Re: Update on Hubby... Diane

[Guest guest]

You are always welcome sweetie!

Love you!

On Thu, Feb 25, 2010 at 4:54 PM, Kerri wrote:

>

>

> Diane -

>

> I can't tell you what this email means to me. I am printing it out and

> carrying it with me! Thank you so much!

>

> Much love!!!

>

> Kerri

>

>

> >

> >

> >

> > >

> > >

> > > had a colonoscopy last week. Thankfully it was clear - no

> > > hemorrhoids.

> > >

> > > But...

> >

> > >

> > > We went in to the Liver Disease Center appt today. I don't even know

> > where

> > > to begin. I can't wrap my head around any of this at all... My thoughts

> > are

> > > all jumbled and I go back and forth between crying and just sitting

> > starign

> > > into space and not really comprehending what's going on around me...

> > > So forgive my lack or grammar or prooper paragraph/sentence

> structure...

> > I

> >

> > > will kind of beak it up so that it isn't one long run on paragraph so

> > that

> > > it's easier to read.

> > >

> > > Um.... Okay. So is getting worse - fast. His liver enzymes are

> way

> > > elevated and they keep rising. Both his AST and ALT " into the latter

> > 400s "

> > > (She didn't give me an exact numer). He has a new prescription that he

> > has

> >

> > > to take - can't recall the name of it (and the pharmacy was out so I

> have

> > to

> > > wait til tomorrow to pick it up), not that it matters! LOL - because he

> > has

> > > a blockage in his bile ducts and he has gallstones and this is suuposed

> > to

> > > help break all those down. He has to go in for an MRI on Friday to see

> > just

> > > how big the blockage is to see if they might need to increase that new

> > med.

> > >

> > > Then, asked her if it would be okay for us to go to Disneyland

> >

> > > (basically if it would be okay for him to ride the rides). She asked

> when

> > > were we thinking. told her that we didn't know for sure, but

> within

> > > the next few months, if we even go. (Since we really SHOULD be putting

> > the

> > > money towards bills! LOL) Then she said, " The one in Cali, right? " We

> > said

> > > " yes " . She said, " Before June? " We timidly said " yeah, we were thinking

> > > May. " She said, It was fine, but we really should go before June. We

> > looked

> > > at each other.... Huh? She said that things are progressing and after

> > June

> > > or July he might not feel up to it, but when we go, make sure he takes

> > > PLENTY of water and NO eating park food as there would be WAY too much

> > > sodium in it.

> > >

> > > She also confirmed that, seeing how young he is (he'll be 37 in June)

> and

> > > how bad this all is, he more than likely DID get the Hep C when he had

> > heart

> > > surgery when he as 4 and had a blood transfusion - as in '77 they

> didn't

> > > check for Hep C... Although, of course, they can never prove it.

> > >

> > > Then she dropped another bomb. Insurance was not yet approving for

> things

> > > to go forward for the transplant. Why? There is a $250,000 lifetime cap

> > on

> > > what his insurance will pay for any one individual. Well, he already

> has

> > > quite the rack up of medical bills, as I'm sure you all know. We don't

> > know

> > > what dollar amount he is at at the moment. The hospital is working on

> > > getting at least the preliminary approval to get him the testing to get

> > him

> > > on the list. That is the foremost thing. HOW IN THE FLIPPIN' HECK do

> you

> > pay

> > > for a transplant with how much it all costs???????? She said that they

> > have

> > > a specific department that handles JUST fund raisers to help families

> to

> > pay

> > > for the costs.... But in these economic times, how many people can you

> > > really get to donate? Also, he will never be able to get insurance

> again,

> > so

> > > how in the heck do we pay for the meds he's gonna need?

> > >

> > > Then asked her - said he just had to know - what he was looking

> at

> > > time frame-wise if he doesn't get a transplant... She grimly said,

> " Less

> > > than 3 years. "

> > >

> > > This is all just blowing my mind! WHY US?

> > >

> > > I'm putting the kids to bes early and I'm just going to bury my head

> and

> > > try to sleep and not have to think anymore!

> > >

> > > We, for sure now, are going to go on a famiy trip - whether to Disney

> or

> > > where. We seriously need to get a vacation, something fun, where we can

> > get

> > > our minds off of as much as we can and just enjoy each other as a

> family

> > and

> > > make some memories... In case. (I hate to think that way, but, well,

> I'm

> > jus

> > > tnot in a very positive mood right now.)

> > >

> > > I cna't think anymore. I just dont have any more words.................

> > >

> > >