Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 Thanks everyone for letting me vent! I called the Dr this morning and he faxed Hospice. I received a call this morning from Hospice and met with her at my mothers house at lunch today. The lady was wonderful! She put us at ease and told us all about what they will do for my mother. She's scheduled someone to come 3 times a week to give her a bath, do her hair, put on makeup and paint her fingernails and anything else she needs. They feel when someone looks good on the outside, they feel better inside. She's also bringing a liquid pain medicine a generic of morphine to give her. She will receive this and 15 minutes latter if she still feels pain, they will give her another dose. They have Drs on call 24/7 and they will come to her house to evaluate her and help her as needed. They have nurses, doctors and Chaplins on call to meet with her and the family as needed. They are definitely the answer to our prayers. Re: My Mother >> > To: >> > livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 charles i am so glad you and your family will be getting help .i know it will be a lot less stress on you and your family hope everything gorres well bev, tx ________________________________ To: livercirrhosissupport Sent: Fri, August 6, 2010 5:37:03 PM Subject: Re: My Mother Thanks everyone for letting me vent! I called the Dr this morning and he faxed Hospice. I received a call this morning from Hospice and met with her at my mothers house at lunch today. The lady was wonderful! She put us at ease and told us all about what they will do for my mother. She's scheduled someone to come 3 times a week to give her a bath, do her hair, put on makeup and paint her fingernails and anything else she needs. They feel when someone looks good on the outside, they feel better inside. She's also bringing a liquid pain medicine a generic of morphine to give her. She will receive this and 15 minutes latter if she still feels pain, they will give her another dose. They have Drs on call 24/7 and they will come to her house to evaluate her and help her as needed. They have nurses, doctors and Chaplins on call to meet with her and the family as needed. They are definitely the answer to our prayers. Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 Thanks Jackie, Bev. We haven't told my mother that it is Hospice that was visiting today. The lady just told her she was a nurse and the Dr called her to come and visit her. She was satisfied with the explanation! I know we will eventually have to tell her about Hospice, but didn't want to today. I'm calling her minister and get his advice. Thanks everyone for listening. I really appreciate this list. I've learned a lot from here. Thanks to Bobby for " pushing " me into calling Hospice. I should have listened sooner. It's like a big weight has been lifed from our shoulders. We sat down with Hospice today and just cried. Both my sisters and I cried. My brother can't deal with this so he's sticking his head in the sand for now. My father in law is a Baptist minister and I will be talking with him soon! I know that sounds strange because we always talk, but nothing like this. Again, thanks for listening. Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2010 Report Share Posted August 7, 2010 I guess most folks will go through something like this, some worse, some not as bad. I believe that if ther werent struggles and suffering, we wouldnt really ever appreciate all the beautiful gifts life has to offer. Thanks for your thoughts. Love, bobby ________________________________ To: livercirrhosissupport Sent: Fri, August 6, 2010 2:25:24 PM Subject: Re: My Mother i am so sorry bobby that you are having to go thru this. but you are doing the best you can and you can feel proud of that. god bles you and your family bev, tx ________________________________ To: livercirrhosissupport Sent: Thu, August 5, 2010 10:36:51 PM Subject: Re: My Mother I'm praying for you and your mother. That smell is part of the 7 hells of liver disease. I pray that hospice come fast. I do not think you are equipped for this. When my loved one Ardis died, she required an army of hospice workers. At one point, every CNA available was attending her. I felt a sense of pride and comfort watching them fawn and smother her with TLC. They can change the sheets with only a minimal amount of disturbance to the patient. God be with you. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Thu, August 5, 2010 7:13:08 PM Subject: Re: My Mother Hey everyone, I received a call from my sister and my mother isn't doing well. I went out there tonight and she's in a lot of pain. I'm calling the Dr tomorrow to get Hospice started. Her eyes are yellowing and her skin is yellow. She has a bad odor. Not body odor, but another odor. I wanted to call 911, but she's insisting that she stay at home. I offered to call the Dr to have him increase her pain meds, but she insisted that it was after hours and didn't want to bother him. She's in and out of her mind. She quite lucind at times and then at other times, it's as if she's not there. Thanks for the shoulder to cry on!!! Re: My Mother > To: livercirrhosissupport > Date: Wednesday, August 4, 2010, 10:37 PM > > > > > > > Yesterday was another bad day for my mother, she was in a real > bad mood. > She was complaining about the pain and I told her I would call > 911 and have > them come and get her to take her to the hospital. She refused > and I said I > would pick her up and put her in the car and take her myself. > She said she > would call the police and have me arrested. I wasn't concerned > about that, > but didn't really want to make her do something she doesn't want > to do right > now. > > Today was a good day for my mother. She was in a real good mood > and was her > old self! She was talking and laughing like normal. My neice is > an EMT and > she said my mother's eyes and skin is yellow. The dr called in > her some > sleeping medicine and increased her pain meds to every 4 hours. > Haven't > heard back from Hospice yet, but they said the Dr has to tell > them she has > less than a year to live and then they can help. It just seems > like a lot > of red tape! > > I will take all the good days I can get now. I'm just hoping for > more to > come. I just don't see how she can hold on for much longer. > She's asking > to see all her grand children, one at a time. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2010 Report Share Posted August 7, 2010 Amen, ! Democracy is two wolves and a lamb voting on what to have for lunch. Liberty is a well armed lamb contesting the vote. - lin ________________________________ To: livercirrhosissupport Sent: Fri, August 6, 2010 4:37:03 PM Subject: Re: My Mother Thanks everyone for letting me vent! I called the Dr this morning and he faxed Hospice. I received a call this morning from Hospice and met with her at my mothers house at lunch today. The lady was wonderful! She put us at ease and told us all about what they will do for my mother. She's scheduled someone to come 3 times a week to give her a bath, do her hair, put on makeup and paint her fingernails and anything else she needs. They feel when someone looks good on the outside, they feel better inside. She's also bringing a liquid pain medicine a generic of morphine to give her. She will receive this and 15 minutes latter if she still feels pain, they will give her another dose. They have Drs on call 24/7 and they will come to her house to evaluate her and help her as needed. They have nurses, doctors and Chaplins on call to meet with her and the family as needed. They are definitely the answer to our prayers. Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2010 Report Share Posted August 7, 2010 I am sorry for sounding desperate for you, and especially your mom. There is a presentation in our files here called " end of life, getting it right " . http://health.groups.yahoo.com/group/livercirrhosissupport/files/ It says that you only get one chance to get it right, and they are not lying! In May this year, my aunt , the most sweetest lady in the whole world passed away. My wife's famous neuro surgeon tried to save her but there was to much brain damage from the stroke, and she couldnt be saved. As she lay in ICU, suspended between worlds, her husband, my uncle was in jail and couldnt be released ... (a total fluke, he is no outlaw, this was a misunderstanding, and he was arrested in a different city, and was transfered to Denver to face chargesd of failur to appear/ He was lost in the system for 7 days!) ....in the mean time, when the decesion was made to withdraw life support, I was cringing, because hospital ICU is a terrible place to administer end of life care. The hospital is really good at saving people, but not so good at sending them on in peace and comfort. Hospice nurses are very very good at what they do. ICU nurses are really good at what they do, but the two disciplines are as different as night and day, literally. The hospice nurses give the patient any thing they want. They withdraw most medicines unless to do so would affect thier quality of life, and they really attempt to put the patient at total ease, and comfort. I hated the idea of having to give up and call a hospice for my best friend 4 years ago,, but in the end it was the single best decision I ever made, and this is why I urge folks in a similar situation to do it. God bless you and your family and may god comfort your mom. Bobby ________________________________ To: livercirrhosissupport Sent: Fri, August 6, 2010 7:10:18 PM Subject: Re: My Mother Thanks Jackie, Bev. We haven't told my mother that it is Hospice that was visiting today. The lady just told her she was a nurse and the Dr called her to come and visit her. She was satisfied with the explanation! I know we will eventually have to tell her about Hospice, but didn't want to today. I'm calling her minister and get his advice. Thanks everyone for listening. I really appreciate this list. I've learned a lot from here. Thanks to Bobby for " pushing " me into calling Hospice. I should have listened sooner. It's like a big weight has been lifed from our shoulders. We sat down with Hospice today and just cried. Both my sisters and I cried. My brother can't deal with this so he's sticking his head in the sand for now. My father in law is a Baptist minister and I will be talking with him soon! I know that sounds strange because we always talk, but nothing like this. Again, thanks for listening. Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2010 Report Share Posted August 7, 2010 , I am so happy for you, your Mom and your entire family. Nothing about this is going to be easy, but having Hospice to guide you and share the burden is such a great relief! Please know I continue to pray for you and your family. Again, I am just so very thankful you now have the Hospice team to help you out! Many hugs................. Diane C from TN http://auntdisexperimentallife.blogspot.com/ On Sat, Aug 7, 2010 at 5:07 AM, Bob Aragon wrote: > > > Amen, ! > > Democracy is two wolves and a lamb voting on what to have for lunch. > Liberty is > a well armed lamb contesting the vote. - lin > > > ________________________________ > From: <ghornet54@... <ghornet54%40insightbb.com>> > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Fri, August 6, 2010 4:37:03 PM > > Subject: Re: My Mother > > Thanks everyone for letting me vent! > > I called the Dr this morning and he faxed Hospice. I received a call this > morning from Hospice and met with her at my mothers house at lunch today. > The lady was wonderful! She put us at ease and told us all about what they > will do for my mother. She's scheduled someone to come 3 times a week to > give her a bath, do her hair, put on makeup and paint her fingernails and > anything else she needs. They feel when someone looks good on the outside, > they feel better inside. She's also bringing a liquid pain medicine a > generic of morphine to give her. She will receive this and 15 minutes > latter if she still feels pain, they will give her another dose. They have > Drs on call 24/7 and they will come to her house to evaluate her and help > her as needed. > > They have nurses, doctors and Chaplins on call to meet with her and the > family as needed. > > They are definitely the answer to our prayers. > > > > > Re: My Mother > >> > To: > >> > > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > <livercirrhosissupport%40yahoogroups.com> > > >> > Date: Wednesday, August 4, 2010, 10:37 PM > >> > > >> > > >> > > >> > > >> > > >> > > >> > Yesterday was another bad day for my mother, she was in a real > >> > bad mood. > >> > She was complaining about the pain and I told her I would call > >> > 911 and have > >> > them come and get her to take her to the hospital. She refused > >> > and I said I > >> > would pick her up and put her in the car and take her myself. > >> > She said she > >> > would call the police and have me arrested. I wasn't concerned > >> > about that, > >> > but didn't really want to make her do something she doesn't want > >> > to do right > >> > now. > >> > > >> > Today was a good day for my mother. She was in a real good mood > >> > and was her > >> > old self! She was talking and laughing like normal. My neice is > >> > an EMT and > >> > she said my mother's eyes and skin is yellow. The dr called in > >> > her some > >> > sleeping medicine and increased her pain meds to every 4 hours. > >> > Haven't > >> > heard back from Hospice yet, but they said the Dr has to tell > >> > them she has > >> > less than a year to live and then they can help. It just seems > >> > like a lot > >> > of red tape! > >> > > >> > I will take all the good days I can get now. I'm just hoping for > >> > more to > >> > come. I just don't see how she can hold on for much longer. > >> > She's asking > >> > to see all her grand children, one at a time. > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2010 Report Share Posted August 7, 2010 Bob, No need to apologize! I needed that " kick in the butt " ! You are so right, they are better prepared to handle this than we are. Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Hey everyone, I need advice. I've called Hospice for my mother. I met with a nurse on Friday. Saturday no hospice, Sunday no hospice. No nurse came on Monday. I called to ask what was happening. Was told the nurse " was too busy " . I became upset and told them to give me the medicine and I'll give it to her. She was in so much pain they finally ordered morphine for her. I gave it to her on Monday. The nurse finally came on Tuesday, gave her some morphine and stayed for about 20 minutes. She left. I met the social worker last night and was told all the good things they do, but again today, no nurse My mother is now sleeping and has been for 24 hours. I've heard so much about Hospice, but nothing has come true. I'm now ready to tell them to get the hell out! I'm so upset with them now. I'm calling their director tomorrow and let her know what I think. I'm only hesitating because I think they take it out on my mother. Has anyone else had this happen? Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Oh, . You poor man. I was so upset after reading your post just now. I cannot understand how you and your family can be treated so badly by your local hospice. We had such a good experience with them for my mother in law and I have heard some others on this group say they have had good experiences too. Where do you live, if I'm not being too nosey. I wish I lived close enough to you that I could come and help you out. Please keep us all posted on how things are from day to day, minute to minute. You are definitely in my prayers. Keep calling them until you get the right person who can respond professionally and most of all compassionately. Don't be afraid to be an advocate for your mom, and for you too. The squeaky wheel gets the oil. Love, Jackie >> > >> > >> > From: <ghornet54@... <ghornet54%40insightbb.com>> >> > Subject: Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Hi : Just can't get your situation out of my mind. After I emailed you I drove over to get some gas in my car. I do my best thinking when I'm driving, and I was thinking about what I would say if I were in your shoes. I would call the director and calmly tell him/her what you have experienced so far. Make sure you keep your tone of voice even and non-threatening. Tell the director that you understand how busy the nurses are but at the same time you and your mom are in a desperate situation. You have been advised by her drs to call hospice because there is nothing else either of you can do now. It was explained to you that the purpose of hospice is to make the client and family comfortable thru this difficult phase of life. Re-inforce again that you know they are busy but you are not able to do this without their help and expertise. Ask them if perhaps there is another hospice chapter in a neighboring county that could step in and be of some help, but the bottom line is: you need someone to come and help you now. Maybe then they will understand how desperate your present circumstances are. Still thinking of you & praying. Stay in touch. Jackie >> > >> > >> > From: <ghornet54@... <ghornet54%40insightbb.com>> >> > Subject: Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Thanks Jackie, I live in Bowling Green, KY. I know that our local hospice has several counties in our area so I don't know of any chapters in the area. I've emailed the National Headquarters asking how I file a complaint. I will also try your suggestion tomorrow. Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 , I think calling the Director is a good idea, but try to hold your temper and frustrations in check. Good open dialogue between the two of you will accomplish much more than harsh words and insults. In my experience, my husband was referred to Hospice when discharged from the hospital. That was on Tuesday. The intake co-ordinator came for a visit on Thursday, as well as the chaplain. On Friday the nurse and the nursing assistant both came. They did not come over the weekend, but left numbers for me to reach them should I need them. It took about 4-6 days for them to get the meds straightened out. After that first week, the nurse came twice weekly and the assistant twice weekly. The social worker also visited once. They often are very busy and can't always come right away. The night my husband died, the call nurse was two counties away attending to another family who had just lost their loved one as well. However, she stayed in touch with me by telephone and helped me with administering his meds and reassuring me I was doing it right. He had passed at 1:30 a.m., but she didn't get there to pronounce him until 3 a.m. When I was running low on meds, I called them and they called scripts in to our local pharmacy and a family member would go pick them up for me. It is a relationship that requries a lot of communication and understand on all sides. Once you reach an understanding, I have found they are wonderful people who go beyond the call of duty to help us through our darkest hours. If you cannot come to an understanding with this Hospice; perhaps they just are not the group you need and should ask for a referral to another Hospice provider. Your Mom's doctor should be able to handle that for you. Praying you can get this all worked out and can find the right fit with a Hospice program that can meet both your Mom's needs and those of you and your family. Just one last word, I don't think you will find an agency that will guarantee a nurse's visit daily unless you admit your Mom to a Hospice facility or to the Hospice rooms at your local hospital. Praying for quick and satisfactory resolution to your concerns. Many hugs............... Diane C from TN http://auntdisexperimentallife.blogspot.com/ > > > Hey everyone, > > I need advice. I've called Hospice for my mother. I met with a nurse on > Friday. Saturday no hospice, Sunday no hospice. No nurse came on Monday. I > called to ask what was happening. Was told the nurse " was too busy " . I > became upset and told them to give me the medicine and I'll give it to her. > She was in so much pain they finally ordered morphine for her. I gave it to > her on Monday. The nurse finally came on Tuesday, gave her some morphine and > stayed for about 20 minutes. She left. I met the social worker last night > and was told all the good things they do, but again today, no nurse My > mother is now sleeping and has been for 24 hours. > > I've heard so much about Hospice, but nothing has come true. I'm now ready > to tell them to get the hell out! I'm so upset with them now. I'm calling > their director tomorrow and let her know what I think. I'm only hesitating > because I think they take it out on my mother. > > Has anyone else had this happen? > > > > Re: My Mother > >> > To: > >> > > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > <livercirrhosissupport%40yahoogroups.com> > >> > Date: Wednesday, August 4, 2010, 10:37 PM > >> > > >> > > >> > > >> > > >> > > >> > > >> > Yesterday was another bad day for my mother, she was in a real > >> > bad mood. > >> > She was complaining about the pain and I told her I would call > >> > 911 and have > >> > them come and get her to take her to the hospital. She refused > >> > and I said I > >> > would pick her up and put her in the car and take her myself. > >> > She said she > >> > would call the police and have me arrested. I wasn't concerned > >> > about that, > >> > but didn't really want to make her do something she doesn't want > >> > to do right > >> > now. > >> > > >> > Today was a good day for my mother. She was in a real good mood > >> > and was her > >> > old self! She was talking and laughing like normal. My neice is > >> > an EMT and > >> > she said my mother's eyes and skin is yellow. The dr called in > >> > her some > >> > sleeping medicine and increased her pain meds to every 4 hours. > >> > Haven't > >> > heard back from Hospice yet, but they said the Dr has to tell > >> > them she has > >> > less than a year to live and then they can help. It just seems > >> > like a lot > >> > of red tape! > >> > > >> > I will take all the good days I can get now. I'm just hoping for > >> > more to > >> > come. I just don't see how she can hold on for much longer. > >> > She's asking > >> > to see all her grand children, one at a time. > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 It is my understanding that there are different types of Hospice. Some are eqipped to give more services than