Miss you all!

[Guest guest]

Hi dear friends,

I hope everyone is doing well. You're all on my mind often, but I haven't

had a chance to read email for quite a while. I finally got to speak to

Iris yesterday (what a treat - I've missed her to pieces!) and I am trying

to get in touch with Deb. Deb, if you're reading, I'll be calling, dear

friend. Things have been SO incredibly crazy for me. If I didn't have RA,

it would be tough. With the RA, it's insane. I'm working 14 hour days (at

least). I went to NYC before Thanksgiving with my mom (had two free air

tickets that had to be used) and I got INCREDIBLE coats and have made

valuable business connections there. I'm still selling my Macy's stuff, as

well as the wonderful boots and shoes I get in South Florida. But with the

holiday selling season coming to a close quickly, I've had to hire someone

to give me a hand. Matter of fact, even my mom is doing admin stuff from

Atlanta. Who would have thought???? So, every time I think to sit down and

read or write, the phone rings (oddly enough, as I was typing that the phone

rang!)

I was so happy to see the info on the FluMist vaccine, and that's just what

I suspected. I got my flu shot in plenty of time, but Stan didn't. There's

none to be found here. Oh well. He's been in most all of the western

states (he drove to SLC combining business with a trip to see his kids) and

I was in NYC and then in TN for 3 days (we got a cabin in Gatlinburg for

Thanksgiving weekend.) TN is a high risk flu state, but I think I'm OK. I

have a low grade " something " (cold, virus, flu - not sure), but I'm still

functional. It does have me concerned, though. It looks like I'm about to

go on Humira (they just need one bank statement that I'm sending today). I

will certainly avoid crouds once I'm on it. Question: Are any group

members on Humira now? Doing well? I'm excited at the prospect of possibly

getting rid of the MTX and the pain meds. I should be on the Humira in Jan -

and I'll qualify for the ebay group insurance in Jan, as well! Although I'll

need the Humira assistance still because the RA will be a pre-existing for a

while.

How are you doing post-op, dear TESS? KATHI in OK, I saw the beginning of

the post from you and I'm glad to see you're doing well. Kathy in IL - how

are you doing? ALAN, how is the Remicade going? I hope it's your magic

bullet. PAULA, how are the headaches? I hope they're a thing of the past

now. GINA, I'll bet you're excited to have the family (your daughter from

college, especially) home for the holidays. DEB, DEB, DEB... call me!

We've been playing phone tag forever. And of course our MAURITUS MOMMY ---

I hope all is wonderful with Fabian! I had a dream you were expeciting a

little girl. That's not the case is is... ;-) If I've missed anyone,

please don't be hurt. I love each and every friend from the group.

There are so many new names now! My name's Carol, and I have RA and live in

Orlando. I've opened my own " ebay store " selling women's clothing, shoes,

coats, and handbags. I wanted something to do where I could work from home,

and if I'm flaring I could take the week easier. Guess what? It worked!

But I don't seem to be able to take it easy. After the holidays, LOL.

To all my old (but youthful!) friends, and my new ones as well, HAPPY

HOLIDAYS! I'm grateful beyond words for the friendships I've made here, the

information I've received, and the support that I know is an email away.

My love to all,

Carol

[Guest guest]

Thanks for popping in and giving us an update, Carol. We've missed you,

too.

That's fantastic that your business is going so well. I'm so glad you're

going to qualify for the insurance soon, and I hope that Humira works

very well for you.

Yes, the holidays are nice. The kids and I will have a lot of time to

spend together. comes home next Friday or Saturday.

Hope you'll avoid the flu and feel good enough to enjoy the season!

[ ] Miss you all!

> Hi dear friends,

>

> I hope everyone is doing well. You're all on my mind often, but I

haven't

> had a chance to read email for quite a while. I finally got to speak

to

> Iris yesterday (what a treat - I've missed her to pieces!) and I am

trying

> to get in touch with Deb. Deb, if you're reading, I'll be calling,

dear

> friend. Things have been SO incredibly crazy for me. If I didn't

have RA,

> it would be tough. With the RA, it's insane. I'm working 14 hour

days (at

> least). I went to NYC before Thanksgiving with my mom (had two free

air

> tickets that had to be used) and I got INCREDIBLE coats and have made

> valuable business connections there. I'm still selling my Macy's

stuff, as

> well as the wonderful boots and shoes I get in South Florida. But

with the

> holiday selling season coming to a close quickly, I've had to hire

someone

> to give me a hand. Matter of fact, even my mom is doing admin stuff

from

> Atlanta. Who would have thought???? So, every time I think to sit

down and

> read or write, the phone rings (oddly enough, as I was typing that the

phone

> rang!)

>

> I was so happy to see the info on the FluMist vaccine, and that's just

what

> I suspected. I got my flu shot in plenty of time, but Stan didn't.

There's

> none to be found here. Oh well. He's been in most all of the western

> states (he drove to SLC combining business with a trip to see his

kids) and

> I was in NYC and then in TN for 3 days (we got a cabin in Gatlinburg

for

> Thanksgiving weekend.) TN is a high risk flu state, but I think I'm

OK. I

> have a low grade " something " (cold, virus, flu - not sure), but I'm

still

> functional. It does have me concerned, though. It looks like I'm

about to

> go on Humira (they just need one bank statement that I'm sending

today). I

> will certainly avoid crouds once I'm on it. Question: Are any group

> members on Humira now? Doing well? I'm excited at the prospect of

possibly

> getting rid of the MTX and the pain meds. I should be on the Humira in

Jan -

> and I'll qualify for the ebay group insurance in Jan, as well!

Although I'll

> need the Humira assistance still because the RA will be a pre-existing

for a

> while.

