Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Tish, Could you please explain why you are going to have a myomectomy? I assume you are having symptoms related to your fibroids that need to be relieved. It you could enlighten us further, we may be able to better understand your situation and thus offer assistance? Jean Help!!! I am a 27 year-old female scheduled to have an Abdominal Myomectomy on 5/8/99. I have one child, 19 months, but think that I might want to have more some day. I'm really scared. Please, someone help me. Explain the procedure or share your experience. Thanks, Tysh Letitia.Oliver@... eGroups Spotlight:Kosovo-Reports - Direct reports from Kosovo/Serbia/Yugoslavia/list/kosovo-reports Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Letitia, go to webmed.com and read the transcript of Dr. Kirsch's chat from yesterday so you can learn more about the actual procedure. Also, access all the old posts so you get to see what people think about uae. I don't know where you live, but a consult with one of the gyns on the interventional radiologist's team would prove very helpful to you. Are you experiencing terrible symptoms (anemia, major bleeding episodes, pain, etc.) that you can't hold off for a bit? If the gyn says no, cause he/she is going to be unavailable, I suggest a change in gyns. ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 Hi Tysh, I am scheduled to have the same surgery in July. I wish I could give you some answers but I am going through the same thing. From things that I have read I am confident about it. From what I understand it is like a c-section, you just don't get to come home with a baby. My sister, who had 4 c-sections, said that she was up and around after the second week. I have found, DON'T GET TOO UPSET ABOUT IT. It will only make it worse. Let me know how things go. Jean ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 I was unable to find the article you mentioned from Dr. Kirsch regarding myomectomy. Could you please give me more information. Thanks Jean ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2000 Report Share Posted August 28, 2000 Dear , This is inresponse to your emial to the discussion list of 28 August. I can understand how you feel. Here is my history. My name is Karin, I am American and live in italy now. I am 42 now, no children. I still have my uterus. I have undergone two major myomectomies, once in the USA and once in Denmark. Each time I went through a long drawn out 6 week recovery period!! But I NEVER REGRETTED IT! My doctors in Denmark even though they knew I had had a myomectomy once before NEVER told me that a hysterctomy was better. They aid it was better to keep it even if I don't have children. In the USA probably they would have not wanted to do a second myomectomy on me (I see this as political and not a medical issue). , I would be very sceptical about doctors who advocate hysterectomy fright off the bat. Myomectomies are good too. Remember ... I went through it twice. I think UAE is an option too. Doing hysterectomies is the easy way out for doctors. Doctors I found assume that if a woman has had her children already she doesn't need that uterus anymore! WRONG. Women need their uteruses whether they have children or not. Medical science doesn't know much about it really....because not much reserach has been done on the uterus as a 'stand alone' entitiy in itself. it is always assumed that it has only one purpose and one purpose only --to bear children. As a woman who has gone through myomectomies twice, I can tell you just be careful aobut the decisions you make aobut your body. It is your body and if you want to keep your uterus, then do it. Good Luck. Karin email: ksfester@... ______________ > > > > > > > > > > > > http://click./1/7872/9/_/4009/_/967436243/ > --------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2000 Report Share Posted August 28, 2000 Dear , This is inresponse to your emial to the discussion list of 28 August. I can understand how you feel. Here is my history. My name is Karin, I am American and live in italy now. I am 42 now, no children. I still have my uterus. I have undergone two major myomectomies, once in the USA and once in Denmark. Each time I went through a long drawn out 6 week recovery period!! But I NEVER REGRETTED IT! My doctors in Denmark even though they knew I had had a myomectomy once before NEVER told me that a hysterctomy was better. They aid it was better to keep it even if I don't have children. In the USA probably they would have not wanted to do a second myomectomy on me (I see this as political and not a medical issue). , I would be very sceptical about doctors who advocate hysterectomy fright off the bat. Myomectomies are good too. Remember ... I went through it twice. I think UAE is an option too. Doing hysterectomies is the easy way out for doctors. Doctors I found assume that if a woman has had her children already she doesn't need that uterus anymore! WRONG. Women need their uteruses whether they have children or not. Medical science doesn't know much about it really....because not much reserach has been done on the uterus as a 'stand alone' entitiy in itself. it is always assumed that it has only one purpose and one purpose only --to bear children. As a woman who has gone through myomectomies twice, I can tell you just be careful aobut the decisions you make aobut your body. It is your body and if you want to keep your uterus, then do it. Good Luck. Karin email: ksfester@... ______________ > > > > > > > > > > > > http://click./1/7872/9/_/4009/_/967436243/ > --------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2000 Report Share Posted August 28, 2000 Dear Karin, Thank you so much for responding to my email. I am so pleased I found this group. I had never heard of fibroids before, so when I found out I had them, I was very confused. The Internet has been a valuable resource. I am going to fight tooth and nail to keep my uterus! Initially I wanted a myomectomy but I've heard that you can bleed horribly from the procedure. Did you have that problem? Another thing