Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Do you have an email for them please? Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Thu, 10 Mar 2011 17:11:24 +0000To: Sound Sensitivity<soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Re: Dr. Amen Has anyone considered going to see Dr. Amen (www.amenclinics.com)? He does SPECT scans to figure out what is going on with the brain, and then recommends ways to repair/help/change the way it is reacting. Clinics exist in California and Washington DC. I believe Dr. J knows about his work, and I wonder if she thought that he could be helpful? I contacted them once a year ago and they had no knowledge of 4S. Maybe they need to know about it and get on board to help?Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPinfo@...www.lastingchanges.co.uk To: Soundsensitivity From: vmfcom@...Date: Thu, 10 Mar 2011 16:24:19 +0000Subject: Re: Out of curiosity: research goals I think they need to do mri imaging of the brains of people with severe 4s listening to (their specific) trigger sounds and compare them to mri images of a (non 4s) control group listening to the same specific sounds.I think what this will reveal is a much more than normal neural activity in the parts of the brain responsible for hearing and also for emotional response. (Basically I think our brains will light up like a Chrismas tree). I think this imaging will also reveal "hard wiring" of the neural pathways proving the emotional reactions are being triggered by auditory stimulus.I still think our condition is similar to synesthesia and results from a (necessary) lack of neural pruning.I am hopeful that a drug exists or can be developed that will help with sensory gating. I posted earlier, and did not have any positive responses to this question: Have any 4s sufferers ever been on Aricept ? I did have one response indicating that this drug might be helpful with sensory gating.Unfortunately, these are only my theories with absolutely zero out there to prove or disprove them !> Out of curiosity, if somebody did get interested in researching 4S, what kind of project do you envision them doing? Would they be studying the anatomy of the inner ear? Doing neurological tests on people with 4S as they react to triggers? Trying to isolate common factors in families with a history of 4S?> > -Kate K.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 No email in sight but you can call them on 1- and maybe they can tell you. When I spoke with them, they called me back to say that they had not (yet) dealt with misophonia........................................I was impressed they took the time to get back to me.I do not have misophonia myself, so I did not pursue. But I think he sounds like he is onto something in general about imaging.Please let me know how you get on. Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCP Telephone 01488-685151/ 686881 info@... www.lastingchanges.co.uk To: Soundsensitivity From: richard.t.mckenna@...Date: Thu, 10 Mar 2011 22:34:03 +0000Subject: Re: Re: Dr. Amen Do you have an email for them please? Sent from my BlackBerry® smartphone on 3 Sender: Soundsensitivity Date: Thu, 10 Mar 2011 17:11:24 +0000To: Sound Sensitivity<soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Re: Dr. Amen Has anyone considered going to see Dr. Amen (www.amenclinics.com)? He does SPECT scans to figure out what is going on with the brain, and then recommends ways to repair/help/change the way it is reacting. Clinics exist in California and Washington DC. I believe Dr. J knows about his work, and I wonder if she thought that he could be helpful? I contacted them once a year ago and they had no knowledge of 4S. Maybe they need to know about it and get on board to help? Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCP info@... www.lastingchanges.co.uk To: Soundsensitivity From: vmfcom@...Date: Thu, 10 Mar 2011 16:24:19 +0000Subject: Re: Out of curiosity: research goals I think they need to do mri imaging of the brains of people with severe 4s listening to (their specific) trigger sounds and compare them to mri images of a (non 4s) control group listening to the same specific sounds. I think what this will reveal is a much more than normal neural activity in the parts of the brain responsible for hearing and also for emotional response. (Basically I think our brains will light up like a Chrismas tree). I think this imaging will also reveal "hard wiring" of the neural pathways proving the emotional reactions are being triggered by auditory stimulus. I still think our condition is similar to synesthesia and results from a (necessary) lack of neural pruning. I am hopeful that a drug exists or can be developed that will help with sensory gating. I posted earlier, and did not have any positive responses to this question: Have any 4s sufferers ever been on Aricept ? I did have one response indicating that this drug might be helpful with sensory gating. Unfortunately, these are only my theories with absolutely zero out there to prove or disprove them ! > Out of curiosity, if somebody did get interested in researching 4S, what kind of project do you envision them doing? Would they be studying the anatomy of the inner ear? Doing neurological tests on people with 4S as they react to triggers? Trying to isolate common factors in families with a history of 4S? > > -Kate K. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 I'm based in Australia so I might leave that phone call up to someone in the right time zone Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Thu, 10 Mar 2011 22:43:56 +0000To: Sound Sensitivity<soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Re: Dr. Amen No email in sight but you can call them on 1- and maybe they can tell you. When I spoke with them, they called me back to say that they had not (yet) dealt with misophonia........................................I was impressed they took the time to get back to me.I do not have misophonia myself, so I did not pursue. But I think he sounds like he is onto something in general about imaging.Please let me know how you get on.Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk To: Soundsensitivity From: richard.t.mckenna@...Date: Thu, 10 Mar 2011 22:34:03 +0000Subject: Re: Re: Dr. Amen Do you have an email for them please? Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Thu, 10 Mar 2011 17:11:24 +0000To: Sound Sensitivity<soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Re: Dr. Amen Has anyone considered going to see Dr. Amen (www.amenclinics.com)? He does SPECT scans to figure out what is going on with the brain, and then recommends ways to repair/help/change the way it is reacting. Clinics exist in California and Washington DC. I believe Dr. J knows about his work, and I wonder if she thought that he could be helpful? I contacted them once a year ago and they had no knowledge of 4S. Maybe they need to know about it and get on board to help?Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPinfo@...www.lastingchanges.co.uk To: Soundsensitivity From: vmfcom@...Date: Thu, 10 Mar 2011 16:24:19 +0000Subject: Re: Out of curiosity: research goals I think they need to do mri imaging of the brains of people with severe 4s listening to (their specific) trigger sounds and compare them to mri images of a (non 4s) control group listening to the same specific sounds.I think what this will reveal is a much more than normal neural activity in the parts of the brain responsible for hearing and also for emotional response. (Basically I think our brains will light up like a Chrismas tree). I think this imaging will also reveal "hard wiring" of the neural pathways proving the emotional reactions are being triggered by auditory stimulus.I still think our condition is similar to synesthesia and results from a (necessary) lack of neural pruning.I am hopeful that a drug exists or can be developed that will help with sensory gating. I posted earlier, and did not have any positive responses to this question: Have any 4s sufferers ever been on Aricept ? I did have one response indicating that this drug might be helpful with sensory gating.Unfortunately, these are only my theories with absolutely zero out there to prove or disprove them !> Out of curiosity, if somebody did get interested in researching 4S, what kind of project do you envision them doing? Would they be studying the anatomy of the inner ear? Doing neurological tests on people with 4S as they react to triggers? Trying to isolate common factors in families with a history of 4S?