Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Thanks Bobby for agreeing with me on the marijaunna and the Disability insurance. I am pretty confident that if I re aply now I will be approved after I jump through their hoops. I just need to geet some other things taken care of so I can handle all their paper work and other requirements Jan On Mon, Aug 30, 2010 at 3:17 AM, Bob Aragon wrote: > I'd have to agree with Jan. I think marajuana isnt going to help the > situation > at all. This is very very scary for someone with this disease to > contemplate. > And in my opinion, Jan, you were supposed to get full SSDI long ago. Some > times > people fall through the cracks. I sure wish it hadnt been you. Love, Bobby > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 11:34:37 PM > Subject: Re: need to vent > > > If he was receiving disability for cirrhosis in 2005, he must be toward the > end of progression of the disease. I was turned down for disability after > that date when I was in stage four and also had a number of other serious > medical conditions. As to the marijuanna, some prescriptions meds are very > bad for the liver even before the liver is damaged, so I am sure the > marijuanna wouldn't helphis liver, might help with pain, but sounds like he > just has an addictive behavior and just substituted one for another. You > haven't said which way you want to go but since he tried to kill you and > did > kill your father I am taking it that you want him locked up for as long as > possilbe. I am not aware what the sentencing guidelines are for insanity, > Could you tell us more about his physical condition then and now. Before I > was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in > MN, aLSO WENT looking for some oreos I believed we had just purchased a > couple of days before and accused Ed of eating them all up and wouldn't > believe we hadn't just bought them until he showed me the receipt for 2 > weeks before. Since my diagnosis and orders to cut down on protein, I > haven't had any real trouble. That was more than 10 years ago Other > people > have been very careful and gone down hill much faster. So we can't say how > long he will live. If his problem is cirrhosis and they commit him for > bipolar, I am sure those meds won't make his cirrhosis improve.It is > possible he has both. Remember, I am not a doctor just been living with > this disease for quite a while now. For others it is different. Jan > > On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < > laurinda.cumming@...> wrote: > > > Bobby, > > > > He has no previous criminal history to my knowledge, however does have > > previous > > violence including > > acts of anger/temper, domestic, etc., previous arrests. I'm being told > > these > > arrests are too old, prior to 2003, murder > > occurred in 2009. He definitely has a history. I met him in 2005, no > > indication > > of having any psychosis. No prior mental health > > issues or treatment. Was receiving disability income for the cirrhosis. > > What about illegal drugs like marijuana smoking added to having > > Cirrhosis? No > > prescribed meds taken. > > > > Thanks again, > > Blessings, > > Laurinda > > > > > > > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sun, August 29, 2010 4:52:30 PM > > Subject: Re: need to vent > > > > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. > Gfr > > stands for Glomerular filtration rate, and > > > > is the best overall index of kidney function. > > The question is does the person have any other criminal history or prior > > history > > > > of violence, etc. > > Because there is no telling what he thought he was doing, or what he was > > thinking when he did this. > > > > I once found my own loved one talking to me on the television remote > > control > > when I walked in to her room at the nursing home. Her cell phone was > right > > there > > > > on a necklace, within reach, but she was completely un aware, and thought > > the > > remote was the phone. > > Love, Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sun, August 29, 2010 8:12:07 AM > > Subject: Re: need to vent > > > > Bobby, > > > > Thank you. My concern is the temporary insanity, can that really be > caused > > by Cirrhosis? What is GFR? Are there any other forms of testing? His > > symptoms > > in 2003 was severe ascites and edema, no jaundice or itching. He had > > chronic > > alcoholism from age 8 to 43. He does self induced daily vomiting, even > > today. > > Two days prior to the murder he was normal then the day before he > starting > > talking strange,etc. > > > > The attorneys want to claim guilty except insane because of " Bipolar " not > > the > > Cirrhosis. > > Are these two often compared? This means he will be sent to the mental > > hospital > > and > > have the potential of being released for cold blooded murder. At this > point > > this > > > > > > is my > > > > major concern as he also attempted to murder me at that same time. Just > so > > you > > know > > a little more the person he murdered was my 83 yr helpless father. > > > > Thank you again so much for all your information, I can't tell you how > > helpful > > it is and > > how grateful I am. > > Oh I forgot can daily smoking marijuana be harmful to someone with > > Cirrhosis? > > Can that cause > > > > further symptoms. I would assume it does. He replaced the alcohol with > this > > drug, he needed > > > > the daily high. > > > > God Bless, > > Laurinda > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sat, August 28, 2010 7:05:42 PM > > Subject: Re: need to vent > > > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > > insanity > > > > > > which has been used frivolously should be considered if the person has no > > other > > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > > Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sat, August 28, 2010 8:09:22 AM > > Subject: Re: need to vent > > > > Thank you again for all of the information, I have received more in last > 12 > > hours then > > I have in 12 months. I have researched myself but not always sure what > I'm > > looking at > > since this disease is new too me. > > This link you just sent said " Agitation and mania can develop but are > > uncommon " > > > > this is > > why I get confused. > > Can you please tell me what type of medical specialist deals with this > > illness? > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sat, August 28, 2010 3:21:22 AM > > Subject: Re: need to vent > > > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the > same > > as > > portal systemic encephalopathy. The chart in the following article does > > include > > Anger, paranoia, or other bizarre behavior > > > > Please read this article for the best information. Love, Bobby > > > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > > > 0 (subclinical) > > > > Asymptomatic loss of cognitive abilities > > > > None > > > > 1 > > > > Sleep disturbances > > > > Impaired concentration > > > > Depression, anxiety, or irritability > > > > Monotone voice > > > > Tremor > > > > Poor handwriting > > > > Constructional apraxia > > > > 2 > > > > Drowsiness > > > > Disorientation > > > > Poor short-term memory > > > > Disinhibited behavior > > > > Ataxia > > > > Dysarthria > > > > Asterixis > > > > Automatisms (eg, yawning, blinking, sucking) > > > > 3 > > > > Somnolence > > > > Confusion > > > > Amnesia > > > > Anger, paranoia, or other bizarre behavior > > > > Nystagmus > > > > Muscular rigidity > > > > Hyperreflexia or hyporeflexia > > > > 4 > > > > Coma > > > > Dilated pupils > > > > Oculocephalic or oculovestibular reflexes > > > > Decerebrate posturing > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, August 27, 2010 10:53:46 PM > > Subject: Re: need to vent > > > > Bonnie, > > > > Thank you, I have looked up " wet brain " , from my understanding it says > > that a person becomes confused and slips into a coma, they don't > violently > > murder someone. Has anyone heard of someone killing another? I need all > > the information I can find on the symptoms,etc of cirrhosis and hepatic > > encephalopathy. What type of medical specialist deals with this illness? > > > > Thank you, this communication is wonderful, god bless > > Laurinda > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, August 27, 2010 8:44:00 PM > > Subject: Re: need to vent > > > > Jackie thanks for the encouragement. To the lady who spoke about > > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > > started > > taking apart the house, pulling out nails, tearing off the walls in his > own > > little world. that was 1983. She had him committed, he wasnt drinking, > but > > his > > ammonia levels were very high. He didnt even know she was there. But from > > what > > i have learned from the people on this forum and from watching my own > > husbands > > ammonia levels increase that he gets very tired and it can lead to longer > > and > > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet > that > > would give you some info. Just a thought. Bonnie > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, August 27, 2010 9:20:50 PM > > Subject: Re: need to vent > > > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > > operated on > > my husband. I was telling him about this forum and he said it's the best > > place > > to learn, from real live people. My husband got social security > disability > > after his open heart surgery in 2004. He had lost his job in Sept. of > 2003 > > and > > was getting unemployment. Ironically, his last unemployment check came > the > > day > > before his open heart surgery. At that time he was 59 and I figured if he > > applied for disability he would stand a good chance of getting it. Who > > would > > hire a 59 year old man with a host of health problems? It took awhile, > and > > thankfully, we had some savings we were living off of. Once he got his > > disability it was retro-active from the date he became disabled. It > sounds > > like > > your husband may get disability. I sure hope so. Maybe it will be > > retro-active > > like my husband's was. You will be ok. These things have a way of working > > themselves out. > > My husband is 65 now and it looks like we will be able to enjoy > retirement. > > He > > got a good report from the surgeons today. His liver is functioning real > > good > > and they even decreased some of the meds. I'm keeping you and your > husband > > in > > my prayers. Let me hear from you soon. Jackie > > > > > > > > > > Subject: Re: need to vent > > To: livercirrhosissupport > > Date: Wednesday, August 25, 2010, 9:00 PM > > > > Hi everyone, I am glad to find this group and unsure how to navigate it. > > Hopefully u all can give me some insight. My husband was admitted to the > > hospital for 4 days in July. He was told prior to this that he has > > cirhossis > > and Hepatitis C. His enzymes are up and down. His liver specialist said > > that > > even though he isnt drinking, they will fluctuate. His white cells and > > platelets are very low. Too low for the interferon and ribo shots. He is > > using lactulose for the ammonia levels. they were at 77 while in the > > hospital > > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > > tired all the time, he sleeps so much. His liver specialist said that a > med > > rate of 16 he would need a liver transplant. His med rate is 14. He has > > applied for disability. What should I expect.? Hes had an ultrasound, all > > of > > the labs, and x rays. we are waiting on the results. In any case we were > > very > > stunned by the news that he is almost at the point of a liver transplant. > > Can > > someone tell me some of the symptoms, outcomes, prognosis (which i > realize > > is > > different in each case) will he be tired like this all the time. He is 54 > > years > > old. It doesnt seem like anything can be done, except control the side > > effects, > > like leg swelling and infection. any input would be appreciate. Thanks > > Bonnie > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Tue, August 24, 2010 9:53:54 PM > > Subject: Re: need to vent > > > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. > i > > am > > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > > want > > > > scan > > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > > forgets i > > > > fed > > > > > > him and skyler the grandson living with us, i found his empty > glass > > of > > > > in > > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > > grandaughters birthday but its sunday, we went to her party he > > doesnt > > > > > > remeber it. like i said i am pissed or call it scared what ever > it > > is i > > > > am > > > > > > it. my newest grandbaby conts. to do good then bad....to be > > expected > > > > for a > > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > > out > > > > ...hes > > > > > > a boy and for some reason its different than the girls...hes in > > time > > > > out > > > > > > right now....am i to hard on him...or is he to stubborn i dont > > know. > > > > the > > > > > > tears rolling down my face says it all. i am tired but i have to > > cont. > > > > on i > > > > > > have no choice in any of this. if i had my choice i would be at > the > > > > ocean > > > > > > watching the waves lap the shore...eating at cock of the walk > with > > > > elsie and > > > > > > roger...but i have no choice. i am here i am mad i am confused i > am > > > > > > ....??????? really makes me want a glass of wine, but i live to > far > > > > from > > > > > > town and its sunday and i cant get any lol. whys life so messed > > > > up...what > > > > > > did i do to deserve all this crap???? should i walk away and tell > > them > > > > all > > > > > > do it yourself??? should i just suck it up ,drink water and drive > > on > > > > soldier > > > > > > ???? i know this is my life, for whatever reason these are the > > cards > > > > dealt > > > > > > to me, and i will find away to stand. but right now i am pissy i > am > > sad > > > > i > > > > > > miss my life the way it was. i am sorry but if i told anyone in > my > > > > family > > > > > > the way i feel they would blame me for enabling everyone. you all > > and > > > > > > elsie...aka mae mae are they only ones i have to vent to that > dont > > > > sugarcoat > > > > > > the facts or blow smoke up my butt. i love you all and just > needed > > to > > > > get > > > > > > this off my chest cause i have been one angry chick all week > cause > > i > > > > dont > > > > > > know where these feelings are supposed to go. i am angry with the > > sick > > > > ones > > > > > > the stupid ones and the ones who just dont give a crap. i wanna > lay > > in > > > > the > > > > > > sun with a glass of something...even water lol. in my hand > soaking > > up > > > > the > > > > > > rays, without a care in the world....but life wont let me. who > > wouldnt > > > > be > > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > > its > > > > me > > > > > > against all of them.... when will it be my turn? i know that > sounds > > > > selfish > > > > > > but i feel selfish right now. whats god...the universe trying to > > tell > > > > me? > > > > > > well just spit it out already i will do what i need to but i am > > tired > > > > for > > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > Group Email: livercirrhosissupport > > > > > > web address: > > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Jan & Bobby, Here's a new one I was asked today by the prosecutor " where does it say that cirrhosis causes violent murder behavior? " I know it causes confusion, comas, disorientation, etc. have you heard of anyone actually killing another because of the illness or where can I find something in writing that refers to violent behavior? Can someone go insane from cirrhosis? Jan you asked what I wanted done, it's that he be locked up for his natural life (forever), no chance of parole. They the court system want to send to the mental hospital where he could stand the chance of being released once they determined he is restored mentally. They can't be serious, this man is not mentally ill. If it's not cirrhosis then how can someone go bipolar in just three days? I realize you may not have the answer for this one. Thank you for all your concern and help. Many Blessings, Laurinda ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:17:25 AM Subject: Re: need to vent  I'd have to agree with Jan. I think marajuana isnt going to help the situation at all. This is very very scary for someone with this disease to contemplate. And in my opinion, Jan, you were supposed to get full SSDI long ago. Some times people fall through the cracks. I sure wish it hadnt been you. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, August 29, 2010 11:34:37 PM Subject: Re: need to vent If he was receiving disability for cirrhosis in 2005, he must be toward the end of progression of the disease. I was turned down for disability after that date when I was in stage four and also had a number of other serious medical conditions. As to the marijuanna, some prescriptions meds are very bad for the liver even before the liver is damaged, so I am sure the marijuanna wouldn't helphis liver, might help with pain, but sounds like he just has an addictive behavior and just substituted one for another. You haven't said which way you want to go but since he tried to kill you and did kill your father I am taking it that you want him locked up for as long as possilbe. I am not aware what the sentencing guidelines are for insanity, Could you tell us more about his physical condition then and now. Before I was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in MN, aLSO WENT looking for some oreos I believed we had just purchased a couple of days before and accused Ed of eating them all up and wouldn't believe we hadn't just bought them until he showed me the receipt for 2 weeks before. Since my diagnosis and orders to cut down on protein, I haven't had any real trouble. That was more than 10 years ago Other people have been very careful and gone down hill much faster. So we can't say how long he will live. If his problem is cirrhosis and they commit him for bipolar, I am sure those meds won't make his cirrhosis improve.It is possible he has both. Remember, I am not a doctor just been living with this disease for quite a while now. For others it is different. Jan On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < laurinda.cumming@...> wrote: > Bobby, > > He has no previous criminal history to my knowledge, however does have > previous > violence including > acts of anger/temper, domestic, etc., previous arrests. I'm being told > these > arrests are too old, prior to 2003, murder > occurred in 2009. He definitely has a history. I met him in 2005, no > indication > of having any psychosis. No prior mental health > issues or treatment. Was receiving disability income for the cirrhosis. > What about illegal drugs like marijuana smoking added to having > Cirrhosis? No > prescribed meds taken. > > Thanks again, > Blessings, > Laurinda > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 4:52:30 PM > Subject: Re: need to vent > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. Gfr > stands for Glomerular filtration rate, and > > is the best overall index of kidney function. > The question is does the person have any other criminal history or prior > history > > of violence, etc. > Because there is no telling what he thought he was doing, or what he was > thinking when he did this. > > I once found my own loved one talking to me on the television remote > control > when I walked in to her room at the nursing home. Her cell phone was right > there > > on a necklace, within reach, but she was completely un aware, and thought > the > remote was the phone. > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 8:12:07 AM > Subject: Re: need to vent > > Bobby, > > Thank you. My concern is the temporary insanity, can that really be caused > by Cirrhosis? What is GFR? Are there any other forms of testing? His > symptoms > in 2003 was severe ascites and edema, no jaundice or itching. He had > chronic > alcoholism from age 8 to 43. He does self induced daily vomiting, even > today. > Two days prior to the murder he was normal then the day before he starting > talking strange,etc. > > The attorneys want to claim guilty except insane because of " Bipolar " not > the > Cirrhosis. > Are these two often compared? This means he will be sent to the mental > hospital > and > have the potential of being released for cold blooded murder. At this point > this > > > is my > > major concern as he also attempted to murder me at that same time. Just so > you > know > a little more the person he murdered was my 83 yr helpless father. > > Thank you again so much for all your information, I can't tell you how > helpful > it is and > how grateful I am. > Oh I forgot can daily smoking marijuana be harmful to someone with > Cirrhosis? > Can that cause > > further symptoms. I would assume it does. He replaced the alcohol with this > drug, he needed > > the daily high. > > God Bless, > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 7:05:42 PM > Subject: Re: need to vent > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > insanity > > > which has been used frivolously should be considered if the person has no > other > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 8:09:22 AM > Subject: Re: need to vent > > Thank you again for all of the information, I have received more in last 12 > hours then > I have in 12 months. I have researched myself but not always sure what I'm > looking at > since this disease is new too me. > This link you just sent said " Agitation and mania can develop but are > uncommon " > > this is > why I get confused. > Can you please tell me what type of medical specialist deals with this > illness? > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 3:21:22 AM > Subject: Re: need to vent > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the same > as > portal systemic encephalopathy. The chart in the following article does > include > Anger, paranoia, or other bizarre behavior > > Please read this article for the best information. Love, Bobby > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > 0 (subclinical) > > Asymptomatic loss of cognitive abilities > > None > > 1 > > Sleep disturbances > > Impaired concentration > > Depression, anxiety, or irritability > > Monotone voice > > Tremor > > Poor handwriting > > Constructional apraxia > > 2 > > Drowsiness > > Disorientation > > Poor short-term memory > > Disinhibited behavior > > Ataxia > > Dysarthria > > Asterixis > > Automatisms (eg, yawning, blinking, sucking) > > 3 > > Somnolence > > Confusion > > Amnesia > > Anger, paranoia, or other bizarre behavior > > Nystagmus > > Muscular rigidity > > Hyperreflexia or hyporeflexia > > 4 > > Coma > > Dilated pupils > > Oculocephalic or oculovestibular reflexes > > Decerebrate posturing > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 10:53:46 PM > Subject: Re: need to vent > > Bonnie, > > Thank you, I have looked up " wet brain " , from my understanding it says > that a person becomes confused and slips into a coma, they don't violently > murder someone. Has anyone heard of someone killing another? I need all > the information I can find on the symptoms,etc of cirrhosis and hepatic > encephalopathy. What type of medical specialist deals with this illness? > > Thank you, this communication is wonderful, god bless > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 8:44:00 PM > Subject: Re: need to vent > > Jackie thanks for the encouragement. To the lady who spoke about > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > started > taking apart the house, pulling out nails, tearing off the walls in his own > little world. that was 1983. She had him committed, he wasnt drinking, but > his > ammonia levels were very high. He didnt even know she was there. But from > what > i have learned from the people on this forum and from watching my own > husbands > ammonia levels increase that he gets very tired and it can lead to longer > and > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet that > would give you some info. Just a thought. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 9:20:50 PM > Subject: Re: need to vent > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > operated on > my husband. I was telling him about this forum and he said it's the best > place > to learn, from real live people. My husband got social security disability > after his open heart surgery in 2004. He had lost his job in Sept. of 2003 > and > was getting unemployment. Ironically, his last unemployment check came the > day > before his open heart surgery. At that time he was 59 and I figured if he > applied for disability he would stand a good chance of getting it. Who > would > hire a 59 year old man with a host of health problems? It took awhile, and > thankfully, we had some savings we were living off of. Once he got his > disability it was retro-active from the date he became disabled. It sounds > like > your husband may get disability. I sure hope so. Maybe it will be > retro-active > like my husband's was. You will be ok. These things have a way of working > themselves out. > My husband is 65 now and it looks like we will be able to enjoy retirement. > He > got a good report from the surgeons today. His liver is functioning real > good > and they even decreased some of the meds. I'm keeping you and your husband > in > my prayers. Let me hear from you soon. Jackie > > > > > Subject: Re: need to vent > To: livercirrhosissupport > Date: Wednesday, August 25, 2010, 9:00 PM > > Hi everyone, I am glad to find this group and unsure how to navigate it. > Hopefully u all can give me some insight. My husband was admitted to the > hospital for 4 days in July. He was told prior to this that he has > cirhossis > and Hepatitis C. His enzymes are up and down. His liver specialist said > that > even though he isnt drinking, they will fluctuate. His white cells and > platelets are very low. Too low for the interferon and ribo shots. He is > using lactulose for the ammonia levels. they were at 77 while in the > hospital > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > tired all the time, he sleeps so much. His liver specialist said that a med > rate of 16 he would need a liver transplant. His med rate is 14. He has > applied for disability. What should I expect.? Hes had an ultrasound, all > of > the labs, and x rays. we are waiting on the results. In any case we were > very > stunned by the news that he is almost at the point of a liver transplant. > Can > someone tell me some of the symptoms, outcomes, prognosis (which i realize > is > different in each case) will he be tired like this all the time. He is 54 > years > old. It doesnt seem like anything can be done, except control the side > effects, > like leg swelling and infection. any input would be appreciate. Thanks > Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 24, 2010 9:53:54 PM > Subject: Re: need to vent > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i > am > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > want > > > scan > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > forgets i > > > fed > > > > > him and skyler the grandson living with us, i found his empty glass > of > > > in > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > grandaughters birthday but its sunday, we went to her party he > doesnt > > > > > remeber it. like i said i am pissed or call it scared what ever it > is i > > > am > > > > > it. my newest grandbaby conts. to do good then bad....to be > expected > > > for a > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > out > > > ...hes > > > > > a boy and for some reason its different than the girls...hes in > time > > > out > > > > > right now....am i to hard on him...or is he to stubborn i dont > know. > > > the > > > > > tears rolling down my face says it all. i am tired but i have to > cont. > > > on i > > > > > have no choice in any of this. if i had my choice i would be at the > > > ocean > > > > > watching the waves lap the shore...eating at cock of the walk with > > > elsie and > > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > > ....??????? really makes me want a glass of wine, but i live to far > > > from > > > > > town and its sunday and i cant get any lol. whys life so messed > > > up...what > > > > > did i do to deserve all this crap???? should i walk away and tell > them > > > all > > > > > do it yourself??? should i just suck it up ,drink water and drive > on > > > soldier > > > > > ???? i know this is my life, for whatever reason these are the > cards > > > dealt > > > > > to me, and i will find away to stand. but right now i am pissy i am > sad > > > i > > > > > miss my life the way it was. i am sorry but if i told anyone in my > > > family > > > > > the way i feel they would blame me for enabling everyone. you all > and > > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > > sugarcoat > > > > > the facts or blow smoke up my butt. i love you all and just needed > to > > > get > > > > > this off my chest cause i have been one angry chick all week cause > i > > > dont > > > > > know where these feelings are supposed to go. i am angry with the > sick > > > ones > > > > > the stupid ones and the ones who just dont give a crap. i wanna lay > in > > > the > > > > > sun with a glass of something...even water lol. in my hand soaking > up > > > the > > > > > rays, without a care in the world....but life wont let me. who > wouldnt > > > be > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > its > > > me > > > > > against all of them.... when will it be my turn? i know that sounds > > > selfish > > > > > but i feel selfish right now. whats god...the universe trying to > tell > > > me? > > > > > well just spit it out already i will do what i need to but i am > tired > > > for > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Group Email: livercirrhosissupport > > > > > web address: > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Here is a paper from the US government library. Maybe the answer you seek is in here. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2501102/pdf/postmedj00527-0031.pdf ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:34:03 PM Subject: Re: need to vent Jan & Bobby, Here's a new one I was asked today by the prosecutor " where does it say that cirrhosis causes violent murder behavior? " I know it causes confusion, comas, disorientation, etc. have you heard of anyone actually killing another because of the illness or where can I find something in writing that refers to violent behavior? Can someone go insane from cirrhosis? Jan you asked what I wanted done, it's that he be locked up for his natural life (forever), no chance of parole. They the court system want to send to the mental hospital where he could stand the chance of being released once they determined he is restored mentally. They can't be serious, this man is not mentally ill. If it's not cirrhosis then how can someone go bipolar in just three days? I realize you may not have the answer for this one. Thank you for all your concern and help. Many Blessings, Laurinda ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:17:25 AM Subject: Re: need to vent I'd have to agree with Jan. I think marajuana isnt going to help the situation at all. This is very very scary for someone with this disease to contemplate. And in my opinion, Jan, you were supposed to get full SSDI long ago. Some times people fall through the cracks. I sure wish it hadnt been you. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, August 29, 2010 11:34:37 PM Subject: Re: need to vent If he was receiving disability for cirrhosis in 2005, he must be toward the end of progression of the disease. I was turned down for disability after that date when I was in stage four and also had a number of other serious medical conditions. As to the marijuanna, some prescriptions meds are very bad for the liver even before the liver is damaged, so I am sure the marijuanna wouldn't helphis liver, might help with pain, but sounds like he just has an addictive behavior and just substituted one for another. You haven't said which way you want to go but since he tried to kill you and did kill your father I am taking it that you want him locked up for as long as possilbe. I am not aware what the sentencing guidelines are for insanity, Could you tell us more about his physical condition then and now. Before I was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in MN, aLSO WENT looking for some oreos I believed we had just purchased a couple of days before and accused Ed of eating them all up and wouldn't believe we hadn't just bought them until he showed me the receipt for 2 weeks before. Since my diagnosis and orders to cut down on protein, I haven't had any real trouble. That was more than 10 years ago Other people have been very careful and gone down hill much faster. So we can't say how long he will live. If his problem is cirrhosis and they commit him for bipolar, I am sure those meds won't make his cirrhosis improve.It is possible he has both. Remember, I am not a doctor just been living with this disease for quite a while now. For others it is different. Jan On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < laurinda.cumming@...