that scares me is the general anesthesia. Could you share with me what that is like? I am hoping to speak with a specialist regarding the UAE procedure within the week. I will keep you posted. Love, Re: Help!!! > Dear , > > This is inresponse to your emial to the discussion list of 28 August. I > can understand how you feel. Here is my history. My name is Karin, I am > American and live in italy now. I am 42 now, no children. I still have my > uterus. I have undergone two major myomectomies, once in the USA and once > in Denmark. Each time I went through a long drawn out 6 week recovery > period!! But I NEVER REGRETTED IT! My doctors in Denmark even though they > knew I had had a myomectomy once before NEVER told me that a hysterctomy was > better. They aid it was better to keep it even if I don't have children. > In the USA probably they would have not wanted to do a second myomectomy on > me (I see this as political and not a medical issue). > > , I would be very sceptical about doctors who advocate hysterectomy > fright off the bat. Myomectomies are good too. Remember ... I went through > it twice. > I think UAE is an option too. Doing hysterectomies is the easy way out for > doctors. > Doctors I found assume that if a woman has had her children already she > doesn't need that uterus anymore! WRONG. Women need their uteruses whether > they have children or not. Medical science doesn't know much about it > really....because not much reserach has been done on the uterus as a 'stand > alone' entitiy in itself. it is always assumed that it has only one purpose > and one purpose only --to bear children. > > As a woman who has gone through myomectomies twice, I can tell you just be > careful aobut the decisions you make aobut your body. It is your body and > if you want to keep your uterus, then do it. Good Luck. > > Karin > email: ksfester@... > > ______________ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > http://click./1/7872/9/_/4009/_/967436243/ > > --------------------------------------------------------------------> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2000 Report Share Posted August 29, 2000 Dear , Sure I can tell you some things. When I had my first myomectomy I had some bleeding the first day while still in the hospital. After the second one I can't remember exactly, but if I did it was light. After both of these operations I did not have any bleeding problems during the monthly cycle. I was feeling pretty good in that way, however my stomach was swollen for a few weeks because of the horizontal cut across my belly ( I have a scar). The swelling goes down, don't worry! Also the nurses tell you about stomach muscle exercises you can do to firm up. After the surgery I was feeling stronger and not tired anymore. The fibroids zapped all my energy. The recovery time is 6 weeks because you need to stay in bed and rest, no housework otherwise you will scar the tissue inside and later could have problems with clumps of scarr tisseu. I knew one woman who had an operation and she started doing housework only after a few weeks and she then had to go in and get the scar tissue removed. I stayed in bed for 6 weeks with light walking and no lifting for 4 months after that. I followed the doctors instructions and am fine. At that time I had a horse and could not take care of my horse for nearly 6 months!!! Had to get someone to care for her. It's just like having a child. The anesthesia was no problem for me. I did Ok. I have had many operations during my life, 8 to be exact. But of course as all doctors will tell yoiu anesthesia always carries a risk, and the doctors are being honest here when they say that. My fibroids were very large and I had no problems after the surgery. I think a woman is alot worse off when she gets a hysterectomy. I have read some things in the past week aobut this. I read that women who have their uteruses removed but still keep theri ovaries are at risk for going into an early menopause 5-8 years after the hysterectomy. I cite one case in particular aobut a woman who had a hysterectomy at age 32 and when she reached 37 she was going into menopause because her ovaries were essentially 'dying'. Apparently the uterus plays some role, which medical science has not really investigated, in stimulating the ovary and hormone production. I am sending you 2 emails after this one to your private email address from www.iVillage.com where they have a womens health message board. If the emails don't reach you, please write me back. I will also send these to the mailing list. Your idea is good about talking to a radiologist about UAE. Read as much as you can about everything UAE, Myomectomy, etc the more you read the more informed you are about making a decision aobut your body. Every body gets scared when they go in for a surgery. I was nervous too. I was in a lonely situation too, my family lived far away and I had no support group. This was the case for both my myomectomy in the USA and the one I had in Denmark. I did a lot of praying and it helped me!!! Write whenever you want. take good care of yourself, Karin ____________________________ wrote: > Dear Karin, > > Thank you so much for responding to my email. I am so pleased I found this > group. I had never heard of fibroids before, so when I found out I had > them, I was very confused. The Internet has been a valuable resource. > > I am going to fight tooth and nail to keep my uterus! Initially I wanted a > myomectomy but I've heard that you can bleed horribly from the procedure. > Did you have that problem? Another thing that scares me is the general > anesthesia. Could you share with me what that is like? > > I am hoping to speak with a specialist regarding the UAE procedure within > the week. I will keep you posted. > > Love, > > Re: Help!!! > > > Dear , > > > > This is inresponse to your emial to the discussion list of 28 August. I > > can understand how you feel. Here is my history. My name is Karin, I am > > American and live in italy now. I am 42 now, no children. I still have my > > uterus. I have undergone two major myomectomies, once