Guest guest Posted February 2, 1999 Report Share Posted February 2, 1999 <<Wouldn't it be just dandy if we could just " pop a pill " and the fibroids would disappear? Maybe in the next generation of scientists and with gene mapping research that will be possible. . .>> cynthia morton, at brigham & women's, is working on something along these lines ... we can only hope!!! ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 1999 Report Share Posted February 2, 1999 Hi, Carla. What do you think Dr. Goodwin meant by UAE being a " really, really evil procedure? " Again, thanks for all of your time and research. It is truly invaluable!!!!! Jean ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 1999 Report Share Posted February 2, 1999 I think he was a little " down in the mouth " on the day he said that. He knows that women are suffering through UAE because there really isn't a good choice--and let's face it--this procedure can be excruciatingly painful. He knows there are side effects. He's been collecting data for the last 3 years or so. He knows there's dead tissue left behind as it shrinks. He knows that there's always the possiblity for hysterectomy as a result of this procedure. And, he knows that there are doctors " jumping on the bandwagon " with little to no training in the specifics of this particular IR procedure who are offering this now as part of their repertoire in an effort to " cash in " . And, although I wasn't the first woman to ask about sexual response in all of his cases (I was the second!), he now knows that there may well be some impact on one's sex life that was never even considered previously. Neither by him, other IRs, nor by the gyns. ( " No woman wants to lose their sexuality at any age. . . " ) The point is--that particular impact was never even considered. Wouldn't it be just dandy if we could just " pop a pill " and the fibroids would disappear? Maybe in the next generation of scientists and with gene mapping research that will be possible. . . With tumors of all kinds on the rise nationally, this country will have to figure out " what's going on " pretty soon and pump some research money into the problem. . .otherwise, benign fibroids will be the least of our problems. The conversation I had with him when he made the " evil " statement was philosophical, primarily. Why couldn't this solution have been the " good " one--pain free, no side effects, no impact on sex, no left over dead tissue to potentially cause problems in 10 years or so, etc., etc. It may be a BETTER choice than hysterectomy--but that doesn't make it, necessarily, a really " good " choice. Carla mailto:cdionne@... Re: profiting. . . >Hi, Carla. What do you think Dr. Goodwin meant by UAE being a " really, >really evil procedure? " Again, thanks for all of your time and research. >It is truly invaluable!!!!! > >Jean ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 1999 Report Share Posted February 2, 1999 Carla you have managed to terrify me again, but I know you are right. They really don't divulge all; their means of acquiring statistics is conveniently incomplete. Dr. K made the following statement to the embo group (I don't know if you still access those posts): " All of the statistics that I quote from my own experience are for all patietns who came to me for UAE on an intent to treat basis. Therefore, I have included the 1-2% of patients whose UAEs were technical failures (i.e. I was unable to embolize both Uterine Arteries) in all of the outcome statistics. Other investigators may present their data differently, but the dominant writers (myself, Goodwin, Spies) all present statistics based on every patient who has gotten on their table. " Now, I'm beginning to have heavy periods again and the time between periods is shortening. The main reason I had UAE was to prevent the heavy periods with the anemia that ensued. Therefore, if he says he is following every patient who has gotten on the table, I can refute that (I won't yet till I see how things evolve) since I was told by his colleague who did my follow up at 3 mo. that I had a successful UAE which unfortunately brought menopause on early (I wasn't having periods then), but not to worry, and not necessary to come back for a 6mo. check up since things would not change much. It terrifies me that this has been the procedure at follow ups and the statistics that have been provided therefore thoroughly bogus starting with Ravina. The $$$ factor is definitely the driving factor, but I saw that from the beginning as most of us did I suppose. I just multiply the number of UAE's performed after mine and multiply it by the $7000 for IR charges. I could certainly get used to living on that amount yearly. Omission of facts can be very attractive. ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 1999 Report Share Posted February 2, 1999 Maritza, if you don't mind my asking, what type of ultrasound did you have at your 3 month checkup--regular pelvic, Doppler to assess blood flow to fibroid, vaginal? How much did your uterus and fibroids shrink? I am sorry to hear of your current problem. I truly hope you will get some answers. Were you just told you were in menopause because your periods did not return for awhile, or did blood tests confirm it? Obviously, you were not. As we all know, many women do not get their periods for several months after UAE and then they start again. Also, please let me know if you still cannot read my previous post. I forwarded it to you directly this evening. Re: profiting. . . Carla you have managed to terrify me again, but I know you are right. They really don't divulge all; their means of acquiring statistics is conveniently incomplete. Dr. K made the following statement to the embo group (I don't know if you still access those posts): " All of the statistics that I quote from my own experience are for all patietns who came to me for UAE on an intent to treat basis. Therefore, I have included the 1-2% of patients whose UAEs were technical failures (i.e. I was unable to embolize both Uterine Arteries) in all of the outcome statistics. Other investigators may present their data differently, but the dominant writers (myself, Goodwin, Spies) all present statistics based on every patient who has gotten on their table. " Now, I'm beginning to have heavy periods again and the time between periods is shortening. The main reason I had UAE was to prevent the heavy periods with the anemia that ensued. Therefore, if he says he is following every patient who has gotten on the table, I can refute that (I won't yet till I see how things evolve) since I was told by his colleague who did my follow up at 3 mo. that I had a successful UAE which unfortunately brought menopause on early (I wasn't having periods then), but not to worry, and not necessary to come back for a 6mo. check up since things would not change much. It terrifies me that this has been the procedure at follow ups and the statistics that have been provided therefore thoroughly bogus starting with Ravina. The $$$ factor is definitely the driving factor, but I saw that from the beginning as most of us did I suppose. I just multiply the number of UAE's performed after mine and multiply it by the $7000 for IR charges. I could certainly get used to living on that amount yearly. Omission of facts can be very attractive. --CLICK HERE NOW!-- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 1999 Report Share Posted February 2, 1999 Sorry, I didn't mean to terrify you. I just think it's important for women just now considering this procedure to think about more than just what the doctor has to say. This was, and still is--no matter how terrifying--the best choice that I could have made at the time. Each of us does the best we can with what we know at the time. That's all we can really do. As for now, it's good to know there are others to share with as we support one another through this unknown future. . . Before your UAE did you have a hysteroscopy? Have you read the report? Did the doctor mention anything about hyperplasia, polyps, or an unusually thick endometrium lining? Are you on progesterone, by any chance? You know, it's quite possible that you have more than one " condition " going on with your uterus. If the heavy periods continue, I would definitely push this issue with the gyn. . . My periods are still quite heavy, too. Started mine yesterday and flooded right through a tampon, a pad, my underwear AND gym shorts in less than hour while working out at the gym tonight. . .UGH!!! But, I have some comfort in knowing that my heavy bleeding is the direct result of the hyperplasia and progesterone tablets. Geez. In one paragraph I went through 1) frustration, 2) humiliation, and 3) comfort. . .good grief!!!! I feel like I go through my days sometimes dividing all the symptoms into " good " piles and " bad " piles. . . take care and hang in there! carla mailto:cdionne@... Re: profiting. . . >Carla you have managed to terrify me again, but I know you are right. They >really don't divulge all; their means of acquiring statistics is conveniently >incomplete. >Dr. K made the following statement to the embo group (I don't know if you >still access those posts): > " All of the statistics that I quote from my own experience are for all >patietns who came to me for UAE on an intent to treat basis. Therefore, I >have included the 1-2% of patients whose UAEs were technical failures (i.e. >I was unable to embolize both Uterine Arteries) in all of the outcome >statistics. Other investigators may present their data differently, but the >dominant writers (myself, Goodwin, Spies) all present statistics based on >every patient who has gotten on their table. " > >Now, I'm beginning to have heavy periods again and the time between periods is >shortening. The main reason I had UAE was to prevent the heavy periods with >the anemia that ensued. Therefore, if he says he is following every patient >who has gotten on the table, I can refute that (I won't yet till I see how >things evolve) since I was told by his colleague who did my follow up at 3 mo. >that I had a successful UAE which unfortunately brought menopause on early (I >wasn't having periods then), but not to worry, and not necessary to come back >for a 6mo. check up since things would not change much. It terrifies me that >this has been the procedure at follow ups and the statistics that have been >provided therefore thoroughly bogus starting with Ravina. > >The $$$ factor is definitely the driving factor, but I saw that from the >beginning as most of us did I suppose. I just multiply the number of UAE's >performed after mine and multiply it by the $7000 for IR charges. I could >certainly get used to living on that amount yearly. Omission of facts can be >very attractive. > >------------------------------------------------------------------------ >Backing up has never been easier. Here's an automatic, >Hassle free way to protect your valuable data without >Extra hardware. Download, install and try @Backup. >http://offers./click/215/1 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 1999 Report Share Posted February 2, 1999 Carla, I totally agree with you. I, too, feel that I made the best decision for me. And, as of this point in time, I would still opt for UAE over all other procedures offered. This group is truly a wonderful source of knowledge, support and, yes, comfort. We all have different bodies and it is quite apparent that our post-UAE situations are unique as well. A sincere thank you to all who continue to share their knowledge and experience pre and post UAE. Re: profiting. . . >Carla you have managed to terrify me again, but I know you are right. They >really don't divulge all; their means of acquiring statistics is conveniently >incomplete. >Dr. K made the following statement to the embo group (I don't know if you >still access those posts): > " All of the statistics that I quote from my own experience are for all >patietns who came to me for UAE on an intent to treat basis. Therefore, I >have included the 1-2% of patients whose UAEs were technical failures (i.e. >I was unable to embolize both Uterine Arteries) in all of the outcome >statistics. Other investigators may present their data differently, but the >dominant writers (myself, Goodwin, Spies) all present statistics based on >every patient who has gotten on their table. " > >Now, I'm beginning to have heavy periods again and the time between periods is >shortening. The main reason I had UAE was to prevent the heavy periods with >the anemia that ensued. Therefore, if he says he is following every patient >who has gotten on the table, I can refute that (I won't yet till I see how >things evolve) since I was told by his colleague who did my follow up at 3 mo. >that I had a successful UAE which unfortunately brought menopause on early (I >wasn't having periods then), but not to worry, and not necessary to come back >for a 6mo. check up since things would not change much. It terrifies me that >this has been the procedure at follow ups and the statistics that have been >provided therefore thoroughly bogus starting with Ravina. > >The $$$ factor is definitely the driving factor, but I saw that from the >beginning as most of us did I suppose. I just multiply the number of UAE's >performed after mine and multiply it by the $7000 for IR charges. I could >certainly get used to living on that amount yearly. Omission of facts can be >very attractive. > >------------------------------------------------------------------------ >Backing up has never been easier. Here's an automatic, >Hassle free way to protect your valuable data without >Extra hardware. Download, install and try @Backup. >http://offers./click/215/1 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 Carla, what is hyperplasia? What is the link between UAE, progesterone, hyperplasia and heavy bleeding? What type of progesterone did you take? ofia Re: profiting. . . > > >>Carla you have managed to terrify me again, but I know you are right. They >>really don't divulge all; their means of acquiring statistics is >conveniently >>incomplete. >>Dr. K made the following statement to the embo group (I don't know if you >>still access those posts): >> " All of the statistics that I quote from my own experience are for all >>patietns who came to me for UAE on an intent to treat basis. Therefore, I >>have included the 1-2% of patients whose UAEs were technical failures (i.e. >>I was unable to embolize both Uterine Arteries) in all of the outcome >>statistics. Other investigators may present their data differently, but the >>dominant writers (myself, Goodwin, Spies) all present statistics based on >>every patient who has gotten on their table. " >> >>Now, I'm beginning to have heavy periods again and the time between periods >is >>shortening. The main reason I had UAE was to prevent the heavy periods >with >>the anemia that ensued. Therefore, if he says he is following every patient >>who has gotten on the table, I can refute that (I won't yet till I see how >>things evolve) since I was told by his colleague who did my follow up at 3 >mo. >>that I had a successful UAE which unfortunately brought menopause on early >(I >>wasn't having periods then), but not to worry, and not necessary to come >back >>for a 6mo. check up since things would not change much. It terrifies me >that >>this has been the procedure at follow ups and the statistics that have been >>provided therefore thoroughly bogus starting with Ravina. >> >>The $$$ factor is definitely the driving factor, but I saw that from the >>beginning as most of us did I suppose. I just multiply the number of UAE's >>performed after mine and multiply it by the $7000 for IR charges. I could >>certainly get used to living on that amount yearly. Omission of facts can >be >>very attractive. >> >>------------------------------------------------------------------------ >>Backing up has never been easier. Here's an automatic, >>Hassle free way to protect your valuable data without >>Extra hardware. Download, install and try @Backup. >>http://offers./click/215/1 >> >> Quote Link to comment Share on other sites More sharing options...
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