to do that, you have to do it yourself. Some people are scared of taking hormones, especially when self medicating, but you are only replacing what is not there. Read up make sure you understand what you are doing and why you are doing it. Yes, you have options, but you are not going to get better by leaving those options in your head. Decide which of them you are going to try, and good luck. If you sent the Petition to me at info@... I will have a look at it and let you know if you can post it on the forum Tuesday. Luv - Sheila I'm not actually taking cortisol at the moment – I've been managing with diet, supplements and pacing myself - but it's difficult and the slightest bit of stress and I'm too wiped out and `fuggy' headed to function properly. I'm also undecided whether to try and get cortisol or prednisolone --I don't have a prescription and am wary of purchasing over the internet--or trying a less direct approach like DHEA, 7-Keto or pregnenalone to start with and see if it improves things. Hugs Tuesday Ps – Would you mind if I posted a letter about a petition on the board - I wrote it out for another thyroid group who have asked if they can include it in there news letter. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.8/1289 - Release Date: 20/02/2008 10:26 Quote Link to comment Share on other sites More sharing options...
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