Re: Update on Hubby... Barby

[Guest guest]

we appear to be twins toots,watch out gang i have been clonedddddddd hahahahaha

> > >

> > >

> > > Oh Kerri,Kerri. ..I am so sorry. Do you feel like you're sitting there in

the docs office and   suddenly realize. " oh my gosh..he's talking about

us " . It's like you are looking down on you and your hubby and can hear

everything the doc is saying,but you don't feel like you're in your body and

then it hits you that he''s really talking about your hubby's life

here.  I do think that's it' so important that you go to Disney and make

memories! Odds are he will get his transplant and be fine...But like you,I am

intent on making good memories...and we have not reached to part of the journey

you are on yet......but you never know..it could happen tomorrow.  You

know we are here for you...anytime you need to talk...we will listen.. I feel so

awful for you. I'm giving you a big hug!!

> > >

        ÂÂÂ\

 Ãƒâ€šÃ‚ Ã‚ Â Â Â Â Â Â ÂÂ\

 Ã‚ Â Â Â Â Â Â Â ÂÃ\

‚ Ã‚ Â Â Â Â Â Â Â Â\

 Â Â Â 

> > >

        ÂÂÂ\

 Ãƒâ€šÃ‚ Ã‚ Â Â Â Â Â Â ÂÂ\

 Ã‚ Â Â Â Â Â Â Â ÂÃ\

‚ Ã‚ Â Â Â Â Â Â Â 

Love,Jill

> > >  

> > > We don't remember days, we remember moments.

> > > Life is not measured by the breaths we take,but by the moments that take

our breath away.

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: Kerri <kerriazscraps@ ...>

> > > To: Liver C Support <livercirrhosissupp o rtyahoogroups (DOT) com>

> > > Sent: Wed, February 24, 2010 8:55:56 PM

> > > Subject: Update on Hubby... (Long, but gotta get

it all out...)

> > >

> > >  

> > > had a colonoscopy last week. Thankfully it was clear - no

hemorrhoids.

> > >  

> > > But...

> > >  

> > > We went in to the Liver Disease Center appt today. I don't even know where

to begin. I can't wrap my head around any of this at all... My thoughts are all

jumbled and I go back and forth between crying and just sitting starign into

space and not really comprehending what's going on around me...

So forgive my lack or grammar or prooper paragraph/sentence structure...

I will kind of beak it up so that it isn't one long run on paragraph so that

it's easier to read.

> > >  

> > > Um.... Okay. So  is getting worse - fast. His liver enzymes

are way elevated and they keep rising. Both his AST and

ALT  " into the latter 400s " (She didn't give me an exact

numer). He has a new prescription that he has to take - can't recall the

name of it (and the pharmacy was out so I have to wait til tomorrow to pick it

up), not that it matters! LOL - because he has a blockage in his bile ducts and

he has gallstones and this is suuposed to help break all those down. He has to

go in for an MRI on Friday to see just how big the blockage is to see if they

might need to increase that new med.

> > >  

> > > Then,  asked her if it would be okay for us to go to

Disneyland (basically if it would be okay for him to ride the rides). She asked

when were we thinking. told her that we didn't know for sure, but within

the next few months, if we even go. (Since we really SHOULD be putting the money

towards bills! LOL) Then she said, " The one in Cali, right? " We said " yes " . She

said, " Before June? " We timidly said " yeah, we were thinking May. " She said, It

was fine, but we really should go before June. We looked at each other.... Huh?

She said that things are progressing and after June or July he might not feel up

to it, but when we go, make sure he takes PLENTY of water and NO eating park

food as there would be WAY too much sodium in it.

> > >  

> > > She also confirmed that, seeing how young he is (he'll be 37 in June) and

how bad this all is, he more than likely DID get the Hep C when he had heart

surgery when he as 4 and had a blood transfusion - as in '77 they didn't check

for Hep C... Although, of course, they can never prove it.

> > >  

> > > Then she dropped another bomb. Insurance was not yet approving for things

to go forward for the transplant. Why? There is a $250,000 lifetime cap on what

his insurance will pay for any one individual. Well, he already has quite the

rack up of medical bills, as I'm sure you all know. We don't know what dollar

amount he is at at the moment. The hospital is working on getting at least the

preliminary approval to get him the testing to get him on the list. That is the

foremost thing. HOW IN THE FLIPPIN' HECK do you pay for a transplant with how

much it all costs??????? ? She said that they have a specific department that

handles JUST fund raisers to help families to pay for the costs.... But in these

economic times, how many people can you really get to donate? Also, he will

never be able to get insurance again, so how in the heck do we pay for the meds

he's gonna need?

