RE: Dr. Amen

[Guest guest]

And my email is tarabecon@....Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk To: Soundsensitivity From: k.howe@...Date: Thu, 24 Mar 2011 18:20:56 -0400Subject: RE: Dr. Amen You’re too nice. But it’s not that difficult. I just feel thankful for the 3 people who are going to be our research subjects. Plus, I hope we can raise the money. We should be able to considering how many people are in this group now. We’ve got to use those numbers for our benefit. I’m just not sure how to contact everyone who hasn’t been reading/participating lately. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of CummingsSent: Wednesday, March 23, 2011 10:36 PMTo: Soundsensitivity Subject: RE: Dr. Amen Kathy, I'm definately willing to contribute. I'm not sure how much, but will email you separately to figure that out. You're absolutely the best to be putting in your time and effort to chase this opportunity down. Thank you so much!- / Mom of 4S son From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Kathy HoweSent: Wednesday, March 23, 2011 7:07 PMTo: Soundsensitivity Subject: RE: Dr. Amen Sounds good to me. We need to talk to Dr. Amen’s office and find out if we can get a discount if 3 people come. Otherwise, it’s around $3000 per person so we need to raise about $9000. We need to reach the people in this group that haven’t read or logged on lately. We need to tell them that we have a chance at research, but we need to fundraise for it. We need a headcount of who wants to contribute that is currently reading the posts. If you are willing to contribute, please email me and Tara and let us know how much you are willing to contribute. We need to get a rough headcount. My email address is k.howe@.... Thanks,Kathy HoweFrom: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Tara EconomakisSent: Wednesday, March 23, 2011 4:43 PMTo: Sound SensitivitySubject: RE: Dr. Amen I would be happy to keep track of the checks, working with Kathy. I have done it before for a HypnoBirthing Action Group Publicity fund. Very simple and easy by email.With regards,TaraTara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk To: Soundsensitivity From: k.howe@...Date: Wed, 23 Mar 2011 16:33:44 -0400Subject: RE: Dr. Amen Thanks for volunteering, Mayuri. Hopefully we can raise the money we need. I would put it in an account, or we can contact Dr. Amen and see if he will accept payment from all over. The only problem is the accounting aspect. We would need to tell someone that we sent a check for “x†amount and that way we will know how much Dr. Amen receives so there won’t be a discrepancy. I would keep record of it—everyone would just have to email me their check number, amount, and when they sent it. But first we need to contact Dr. Amen and see if he would do something like that.If he wouldn’t, I would be okay with opening an account and then sending one big check for payment. However, we would need another person to basically keep record like described above, so there would be an accounting. (I’m very honest, but I wouldn’t want anyone thinking I’m taking in more than I am sending Dr. Amen—we just need “checks and balances.â€)But first we need to find 2 more people willing to go to Dr. Amen and be researched—Anyone out there in the Northern CA area??From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mayuri MandelSent: Wednesday, March 23, 2011 1:34 PMTo: Soundsensitivity Subject: Dr. Amen Hi! I've been a member of this group almost since its inception, but originally signed up under another name due to privacy concerns. So you won't recognize my name, but I've been around for years, mostly lurking. I also worked directly with Dr. J. for a while (via phone) after purchasing her sound generators, which unfortunately did nothing for me. (Although Dr. J. herself is a pleasure!) I've been through everything from physical therapy to acupuncture to special listening CDs to biofeedback . . . and the only thing that has helped at all so far is a combination of 3 different medications. Even that only takes the edge off--I still walk around almost all day with earplugs in and/or noise-reduction headphones on.Anyway, I'm right in San Francisco, very close to the California Amen Clinic, and would be happy to be one of the folks who sees Dr. Amen if the group can help raise the money. I'd definitely report back to the group in detail with whatever happened. And I'm willing to kick in a little money myself toward whoever goes, whether it's me or someone else. This sounds like a great chance to do some investigating!Oh, as a side note--I had a few sessions with our own Tara Economakis, too--she's fantastic, if anyone gets the chance to see her, and while I don't think the self-hypnosis/relaxation she has taught me is up to solving my 4S problem YET, she did show me that I really can relax my nervous system, and I've been practicing daily. My hope is that over time I'll get better and better at it, until I can do it quickly and being relaxed becomes my default mode more often and for longer stretches. From there, hopefully I can start making inroads into the 4S itself. :)Like I said, I'm mostly a lurker on this group, but I read the digest almost every day. Thanks to everyone here who is doing so much on our behalf, from the non-profit planning to the fundraising ideas to the new websites and articles that have gone up online. I'm grateful to have you all on my side.-MayuriGood work, ! That photo of you at the top with your fingers in your ears sums it up perfectly. :-)Best,Jay>> Hi, everyone!> > I just published an article on 4S on Suite 101. I hope it brings attention to our shared suffering... I also directed readers to Marsha's site as well as this group. Maybe more 4S victims can at the very least discover they are not alone.> > http://www.suite101 .com/content/ when-noise- turns-every- day-into- a-nightmare- a355395?sms_ ss=yahoomail> > Toodles,> >Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (8) Recent Activity 6 New MembersVisit Your Group Meditation andLovingkindnessA Yahoo! Groupto share and learn.Yahoo! HealthAchy Joint?Common arthritismyths debunked.Sell OnlineStart selling withour award-winninge-commerce tools.Need to Reply?Click one of the "Reply" links to respond to a specific message in the Daily Digest.Create New Topic | Visit Your Group on the Web Messages | Files | Photos | Links | Calendar PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ MARKETPLACEStay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now.Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today!Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Individual | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe

[Guest guest]

To contact everyone who hasn't been reading I think the following could be done:Dr J exports a list of all users on this site and extracts their emails. Then sending a direct email to them all from her own email address not the sound sensitivity web address should pop up in everyone's email box and it shouldn't be moved to a different box by a rule or ignored (hopefully)Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Thu, 24 Mar 2011 18:20:56 -0400To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Dr. Amen You’re too nice. But it’s not that difficult. I just feel thankful for the 3 people who are going to be our research subjects. Plus, I hope we can raise the money. We should be able to considering how many people are in this group now. We’ve got to use those numbers for our benefit. I’m just not sure how to contact everyone who hasn’t been reading/participating lately. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of CummingsSent: Wednesday, March 23, 2011 10:36 PMTo: Soundsensitivity Subject: RE: Dr. Amen Kathy, I'm definately willing to contribute. I'm not sure how much, but will email you separately to figure that out. You're absolutely the best to be putting in your time and effort to chase this opportunity down. Thank you so much!- / Mom of 4S son From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Kathy HoweSent: Wednesday, March 23, 2011 7:07 PMTo: Soundsensitivity Subject: RE: Dr. Amen Sounds good to me. We need to talk to Dr. Amen’s office and find out if we can get a discount if 3 people come. Otherwise, it’s around $3000 per person so we need to raise about $9000. We need to reach the people in this group that haven’t read or logged on lately. We need to tell them that we have a chance at research, but we need to fundraise for it. We need a headcount of who wants to contribute that is currently reading the posts. If you are willing to contribute, please email me and Tara and let us know how much you are willing to contribute. We need to get a rough headcount. My email address is k.howe@.... Thanks,Kathy HoweFrom: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Tara EconomakisSent: Wednesday, March 23, 2011 4:43 PMTo: Sound SensitivitySubject: RE: Dr. Amen I would be happy to keep track of the checks, working with Kathy. I have done it before for a HypnoBirthing Action Group Publicity fund. Very simple and easy by email.With regards,TaraTara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk To: Soundsensitivity From: k.howe@...Date: Wed, 23 Mar 2011 16:33:44 -0400Subject: RE: Dr. Amen Thanks for volunteering, Mayuri. Hopefully we can raise the money we need. I would put it in an account, or we can contact Dr. Amen and see if he will accept payment from all over. The only problem is the accounting aspect. We would need to tell someone that we sent a check for “x†amount and that way we will know how much Dr. Amen receives so there won’t be a discrepancy. I would keep record of it—everyone would just have to email me their check number, amount, and when they sent it. But first we need to contact Dr. Amen and see if he would do something like that.If he wouldn’t, I would be okay with opening an account and then sending one big check for payment. However, we would need another person to basically keep record like described above, so there would be an accounting. (I’m very honest, but I wouldn’t want anyone thinking I’m taking in more than I am sending Dr. Amen—we just need “checks and balances.â€)But first we need to find 2 more people willing to go to Dr. Amen and be researched—Anyone out there in the Northern CA area??From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mayuri MandelSent: Wednesday, March 23, 2011 1:34 PMTo: Soundsensitivity Subject: Dr. Amen Hi! I've been a member of this group almost since its inception, but originally signed up under another name due to privacy concerns. So you won't recognize my name, but I've been around for years, mostly lurking. I also worked directly with Dr. J. for a while (via phone) after purchasing her sound generators, which unfortunately did nothing for me. (Although Dr. J. herself is a pleasure!) I've been through everything from physical therapy to acupuncture to special listening CDs to biofeedback . . . and the only thing that has helped at all so far is a combination of 3 different medications. Even that only takes the edge off--I still walk around almost all day with earplugs in and/or noise-reduction headphones on.Anyway, I'm right in San Francisco, very close to the California Amen Clinic, and would be happy to be one of the folks who sees Dr. Amen if the group can help raise the money. I'd definitely report back to the group in detail with whatever happened. And I'm willing to kick in a little money myself toward whoever goes, whether it's me or someone else. This sounds like a great chance to do some investigating!Oh, as a side note--I had a few sessions with our own Tara Economakis, too--she's fantastic, if anyone gets the chance to see her, and while I don't think the self-hypnosis/relaxation she has taught me is up to solving my 4S problem YET, she did show me that I really can relax my nervous system, and I've been practicing daily. My hope is that over time I'll get better and better at it, until I can do it quickly and being relaxed becomes my default mode more often and for longer stretches. From there, hopefully I can start making inroads into the 4S itself. :)Like I said, I'm mostly a lurker on this group, but I read the digest almost every day. Thanks to everyone here who is doing so much on our behalf, from the non-profit planning to the fundraising ideas to the new websites and articles that have gone up online. I'm grateful to have you all on my side.-MayuriGood work, ! That photo of you at the top with your fingers in your ears sums it up perfectly. :-)Best,Jay>> Hi, everyone!> > I just published an article on 4S on Suite 101. I hope it brings attention to our shared suffering... I also directed readers to Marsha's site as well as this group. Maybe more 4S victims can at the very least discover they are not alone.> > http://www.suite101 .com/content/ when-noise- turns-every- day-into- a-nightmare- a355395?sms_ ss=yahoomail> > Toodles,> >Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (8) Recent Activity 6 New MembersVisit Your Group Meditation andLovingkindnessA Yahoo! Groupto share and learn.Yahoo! HealthAchy Joint?Common arthritismyths debunked.Sell OnlineStart selling withour award-winninge-commerce tools.Need to Reply?Click one of the " Reply " links to respond to a specific message in the Daily Digest.Create New Topic | Visit Your Group on the Web Messages | Files | Photos | Links | Calendar PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ MARKETPLACEStay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now.Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today!Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Individual | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe

[Guest guest]

That sounds like a great idea.  I’m glad you’re technological! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of richard.t.mckenna@...Sent: Thursday, March 24, 2011 7:06 PMTo: Sound sensitivitySubject: Re: Dr. Amen To contact everyone who hasn't been reading I think the following could be done:Dr J exports a list of all users on this site and extracts their emails. Then sending a direct email to them all from her own email address not the sound sensitivity web address should pop up in everyone's email box and it shouldn't be moved to a different box by a rule or ignored (hopefully)Sent from my BlackBerry® smartphone on 3 Sender: Soundsensitivity Date: Thu, 24 Mar 2011 18:20:56 -0400To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Dr. Amen You’re too nice. But it’s not that difficult. I just feel thankful for the 3 people who are going to be our research subjects. Plus, I hope we can raise the money. We should be able to considering how many people are in this group now. We’ve got to use those numbers for our benefit. I’m just not sure how to contact everyone who hasn’t been reading/participating lately. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of CummingsSent: Wednesday, March 23, 2011 10:36 PMTo: Soundsensitivity Subject: RE: Dr. Amen Kathy, I'm definately willing to contribute. I'm not sure how much, but will email you separately to figure that out. You're absolutely the best to be putting in your time and effort to chase this opportunity down. Thank you so much!- / Mom of 4S son From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Kathy HoweSent: Wednesday, March 23, 2011 7:07 PMTo: Soundsensitivity Subject: RE: Dr. Amen Sounds good to me. We need to talk to Dr. Amen’s office and find out if we can get a discount if 3 people come. Otherwise, it’s around $3000 per person so we need to raise about $9000. We need to reach the people in this group that haven’t read or logged on lately. We need to tell them that we have a chance at research, but we need to fundraise for it. We need a headcount of who wants to contribute that is currently reading the posts. If you are willing to contribute, please email me and Tara and let us know how much you are willing to contribute. We need to get a rough headcount. My email address is k.howe@.... Thanks,Kathy HoweFrom: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Tara EconomakisSent: Wednesday, March 23, 2011 4:43 PMTo: Sound SensitivitySubject: RE: Dr. Amen I would be happy to keep track of the checks, working with Kathy. I have done it before for a HypnoBirthing Action Group Publicity fund. Very simple and easy by email.With regards,TaraTara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk To: Soundsensitivity From: k.howe@...Date: Wed, 23 Mar 2011 16:33:44 -0400Subject: RE: Dr. Amen Thanks for volunteering, Mayuri. Hopefully we can raise the money we need. I would put it in an account, or we can contact Dr. Amen and see if he will accept payment from all over. The only problem is the accounting aspect. We would need to tell someone that we sent a check for “x†amount and that way we will know how much Dr. Amen receives so there won’t be a discrepancy. I would keep record of it—everyone would just have to email me their check number, amount, and when they sent it. But first we need to contact Dr. Amen and see if he would do something like that.If he wouldn’t, I would be okay with opening an account and then sending one big check for payment. However, we would need another person to basically keep record like described above, so there would be an accounting. (I’m very honest, but I wouldn’t want anyone thinking I’m taking in more than I am sending Dr. Amen—we just need “checks and balances.â€)But first we need to find 2 more people willing to go to Dr. Amen and be researched—Anyone out there in the Northern CA area??From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mayuri MandelSent: Wednesday, March 23, 2011 1:34 PMTo: Soundsensitivity Subject: Dr. Amen Hi! I've been a member of this group almost since its inception, but originally signed up under another name due to privacy concerns. So you won't recognize my name, but I've been around for years, mostly lurking. I also worked directly with Dr. J. for a while (via phone) after purchasing her sound generators, which unfortunately did nothing for me. (Although Dr. J. herself is a pleasure!) I've been through everything from physical therapy to acupuncture to special listening CDs to biofeedback . . . and the only thing that has helped at all so far is a combination of 3 different medications. Even that only takes the edge off--I still walk around almost all day with