Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 paula i have taken my temperature and i am not running a fever?? pauline a <paula54@...> wrote: ine, I'm glad you made it here safely, but sorry you aren't feeling well. Are you running a fever? a > hi paula > well i have arrived in los angeles and as i told you before the journey took > 11 hours from london. On the journey i experienced intense shivering and body > tremors followed by intense sweats.this has continued since i arrived two days > ago,could this be to do with the methotrexate.have you or anyone in the group > experienced anything like this? > i would appreciate your help! > thankyou > pauline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2004 Report Share Posted January 3, 2004 Chills are a listed side effect of MTX, so it could be the MTX. Are you any better now? Here's other side effects of MTX: http://www.drugs.com/xq/cfm/pageID_0/htm_d00060A1.htm/bn_methotrexate/qx/ind ex.htm http://www.hopkins-arthritis.som.jhmi.edu/rheumatoid/rheum_treat.html#metho Keep in mind when you read them, that they list all of the side effects reported and it doesn't mean you will experience them. If a small percentage of people taking mtx had a side effect, they list it. These long lists tend to be scary, but MTX is one of the longest used drugs to treat RA. Please see a doctor if you're still feeling bad. a > paula > i have taken my temperature and i am not running a fever?? > pauline > > a <paula54@...> wrote: > ine, > I'm glad you made it here safely, but sorry you aren't feeling well. Are > you running a fever? > a > > >> hi paula >> well i have arrived in los angeles and as i told you before the journey took >> 11 hours from london. On the journey i experienced intense shivering and body >> tremors followed by intense sweats.this has continued since i arrived two >> days >> ago,could this be to do with the methotrexate.have you or anyone in the group >> experienced anything like this? >> i would appreciate your help! >> thankyou >> pauline > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Hi a Many thanks for yor help, you have certainly helped me to understand this disease. I now realise that i was very fatigued and prabably running a slight fever as well. I feel fine now so once again many thanks. Both you and are a lifeline to many people and the group are so supportive ine UK a <paula54@...> wrote: Chills are a listed side effect of MTX, so it could be the MTX. Are you any better now? Here's other side effects of MTX: http://www.drugs.com/xq/cfm/pageID_0/htm_d00060A1.htm/bn_methotrexate/qx/ind ex.htm http://www.hopkins-arthritis.som.jhmi.edu/rheumatoid/rheum_treat.html#metho Keep in mind when you read them, that they list all of the side effects reported and it doesn't mean you will experience them. If a small percentage of people taking mtx had a side effect, they list it. These long lists tend to be scary, but MTX is one of the longest used drugs to treat RA. Please see a doctor if you're still feeling bad. a > paula > i have taken my temperature and i am not running a fever?? > pauline > > a wrote: > ine, > I'm glad you made it here safely, but sorry you aren't feeling well. Are > you running a fever? > a > > >> hi paula >> well i have arrived in los angeles and as i told you before the journey took >> 11 hours from london. On the journey i experienced intense shivering and body >> tremors followed by intense sweats.this has continued since i arrived two >> days >> ago,could this be to do with the methotrexate.have you or anyone in the group >> experienced anything like this? >> i would appreciate your help! >> thankyou >> pauline > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Or is could be a spontaneous mutation of a gene. -Rex From: Lori Baur [mailto:truelori@...] Sent: Wednesday, January 07, 2004 9:49 PM samters Subject: ine ine, P.S., just because you have Samters does not mean your daughter will get it. Samters being genetic does not mean it's inherited. That's a common misconception about genetic causes of diseases. It is, of course, possible, but it is also possible that genes your daughter inherited from her father could protect against Samters --- or she might not have inherited the specific genes from you that cause Samters. >From everything I have read there is not a " Samters " gene. It's a syndrome and there are multiple genes that could contribute to the genesis of it. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2010 Report Share Posted March 7, 2010 ditto to your previous post. thanks for saving me all the tying. we are practically identical twins, lol. sadly, it does suck to be fubar. wyld From: Debra <i_ownaberner> Subject: Re: [PainInTheNeck- Back] Re: . Deb PainInTheNeck- Back@groups .com Date: Friday, February 26, 2010, 7:35 PM SSI is strictly for indigent, if you were not given SSI it would be because you or your spouse make too much money, and for that reason you would not qualify for medicaid,. You do not need to be disabled to be on SSI, but if you do not have enough work credits, and are disabled you can be approved, if that makes sense. Although, the approval really has nothing to do with disability it has to due with indigence, if that makes any sense. SSD is for disabiltiy.. ...the problem is that SSD doesnt recognize migraines as a disabling condition and therefore... ..no matter how many docs diagnose migraine doesnt really matter....it is not considered disabling... for further info see the blue book and the red book. I dont want to delfate your hope in gaining/winning a claim but, as SSA is set up now, its not going to happen. Deb RN Debra ____________ _________ _________ __ From: grasshopperx_ 10 <woody1014@myfairpo i nt.net> PainInTheNeck- Back@groups .com Sent: Fri, February 26, 2010 4:48:56 PM Subject: [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2010 Report Share Posted March 7, 2010 ditto to your previous post. thanks for saving me all the tying. we are practically identical twins, lol. sadly, it does suck to be fubar. wyld From: Debra <i_ownaberner> Subject: Re: [PainInTheNeck- Back] Re: . Deb PainInTheNeck- Back@groups .com Date: Friday, February 26, 2010, 7:35 PM SSI is strictly for indigent, if you were not given SSI it would be because you or your spouse make too much money, and for that reason you would not qualify for medicaid,. You do not need to be disabled to be on SSI, but if you do not have enough work credits, and are disabled you can be approved, if that makes sense. Although, the approval really has nothing to do with disability it has to due with indigence, if that makes any sense. SSD is for disabiltiy.. ...the problem is that SSD doesnt recognize migraines as a disabling condition and therefore... ..no matter how many docs diagnose migraine doesnt really matter....it is not considered disabling... for further info see the blue book and the red book. I dont want to delfate your hope in gaining/winning a claim but, as SSA is set up now, its not going to happen. Deb RN Debra ____________ _________ _________ __ From: grasshopperx_ 10 <woody1014@myfairpo i nt.net> PainInTheNeck- Back@groups .com Sent: Fri, February 26, 2010 4:48:56 PM Subject: [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
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