> > -Kate K.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 I asked for information from them, they were very helpful. I was told they had not delat with our issues specifically, but their history in dealing with brain issues was highly successful. THey sent me a packet of information and called personally to discuss. They go through a functional MRI test in a variety of settings and have you speak with an entire team of doctors and psychologists over a two day period. THey put together a package for treatment based upon all the doctors input. I have not been there yet, but am considering. They stated insurance doesn't normally pay for their services and they tend to run between $2500 and $3500 for the full evaluation and plan. They also include a nutritional plan. To: Sound Sensitivity <soundsensitivity >Sent: Thu, March 10, 2011 4:43:56 PMSubject: RE: Re: Dr. Amen No email in sight but you can call them on 1- and maybe they can tell you. When I spoke with them, they called me back to say that they had not (yet) dealt with misophonia........................................I was impressed they took the time to get back to me.I do not have misophonia myself, so I did not pursue. But I think he sounds like he is onto something in general about imaging.Please let me know how you get on. Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk To: Soundsensitivity From: richard.t.mckenna@...Date: Thu, 10 Mar 2011 22:34:03 +0000Subject: Re: Re: Dr. Amen Do you have an email for them please? Sent from my BlackBerry® smartphone on 3 Sender: Soundsensitivity Date: Thu, 10 Mar 2011 17:11:24 +0000 To: Sound Sensitivity<soundsensitivity > ReplyTo: Soundsensitivity Subject: RE: Re: Dr. Amen Has anyone considered going to see Dr. Amen (www.amenclinics.com)? He does SPECT scans to figure out what is going on with the brain, and then recommends ways to repair/help/change the way it is reacting. Clinics exist in California and Washington DC. I believe Dr. J knows about his work, and I wonder if she thought that he could be helpful? I contacted them once a year ago and they had no knowledge of 4S. Maybe they need to know about it and get on board to help? Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPinfo@...www.lastingchanges.co.uk To: Soundsensitivity From: vmfcom@...Date: Thu, 10 Mar 2011 16:24:19 +0000Subject: Re: Out of curiosity: research goals I think they need to do mri imaging of the brains of people with severe 4s listening to (their specific) trigger sounds and compare them to mri images of a (non 4s) control group listening to the same specific sounds.I think what this will reveal is a much more than normal neural activity in the parts of the brain responsible for hearing and also for emotional response. (Basically I think our brains will light up like a Chrismas tree). I think this imaging will also reveal "hard wiring" of the neural pathways proving the emotional reactions are being triggered by auditory stimulus.I still think our condition is similar to synesthesia and results from a (necessary) lack of neural pruning.I am hopeful that a drug exists or can be developed that will help with sensory gating. I posted earlier, and did not have any positive responses to this question: Have any 4s sufferers ever been on Aricept ? I did have one response indicating that this drug might be helpful with sensory gating.Unfortunately, these are only my theories with absolutely zero out there to prove or disprove them !> Out of curiosity, if somebody did get interested in researching 4S, what kind of project do you envision them doing? Would they be studying the anatomy of the inner ear? Doing neurological tests on people with 4S as they react to triggers? Trying to isolate common factors in families with a history of 4S?> > -Kate K.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Wonder if they'll give us a group discount?I think I'll give them a call too. :)Sent from my iPhone I asked for information from them, they were very helpful. I was told they had not delat with our issues specifically, but their history in dealing with brain issues was highly successful. THey sent me a packet of information and called personally to discuss. They go through a functional MRI test in a variety of settings and have you speak with an entire team of doctors and psychologists over a two day period. THey put together a package for treatment based upon all the doctors input. I have not been there yet, but am considering. They stated insurance doesn't normally pay for their services and they tend to run between $2500 and $3500 for the full evaluation and plan. They also include a nutritional plan. To: Sound Sensitivity <soundsensitivity >Sent: Thu, March 10, 2011 4:43:56 PMSubject: RE: Re: Dr. Amen No email in sight but you can call them on 1- and maybe they can tell you. When I spoke with them, they called me back to say that they had not (yet) dealt with misophonia........................................I was impressed they took the time to get back to me.I do not have misophonia myself, so I did not pursue. But I think he sounds like he is onto something in general about imaging.Please let me know how you get on. Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk To: Soundsensitivity From: richard.t.mckenna@...Date: Thu, 10 Mar 2011 22:34:03 +0000Subject: Re: Re: Dr. Amen Do you have an email for them please? Sent from my BlackBerry® smartphone on 3 Sender: Soundsensitivity Date: Thu, 10 Mar 2011 17:11:24 +0000 To: Sound Sensitivity<soundsensitivity > ReplyTo: Soundsensitivity Subject: RE: Re: Dr. Amen Has anyone considered going to see Dr. Amen (www.amenclinics.com)? He does SPECT scans to figure out what is going on with the brain, and then recommends ways to repair/help/change the way it is reacting. Clinics exist in California and Washington DC. I believe Dr. J knows about his work, and I wonder if she thought that he could be helpful? I contacted them once a year ago and they had no knowledge of 4S. Maybe they need to know about it and get on board to help? Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPinfo@...www.lastingchanges.co.uk To: Soundsensitivity From: vmfcom@...Date: Thu, 10 Mar 2011 16:24:19 +0000Subject: Re: Out of curiosity: research goals I think they need to do mri imaging of the brains of people with severe 4s listening to (their specific) trigger sounds and compare them to mri images of a (non 4s) control group listening to the same specific sounds.I think what this will reveal is a much more than normal neural activity in the parts of the brain responsible for hearing and also for emotional response. (Basically I think our brains will light up like a Chrismas tree). I think this imaging will also reveal "hard wiring" of the neural pathways proving the emotional reactions are being triggered by auditory stimulus.I still think our condition is similar to synesthesia and results from a (necessary) lack of neural pruning.I am hopeful that a drug exists or can be developed that will help with sensory gating. I posted earlier, and did not have any positive responses to this question: Have any 4s sufferers ever been on Aricept ? I did have one response indicating that this drug might be helpful with sensory gating.Unfortunately, these are only my theories with absolutely zero out there to prove or disprove them !> Out of curiosity, if somebody did get interested in researching 4S, what kind of project do you envision them doing? Would they be studying the anatomy of the inner ear? Doing neurological tests on people with 4S as they react to triggers? Trying to isolate common factors in families with a history of 4S?> > -Kate K.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 When you do can you grab me an email please?Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Thu, 10 Mar 2011 17:18:05 -0800To: Soundsensitivity <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Re: Dr. Amen Wonder if they'll give us a group discount?I think I'll give them a call too. :)Sent from my iPhone I asked for information from them, they were very helpful. I was told they had not delat with our issues specifically, but their history in dealing with brain issues was highly successful. THey sent me a packet of information and called personally to discuss. They go through a functional MRI test in a variety of settings and have you speak with an entire team of doctors and psychologists over a two day period. THey put together a package for treatment based upon all the doctors input. I have not been there yet, but am considering. They stated insurance doesn't normally pay for their services and they tend to run between $2500 and $3500 for the full evaluation and plan. They also include a nutritional plan. To: Sound Sensitivity <soundsensitivity >Sent: Thu, March 10, 2011 4:43:56 PMSubject: RE: Re: Dr. Amen No email in sight but you can call them on 1- and maybe they can tell you. When I spoke with them, they called me back to say that they had not (yet) dealt with misophonia........................................I was impressed they took the time to get back to me.I do not have misophonia myself, so I did not pursue. But I think he sounds like he is onto something in general about imaging.Please let me know how you get on.Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk To: Soundsensitivity From: richard.t.mckenna@...Date: Thu, 10 Mar 2011 22:34:03 +0000Subject: Re: Re: Dr. Amen Do you have an email for them please? Sent from my BlackBerry® smartphone on 3 Sender: Soundsensitivity Date: Thu, 10 Mar 2011 17:11:24 +0000To: Sound Sensitivity<soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Re: Dr. Amen Has anyone considered going to see Dr. Amen (www.amenclinics.com)? He does SPECT scans to figure out what is going on with the brain, and then recommends ways to repair/help/change the way it is reacting. Clinics exist in California and Washington DC. I believe Dr. J knows about his work, and I wonder if she thought that he could be helpful? I contacted them once a year ago and they had no knowledge of 4S. Maybe they need to know about it and get on board to help?Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPinfo@...www.lastingchanges.co.uk To: Soundsensitivity From: vmfcom@...Date: Thu, 10 Mar 2011 16:24:19 +0000Subject: Re: Out of curiosity: research goals I think they need to do mri imaging of the brains of people with severe 4s listening to (their specific) trigger sounds and compare them to mri images of a (non 4s) control group listening to the same specific sounds.I think what this will reveal is a much more than normal neural activity in the parts of the brain responsible for hearing and also for emotional response. (Basically I think our brains will light up like a Chrismas tree). I think this imaging will also reveal "hard wiring" of the neural pathways proving the emotional reactions are being triggered by auditory stimulus.I still think our condition is similar to synesthesia and results from a (necessary) lack of neural pruning.I am hopeful that a drug exists or can be developed that will help with sensory gating. I posted earlier, and did not have any positive responses to this question: Have any 4s sufferers ever been on Aricept ? I did haveone response indicating that this drug might be helpful with sensory gating.Unfortunately, these are only my theories with absolutely zero out there to prove or disprove them !> Out of curiosity, if somebody did get interested in researching 4S, what kind of project do you envision them doing? Would they be studying the anatomy of the inner ear? Doing neurological tests on people with 4S as they react to triggers? Trying to isolate common factors in families with a history of 4S?> > -Kate K.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 I think it would be great if we could have 3 people who have classic 4s symptoms go to get the full work up. I know it’s expensive, but why don’t we use this group’s numbers to make it financially possible. If we all donate $50-$100 then we can raise the money to send them. We can start our own research since we can’t seem to get it other ways. I bet we could talk to Dr. Amen’s clinic and get them to give us the lowest rate and pay $2500 for each person. It would be great if we could have them all go to the same clinic around the same time so that they can really focus on all aspects of 4s and see how important it is. I think probably the more established California clinic would be the best. What does everyone think? Who would donate a little for some possible research? That way it wouldn’t be a huge burden financially for anyone. Kathy From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Thursday, March 10, 2011 5:27 PMTo: Soundsensitivity Subject: Re: Dr. Amen Love Dr. Amen and his clinic, do go there or send people, that would be a great idea.He has a newer clinic up in Washington.Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 I'd love to if I had the means, but there's no way I can give $50 of the little money I have. If I did, I wouldn't be able to afford my medicine. --------------------------------------------------------- ♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥ http://www.caringbridge.org/visit/sarahmae  I think it would be great if we could have 3 people who have classic 4s symptoms go to get the full work up. I know it’s expensive, but why don’t we use this group’s numbers to make it financially possible. If we all donate $50-$100 then we can raise the money to send them. We can start our own research since we can’t seem to get it other ways. I bet we could talk to Dr. Amen’s clinic and get them to give us the lowest rate and pay $2500 for each person. It would be great if we could have them all go to the same clinic around the same time so that they can really focus on all aspects of 4s and see how important it is. I think probably the more established California clinic would be the best.  What does everyone think? Who would donate a little for some possible research? That way it wouldn’t be a huge burden financially for anyone.  Kathy From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of M Sent: Thursday, March 10, 2011 5:27 PMTo: Soundsensitivity Subject: Re: Dr. Amen   Love Dr. Amen and his clinic, do go there or send people, that would be a great idea.He has a newer clinic up in Washington. Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Great idea. That's working together as a team. I would be open to doing that. One other update: I met with an audioligist, neurofeedback specialist, psychiatrist, visual processing specialist, auditory processing specialist - the group met with me all at the same time. As a result, our plan is to do some work with the psychiatrist and then do neurofeedback, then do the audio processing training. I'm hopeful that we are headed the right direction. this is something new for everyone involved, but I have a great group of people willing to help me. I will keep you posted, as we may have some information that could help others, and hopefully within a few weeks we can tell a difference. To: Soundsensitivity Sent: Sat, March 12, 2011 7:00:50 PMSubject: Re: Re: Dr. Amen I'd love to if I had the means, but there's no way I can give $50 of the little money I have. If I did, I wouldn't be able to afford my medicine. --------------------------------------------------------- ♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmae I think it would be great if we could have 3 people who have classic 4s symptoms go to get the full work up. I know it’s expensive, but why don’t we use this group’s numbers to make it financially possible. If we all donate $50-$100 then we can raise the money to send them. We can start our own research since we can’t seem to get it other ways. I bet we could talk to Dr. Amen’s clinic and get them to give us the lowest rate and pay $2500 for each person. It would be great if we could have them all go to the same clinic around the same time so that they can really focus on all aspects of 4s and see how important it is. I think probably the more established California clinic would be the best. What does everyone think? Who would donate a little for some possible research? That way it wouldn’t be a huge burden financially for anyone. Kathy From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Thursday, March 10, 2011 5:27 PMTo: Soundsensitivity Subject: Re: Dr. Amen Love Dr. Amen and his clinic, do go there or send people, that would be a great idea.He has a newer clinic up in Washington.Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 I definitely wouldn’t expect the really younger people in the group to contribute unless they could. Don’t worry about it. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mae Sent: Saturday, March 12, 2011 8:01 PMTo: Soundsensitivity Subject: Re: Re: Dr. Amen I'd love to if I had the means, but there's no way I can give $50 of the little money I have. If I did, I wouldn't be able to afford my medicine.