in the USA and once > > in Denmark. Each time I went through a long drawn out 6 week recovery > > period!! But I NEVER REGRETTED IT! My doctors in Denmark even though they > > knew I had had a myomectomy once before NEVER told me that a hysterctomy > was > > better. They aid it was better to keep it even if I don't have children. > > In the USA probably they would have not wanted to do a second myomectomy > on > > me (I see this as political and not a medical issue). > > > > , I would be very sceptical about doctors who advocate > hysterectomy > > fright off the bat. Myomectomies are good too. Remember ... I went through > > it twice. > > I think UAE is an option too. Doing hysterectomies is the easy way out for > > doctors. > > Doctors I found assume that if a woman has had her children already she > > doesn't need that uterus anymore! WRONG. Women need their uteruses whether > > they have children or not. Medical science doesn't know much about it > > really....because not much reserach has been done on the uterus as a > 'stand > > alone' entitiy in itself. it is always assumed that it has only one > purpose > > and one purpose only --to bear children. > > > > As a woman who has gone through myomectomies twice, I can tell you just be > > careful aobut the decisions you make aobut your body. It is your body and > > if you want to keep your uterus, then do it. Good Luck. > > > > Karin > > email: ksfester@... > > > > ______________ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > http://click./1/7872/9/_/4009/_/967436243/ > > > --------------------------------------------------------------------> > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Hi , Just Jo here, but saw your post and wanted to let you know that you are not alone. That's the first thing. I think we all watch our bodies do these strange things and wonder if we're making it do it ourselves. Of course, we aren't, if we could stop our bodies from shaking or burning or hurting, we would. I have found that the more upset I get over the pain, the more stressed I get, the more pain I have, the worse it all gets. I know how hard it is, but please try and relax a little. I use diversion. I do whatever I can to take my mind somewhere else, whether it be reading, singing at the top of my lungs with a favorite CD, putting a comedy show or movie on the VCR or TV, etc. I really try and find someway to laugh if I can, because I find that laughter is a great diversion from pain. As hard as they may try, your family will have a difficult time understanding what you are going through. It may be time to think about seeing a professional, especially if you feel the depression getting the better of you. I can't stress enough, though, to be sure to deal with someone who is knowledgeable about RSD and chronic pain. Anyone else might do more harm than good. We all have those days when we believe the pain is unbearable. I'm here to tell you that it is bearable, we're all living proof of that. We've all cried and screamed and cursed about this monster. I think we all need to do that once in a while. I wish I could find the words that you need to hear right now. Please know that I do know what you are going through, and I know that you'll get through this episode. Believe in yourself and your strength. If you are religious, rely on your faith. That was something that I had put aside for many years until RSD. Now, it is a major part of my day to day existence. I've not turned into a fanatic, but I find myself praying much more often than ever before. It must help, because I'm still here, and optimistic about the future. A cure is somewhere, and until then, a treatment that will work for you is out there, you just need to find the right Dr. and the right combo of meds...... Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Tracey and any one else, Today the pain and spasms are really bad. It's almost like I am faking it. At least that's what it feels like. Do you ever feel that way. Like your faking it and you could just stop it at any time and go back to normal. Or is that depression. I have never felt with depression and I havn't cryed unless the pain makes me cry. I really need help. I feel like there is nothing I can do and the pain feels like it will never go away. I have no one to talk to who will understand I feel really alone. Please give me some encouragement. I really feel alone. The pain in my back seems almost unreal. Along with the shaking. I almost feel like I am dreaming most of the time. I don't want to move and I really want someone to understand, someone I can talk to that has been there and I know you have. Please help me to feel better. Mel () Re: Hello > > > > > > > > > > Hi , > > > My name is Tracey. I've had RSD for 3 years > > now > > > and unfortunately it has spread throughout most of > > my > > > body. The people in this group are just wonderful > > and > > > so supportive. I hope you feel at home here. > > > Hugs, Tracey > > > > > > > > > > > > --- Lemke wrote: > > > > Hi may name is and I am new here. > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Hi again tonight , I have all the feelings that you are describing, as well as the fears and thoughts that I cannot make it through this. I pray that we both will find our deep inner spirit to fight this monster awhile longer. If you hang in there so shall I. Not a pressure point for you but a challenge and sometimes I think we all need challenges to be focused. Here is to both of us as well as all others may we find that moment of no pain / no spasms / and inner spirit to maintain. Kim Re: Hello > > > > > > > > > > > > > > Hi , > > > > My name is Tracey. I've had RSD for 3 years > > > now > > > > and unfortunately it has spread throughout most of > > > my > > > > body. The people in this group are just wonderful > > > and > > > > so supportive. I hope you feel at home here. > > > > Hugs, Tracey > > > > > > > > > > > > > > > > --- Lemke wrote: > > > > > Hi may name is and I am new here. > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
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