>

> How are you doing post-op, dear TESS? KATHI in OK, I saw the

beginning of

> the post from you and I'm glad to see you're doing well. Kathy in

IL - how

> are you doing? ALAN, how is the Remicade going? I hope it's your

magic

> bullet. PAULA, how are the headaches? I hope they're a thing of the

past

> now. GINA, I'll bet you're excited to have the family (your daughter

from

> college, especially) home for the holidays. DEB, DEB, DEB... call me!

> We've been playing phone tag forever. And of course our MAURITUS

MOMMY ---

> I hope all is wonderful with Fabian! I had a dream you were

expeciting a

> little girl. That's not the case is is... ;-) If I've missed anyone,

> please don't be hurt. I love each and every friend from the group.

>

> There are so many new names now! My name's Carol, and I have RA and

live in

> Orlando. I've opened my own " ebay store " selling women's clothing,

shoes,

> coats, and handbags. I wanted something to do where I could work from

home,

> and if I'm flaring I could take the week easier. Guess what? It

worked!

> But I don't seem to be able to take it easy. After the holidays, LOL.

>

> To all my old (but youthful!) friends, and my new ones as well, HAPPY

> HOLIDAYS! I'm grateful beyond words for the friendships I've made

here, the

> information I've received, and the support that I know is an email

away.

>

> My love to all,

> Carol

>

>

>

[Guest guest]

Hey /Fl...Great to see you posting but not so great about the

dizziness and terrible pain you are suffering. You may have your reasons

for not wanting to go to the emergency room. But I think /LA has a

good point. It may be the only way you can get immediate relief with

that excruciating pain. If I was in your condition, honestly I would go

to er. Unless Sue knows of a top Naturopathic Physician in your area who

can give you relief.

I had to lay down for the past hour as I felt an overwhelming

exhaustion. A little pain in my left hip today, slight headache and

weakness in chest. But otherwise I'm okay and there is no comparison to

what you are going through. And no-one should have to suffer the kind of

pain and condition you are in. Without knowing what your current diet is

here are just a few tips.

NO alcohol. NO soft-drinks. No gluten-containing grains. Especially NO

wheat. NO sugar. NO processed or refined foods as in packets, jars, cans

etc. Absolutely NO transfats - only cold-pressed unrefined good oils.

Transfats (as I am sure you know) will poison your body and make you

very ill with all of the symptoms you are experiencing. NO stressful,

toxic people. There are probably other tips but you know my brainfog

. LOL

I/others will look for info either in our database or elsewhere that may

give some relief to you. And to all of us. I don't know that there's any

instant natural healing for pain. But will look around today/tomorrow

and see what turns up. I think it is more about pain prevention. Proper

diet, rest, meditation, self-talk therapy (the subconscious believes

what you constantly repeat) prayer, loving thoughts, meditation, a

loving partner etc. I know Sue has mentioned Mindfulness Therapy and

others. And when you are able a tiny walk each day and then a tiny bit

further to keep the body moving.

Hope this helps you for starters and whatever ideas other kind

people offer. As your problem is our problem. So we do all really

understand how you feel and how deeply it affects your life. Keep your

chin up and I will email you later as well.

Love & hugs

Carlene

>

> Hi all thought I'd post and say hello; been reading posts from my

phone just haven't responded, been pretty bad, but I know you all

understand. I don't know when I'll start to feel better, but wanted to

get back on and say hey. Hubby has had to carry me lately, since

everything has been so bad; really don't know where to go from here. I

always try not to take the narcotics as directed but been taking mine

every 3-4 hrs and could take them more often but won't. I've tried baths

but nothing. Maybe if someone has any ideas that would be wonderful.

It's my entire body with the worse right now being my shoulders, pain

between my shoulders and elbows but a strange kind of pain. When I bump

it or even slightly move my arms any which way I get such a horrible

pain that only gets worse before it gets better. I keep falling and

constantly need help getting anywhere. Because of the pain I also can't

drive since I can't turn the wheel or even react quickly. There is so

much more but don't want to bore you all.

>

> If any of you have any ideas on how to help this pain please feel free

to let me know. I apologize to anyone that I haven't responded to their

emails. We've had some cool evenings but nothing to speak of and it

definitely affects me, although would love to see snow, just couldn't

bear living in it.

>

> Love to all /FL

>

[Guest guest]

/ Fl

Have you tried a product from your pharmacist called "Rub On Relief." There's a small amount of info from an article shown below. Maybe this might help a little. Oh and Sue mentioned you are not eating. Please eat more nourishing food (if you can) as fresh natural foods can help your body with the healing process. Take care and praying for you to heal from that awful pain.

Love & Hugs

Carlene

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>> Hi all thought I'd post and say hello; been reading posts from my phone just haven't responded, been pretty bad, but I know you all understand. I don't know when I'll start to feel better, but wanted to get back on and say hey. Hubby has had to carry me lately, since everything has been so bad; really don't know where to go from here. I always try not to take the narcotics as directed but been taking mine every 3-4 hrs and could take them more often but won't. I've tried baths but nothing. Maybe if someone has any ideas that would be wonderful. It's my entire body with the worse right now being my shoulders, pain between my shoulders and elbows but a strange kind of pain. When I bump it or even slightly move my arms any which way I get such a horrible pain that only gets worse before it gets better. I keep falling and constantly need help getting anywhere. Because of the pain I also can't drive since I can't turn the wheel or even react quickly. There is so much more but don't want to bore you all.> > If any of you have any ideas on how to help this pain please feel free to let me know. I apologize to anyone that I haven't responded to their emails. We've had some cool evenings but nothing to speak of and it definitely affects me, although would love to see snow, just couldn't bear living in it.> > Love to all /FL>