others. It sounds like ' situation is similar to mine. one hospice facility availabe. Here the office is 80 miles away. Some require a doctors assurance the patient has 6 months or less to live and others don't btw, yhe cast came off today, yipee.now I just need 4 week of twice weekly pt. Just realized that will overlap my treatment two weeks for the stomach infection which has been called very nasty by two doctors and a friend who has had the same thing. Pray for me, please Jan H On Wed, Aug 11, 2010 at 9:00 PM, Diane Chandler <diane.chandler.75@... > wrote: > , I think calling the Director is a good idea, but try to hold your > temper and frustrations in check. Good open dialogue between the two of > you > will accomplish much more than harsh words and insults. In my experience, > my husband was referred to Hospice when discharged from the hospital. That > was on Tuesday. The intake co-ordinator came for a visit on Thursday, as > well as the chaplain. On Friday the nurse and the nursing assistant both > came. They did not come over the weekend, but left numbers for me to reach > them should I need them. It took about 4-6 days for them to get the meds > straightened out. After that first week, the nurse came twice weekly and > the assistant twice weekly. The social worker also visited once. They > often are very busy and can't always come right away. The night my husband > died, the call nurse was two counties away attending to another family who > had just lost their loved one as well. However, she stayed in touch with > me > by telephone and helped me with administering his meds and reassuring me I > was doing it right. He had passed at 1:30 a.m., but she didn't get there > to > pronounce him until 3 a.m. When I was running low on meds, I called them > and they called scripts in to our local pharmacy and a family member would > go pick them up for me. It is a relationship that requries a lot of > communication and understand on all sides. Once you reach an > understanding, > I have found they are wonderful people who go beyond the call of duty to > help us through our darkest hours. If you cannot come to an understanding > with this Hospice; perhaps they just are not the group you need and should > ask for a referral to another Hospice provider. Your Mom's doctor should > be > able to handle that for you. Praying you can get this all worked out and > can find the right fit with a Hospice program that can meet both your Mom's > needs and those of you and your family. Just one last word, I don't think > you will find an agency that will guarantee a nurse's visit daily unless > you > admit your Mom to a Hospice facility or to the Hospice rooms at your local > hospital. Praying for quick and satisfactory resolution to your concerns. > > Many hugs............... > > Diane C from TN > http://auntdisexperimentallife.blogspot.com/ > > > > > > > > > > > > > Hey everyone, > > > > I need advice. I've called Hospice for my mother. I met with a nurse on > > Friday. Saturday no hospice, Sunday no hospice. No nurse came on Monday. > I > > called to ask what was happening. Was told the nurse " was too busy " . I > > became upset and told them to give me the medicine and I'll give it to > her. > > She was in so much pain they finally ordered morphine for her. I gave it > to > > her on Monday. The nurse finally came on Tuesday, gave her some morphine > and > > stayed for about 20 minutes. She left. I met the social worker last night > > and was told all the good things they do, but again today, no nurse My > > mother is now sleeping and has been for 24 hours. > > > > I've heard so much about Hospice, but nothing has come true. I'm now > ready > > to tell them to get the hell out! I'm so upset with them now. I'm calling > > their director tomorrow and let her know what I think. I'm only > hesitating > > because I think they take it out on my mother. > > > > Has anyone else had this happen? > > > > > > > > Re: My Mother > > >> > To: > > >> > > > >>livercirrhosissupport <livercirrhosissupport% > 40yahoogroups.com> > > <livercirrhosissupport%40yahoogroups.com> > > >> > Date: Wednesday, August 4, 2010, 10:37 PM > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > Yesterday was another bad day for my mother, she was in a real > > >> > bad mood. > > >> > She was complaining about the pain and I told her I would call > > >> > 911 and have > > >> > them come and get her to take her to the hospital. She refused > > >> > and I said I > > >> > would pick her up and put her in the car and take her myself. > > >> > She said she > > >> > would call the police and have me arrested. I wasn't concerned > > >> > about that, > > >> > but didn't really want to make her do something she doesn't want > > >> > to do right > > >> > now. > > >> > > > >> > Today was a good day for my mother. She was in a real good mood > > >> > and was her > > >> > old self! She was talking and laughing like normal. My neice is > > >> > an EMT and > > >> > she said my mother's eyes and skin is yellow. The dr called in > > >> > her some > > >> > sleeping medicine and increased her pain meds to every 4 hours. > > >> > Haven't > > >> > heard back from Hospice yet, but they said the Dr has to tell > > >> > them she has > > >> > less than a year to live and then they can help. It just seems > > >> > like a lot > > >> > of red tape! > > >> > > > >> > I will take all the good days I can get now. I'm just hoping for > > >> > more to > > >> > come. I just don't see how she can hold on for much longer. > > >> > She's asking > > >> > to see all her grand children, one at a time. > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 I have no experience with