---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Sat, Mar 12, 2011 at 6:27 PM, Kathy Howe wrote: I think it would be great if we could have 3 people who have classic 4s symptoms go to get the full work up. I know it’s expensive, but why don’t we use this group’s numbers to make it financially possible. If we all donate $50-$100 then we can raise the money to send them. We can start our own research since we can’t seem to get it other ways. I bet we could talk to Dr. Amen’s clinic and get them to give us the lowest rate and pay $2500 for each person. It would be great if we could have them all go to the same clinic around the same time so that they can really focus on all aspects of 4s and see how important it is. I think probably the more established California clinic would be the best. What does everyone think? Who would donate a little for some possible research? That way it wouldn’t be a huge burden financially for anyone. Kathy From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Thursday, March 10, 2011 5:27 PMTo: Soundsensitivity Subject: Re: Dr. Amen Love Dr. Amen and his clinic, do go there or send people, that would be a great idea.He has a newer clinic up in Washington.Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 My daughter did neurofeedback (about 20 sessions) and felt that it helped her to feel more calm and in control. However, it didn’t stop her 4s in any way. She also did something called Auditory Integration Training. That didn’t help at all. I’ll pray that you get great results. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of JIM ROSSSent: Saturday, March 12, 2011 8:10 PMTo: Soundsensitivity Subject: Re: Re: Dr. Amen Great idea. That's working together as a team. I would be open to doing that. One other update: I met with an audioligist, neurofeedback specialist, psychiatrist, visual processing specialist, auditory processing specialist - the group met with me all at the same time. As a result, our plan is to do some work with the psychiatrist and then do neurofeedback, then do the audio processing training. I'm hopeful that we are headed the right direction. this is something new for everyone involved, but I have a great group of people willing to help me.I will keep you posted, as we may have some information that could help others, and hopefully within a few weeks we can tell a difference. To: Soundsensitivity Sent: Sat, March 12, 2011 7:00:50 PMSubject: Re: Re: Dr. Amen I'd love to if I had the means, but there's no way I can give $50 of the little money I have. If I did, I wouldn't be able to afford my medicine.---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Sat, Mar 12, 2011 at 6:27 PM, Kathy Howe wrote: I think it would be great if we could have 3 people who have classic 4s symptoms go to get the full work up. I know it’s expensive, but why don’t we use this group’s numbers to make it financially possible. If we all donate $50-$100 then we can raise the money to send them. We can start our own research since we can’t seem to get it other ways. I bet we could talk to Dr. Amen’s clinic and get them to give us the lowest rate and pay $2500 for each person. It would be great if we could have them all go to the same clinic around the same time so that they can really focus on all aspects of 4s and see how important it is. I think probably the more established California clinic would be the best. What does everyone think? Who would donate a little for some possible research? That way it wouldn’t be a huge burden financially for anyone. Kathy From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Thursday, March 10, 2011 5:27 PMTo: Soundsensitivity Subject: Re: Dr. Amen Love Dr. Amen and his clinic, do go there or send people, that would be a great idea.He has a newer clinic up in Washington.Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 I think that's a great idea and I would love to contribute. Sent from my iPhone My daughter did neurofeedback (about 20 sessions) and felt that it helped her to feel more calm and in control. However, it didn’t stop her 4s in any way. She also did something called Auditory Integration Training. That didn’t help at all. I’ll pray that you get great results. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of JIM ROSSSent: Saturday, March 12, 2011 8:10 PMTo: Soundsensitivity Subject: Re: Re: Dr. Amen Great idea. That's working together as a team. I would be open to doing that. One other update: I met with an audioligist, neurofeedback specialist, psychiatrist, visual processing specialist, auditory processing specialist - the group met with me all at the same time. As a result, our plan is to do some work with the psychiatrist and then do neurofeedback, then do the audio processing training. I'm hopeful that we are headed the right direction. this is something new for everyone involved, but I have a great group of people willing to help me.I will keep you posted, as we may have some information that could help others, and hopefully within a few weeks we can tell a difference. To: Soundsensitivity Sent: Sat, March 12, 2011 7:00:50 PMSubject: Re: Re: Dr. Amen I'd love to if I had the means, but there's no way I can give $50 of the little money I have. If I did, I wouldn't be able to afford my medicine.---------------------------------------------------------♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Sat, Mar 12, 2011 at 6:27 PM, Kathy Howe wrote: I think it would be great if we could have 3 people who have classic 4s symptoms go to get the full work up. I know it’s expensive, but why don’t we use this group’s numbers to make it financially possible. If we all donate $50-$100 then we can raise the money to send them. We can start our own research since we can’t seem to get it other ways. I bet we could talk to Dr. Amen’s clinic and get them to give us the lowest rate and pay $2500 for each person. It would be great if we could have them all go to the same clinic around the same time so that they can really focus on all aspects of 4s and see how important it is. I think probably the more established California clinic would be the best. What does everyone think? Who would donate a little for some possible research? That way it wouldn’t be a huge burden financially for anyone. Kathy From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Thursday, March 10, 2011 5:27 PMTo: Soundsensitivity Subject: Re: Dr. Amen Love Dr. Amen and his clinic, do go there or send people, that would be a great idea.He has a newer clinic up in Washington.Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 I think that we would have to start a Non-Profit group and bank account and that way everyone can write their checks payable to it. I work doing bookkeeping and accounting and we have a lot of non-profit clients. I don’t personally work with the non-profit clients, but my boss does and I’m sure she would help me make sure it is set up correctly. I think that this would be really important to finally get a financial base going to fund possible research (on a small scale) or do things like mailings to create awareness and fundraising. I also do mailings to mainly Republican/Conservative groups who are wealthy, and might be able to get lists of people who we could do a blanket mailing to. Odds are many would recognize the symptoms in someone they know or even themselves. We need to use our numbers to affect change. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of BrewerSent: Saturday, March 12, 2011 9:37 PMTo: Soundsensitivity Subject: Re: Re: Dr. Amen I think that's a great idea and I would love to contribute. Sent from my iPhone My daughter did neurofeedback (about 20 sessions) and felt that it helped her to feel more calm and in control. However, it didn’t stop her 4s in any way. She also did something called Auditory Integration Training. That didn’t help at all. I’ll pray that you get great results. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of JIM ROSSSent: Saturday, March 12, 2011 8:10 PMTo: Soundsensitivity Subject: Re: Re: Dr. Amen Great idea. That's working together as a team. I would be open to doing that. One other update: I met with an audioligist, neurofeedback specialist, psychiatrist, visual processing specialist, auditory processing specialist - the group met with me all at the same time. As a result, our plan is to do some work with the psychiatrist and then do neurofeedback, then do the audio processing training. I'm hopeful that we are headed the right direction. this is something new for everyone involved, but I have a great group of people willing to help me.I will keep you posted, as we may have some information that could help others, and hopefully within a few weeks we can tell a difference. To: Soundsensitivity Sent: Sat, March 12, 2011 7:00:50 PMSubject: Re: Re: Dr. Amen I'd love to if I had the means, but there's no way I can give $50 of the little money I have. If I did, I wouldn't be able to afford my medicine.