> > >  

> > > Then asked her - said he just had to know - what he was looking at

time frame-wise if he doesn't get a transplant.. . She grimly said, " Less than 3

years. "  

> > >  

> > > This is all just blowing my mind! WHY US?

> > >  

> > > I'm putting the kids to bes early and I'm just going to bury my head and

try to sleep and not have to think anymore!

> > >  

> > > We, for sure now, are going to go on a famiy trip - whether to Disney or

where. We seriously need to get a vacation, something fun, where we can get our

minds off of as much as we can and just enjoy each other as a family and make

some memories... In case. (I hate to think that way, but, well, I'm jus tnot in

a very positive mood right now.)

> > >  

> > > I cna't think anymore. I just dont have any more words....... ......... .

> > >

> > >

[Guest guest]

Well...Barbydoll is crazy...but we love her!!...No seriously...she 's really not

crazy. She is so loving and downright bubbly and funny,you can't help but love

her! We're awfully glad to have yu here on the forum too!

 

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

________________________________

To: livercirrhosissupport

Sent: Thu, February 25, 2010 2:02:43 PM

Subject: Re: Update on Hubby... Barby

 

Barby -

 

Girl! You are just what I need! I need some frickin' humor right now!! LOL It is

all so overwhwleming as a " big picture " ! I am trying to break it down and not

worry about it all. God knows what he's doing and somehow, we'll be okay. I just

have to be " less human " and try not to worry and try my best to hand it all over

to Him! (Yeah! SO much easier said than done, right??) Thanks for the love! I

said it and I'll sayit again, I'm SO glad to have you guys!!!

 

Much love to you!

 

Kerri

From: barby <pinkmeetsblue@ yahoo.com>

Subject: Re: Update on Hubby... (Long, but gotta get

it all out...)

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Thursday, February 25, 2010, 6:29 AM

 

hi kerri,its barby honey..i am so sorry i see how distraught you are. and i do

know that feeling of what the hell!!!!! that everyone needs to shut up feeling

because my brain is on overload. it would sound stupid coming from me of all

people to tell you to try and settle your mind sweety,since i cant do that my

own self lately,well ever lol. i know how the ins. game does us too, bobby

glenns comp. is switching from anthem because of their rate hike, as i was

filing out the group quotes for the new companies, i busted out crying, called

the office saying tashia, whats gonna happen these new people arent gonna insure

my husband!!1 i had to answer yes to every question but is he pregnant, now if i

could get him knocked up we wouldnt need ins. cus we'd be rich then!!! so we sit

and wait for GOD to intervene like he always does. i guess thats all we can do

babe, make our memories, life our lives to the fullest and let God get the big

stuff. wow that rolls off

my tongue so easily,and even though i know it to be true, that he always takes

care of us, its still hard not to be human and worry. ok now i am rambling ,a

bad habit of mine. kerri love hug and laugh. let god get the big stuff. know i

love you and i am right here if ya need to vent.i am a really good listener if i

can get some duck tape over my mouth before we start teeheehee. if nothing else

i will try to humor you. hang on girl just hang on.much love barby

>

>

> Oh Kerri,Kerri. ..I am so sorry. Do you feel like you're sitting there in the

docs office and   suddenly realize. " oh my gosh..he's talking about us " . It's

like you are looking down on you and your hubby and can hear everything the doc

is saying,but you don't feel like you're in your body and then it hits you that

he''s really talking about your hubby's life here.  I do think that's it' so

important that you go to Disney and make memories! Odds are he will get his

transplant and be fine...But like you,I am intent on making good memories...and

we have not reached to part of the journey you are on yet......but you never

know..it could happen tomorrow.  You know we are here for you...anytime you

need to talk...we will listen.. I feel so awful for you. I'm giving you a big

hug!!

>

                    \

                   

>

                    \

                Love,Jill

>  

> We don't remember days, we remember moments.

> Life is not measured by the breaths we take,but by the moments that take our

breath away.