hospice when it is done at home. I took my loved one to be an inpatient in a hospice, and have no regrets whatsoever. They gave her around the clock care and TLC. She had asked for a cold beer as a dying wish, and the doctor even wrote a prescription for it. She did manage to have one cold beer the last night she was alive, and she seemed to enjoy it more than anything. I was very surprised that it did not interact with the morphine, but now I know that it is because the morphine has much much less side effects when it is " butting " up against real severe pain. I was heartened when you said that hospice was going to take care of youir mom. Hospice is a " consumer good, and is subject to your satisfaction ior dissatisfaction. You can fire one and hire another, as far as I know,. Her insurance must be contacted though. In order to make sure it will get paid for, her insurance will help you find the best soloution. When they are inpatient in a hospice, it is much less likely they will be neglected, and then the patients whose families are present are going to get the most care, for obvious reasons. When Ardis was in the hospice, there were lonely patients who seemed to have no family at all and it seemed that my loved one took a lot of thier attention, because I never left her side in three days. She was only there for three days. I am very very sad for you and your mom. I hope that you can get her admitted to an inpatient hospice. I know that others here have done hospice at home, and it seemed to work for them, but for me it was impossibl, becaise my loved one couldnt be in my house because of her allergy to cats anyway, and I definitely wouldn't be married now if all the things that came to pass happened in my house. Good luck, and G-d speed. Bobby ________________________________ To: livercirrhosissupport Sent: Wed, August 11, 2010 6:19:46 PM Subject: Re: My Mother Hey everyone, I need advice. I've called Hospice for my mother. I met with a nurse on Friday. Saturday no hospice, Sunday no hospice. No nurse came on Monday. I called to ask what was happening. Was told the nurse " was too busy " . I became upset and told them to give me the medicine and I'll give it to her. She was in so much pain they finally ordered morphine for her. I gave it to her on Monday. The nurse finally came on Tuesday, gave her some morphine and stayed for about 20 minutes. She left. I met the social worker last night and was told all the good things they do, but again today, no nurse My mother is now sleeping and has been for 24 hours. I've heard so much about Hospice, but nothing has come true. I'm now ready to tell them to get the hell out! I'm so upset with them now. I'm calling their director tomorrow and let her know what I think. I'm only hesitating because I think they take it out on my mother. Has anyone else had this happen? Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 charles, i am so sorry about your mom i know its very hard to loss a parent just remember you have lots of friends here to help you. she is in a much better place and not suffering anymore. god bless you and your family bev, tx ________________________________ To: livercirrhosissupport Sent: Thu, August 12, 2010 8:15:04 PM Subject: Re: My Mother Thanks everyone for your help. My mother passed away this morning at 6:00. She put up a good fight against this disease. Again, thanks for your help! Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 JAMES I LIVE IN MORGANTOWN JUST OVER THE BOWLING GREEN LINE...SMALL WORLD.I HAVE ATTENDED HOSPICE FOR GREIF COUNSELING WHEN MY SISTER PASSED. MAYBE I CAN HELP YOU !! WHO ARE YOU TALKING TO AT HOSPICE?? CALL THEM AND ASK FOR LORI MAGERS-COFFMAN. SHES A GREAT GAL HELPED ME ALOT. MAYBE WE CAN GET THIS BALL ROLLING BETWEEN THE TWO OF US. ANOTHER GOOD ONE TO TALK TO IS NORMA HOLLAND. HOPETHIS HELPSIFYOUNEED ANYTHING GIVE ME A HOLLER....SINCE I AM JUST ACROSS THE HOLLAR MUCH LOVE BARBY > >> > > >> > > >> > From: <ghornet54@... <ghornet54%40insightbb.com>> > >> > Subject: Re: My Mother > >> > To: > >> > > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > >> > Date: Wednesday, August 4, 2010, 10:37 PM > >> > > >> > > >> > > >> > > >> > > >> > > >> > Yesterday was another bad day for my mother, she was in a real > >> > bad mood. > >> > She was complaining about the pain and I told her I would call > >> > 911 and have > >> > them come and get her to take her to the hospital. She refused > >> > and I said I > >> > would pick her up and put her in the car and take her myself. > >> > She said she > >> > would call the police and have me arrested. I wasn't concerned > >> > about that, > >> > but didn't really want to make her do something she doesn't want > >> > to do right > >> > now. > >> > > >> > Today was a good day for my mother. She was in a real good mood > >> > and was her > >> > old self! She was talking and laughing like normal. My neice is > >> > an EMT and > >> > she said my mother's eyes and skin is yellow. The dr called in > >> > her some > >> > sleeping medicine and increased her pain meds to every 4 hours. > >> > Haven't > >> > heard back from Hospice yet, but they said the Dr has to tell > >> > them she has > >> > less than a year to live and then they can help. It just seems > >> > like a lot > >> > of red tape! > >> > > >> > I will take all the good days I can get now. I'm just hoping for > >> > more to > >> > come. I just don't see how she can hold on for much longer. > >> > She's asking > >> > to see all her grand children, one at a time. > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 OMG JAMES I AM SO SORRY. I WAS TO LATE GETTING TO YOUR POSTS I AM SO SORRY. BLESS