---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Sat, Mar 12, 2011 at 6:27 PM, Kathy Howe wrote: I think it would be great if we could have 3 people who have classic 4s symptoms go to get the full work up. I know it’s expensive, but why don’t we use this group’s numbers to make it financially possible. If we all donate $50-$100 then we can raise the money to send them. We can start our own research since we can’t seem to get it other ways. I bet we could talk to Dr. Amen’s clinic and get them to give us the lowest rate and pay $2500 for each person. It would be great if we could have them all go to the same clinic around the same time so that they can really focus on all aspects of 4s and see how important it is. I think probably the more established California clinic would be the best. What does everyone think? Who would donate a little for some possible research? That way it wouldn’t be a huge burden financially for anyone. Kathy From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Thursday, March 10, 2011 5:27 PMTo: Soundsensitivity Subject: Re: Dr. Amen Love Dr. Amen and his clinic, do go there or send people, that would be a great idea.He has a newer clinic up in Washington.Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Oh, also we would have to set up a board of directors to oversee the appropriations of the funds and what not. I will ask my boss exactly what we need to do to set everything up. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of BrewerSent: Saturday, March 12, 2011 9:37 PMTo: Soundsensitivity Subject: Re: Re: Dr. Amen I think that's a great idea and I would love to contribute. Sent from my iPhone My daughter did neurofeedback (about 20 sessions) and felt that it helped her to feel more calm and in control. However, it didn’t stop her 4s in any way. She also did something called Auditory Integration Training. That didn’t help at all. I’ll pray that you get great results. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of JIM ROSSSent: Saturday, March 12, 2011 8:10 PMTo: Soundsensitivity Subject: Re: Re: Dr. Amen Great idea. That's working together as a team. I would be open to doing that. One other update: I met with an audioligist, neurofeedback specialist, psychiatrist, visual processing specialist, auditory processing specialist - the group met with me all at the same time. As a result, our plan is to do some work with the psychiatrist and then do neurofeedback, then do the audio processing training. I'm hopeful that we are headed the right direction. this is something new for everyone involved, but I have a great group of people willing to help me.I will keep you posted, as we may have some information that could help others, and hopefully within a few weeks we can tell a difference. To: Soundsensitivity Sent: Sat, March 12, 2011 7:00:50 PMSubject: Re: Re: Dr. Amen I'd love to if I had the means, but there's no way I can give $50 of the little money I have. If I did, I wouldn't be able to afford my medicine.---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Sat, Mar 12, 2011 at 6:27 PM, Kathy Howe wrote: I think it would be great if we could have 3 people who have classic 4s symptoms go to get the full work up. I know it’s expensive, but why don’t we use this group’s numbers to make it financially possible. If we all donate $50-$100 then we can raise the money to send them. We can start our own research since we can’t seem to get it other ways. I bet we could talk to Dr. Amen’s clinic and get them to give us the lowest rate and pay $2500 for each person. It would be great if we could have them all go to the same clinic around the same time so that they can really focus on all aspects of 4s and see how important it is. I think probably the more established California clinic would be the best. What does everyone think? Who would donate a little for some possible research? That way it wouldn’t be a huge burden financially for anyone. Kathy From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Thursday, March 10, 2011 5:27 PMTo: Soundsensitivity Subject: Re: Dr. Amen Love Dr. Amen and his clinic, do go there or send people, that would be a great idea.He has a newer clinic up in Washington.Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 I am happy to donate towards sending several people to Dr Amen's clinic. I guess it depends on whether this should be handled by one person or several persons. One option might be for several American forum members to open a joint savings account at a US bank (if you trust any of your banks :-) ), to which other forum members could electronically transfer funds as donations. That makes it easier to report back what was collected, and how it was spent. > > I think it would be great if we could have 3 people who have classic 4s > symptoms go to get the full work up. I know it's expensive, but why don't > we use this group's numbers to make it financially possible. If we all > donate $50-$100 then we can raise the money to send them. We can start our > own research since we can't seem to get it other ways. I bet we could talk > to Dr. Amen's clinic and get them to give us the lowest rate and pay $2500 > for each person. It would be great if we could have them all go to the same > clinic around the same time so that they can really focus on all aspects of > 4s and see how important it is. I think probably the more established > California clinic would be the best. > > > > What does everyone think? Who would donate a little for some possible > research? That way it wouldn't be a huge burden financially for anyone. > > > > Kathy > > > > From: Soundsensitivity > [mailto:Soundsensitivity ] On Behalf Of M > Sent: Thursday, March 10, 2011 5:27 PM > To: Soundsensitivity > Subject: Re: Dr. Amen > > > > > > Love Dr. Amen and his clinic, do go there or send people, that would be a > great idea. > > He has a newer clinic up in Washington. > > Marsha > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Count me in......................... Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCP info@... www.lastingchanges.co.uk To: Soundsensitivity From: imackinnell@...Date: Sun, 13 Mar 2011 03:40:59 +0000Subject: Re: Dr. Amen I am happy to donate towards sending several people to Dr Amen's clinic. I guess it depends on whether this should be handled by one person or several persons. One option might be for several American forum members to open a joint savings account at a US bank (if you trust any of your banks :-) ), to which other forum members could electronically transfer funds as donations. That makes it easier to report back what was collected, and how it was spent. > > I think it would be great if we could have 3 people who have classic 4s > symptoms go to get the full work up. I know it's expensive, but why don't > we use this group's numbers to make it financially possible. If we all > donate $50-$100 then we can raise the money to send them. We can start our > own research since we can't seem to get it other ways. I bet we could talk > to Dr. Amen's clinic and get them to give us the lowest rate and pay $2500 > for each person. It would be great if we could have them all go to the same > clinic around the same time so that they can really focus on all aspects of > 4s and see how important it is. I think probably the more established > California clinic would be the best. > > > > What does everyone think? Who would donate a little for some possible > research? That way it wouldn't be a huge burden financially for anyone. > > > > Kathy > > > > From: Soundsensitivity > [mailto:Soundsensitivity ] On Behalf Of M > Sent: Thursday, March 10, 2011 5:27 PM > To: Soundsensitivity > Subject: Re: Dr. Amen > > > > > > Love Dr. Amen and his clinic, do go there or send people, that would be a > great idea. > > He has a newer clinic up in Washington. > > Marsha > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 This is exactly right. And a bank account might also allow people like me (who don't use cheques at all) to make international money transfers into the account. My wife does bookkeeping for non-profits in Australia, and she was saying the same thing as you outlined: as soon as you collect, hold, or disburse money, you need to incorporate. It's a practical start. > > I think that we would have to start a Non-Profit group and bank account and that way everyone can write their checks payable to it. I work doing bookkeeping and accounting and we have a lot of non-profit clients. I don’t personally work with the non-profit clients, but my boss does and I’m sure she would help me make sure it is set up correctly. > > > > I think that this would be really important to finally get a financial base going to fund possible research (on a small scale) or do things like mailings to create awareness and fundraising. I also do mailings to mainly Republican/Conservative groups who are wealthy, and might be able to get lists of people who we could do a blanket mailing to. Odds are many would recognize the symptoms in someone they know or even themselves. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 This is a great idea, but will need a large amount of numbers for it to work. I would suggest starting a topic herehttp://www.soundsensitivity.info/Forum/viewforum.php?f=8 that is the support section of the private board. I am suggesting doing this as the idea may get lost or hard to track in here I know a little about setting up a NPO in australia but not much overseas. It would make sense to start it in America if you were planning on having research there. Do you remember when I said I was going to put a store on the public website? and proceeds would go to running the site as well as research? this could still be done and money raised from this could go towards any research idea we as a group are aiming at. The store would be affiliate items, such as ear plugs, white noise generators etc. A donate button could also be set up on that site so when people would like to make a transfer all they have to do is click it and eft to the bank account for the not for profit org. Just thoughts This is exactly right. And a bank account might also allow people like me (who don't use cheques at all) to make international money transfers into the account. My wife does bookkeeping for non-profits in Australia, and she was saying the same thing as you outlined: as soon as you collect, hold, or disburse money, you need to incorporate. It's a practical start. > > I think that we would have to start a Non-Profit group and bank account and that way everyone can write their checks payable to it. I work doing bookkeeping and accounting and we have a lot of non-profit clients. I don’t personally work with the non-profit clients, but my boss does and I’m sure she would help me make sure it is set up correctly. > > > > I think that this would be really important to finally get a financial base going to fund possible research (on a small scale) or do things like mailings to create awareness and fundraising. I also do mailings to mainly Republican/Conservative groups who are wealthy, and might be able to get lists of people who we could do a blanket mailing to. Odds are many would recognize the symptoms in someone they know or even themselves. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 terrific! This is a great idea, but will need a large amount of numbers for it to work. I would suggest starting a topic herehttp://www.soundsensitivity.info/Forum/viewforum.php?f=8 that is the support section of the private board. I am suggesting doing this as the idea may get lost or hard to track in here I know a little about setting up a NPO in australia but not much overseas. It would make sense to start it in America if you were planning on having research there. Do you remember when I said I was going to put a store on the public website? and proceeds would go to running the site as well as research? this could still be done and money raised from this could go towards any research idea we as a group are aiming at. The store would be affiliate items, such as ear plugs, white noise generators etc. A donate button could also be set up on that site so when people would like to make a transfer all they have to do is click it and eft to the bank account for the not for profit org. Just thoughts This is exactly right. And a bank account might also allow people like me (who don't use cheques at all) to make international money transfers into the account. My wife does bookkeeping for non-profits in Australia, and she was saying the same thing as you outlined: as soon as you collect, hold, or disburse money, you need to incorporate. It's a practical start. > > I think that we would have to start a Non-Profit group and bank account and that way everyone can write their checks payable to it. I work doing bookkeeping and accounting and we have a lot of non-profit clients. I don’t personally work with the non-profit clients, but my boss does and I’m sure she would help me make sure it is set up correctly. > > > > I think that this would be really important to finally get a financial base going to fund possible research (on a small scale) or do things like mailings to create awareness and fundraising. I also do mailings to mainly Republican/Conservative groups who are wealthy, and might be able to get lists of people who we could do a blanket mailing to. Odds are many would recognize the symptoms in someone they know or even themselves. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 That sounds good. I will talk to my boss tomorrow and figure out everything we need to do. I guess we have to think of an official name for our non-profit. Maybe “The 4s Foundation†or “Soft Sound Sensitivity Foundation,â€Â or something else…. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of McKennaSent: Sunday, March 13, 2011 1:02 AMTo: Soundsensitivity Subject: Re: Re: Dr. Amen This is a great idea, but will need a large amount of numbers for it to work. I would suggest starting a topic here http://www.soundsensitivity.info/Forum/viewforum.php?f=8 that is the support section of the private board. I am suggesting doing this as the idea may get lost or hard to track in here I know a little about setting up a NPO in australia but not much overseas. It would make sense to start it in America if you were planning on having research there. Do you remember when I said I was going to put a store on the public website? and proceeds would go to running the site as well as research? this could still be done and money raised from this could go towards any research idea we as a group are aiming at. The store would be affiliate items, such as ear plugs, white noise generators etc. A donate button could also be set up on that site so when people would like to make a transfer all they have to do is click it and eft to the bank account for the not for profit org. Just thoughts This is exactly right. And a bank account might also allow people like me (who don't use cheques at all) to make international money transfers into the account.My wife does bookkeeping for non-profits in Australia, and she was saying the same thing as you outlined: as soon as you collect, hold, or disburse money, you need to incorporate.It's a practical start.>> I think that we would have to start a Non-Profit group and bank account and that way everyone can write their checks payable to it. I work doing bookkeeping and accounting and we have a lot of non-profit clients. I don’t personally work with the non-profit clients, but my boss does and I’m sure she would help me make sure it is set up correctly.> > > > I think that this would be really important to finally get a financial base going to fund possible research (on a small scale) or do things like mailings to create awareness and fundraising. I also do mailings to mainly Republican/Conservative groups who are wealthy, and might be able to get lists of people who we could do a blanket mailing to. Odds are many would recognize the symptoms in someone they know or even themselves.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Just wanted to chime in about your not for profit question... I own a Theater Company that I looked into making a Not for Profit- however I did not because 1. the Cost involved to do it. There are legal costs and filings etc... 2. You are required to maintain a board of directors that handle all the business and you must have public meetings etc... and all the reports etc... the IRS requires yearly- it would be a full time job. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Yeah—that is my understanding of it since speaking with the CPA. I don’t think it’s worth it. Maybe we can just start a regular account and not show any profit. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of aSent: Wednesday, March 16, 2011 4:43 PMTo: Soundsensitivity Subject: Re: Dr. Amen Just wanted to chime in about your not for profit question... I own a Theater Company that I looked into making a Not for Profit- however I did not because 1. the Cost involved to do it. There are legal costs and filings etc... 2. You are required to maintain a board of directors that handle all the business and you must have public meetings etc... and all the reports etc... the IRS requires yearly- it would be a full time job. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 I am in the KC area and working with a group of specialists. What part of MO are you from? To: "Soundsensitivity " <Soundsensitivity >Sent: Wed, March 23, 2011 3:47:18 PMSubject: Re: Dr. Amen Hi, I have family in the area but live in Missouri. Where is Dr. Amen's office located? How long do you think the process would take? Would they accept a thirteen year old? Sent from my iPhone Thanks for volunteering, Mayuri. Hopefully we can raise the money we need. I would put it in an account, or we can contact Dr. Amen and see if he will accept payment from all over. The only problem is the accounting aspect. We would need to tell someone that we sent a check for “x†amount and that way we will know how much Dr. Amen receives so there won’t be a discrepancy. I would keep record of it—everyone would just have to email me their check number, amount, and when they sent it. But first we need to contact Dr. Amen and see if he would do something like that. If he wouldn’t, I would be okay with opening an account and then sending one big check for payment. However, we would need another person to basically keep record like described above, so there would be an accounting. (I’m very honest, but I wouldn’t want anyone thinking I’m taking in more than I am sending Dr. Amen—we just need “checks and balances.â€) But first we need to find 2 more people willing to go to Dr. Amen and be researched—Anyone out there in the Northern CA area?? From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mayuri MandelSent: Wednesday, March 23, 2011 1:34 PMTo: Soundsensitivity Subject: Dr. Amen Hi! I've been a member of this group almost since its inception, but originally signed up under another name due to privacy concerns. So you won't recognize my name, but I've been around for years, mostly lurking. I also worked directly with Dr. J. for a while (via phone) after purchasing her sound generators, which unfortunately did nothing for me. (Although Dr. J. herself is a pleasure!) I've been through everything from physical therapy to acupuncture to special listening CDs to biofeedback . . . and the only thing that has helped at all so far is a combination of 3 different medications. Even that only takes the edge off--I still walk around almost all day with earplugs in and/or noise-reduction headphones on. Anyway, I'm right in San Francisco, very close to the California Amen Clinic, and would be happy to be one of the folks who sees Dr. Amen if the group can help raise the money. I'd definitely report back to the group in detail with whatever happened. And I'm willing to kick in a little money myself toward whoever goes, whether it's me or someone else. This sounds like a great chance to do some investigating! Oh, as a side note--I had a few sessions with our own Tara Economakis, too--she's fantastic, if anyone gets the chance to see her, and while I don't think the self-hypnosis/relaxation she has taught me is up to solving my 4S problem YET, she did show me that I really can relax my nervous system, and I've been practicing daily. My hope is that over time I'll get better and better at it, until I can do it quickly and being relaxed becomes my default mode more often and for longer stretches. From there, hopefully I can start making inroads into the 4S itself. Like I said, I'm mostly a lurker on this group, but I read the digest almost every day. Thanks to everyone here who is doing so much on our behalf, from the non-profit planning to the fundraising ideas to the new websites and articles that have gone up online. I'm grateful to have you all on my side. -Mayuri Good work, ! That photo of you at the top with your fingers in your ears sums it up perfectly. :-)Best,Jay>> Hi, everyone!> > I just published an article on 4S on Suite 101. I hope it brings attention to our shared suffering... I also directed readers to Marsha's site as well as this group. Maybe more 4S victims can at the very least discover they are not alone.> > http://www.suite101 .com/content/ when-noise- turns-every- day-into- a-nightmare- a355395?sms_ ss=yahoomail> > Toodles,> > Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (8) Recent Activity 6 New Members Visit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. <image001.jpg> Yahoo! Health Achy Joint? Common arthritis myths debunked. <image001.jpg> Sell Online Start selling with our award-winning e-commerce tools. <image001.jpg> Need to Reply? Click one of the "Reply" links to respond to a specific message in the Daily Digest. Create New Topic | Visit Your Group on the Web Messages | Files | Photos | Links | Calendar PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. <image001.jpg> Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today! <image001.jpg> <image002.jpg>Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Individual | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe <image001.jpg> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 We live in Springfield.Sent from my iPhone I am in the KC area and working with a group of specialists. What part of MO are you from? To: "Soundsensitivity " <Soundsensitivity >Sent: Wed, March 23, 2011 3:47:18 PMSubject: Re: Dr. Amen Hi, I have family in the area but live in Missouri. Where is Dr. Amen's office located? How long do you think the process would take? Would they accept a thirteen year old? Sent from my iPhone Thanks for volunteering, Mayuri. Hopefully we can raise the money we need. I would put it in an account, or we can contact Dr. Amen and see if he will accept payment from all over. The only problem is the accounting aspect. We would need to tell someone that we sent a check for “x†amount and that way we will know how much Dr. Amen receives so there won’t be a discrepancy. I would keep record of it—everyone would just have to email me their check number, amount, and when they sent it. But first we need to contact Dr. Amen and see if he would do something like that. If he wouldn’t, I would be okay with opening an account and then sending one big check for payment. However, we would need another person to basically keep record like described above, so there would be an accounting. (I’m very honest, but I wouldn’t want anyone thinking I’m taking in more than I am sending Dr. Amen—we just need “checks and balances.â€) But first we need to find 2 more people willing to go to Dr. Amen and be researched—Anyone out there in the Northern CA area?? From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mayuri MandelSent: Wednesday, March 23, 2011 1:34 PMTo: Soundsensitivity Subject: Dr. Amen Hi! I've been a member of this group almost since its inception, but originally signed up under another name due to privacy concerns. So you won't recognize my name, but I've been around for years, mostly lurking. I also worked directly with Dr. J. for a while (via phone) after purchasing her sound generators, which unfortunately did nothing for me. (Although Dr. J. herself is a pleasure!) I've been through everything from physical therapy to acupuncture to special listening CDs to biofeedback . . . and the only thing that has helped at all so far is a combination of 3 different medications. Even that only takes the edge off--I still walk around almost all day with earplugs in and/or noise-reduction headphones on. Anyway, I'm right in San Francisco, very close to the California Amen Clinic, and would be happy to be one of the folks who sees Dr. Amen if the group can help raise the money. I'd definitely report back to the group in detail with whatever happened. And I'm willing to kick in a little money myself toward whoever goes, whether it's me or someone else. This sounds like a great chance to do some investigating! Oh, as a side note--I had a few sessions with our own Tara Economakis, too--she's fantastic, if anyone gets the chance to see her, and while I don't think the self-hypnosis/relaxation she has taught me is up to solving my 4S problem YET, she did show me that I really can relax my nervous system, and I've been practicing daily. My hope is that over time I'll get better and better at it, until I can do it quickly and being relaxed becomes my default mode more often and for longer stretches. From there, hopefully I can start making inroads into the 4S itself. Like I said, I'm mostly a lurker on this group, but I read the digest almost every day. Thanks to everyone here who is doing so much on our behalf, from the non-profit planning to the fundraising ideas to the new websites and articles that have gone up online. I'm grateful to have you all on my side. -Mayuri Good work, ! That photo of you at the top with your fingers in your ears sums it up perfectly. :-)Best,Jay>> Hi, everyone!