NIH Research Idea---was gum cracking MIL

[Guest guest]

Kathy as you will recall we were making good headway there until that project

was literally derailed by some negative input from unknown parties.....we should

try again.

Dr J

>

> We wrote to the NIH and they said they were interested in a study. Being

> that they are funded by the government and they do research on undiagnosed

> conditions, I thought they were a good place to start.

>

>

>

> It would be interesting if we all wrote our Representatives. However, that

> would consist of letters going to many different Congressmen who would

> probably brush us off as " crazies. " We would need to focus a letter writing

> campaign towards one entity, so it wouldn't be so diluted across all 50

> states. Believe me, I've thought of this. I've also thought of sitting

> outside of the Capitol (I live in Washington DC) and possibly marching with

> signs, or even doing a hunger strike to get publicity for this condition.

>

>

>

> I agree that since we pay taxes (many taxes), we deserve research for this

> condition that affects so many people.

>

>

>

> We bombarded the NIH back in 2008 and they seemed to be interested and said

> they needed time to put a study together. I need to email them and ask how

> it is going.

>

>

>

> As far as shouting " WE NEED RESEARCH " that is pretty much my mantra and

> shows how frustrated I am with this condition. I didn't mean it rudely.

>

>

>

> Thanks for your input.

>

>

>

> From: Soundsensitivity

> [mailto:Soundsensitivity ] On Behalf Of

> SeriouslyConsiderTheCat

> Sent: Tuesday, February 08, 2011 10:39 PM

> To: Soundsensitivity

> Subject: Re: My Gum Cracking Mother in Law: She's STILL

> AT IT! UGH!

>

>

>

>

>

>

> --- In Soundsensitivity , " Kathy Howe " <k.howe@> wrote [in

> part]:

>

>

> What seems to be obviously " logical " just isn't with 4s. This condition is

> so bizarre and complex.

>

> ............

>

> In many ways it is; in many ways it isn't.

>

> ..............

>

> WE NEED RESEARCH!!!

>

> ..............

>

> I agree. And since you SHOUTED IT IN CAPS, you must feel very strongly

> about it. So in the past six months exactly how many letters have you

> written to your representatives in Congress explaining what 4S is, how it

> impacts the economy, and why the government needs to allocate funds for 4S

> research?

>

> No need to answer. Just something to think about.

>

> smn

>