>

>

>

>

> ____________ _________ _________ __

> From: Kerri <kerriazscraps@ ...>

> To: Liver C Support <livercirrhosissupp o rtyahoogroups (DOT) com>

> Sent: Wed, February 24, 2010 8:55:56 PM

> Subject: Update on Hubby... (Long, but gotta get it

all out...)

>

>  

> had a colonoscopy last week. Thankfully it was clear - no hemorrhoids.

>  

> But...

>  

> We went in to the Liver Disease Center appt today. I don't even know where to

begin. I can't wrap my head around any of this at all... My thoughts are all

jumbled and I go back and forth between crying and just sitting starign into

space and not really comprehending what's going on around me... So forgive my

lack or grammar or prooper paragraph/sentence structure... I will kind of beak

it up so that it isn't one long run on paragraph so that it's easier to read.

>  

> Um.... Okay. So  is getting worse - fast. His liver enzymes are way

elevated and they keep rising. Both his AST and ALT  " into the latter 400s "

(She didn't give me an exact numer). He has a new prescription that he has to

take - can't recall the name of it (and the pharmacy was out so I have to wait

til tomorrow to pick it up), not that it matters! LOL - because he has a

blockage in his bile ducts and he has gallstones and this is suuposed to help

break all those down. He has to go in for an MRI on Friday to see just how big

the blockage is to see if they might need to increase that new med.

>  

> Then,  asked her if it would be okay for us to go to Disneyland

(basically if it would be okay for him to ride the rides). She asked when were

we thinking. told her that we didn't know for sure, but within the next

few months, if we even go. (Since we really SHOULD be putting the money towards

bills! LOL) Then she said, " The one in Cali, right? " We said " yes " . She said,

" Before June? " We timidly said " yeah, we were thinking May. " She said, It was

fine, but we really should go before June. We looked at each other.... Huh? She

said that things are progressing and after June or July he might not feel up to

it, but when we go, make sure he takes PLENTY of water and NO eating park food

as there would be WAY too much sodium in it.

>  

> She also confirmed that, seeing how young he is (he'll be 37 in June) and how

bad this all is, he more than likely DID get the Hep C when he had heart surgery

when he as 4 and had a blood transfusion - as in '77 they didn't check for Hep

C... Although, of course, they can never prove it.

>  

> Then she dropped another bomb. Insurance was not yet approving for things to

go forward for the transplant. Why? There is a $250,000 lifetime cap on what his

insurance will pay for any one individual. Well, he already has quite the rack

up of medical bills, as I'm sure you all know. We don't know what dollar amount

he is at at the moment. The hospital is working on getting at least the

preliminary approval to get him the testing to get him on the list. That is the

foremost thing. HOW IN THE FLIPPIN' HECK do you pay for a transplant with how

much it all costs??????? ? She said that they have a specific department that

handles JUST fund raisers to help families to pay for the costs.... But in these

economic times, how many people can you really get to donate? Also, he will

never be able to get insurance again, so how in the heck do we pay for the meds

he's gonna need?

>  

> Then asked her - said he just had to know - what he was looking at time

frame-wise if he doesn't get a transplant.. . She grimly said, " Less than 3

years. "  

>  

> This is all just blowing my mind! WHY US?

>  

> I'm putting the kids to bes early and I'm just going to bury my head and try

to sleep and not have to think anymore!

>  

> We, for sure now, are going to go on a famiy trip - whether to Disney or

where. We seriously need to get a vacation, something fun, where we can get our

minds off of as much as we can and just enjoy each other as a family and make

some memories... In case. (I hate to think that way, but, well, I'm jus tnot in

a very positive mood right now.)

>  

> I cna't think anymore. I just dont have any more words....... ......... .

>

>

[Guest guest]

LMAOFOTF i think thats how you say it hahahaha oh jill you are so right my love

teeheehee, craziness is the game barby is my name, i figured years ago being

serious wasnt working for me so i went to the dark side ahahhahaa,i so love you

my friend you always make me smile...and feel important. ya know sometimes

feeling important is enough to keep ya getting outta bed. a big old hug for ya

toots!!!!!!

> >

> >

> > Oh Kerri,Kerri. ..I am so sorry. Do you feel like you're sitting there in

the docs office and   suddenly realize. " oh my gosh..he's talking about us " .

