Re: Debgena

[Guest guest]

Hi Deb,

Thanks for the suggestion! Ticks are common around here, not the kind

that carry lyme disease, but I have had some before and so has my son.

There was no discernable bite mark but I have had blood poisoning from

insect bites 3 times before and that could be possible. My doc said it

is cellulitis with blood poisoning as it is spreading up toward my heart.

She gave me a shot of Levaquin with pills to take until Friday when I go

back for a recheck. I guess most people run high fevers with this but

the only time I run a high fever is with a virus. I always stay below

101 with strep or anything. Even when my foot was black with infection

after surgery last October my temp was only 100.6 degrees. Just another

uniques characteristic that makes me special! LOL That is why I hate to

change doctors, I have to go through the trouble of breaking them in to

my unusual occurences!

As far as spreading of the RSD, I too have spinal pain but that started

after the leak after a block. They did a blood patch, with my own blood,

and I haven't felt really good or energetic since. That was February

1999 and I guess maybe I just haven't fully recouped. I was working 50 -

60 hours a week then, even during the blocks, and ran myself to the

ground. Then the re injury in April 1999 and I can't seem to get my

strength back. I never had a problem with post surgical infections

before and now I have developed an infection after the past 3 in a row.

All done at different hospitals, different parts of the body, different

docs, etc. It doesn't make sense to me.

Well, I have plenty of time to rest now as my treating physician has said

I cannot work until the leg pain is reduced. They are not quite sure how

to go about doing this surgery yet, that doc is contacting colleagues in

Baltimore, St. Louis and UCLA for input and suggestions as this has never

been done before. He has 2 other patients with the same problem but they

don't have RSD. They also haven't run the gamut of noninvasive

procedures yet and I am anxious to get this done so I can get on with my

life. It may not be the right thing to do, but with the atrophy I can

see how the bones have shifted in my lower leg and knee and feel this

nerve transection surgery gives me a good shot at relief from the

peroneal nerve pain. Then the RSD pain should go back to where it was

before the reinjury and I should be able to go back to work. Least that

is how I see it. Jo has been very supportive and has made me realize

that I have to fight for the right to live my life. Right now, this life

is not mine, it belongs to the pain. But I am going to get it back, I

have to for my son. He needs me and that has to be enough.

Well, Deb, I hope you are doing okay and have a good team of docs caring

for you. I wish I lived close to someone who has RSD so we could meet

and just talk. I have never actually met someone with RSD before and it

would feel good to know someone who understands. Are you wearing a pump

now? My docs all seem to be concerned with being addicted to narcotics.

My question to them is what difference does it make if I get addicted as

long as it allows me to live my life? Would they rather not have me live

my life than to live it with an addiction to morphine or methadone? I

think I would rather go back to taking the methadone that having the pump

as it worked well for me before and is not invasive.

As you can tell, I have a lot of thinking and decision making going on

right now.! LOL I didn't mean to write a book! Just don't have anyone

to talk to about all this. My friends are all healthy and whole and

don't know anything about what I am going through, at least not much

anyway.

Well, time to get going. Take care,

Debbie/DJ

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[Guest guest]

Thanks, good to hear from you. Hope your having a low pain day. your

friend cookie

Re: Cookie

>Hi Cookie,

>Well, a pool hall! Good luck. I hope your pain isn't too high with the

stress

>of it all. Thinking of you GF.

>

>

>Hugs and a pain free minute,

>Deb

>

>Listowner

>rsd-crpsegroups

>

>