> wrote: > Bobby, > > He has no previous criminal history to my knowledge, however does have > previous > violence including > acts of anger/temper, domestic, etc., previous arrests. I'm being told > these > arrests are too old, prior to 2003, murder > occurred in 2009. He definitely has a history. I met him in 2005, no > indication > of having any psychosis. No prior mental health > issues or treatment. Was receiving disability income for the cirrhosis. > What about illegal drugs like marijuana smoking added to having > Cirrhosis? No > prescribed meds taken. > > Thanks again, > Blessings, > Laurinda > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 4:52:30 PM > Subject: Re: need to vent > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. Gfr > stands for Glomerular filtration rate, and > > is the best overall index of kidney function. > The question is does the person have any other criminal history or prior > history > > of violence, etc. > Because there is no telling what he thought he was doing, or what he was > thinking when he did this. > > I once found my own loved one talking to me on the television remote > control > when I walked in to her room at the nursing home. Her cell phone was right > there > > on a necklace, within reach, but she was completely un aware, and thought > the > remote was the phone. > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 8:12:07 AM > Subject: Re: need to vent > > Bobby, > > Thank you. My concern is the temporary insanity, can that really be caused > by Cirrhosis? What is GFR? Are there any other forms of testing? His > symptoms > in 2003 was severe ascites and edema, no jaundice or itching. He had > chronic > alcoholism from age 8 to 43. He does self induced daily vomiting, even > today. > Two days prior to the murder he was normal then the day before he starting > talking strange,etc. > > The attorneys want to claim guilty except insane because of " Bipolar " not > the > Cirrhosis. > Are these two often compared? This means he will be sent to the mental > hospital > and > have the potential of being released for cold blooded murder. At this point > this > > > is my > > major concern as he also attempted to murder me at that same time. Just so > you > know > a little more the person he murdered was my 83 yr helpless father. > > Thank you again so much for all your information, I can't tell you how > helpful > it is and > how grateful I am. > Oh I forgot can daily smoking marijuana be harmful to someone with > Cirrhosis? > Can that cause > > further symptoms. I would assume it does. He replaced the alcohol with this > drug, he needed > > the daily high. > > God Bless, > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 7:05:42 PM > Subject: Re: need to vent > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > insanity > > > which has been used frivolously should be considered if the person has no > other > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 8:09:22 AM > Subject: Re: need to vent > > Thank you again for all of the information, I have received more in last 12 > hours then > I have in 12 months. I have researched myself but not always sure what I'm > looking at > since this disease is new too me. > This link you just sent said " Agitation and mania can develop but are > uncommon " > > this is > why I get confused. > Can you please tell me what type of medical specialist deals with this > illness? > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 3:21:22 AM > Subject: Re: need to vent > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the same > as > portal systemic encephalopathy. The chart in the following article does > include > Anger, paranoia, or other bizarre behavior > > Please read this article for the best information. Love, Bobby > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > 0 (subclinical) > > Asymptomatic loss of cognitive abilities > > None > > 1 > > Sleep disturbances > > Impaired concentration > > Depression, anxiety, or irritability > > Monotone voice > > Tremor > > Poor handwriting > > Constructional apraxia > > 2 > > Drowsiness > > Disorientation > > Poor short-term memory > > Disinhibited behavior > > Ataxia > > Dysarthria > > Asterixis > > Automatisms (eg, yawning, blinking, sucking) > > 3 > > Somnolence > > Confusion > > Amnesia > > Anger, paranoia, or other bizarre behavior > > Nystagmus > > Muscular rigidity > > Hyperreflexia or hyporeflexia > > 4 > > Coma > > Dilated pupils > > Oculocephalic or oculovestibular reflexes > > Decerebrate posturing > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 10:53:46 PM > Subject: Re: need to vent > > Bonnie, > > Thank you, I have looked up " wet brain " , from my understanding it says > that a person becomes confused and slips into a coma, they don't violently > murder someone. Has anyone heard of someone killing another? I need all > the information I can find on the symptoms,etc of cirrhosis and hepatic > encephalopathy. What type of medical specialist deals with this illness? > > Thank you, this communication is wonderful, god bless > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 8:44:00 PM > Subject: Re: need to vent > > Jackie thanks for the encouragement. To the lady who spoke about > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > started > taking apart the house, pulling out nails, tearing off the walls in his own > little world. that was 1983. She had him committed, he wasnt drinking, but > his > ammonia levels were very high. He didnt even know she was there. But from > what > i have learned from the people on this forum and from watching my own > husbands > ammonia levels increase that he gets very tired and it can lead to longer > and > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet that > would give you some info. Just a thought. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 9:20:50 PM > Subject: Re: need to vent > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > operated on > my husband. I was telling him about this forum and he said it's the best > place > to learn, from real live people. My husband got social security disability > after his open heart surgery in 2004. He had lost his job in Sept. of 2003 > and > was getting unemployment. Ironically, his last unemployment check came the > day > before his open heart surgery. At that time he was 59 and I figured if he > applied for disability he would stand a good chance of getting it. Who > would > hire a 59 year old man with a host of health problems? It took awhile, and > thankfully, we had some savings we were living off of. Once he got his > disability it was retro-active from the date he became disabled. It sounds > like > your husband may get disability. I sure hope so. Maybe it will be > retro-active > like my husband's was. You will be ok. These things have a way of working > themselves out. > My husband is 65 now and it looks like we will be able to enjoy retirement. > He > got a good report from the surgeons today. His liver is functioning real > good > and they even decreased some of the meds. I'm keeping you and your husband > in > my prayers. Let me hear from you soon. Jackie > > > > > Subject: Re: need to vent > To: livercirrhosissupport > Date: Wednesday, August 25, 2010, 9:00 PM > > Hi everyone, I am glad to find this group and unsure how to navigate it. > Hopefully u all can give me some insight. My husband was admitted to the > hospital for 4 days in July. He was told prior to this that he has > cirhossis > and Hepatitis C. His enzymes are up and down. His liver specialist said > that > even though he isnt drinking, they will fluctuate. His white cells and > platelets are very low. Too low for the interferon and ribo shots. He is > using lactulose for the ammonia levels. they were at 77 while in the > hospital > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > tired all the time, he sleeps so much. His liver specialist said that a med > rate of 16 he would need a liver transplant. His med rate is 14. He has > applied for disability. What should I expect.? Hes had an ultrasound, all > of > the labs, and x rays. we are waiting on the results. In any case we were > very > stunned by the news that he is almost at the point of a liver transplant. > Can > someone tell me some of the symptoms, outcomes, prognosis (which i realize > is > different in each case) will he be tired like this all the time. He is 54 > years > old. It doesnt seem like anything can be done, except control the side > effects, > like leg swelling and infection. any input would be appreciate. Thanks > Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 24, 2010 9:53:54 PM > Subject: Re: need to vent > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i > am > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > want > > > scan > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > forgets i > > > fed > > > > > him and skyler the grandson living with us, i found his empty glass > of > > > in > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > grandaughters birthday but its sunday, we went to her party he > doesnt > > > > > remeber it. like i said i am pissed or call it scared what ever it > is i > > > am > > > > > it. my newest grandbaby conts. to do good then bad....to be > expected > > > for a > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > out > > > ...hes > > > > > a boy and for some reason its different than the girls...hes in > time > > > out > > > > > right now....am i to hard on him...or is he to stubborn i dont > know. > > > the > > > > > tears rolling down my face says it all. i am tired but i have to > cont. > > > on i > > > > > have no choice in any of this. if i had my choice i would be at the > > > ocean > > > > > watching the waves lap the shore...eating at cock of the walk with > > > elsie and > > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > > ....??????? really makes me want a glass of wine, but i live to far > > > from > > > > > town and its sunday and i cant get any lol. whys life so messed > > > up...what > > > > > did i do to deserve all this crap???? should i walk away and tell > them > > > all > > > > > do it yourself??? should i just suck it up ,drink water and drive > on > > > soldier > > > > > ???? i know this is my life, for whatever reason these are the > cards > > > dealt > > > > > to me, and i will find away to stand. but right now i am pissy i am > sad > > > i > > > > > miss my life the way it was. i am sorry but if i told anyone in my > > > family > > > > > the way i feel they would blame me for enabling everyone. you all > and > > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > > sugarcoat > > > > > the facts or blow smoke up my butt. i love you all and just needed > to > > > get > > > > > this off my chest cause i have been one angry chick all week cause > i > > > dont > > > > > know where these feelings are supposed to go. i am angry with the > sick > > > ones > > > > > the stupid ones and the ones who just dont give a crap. i wanna lay > in > > > the > > > > > sun with a glass of something...even water lol. in my hand soaking > up > > > the > > > > > rays, without a care in the world....but life wont let me. who > wouldnt > > > be > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > its > > > me > > > > > against all of them.... when will it be my turn? i know that sounds > > > selfish > > > > > but i feel selfish right now. whats god...the universe trying to > tell > > > me? > > > > > well just spit it out already i will do what i need to but i am > tired > > > for > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Group Email: livercirrhosissupport > > > > > web address: > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Bob, That was a fantastic link. Very informative too. Hopefully that will help her with the case. Bonnie ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 7:53:57 PM Subject: Re: need to vent Here is a paper from the US government library. Maybe the answer you seek is in here. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2501102/pdf/postmedj00527-0031.pdf ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:34:03 PM Subject: Re: need to vent Jan & Bobby, Here's a new one I was asked today by the prosecutor " where does it say that cirrhosis causes violent murder behavior? " I know it causes confusion, comas, disorientation, etc. have you heard of anyone actually killing another because of the illness or where can I find something in writing that refers to violent behavior? Can someone go insane from cirrhosis? Jan you asked what I wanted done, it's that he be locked up for his natural life (forever), no chance of parole. They the court system want to send to the mental hospital where he could stand the chance of being released once they determined he is restored mentally. They can't be serious, this man is not mentally ill. If it's not cirrhosis then how can someone go bipolar in just three days? I realize you may not have the answer for this one. Thank you for all your concern and help. Many Blessings, Laurinda ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:17:25 AM Subject: Re: need to vent I'd have to agree with Jan. I think marajuana isnt going to help the situation at all. This is very very scary for someone with this disease to contemplate. And in my opinion, Jan, you were supposed to get full SSDI long ago. Some times people fall through the cracks. I sure wish it hadnt been you. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, August 29, 2010 11:34:37 PM Subject: Re: need to vent If he was receiving disability for cirrhosis in 2005, he must be toward the end of progression of the disease. I was turned down for disability after that date when I was in stage four and also had a number of other serious medical conditions. As to the marijuanna, some prescriptions meds are very bad for the liver even before the liver is damaged, so I am sure the marijuanna wouldn't helphis liver, might help with pain, but sounds like he just has an addictive behavior and just substituted one for another. You haven't said which way you want to go but since he tried to kill you and did kill your father I am taking it that you want him locked up for as long as possilbe. I am not aware what the sentencing guidelines are for insanity, Could you tell us more about his physical condition then and now. Before I was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in MN, aLSO WENT looking for some oreos I believed we had just purchased a couple of days before and accused Ed of eating them all up and wouldn't believe we hadn't just bought them until he showed me the receipt for 2 weeks before. Since my diagnosis and orders to cut down on protein, I haven't had any real trouble. That was more than 10 years ago Other people have been very careful and gone down hill much faster. So we can't say how long he will live. If his problem is cirrhosis and they commit him for bipolar, I am sure those meds won't make his cirrhosis improve.It is possible he has both. Remember, I am not a doctor just been living with this disease for quite a while now. For others it is different. Jan On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < laurinda.cumming@...> wrote: > Bobby, > > He has no previous criminal history to my knowledge, however does have > previous > violence including > acts of anger/temper, domestic, etc., previous arrests. I'm being told > these > arrests are too old, prior to 2003, murder > occurred in 2009. He definitely has a history. I met him in 2005, no > indication > of having any psychosis. No prior mental health > issues or treatment. Was receiving disability income for the cirrhosis. > What about illegal drugs like marijuana smoking added to having > Cirrhosis? No > prescribed meds taken. > > Thanks again, > Blessings, > Laurinda > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 4:52:30 PM > Subject: Re: need to vent > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. Gfr > stands for Glomerular filtration rate, and > > is the best overall index of kidney function. > The question is does the person have any other criminal history or prior > history > > of violence, etc. > Because there is no telling what he thought he was doing, or what he was > thinking when he did this. > > I once found my own loved one talking to me on the television remote > control > when I walked in to her room at the nursing home. Her cell phone was right > there > > on a necklace, within reach, but she was completely un aware, and thought > the > remote was the phone. > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 8:12:07 AM > Subject: Re: need to vent > > Bobby, > > Thank you. My concern is the temporary insanity, can that really be caused > by Cirrhosis? What is GFR? Are there any other forms of testing? His > symptoms > in 2003 was severe ascites and edema, no jaundice or itching. He had > chronic > alcoholism from age 8 to 43. He does self induced daily vomiting, even > today. > Two days prior to the murder he was normal then the day before he starting > talking strange,etc. > > The attorneys want to claim guilty except insane because of " Bipolar " not > the > Cirrhosis. > Are these two often compared? This means he will be sent to the mental > hospital > and > have the potential of being released for cold blooded murder. At this point > this > > > is my > > major concern as he also attempted to murder me at that same time. Just so > you > know > a little more the person he murdered was my 83 yr helpless father. > > Thank you again so much for all your information, I can't tell you how > helpful > it is and > how grateful I am. > Oh I forgot can daily smoking marijuana be harmful to someone with > Cirrhosis? > Can that cause > > further symptoms. I would assume it does. He replaced the alcohol with this > drug, he needed > > the daily high. > > God Bless, > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 7:05:42 PM > Subject: Re: need to vent > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > insanity > > > which has been used frivolously should be considered if the person has no > other > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 8:09:22 AM > Subject: Re: need to vent > > Thank you again for all of the information, I have received more in last 12 > hours then > I have in 12 months. I have researched myself but not always sure what I'm > looking at > since this disease is new too me. > This link you just sent said " Agitation and mania can develop but are > uncommon " > > this is > why I get confused. > Can you please tell me what type of medical specialist deals with this > illness? > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 3:21:22 AM > Subject: Re: need to vent > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the same > as > portal systemic encephalopathy. The chart in the following article does > include > Anger, paranoia, or other bizarre behavior > > Please read this article for the best information. Love, Bobby > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > 0 (subclinical) > > Asymptomatic loss of cognitive abilities > > None > > 1 > > Sleep disturbances > > Impaired concentration > > Depression, anxiety, or irritability > > Monotone voice > > Tremor > > Poor handwriting > > Constructional apraxia > > 2 > > Drowsiness > > Disorientation > > Poor short-term memory > > Disinhibited behavior > > Ataxia > > Dysarthria > > Asterixis > > Automatisms (eg, yawning, blinking, sucking) > > 3 > > Somnolence > > Confusion > > Amnesia > > Anger, paranoia, or other bizarre behavior > > Nystagmus > > Muscular rigidity > > Hyperreflexia or hyporeflexia > > 4 > > Coma > > Dilated pupils > > Oculocephalic or oculovestibular reflexes > > Decerebrate posturing > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 10:53:46 PM > Subject: Re: need to vent > > Bonnie, > > Thank you, I have looked up " wet brain " , from my understanding it says > that a person becomes confused and slips into a coma, they don't violently > murder someone. Has anyone heard of someone killing another? I need all > the information I can find on the symptoms,etc of cirrhosis and hepatic > encephalopathy. What type of medical specialist deals with this illness? > > Thank you, this communication is wonderful, god bless > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 8:44:00 PM > Subject: Re: need to vent > > Jackie thanks for the encouragement. To the lady who spoke about > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > started > taking apart the house, pulling out nails, tearing off the walls in his own > little world. that was 1983. She had him committed, he wasnt drinking, but > his > ammonia levels were very high. He didnt even know she was there. But from > what > i have learned from the people on this forum and from watching my own > husbands > ammonia levels increase that he gets very tired and it can lead to longer > and > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet that > would give you some info. Just a thought. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 9:20:50 PM > Subject: Re: need to vent > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > operated on > my husband. I was telling him about this forum and he said it's the best > place > to learn, from real live people. My husband got social security disability > after his open heart surgery in 2004. He had lost his job in Sept. of 2003 > and > was getting unemployment. Ironically, his last unemployment check came the > day > before his open heart surgery. At that time he was 59 and I figured if he > applied for disability he would stand a good chance of getting it. Who > would > hire a 59 year old man with a host of health problems? It took awhile, and > thankfully, we had some savings we were living off of. Once he got his > disability it was retro-active from the date he became disabled. It sounds > like > your husband may get disability. I sure hope so. Maybe it will be > retro-active > like my husband's was. You will be ok. These things have a way of working > themselves out. > My husband is 65 now and it looks like we will be able to enjoy retirement. > He > got a good report from the surgeons today. His liver is functioning real > good > and they even decreased some of the meds. I'm keeping you and your husband > in > my prayers. Let me hear from you soon. Jackie > > > > > Subject: Re: need to vent > To: livercirrhosissupport > Date: Wednesday, August 25, 2010, 9:00 PM > > Hi everyone, I am glad to find this group and unsure how to navigate it. > Hopefully u all can give me some insight. My husband was admitted to the > hospital for 4 days in July. He was told prior to this that he has > cirhossis > and Hepatitis C. His enzymes are up and down. His liver specialist said > that > even though he isnt drinking, they will fluctuate. His white cells and > platelets are very low. Too low for the interferon and ribo shots. He is > using lactulose for the ammonia levels. they were at 77 while in the > hospital > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > tired all the time, he sleeps so much. His liver specialist said that a med > rate of 16 he would need a liver transplant. His med rate is 14. He has > applied for disability. What should I expect.? Hes had an ultrasound, all > of > the labs, and x rays. we are waiting on the results. In any case we were > very > stunned by the news that he is almost at the point of a liver transplant. > Can > someone tell me some of the symptoms, outcomes, prognosis (which i realize > is > different in each case) will he be tired like this all the time. He is 54 > years > old. It doesnt seem like anything can be done, except control the side > effects, > like leg swelling and infection. any input would be appreciate. Thanks > Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 24, 2010 9:53:54 PM > Subject: Re: need to vent > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i > am > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > want > > > scan > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > forgets i > > > fed > > > > > him and skyler the grandson living with us, i found his empty glass > of > > > in > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > grandaughters birthday but its sunday, we went to her party he > doesnt > > > > > remeber it. like i said i am pissed or call it scared what ever it > is i > > > am > > > > > it. my newest grandbaby conts. to do good then bad....to be > expected > > > for a > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > out > > > ...hes > > > > > a boy and for some reason its different than the girls...hes in > time > > > out > > > > > right now....am i to hard on him...or is he to stubborn i dont > know. > > > the > > > > > tears rolling down my face says it all. i am tired but i have to > cont. > > > on i > > > > > have no choice in any of this. if i had my choice i would be at the > > > ocean > > > > > watching the waves lap the shore...eating at cock of the walk with > > > elsie and > > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > > ....??????? really makes me want a glass of wine, but i live to far > > > from > > > > > town and its sunday and i cant get any lol. whys life so messed > > > up...what > > > > > did i do to deserve all this crap???? should i walk away and tell > them > > > all > > > > > do it yourself??? should i just suck it up ,drink water and drive > on > > > soldier > > > > > ???? i know this is my life, for whatever reason these are the > cards > > > dealt > > > > > to me, and i will find away to stand. but right now i am pissy i am > sad > > > i > > > > > miss my life the way it was. i am sorry but if i told anyone in my > > > family > > > > > the way i feel they would blame me for enabling everyone. you all > and > > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > > sugarcoat > > > > > the facts or blow smoke up my butt. i love you all and just needed > to > > > get > > > > > this off my chest cause i have been one angry chick all week cause > i > > > dont > > > > > know where these feelings are supposed to go. i am angry with the > sick > > > ones > > > > > the stupid ones and the ones who just dont give a crap. i wanna lay > in > > > the > > > > > sun with a glass of something...even water lol. in my hand soaking > up > > > the > > > > > rays, without a care in the world....but life wont let me. who > wouldnt > > > be > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > its > > > me > > > > > against all of them.... when will it be my turn? i know that sounds > > > selfish > > > > > but i feel selfish right now. whats god...the universe trying to > tell > > > me? > > > > > well just spit it out already i will do what i need to but i am > tired > > > for > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Group Email: livercirrhosissupport > > > > > web address: > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Laurinda, Wouldnt that mean that if it was found to be a " medical conditon " that was out of his control, that would make it involuntary? ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 4:34:03 PM Subject: Re: need to vent Jan & Bobby, Here's a new one I was asked today by the prosecutor " where does it say that cirrhosis causes violent murder behavior? " I know it causes confusion, comas, disorientation, etc. have you heard of anyone actually killing another because of the illness or where can I find something in writing that refers to violent behavior? Can someone go insane from cirrhosis? Jan you asked what I wanted done, it's that he be locked up for his natural life (forever), no chance of parole. They the court system want to send to the mental hospital where he could stand the chance of being released once they determined he is restored mentally. They can't be serious, this man is not mentally ill. If it's not cirrhosis then how can someone go bipolar in just three days? I realize you may not have the answer for this one. Thank you for all your concern and help. Many Blessings, Laurinda ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:17:25 AM Subject: Re: need to vent I'd have to agree with Jan. I think marajuana isnt going to help the situation at all. This is very very scary for someone with this disease to contemplate. And in my opinion, Jan, you were supposed to get full SSDI long ago. Some times people fall through the cracks. I sure wish it hadnt been you. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, August 29, 2010 11:34:37 PM Subject: Re: need to vent If he was receiving disability for cirrhosis in 2005, he must be toward the end of progression of the disease. I was turned down for disability after that date when I was in stage four and also had a number of other serious medical conditions. As to the marijuanna, some prescriptions meds are very bad for the liver even before the liver is damaged, so I am sure the marijuanna wouldn't helphis liver, might help with pain, but sounds like he just has an addictive behavior and just substituted one for another. You haven't said which way you want to go but since he tried to kill you and did kill your father I am taking it that you want him locked up for as long as possilbe. I am not aware what the sentencing guidelines are for insanity, Could you tell us more about his physical condition then and now. Before I was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in MN, aLSO WENT looking for some oreos I believed we had just purchased a couple of days before and accused Ed of eating them all up and wouldn't believe we hadn't just bought them until he showed me the receipt for 2 weeks before. Since my diagnosis and orders to cut down on protein, I haven't had any real trouble. That was more than 10 years ago Other people have been very careful and gone down hill much faster. So we can't say how long he will live. If his problem is cirrhosis and they commit him for bipolar, I am sure those meds won't make his cirrhosis improve.It is possible he has both. Remember, I am not a doctor just been living with this disease for quite a while now. For others it is different. Jan On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < laurinda.cumming@...