YOUR HEART ,YOU AND YOUR FAMILY ARE IN MY PRAYERS,BARBY > >> > > >> > > >> > From: <ghornet54@... <ghornet54%40insightbb.com>> > >> > Subject: Re: My Mother > >> > To: > >> > > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > >> > Date: Wednesday, August 4, 2010, 10:37 PM > >> > > >> > > >> > > >> > > >> > > >> > > >> > Yesterday was another bad day for my mother, she was in a real > >> > bad mood. > >> > She was complaining about the pain and I told her I would call > >> > 911 and have > >> > them come and get her to take her to the hospital. She refused > >> > and I said I > >> > would pick her up and put her in the car and take her myself. > >> > She said she > >> > would call the police and have me arrested. I wasn't concerned > >> > about that, > >> > but didn't really want to make her do something she doesn't want > >> > to do right > >> > now. > >> > > >> > Today was a good day for my mother. She was in a real good mood > >> > and was her > >> > old self! She was talking and laughing like normal. My neice is > >> > an EMT and > >> > she said my mother's eyes and skin is yellow. The dr called in > >> > her some > >> > sleeping medicine and increased her pain meds to every 4 hours. > >> > Haven't > >> > heard back from Hospice yet, but they said the Dr has to tell > >> > them she has > >> > less than a year to live and then they can help. It just seems > >> > like a lot > >> > of red tape! > >> > > >> > I will take all the good days I can get now. I'm just hoping for > >> > more to > >> > come. I just don't see how she can hold on for much longer. > >> > She's asking > >> > to see all her grand children, one at a time. > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 My thoughts are with you . You did everything you could. from Maine > > > OMG JAMES I AM SO SORRY. I WAS TO LATE GETTING TO YOUR POSTS I AM SO SORRY. > BLESS YOUR HEART ,YOU AND YOUR FAMILY ARE IN MY PRAYERS,BARBY > > > > > >> > > > >> > > > >> > From: <ghornet54@... <ghornet54%40insightbb.com>> > > > >> > Subject: Re: My Mother > > >> > To: > > >> > > > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > <livercirrhosissupport%40yahoogroups.com> > > >> > Date: Wednesday, August 4, 2010, 10:37 PM > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > Yesterday was another bad day for my mother, she was in a real > > >> > bad mood. > > >> > She was complaining about the pain and I told her I would call > > >> > 911 and have > > >> > them come and get her to take her to the hospital. She refused > > >> > and I said I > > >> > would pick her up and put her in the car and take her myself. > > >> > She said she > > >> > would call the police and have me arrested. I wasn't concerned > > >> > about that, > > >> > but didn't really want to make her do something she doesn't want > > >> > to do right > > >> > now. > > >> > > > >> > Today was a good day for my mother. She was in a real good mood > > >> > and was her > > >> > old self! She was talking and laughing like normal. My neice is > > >> > an EMT and > > >> > she said my mother's eyes and skin is yellow. The dr called in > > >> > her some > > >> > sleeping medicine and increased her pain meds to every 4 hours. > > >> > Haven't > > >> > heard back from Hospice yet, but they said the Dr has to tell > > >> > them she has > > >> > less than a year to live and then they can help. It just seems > > >> > like a lot > > >> > of red tape! > > >> > > > >> > I will take all the good days I can get now. I'm just hoping for > > >> > more to > > >> > come. I just don't see how she can hold on for much longer. > > >> > She's asking > > >> > to see all her grand children, one at a time. > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2010 Report Share Posted August 15, 2010 My heartfelt condolences to you and yours. Bobby ________________________________ To: livercirrhosissupport Sent: Thu, August 12, 2010 7:15:04 PM Subject: Re: My Mother Thanks everyone for your help. My mother passed away this morning at 6:00. She put up a good fight against this disease. Again, thanks for your help! Re: My Mother >> > To: >> > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> >> > Date: Wednesday, August 4, 2010, 10:37 PM >> > >> > >> > >> > >> > >> > >> > Yesterday was another bad day for my mother, she was in a real >> > bad mood. >> > She was complaining about the pain and I told her I would call >> > 911 and have >> > them come and get her to take her to the hospital. She refused >> > and I said I >> > would pick her up and put her in the car and take her myself. >> > She said she >> > would call the police and have me arrested. I wasn't concerned >> > about that, >> > but didn't really want to make her do something she doesn't want >> > to do right >> > now. >> > >> > Today was a good day for my mother. She was in a real good mood >> > and was her >> > old self! She was talking and laughing like normal. My neice is >> > an EMT and >> > she said my mother's eyes and skin is yellow. The dr called in >> > her some >> > sleeping medicine and increased her pain meds to every 4 hours. >> > Haven't >> > heard back from Hospice yet, but they said the Dr has to tell >> > them she has >> > less than a year to live and then they can help. It just seems >> > like a lot >> > of red tape! >> > >> > I will take all the good days I can get now. I'm just hoping for >> > more to >> > come. I just don't see how she can hold on for much longer. >> > She's asking >> > to see all her grand children, one at a time. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 i am reading this old add, it make a lot of sense, some of us dont know where the diease came from. What if we older people was born with it and just didnt know it. i am trying to learn all i can about the diease, it is pretty surprising, one day you are up and the next day are down and you just dont know why. then you have the misinformed doctors, who just dont seem to care. hep c, is a sickness that one just cant explain. some of the episodes that most are having i dont have as of yet. i worry most of the time about liver failure of not being treated in time, my reasons for that it seem that most doctors dont want to help you unless, you are planing your furneral. every 6 months i go in for blood work, mri with constrast. for the past 10 years, no markers, but i was told this is stage 4, this last test suppose to have showed small lessions, my biggest problem is not understanding the digesting system, and why the stools keep changing colors. 2 days very light, next 3 days almost black. why is it most of the time you are so weak. last questions, i am having real pain in the right side, i told the doctors about it, but say nothen is wrong. i wake up and all through the day, it feel like a bottle size hole is in the right side. i try to be nice as i can to all doctors but what i am finding out most need to be in another profession. thanks all for listening, i am happy to annouce, that i am working on my liver support group (here in chicago.) i am going to need all the advice and understanding you guys can give me. i know it is going to hard, time consuming and a whole lot of patient, but i plan to do this, before i get really sick, Thanks to everyone for listening, keep me in your prayers, sincerely in Chicago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 Thanks Barby, but I've just decided to leave it alone! I was making a donation to United Way, but found out that United Way supports hospice so I pulled my donation to United Way and will be giving to another charity. I've not heard from the National Headquarters either. I called our local hospice on Friday, but never heard anything until Tuesday. I wasn't at home so they said for me to just call them back. We just buried my mother's ashes today and I'm too tired to fight any longer. Again, thanks. Re: My Mother > >> > To: > >> > > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > >> > Date: Wednesday, August 4, 2010, 10:37 PM > >> > > >> > > >> > > >> > > >> > > >> > > >> > Yesterday was another bad day for my mother, she was in a real > >> > bad mood. > >> > She was complaining about the pain and I told her I would call > >> > 911 and have > >> > them come and get her to take her to the hospital. She refused > >> > and I said I > >> > would pick her up and put her in the car and take her myself. > >> > She said she > >> > would call the police and have me arrested. I wasn't concerned > >> > about that, > >> > but didn't really want to make her do something she doesn't want > >> > to do right > >> > now. > >> > > >> > Today was a good day for my mother. She was in a real good mood > >> > and was her > >> > old self! She was talking and laughing like normal. My neice is > >> > an EMT and > >> > she said my mother's eyes and skin is yellow. The dr called in > >> > her some > >> > sleeping medicine and increased her pain meds to every 4 hours. > >> > Haven't > >> > heard back from Hospice yet, but they said the Dr has to tell > >> > them she has > >> > less than a year to live and then they can help. It just seems > >> > like a lot > >> > of red tape! > >> > > >> > I will take all the good days I can get now. I'm just hoping for > >> > more to > >> > come. I just don't see how she can hold on for much longer. > >> > She's asking > >> > to see all her grand children, one at a time. > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 i wished i could have helped you charles!!and your momma!! i have just been so buzy with grandkids and my new preemie grandaughter, i wasnt able to get to the posts in time. i wish you all the best. much love barby > > >> > > > >> > > > >> > From: <ghornet54@ <ghornet54%40insightbb.com>> > > >> > Subject: Re: My Mother > > >> > To: > > >> > > > >>livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > > >> > Date: Wednesday, August 4, 2010, 10:37 PM > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > Yesterday was another bad day for my mother, she was in a real > > >> > bad mood. > > >> > She was complaining about the pain and I told her I would call > > >> > 911 and have > > >> > them come and get her to take her to the hospital. She refused > > >> > and I said I > > >> > would pick her up and put her in the car and take her myself. > > >> > She said she > > >> > would call the police and have me arrested. I wasn't concerned > > >> > about that, > > >> > but didn't really want to make her do something she doesn't want > > >> > to do right > > >> > now. > > >> > > > >> > Today was a good day for my mother. She was in a real good mood > > >> > and was her > > >> > old self! She was talking and laughing like normal. My neice is > > >> > an EMT and > > >> > she said my mother's eyes and skin is yellow. The dr called in > > >> > her some > > >> > sleeping medicine and increased her pain meds to every 4 hours. > > >> > Haven't > > >> > heard back from Hospice yet, but they said the Dr has to tell > > >> > them she has > > >> > less than a year to live and then they can help. It just seems > > >> > like a lot > > >> > of red tape! > > >> > > > >> > I will take all the good days I can get now. I'm just hoping for > > >> > more to > > >> > come. I just don't see how she can hold on for much longer. > > >> > She's asking > > >> > to see all her grand children, one at a time. > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.