Guest guest Posted December 19, 1999 Report Share Posted December 19, 1999 Biddy, Peggy McGovern is Peggy and she has PSC, I'm Peg (Jacquelyn's buddy) and it is my husband Phil that has PSC. He's doing okay. He has been approved to be presented to the UCLA tx team. Right now he's fighting a cold. Peg Biddy Santon wrote: > Peggy! > Hello!! How are you doing? What is our status as of this date? > My confusion is getting so much worse that I cannot even make any sense > of my writings. This one just might be good -- but if not, please forgive > me. > Somehow I think that your hubby is suffering from PSC, but it might have > been someone else. Let me know how wrong I am. > It is so good seeing your post again! > Missed you a lot! > Hugs, > Biddy > Re: More news on ... > > >, > >Jacquelyn knows you love her as she does you. When I get to talk with her > I will > >be sure to tell her. > > > >In my opinion, I think you should get a second opinion. I think that your > doctor > >is wrong about the cholangitis attacks. They are life threatening and > several of > >the people on this group have been listed because of that. > > > >As far as children. Jacquelyn would never discourage you from trying to > have > >them (of course after you are married). But in my opinion having to chase > after > >small children has got to be really hard when you are trying to > recooperate. If > >you have your tx while you are young I think it would be better after. > Course > >I've had my children and can't imagine running after them when you are so > sick > >but that is a very personal thing and I also can't imagine not ever having > >children. We have a kitty that we treat and talk about like she was our > child. > >I say I do that because my grandkids are so far away. Pets and children > can > >bring you a lot of joy. It's got to be a very hard decision. You could > always > >become a " Cat person " Yewww - I've become a cat person - I can't believe > it. > > > >Sorry for babbling. > > > >Love, > >Peg > > > >WYBEAR21@... wrote: > > > >> Hi Everyone, > >> When my Father came home for lunch today, he said that another > >> co-worker of his has stepped forward, and offered part of their liver. > This > >> one is a woman, I had worked with her sister in the past. She is B+ as > well. > >> I thank God for sending me these two Angels on earth. I talked to the > >> transplant coordinator today, about the possibility of " non related " > living > >> donors. She promised that she would bring it up with the transplant > team. > >> She said that they have only done related donors because of the fact that > >> many people will try to " buy " livers. I promised her that the two > " Angels " > >> that have stepped forward, have done it without being asked. Of course > when > >> my Father told me about these two people, I started crying. It's amazing > to > >> me, that no one in my own family (no one in the immediate family matched) > has > >> even offered, but that two people, that barely know me, are willing to > risk > >> their lives, to save mine. These people will truly be blessed. > >> I also found out some blood test results today... my WBC is > elevated, > >> the GGT has gone up, and the Alk-phos. is about the same as it was when I > was > >> in the hospital. It has started to come down a little bit, but has gone > back > >> up. My Transplant Dr. and my Local GI have decided to start me on Cipro. > I > >> will take it once a day from now on. Hopefully this will keep the > >> Cholangitis attacks away. I'm changing the saying " An apple a day keeps > the > >> Dr's away " to " A Cipro a day keeps the hospitals away " <grin> > >> Now that these two very kind people have stepped forward, I am > feeling > >> much better about everything. I told the transplant Coordinator how > >> discouraged I was after my meeting, and she explained to me how the Dr. > just > >> likes to be upfront and honest about things, and doesn't like to provide > >> false hope. I'm still thinking about seeking a 2nd opinion. Of course, > I > >> don't want to have a transplant right away, even now that the possibility > of > >> a living transplant is available. One of the things that really bothered > me > >> about my meeting, was that the Dr. tried to discourage me from having > >> children. He said that if I was going to have them, sooner would be > better > >> than later. I would like to hold off on transplant until I have at least > one > >> child. Being that I'm not married... this could take a few years <grin>. > >> Any input about this would be VERY helpful. I'm going to see my Priest > >> tomorrow to discuss some things with him, and have him pray over me. > >> Peg, I'm having a hard time calling Jacquelyn. My phone company is > >> messing up, and only allows me to call certain area codes. (Even in my > Ohio > >> area). Could you please give her my love, and tell her that I'm praying > for > >> her!!!!! > >> Love, > >> > >> > >> ------------------------------------------------------------------------ > >> FREE ADVICE FROM REAL PEOPLE! XpertSite is the biggest directory > >> of Experts on the Web. Click http://clickhere./click/2031 > >> for a REAL PERSON who will be happy to answer your questions! > >> > >> -- Check out your group's private Chat room > >> -- /ChatPage?listName= & m=1 > > > > > > > > > >------------------------------------------------------------------------ > >GRAB THE GATOR! FREE SOFTWARE DOES ALL THE TYPING FOR YOU! > >Gator fills in forms and remembers passwords with NO TYPING at over > >100,000 web sites! 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Guest guest Posted February 1, 2000 Report Share Posted February 1, 2000 I don't know but when he told the hep doc he said that was due to the PSC. Peg Vizas wrote: > How does PSC cause the shoulder and neck pain? > Lynn > > ------------------------------------------------------------------------ > Looking for the lowest mortgage rate? Whether you’re buying, > refinancing or consolidating debt – GetSmart.com can help. We’ll > help you find the loan you need – quick, and FREE click here: > http://click./1/658/4/_/24674/_/949424223/ > > -- 20 megs of disk space in your group's Document Vault > -- /docvault//?m=1 Quote Link to comment Share on other sites More sharing options...
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