It's like you are looking down on you and your hubby and can hear everything the

doc is saying,but you don't feel like you're in your body and then it hits you

that he''s really talking about your hubby's life here.  I do think that's

it' so important that you go to Disney and make memories! Odds are he will get

his transplant and be fine...But like you,I am intent on making good

memories...and we have not reached to part of the journey you are on

yet......but you never know..it could happen tomorrow.  You know we are here

for you...anytime you need to talk...we will listen.. I feel so awful for you.

I'm giving you a big hug!!

> >

                    \

                   

> >

                    \

                Love,Jill

> >  

> > We don't remember days, we remember moments.

> > Life is not measured by the breaths we take,but by the moments that take our

breath away.

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Kerri <kerriazscraps@ ...>

> > To: Liver C Support <livercirrhosissupp o rtyahoogroups (DOT) com>

> > Sent: Wed, February 24, 2010 8:55:56 PM

> > Subject: Update on Hubby... (Long, but gotta get

it all out...)

> >

> >  

> > had a colonoscopy last week. Thankfully it was clear - no hemorrhoids.

> >  

> > But...

> >  

> > We went in to the Liver Disease Center appt today. I don't even know where

to begin. I can't wrap my head around any of this at all... My thoughts are all

jumbled and I go back and forth between crying and just sitting starign into

space and not really comprehending what's going on around me... So forgive my

lack or grammar or prooper paragraph/sentence structure... I will kind of beak

it up so that it isn't one long run on paragraph so that it's easier to read.

> >  

> > Um.... Okay. So  is getting worse - fast. His liver enzymes are way

elevated and they keep rising. Both his AST and ALT  " into the latter 400s "

(She didn't give me an exact numer). He has a new prescription that he has to

take - can't recall the name of it (and the pharmacy was out so I have to wait

til tomorrow to pick it up), not that it matters! LOL - because he has a

blockage in his bile ducts and he has gallstones and this is suuposed to help

break all those down. He has to go in for an MRI on Friday to see just how big

the blockage is to see if they might need to increase that new med.

> >  

> > Then,  asked her if it would be okay for us to go to Disneyland

(basically if it would be okay for him to ride the rides). She asked when were

we thinking. told her that we didn't know for sure, but within the next

few months, if we even go. (Since we really SHOULD be putting the money towards

bills! LOL) Then she said, " The one in Cali, right? " We said " yes " . She said,

" Before June? " We timidly said " yeah, we were thinking May. " She said, It was

fine, but we really should go before June. We looked at each other.... Huh? She

said that things are progressing and after June or July he might not feel up to

it, but when we go, make sure he takes PLENTY of water and NO eating park food

as there would be WAY too much sodium in it.

> >  

> > She also confirmed that, seeing how young he is (he'll be 37 in June) and

how bad this all is, he more than likely DID get the Hep C when he had heart

surgery when he as 4 and had a blood transfusion - as in '77 they didn't check

for Hep C... Although, of course, they can never prove it.

> >  

> > Then she dropped another bomb. Insurance was not yet approving for things to

go forward for the transplant. Why? There is a $250,000 lifetime cap on what his

insurance will pay for any one individual. Well, he already has quite the rack

up of medical bills, as I'm sure you all know. We don't know what dollar amount

he is at at the moment. The hospital is working on getting at least the

preliminary approval to get him the testing to get him on the list. That is the

foremost thing. HOW IN THE FLIPPIN' HECK do you pay for a transplant with how

much it all costs??????? ? She said that they have a specific department that

handles JUST fund raisers to help families to pay for the costs.... But in these

economic times, how many people can you really get to donate? Also, he will

never be able to get insurance again, so how in the heck do we pay for the meds

he's gonna need?

> >  

> > Then asked her - said he just had to know - what he was looking at

time frame-wise if he doesn't get a transplant.. . She grimly said, " Less than 3

years. "  

> >  

> > This is all just blowing my mind! WHY US?

> >  

> > I'm putting the kids to bes early and I'm just going to bury my head and try

to sleep and not have to think anymore!

> >  

> > We, for sure now, are going to go on a famiy trip - whether to Disney or

where. We seriously need to get a vacation, something fun, where we can get our

minds off of as much as we can and just enjoy each other as a family and make

some memories... In case. (I hate to think that way, but, well, I'm jus tnot in

a very positive mood right now.)

> >  

> > I cna't think anymore. I just dont have any more words....... ......... .

> >

> >