earplugs in and/or noise-reduction headphones on.Anyway, I'm right in San Francisco, very close to the California Amen Clinic, and would be happy to be one of the folks who sees Dr. Amen if the group can help raise the money. I'd definitely report back to the group in detail with whatever happened. And I'm willing to kick in a little money myself toward whoever goes, whether it's me or someone else. This sounds like a great chance to do some investigating!Oh, as a side note--I had a few sessions with our own Tara Economakis, too--she's fantastic, if anyone gets the chance to see her, and while I don't think the self-hypnosis/relaxation she has taught me is up to solving my 4S problem YET, she did show me that I really can relax my nervous system, and I've been practicing daily. My hope is that over time I'll get better and better at it, until I can do it quickly and being relaxed becomes my default mode more often and for longer stretches. From there, hopefully I can start making inroads into the 4S itself. :)Like I said, I'm mostly a lurker on this group, but I read the digest almost every day. Thanks to everyone here who is doing so much on our behalf, from the non-profit planning to the fundraising ideas to the new websites and articles that have gone up online. I'm grateful to have you all on my side.-MayuriGood work, ! That photo of you at the top with your fingers in your ears sums it up perfectly. :-)Best,Jay>> Hi, everyone!> > I just published an article on 4S on Suite 101. I hope it brings attention to our shared suffering... I also directed readers to Marsha's site as well as this group. Maybe more 4S victims can at the very least discover they are not alone.> > http://www.suite101 .com/content/ when-noise- turns-every- day-into- a-nightmare- a355395?sms_ ss=yahoomail> > Toodles,> >Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (8) Recent Activity 6 New MembersVisit Your Group Meditation andLovingkindnessA Yahoo! Groupto share and learn.Yahoo! HealthAchy Joint?Common arthritismyths debunked.Sell OnlineStart selling withour award-winninge-commerce tools.Need to Reply?Click one of the " Reply " links to respond to a specific message in the Daily Digest.Create New Topic | Visit Your Group on the Web Messages | Files | Photos | Links | Calendar PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ MARKETPLACEStay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now.Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today!Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Individual | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe

[Guest guest]

I am in CA. My first onset started at 8-10 years old with pain to florescent

lights then at 10-12 with chewing. Over the years triggers added are pen

clicking, speaker phones, coin jiggling, neighbor's bass and TV, basketballs

bouncing, car horns as remote locks, people's repetitive speech habits. I even

have the visual cues like legs jiggling and touch sensitivities like rough

sponges on pans or polyester rubbed on my skin. I also have the most intense

sense of smell imaginable. Can smell gas leaks even when the experts can't, etc.

And finally I can hear entire orchestral movements in my head. I can play back

all music in my head and play back movements of people (like dance numbers

perfectly.). Lucky me, I have it all!

Heidi

[Guest guest]

I agree with you, and implied as much in one of my warning emails regarding Dr.

Amen.

I feel any exploration on that front should be taken by individuals, at their

own risk (medically and financially). If Dr. Amen is truly legitimate someone

should approach him about a pro bono test case for our condition. As someone

else mentioned, if the scan and treatment have some merit he'd be willing to

accept those terms. If not, he truly is just a business who is looking for a

easy buck.

>

> I have been lurking for quite awhile myself and don't usually post, but I do

need to pose one question...while I do agree it would be nice if someone could

see Dr. Amen, I'm not so sure that will be an answer for all of us. I live close

to San Francisco, in Fremont CA....the big concern for me personally is that

medicine, therapy, everything is NEVER one size fits all...every single one of

us has a different biochemistry, background, genetics, etc...there is a huge

amount of differences between each of us so how can one person unlock a

treatment that may or may not work, it may work for them but not us, it may work

for us but not them, it may work for a handful...do you understand where I'm

going with this??? I just wondered what everyone's thoughts are about this

issue?

>

> Thanks

>

> Kathy

>