> wrote: > Bobby, > > He has no previous criminal history to my knowledge, however does have > previous > violence including > acts of anger/temper, domestic, etc., previous arrests. I'm being told > these > arrests are too old, prior to 2003, murder > occurred in 2009. He definitely has a history. I met him in 2005, no > indication > of having any psychosis. No prior mental health > issues or treatment. Was receiving disability income for the cirrhosis. > What about illegal drugs like marijuana smoking added to having > Cirrhosis? No > prescribed meds taken. > > Thanks again, > Blessings, > Laurinda > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 4:52:30 PM > Subject: Re: need to vent > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. Gfr > stands for Glomerular filtration rate, and > > is the best overall index of kidney function. > The question is does the person have any other criminal history or prior > history > > of violence, etc. > Because there is no telling what he thought he was doing, or what he was > thinking when he did this. > > I once found my own loved one talking to me on the television remote > control > when I walked in to her room at the nursing home. Her cell phone was right > there > > on a necklace, within reach, but she was completely un aware, and thought > the > remote was the phone. > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 8:12:07 AM > Subject: Re: need to vent > > Bobby, > > Thank you. My concern is the temporary insanity, can that really be caused > by Cirrhosis? What is GFR? Are there any other forms of testing? His > symptoms > in 2003 was severe ascites and edema, no jaundice or itching. He had > chronic > alcoholism from age 8 to 43. He does self induced daily vomiting, even > today. > Two days prior to the murder he was normal then the day before he starting > talking strange,etc. > > The attorneys want to claim guilty except insane because of " Bipolar " not > the > Cirrhosis. > Are these two often compared? This means he will be sent to the mental > hospital > and > have the potential of being released for cold blooded murder. At this point > this > > > is my > > major concern as he also attempted to murder me at that same time. Just so > you > know > a little more the person he murdered was my 83 yr helpless father. > > Thank you again so much for all your information, I can't tell you how > helpful > it is and > how grateful I am. > Oh I forgot can daily smoking marijuana be harmful to someone with > Cirrhosis? > Can that cause > > further symptoms. I would assume it does. He replaced the alcohol with this > drug, he needed > > the daily high. > > God Bless, > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 7:05:42 PM > Subject: Re: need to vent > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > insanity > > > which has been used frivolously should be considered if the person has no > other > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 8:09:22 AM > Subject: Re: need to vent > > Thank you again for all of the information, I have received more in last 12 > hours then > I have in 12 months. I have researched myself but not always sure what I'm > looking at > since this disease is new too me. > This link you just sent said " Agitation and mania can develop but are > uncommon " > > this is > why I get confused. > Can you please tell me what type of medical specialist deals with this > illness? > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 3:21:22 AM > Subject: Re: need to vent > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the same > as > portal systemic encephalopathy. The chart in the following article does > include > Anger, paranoia, or other bizarre behavior > > Please read this article for the best information. Love, Bobby > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > 0 (subclinical) > > Asymptomatic loss of cognitive abilities > > None > > 1 > > Sleep disturbances > > Impaired concentration > > Depression, anxiety, or irritability > > Monotone voice > > Tremor > > Poor handwriting > > Constructional apraxia > > 2 > > Drowsiness > > Disorientation > > Poor short-term memory > > Disinhibited behavior > > Ataxia > > Dysarthria > > Asterixis > > Automatisms (eg, yawning, blinking, sucking) > > 3 > > Somnolence > > Confusion > > Amnesia > > Anger, paranoia, or other bizarre behavior > > Nystagmus > > Muscular rigidity > > Hyperreflexia or hyporeflexia > > 4 > > Coma > > Dilated pupils > > Oculocephalic or oculovestibular reflexes > > Decerebrate posturing > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 10:53:46 PM > Subject: Re: need to vent > > Bonnie, > > Thank you, I have looked up " wet brain " , from my understanding it says > that a person becomes confused and slips into a coma, they don't violently > murder someone. Has anyone heard of someone killing another? I need all > the information I can find on the symptoms,etc of cirrhosis and hepatic > encephalopathy. What type of medical specialist deals with this illness? > > Thank you, this communication is wonderful, god bless > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 8:44:00 PM > Subject: Re: need to vent > > Jackie thanks for the encouragement. To the lady who spoke about > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > started > taking apart the house, pulling out nails, tearing off the walls in his own > little world. that was 1983. She had him committed, he wasnt drinking, but > his > ammonia levels were very high. He didnt even know she was there. But from > what > i have learned from the people on this forum and from watching my own > husbands > ammonia levels increase that he gets very tired and it can lead to longer > and > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet that > would give you some info. Just a thought. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 9:20:50 PM > Subject: Re: need to vent > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > operated on > my husband. I was telling him about this forum and he said it's the best > place > to learn, from real live people. My husband got social security disability > after his open heart surgery in 2004. He had lost his job in Sept. of 2003 > and > was getting unemployment. Ironically, his last unemployment check came the > day > before his open heart surgery. At that time he was 59 and I figured if he > applied for disability he would stand a good chance of getting it. Who > would > hire a 59 year old man with a host of health problems? It took awhile, and > thankfully, we had some savings we were living off of. Once he got his > disability it was retro-active from the date he became disabled. It sounds > like > your husband may get disability. I sure hope so. Maybe it will be > retro-active > like my husband's was. You will be ok. These things have a way of working > themselves out. > My husband is 65 now and it looks like we will be able to enjoy retirement. > He > got a good report from the surgeons today. His liver is functioning real > good > and they even decreased some of the meds. I'm keeping you and your husband > in > my prayers. Let me hear from you soon. Jackie > > > > > Subject: Re: need to vent > To: livercirrhosissupport > Date: Wednesday, August 25, 2010, 9:00 PM > > Hi everyone, I am glad to find this group and unsure how to navigate it. > Hopefully u all can give me some insight. My husband was admitted to the > hospital for 4 days in July. He was told prior to this that he has > cirhossis > and Hepatitis C. His enzymes are up and down. His liver specialist said > that > even though he isnt drinking, they will fluctuate. His white cells and > platelets are very low. Too low for the interferon and ribo shots. He is > using lactulose for the ammonia levels. they were at 77 while in the > hospital > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > tired all the time, he sleeps so much. His liver specialist said that a med > rate of 16 he would need a liver transplant. His med rate is 14. He has > applied for disability. What should I expect.? Hes had an ultrasound, all > of > the labs, and x rays. we are waiting on the results. In any case we were > very > stunned by the news that he is almost at the point of a liver transplant. > Can > someone tell me some of the symptoms, outcomes, prognosis (which i realize > is > different in each case) will he be tired like this all the time. He is 54 > years > old. It doesnt seem like anything can be done, except control the side > effects, > like leg swelling and infection. any input would be appreciate. Thanks > Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 24, 2010 9:53:54 PM > Subject: Re: need to vent > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i > am > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > want > > > scan > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > forgets i > > > fed > > > > > him and skyler the grandson living with us, i found his empty glass > of > > > in > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > grandaughters birthday but its sunday, we went to her party he > doesnt > > > > > remeber it. like i said i am pissed or call it scared what ever it > is i > > > am > > > > > it. my newest grandbaby conts. to do good then bad....to be > expected > > > for a > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > out > > > ...hes > > > > > a boy and for some reason its different than the girls...hes in > time > > > out > > > > > right now....am i to hard on him...or is he to stubborn i dont > know. > > > the > > > > > tears rolling down my face says it all. i am tired but i have to > cont. > > > on i > > > > > have no choice in any of this. if i had my choice i would be at the > > > ocean > > > > > watching the waves lap the shore...eating at cock of the walk with > > > elsie and > > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > > ....??????? really makes me want a glass of wine, but i live to far > > > from > > > > > town and its sunday and i cant get any lol. whys life so messed > > > up...what > > > > > did i do to deserve all this crap???? should i walk away and tell > them > > > all > > > > > do it yourself??? should i just suck it up ,drink water and drive > on > > > soldier > > > > > ???? i know this is my life, for whatever reason these are the > cards > > > dealt > > > > > to me, and i will find away to stand. but right now i am pissy i am > sad > > > i > > > > > miss my life the way it was. i am sorry but if i told anyone in my > > > family > > > > > the way i feel they would blame me for enabling everyone. you all > and > > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > > sugarcoat > > > > > the facts or blow smoke up my butt. i love you all and just needed > to > > > get > > > > > this off my chest cause i have been one angry chick all week cause > i > > > dont > > > > > know where these feelings are supposed to go. i am angry with the > sick > > > ones > > > > > the stupid ones and the ones who just dont give a crap. i wanna lay > in > > > the > > > > > sun with a glass of something...even water lol. in my hand soaking > up > > > the > > > > > rays, without a care in the world....but life wont let me. who > wouldnt > > > be > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > its > > > me > > > > > against all of them.... when will it be my turn? i know that sounds > > > selfish > > > > > but i feel selfish right now. whats god...the universe trying to > tell > > > me? > > > > > well just spit it out already i will do what i need to but i am > tired > > > for > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Group Email: livercirrhosissupport > > > > > web address: > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Thanks Bonnie. It is really strange what you can find using Google search. I typed the words " Portal systemic encaphalopathy " and " murder " and " violence " , and got a slew of links I have not ever seen before. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 8:19:19 PM Subject: Re: need to vent Bob, That was a fantastic link. Very informative too. Hopefully that will help her with the case. Bonnie ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 7:53:57 PM Subject: Re: need to vent Here is a paper from the US government library. Maybe the answer you seek is in here. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2501102/pdf/postmedj00527-0031.pdf ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:34:03 PM Subject: Re: need to vent Jan & Bobby, Here's a new one I was asked today by the prosecutor " where does it say that cirrhosis causes violent murder behavior? " I know it causes confusion, comas, disorientation, etc. have you heard of anyone actually killing another because of the illness or where can I find something in writing that refers to violent behavior? Can someone go insane from cirrhosis? Jan you asked what I wanted done, it's that he be locked up for his natural life (forever), no chance of parole. They the court system want to send to the mental hospital where he could stand the chance of being released once they determined he is restored mentally. They can't be serious, this man is not mentally ill. If it's not cirrhosis then how can someone go bipolar in just three days? I realize you may not have the answer for this one. Thank you for all your concern and help. Many Blessings, Laurinda ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:17:25 AM Subject: Re: need to vent I'd have to agree with Jan. I think marajuana isnt going to help the situation at all. This is very very scary for someone with this disease to contemplate. And in my opinion, Jan, you were supposed to get full SSDI long ago. Some times people fall through the cracks. I sure wish it hadnt been you. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, August 29, 2010 11:34:37 PM Subject: Re: need to vent If he was receiving disability for cirrhosis in 2005, he must be toward the end of progression of the disease. I was turned down for disability after that date when I was in stage four and also had a number of other serious medical conditions. As to the marijuanna, some prescriptions meds are very bad for the liver even before the liver is damaged, so I am sure the marijuanna wouldn't helphis liver, might help with pain, but sounds like he just has an addictive behavior and just substituted one for another. You haven't said which way you want to go but since he tried to kill you and did kill your father I am taking it that you want him locked up for as long as possilbe. I am not aware what the sentencing guidelines are for insanity, Could you tell us more about his physical condition then and now. Before I was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in MN, aLSO WENT looking for some oreos I believed we had just purchased a couple of days before and accused Ed of eating them all up and wouldn't believe we hadn't just bought them until he showed me the receipt for 2 weeks before. Since my diagnosis and orders to cut down on protein, I haven't had any real trouble. That was more than 10 years ago Other people have been very careful and gone down hill much faster. So we can't say how long he will live. If his problem is cirrhosis and they commit him for bipolar, I am sure those meds won't make his cirrhosis improve.It is possible he has both. Remember, I am not a doctor just been living with this disease for quite a while now. For others it is different. Jan On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < laurinda.cumming@...> wrote: > Bobby, > > He has no previous criminal history to my knowledge, however does have > previous > violence including > acts of anger/temper, domestic, etc., previous arrests. I'm being told > these > arrests are too old, prior to 2003, murder > occurred in 2009. He definitely has a history. I met him in 2005, no > indication > of having any psychosis. No prior mental health > issues or treatment. Was receiving disability income for the cirrhosis. > What about illegal drugs like marijuana smoking added to having > Cirrhosis? No > prescribed meds taken. > > Thanks again, > Blessings, > Laurinda > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 4:52:30 PM > Subject: Re: need to vent > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. Gfr > stands for Glomerular filtration rate, and > > is the best overall index of kidney function. > The question is does the person have any other criminal history or prior > history > > of violence, etc. > Because there is no telling what he thought he was doing, or what he was > thinking when he did this. > > I once found my own loved one talking to me on the television remote > control > when I walked in to her room at the nursing home. Her cell phone was right > there > > on a necklace, within reach, but she was completely un aware, and thought > the > remote was the phone. > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 8:12:07 AM > Subject: Re: need to vent > > Bobby, > > Thank you. My concern is the temporary insanity, can that really be caused > by Cirrhosis? What is GFR? Are there any other forms of testing? His > symptoms > in 2003 was severe ascites and edema, no jaundice or itching. He had > chronic > alcoholism from age 8 to 43. He does self induced daily vomiting, even > today. > Two days prior to the murder he was normal then the day before he starting > talking strange,etc. > > The attorneys want to claim guilty except insane because of " Bipolar " not > the > Cirrhosis. > Are these two often compared? This means he will be sent to the mental > hospital > and > have the potential of being released for cold blooded murder. At this point > this > > > is my > > major concern as he also attempted to murder me at that same time. Just so > you > know > a little more the person he murdered was my 83 yr helpless father. > > Thank you again so much for all your information, I can't tell you how > helpful > it is and > how grateful I am. > Oh I forgot can daily smoking marijuana be harmful to someone with > Cirrhosis? > Can that cause > > further symptoms. I would assume it does. He replaced the alcohol with this > drug, he needed > > the daily high. > > God Bless, > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 7:05:42 PM > Subject: Re: need to vent > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > insanity > > > which has been used frivolously should be considered if the person has no > other > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 8:09:22 AM > Subject: Re: need to vent > > Thank you again for all of the information, I have received more in last 12 > hours then > I have in 12 months. I have researched myself but not always sure what I'm > looking at > since this disease is new too me. > This link you just sent said " Agitation and mania can develop but are > uncommon " > > this is > why I get confused. > Can you please tell me what type of medical specialist deals with this > illness? > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 3:21:22 AM > Subject: Re: need to vent > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the same > as > portal systemic encephalopathy. The chart in the following article does > include > Anger, paranoia, or other bizarre behavior > > Please read this article for the best information. Love, Bobby > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > 0 (subclinical) > > Asymptomatic loss of cognitive abilities > > None > > 1 > > Sleep disturbances > > Impaired concentration > > Depression, anxiety, or irritability > > Monotone voice > > Tremor > > Poor handwriting > > Constructional apraxia > > 2 > > Drowsiness > > Disorientation > > Poor short-term memory > > Disinhibited behavior > > Ataxia > > Dysarthria > > Asterixis > > Automatisms (eg, yawning, blinking, sucking) > > 3 > > Somnolence > > Confusion > > Amnesia > > Anger, paranoia, or other bizarre behavior > > Nystagmus > > Muscular rigidity > > Hyperreflexia or hyporeflexia > > 4 > > Coma > > Dilated pupils > > Oculocephalic or oculovestibular reflexes > > Decerebrate posturing > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 10:53:46 PM > Subject: Re: need to vent > > Bonnie, > > Thank you, I have looked up " wet brain " , from my understanding it says > that a person becomes confused and slips into a coma, they don't violently > murder someone. Has anyone heard of someone killing another? I need all > the information I can find on the symptoms,etc of cirrhosis and hepatic > encephalopathy. What type of medical specialist deals with this illness? > > Thank you, this communication is wonderful, god bless > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 8:44:00 PM > Subject: Re: need to vent > > Jackie thanks for the encouragement. To the lady who spoke about > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > started > taking apart the house, pulling out nails, tearing off the walls in his own > little world. that was 1983. She had him committed, he wasnt drinking, but > his > ammonia levels were very high. He didnt even know she was there. But from > what > i have learned from the people on this forum and from watching my own > husbands > ammonia levels increase that he gets very tired and it can lead to longer > and > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet that > would give you some info. Just a thought. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 9:20:50 PM > Subject: Re: need to vent > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > operated on > my husband. I was telling him about this forum and he said it's the best > place > to learn, from real live people. My husband got social security disability > after his open heart surgery in 2004. He had lost his job in Sept. of 2003 > and > was getting unemployment. Ironically, his last unemployment check came the > day > before his open heart surgery. At that time he was 59 and I figured if he > applied for disability he would stand a good chance of getting it. Who > would > hire a 59 year old man with a host of health problems? It took awhile, and > thankfully, we had some savings we were living off of. Once he got his > disability it was retro-active from the date he became disabled. It sounds > like > your husband may get disability. I sure hope so. Maybe it will be > retro-active > like my husband's was. You will be ok. These things have a way of working > themselves out. > My husband is 65 now and it looks like we will be able to enjoy retirement. > He > got a good report from the surgeons today. His liver is functioning real > good > and they even decreased some of the meds. I'm keeping you and your husband > in > my prayers. Let me hear from you soon. Jackie > > > > > Subject: Re: need to vent > To: livercirrhosissupport > Date: Wednesday, August 25, 2010, 9:00 PM > > Hi everyone, I am glad to find this group and unsure how to navigate it. > Hopefully u all can give me some insight. My husband was admitted to the > hospital for 4 days in July. He was told prior to this that he has > cirhossis > and Hepatitis C. His enzymes are up and down. His liver specialist said > that > even though he isnt drinking, they will fluctuate. His white cells and > platelets are very low. Too low for the interferon and ribo shots. He is > using lactulose for the ammonia levels. they were at 77 while in the > hospital > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > tired all the time, he sleeps so much. His liver specialist said that a med > rate of 16 he would need a liver transplant. His med rate is 14. He has > applied for disability. What should I expect.? Hes had an ultrasound, all > of > the labs, and x rays. we are waiting on the results. In any case we were > very > stunned by the news that he is almost at the point of a liver transplant. > Can > someone tell me some of the symptoms, outcomes, prognosis (which i realize > is > different in each case) will he be tired like this all the time. He is 54 > years > old. It doesnt seem like anything can be done, except control the side > effects, > like leg swelling and infection. any input would be appreciate. Thanks > Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 24, 2010 9:53:54 PM > Subject: Re: need to vent > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i > am > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > want > > > scan > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > forgets i > > > fed > > > > > him and skyler the grandson living with us, i found his empty glass > of > > > in > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > grandaughters birthday but its sunday, we went to her party he > doesnt > > > > > remeber it. like i said i am pissed or call it scared what ever it > is i > > > am > > > > > it. my newest grandbaby conts. to do good then bad....to be > expected > > > for a > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > out > > > ...hes > > > > > a boy and for some reason its different than the girls...hes in > time > > > out > > > > > right now....am i to hard on him...or is he to stubborn i dont > know. > > > the > > > > > tears rolling down my face says it all. i am tired but i have to > cont. > > > on i > > > > > have no choice in any of this. if i had my choice i would be at the > > > ocean > > > > > watching the waves lap the shore...eating at cock of the walk with > > > elsie and > > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > > ....??????? really makes me want a glass of wine, but i live to far > > > from > > > > > town and its sunday and i cant get any lol. whys life so messed > > > up...what > > > > > did i do to deserve all this crap???? should i walk away and tell > them > > > all > > > > > do it yourself??? should i just suck it up ,drink water and drive > on > > > soldier > > > > > ???? i know this is my life, for whatever reason these are the > cards > > > dealt > > > > > to me, and i will find away to stand. but right now i am pissy i am > sad > > > i > > > > > miss my life the way it was. i am sorry but if i told anyone in my > > > family > > > > > the way i feel they would blame me for enabling everyone. you all > and > > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > > sugarcoat > > > > > the facts or blow smoke up my butt. i love you all and just needed > to > > > get > > > > > this off my chest cause i have been one angry chick all week cause > i > > > dont > > > > > know where these feelings are supposed to go. i am angry with the > sick > > > ones > > > > > the stupid ones and the ones who just dont give a crap. i wanna lay > in > > > the > > > > > sun with a glass of something...even water lol. in my hand soaking > up > > > the > > > > > rays, without a care in the world....but life wont let me. who > wouldnt > > > be > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > its > > > me > > > > > against all of them.... when will it be my turn? i know that sounds > > > selfish > > > > > but i feel selfish right now. whats god...the universe trying to > tell > > > me? > > > > > well just spit it out already i will do what i need to but i am > tired > > > for > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Group Email: livercirrhosissupport > > > > > web address: > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 But Laurinda wants him in prison for the rest of his natural life. I don't think it would make much difference, if he has cirrhosis, doesn't look as if his natural life would be too long even if he went to a mental ward. They certainly couldn't cure him there. So they wouldn't be letting him out as safe to society. At least I hope not.Laurinda it sounds as if this is a boyfriend or ex husband of yours. Not meaning to be nosy, but what is the connection to bipolar/ is that just an idea of his lawyer?I don't know about your state, but in some states, a defendant who is found to be crazy, not able to control himself or help in his defence is tried for the crime if the medical personnel decide he is safe to leave the institution. BTW, I just received a letter from my insurance, *state " at least they didn't drop me, but if my cirrhosis was from Hep C, they wouldn't consider giving me a transplant. No restrictions on other causes for cirrhosis, but lots of other restrictions, looks like I am going to lose transportation and mileage for people who drive me. And tomorrow will be the first time I have used it. Jan On Mon, Aug 30, 2010 at 7:47 PM, Bob Aragon wrote: > Thanks Bonnie. It is really strange what you can find using Google search. > I > typed the words " Portal systemic encaphalopathy " and " murder " and > " violence " , > and got a slew of links I have not ever seen before. Love, Bobby > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Mon, August 30, 2010 8:19:19 PM > Subject: Re: need to vent > > > Bob, That was a fantastic link. Very informative too. Hopefully that will > help > > her with the case. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Mon, August 30, 2010 7:53:57 PM > Subject: Re: need to vent > > Here is a paper from the US government library. Maybe the answer you seek > is in > here. > > http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2501102/pdf/postmedj00527-0031.pdf > > ________________________________ > > To: livercirrhosissupport > Sent: Mon, August 30, 2010 3:34:03 PM > Subject: Re: need to vent > > Jan & Bobby, > > Here's a new one I was asked today by the prosecutor " where does it say > that > cirrhosis causes > violent murder behavior? " > I know it causes confusion, comas, disorientation, etc. have you heard of > anyone actually killing another because of the illness or where can > > I find something in writing that refers to violent behavior? Can someone > go > insane from cirrhosis? > Jan you asked what I wanted done, it's that he be locked up for his natural > life > > > (forever), no chance of parole. They > the court system want to send to the mental hospital where he could stand > the > chance of being released once they > determined he is restored mentally. They can't be serious, this man is not > mentally ill. > > If it's not cirrhosis then how can someone go bipolar in just three days? I > realize you may not have the answer for this one. > Thank you for all your concern and help. > > Many Blessings, > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Mon, August 30, 2010 3:17:25 AM > Subject: Re: need to vent > > I'd have to agree with Jan. I think marajuana isnt going to help the > situation > at all. This is very very scary for someone with this disease to > contemplate. > And in my opinion, Jan, you were supposed to get full SSDI long ago. Some > times > people fall through the cracks. I sure wish it hadnt been you. Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 11:34:37 PM > Subject: Re: need to vent > > If he was receiving disability for cirrhosis in 2005, he must be toward the > end of progression of the disease. I was turned down for disability after > that date when I was in stage four and also had a number of other serious > medical conditions. As to the marijuanna, some prescriptions meds are very > bad for the liver even before the liver is damaged, so I am sure the > marijuanna wouldn't helphis liver, might help with pain, but sounds like he > just has an addictive behavior and just substituted one for another. You > haven't said which way you want to go but since he tried to kill you and > did > kill your father I am taking it that you want him locked up for as long as > possilbe. I am not aware what the sentencing guidelines are for insanity, > Could you tell us more about his physical condition then and now. Before I > was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in > MN, aLSO WENT looking for some oreos I believed we had just purchased a > couple of days before and accused Ed of eating them all up and wouldn't > believe we hadn't just bought them until he showed me the receipt for 2 > weeks before. Since my diagnosis and orders to cut down on protein, I > haven't had any real trouble. That was more than 10 years ago Other people > have been very careful and gone down hill much faster. So we can't say how > long he will live. If his problem is cirrhosis and they commit him for > bipolar, I am sure those meds won't make his cirrhosis improve.It is > possible he has both. Remember, I am not a doctor just been living with > this disease for quite a while now. For others it is different. Jan > > On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < > laurinda.cumming@...