> > I just published an article on 4S on Suite 101. I hope it brings attention to our shared suffering... I also directed readers to Marsha's site as well as this group. Maybe more 4S victims can at the very least discover they are not alone.> > http://www.suite101 .com/content/ when-noise- turns-every- day-into- a-nightmare- a355395?sms_ ss=yahoomail> > Toodles,> > Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (8) Recent Activity 6 New Members Visit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. <image001.jpg> Yahoo! Health Achy Joint? Common arthritis myths debunked. <image001.jpg> Sell Online Start selling with our award-winning e-commerce tools. <image001.jpg> Need to Reply? Click one of the "Reply" links to respond to a specific message in the Daily Digest. Create New Topic | Visit Your Group on the Web Messages | Files | Photos | Links | Calendar PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. <image001.jpg> Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today! <image001.jpg> <image002.jpg>Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Individual | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe <image001.jpg> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 You¡¯re too nice. But it¡¯s not that difficult. I just feel thankful for the 3 people who are going to be our research subjects. Plus, I hope we can raise the money. We should be able to considering how many people are in this group now. We¡¯ve got to use those numbers for our benefit. I¡¯m just not sure how to contact everyone who hasn¡¯t been reading/participating lately. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of CummingsSent: Wednesday, March 23, 2011 10:36 PMTo: Soundsensitivity Subject: RE: Dr. Amen Kathy, I'm definately willing to contribute. I'm not sure how much, but will email you separately to figure that out. You're absolutely the best to be putting in your time and effort to chase this opportunity down. Thank you so much!- / Mom of 4S son From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Kathy HoweSent: Wednesday, March 23, 2011 7:07 PMTo: Soundsensitivity Subject: RE: Dr. Amen Sounds good to me. We need to talk to Dr. Amen¡¯s office and find out if we can get a discount if 3 people come. Otherwise, it¡¯s around $3000 per person so we need to raise about $9000. We need to reach the people in this group that haven¡¯t read or logged on lately. We need to tell them that we have a chance at research, but we need to fundraise for it. We need a headcount of who wants to contribute that is currently reading the posts. If you are willing to contribute, please email me and Tara and let us know how much you are willing to contribute. We need to get a rough headcount. My email address is k.howe@.... Thanks,Kathy HoweFrom: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Tara EconomakisSent: Wednesday, March 23, 2011 4:43 PMTo: Sound SensitivitySubject: RE: Dr. Amen I would be happy to keep track of the checks, working with Kathy. I have done it before for a HypnoBirthing Action Group Publicity fund. Very simple and easy by email.With regards,TaraTara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk To: Soundsensitivity From: k.howe@...Date: Wed, 23 Mar 2011 16:33:44 -0400Subject: RE: Dr. Amen Thanks for volunteering, Mayuri. Hopefully we can raise the money we need. I would put it in an account, or we can contact Dr. Amen and see if he will accept payment from all over. The only problem is the accounting aspect. We would need to tell someone that we sent a check for ¡°x¡± amount and that way we will know how much Dr. Amen receives so there won¡¯t be a discrepancy. I would keep record of it—everyone would just have to email me their check number, amount, and when they sent it. But first we need to contact Dr. Amen and see if he would do something like that.If he wouldn¡¯t, I would be okay with opening an account and then sending one big check for payment. However, we would need another person to basically keep record like described above, so there would be an accounting. (I¡¯m very honest, but I wouldn¡¯t want anyone thinking I¡¯m taking in more than I am sending Dr. Amen—we just need ¡°checks and balances.¡±)But first we need to find 2 more people willing to go to Dr. Amen and be researched—Anyone out there in the Northern CA area??From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mayuri MandelSent: Wednesday, March 23, 2011 1:34 PMTo: Soundsensitivity Subject: Dr. Amen Hi! I've been a member of this group almost since its inception, but originally signed up under another name due to privacy concerns. So you won't recognize my name, but I've been around for years, mostly lurking. I also worked directly with Dr. J. for a while (via phone) after purchasing her sound generators, which unfortunately did nothing for me. (Although Dr. J. herself is a pleasure!) I've been through everything from physical therapy to acupuncture to special listening CDs to biofeedback . . . and the only thing that has helped at all so far is a combination of 3 different medications. Even that only takes the edge off--I still walk around almost all day with earplugs in and/or noise-reduction headphones on.Anyway, I'm right in San Francisco, very close to the California Amen Clinic, and would be happy to be one of the folks who sees Dr. Amen if the group can help raise the money. I'd definitely report back to the group in detail with whatever happened. And I'm willing to kick in a little money myself toward whoever goes, whether it's me or someone else. This sounds like a great chance to do some investigating!Oh, as a side note--I had a few sessions with our own Tara Economakis, too--she's fantastic, if anyone gets the chance to see her, and while I don't think the self-hypnosis/relaxation she has taught me is up to solving my 4S problem YET, she did show me that I really can relax my nervous system, and I've been practicing daily. My hope is that over time I'll get better and better at it, until I can do it quickly and being relaxed becomes my default mode more often and for longer stretches. From there, hopefully I can start making inroads into the 4S itself. :)Like I said, I'm mostly a lurker on this group, but I read the digest almost every day. Thanks to everyone here who is doing so much on our behalf, from the non-profit planning to the fundraising ideas to the new websites and articles that have gone up online. I'm grateful to have you all on my side.-MayuriGood work, ! That photo of you at the top with your fingers in your ears sums it up perfectly. :-)Best,Jay>> Hi, everyone!> > I just published an article on 4S on Suite 101. I hope it brings attention to our shared suffering... I also directed readers to Marsha's site as well as this group. Maybe more 4S victims can at the very least discover they are not alone.> > http://www.suite101 .com/content/ when-noise- turns-every- day-into- a-nightmare- a355395?sms_ ss=yahoomail> > Toodles,> >Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (8) Recent Activity 6 New MembersVisit Your Group Meditation andLovingkindnessA Yahoo! Groupto share and learn.Yahoo! HealthAchy Joint?Common arthritismyths debunked.Sell OnlineStart selling withour award-winninge-commerce tools.Need to Reply?Click one of the " Reply " links to respond to a specific message in the Daily Digest.Create New Topic | Visit Your Group on the Web Messages | Files | Photos | Links | Calendar PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ MARKETPLACEStay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now.Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today!Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Individual | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Quote Link to comment Share on other sites More sharing options...
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