> wrote: > > > Bobby, > > > > He has no previous criminal history to my knowledge, however does have > > previous > > violence including > > acts of anger/temper, domestic, etc., previous arrests. I'm being told > > these > > arrests are too old, prior to 2003, murder > > occurred in 2009. He definitely has a history. I met him in 2005, no > > indication > > of having any psychosis. No prior mental health > > issues or treatment. Was receiving disability income for the cirrhosis. > > What about illegal drugs like marijuana smoking added to having > > Cirrhosis? No > > prescribed meds taken. > > > > Thanks again, > > Blessings, > > Laurinda > > > > > > > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sun, August 29, 2010 4:52:30 PM > > Subject: Re: need to vent > > > > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. > Gfr > > stands for Glomerular filtration rate, and > > > > is the best overall index of kidney function. > > The question is does the person have any other criminal history or prior > > history > > > > of violence, etc. > > Because there is no telling what he thought he was doing, or what he was > > thinking when he did this. > > > > I once found my own loved one talking to me on the television remote > > control > > when I walked in to her room at the nursing home. Her cell phone was > right > > there > > > > on a necklace, within reach, but she was completely un aware, and thought > > the > > remote was the phone. > > Love, Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sun, August 29, 2010 8:12:07 AM > > Subject: Re: need to vent > > > > Bobby, > > > > Thank you. My concern is the temporary insanity, can that really be > caused > > by Cirrhosis? What is GFR? Are there any other forms of testing? His > > symptoms > > in 2003 was severe ascites and edema, no jaundice or itching. He had > > chronic > > alcoholism from age 8 to 43. He does self induced daily vomiting, even > > today. > > Two days prior to the murder he was normal then the day before he > starting > > talking strange,etc. > > > > The attorneys want to claim guilty except insane because of " Bipolar " not > > the > > Cirrhosis. > > Are these two often compared? This means he will be sent to the mental > > hospital > > and > > have the potential of being released for cold blooded murder. At this > point > > this > > > > > > is my > > > > major concern as he also attempted to murder me at that same time. Just > so > > you > > know > > a little more the person he murdered was my 83 yr helpless father. > > > > Thank you again so much for all your information, I can't tell you how > > helpful > > it is and > > how grateful I am. > > Oh I forgot can daily smoking marijuana be harmful to someone with > > Cirrhosis? > > Can that cause > > > > further symptoms. I would assume it does. He replaced the alcohol with > this > > drug, he needed > > > > the daily high. > > > > God Bless, > > Laurinda > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sat, August 28, 2010 7:05:42 PM > > Subject: Re: need to vent > > > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > > insanity > > > > > > which has been used frivolously should be considered if the person has no > > other > > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > > Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sat, August 28, 2010 8:09:22 AM > > Subject: Re: need to vent > > > > Thank you again for all of the information, I have received more in last > 12 > > hours then > > I have in 12 months. I have researched myself but not always sure what > I'm > > looking at > > since this disease is new too me. > > This link you just sent said " Agitation and mania can develop but are > > uncommon " > > > > this is > > why I get confused. > > Can you please tell me what type of medical specialist deals with this > > illness? > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sat, August 28, 2010 3:21:22 AM > > Subject: Re: need to vent > > > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the > same > > as > > portal systemic encephalopathy. The chart in the following article does > > include > > Anger, paranoia, or other bizarre behavior > > > > Please read this article for the best information. Love, Bobby > > > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > > > 0 (subclinical) > > > > Asymptomatic loss of cognitive abilities > > > > None > > > > 1 > > > > Sleep disturbances > > > > Impaired concentration > > > > Depression, anxiety, or irritability > > > > Monotone voice > > > > Tremor > > > > Poor handwriting > > > > Constructional apraxia > > > > 2 > > > > Drowsiness > > > > Disorientation > > > > Poor short-term memory > > > > Disinhibited behavior > > > > Ataxia > > > > Dysarthria > > > > Asterixis > > > > Automatisms (eg, yawning, blinking, sucking) > > > > 3 > > > > Somnolence > > > > Confusion > > > > Amnesia > > > > Anger, paranoia, or other bizarre behavior > > > > Nystagmus > > > > Muscular rigidity > > > > Hyperreflexia or hyporeflexia > > > > 4 > > > > Coma > > > > Dilated pupils > > > > Oculocephalic or oculovestibular reflexes > > > > Decerebrate posturing > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, August 27, 2010 10:53:46 PM > > Subject: Re: need to vent > > > > Bonnie, > > > > Thank you, I have looked up " wet brain " , from my understanding it says > > that a person becomes confused and slips into a coma, they don't > violently > > murder someone. Has anyone heard of someone killing another? I need all > > the information I can find on the symptoms,etc of cirrhosis and hepatic > > encephalopathy. What type of medical specialist deals with this illness? > > > > Thank you, this communication is wonderful, god bless > > Laurinda > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, August 27, 2010 8:44:00 PM > > Subject: Re: need to vent > > > > Jackie thanks for the encouragement. To the lady who spoke about > > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > > started > > taking apart the house, pulling out nails, tearing off the walls in his > own > > little world. that was 1983. She had him committed, he wasnt drinking, > but > > his > > ammonia levels were very high. He didnt even know she was there. But from > > what > > i have learned from the people on this forum and from watching my own > > husbands > > ammonia levels increase that he gets very tired and it can lead to longer > > and > > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet > that > > would give you some info. Just a thought. Bonnie > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, August 27, 2010 9:20:50 PM > > Subject: Re: need to vent > > > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > > operated on > > my husband. I was telling him about this forum and he said it's the best > > place > > to learn, from real live people. My husband got social security > disability > > after his open heart surgery in 2004. He had lost his job in Sept. of > 2003 > > and > > was getting unemployment. Ironically, his last unemployment check came > the > > day > > before his open heart surgery. At that time he was 59 and I figured if he > > applied for disability he would stand a good chance of getting it. Who > > would > > hire a 59 year old man with a host of health problems? It took awhile, > and > > thankfully, we had some savings we were living off of. Once he got his > > disability it was retro-active from the date he became disabled. It > sounds > > like > > your husband may get disability. I sure hope so. Maybe it will be > > retro-active > > like my husband's was. You will be ok. These things have a way of working > > themselves out. > > My husband is 65 now and it looks like we will be able to enjoy > retirement. > > He > > got a good report from the surgeons today. His liver is functioning real > > good > > and they even decreased some of the meds. I'm keeping you and your > husband > > in > > my prayers. Let me hear from you soon. Jackie > > > > > > > > > > Subject: Re: need to vent > > To: livercirrhosissupport > > Date: Wednesday, August 25, 2010, 9:00 PM > > > > Hi everyone, I am glad to find this group and unsure how to navigate it. > > Hopefully u all can give me some insight. My husband was admitted to the > > hospital for 4 days in July. He was told prior to this that he has > > cirhossis > > and Hepatitis C. His enzymes are up and down. His liver specialist said > > that > > even though he isnt drinking, they will fluctuate. His white cells and > > platelets are very low. Too low for the interferon and ribo shots. He is > > using lactulose for the ammonia levels. they were at 77 while in the > > hospital > > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > > tired all the time, he sleeps so much. His liver specialist said that a > med > > rate of 16 he would need a liver transplant. His med rate is 14. He has > > applied for disability. What should I expect.? Hes had an ultrasound, all > > of > > the labs, and x rays. we are waiting on the results. In any case we were > > very > > stunned by the news that he is almost at the point of a liver transplant. > > Can > > someone tell me some of the symptoms, outcomes, prognosis (which i > realize > > is > > different in each case) will he be tired like this all the time. He is 54 > > years > > old. It doesnt seem like anything can be done, except control the side > > effects, > > like leg swelling and infection. any input would be appreciate. Thanks > > Bonnie > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Tue, August 24, 2010 9:53:54 PM > > Subject: Re: need to vent > > > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. > i > > am > > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > > want > > > > scan > > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > > forgets i > > > > fed > > > > > > him and skyler the grandson living with us, i found his empty > glass > > of > > > > in > > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > > grandaughters birthday but its sunday, we went to her party he > > doesnt > > > > > > remeber it. like i said i am pissed or call it scared what ever > it > > is i > > > > am > > > > > > it. my newest grandbaby conts. to do good then bad....to be > > expected > > > > for a > > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > > out > > > > ...hes > > > > > > a boy and for some reason its different than the girls...hes in > > time > > > > out > > > > > > right now....am i to hard on him...or is he to stubborn i dont > > know. > > > > the > > > > > > tears rolling down my face says it all. i am tired but i have to > > cont. > > > > on i > > > > > > have no choice in any of this. if i had my choice i would be at > the > > > > ocean > > > > > > watching the waves lap the shore...eating at cock of the walk > with > > > > elsie and > > > > > > roger...but i have no choice. i am here i am mad i am confused i > am > > > > > > ....??????? really makes me want a glass of wine, but i live to > far > > > > from > > > > > > town and its sunday and i cant get any lol. whys life so messed > > > > up...what > > > > > > did i do to deserve all this crap???? should i walk away and tell > > them > > > > all > > > > > > do it yourself??? should i just suck it up ,drink water and drive > > on > > > > soldier > > > > > > ???? i know this is my life, for whatever reason these are the > > cards > > > > dealt > > > > > > to me, and i will find away to stand. but right now i am pissy i > am > > sad > > > > i > > > > > > miss my life the way it was. i am sorry but if i told anyone in > my > > > > family > > > > > > the way i feel they would blame me for enabling everyone. you all > > and > > > > > > elsie...aka mae mae are they only ones i have to vent to that > dont > > > > sugarcoat > > > > > > the facts or blow smoke up my butt. i love you all and just > needed > > to > > > > get > > > > > > this off my chest cause i have been one angry chick all week > cause > > i > > > > dont > > > > > > know where these feelings are supposed to go. i am angry with the > > sick > > > > ones > > > > > > the stupid ones and the ones who just dont give a crap. i wanna > lay > > in > > > > the > > > > > > sun with a glass of something...even water lol. in my hand > soaking > > up > > > > the > > > > > > rays, without a care in the world....but life wont let me. who > > wouldnt > > > > be > > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > > its > > > > me > > > > > > against all of them.... when will it be my turn? i know that > sounds > > > > selfish > > > > > > but i feel selfish right now. whats god...the universe trying to > > tell > > > > me? > > > > > > well just spit it out already i will do what i need to but i am > > tired > > > > for > > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > Group Email: livercirrhosissupport > > > > > > web address: > > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Bonnie, The Guilty Except Insane statute in Ariz says, " Mental disease or defect does not include disorders that result from acute voluntary intoxication or withdrawal from alcohol or drugs, character defects, psychosexual disorders or impulse control disorders. "   The prosecutor has said " He didn't have alcohol in his blood at the time of the murder. " Therefore this does not apply So I guess you tell me your opinion. I certainly have mine. The states/prosecutor one expert a Psychologist are saying he was insane at the time due to a Bipolar. Again no documented prior history. You can certainly correct me if I'm wrong but in my opinion if you have cirrhosis as the result of being an alcoholic for 35 years, that would be considered voluntary. Not to mention that the only reason he quit drinking was he developed severe ascites and was then diagnosed with the cirrhosis. He has had no medical assistance being AA or meds, his way of dealing with the withdrawal was to substitute the high with daily uses of marijuana. As you can see I am desperately trying to find out all I can. I do not trust the criminal justice system or the people involved. Many Blessings, Laurinda  ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 7:21:51 PM Subject: Re: need to vent  Laurinda, Wouldnt that mean that if it was found to be a " medical conditon " that was out of his control, that would make it involuntary? ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 4:34:03 PM Subject: Re: need to vent Jan & Bobby, Here's a new one I was asked today by the prosecutor " where does it say that cirrhosis causes violent murder behavior? " I know it causes confusion, comas, disorientation, etc. have you heard of anyone actually killing another because of the illness or where can I find something in writing that refers to violent behavior? Can someone go insane from cirrhosis? Jan you asked what I wanted done, it's that he be locked up for his natural life (forever), no chance of parole. They the court system want to send to the mental hospital where he could stand the chance of being released once they determined he is restored mentally. They can't be serious, this man is not mentally ill. If it's not cirrhosis then how can someone go bipolar in just three days? I realize you may not have the answer for this one. Thank you for all your concern and help. Many Blessings, Laurinda ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:17:25 AM Subject: Re: need to vent I'd have to agree with Jan. I think marajuana isnt going to help the situation at all. This is very very scary for someone with this disease to contemplate. And in my opinion, Jan, you were supposed to get full SSDI long ago. Some times people fall through the cracks. I sure wish it hadnt been you. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, August 29, 2010 11:34:37 PM Subject: Re: need to vent If he was receiving disability for cirrhosis in 2005, he must be toward the end of progression of the disease. I was turned down for disability after that date when I was in stage four and also had a number of other serious medical conditions. As to the marijuanna, some prescriptions meds are very bad for the liver even before the liver is damaged, so I am sure the marijuanna wouldn't helphis liver, might help with pain, but sounds like he just has an addictive behavior and just substituted one for another. You haven't said which way you want to go but since he tried to kill you and did kill your father I am taking it that you want him locked up for as long as possilbe. I am not aware what the sentencing guidelines are for insanity, Could you tell us more about his physical condition then and now. Before I was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in MN, aLSO WENT looking for some oreos I believed we had just purchased a couple of days before and accused Ed of eating them all up and wouldn't believe we hadn't just bought them until he showed me the receipt for 2 weeks before. Since my diagnosis and orders to cut down on protein, I haven't had any real trouble. That was more than 10 years ago Other people have been very careful and gone down hill much faster. So we can't say how long he will live. If his problem is cirrhosis and they commit him for bipolar, I am sure those meds won't make his cirrhosis improve.It is possible he has both. Remember, I am not a doctor just been living with this disease for quite a while now. For others it is different. Jan On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < laurinda.cumming@...> wrote: > Bobby, > > He has no previous criminal history to my knowledge, however does have > previous > violence including > acts of anger/temper, domestic, etc., previous arrests. I'm being told > these > arrests are too old, prior to 2003, murder > occurred in 2009. He definitely has a history. I met him in 2005, no > indication > of having any psychosis. No prior mental health > issues or treatment. Was receiving disability income for the cirrhosis. > What about illegal drugs like marijuana smoking added to having > Cirrhosis? No > prescribed meds taken. > > Thanks again, > Blessings, > Laurinda > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 4:52:30 PM > Subject: Re: need to vent > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. Gfr > stands for Glomerular filtration rate, and > > is the best overall index of kidney function. > The question is does the person have any other criminal history or prior > history > > of violence, etc. > Because there is no telling what he thought he was doing, or what he was > thinking when he did this. > > I once found my own loved one talking to me on the television remote > control > when I walked in to her room at the nursing home. Her cell phone was right > there > > on a necklace, within reach, but she was completely un aware, and thought > the > remote was the phone. > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 8:12:07 AM > Subject: Re: need to vent > > Bobby, > > Thank you. My concern is the temporary insanity, can that really be caused > by Cirrhosis? What is GFR? Are there any other forms of testing? His > symptoms > in 2003 was severe ascites and edema, no jaundice or itching. He had > chronic > alcoholism from age 8 to 43. He does self induced daily vomiting, even > today. > Two days prior to the murder he was normal then the day before he starting > talking strange,etc. > > The attorneys want to claim guilty except insane because of " Bipolar " not > the > Cirrhosis. > Are these two often compared? This means he will be sent to the mental > hospital > and > have the potential of being released for cold blooded murder. At this point > this > > > is my > > major concern as he also attempted to murder me at that same time. Just so > you > know > a little more the person he murdered was my 83 yr helpless father. > > Thank you again so much for all your information, I can't tell you how > helpful > it is and > how grateful I am. > Oh I forgot can daily smoking marijuana be harmful to someone with > Cirrhosis? > Can that cause > > further symptoms. I would assume it does. He replaced the alcohol with this > drug, he needed > > the daily high. > > God Bless, > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 7:05:42 PM > Subject: Re: need to vent > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > insanity > > > which has been used frivolously should be considered if the person has no > other > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 8:09:22 AM > Subject: Re: need to vent > > Thank you again for all of the information, I have received more in last 12 > hours then > I have in 12 months. I have researched myself but not always sure what I'm > looking at > since this disease is new too me. > This link you just sent said " Agitation and mania can develop but are > uncommon " > > this is > why I get confused. > Can you please tell me what type of medical specialist deals with this > illness? > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 3:21:22 AM > Subject: Re: need to vent > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the same > as > portal systemic encephalopathy. The chart in the following article does > include > Anger, paranoia, or other bizarre behavior > > Please read this article for the best information. Love, Bobby > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > 0 (subclinical) > > Asymptomatic loss of cognitive abilities > > None > > 1 > > Sleep disturbances > > Impaired concentration > > Depression, anxiety, or irritability > > Monotone voice > > Tremor > > Poor handwriting > > Constructional apraxia > > 2 > > Drowsiness > > Disorientation > > Poor short-term memory > > Disinhibited behavior > > Ataxia > > Dysarthria > > Asterixis > > Automatisms (eg, yawning, blinking, sucking) > > 3 > > Somnolence > > Confusion > > Amnesia > > Anger, paranoia, or other bizarre behavior > > Nystagmus > > Muscular rigidity > > Hyperreflexia or hyporeflexia > > 4 > > Coma > > Dilated pupils > > Oculocephalic or oculovestibular reflexes > > Decerebrate posturing > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 10:53:46 PM > Subject: Re: need to vent > > Bonnie, > > Thank you, I have looked up " wet brain " , from my understanding it says > that a person becomes confused and slips into a coma, they don't violently > murder someone. Has anyone heard of someone killing another? I need all > the information I can find on the symptoms,etc of cirrhosis and hepatic > encephalopathy. What type of medical specialist deals with this illness? > > Thank you, this communication is wonderful, god bless > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 8:44:00 PM > Subject: Re: need to vent > > Jackie thanks for the encouragement. To the lady who spoke about > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > started > taking apart the house, pulling out nails, tearing off the walls in his own > little world. that was 1983. She had him committed, he wasnt drinking, but > his > ammonia levels were very high. He didnt even know she was there. But from > what > i have learned from the people on this forum and from watching my own > husbands > ammonia levels increase that he gets very tired and it can lead to longer > and > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet that > would give you some info. Just a thought. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 9:20:50 PM > Subject: Re: need to vent > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > operated on > my husband. I was telling him about this forum and he said it's the best > place > to learn, from real live people. My husband got social security disability > after his open heart surgery in 2004. He had lost his job in Sept. of 2003 > and > was getting unemployment. Ironically, his last unemployment check came the > day > before his open heart surgery. At that time he was 59 and I figured if he > applied for disability he would stand a good chance of getting it. Who > would > hire a 59 year old man with a host of health problems? It took awhile, and > thankfully, we had some savings we were living off of. Once he got his > disability it was retro-active from the date he became disabled. It sounds > like > your husband may get disability. I sure hope so. Maybe it will be > retro-active > like my husband's was. You will be ok. These things have a way of working > themselves out. > My husband is 65 now and it looks like we will be able to enjoy retirement. > He > got a good report from the surgeons today. His liver is functioning real > good > and they even decreased some of the meds. I'm keeping you and your husband > in > my prayers. Let me hear from you soon. Jackie > > > > > Subject: Re: need to vent > To: livercirrhosissupport > Date: Wednesday, August 25, 2010, 9:00 PM > > Hi everyone, I am glad to find this group and unsure how to navigate it. > Hopefully u all can give me some insight. My husband was admitted to the > hospital for 4 days in July. He was told prior to this that he has > cirhossis > and Hepatitis C. His enzymes are up and down. His liver specialist said > that > even though he isnt drinking, they will fluctuate. His white cells and > platelets are very low. Too low for the interferon and ribo shots. He is > using lactulose for the ammonia levels. they were at 77 while in the > hospital > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > tired all the time, he sleeps so much. His liver specialist said that a med > rate of 16 he would need a liver transplant. His med rate is 14. He has > applied for disability. What should I expect.? Hes had an ultrasound, all > of > the labs, and x rays. we are waiting on the results. In any case we were > very > stunned by the news that he is almost at the point of a liver transplant. > Can > someone tell me some of the symptoms, outcomes, prognosis (which i realize > is > different in each case) will he be tired like this all the time. He is 54 > years > old. It doesnt seem like anything can be done, except control the side > effects, > like leg swelling and infection. any input would be appreciate. Thanks > Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 24, 2010 9:53:54 PM > Subject: Re: need to vent > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i > am > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > want > > > scan > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > forgets i > > > fed > > > > > him and skyler the grandson living with us, i found his empty glass > of > > > in > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > grandaughters birthday but its sunday, we went to her party he > doesnt > > > > > remeber it. like i said i am pissed or call it scared what ever it > is i > > > am > > > > > it. my newest grandbaby conts. to do good then bad....to be > expected > > > for a > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > out > > > ...hes > > > > > a boy and for some reason its different than the girls...hes in > time > > > out > > > > > right now....am i to hard on him...or is he to stubborn i dont > know. > > > the > > > > > tears rolling down my face says it all. i am tired but i have to > cont. > > > on i > > > > > have no choice in any of this. if i had my choice i would be at the > > > ocean > > > > > watching the waves lap the shore...eating at cock of the walk with > > > elsie and > > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > > ....??????? really makes me want a glass of wine, but i live to far > > > from > > > > > town and its sunday and i cant get any lol. whys life so messed > > > up...what > > > > > did i do to deserve all this crap???? should i walk away and tell > them > > > all > > > > > do it yourself??? should i just suck it up ,drink water and drive > on > > > soldier > > > > > ???? i know this is my life, for whatever reason these are the > cards > > > dealt > > > > > to me, and i will find away to stand. but right now i am pissy i am > sad > > > i > > > > > miss my life the way it was. i am sorry but if i told anyone in my > > > family > > > > > the way i feel they would blame me for enabling everyone. you all > and > > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > > sugarcoat > > > > > the facts or blow smoke up my butt. i love you all and just needed > to > > > get > > > > > this off my chest cause i have been one angry chick all week cause > i > > > dont > > > > > know where these feelings are supposed to go. i am angry with the > sick > > > ones > > > > > the stupid ones and the ones who just dont give a crap. i wanna lay > in > > > the > > > > > sun with a glass of something...even water lol. in my hand soaking > up > > > the > > > > > rays, without a care in the world....but life wont let me. who > wouldnt > > > be > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > its > > > me > > > > > against all of them.... when will it be my turn? i know that sounds > > > selfish > > > > > but i feel selfish right now. whats god...the universe trying to > tell > > > me? > > > > > well just spit it out already i will do what i need to but i am > tired > > > for > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Group Email: livercirrhosissupport > > > > > web address: > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Yes I agree, thank you Bobby. I'm now just trying to figure how I approach this with the prosecution as he always tears every theory down, unless it comes from his one psychologist " expert " to quote him.  He refuses to contact a cirrhosis specialist/expert or any other doctor for further evaluation. To again quote him " What will the jury think if he did " ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 7:47:24 PM Subject: Re: need to vent  Thanks Bonnie. It is really strange what you can find using Google search. I typed the words " Portal systemic encaphalopathy " and " murder " and " violence " , and got a slew of links I have not ever seen before. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 8:19:19 PM Subject: Re: need to vent Bob, That was a fantastic link. Very informative too. Hopefully that will help her with the case. Bonnie ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 7:53:57 PM Subject: Re: need to vent Here is a paper from the US government library. Maybe the answer you seek is in here. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2501102/pdf/postmedj00527-0031.pdf ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:34:03 PM Subject: Re: need to vent Jan & Bobby, Here's a new one I was asked today by the prosecutor " where does it say that cirrhosis causes violent murder behavior? " I know it causes confusion, comas, disorientation, etc. have you heard of anyone actually killing another because of the illness or where can I find something in writing that refers to violent behavior? Can someone go insane from cirrhosis? Jan you asked what I wanted done, it's that he be locked up for his natural life (forever), no chance of parole. They the court system want to send to the mental hospital where he could stand the chance of being released once they determined he is restored mentally. They can't be serious, this man is not mentally ill. If it's not cirrhosis then how can someone go bipolar in just three days? I realize you may not have the answer for this one. Thank you for all your concern and help. Many Blessings, Laurinda ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:17:25 AM Subject: Re: need to vent I'd have to agree with Jan. I think marajuana isnt going to help the situation at all. This is very very scary for someone with this disease to contemplate. And in my opinion, Jan, you were supposed to get full SSDI long ago. Some times people fall through the cracks. I sure wish it hadnt been you. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, August 29, 2010 11:34:37 PM Subject: Re: need to vent If he was receiving disability for cirrhosis in 2005, he must be toward the end of progression of the disease. I was turned down for disability after that date when I was in stage four and also had a number of other serious medical conditions. As to the marijuanna, some prescriptions meds are very bad for the liver even before the liver is damaged, so I am sure the marijuanna wouldn't helphis liver, might help with pain, but sounds like he just has an addictive behavior and just substituted one for another. You haven't said which way you want to go but since he tried to kill you and did kill your father I am taking it that you want him locked up for as long as possilbe. I am not aware what the sentencing guidelines are for insanity, Could you tell us more about his physical condition then and now. Before I was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in MN, aLSO WENT looking for some oreos I believed we had just purchased a couple of days before and accused Ed of eating them all up and wouldn't believe we hadn't just bought them until he showed me the receipt for 2 weeks before. Since my diagnosis and orders to cut down on protein, I haven't had any real trouble. That was more than 10 years ago Other people have been very careful and gone down hill much faster. So we can't say how long he will live. If his problem is cirrhosis and they commit him for bipolar, I am sure those meds won't make his cirrhosis improve.It is possible he has both. Remember, I am not a doctor just been living with this disease for quite a while now. For others it is different. Jan On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < laurinda.cumming@...> wrote: > Bobby, > > He has no previous criminal history to my knowledge, however does have > previous > violence including > acts of anger/temper, domestic, etc., previous arrests. I'm being told > these > arrests are too old, prior to 2003, murder > occurred in 2009. He definitely has a history. I met him in 2005, no > indication > of having any psychosis. No prior mental health > issues or treatment. Was receiving disability income for the cirrhosis. > What about illegal drugs like marijuana smoking added to having > Cirrhosis? No > prescribed meds taken. > > Thanks again, > Blessings, > Laurinda > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 4:52:30 PM > Subject: Re: need to vent > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. Gfr > stands for Glomerular filtration rate, and > > is the best overall index of kidney function. > The question is does the person have any other criminal history or prior > history > > of violence, etc. > Because there is no telling what he thought he was doing, or what he was > thinking when he did this. > > I once found my own loved one talking to me on the television remote > control > when I walked in to her room at the nursing home. Her cell phone was right > there > > on a necklace, within reach, but she was completely un aware, and thought > the > remote was the phone. > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 8:12:07 AM > Subject: Re: need to vent > > Bobby, > > Thank you. My concern is the temporary insanity, can that really be caused > by Cirrhosis? What is GFR? Are there any other forms of testing? His > symptoms > in 2003 was severe ascites and edema, no jaundice or itching. He had > chronic > alcoholism from age 8 to 43. He does self induced daily vomiting, even > today. > Two days prior to the murder he was normal then the day before he starting > talking strange,etc. > > The attorneys want to claim guilty except insane because of " Bipolar " not > the > Cirrhosis. > Are these two often compared? This means he will be sent to the mental > hospital > and > have the potential of being released for cold blooded murder. At this point > this > > > is my > > major concern as he also attempted to murder me at that same time. Just so > you > know > a little more the person he murdered was my 83 yr helpless father. > > Thank you again so much for all your information, I can't tell you how > helpful > it is and > how grateful I am. > Oh I forgot can daily smoking marijuana be harmful to someone with > Cirrhosis? > Can that cause > > further symptoms. I would assume it does. He replaced the alcohol with this > drug, he needed > > the daily high. > > God Bless, > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 7:05:42 PM > Subject: Re: need to vent > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > insanity > > > which has been used frivolously should be considered if the person has no > other > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 8:09:22 AM > Subject: Re: need to vent > > Thank you again for all of the information, I have received more in last 12 > hours then > I have in 12 months. I have researched myself but not always sure what I'm > looking at > since this disease is new too me. > This link you just sent said " Agitation and mania can develop but are > uncommon " > > this is > why I get confused. > Can you please tell me what type of medical specialist deals with this > illness? > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 3:21:22 AM > Subject: Re: need to vent > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the same > as > portal systemic encephalopathy. The chart in the following article does > include > Anger, paranoia, or other bizarre behavior > > Please read this article for the best information. Love, Bobby > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > 0 (subclinical) > > Asymptomatic loss of cognitive abilities > > None > > 1 > > Sleep disturbances > > Impaired concentration > > Depression, anxiety, or irritability > > Monotone voice > > Tremor > > Poor handwriting > > Constructional apraxia > > 2 > > Drowsiness > > Disorientation > > Poor short-term memory > > Disinhibited behavior > > Ataxia > > Dysarthria > > Asterixis > > Automatisms (eg, yawning, blinking, sucking) > > 3 > > Somnolence > > Confusion > > Amnesia > > Anger, paranoia, or other bizarre behavior > > Nystagmus > > Muscular rigidity > > Hyperreflexia or hyporeflexia > > 4 > > Coma > > Dilated pupils > > Oculocephalic or oculovestibular reflexes > > Decerebrate posturing > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 10:53:46 PM > Subject: Re: need to vent > > Bonnie, > > Thank you, I have looked up " wet brain " , from my understanding it says > that a person becomes confused and slips into a coma, they don't violently > murder someone. Has anyone heard of someone killing another? I need all > the information I can find on the symptoms,etc of cirrhosis and hepatic > encephalopathy. What type of medical specialist deals with this illness? > > Thank you, this communication is wonderful, god bless > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 8:44:00 PM > Subject: Re: need to vent > > Jackie thanks for the encouragement. To the lady who spoke about > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > started > taking apart the house, pulling out nails, tearing off the walls in his own > little world. that was 1983. She had him committed, he wasnt drinking, but > his > ammonia levels were very high. He didnt even know she was there. But from > what > i have learned from the people on this forum and from watching my own > husbands > ammonia levels increase that he gets very tired and it can lead to longer > and > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet that > would give you some info. Just a thought. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 9:20:50 PM > Subject: Re: need to vent > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > operated on > my husband. I was telling him about this forum and he said it's the best > place > to learn, from real live people. My husband got social security disability > after his open heart surgery in 2004. He had lost his job in Sept. of 2003 > and > was getting unemployment. Ironically, his last unemployment check came the > day > before his open heart surgery. At that time he was 59 and I figured if he > applied for disability he would stand a good chance of getting it. Who > would > hire a 59 year old man with a host of health problems? It took awhile, and > thankfully, we had some savings we were living off of. Once he got his > disability it was retro-active from the date he became disabled. It sounds > like > your husband may get disability. I sure hope so. Maybe it will be > retro-active > like my husband's was. You will be ok. These things have a way of working > themselves out. > My husband is 65 now and it looks like we will be able to enjoy retirement. > He > got a good report from the surgeons today. His liver is functioning real > good > and they even decreased some of the meds. I'm keeping you and your husband > in > my prayers. Let me hear from you soon. Jackie > > > > > Subject: Re: need to vent > To: livercirrhosissupport > Date: Wednesday, August 25, 2010, 9:00 PM > > Hi everyone, I am glad to find this group and unsure how to navigate it. > Hopefully u all can give me some insight. My husband was admitted to the > hospital for 4 days in July. He was told prior to this that he has > cirhossis > and Hepatitis C. His enzymes are up and down. His liver specialist said > that > even though he isnt drinking, they will fluctuate. His white cells and > platelets are very low. Too low for the interferon and ribo shots. He is > using lactulose for the ammonia levels. they were at 77 while in the > hospital > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > tired all the time, he sleeps so much. His liver specialist said that a med > rate of 16 he would need a liver transplant. His med rate is 14. He has > applied for disability. What should I expect.? Hes had an ultrasound, all > of > the labs, and x rays. we are waiting on the results. In any case we were > very > stunned by the news that he is almost at the point of a liver transplant. > Can > someone tell me some of the symptoms, outcomes, prognosis (which i realize > is > different in each case) will he be tired like this all the time. He is 54 > years > old. It doesnt seem like anything can be done, except control the side > effects, > like leg swelling and infection. any input would be appreciate. Thanks > Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 24, 2010 9:53:54 PM > Subject: Re: need to vent > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i > am > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > want > > > scan > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > forgets i > > > fed > > > > > him and skyler the grandson living with us, i found his empty glass > of > > > in > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > grandaughters birthday but its sunday, we went to her party he > doesnt > > > > > remeber it. like i said i am pissed or call it scared what ever it > is i > > > am > > > > > it. my newest grandbaby conts. to do good then bad....to be > expected > > > for a > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > out > > > ...hes > > > > > a boy and for some reason its different than the girls...hes in > time > > > out > > > > > right now....am i to hard on him...or is he to stubborn i dont > know. > > > the > > > > > tears rolling down my face says it all. i am tired but i have to > cont. > > > on i > > > > > have no choice in any of this. if i had my choice i would be at the > > > ocean > > > > > watching the waves lap the shore...eating at cock of the walk with > > > elsie and > > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > > ....??????? really makes me want a glass of wine, but i live to far > > > from > > > > > town and its sunday and i cant get any lol. whys life so messed > > > up...what > > > > > did i do to deserve all this crap???? should i walk away and tell > them > > > all > > > > > do it yourself??? should i just suck it up ,drink water and drive > on > > > soldier > > > > > ???? i know this is my life, for whatever reason these are the > cards > > > dealt > > > > > to me, and i will find away to stand. but right now i am pissy i am > sad > > > i > > > > > miss my life the way it was. i am sorry but if i told anyone in my > > > family > > > > > the way i feel they would blame me for enabling everyone. you all > and > > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > > sugarcoat > > > > > the facts or blow smoke up my butt. i love you all and just needed > to > > > get > > > > > this off my chest cause i have been one angry chick all week cause > i > > > dont > > > > > know where these feelings are supposed to go. i am angry with the > sick > > > ones > > > > > the stupid ones and the ones who just dont give a crap. i wanna lay > in > > > the > > > > > sun with a glass of something...even water lol. in my hand soaking > up > > > the > > > > > rays, without a care in the world....but life wont let me. who > wouldnt > > > be > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > its > > > me > > > > > against all of them.... when will it be my turn? i know that sounds > > > selfish > > > > > but i feel selfish right now. whats god...the universe trying to > tell > > > me? > > > > > well just spit it out already i will do what i need to but i am > tired > > > for > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Group Email: livercirrhosissupport > > > > > web address: > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Jan, Yes is an ex-finance. My father moved in with us in Nov. 08, 6 months after my mother died, and he murdered him on Jan 20, 09. I have been told by prosecution the his one " expert " physiologist said he was insane on the day of murder due to bipolar. As I mentioned, he has no prior history of being bipolar, only alcoholism and the diagnosis of cirrhosis. This is why I am searching for answers. My concern with him have the possibility of ever getting out is that he will come back after me. He had the knife held to my throat as well but I was able to get away an run to an neighbor to call 911. It's not a question of him not being able to assist in his defense, that is a Rule 11 in the Ariz. statutes. The defense has never called for this Rule 11. He is very capable of standing trial. Thanks too all of you, you are a blessing. I wish and pray that each and everyone of you have success with your own health. I can only imagine what your dealing with. ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 10:03:57 PM Subject: Re: need to vent  But Laurinda wants him in prison for the rest of his natural life. I don't think it would make much difference, if he has cirrhosis, doesn't look as if his natural life would be too long even if he went to a mental ward. They certainly couldn't cure him there. So they wouldn't be letting him out as safe to society. At least I hope not.Laurinda it sounds as if this is a boyfriend or ex husband of yours. Not meaning to be nosy, but what is the connection to bipolar/ is that just an idea of his lawyer?I don't know about your state, but in some states, a defendant who is found to be crazy, not able to control himself or help in his defence is tried for the crime if the medical personnel decide he is safe to leave the institution. BTW, I just received a letter from my insurance, *state " at least they didn't drop me, but if my cirrhosis was from Hep C, they wouldn't consider giving me a transplant. No restrictions on other causes for cirrhosis, but lots of other restrictions, looks like I am going to lose transportation and mileage for people who drive me. And tomorrow will be the first time I have used it. Jan On Mon, Aug 30, 2010 at 7:47 PM, Bob Aragon wrote: > Thanks Bonnie. It is really strange what you can find using Google search. > I > typed the words " Portal systemic encaphalopathy " and " murder " and > " violence " , > and got a slew of links I have not ever seen before. Love, Bobby > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Mon, August 30, 2010 8:19:19 PM > Subject: Re: need to vent > > > Bob, That was a fantastic link. Very informative too. Hopefully that will > help > > her with the case. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Mon, August 30, 2010 7:53:57 PM > Subject: Re: need to vent > > Here is a paper from the US government library. Maybe the answer you seek > is in > here. > > http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2501102/pdf/postmedj00527-0031.pdf > > ________________________________ > > To: livercirrhosissupport > Sent: Mon, August 30, 2010 3:34:03 PM > Subject: Re: need to vent > > Jan & Bobby, > > Here's a new one I was asked today by the prosecutor " where does it say > that > cirrhosis causes > violent murder behavior? " > I know it causes confusion, comas, disorientation, etc. have you heard of > anyone actually killing another because of the illness or where can > > I find something in writing that refers to violent behavior? Can someone > go > insane from cirrhosis? > Jan you asked what I wanted done, it's that he be locked up for his natural > life > > > (forever), no chance of parole. They > the court system want to send to the mental hospital where he could stand > the > chance of being released once they > determined he is restored mentally. They can't be serious, this man is not > mentally ill. > > If it's not cirrhosis then how can someone go bipolar in just three days? I > realize you may not have the answer for this one. > Thank you for all your concern and help. > > Many Blessings, > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Mon, August 30, 2010 3:17:25 AM > Subject: Re: need to vent > > I'd have to agree with Jan. I think marajuana isnt going to help the > situation > at all. This is very very scary for someone with this disease to > contemplate. > And in my opinion, Jan, you were supposed to get full SSDI long ago. Some > times > people fall through the cracks. I sure wish it hadnt been you. Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 11:34:37 PM > Subject: Re: need to vent > > If he was receiving disability for cirrhosis in 2005, he must be toward the > end of progression of the disease. I was turned down for disability after > that date when I was in stage four and also had a number of other serious > medical conditions. As to the marijuanna, some prescriptions meds are very > bad for the liver even before the liver is damaged, so I am sure the > marijuanna wouldn't helphis liver, might help with pain, but sounds like he > just has an addictive behavior and just substituted one for another. You > haven't said which way you want to go but since he tried to kill you and > did > kill your father I am taking it that you want him locked up for as long as > possilbe. I am not aware what the sentencing guidelines are for insanity, > Could you tell us more about his physical condition then and now. Before I > was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in > MN, aLSO WENT looking for some oreos I believed we had just purchased a > couple of days before and accused Ed of eating them all up and wouldn't > believe we hadn't just bought them until he showed me the receipt for 2 > weeks before. Since my diagnosis and orders to cut down on protein, I > haven't had any real trouble. That was more than 10 years ago Other people > have been very careful and gone down hill much faster. So we can't say how > long he will live. If his problem is cirrhosis and they commit him for > bipolar, I am sure those meds won't make his cirrhosis improve.It is > possible he has both. Remember, I am not a doctor just been living with > this disease for quite a while now. For others it is different. Jan > > On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < > laurinda.cumming@...> wrote: > > > Bobby, > > > > He has no previous criminal history to my knowledge, however does have > > previous > > violence including > > acts of anger/temper, domestic, etc., previous arrests. I'm being told > > these > > arrests are too old, prior to 2003, murder > > occurred in 2009. He definitely has a history. I met him in 2005, no > > indication > > of having any psychosis. No prior mental health > > issues or treatment. Was receiving disability income for the cirrhosis. > > What about illegal drugs like marijuana smoking added to having > > Cirrhosis? No > > prescribed meds taken. > > > > Thanks again, > > Blessings, > > Laurinda > > > > > > > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sun, August 29, 2010 4:52:30 PM > > Subject: Re: need to vent > > > > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. > Gfr > > stands for Glomerular filtration rate, and > > > > is the best overall index of kidney function. > > The question is does the person have any other criminal history or prior > > history > > > > of violence, etc. > > Because there is no telling what he thought he was doing, or what he was > > thinking when he did this. > > > > I once found my own loved one talking to me on the television remote > > control > > when I walked in to her room at the nursing home. Her cell phone was > right > > there > > > > on a necklace, within reach, but she was completely un aware, and thought > > the > > remote was the phone. > > Love, Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sun, August 29, 2010 8:12:07 AM > > Subject: Re: need to vent > > > > Bobby, > > > > Thank you. My concern is the temporary insanity, can that really be > caused > > by Cirrhosis? What is GFR? Are there any other forms of testing? His > > symptoms > > in 2003 was severe ascites and edema, no jaundice or itching. He had > > chronic > > alcoholism from age 8 to 43. He does self induced daily vomiting, even > > today. > > Two days prior to the murder he was normal then the day before he > starting > > talking strange,etc. > > > > The attorneys want to claim guilty except insane because of " Bipolar " not > > the > > Cirrhosis. > > Are these two often compared? This means he will be sent to the mental > > hospital > > and > > have the potential of being released for cold blooded murder. At this > point > > this > > > > > > is my > > > > major concern as he also attempted to murder me at that same time. Just > so > > you > > know > > a little more the person he murdered was my 83 yr helpless father. > > > > Thank you again so much for all your information, I can't tell you how > > helpful > > it is and > > how grateful I am. > > Oh I forgot can daily smoking marijuana be harmful to someone with > > Cirrhosis? > > Can that cause > > > > further symptoms. I would assume it does. He replaced the alcohol with > this > > drug, he needed > > > > the daily high. > > > > God Bless, > > Laurinda > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sat, August 28, 2010 7:05:42 PM > > Subject: Re: need to vent > > > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > > insanity > > > > > > which has been used frivolously should be considered if the person has no > > other > > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > > Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sat, August 28, 2010 8:09:22 AM > > Subject: Re: need to vent > > > > Thank you again for all of the information, I have received more in last > 12 > > hours then > > I have in 12 months. I have researched myself but not always sure what > I'm > > looking at > > since this disease is new too me. > > This link you just sent said " Agitation and mania can develop but are > > uncommon " > > > > this is > > why I get confused. > > Can you please tell me what type of medical specialist deals with this > > illness? > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Sat, August 28, 2010 3:21:22 AM > > Subject: Re: need to vent > > > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the > same > > as > > portal systemic encephalopathy. The chart in the following article does > > include > > Anger, paranoia, or other bizarre behavior > > > > Please read this article for the best information. Love, Bobby > > > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > > > 0 (subclinical) > > > > Asymptomatic loss of cognitive abilities > > > > None > > > > 1 > > > > Sleep disturbances > > > > Impaired concentration > > > > Depression, anxiety, or irritability > > > > Monotone voice > > > > Tremor > > > > Poor handwriting > > > > Constructional apraxia > > > > 2 > > > > Drowsiness > > > > Disorientation > > > > Poor short-term memory > > > > Disinhibited behavior > > > > Ataxia > > > > Dysarthria > > > > Asterixis > > > > Automatisms (eg, yawning, blinking, sucking) > > > > 3 > > > > Somnolence > > > > Confusion > > > > Amnesia > > > > Anger, paranoia, or other bizarre behavior > > > > Nystagmus > > > > Muscular rigidity > > > > Hyperreflexia or hyporeflexia > > > > 4 > > > > Coma > > > > Dilated pupils > > > > Oculocephalic or oculovestibular reflexes > > > > Decerebrate posturing > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, August 27, 2010 10:53:46 PM > > Subject: Re: need to vent > > > > Bonnie, > > > > Thank you, I have looked up " wet brain " , from my understanding it says > > that a person becomes confused and slips into a coma, they don't > violently > > murder someone. Has anyone heard of someone killing another? I need all > > the information I can find on the symptoms,etc of cirrhosis and hepatic > > encephalopathy. What type of medical specialist deals with this illness? > > > > Thank you, this communication is wonderful, god bless > > Laurinda > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, August 27, 2010 8:44:00 PM > > Subject: Re: need to vent > > > > Jackie thanks for the encouragement. To the lady who spoke about > > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > > started > > taking apart the house, pulling out nails, tearing off the walls in his > own > > little world. that was 1983. She had him committed, he wasnt drinking, > but > > his > > ammonia levels were very high. He didnt even know she was there. But from > > what > > i have learned from the people on this forum and from watching my own > > husbands > > ammonia levels increase that he gets very tired and it can lead to longer > > and > > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet > that > > would give you some info. Just a thought. Bonnie > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, August 27, 2010 9:20:50 PM > > Subject: Re: need to vent > > > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > > operated on > > my husband. I was telling him about this forum and he said it's the best > > place > > to learn, from real live people. My husband got social security > disability > > after his open heart surgery in 2004. He had lost his job in Sept. of > 2003 > > and > > was getting unemployment. Ironically, his last unemployment check came > the > > day > > before his open heart surgery. At that time he was 59 and I figured if he > > applied for disability he would stand a good chance of getting it. Who > > would > > hire a 59 year old man with a host of health problems? It took awhile, > and > > thankfully, we had some savings we were living off of. Once he got his > > disability it was retro-active from the date he became disabled. It > sounds > > like > > your husband may get disability. I sure hope so. Maybe it will be > > retro-active > > like my husband's was. You will be ok. These things have a way of working > > themselves out. > > My husband is 65 now and it looks like we will be able to enjoy > retirement. > > He > > got a good report from the surgeons today. His liver is functioning real > > good > > and they even decreased some of the meds. I'm keeping you and your > husband > > in > > my prayers. Let me hear from you soon. Jackie > > > > > > > > > > Subject: Re: need to vent > > To: livercirrhosissupport > > Date: Wednesday, August 25, 2010, 9:00 PM > > > > Hi everyone, I am glad to find this group and unsure how to navigate it. > > Hopefully u all can give me some insight. My husband was admitted to the > > hospital for 4 days in July. He was told prior to this that he has > > cirhossis > > and Hepatitis C. His enzymes are up and down. His liver specialist said > > that > > even though he isnt drinking, they will fluctuate. His white cells and > > platelets are very low. Too low for the interferon and ribo shots. He is > > using lactulose for the ammonia levels. they were at 77 while in the > > hospital > > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > > tired all the time, he sleeps so much. His liver specialist said that a > med > > rate of 16 he would need a liver transplant. His med rate is 14. He has > > applied for disability. What should I expect.? Hes had an ultrasound, all > > of > > the labs, and x rays. we are waiting on the results. In any case we were > > very > > stunned by the news that he is almost at the point of a liver transplant. > > Can > > someone tell me some of the symptoms, outcomes, prognosis (which i > realize > > is > > different in each case) will he be tired like this all the time. He is 54 > > years > > old. It doesnt seem like anything can be done, except control the side > > effects, > > like leg swelling and infection. any input would be appreciate. Thanks > > Bonnie > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Tue, August 24, 2010 9:53:54 PM > > Subject: Re: need to vent > > > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. > i > > am > > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > > want > > > > scan > > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > > forgets i > > > > fed > > > > > > him and skyler the grandson living with us, i found his empty > glass > > of > > > > in > > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > > grandaughters birthday but its sunday, we went to her party he > > doesnt > > > > > > remeber it. like i said i am pissed or call it scared what ever > it > > is i > > > > am > > > > > > it. my newest grandbaby conts. to do good then bad....to be > > expected > > > > for a > > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > > out > > > > ...hes > > > > > > a boy and for some reason its different than the girls...hes in > > time > > > > out > > > > > > right now....am i to hard on him...or is he to stubborn i dont > > know. > > > > the > > > > > > tears rolling down my face says it all. i am tired but i have to > > cont. > > > > on i > > > > > > have no choice in any of this. if i had my choice i would be at > the > > > > ocean > > > > > > watching the waves lap the shore...eating at cock of the walk > with > > > > elsie and > > > > > > roger...but i have no choice. i am here i am mad i am confused i > am > > > > > > ....??????? really makes me want a glass of wine, but i live to > far > > > > from > > > > > > town and its sunday and i cant get any lol. whys life so messed > > > > up...what > > > > > > did i do to deserve all this crap???? should i walk away and tell > > them > > > > all > > > > > > do it yourself??? should i just suck it up ,drink water and drive > > on > > > > soldier > > > > > > ???? i know this is my life, for whatever reason these are the > > cards > > > > dealt > > > > > > to me, and i will find away to stand. but right now i am pissy i > am > > sad > > > > i > > > > > > miss my life the way it was. i am sorry but if i told anyone in > my > > > > family > > > > > > the way i feel they would blame me for enabling everyone. you all > > and > > > > > > elsie...aka mae mae are they only ones i have to vent to that > dont > > > > sugarcoat > > > > > > the facts or blow smoke up my butt. i love you all and just > needed > > to > > > > get > > > > > > this off my chest cause i have been one angry chick all week > cause > > i > > > > dont > > > > > > know where these feelings are supposed to go. i am angry with the > > sick > > > > ones > > > > > > the stupid ones and the ones who just dont give a crap. i wanna > lay > > in > > > > the > > > > > > sun with a glass of something...even water lol. in my hand > soaking > > up > > > > the > > > > > > rays, without a care in the world....but life wont let me. who > > wouldnt > > > > be > > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > > its > > > > me > > > > > > against all of them.... when will it be my turn? i know that > sounds > > > > selfish > > > > > > but i feel selfish right now. whats god...the universe trying to > > tell > > > > me? > > > > > > well just spit it out already i will do what i need to but i am > > tired > > > > for > > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > Group Email: livercirrhosissupport > > > > > > web address: > > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Hi all, Thanks for all of your advice. SS approved my husband for disability. They couldnt tell us over the phone because they said it needed to come by mail...........then ss called to ask us to come in to see them, because we were approved. We still havent got the letter from them. lol However, we have submitted only medical records, and for some reason he needs a payee. Just curious why that might be. Does anyone have any insight, would it be because he is an alcoholic? (recovering) thought? Bonnie ________________________________ To: livercirrhosissupport Sent: Sat, August 28, 2010 10:44:48 AM Subject: Re: need to vent hi bonnie and jackie. my finacial counselor at my liver center gave me lots of good advice to you can get help thru a group called nft for liver tps. at www.transplants.org and bring up nft and you can call them and sign up for free and they will help you raise money for medical and medicine after the tp.imy counselor there is kay horne she is great and the whole staff are very helpful to raise funds.weather you have ins. or not they can help. also your drs officxe may recomend someone to that work with.my social worker also gives me lots of advice and help dealing with some of the ups and downs.but i have found the web groups are much more informative because they are people who have been though the same things. has anyone out there every had to have a heart cath from the neck into the artery with a stent thats what i now need they will due it on monday. eelivercirrhosissupport Sent: Sat, August 28, 2010 2:05:47 AM Subject: Re: need to vent Jackie, thanks for telling me about the disability that is good to know. I am glad he is doing better. The thing that my husband does is gets up in the morning, does what he must do, because he tires so quickly. Also, if he stays on his feet for more than an hour they just swell up, last time they swelled so much he got admitted for sepsis and was in for four days on IV vancomycin etc etc. I hope he gets up more though, he just lays around except for his appointments. Anyway, Thanks Jackie for the info about SS. Thanks also for the prayers. Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, August 27, 2010 9:20:50 PM Subject: Re: need to vent Hi Bonnie: We were just at the drs today and we saw the surgeon who operated on my husband. I was telling him about this forum and he said it's the best place to learn, from real live people. My husband got social security disability after his open heart surgery in 2004. He had lost his job in Sept. of 2003 and was getting unemployment. Ironically, his last unemployment check came the day before his open heart surgery. At that time he was 59 and I figured if he applied for disability he would stand a good chance of getting it. Who would hire a 59 year old man with a host of health problems? It took awhile, and thankfully, we had some savings we were living off of. Once he got his disability it was retro-active from the date he became disabled. It sounds like your husband may get disability. I sure hope so. Maybe it will be retro-active like my husband's was. You will be ok. These things have a way of working themselves out. My husband is 65 now and it looks like we will be able to enjoy retirement. He got a good report from the surgeons today. His liver is functioning real good and they even decreased some of the meds. I'm keeping you and your husband in my prayers. Let me hear from you soon. Jackie Subject: Re: need to vent To: livercirrhosissupport Date: Wednesday, August 25, 2010, 9:00 PM Hi everyone, I am glad to find this group and unsure how to navigate it. Hopefully u all can give me some insight. My husband was admitted to the hospital for 4 days in July. He was told prior to this that he has cirhossis and Hepatitis C. His enzymes are up and down. His liver specialist said that even though he isnt drinking, they will fluctuate. His white cells and platelets are very low. Too low for the interferon and ribo shots. He is using lactulose for the ammonia levels. they were at 77 while in the hospital and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so tired all the time, he sleeps so much. His liver specialist said that a med rate of 16 he would need a liver transplant. His med rate is 14. He has applied for disability. What should I expect.? Hes had an ultrasound, all of the labs, and x rays. we are waiting on the results. In any case we were very stunned by the news that he is almost at the point of a liver transplant. Can someone tell me some of the symptoms, outcomes, prognosis (which i realize is different in each case) will he be tired like this all the time. He is 54 years old. It doesnt seem like anything can be done, except control the side effects, like leg swelling and infection. any input would be appreciate. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Tue, August 24, 2010 9:53:54 PM Subject: Re: need to vent yes roller coater ride puts it mildly girl!!!!! > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i am > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow want > > scan > > > > and labs done NOW not wait till nov. hes losing days by 2. he forgets i > > fed > > > > him and skyler the grandson living with us, i found his empty glass of > > in > > > > the frige instesd of the sink today. he thought it was friday our > > > > grandaughters birthday but its sunday, we went to her party he doesnt > > > > remeber it. like i said i am pissed or call it scared what ever it is i > > am > > > > it. my newest grandbaby conts. to do good then bad....to be expected > > for a > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me out > > ...hes > > > > a boy and for some reason its different than the girls...hes in time > > out > > > > right now....am i to hard on him...or is he to stubborn i dont know. > > the > > > > tears rolling down my face says it all. i am tired but i have to cont. > > on i > > > > have no choice in any of this. if i had my choice i would be at the > > ocean > > > > watching the waves lap the shore...eating at cock of the walk with > > elsie and > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > ....??????? really makes me want a glass of wine, but i live to far > > from > > > > town and its sunday and i cant get any lol. whys life so messed > > up...what > > > > did i do to deserve all this crap???? should i walk away and tell them > > all > > > > do it yourself??? should i just suck it up ,drink water and drive on > > soldier > > > > ???? i know this is my life, for whatever reason these are the cards > > dealt > > > > to me, and i will find away to stand. but right now i am pissy i am sad > > i > > > > miss my life the way it was. i am sorry but if i told anyone in my > > family > > > > the way i feel they would blame me for enabling everyone. you all and > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > sugarcoat > > > > the facts or blow smoke up my butt. i love you all and just needed to > > get > > > > this off my chest cause i have been one angry chick all week cause i > > dont > > > > know where these feelings are supposed to go. i am angry with the sick > > ones > > > > the stupid ones and the ones who just dont give a crap. i wanna lay in > > the > > > > sun with a glass of something...even water lol. in my hand soaking up > > the > > > > rays, without a care in the world....but life wont let me. who wouldnt > > be > > > > pissed. sorry if i have offended anyone...welcome to barbys world its > > me > > > > against all of them.... when will it be my turn? i know that sounds > > selfish > > > > but i feel selfish right now. whats god...the universe trying to tell > > me? > > > > well just spit it out already i will do what i need to but i am tired > > for > > > > crying out loud!! > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Group Email: livercirrhosissupport > > > > web address: > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Wow, Jan. That part where you said your state insurance wouldn't give you a transplant if you had Hepatitis C. That's not fair! I had medical assistance or Medicaid before I got on SSDI and Medicare. If my state worked the same way, if I didn't get on Medicare, I wouldn't have received a transplant. Not that it matters how you get Hepatitis C, but there are people like me who have no idea how they contracted it because of never having a blood transfusion or injecting drugs or any of the other risk factors. Getting Hepatitis C isn't the fault of the person infected no matter how they contracted it anyway. That's really unfair! Penny > > > > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. > > i > > > am > > > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > > > want > > > > > scan > > > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > > > forgets i > > > > > fed > > > > > > > him and skyler the grandson living with us, i found his empty > > glass > > > of > > > > > in > > > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > > > grandaughters birthday but its sunday, we went to her party he > > > doesnt > > > > > > > remeber it. like i said i am pissed or call it scared what ever > > it > > > is i > > > > > am > > > > > > > it. my newest grandbaby conts. to do good then bad....to be > > > expected > > > > > for a > > > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > > > out > > > > > ...hes > > > > > > > a boy and for some reason its different than the girls...hes in > > > time > > > > > out > > > > > > > right now....am i to hard on him...or is he to stubborn i dont > > > know. > > > > > the > > > > > > > tears rolling down my face says it all. i am tired but i have to > > > cont. > > > > > on i > > > > > > > have no choice in any of this. if i had my choice i would be at > > the > > > > > ocean > > > > > > > watching the waves lap the shore...eating at cock of the walk > > with > > > > > elsie and > > > > > > > roger...but i have no choice. i am here i am mad i am confused i > > am > > > > > > > ....??????? really makes me want a glass of wine, but i live to > > far > > > > > from > > > > > > > town and its sunday and i cant get any lol. whys life so messed > > > > > up...what > > > > > > > did i do to deserve all this crap???? should i walk away and tell > > > them > > > > > all > > > > > > > do it yourself??? should i just suck it up ,drink water and drive > > > on > > > > > soldier > > > > > > > ???? i know this is my life, for whatever reason these are the > > > cards > > > > > dealt > > > > > > > to me, and i will find away to stand. but right now i am pissy i > > am > > > sad > > > > > i > > > > > > > miss my life the way it was. i am sorry but if i told anyone in > > my > > > > > family > > > > > > > the way i feel they would blame me for enabling everyone. you all > > > and > > > > > > > elsie...aka mae mae are they only ones i have to vent to that > > dont > > > > > sugarcoat > > > > > > > the facts or blow smoke up my butt. i love you all and just > > needed > > > to > > > > > get > > > > > > > this off my chest cause i have been one angry chick all week > > cause > > > i > > > > > dont > > > > > > > know where these feelings are supposed to go. i am angry with the > > > sick > > > > > ones > > > > > > > the stupid ones and the ones who just dont give a crap. i wanna > > lay > > > in > > > > > the > > > > > > > sun with a glass of something...even water lol. in my hand > > soaking > > > up > > > > > the > > > > > > > rays, without a care in the world....but life wont let me. who > > > wouldnt > > > > > be > > > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > > > its > > > > > me > > > > > > > against all of them.... when will it be my turn? i know that > > sounds > > > > > selfish > > > > > > > but i feel selfish right now. whats god...the universe trying to > > > tell > > > > > me? > > > > > > > well just spit it out already i will do what i need to but i am > > > tired > > > > > for > > > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > Group Email: livercirrhosissupport > > > > > > > web address: > > > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 THANKS GOD. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 3:08:12 PM Subject: Re: need to vent Hi all, Thanks for all of your advice. SS approved my husband for disability. They couldnt tell us over the phone because they said it needed to come by mail...........then ss called to ask us to come in to see them, because we were approved. We still havent got the letter from them. lol However, we have submitted only medical records, and for some reason he needs a payee. Just curious why that might be. Does anyone have any insight, would it be because he is an alcoholic? (recovering) thought? Bonnie ________________________________ To: livercirrhosissupport Sent: Sat, August 28, 2010 10:44:48 AM Subject: Re: need to vent hi bonnie and jackie. my finacial counselor at my liver center gave me lots of good advice to you can get help thru a group called nft for liver tps. at www.transplants.org and bring up nft and you can call them and sign up for free and they will help you raise money for medical and medicine after the tp.imy counselor there is kay horne she is great and the whole staff are very helpful to raise funds.weather you have ins. or not they can help. also your drs officxe may recomend someone to that work with.my social worker also gives me lots of advice and help dealing with some of the ups and downs.but i have found the web groups are much more informative because they are people who have been though the same things. has anyone out there every had to have a heart cath from the neck into the artery with a stent thats what i now need they will due it on monday. eelivercirrhosissupport Sent: Sat, August 28, 2010 2:05:47 AM Subject: Re: need to vent Jackie, thanks for telling me about the disability that is good to know. I am glad he is doing better. The thing that my husband does is gets up in the morning, does what he must do, because he tires so quickly. Also, if he stays on his feet for more than an hour they just swell up, last time they swelled so much he got admitted for sepsis and was in for four days on IV vancomycin etc etc. I hope he gets up more though, he just lays around except for his appointments. Anyway, Thanks Jackie for the info about SS. Thanks also for the prayers. Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, August 27, 2010 9:20:50 PM Subject: Re: need to vent Hi Bonnie: We were just at the drs today and we saw the surgeon who operated on my husband. I was telling him about this forum and he said it's the best place to learn, from real live people. My husband got social security disability after his open heart surgery in 2004. He had lost his job in Sept. of 2003 and was getting unemployment. Ironically, his last unemployment check came the day before his open heart surgery. At that time he was 59 and I figured if he applied for disability he would stand a good chance of getting it. Who would hire a 59 year old man with a host of health problems? It took awhile, and thankfully, we had some savings we were living off of. Once he got his disability it was retro-active from the date he became disabled. It sounds like your husband may get disability. I sure hope so. Maybe it will be retro-active like my husband's was. You will be ok. These things have a way of working themselves out. My husband is 65 now and it looks like we will be able to enjoy retirement. He got a good report from the surgeons today. His liver is functioning real good and they even decreased some of the meds. I'm keeping you and your husband in my prayers. Let me hear from you soon. Jackie Subject: Re: need to vent To: livercirrhosissupport Date: Wednesday, August 25, 2010, 9:00 PM Hi everyone, I am glad to find this group and unsure how to navigate it. Hopefully u all can give me some insight. My husband was admitted to the hospital for 4 days in July. He was told prior to this that he has cirhossis and Hepatitis C. His enzymes are up and down. His liver specialist said that even though he isnt drinking, they will fluctuate. His white cells and platelets are very low. Too low for the interferon and ribo shots. He is using lactulose for the ammonia levels. they were at 77 while in the hospital and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so tired all the time, he sleeps so much. His liver specialist said that a med rate of 16 he would need a liver transplant. His med rate is 14. He has applied for disability. What should I expect.? Hes had an ultrasound, all of the labs, and x rays. we are waiting on the results. In any case we were very stunned by the news that he is almost at the point of a liver transplant. Can someone tell me some of the symptoms, outcomes, prognosis (which i realize is different in each case) will he be tired like this all the time. He is 54 years old. It doesnt seem like anything can be done, except control the side effects, like leg swelling and infection. any input would be appreciate. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Tue, August 24, 2010 9:53:54 PM Subject: Re: need to vent yes roller coater ride puts it mildly girl!!!!! > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i am > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow want > > scan > > > > and labs done NOW not wait till nov. hes losing days by 2. he forgets i > > fed > > > > him and skyler the grandson living with us, i found his empty glass of > > in > > > > the frige instesd of the sink today. he thought it was friday our > > > > grandaughters birthday but its sunday, we went to her party he doesnt > > > > remeber it. like i said i am pissed or call it scared what ever it is i > > am > > > > it. my newest grandbaby conts. to do good then bad....to be expected > > for a > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me out > > ...hes > > > > a boy and for some reason its different than the girls...hes in time > > out > > > > right now....am i to hard on him...or is he to stubborn i dont know. > > the > > > > tears rolling down my face says it all. i am tired but i have to cont. > > on i > > > > have no choice in any of this. if i had my choice i would be at the > > ocean > > > > watching the waves lap the shore...eating at cock of the walk with > > elsie and > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > ....??????? really makes me want a glass of wine, but i live to far > > from > > > > town and its sunday and i cant get any lol. whys life so messed > > up...what > > > > did i do to deserve all this crap???? should i walk away and tell them > > all > > > > do it yourself??? should i just suck it up ,drink water and drive on > > soldier > > > > ???? i know this is my life, for whatever reason these are the cards > > dealt > > > > to me, and i will find away to stand. but right now i am pissy i am sad > > i > > > > miss my life the way it was. i am sorry but if i told anyone in my > > family > > > > the way i feel they would blame me for enabling everyone. you all and > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > sugarcoat > > > > the facts or blow smoke up my butt. i love you all and just needed to > > get > > > > this off my chest cause i have been one angry chick all week cause i > > dont > > > > know where these feelings are supposed to go. i am angry with the sick > > ones > > > > the stupid ones and the ones who just dont give a crap. i wanna lay in > > the > > > > sun with a glass of something...even water lol. in my hand soaking up > > the > > > > rays, without a care in the world....but life wont let me. who wouldnt > > be > > > > pissed. sorry if i have offended anyone...welcome to barbys world its > > me > > > > against all of them.... when will it be my turn? i know that sounds > > selfish > > > > but i feel selfish right now. whats god...the universe trying to tell > > me? > > > > well just spit it out already i will do what i need to but i am tired > > for > > > > crying out loud!! > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Group Email: livercirrhosissupport > > > > web address: > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 My opinion is roughly this: the prosecute had better attack the bi polar theory. It is ridiculousness to argue that this man with no prior mental health issue suddenly became manic in an acute episode of bi polar. I dont recall that it is a common occurrence for someone with bipolar to murder as a result. ON the other hand, any involvement by a liver specialist would only serve to hurt your position, and make it more likely he could be entirely exonerated. The intoxication cause by portal systemic encephalopathy is well documented to be temporary. I do not know it to be a condition which lingers. People do not get locked up in a mental institution for portal systemic encephalopathy. They improve quickly or they die. I have never heard of it being used as a defence before, and I have never heard of a person being locked up in an assylum to be treated for it. The standard treatment for it is oral lactulose, lactulose enemas, oral non absorbable antibiotics and orthotopic liver transplantation. Period. Either the patient gets a transplant and therefor it clears up for good, or they die from the encephalopathy itself. Portal systemic encephalopathy can have a very rapid onset, and a very rapid resolution, or improvement. It was discovered in the 1800's in Russia by a physician who fed meat to dogs who had thier liver bypassed by a shunt. The dogs became comatose very very quickly. Most of the information I have found on the web about PSE is from vetrinarians and relates to dogs. Either way, I hope and pray for a resoloution to this which favors your position and my heart goes out to you and your family, and I hope and pray for your heart to heal from your terrible loss, and trama. Love, your friend, Bobby ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 11:54:09 AM Subject: Re: need to vent Yes I agree, thank you Bobby. I'm now just trying to figure how I approach this with the prosecution as he always tears every theory down, unless it comes from his one psychologist " expert " to quote him. He refuses to contact a cirrhosis specialist/expert or any other doctor for further evaluation. To again quote him " What will the jury think if he did " ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 7:47:24 PM Subject: Re: need to vent Thanks Bonnie. It is really strange what you can find using Google search. I typed the words " Portal systemic encaphalopathy " and " murder " and " violence " , and got a slew of links I have not ever seen before. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 8:19:19 PM Subject: Re: need to vent Bob, That was a fantastic link. Very informative too. Hopefully that will help her with the case. Bonnie ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 7:53:57 PM Subject: Re: need to vent Here is a paper from the US government library. Maybe the answer you seek is in here. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2501102/pdf/postmedj00527-0031.pdf ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:34:03 PM Subject: Re: need to vent Jan & Bobby, Here's a new one I was asked today by the prosecutor " where does it say that cirrhosis causes violent murder behavior? " I know it causes confusion, comas, disorientation, etc. have you heard of anyone actually killing another because of the illness or where can I find something in writing that refers to violent behavior? Can someone go insane from cirrhosis? Jan you asked what I wanted done, it's that he be locked up for his natural life (forever), no chance of parole. They the court system want to send to the mental hospital where he could stand the chance of being released once they determined he is restored mentally. They can't be serious, this man is not mentally ill. If it's not cirrhosis then how can someone go bipolar in just three days? I realize you may not have the answer for this one. Thank you for all your concern and help. Many Blessings, Laurinda ________________________________ To: livercirrhosissupport Sent: Mon, August 30, 2010 3:17:25 AM Subject: Re: need to vent I'd have to agree with Jan. I think marajuana isnt going to help the situation at all. This is very very scary for someone with this disease to contemplate. And in my opinion, Jan, you were supposed to get full SSDI long ago. Some times people fall through the cracks. I sure wish it hadnt been you. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, August 29, 2010 11:34:37 PM Subject: Re: need to vent If he was receiving disability for cirrhosis in 2005, he must be toward the end of progression of the disease. I was turned down for disability after that date when I was in stage four and also had a number of other serious medical conditions. As to the marijuanna, some prescriptions meds are very bad for the liver even before the liver is damaged, so I am sure the marijuanna wouldn't helphis liver, might help with pain, but sounds like he just has an addictive behavior and just substituted one for another. You haven't said which way you want to go but since he tried to kill you and did kill your father I am taking it that you want him locked up for as long as possilbe. I am not aware what the sentencing guidelines are for insanity, Could you tell us more about his physical condition then and now. Before I was diagnosed, I stood in my kithchrn in AZ sure I was in my former home in MN, aLSO WENT looking for some oreos I believed we had just purchased a couple of days before and accused Ed of eating them all up and wouldn't believe we hadn't just bought them until he showed me the receipt for 2 weeks before. Since my diagnosis and orders to cut down on protein, I haven't had any real trouble. That was more than 10 years ago Other people have been very careful and gone down hill much faster. So we can't say how long he will live. If his problem is cirrhosis and they commit him for bipolar, I am sure those meds won't make his cirrhosis improve.It is possible he has both. Remember, I am not a doctor just been living with this disease for quite a while now. For others it is different. Jan On Sun, Aug 29, 2010 at 8:14 PM, Laurinda Cumming < laurinda.cumming@...> wrote: > Bobby, > > He has no previous criminal history to my knowledge, however does have > previous > violence including > acts of anger/temper, domestic, etc., previous arrests. I'm being told > these > arrests are too old, prior to 2003, murder > occurred in 2009. He definitely has a history. I met him in 2005, no > indication > of having any psychosis. No prior mental health > issues or treatment. Was receiving disability income for the cirrhosis. > What about illegal drugs like marijuana smoking added to having > Cirrhosis? No > prescribed meds taken. > > Thanks again, > Blessings, > Laurinda > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 4:52:30 PM > Subject: Re: need to vent > > > Yes. The answer is yes. Temporary insanity can be caused by cirrhosis. Gfr > stands for Glomerular filtration rate, and > > is the best overall index of kidney function. > The question is does the person have any other criminal history or prior > history > > of violence, etc. > Because there is no telling what he thought he was doing, or what he was > thinking when he did this. > > I once found my own loved one talking to me on the television remote > control > when I walked in to her room at the nursing home. Her cell phone was right > there > > on a necklace, within reach, but she was completely un aware, and thought > the > remote was the phone. > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, August 29, 2010 8:12:07 AM > Subject: Re: need to vent > > Bobby, > > Thank you. My concern is the temporary insanity, can that really be caused > by Cirrhosis? What is GFR? Are there any other forms of testing? His > symptoms > in 2003 was severe ascites and edema, no jaundice or itching. He had > chronic > alcoholism from age 8 to 43. He does self induced daily vomiting, even > today. > Two days prior to the murder he was normal then the day before he starting > talking strange,etc. > > The attorneys want to claim guilty except insane because of " Bipolar " not > the > Cirrhosis. > Are these two often compared? This means he will be sent to the mental > hospital > and > have the potential of being released for cold blooded murder. At this point > this > > > is my > > major concern as he also attempted to murder me at that same time. Just so > you > know > a little more the person he murdered was my 83 yr helpless father. > > Thank you again so much for all your information, I can't tell you how > helpful > it is and > how grateful I am. > Oh I forgot can daily smoking marijuana be harmful to someone with > Cirrhosis? > Can that cause > > further symptoms. I would assume it does. He replaced the alcohol with this > drug, he needed > > the daily high. > > God Bless, > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 7:05:42 PM > Subject: Re: need to vent > > A hepatologist, and sometimes a gastrointerologist. Certainly temporary > insanity > > > which has been used frivolously should be considered if the person has no > other > criminal record, and if they do have biopsy confirmed cirrhosis. Love, > Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 8:09:22 AM > Subject: Re: need to vent > > Thank you again for all of the information, I have received more in last 12 > hours then > I have in 12 months. I have researched myself but not always sure what I'm > looking at > since this disease is new too me. > This link you just sent said " Agitation and mania can develop but are > uncommon " > > this is > why I get confused. > Can you please tell me what type of medical specialist deals with this > illness? > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 3:21:22 AM > Subject: Re: need to vent > > Wet brain is also known as Wernike Korsikoff syndrome, and is NOT the same > as > portal systemic encephalopathy. The chart in the following article does > include > Anger, paranoia, or other bizarre behavior > > Please read this article for the best information. Love, Bobby > > http://www.merck.com/mmpe/sec03/ch022/ch022g.html > > 0 (subclinical) > > Asymptomatic loss of cognitive abilities > > None > > 1 > > Sleep disturbances > > Impaired concentration > > Depression, anxiety, or irritability > > Monotone voice > > Tremor > > Poor handwriting > > Constructional apraxia > > 2 > > Drowsiness > > Disorientation > > Poor short-term memory > > Disinhibited behavior > > Ataxia > > Dysarthria > > Asterixis > > Automatisms (eg, yawning, blinking, sucking) > > 3 > > Somnolence > > Confusion > > Amnesia > > Anger, paranoia, or other bizarre behavior > > Nystagmus > > Muscular rigidity > > Hyperreflexia or hyporeflexia > > 4 > > Coma > > Dilated pupils > > Oculocephalic or oculovestibular reflexes > > Decerebrate posturing > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 10:53:46 PM > Subject: Re: need to vent > > Bonnie, > > Thank you, I have looked up " wet brain " , from my understanding it says > that a person becomes confused and slips into a coma, they don't violently > murder someone. Has anyone heard of someone killing another? I need all > the information I can find on the symptoms,etc of cirrhosis and hepatic > encephalopathy. What type of medical specialist deals with this illness? > > Thank you, this communication is wonderful, god bless > Laurinda > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 8:44:00 PM > Subject: Re: need to vent > > Jackie thanks for the encouragement. To the lady who spoke about > Hepatatic Encephalopathy, My dad was an alcoholic, and one day he just > started > taking apart the house, pulling out nails, tearing off the walls in his own > little world. that was 1983. She had him committed, he wasnt drinking, but > his > ammonia levels were very high. He didnt even know she was there. But from > what > i have learned from the people on this forum and from watching my own > husbands > ammonia levels increase that he gets very tired and it can lead to longer > and > longer sleeping, lethargy etc. Why dont you google " wet brain " . I bet that > would give you some info. Just a thought. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 9:20:50 PM > Subject: Re: need to vent > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > operated on > my husband. I was telling him about this forum and he said it's the best > place > to learn, from real live people. My husband got social security disability > after his open heart surgery in 2004. He had lost his job in Sept. of 2003 > and > was getting unemployment. Ironically, his last unemployment check came the > day > before his open heart surgery. At that time he was 59 and I figured if he > applied for disability he would stand a good chance of getting it. Who > would > hire a 59 year old man with a host of health problems? It took awhile, and > thankfully, we had some savings we were living off of. Once he got his > disability it was retro-active from the date he became disabled. It sounds > like > your husband may get disability. I sure hope so. Maybe it will be > retro-active > like my husband's was. You will be ok. These things have a way of working > themselves out. > My husband is 65 now and it looks like we will be able to enjoy retirement. > He > got a good report from the surgeons today. His liver is functioning real > good > and they even decreased some of the meds. I'm keeping you and your husband > in > my prayers. Let me hear from you soon. Jackie > > > > > Subject: Re: need to vent > To: livercirrhosissupport > Date: Wednesday, August 25, 2010, 9:00 PM > > Hi everyone, I am glad to find this group and unsure how to navigate it. > Hopefully u all can give me some insight. My husband was admitted to the > hospital for 4 days in July. He was told prior to this that he has > cirhossis > and Hepatitis C. His enzymes are up and down. His liver specialist said > that > even though he isnt drinking, they will fluctuate. His white cells and > platelets are very low. Too low for the interferon and ribo shots. He is > using lactulose for the ammonia levels. they were at 77 while in the > hospital > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > tired all the time, he sleeps so much. His liver specialist said that a med > rate of 16 he would need a liver transplant. His med rate is 14. He has > applied for disability. What should I expect.? Hes had an ultrasound, all > of > the labs, and x rays. we are waiting on the results. In any case we were > very > stunned by the news that he is almost at the point of a liver transplant. > Can > someone tell me some of the symptoms, outcomes, prognosis (which i realize > is > different in each case) will he be tired like this all the time. He is 54 > years > old. It doesnt seem like anything can be done, except control the side > effects, > like leg swelling and infection. any input would be appreciate. Thanks > Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 24, 2010 9:53:54 PM > Subject: Re: need to vent > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i > am > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > want > > > scan > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > forgets i > > > fed > > > > > him and skyler the grandson living with us, i found his empty glass > of > > > in > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > grandaughters birthday but its sunday, we went to her party he > doesnt > > > > > remeber it. like i said i am pissed or call it scared what ever it > is i > > > am > > > > > it. my newest grandbaby conts. to do good then bad....to be > expected > > > for a > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > out > > > ...hes > > > > > a boy and for some reason its different than the girls...hes in > time > > > out > > > > > right now....am i to hard on him...or is he to stubborn i dont > know. > > > the > > > > > tears rolling down my face says it all. i am tired but i have to > cont. > > > on i > > > > > have no choice in any of this. if i had my choice i would be at the > > > ocean > > > > > watching the waves lap the shore...eating at cock of the walk with > > > elsie and > > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > > ....??????? really makes me want a glass of wine, but i live to far > > > from > > > > > town and its sunday and i cant get any lol. whys life so messed > > > up...what > > > > > did i do to deserve all this crap???? should i walk away and tell > them > > > all > > > > > do it yourself??? should i just suck it up ,drink water and drive > on > > > soldier > > > > > ???? i know this is my life, for whatever reason these are the > cards > > > dealt > > > > > to me, and i will find away to stand. but right now i am pissy i am > sad > > > i > > > > > miss my life the way it was. i am sorry but if i told anyone in my > > > family > > > > > the way i feel they would blame me for enabling everyone. you all > and > > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > > sugarcoat > > > > > the facts or blow smoke up my butt. i love you all and just needed > to > > > get > > > > > this off my chest cause i have been one angry chick all week cause > i > > > dont > > > > > know where these feelings are supposed to go. i am angry with the > sick > > > ones > > > > > the stupid ones and the ones who just dont give a crap. i wanna lay > in > > > the > > > > > sun with a glass of something...even water lol. in my hand soaking > up > > > the > > > > > rays, without a care in the world....but life wont let me. who > wouldnt > > > be > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > its > > > me > > > > > against all of them.... when will it be my turn? i know that sounds > > > selfish > > > > > but i feel selfish right now. whats god...the universe trying to > tell > > > me? > > > > > well just spit it out already i will do what i need to but i am > tired > > > for > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Group Email: livercirrhosissupport > > > > > web address: > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 hi bobby , i need prayers from everyone i am having a heart cath tomorrow drs are hoping it will fix the swelling problem.i feel horrible my feet look like balloons, i am swollen all over so they can't tap my stomach and the only thing they can find it could be a blockage they found in my artery.if this dosen't work i feel i maybe almost at the end of my fight against this horrible disease.my meld is staying between 19 and 21.have no idea when i will receive my tp.the sad thing is i have only myself to blame.i really enjoy this site i know ii have people i can talk to that have been thru this or are going thru the same things and feelings.thanks to every for listening to me rattle on.glod bless all.hope to talk soon. bless all bev,tx ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 9:18:08 PM Subject: Re: need to vent THANKS GOD. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 3:08:12 PM Subject: Re: need to vent Hi all, Thanks for all of your advice. SS approved my husband for disability. They couldnt tell us over the phone because they said it needed to come by mail...........then ss called to ask us to come in to see them, because we were approved. We still havent got the letter from them. lol However, we have submitted only medical records, and for some reason he needs a payee. Just curious why that might be. Does anyone have any insight, would it be because he is an alcoholic? (recovering) thought? Bonnie ________________________________ To: livercirrhosissupport Sent: Sat, August 28, 2010 10:44:48 AM Subject: Re: need to vent hi bonnie and jackie. my finacial counselor at my liver center gave me lots of good advice to you can get help thru a group called nft for liver tps. at www.transplants.org and bring up nft and you can call them and sign up for free and they will help you raise money for medical and medicine after the tp.imy counselor there is kay horne she is great and the whole staff are very helpful to raise funds.weather you have ins. or not they can help. also your drs officxe may recomend someone to that work with.my social worker also gives me lots of advice and help dealing with some of the ups and downs.but i have found the web groups are much more informative because they are people who have been though the same things. has anyone out there every had to have a heart cath from the neck into the artery with a stent thats what i now need they will due it on monday. eelivercirrhosissupport Sent: Sat, August 28, 2010 2:05:47 AM Subject: Re: need to vent Jackie, thanks for telling me about the disability that is good to know. I am glad he is doing better. The thing that my husband does is gets up in the morning, does what he must do, because he tires so quickly. Also, if he stays on his feet for more than an hour they just swell up, last time they swelled so much he got admitted for sepsis and was in for four days on IV vancomycin etc etc. I hope he gets up more though, he just lays around except for his appointments. Anyway, Thanks Jackie for the info about SS. Thanks also for the prayers. Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, August 27, 2010 9:20:50 PM Subject: Re: need to vent Hi Bonnie: We were just at the drs today and we saw the surgeon who operated on my husband. I was telling him about this forum and he said it's the best place to learn, from real live people. My husband got social security disability after his open heart surgery in 2004. He had lost his job in Sept. of 2003 and was getting unemployment. Ironically, his last unemployment check came the day before his open heart surgery. At that time he was 59 and I figured if he applied for disability he would stand a good chance of getting it. Who would hire a 59 year old man with a host of health problems? It took awhile, and thankfully, we had some savings we were living off of. Once he got his disability it was retro-active from the date he became disabled. It sounds like your husband may get disability. I sure hope so. Maybe it will be retro-active like my husband's was. You will be ok. These things have a way of working themselves out. My husband is 65 now and it looks like we will be able to enjoy retirement. He got a good report from the surgeons today. His liver is functioning real good and they even decreased some of the meds. I'm keeping you and your husband in my prayers. Let me hear from you soon. Jackie Subject: Re: need to vent To: livercirrhosissupport Date: Wednesday, August 25, 2010, 9:00 PM Hi everyone, I am glad to find this group and unsure how to navigate it. Hopefully u all can give me some insight. My husband was admitted to the hospital for 4 days in July. He was told prior to this that he has cirhossis and Hepatitis C. His enzymes are up and down. His liver specialist said that even though he isnt drinking, they will fluctuate. His white cells and platelets are very low. Too low for the interferon and ribo shots. He is using lactulose for the ammonia levels. they were at 77 while in the hospital and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so tired all the time, he sleeps so much. His liver specialist said that a med rate of 16 he would need a liver transplant. His med rate is 14. He has applied for disability. What should I expect.? Hes had an ultrasound, all of the labs, and x rays. we are waiting on the results. In any case we were very stunned by the news that he is almost at the point of a liver transplant. Can someone tell me some of the symptoms, outcomes, prognosis (which i realize is different in each case) will he be tired like this all the time. He is 54 years old. It doesnt seem like anything can be done, except control the side effects, like leg swelling and infection. any input would be appreciate. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Tue, August 24, 2010 9:53:54 PM Subject: Re: need to vent yes roller coater ride puts it mildly girl!!!!! > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i am > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow want > > scan > > > > and labs done NOW not wait till nov. hes losing days by 2. he forgets i > > fed > > > > him and skyler the grandson living with us, i found his empty glass of > > in > > > > the frige instesd of the sink today. he thought it was friday our > > > > grandaughters birthday but its sunday, we went to her party he doesnt > > > > remeber it. like i said i am pissed or call it scared what ever it is i > > am > > > > it. my newest grandbaby conts. to do good then bad....to be expected > > for a > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me out > > ...hes > > > > a boy and for some reason its different than the girls...hes in time > > out > > > > right now....am i to hard on him...or is he to stubborn i dont know. > > the > > > > tears rolling down my face says it all. i am tired but i have to cont. > > on i > > > > have no choice in any of this. if i had my choice i would be at the > > ocean > > > > watching the waves lap the shore...eating at cock of the walk with > > elsie and > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > ....??????? really makes me want a glass of wine, but i live to far > > from > > > > town and its sunday and i cant get any lol. whys life so messed > > up...what > > > > did i do to deserve all this crap???? should i walk away and tell them > > all > > > > do it yourself??? should i just suck it up ,drink water and drive on > > soldier > > > > ???? i know this is my life, for whatever reason these are the cards > > dealt > > > > to me, and i will find away to stand. but right now i am pissy i am sad > > i > > > > miss my life the way it was. i am sorry but if i told anyone in my > > family > > > > the way i feel they would blame me for enabling everyone. you all and > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > sugarcoat > > > > the facts or blow smoke up my butt. i love you all and just needed to > > get > > > > this off my chest cause i have been one angry chick all week cause i > > dont > > > > know where these feelings are supposed to go. i am angry with the sick > > ones > > > > the stupid ones and the ones who just dont give a crap. i wanna lay in > > the > > > > sun with a glass of something...even water lol. in my hand soaking up > > the > > > > rays, without a care in the world....but life wont let me. who wouldnt > > be > > > > pissed. sorry if i have offended anyone...welcome to barbys world its > > me > > > > against all of them.... when will it be my turn? i know that sounds > > selfish > > > > but i feel selfish right now. whats god...the universe trying to tell > > me? > > > > well just spit it out already i will do what i need to but i am tired > > for > > > > crying out loud!! > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Group Email: livercirrhosissupport > > > > web address: > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Penny, the only thing I can come up with is that the transplant in a hep c patient doesn't go away with the transplant but will almost certainly come back. I was shocked whenI first read it too. It really doesn;'t make a difference to me personally since, 1 I don't have hep c and 2 there is no way here in Arizona there is no way ai would get a transplant with all my other medical conditions and 67 years old. My feelings for those who had done nothing risky to get it in the first place, those who got it from a transfusion before they checked. And even those who did engage in risky behavior like drugs and sharing needles or drinking too much. If they have changed their life they are certainly worthy of a transplant, and can be a good example for younger people not to follow their path. I used to ask the doctors all the time why I got cirrhosis since I didn't drink a lot, didn't use street drugs, found lots of reasons on my own, hereditary, untreated and under treated thyroid. But I will never know for sure, doctors just say " {you have it in your history and other things may haave increased your chances. Jan > Wow, Jan. That part where you said your state insurance wouldn't give you > a transplant if you had Hepatitis C. That's not fair! I had medical > assistance or Medicaid before I got on SSDI and Medicare. If my state > worked the same way, if I didn't get on Medicare, I wouldn't have received a > transplant. Not that it matters how you get Hepatitis C, but there are > people like me who have no idea how they contracted it because of never > having a blood transfusion or injecting drugs or any of the other risk > factors. Getting Hepatitis C isn't the fault of the person infected no > matter how they contracted it anyway. That's really unfair! > > Penny > > > > > > > > > > > > > > > > > this will sound crazy so if you want to skip reading i wont > mind. > > > i > > > > am > > > > > > > > pissed, bobby glenns not been feeling well calling dr. > tommorrow > > > > want > > > > > > scan > > > > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > > > > forgets i > > > > > > fed > > > > > > > > him and skyler the grandson living with us, i found his empty > > > glass > > > > of > > > > > > in > > > > > > > > the frige instesd of the sink today. he thought it was friday > our > > > > > > > > grandaughters birthday but its sunday, we went to her party > he > > > > doesnt > > > > > > > > remeber it. like i said i am pissed or call it scared what > ever > > > it > > > > is i > > > > > > am > > > > > > > > it. my newest grandbaby conts. to do good then bad....to be > > > > expected > > > > > > for a > > > > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing > me > > > > out > > > > > > ...hes > > > > > > > > a boy and for some reason its different than the girls...hes > in > > > > time > > > > > > out > > > > > > > > right now....am i to hard on him...or is he to stubborn i > dont > > > > know. > > > > > > the > > > > > > > > tears rolling down my face says it all. i am tired but i have > to > > > > cont. > > > > > > on i > > > > > > > > have no choice in any of this. if i had my choice i would be > at > > > the > > > > > > ocean > > > > > > > > watching the waves lap the shore...eating at cock of the walk > > > with > > > > > > elsie and > > > > > > > > roger...but i have no choice. i am here i am mad i am > confused i > > > am > > > > > > > > ....??????? really makes me want a glass of wine, but i live > to > > > far > > > > > > from > > > > > > > > town and its sunday and i cant get any lol. whys life so > messed > > > > > > up...what > > > > > > > > did i do to deserve all this crap???? should i walk away and > tell > > > > them > > > > > > all > > > > > > > > do it yourself??? should i just suck it up ,drink water and > drive > > > > on > > > > > > soldier > > > > > > > > ???? i know this is my life, for whatever reason these are > the > > > > cards > > > > > > dealt > > > > > > > > to me, and i will find away to stand. but right now i am > pissy i > > > am > > > > sad > > > > > > i > > > > > > > > miss my life the way it was. i am sorry but if i told anyone > in > > > my > > > > > > family > > > > > > > > the way i feel they would blame me for enabling everyone. you > all > > > > and > > > > > > > > elsie...aka mae mae are they only ones i have to vent to that > > > dont > > > > > > sugarcoat > > > > > > > > the facts or blow smoke up my butt. i love you all and just > > > needed > > > > to > > > > > > get > > > > > > > > this off my chest cause i have been one angry chick all week > > > cause > > > > i > > > > > > dont > > > > > > > > know where these feelings are supposed to go. i am angry with > the > > > > sick > > > > > > ones > > > > > > > > the stupid ones and the ones who just dont give a crap. i > wanna > > > lay > > > > in > > > > > > the > > > > > > > > sun with a glass of something...even water lol. in my hand > > > soaking > > > > up > > > > > > the > > > > > > > > rays, without a care in the world....but life wont let me. > who > > > > wouldnt > > > > > > be > > > > > > > > pissed. sorry if i have offended anyone...welcome to barbys > world > > > > its > > > > > > me > > > > > > > > against all of them.... when will it be my turn? i know that > > > sounds > > > > > > selfish > > > > > > > > but i feel selfish right now. whats god...the universe trying > to > > > > tell > > > > > > me? > > > > > > > > well just spit it out already i will do what i need to but i > am > > > > tired > > > > > > for > > > > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > > > Group Email: livercirrhosissupport > > > > > > > > web address: > > > > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 I will say a prayer too. Bonnie ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 9:44:40 PM Subject: Re: need to vent hi bobby , i need prayers from everyone i am having a heart cath tomorrow drs are hoping it will fix the swelling problem.i feel horrible my feet look like balloons, i am swollen all over so they can't tap my stomach and the only thing they can find it could be a blockage they found in my artery.if this dosen't work i feel i maybe almost at the end of my fight against this horrible disease.my meld is staying between 19 and 21.have no idea when i will receive my tp.the sad thing is i have only myself to blame.i really enjoy this site i know ii have people i can talk to that have been thru this or are going thru the same things and feelings.thanks to every for listening to me rattle on.glod bless all.hope to talk soon. bless all bev,tx ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 9:18:08 PM Subject: Re: need to vent THANKS GOD. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 3:08:12 PM Subject: Re: need to vent Hi all, Thanks for all of your advice. SS approved my husband for disability. They couldnt tell us over the phone because they said it needed to come by mail...........then ss called to ask us to come in to see them, because we were approved. We still havent got the letter from them. lol However, we have submitted only medical records, and for some reason he needs a payee. Just curious why that might be. Does anyone have any insight, would it be because he is an alcoholic? (recovering) thought? Bonnie ________________________________ To: livercirrhosissupport Sent: Sat, August 28, 2010 10:44:48 AM Subject: Re: need to vent hi bonnie and jackie. my finacial counselor at my liver center gave me lots of good advice to you can get help thru a group called nft for liver tps. at www.transplants.org and bring up nft and you can call them and sign up for free and they will help you raise money for medical and medicine after the tp.imy counselor there is kay horne she is great and the whole staff are very helpful to raise funds.weather you have ins. or not they can help. also your drs officxe may recomend someone to that work with.my social worker also gives me lots of advice and help dealing with some of the ups and downs.but i have found the web groups are much more informative because they are people who have been though the same things. has anyone out there every had to have a heart cath from the neck into the artery with a stent thats what i now need they will due it on monday. eelivercirrhosissupport Sent: Sat, August 28, 2010 2:05:47 AM Subject: Re: need to vent Jackie, thanks for telling me about the disability that is good to know. I am glad he is doing better. The thing that my husband does is gets up in the morning, does what he must do, because he tires so quickly. Also, if he stays on his feet for more than an hour they just swell up, last time they swelled so much he got admitted for sepsis and was in for four days on IV vancomycin etc etc. I hope he gets up more though, he just lays around except for his appointments. Anyway, Thanks Jackie for the info about SS. Thanks also for the prayers. Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, August 27, 2010 9:20:50 PM Subject: Re: need to vent Hi Bonnie: We were just at the drs today and we saw the surgeon who operated on my husband. I was telling him about this forum and he said it's the best place to learn, from real live people. My husband got social security disability after his open heart surgery in 2004. He had lost his job in Sept. of 2003 and was getting unemployment. Ironically, his last unemployment check came the day before his open heart surgery. At that time he was 59 and I figured if he applied for disability he would stand a good chance of getting it. Who would hire a 59 year old man with a host of health problems? It took awhile, and thankfully, we had some savings we were living off of. Once he got his disability it was retro-active from the date he became disabled. It sounds like your husband may get disability. I sure hope so. Maybe it will be retro-active like my husband's was. You will be ok. These things have a way of working themselves out. My husband is 65 now and it looks like we will be able to enjoy retirement. He got a good report from the surgeons today. His liver is functioning real good and they even decreased some of the meds. I'm keeping you and your husband in my prayers. Let me hear from you soon. Jackie Subject: Re: need to vent To: livercirrhosissupport Date: Wednesday, August 25, 2010, 9:00 PM Hi everyone, I am glad to find this group and unsure how to navigate it. Hopefully u all can give me some insight. My husband was admitted to the hospital for 4 days in July. He was told prior to this that he has cirhossis and Hepatitis C. His enzymes are up and down. His liver specialist said that even though he isnt drinking, they will fluctuate. His white cells and platelets are very low. Too low for the interferon and ribo shots. He is using lactulose for the ammonia levels. they were at 77 while in the hospital and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so tired all the time, he sleeps so much. His liver specialist said that a med rate of 16 he would need a liver transplant. His med rate is 14. He has applied for disability. What should I expect.? Hes had an ultrasound, all of the labs, and x rays. we are waiting on the results. In any case we were very stunned by the news that he is almost at the point of a liver transplant. Can someone tell me some of the symptoms, outcomes, prognosis (which i realize is different in each case) will he be tired like this all the time. He is 54 years old. It doesnt seem like anything can be done, except control the side effects, like leg swelling and infection. any input would be appreciate. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Tue, August 24, 2010 9:53:54 PM Subject: Re: need to vent yes roller coater ride puts it mildly girl!!!!! > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i am > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow want > > scan > > > > and labs done NOW not wait till nov. hes losing days by 2. he forgets i > > fed > > > > him and skyler the grandson living with us, i found his empty glass of > > in > > > > the frige instesd of the sink today. he thought it was friday our > > > > grandaughters birthday but its sunday, we went to her party he doesnt > > > > remeber it. like i said i am pissed or call it scared what ever it is i > > am > > > > it. my newest grandbaby conts. to do good then bad....to be expected > > for a > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me out > > ...hes > > > > a boy and for some reason its different than the girls...hes in time > > out > > > > right now....am i to hard on him...or is he to stubborn i dont know. > > the > > > > tears rolling down my face says it all. i am tired but i have to cont. > > on i > > > > have no choice in any of this. if i had my choice i would be at the > > ocean > > > > watching the waves lap the shore...eating at cock of the walk with > > elsie and > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > ....??????? really makes me want a glass of wine, but i live to far > > from > > > > town and its sunday and i cant get any lol. whys life so messed > > up...what > > > > did i do to deserve all this crap???? should i walk away and tell them > > all > > > > do it yourself??? should i just suck it up ,drink water and drive on > > soldier > > > > ???? i know this is my life, for whatever reason these are the cards > > dealt > > > > to me, and i will find away to stand. but right now i am pissy i am sad > > i > > > > miss my life the way it was. i am sorry but if i told anyone in my > > family > > > > the way i feel they would blame me for enabling everyone. you all and > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > sugarcoat > > > > the facts or blow smoke up my butt. i love you all and just needed to > > get > > > > this off my chest cause i have been one angry chick all week cause i > > dont > > > > know where these feelings are supposed to go. i am angry with the sick > > ones > > > > the stupid ones and the ones who just dont give a crap. i wanna lay in > > the > > > > sun with a glass of something...even water lol. in my hand soaking up > > the > > > > rays, without a care in the world....but life wont let me. who wouldnt > > be > > > > pissed. sorry if i have offended anyone...welcome to barbys world its > > me > > > > against all of them.... when will it be my turn? i know that sounds > > selfish > > > > but i feel selfish right now. whats god...the universe trying to tell > > me? > > > > well just spit it out already i will do what i need to but i am tired > > for > > > > crying out loud!! > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Group Email: livercirrhosissupport > > > > web address: > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Bev I have had 17 angiograms and angioplasties, maybe 19, and no problems. They have helped with fluid build up. As to blaming yourself. That really does more harm than good. Recognizing that you may have done things which contributed to your present condition is one thing, only stating the obvious for most of us. But if you keep blaming yourself, you are using up energy you need to fight off things, and to get through the day, week, month. You are different now, so, no blame from now on in. Jan On Tue, Aug 31, 2010 at 7:44 PM, Beverly Hurlock wrote: > hi bobby , i need prayers from everyone i am having a heart cath tomorrow > drs > are hoping it will fix the swelling problem.i feel horrible my feet look > like > balloons, i am swollen all over so they can't tap my stomach and the only > thing > they can find it could be a blockage they found in my artery.if this > dosen't > work i feel i maybe almost at the end of my fight against this horrible > disease.my meld is staying between 19 and 21.have no idea when i will > receive my > tp.the sad thing is i have only myself to blame.i really enjoy this site i > know > ii have people i can talk to that have been thru this or are going thru the > same > things and feelings.thanks to every for listening to me rattle on.glod > bless > all.hope to talk soon. > > bless all > bev,tx > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 31, 2010 9:18:08 PM > Subject: Re: need to vent > > > THANKS GOD. Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 31, 2010 3:08:12 PM > Subject: Re: need to vent > > Hi all, Thanks for all of your advice. SS approved my husband for > disability. > They couldnt tell us over the phone because they said it needed to come by > mail...........then ss called to ask us to come in to see them, because we > were > approved. We still havent got the letter from them. lol However, we > have > submitted only medical records, and for some reason he needs a payee. Just > curious why that might be. Does anyone have any insight, would it be > because he > > > is an alcoholic? (recovering) thought? Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 10:44:48 AM > Subject: Re: need to vent > > hi bonnie and jackie. > > my finacial counselor at my liver center gave me lots of good advice to you > can > get help thru a group called nft for liver tps. at www.transplants.organd > bring up nft and you can call them and sign up for free and they will help > you > raise money for medical and medicine after the tp.imy counselor there is > kay > horne she is great and the whole staff are very helpful to raise > funds.weather > you have ins. or not they can help. also your drs officxe may recomend > someone > to that work with.my social worker also gives me lots of advice and help > dealing > > > with some of the ups and downs.but i have found the web groups are much > more > informative because they are people who have been though the same things. > has > anyone out there every had to have a heart cath from the neck into the > artery > with a stent thats what i now need they will due it on monday. > > eelivercirrhosissupport > Sent: Sat, August 28, 2010 2:05:47 AM > Subject: Re: need to vent > > Jackie, thanks for telling me about the disability that is good to know. I > am > glad he is doing better. The thing that my husband does is gets up in the > morning, does what he must do, because he tires so quickly. Also, if he > stays > on his feet for more than an hour they just swell up, last time they > swelled so > much he got admitted for sepsis and was in for four days on IV vancomycin > etc > etc. I hope he gets up more though, he just lays around except for his > appointments. Anyway, Thanks Jackie for the info about SS. Thanks also for > the > prayers. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 9:20:50 PM > Subject: Re: need to vent > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > operated on > > > my husband. I was telling him about this forum and he said it's the best > place > to learn, from real live people. My husband got social security disability > after his open heart surgery in 2004. He had lost his job in Sept. of 2003 > and > was getting unemployment. Ironically, his last unemployment check came the > day > before his open heart surgery. At that time he was 59 and I figured if he > applied for disability he would stand a good chance of getting it. Who > would > hire a 59 year old man with a host of health problems? It took awhile, and > thankfully, we had some savings we were living off of. Once he got his > disability it was retro-active from the date he became disabled. It sounds > like > > > your husband may get disability. I sure hope so. Maybe it will be > retro-active > > > like my husband's was. You will be ok. These things have a way of working > themselves out. > My husband is 65 now and it looks like we will be able to enjoy retirement. > He > got a good report from the surgeons today. His liver is functioning real > good > and they even decreased some of the meds. I'm keeping you and your husband > in > my prayers. Let me hear from you soon. Jackie > > > > > Subject: Re: need to vent > To: livercirrhosissupport > Date: Wednesday, August 25, 2010, 9:00 PM > > Hi everyone, I am glad to find this group and unsure how to navigate it. > Hopefully u all can give me some insight. My husband was admitted to the > hospital for 4 days in July. He was told prior to this that he has > cirhossis > and Hepatitis C. His enzymes are up and down. His liver specialist said > that > even though he isnt drinking, they will fluctuate. His white cells and > platelets are very low. Too low for the interferon and ribo shots. He is > using lactulose for the ammonia levels. they were at 77 while in the > hospital > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > tired all the time, he sleeps so much. His liver specialist said that a med > rate of 16 he would need a liver transplant. His med rate is 14. He has > applied for disability. What should I expect.? Hes had an ultrasound, all > of > the labs, and x rays. we are waiting on the results. In any case we were > very > stunned by the news that he is almost at the point of a liver transplant. > Can > someone tell me some of the symptoms, outcomes, prognosis (which i realize > is > different in each case) will he be tired like this all the time. He is 54 > years > old. It doesnt seem like anything can be done, except control the side > effects, > like leg swelling and infection. any input would be appreciate. Thanks > Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 24, 2010 9:53:54 PM > Subject: Re: need to vent > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i > am > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > want > > > scan > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > forgets i > > > fed > > > > > him and skyler the grandson living with us, i found his empty glass > of > > > in > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > grandaughters birthday but its sunday, we went to her party he > doesnt > > > > > remeber it. like i said i am pissed or call it scared what ever it > is i > > > am > > > > > it. my newest grandbaby conts. to do good then bad....to be > expected > > > for a > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > out > > > ...hes > > > > > a boy and for some reason its different than the girls...hes in > time > > > out > > > > > right now....am i to hard on him...or is he to stubborn i dont > know. > > > the > > > > > tears rolling down my face says it all. i am tired but i have to > cont. > > > on i > > > > > have no choice in any of this. if i had my choice i would be at the > > > ocean > > > > > watching the waves lap the shore...eating at cock of the walk with > > > elsie and > > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > > ....??????? really makes me want a glass of wine, but i live to far > > > from > > > > > town and its sunday and i cant get any lol. whys life so messed > > > up...what > > > > > did i do to deserve all this crap???? should i walk away and tell > them > > > all > > > > > do it yourself??? should i just suck it up ,drink water and drive > on > > > soldier > > > > > ???? i know this is my life, for whatever reason these are the > cards > > > dealt > > > > > to me, and i will find away to stand. but right now i am pissy i am > sad > > > i > > > > > miss my life the way it was. i am sorry but if i told anyone in my > > > family > > > > > the way i feel they would blame me for enabling everyone. you all > and > > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > > sugarcoat > > > > > the facts or blow smoke up my butt. i love you all and just needed > to > > > get > > > > > this off my chest cause i have been one angry chick all week cause > i > > > dont > > > > > know where these feelings are supposed to go. i am angry with the > sick > > > ones > > > > > the stupid ones and the ones who just dont give a crap. i wanna lay > in > > > the > > > > > sun with a glass of something...even water lol. in my hand soaking > up > > > the > > > > > rays, without a care in the world....but life wont let me. who > wouldnt > > > be > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > its > > > me > > > > > against all of them.... when will it be my turn? i know that sounds > > > selfish > > > > > but i feel selfish right now. whats god...the universe trying to > tell > > > me? > > > > > well just spit it out already i will do what i need to but i am > tired > > > for > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Group Email: livercirrhosissupport > > > > > web address: > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Beverly  My prayers are with you....and we are here for you.   Hugs  Lyncia Thank you God for this day and for my tomorrows .  Love, Lyncia   Subject: Re: need to vent To: livercirrhosissupport Date: Wednesday, August 25, 2010, 9:00 PM Hi everyone, I am glad to find this group and unsure how to navigate it. Hopefully u all can give me some insight. My husband was admitted to the hospital for 4 days in July. He was told prior to this that he has cirhossis and Hepatitis C. His enzymes are up and down. His liver specialist said that even though he isnt drinking, they will fluctuate. His white cells and platelets are very low. Too low for the interferon and ribo shots. He is using lactulose for the ammonia levels. they were at 77 while in the hospital and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so tired all the time, he sleeps so much. His liver specialist said that a med rate of 16 he would need a liver transplant. His med rate is 14. He has applied for disability. What should I expect.? Hes had an ultrasound, all of the labs, and x rays. we are waiting on the results. In any case we were very stunned by the news that he is almost at the point of a liver transplant. Can someone tell me some of the symptoms, outcomes, prognosis (which i realize is different in each case) will he be tired like this all the time. He is 54 years old. It doesnt seem like anything can be done, except control the side effects, like leg swelling and infection. any input would be appreciate. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Tue, August 24, 2010 9:53:54 PM Subject: Re: need to vent yes roller coater ride puts it mildly girl!!!!! > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i am > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow want > > scan > > > > and labs done NOW not wait till nov. hes losing days by 2. he forgets i > > fed > > > > him and skyler the grandson living with us, i found his empty glass of > > in > > > > the frige instesd of the sink today. he thought it was friday our > > > > grandaughters birthday but its sunday, we went to her party he doesnt > > > > remeber it. like i said i am pissed or call it scared what ever it is i > > am > > > > it. my newest grandbaby conts. to do good then bad....to be expected > > for a > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me out > > ...hes > > > > a boy and for some reason its different than the girls...hes in time > > out > > > > right now....am i to hard on him...or is he to stubborn i dont know. > > the > > > > tears rolling down my face says it all. i am tired but i have to cont. > > on i > > > > have no choice in any of this. if i had my choice i would be at the > > ocean > > > > watching the waves lap the shore...eating at cock of the walk with > > elsie and > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > ....??????? really makes me want a glass of wine, but i live to far > > from > > > > town and its sunday and i cant get any lol. whys life so messed > > up...what > > > > did i do to deserve all this crap???? should i walk away and tell them > > all > > > > do it yourself??? should i just suck it up ,drink water and drive on > > soldier > > > > ???? i know this is my life, for whatever reason these are the cards > > dealt > > > > to me, and i will find away to stand. but right now i am pissy i am sad > > i > > > > miss my life the way it was. i am sorry but if i told anyone in my > > family > > > > the way i feel they would blame me for enabling everyone. you all and > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > sugarcoat > > > > the facts or blow smoke up my butt. i love you all and just needed to > > get > > > > this off my chest cause i have been one angry chick all week cause i > > dont > > > > know where these feelings are supposed to go. i am angry with the sick > > ones > > > > the stupid ones and the ones who just dont give a crap. i wanna lay in > > the > > > > sun with a glass of something...even water lol. in my hand soaking up > > the > > > > rays, without a care in the world....but life wont let me. who wouldnt > > be > > > > pissed. sorry if i have offended anyone...welcome to barbys world its > > me > > > > against all of them.... when will it be my turn? i know that sounds > > selfish > > > > but i feel selfish right now. whats god...the universe trying to tell > > me? > > > > well just spit it out already i will do what i need to but i am tired > > for > > > > crying out loud!! > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Group Email: livercirrhosissupport > > > > web address: > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 thank you jan.i know i can't go back and i need all my strength focused on fighting this disease.and i think god and my friends everyday for helping me remember one day at a time. god blees bev,tx ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 10:06:19 PM Subject: Re: need to vent Bev I have had 17 angiograms and angioplasties, maybe 19, and no problems. They have helped with fluid build up. As to blaming yourself. That really does more harm than good. Recognizing that you may have done things which contributed to your present condition is one thing, only stating the obvious for most of us. But if you keep blaming yourself, you are using up energy you need to fight off things, and to get through the day, week, month. You are different now, so, no blame from now on in. Jan On Tue, Aug 31, 2010 at 7:44 PM, Beverly Hurlock wrote: > hi bobby , i need prayers from everyone i am having a heart cath tomorrow > drs > are hoping it will fix the swelling problem.i feel horrible my feet look > like > balloons, i am swollen all over so they can't tap my stomach and the only > thing > they can find it could be a blockage they found in my artery.if this > dosen't > work i feel i maybe almost at the end of my fight against this horrible > disease.my meld is staying between 19 and 21.have no idea when i will > receive my > tp.the sad thing is i have only myself to blame.i really enjoy this site i > know > ii have people i can talk to that have been thru this or are going thru the > same > things and feelings.thanks to every for listening to me rattle on.glod > bless > all.hope to talk soon. > > bless all > bev,tx > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 31, 2010 9:18:08 PM > Subject: Re: need to vent > > > THANKS GOD. Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 31, 2010 3:08:12 PM > Subject: Re: need to vent > > Hi all, Thanks for all of your advice. SS approved my husband for > disability. > They couldnt tell us over the phone because they said it needed to come by > mail...........then ss called to ask us to come in to see them, because we > were > approved. We still havent got the letter from them. lol However, we > have > submitted only medical records, and for some reason he needs a payee. Just > curious why that might be. Does anyone have any insight, would it be > because he > > > is an alcoholic? (recovering) thought? Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Sat, August 28, 2010 10:44:48 AM > Subject: Re: need to vent > > hi bonnie and jackie. > > my finacial counselor at my liver center gave me lots of good advice to you > can > get help thru a group called nft for liver tps. at www.transplants.organd > bring up nft and you can call them and sign up for free and they will help > you > raise money for medical and medicine after the tp.imy counselor there is > kay > horne she is great and the whole staff are very helpful to raise > funds.weather > you have ins. or not they can help. also your drs officxe may recomend > someone > to that work with.my social worker also gives me lots of advice and help > dealing > > > with some of the ups and downs.but i have found the web groups are much > more > informative because they are people who have been though the same things. > has > anyone out there every had to have a heart cath from the neck into the > artery > with a stent thats what i now need they will due it on monday. > > eelivercirrhosissupport > Sent: Sat, August 28, 2010 2:05:47 AM > Subject: Re: need to vent > > Jackie, thanks for telling me about the disability that is good to know. I > am > glad he is doing better. The thing that my husband does is gets up in the > morning, does what he must do, because he tires so quickly. Also, if he > stays > on his feet for more than an hour they just swell up, last time they > swelled so > much he got admitted for sepsis and was in for four days on IV vancomycin > etc > etc. I hope he gets up more though, he just lays around except for his > appointments. Anyway, Thanks Jackie for the info about SS. Thanks also for > the > prayers. Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, August 27, 2010 9:20:50 PM > Subject: Re: need to vent > > Hi Bonnie: We were just at the drs today and we saw the surgeon who > operated on > > > my husband. I was telling him about this forum and he said it's the best > place > to learn, from real live people. My husband got social security disability > after his open heart surgery in 2004. He had lost his job in Sept. of 2003 > and > was getting unemployment. Ironically, his last unemployment check came the > day > before his open heart surgery. At that time he was 59 and I figured if he > applied for disability he would stand a good chance of getting it. Who > would > hire a 59 year old man with a host of health problems? It took awhile, and > thankfully, we had some savings we were living off of. Once he got his > disability it was retro-active from the date he became disabled. It sounds > like > > > your husband may get disability. I sure hope so. Maybe it will be > retro-active > > > like my husband's was. You will be ok. These things have a way of working > themselves out. > My husband is 65 now and it looks like we will be able to enjoy retirement. > He > got a good report from the surgeons today. His liver is functioning real > good > and they even decreased some of the meds. I'm keeping you and your husband > in > my prayers. Let me hear from you soon. Jackie > > > > > Subject: Re: need to vent > To: livercirrhosissupport > Date: Wednesday, August 25, 2010, 9:00 PM > > Hi everyone, I am glad to find this group and unsure how to navigate it. > Hopefully u all can give me some insight. My husband was admitted to the > hospital for 4 days in July. He was told prior to this that he has > cirhossis > and Hepatitis C. His enzymes are up and down. His liver specialist said > that > even though he isnt drinking, they will fluctuate. His white cells and > platelets are very low. Too low for the interferon and ribo shots. He is > using lactulose for the ammonia levels. they were at 77 while in the > hospital > and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so > tired all the time, he sleeps so much. His liver specialist said that a med > rate of 16 he would need a liver transplant. His med rate is 14. He has > applied for disability. What should I expect.? Hes had an ultrasound, all > of > the labs, and x rays. we are waiting on the results. In any case we were > very > stunned by the news that he is almost at the point of a liver transplant. > Can > someone tell me some of the symptoms, outcomes, prognosis (which i realize > is > different in each case) will he be tired like this all the time. He is 54 > years > old. It doesnt seem like anything can be done, except control the side > effects, > like leg swelling and infection. any input would be appreciate. Thanks > Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, August 24, 2010 9:53:54 PM > Subject: Re: need to vent > > yes roller coater ride puts it mildly girl!!!!! > > > > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i > am > > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow > want > > > scan > > > > > and labs done NOW not wait till nov. hes losing days by 2. he > forgets i > > > fed > > > > > him and skyler the grandson living with us, i found his empty glass > of > > > in > > > > > the frige instesd of the sink today. he thought it was friday our > > > > > grandaughters birthday but its sunday, we went to her party he > doesnt > > > > > remeber it. like i said i am pissed or call it scared what ever it > is i > > > am > > > > > it. my newest grandbaby conts. to do good then bad....to be > expected > > > for a > > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me > out > > > ...hes > > > > > a boy and for some reason its different than the girls...hes in > time > > > out > > > > > right now....am i to hard on him...or is he to stubborn i dont > know. > > > the > > > > > tears rolling down my face says it all. i am tired but i have to > cont. > > > on i > > > > > have no choice in any of this. if i had my choice i would be at the > > > ocean > > > > > watching the waves lap the shore...eating at cock of the walk with > > > elsie and > > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > > ....??????? really makes me want a glass of wine, but i live to far > > > from > > > > > town and its sunday and i cant get any lol. whys life so messed > > > up...what > > > > > did i do to deserve all this crap???? should i walk away and tell > them > > > all > > > > > do it yourself??? should i just suck it up ,drink water and drive > on > > > soldier > > > > > ???? i know this is my life, for whatever reason these are the > cards > > > dealt > > > > > to me, and i will find away to stand. but right now i am pissy i am > sad > > > i > > > > > miss my life the way it was. i am sorry but if i told anyone in my > > > family > > > > > the way i feel they would blame me for enabling everyone. you all > and > > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > > sugarcoat > > > > > the facts or blow smoke up my butt. i love you all and just needed > to > > > get > > > > > this off my chest cause i have been one angry chick all week cause > i > > > dont > > > > > know where these feelings are supposed to go. i am angry with the > sick > > > ones > > > > > the stupid ones and the ones who just dont give a crap. i wanna lay > in > > > the > > > > > sun with a glass of something...even water lol. in my hand soaking > up > > > the > > > > > rays, without a care in the world....but life wont let me. who > wouldnt > > > be > > > > > pissed. sorry if i have offended anyone...welcome to barbys world > its > > > me > > > > > against all of them.... when will it be my turn? i know that sounds > > > selfish > > > > > but i feel selfish right now. whats god...the universe trying to > tell > > > me? > > > > > well just spit it out already i will do what i need to but i am > tired > > > for > > > > > crying out loud!! > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Group Email: livercirrhosissupport > > > > > web address: > > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2010 Report Share Posted September 1, 2010 Dear Beverly, we will be praying for you. I hope that you get that fresh liver soon. Just try to remember one thing, no matter how bleak it may feel or seem...We are here for a time, but it is not us who decides when that time is up. To quote Pink Floyd- Don't give in -without a fight. My daughter once gave me a card that reads " everything will be ok in the end. It it's not ok, then it's not the end " . God bless you. Love, Bobby To: livercirrhosissupport Sent: Tue, August 31, 2010 8:44:40 PM Subject: Re: need to vent hi bobby , i need prayers from everyone i am having a heart cath tomorrow drs are hoping it will fix the swelling problem.i feel horrible my feet look like balloons, i am swollen all over so they can't tap my stomach and the only thing they can find it could be a blockage they found in my artery.if this dosen't work i feel i maybe almost at the end of my fight against this horrible disease.my meld is staying between 19 and 21.have no idea when i will receive my tp.the sad thing is i have only myself to blame.i really enjoy this site i know ii have people i can talk to that have been thru this or are going thru the same things and feelings.thanks to every for listening to me rattle on.glod bless all.hope to talk soon. bless all bev,tx ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 9:18:08 PM Subject: Re: need to vent THANKS GOD. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 3:08:12 PM Subject: Re: need to vent Hi all, Thanks for all of your advice. SS approved my husband for disability. They couldnt tell us over the phone because they said it needed to come by mail...........then ss called to ask us to come in to see them, because we were approved. We still havent got the letter from them. lol However, we have submitted only medical records, and for some reason he needs a payee. Just curious why that might be. Does anyone have any insight, would it be because he is an alcoholic? (recovering) thought? Bonnie ________________________________ To: livercirrhosissupport Sent: Sat, August 28, 2010 10:44:48 AM Subject: Re: need to vent hi bonnie and jackie. my finacial counselor at my liver center gave me lots of good advice to you can get help thru a group called nft for liver tps. at www.transplants.org and bring up nft and you can call them and sign up for free and they will help you raise money for medical and medicine after the tp.imy counselor there is kay horne she is great and the whole staff are very helpful to raise funds.weather you have ins. or not they can help. also your drs officxe may recomend someone to that work with.my social worker also gives me lots of advice and help dealing with some of the ups and downs.but i have found the web groups are much more informative because they are people who have been though the same things. has anyone out there every had to have a heart cath from the neck into the artery with a stent thats what i now need they will due it on monday. eelivercirrhosissupport Sent: Sat, August 28, 2010 2:05:47 AM Subject: Re: need to vent Jackie, thanks for telling me about the disability that is good to know. I am glad he is doing better. The thing that my husband does is gets up in the morning, does what he must do, because he tires so quickly. Also, if he stays on his feet for more than an hour they just swell up, last time they swelled so much he got admitted for sepsis and was in for four days on IV vancomycin etc etc. I hope he gets up more though, he just lays around except for his appointments. Anyway, Thanks Jackie for the info about SS. Thanks also for the prayers. Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, August 27, 2010 9:20:50 PM Subject: Re: need to vent Hi Bonnie: We were just at the drs today and we saw the surgeon who operated on my husband. I was telling him about this forum and he said it's the best place to learn, from real live people. My husband got social security disability after his open heart surgery in 2004. He had lost his job in Sept. of 2003 and was getting unemployment. Ironically, his last unemployment check came the day before his open heart surgery. At that time he was 59 and I figured if he applied for disability he would stand a good chance of getting it. Who would hire a 59 year old man with a host of health problems? It took awhile, and thankfully, we had some savings we were living off of. Once he got his disability it was retro-active from the date he became disabled. It sounds like your husband may get disability. I sure hope so. Maybe it will be retro-active like my husband's was. You will be ok. These things have a way of working themselves out. My husband is 65 now and it looks like we will be able to enjoy retirement. He got a good report from the surgeons today. His liver is functioning real good and they even decreased some of the meds. I'm keeping you and your husband in my prayers. Let me hear from you soon. Jackie Subject: Re: need to vent To: livercirrhosissupport Date: Wednesday, August 25, 2010, 9:00 PM Hi everyone, I am glad to find this group and unsure how to navigate it. Hopefully u all can give me some insight. My husband was admitted to the hospital for 4 days in July. He was told prior to this that he has cirhossis and Hepatitis C. His enzymes are up and down. His liver specialist said that even though he isnt drinking, they will fluctuate. His white cells and platelets are very low. Too low for the interferon and ribo shots. He is using lactulose for the ammonia levels. they were at 77 while in the hospital and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so tired all the time, he sleeps so much. His liver specialist said that a med rate of 16 he would need a liver transplant. His med rate is 14. He has applied for disability. What should I expect.? Hes had an ultrasound, all of the labs, and x rays. we are waiting on the results. In any case we were very stunned by the news that he is almost at the point of a liver transplant. Can someone tell me some of the symptoms, outcomes, prognosis (which i realize is different in each case) will he be tired like this all the time. He is 54 years old. It doesnt seem like anything can be done, except control the side effects, like leg swelling and infection. any input would be appreciate. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Tue, August 24, 2010 9:53:54 PM Subject: Re: need to vent yes roller coater ride puts it mildly girl!!!!! > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i am > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow want > > scan > > > > and labs done NOW not wait till nov. hes losing days by 2. he forgets i > > fed > > > > him and skyler the grandson living with us, i found his empty glass of > > in > > > > the frige instesd of the sink today. he thought it was friday our > > > > grandaughters birthday but its sunday, we went to her party he doesnt > > > > remeber it. like i said i am pissed or call it scared what ever it is i > > am > > > > it. my newest grandbaby conts. to do good then bad....to be expected > > for a > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me out > > ...hes > > > > a boy and for some reason its different than the girls...hes in time > > out > > > > right now....am i to hard on him...or is he to stubborn i dont know. > > the > > > > tears rolling down my face says it all. i am tired but i have to cont. > > on i > > > > have no choice in any of this. if i had my choice i would be at the > > ocean > > > > watching the waves lap the shore...eating at cock of the walk with > > elsie and > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > ....??????? really makes me want a glass of wine, but i live to far > > from > > > > town and its sunday and i cant get any lol. whys life so messed > > up...what > > > > did i do to deserve all this crap???? should i walk away and tell them > > all > > > > do it yourself??? should i just suck it up ,drink water and drive on > > soldier > > > > ???? i know this is my life, for whatever reason these are the cards > > dealt > > > > to me, and i will find away to stand. but right now i am pissy i am sad > > i > > > > miss my life the way it was. i am sorry but if i told anyone in my > > family > > > > the way i feel they would blame me for enabling everyone. you all and > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > sugarcoat > > > > the facts or blow smoke up my butt. i love you all and just needed to > > get > > > > this off my chest cause i have been one angry chick all week cause i > > dont > > > > know where these feelings are supposed to go. i am angry with the sick > > ones > > > > the stupid ones and the ones who just dont give a crap. i wanna lay in > > the > > > > sun with a glass of something...even water lol. in my hand soaking up > > the > > > > rays, without a care in the world....but life wont let me. who wouldnt > > be > > > > pissed. sorry if i have offended anyone...welcome to barbys world its > > me > > > > against all of them.... when will it be my turn? i know that sounds > > selfish > > > > but i feel selfish right now. whats god...the universe trying to tell > > me? > > > > well just spit it out already i will do what i need to but i am tired > > for > > > > crying out loud!! > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Group Email: livercirrhosissupport > > > > web address: > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2010 Report Share Posted September 1, 2010 thank you bobby for the encourging note.i have given everything to god now and he knows best.my cath went well not stent required. i still soew and grogie will talk later,god blrdd you for all your good advive,love, bev ________________________________ To: livercirrhosissupport Sent: Wed, September 1, 2010 8:36:22 PM Subject: Re: need to vent Dear Beverly, we will be praying for you. I hope that you get that fresh liver soon. Just try to remember one thing, no matter how bleak it may feel or seem...We are here for a time, but it is not us who decides when that time is up. To quote Pink Floyd- Don't give in -without a fight. My daughter once gave me a card that reads " everything will be ok in the end. It it's not ok, then it's not the end " . God bless you. Love, Bobby To: livercirrhosissupport Sent: Tue, August 31, 2010 8:44:40 PM Subject: Re: need to vent hi bobby , i need prayers from everyone i am having a heart cath tomorrow drs are hoping it will fix the swelling problem.i feel horrible my feet look like balloons, i am swollen all over so they can't tap my stomach and the only thing they can find it could be a blockage they found in my artery.if this dosen't work i feel i maybe almost at the end of my fight against this horrible disease.my meld is staying between 19 and 21.have no idea when i will receive my tp.the sad thing is i have only myself to blame.i really enjoy this site i know ii have people i can talk to that have been thru this or are going thru the same things and feelings.thanks to every for listening to me rattle on.glod bless all.hope to talk soon. bless all bev,tx ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 9:18:08 PM Subject: Re: need to vent THANKS GOD. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Tue, August 31, 2010 3:08:12 PM Subject: Re: need to vent Hi all, Thanks for all of your advice. SS approved my husband for disability. They couldnt tell us over the phone because they said it needed to come by mail...........then ss called to ask us to come in to see them, because we were approved. We still havent got the letter from them. lol However, we have submitted only medical records, and for some reason he needs a payee. Just curious why that might be. Does anyone have any insight, would it be because he is an alcoholic? (recovering) thought? Bonnie ________________________________ To: livercirrhosissupport Sent: Sat, August 28, 2010 10:44:48 AM Subject: Re: need to vent hi bonnie and jackie. my finacial counselor at my liver center gave me lots of good advice to you can get help thru a group called nft for liver tps. at www.transplants.org and bring up nft and you can call them and sign up for free and they will help you raise money for medical and medicine after the tp.imy counselor there is kay horne she is great and the whole staff are very helpful to raise funds.weather you have ins. or not they can help. also your drs officxe may recomend someone to that work with.my social worker also gives me lots of advice and help dealing with some of the ups and downs.but i have found the web groups are much more informative because they are people who have been though the same things. has anyone out there every had to have a heart cath from the neck into the artery with a stent thats what i now need they will due it on monday. eelivercirrhosissupport Sent: Sat, August 28, 2010 2:05:47 AM Subject: Re: need to vent Jackie, thanks for telling me about the disability that is good to know. I am glad he is doing better. The thing that my husband does is gets up in the morning, does what he must do, because he tires so quickly. Also, if he stays on his feet for more than an hour they just swell up, last time they swelled so much he got admitted for sepsis and was in for four days on IV vancomycin etc etc. I hope he gets up more though, he just lays around except for his appointments. Anyway, Thanks Jackie for the info about SS. Thanks also for the prayers. Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, August 27, 2010 9:20:50 PM Subject: Re: need to vent Hi Bonnie: We were just at the drs today and we saw the surgeon who operated on my husband. I was telling him about this forum and he said it's the best place to learn, from real live people. My husband got social security disability after his open heart surgery in 2004. He had lost his job in Sept. of 2003 and was getting unemployment. Ironically, his last unemployment check came the day before his open heart surgery. At that time he was 59 and I figured if he applied for disability he would stand a good chance of getting it. Who would hire a 59 year old man with a host of health problems? It took awhile, and thankfully, we had some savings we were living off of. Once he got his disability it was retro-active from the date he became disabled. It sounds like your husband may get disability. I sure hope so. Maybe it will be retro-active like my husband's was. You will be ok. These things have a way of working themselves out. My husband is 65 now and it looks like we will be able to enjoy retirement. He got a good report from the surgeons today. His liver is functioning real good and they even decreased some of the meds. I'm keeping you and your husband in my prayers. Let me hear from you soon. Jackie Subject: Re: need to vent To: livercirrhosissupport Date: Wednesday, August 25, 2010, 9:00 PM Hi everyone, I am glad to find this group and unsure how to navigate it. Hopefully u all can give me some insight. My husband was admitted to the hospital for 4 days in July. He was told prior to this that he has cirhossis and Hepatitis C. His enzymes are up and down. His liver specialist said that even though he isnt drinking, they will fluctuate. His white cells and platelets are very low. Too low for the interferon and ribo shots. He is using lactulose for the ammonia levels. they were at 77 while in the hospital and 3 weeks ago his ammonia was 156. Last week they were at 66. He is so tired all the time, he sleeps so much. His liver specialist said that a med rate of 16 he would need a liver transplant. His med rate is 14. He has applied for disability. What should I expect.? Hes had an ultrasound, all of the labs, and x rays. we are waiting on the results. In any case we were very stunned by the news that he is almost at the point of a liver transplant. Can someone tell me some of the symptoms, outcomes, prognosis (which i realize is different in each case) will he be tired like this all the time. He is 54 years old. It doesnt seem like anything can be done, except control the side effects, like leg swelling and infection. any input would be appreciate. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Tue, August 24, 2010 9:53:54 PM Subject: Re: need to vent yes roller coater ride puts it mildly girl!!!!! > > > > > > > this will sound crazy so if you want to skip reading i wont mind. i am > > > > pissed, bobby glenns not been feeling well calling dr. tommorrow want > > scan > > > > and labs done NOW not wait till nov. hes losing days by 2. he forgets i > > fed > > > > him and skyler the grandson living with us, i found his empty glass of > > in > > > > the frige instesd of the sink today. he thought it was friday our > > > > grandaughters birthday but its sunday, we went to her party he doesnt > > > > remeber it. like i said i am pissed or call it scared what ever it is i > > am > > > > it. my newest grandbaby conts. to do good then bad....to be expected > > for a > > > > 25 week old baby i guess. i am tired a 4 year olsd is wearing me out > > ...hes > > > > a boy and for some reason its different than the girls...hes in time > > out > > > > right now....am i to hard on him...or is he to stubborn i dont know. > > the > > > > tears rolling down my face says it all. i am tired but i have to cont. > > on i > > > > have no choice in any of this. if i had my choice i would be at the > > ocean > > > > watching the waves lap the shore...eating at cock of the walk with > > elsie and > > > > roger...but i have no choice. i am here i am mad i am confused i am > > > > ....??????? really makes me want a glass of wine, but i live to far > > from > > > > town and its sunday and i cant get any lol. whys life so messed > > up...what > > > > did i do to deserve all this crap???? should i walk away and tell them > > all > > > > do it yourself??? should i just suck it up ,drink water and drive on > > soldier > > > > ???? i know this is my life, for whatever reason these are the cards > > dealt > > > > to me, and i will find away to stand. but right now i am pissy i am sad > > i > > > > miss my life the way it was. i am sorry but if i told anyone in my > > family > > > > the way i feel they would blame me for enabling everyone. you all and > > > > elsie...aka mae mae are they only ones i have to vent to that dont > > sugarcoat > > > > the facts or blow smoke up my butt. i love you all and just needed to > > get > > > > this off my chest cause i have been one angry chick all week cause i > > dont > > > > know where these feelings are supposed to go. i am angry with the sick > > ones > > > > the stupid ones and the ones who just dont give a crap. i wanna lay in > > the > > > > sun with a glass of something...even water lol. in my hand soaking up > > the > > > > rays, without a care in the world....but life wont let me. who wouldnt > > be > > > > pissed. sorry if i have offended anyone...welcome to barbys world its > > me > > > > against all of them.... when will it be my turn? i know that sounds > > selfish > > > > but i feel selfish right now. whats god...the universe trying to tell > > me? > > > > well just spit it out already i will do what i need to but i am tired > > for > > > > crying out loud!! > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Group Email: livercirrhosissupport > > > > web address: > > > > http://groups.yahoo.com/group/livercirrhosissupport/ > > > > Quote Link to comment Share on other sites More sharing options...
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