Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 DEar Toni: I won't tell you what to do, but I feel I should tell you a little about myself. I can't take the meds that everyone else is on because I have a kidney transplant and they can make my kidney reject. Because I can't take those meds my fingers are now all deformed and my nails are not normal either. The nails are very short and don't grow normally. They are lifted up so I can't even put on fake nails cause they don't look right and there is not enough nail there either. I am in severe pain all the time and have to be on narcotics because there is nothing else that will help. I am also unable to use any aspirin, or aspirin products, which wouldn't help much anyway. I have a dowanger hump back due to long use of prednisone. At least the other drugs don't do that and that is after long use. If you think your Dr is a jerk find another one. I am sure they know their subject or they wouldn't be able to be licensed to practice it. ANjillah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Anjillah, Sorry to hear about you difficulties with meds. I am curious if you doctor put you on calcium/vit D supplment while you were on the long term steriod treatment? My doc demands that I take 1500mg of calcium with vit d in it every day that I take prednisone. He also wants me on a good multi-vit suppliment. As far as the dowengers hump. I don't know your racial background but black people rarely have problems with osteoporosis as white and asian people do. I do not know the reason why but I have had many docs tell me that. I went for one a full work-up about two years ago to a womens specialist. She sent me for bone density studies. The tech and the doc in the clinic sort of laughed at me when I reported cause they said this is mostly a white/asian problem. I told them I was just following orders. I guess the doc wanted a baseline...she also told me my results were being entered into a study and paper she was doing. I learned a lot about my doc at my last visit from his nurse. He really is not a jerk...just very shy and overwhelmed. We have one Rheummatologist within 100 miles that accepts most insurance. We have another major medical center within blocks but it takes a year to get a new rheummy appnt and they take there own HMO patients first. They have three docs. So there are no other options for Rheummy docs here. I use to drive over 100 miles to see my old doc after he moved away. It got far too expensive as my insurance refused to pay for the visits or even pay for any bloodwork from the visit. He moved out of my network of docs. I went with a list and made him sit and listen. He did and complied with all my requests. The past visits I have been so scattered brained and foggy that I basicly just sat there...then after I walked out and go to the car was totally pissed on the long drive home! As far as my doc knowing his area of expertise, I'm sure he does...but education with out the ability to communicate still makes you pretty useless to the the people that you are sworn to help. It makes me wonder about docs that prescribe long term steriods without monitoring bone denisty or using calcium suppliments. Ahhh, the things that make you go Hmmmm..... In a message dated 1/12/04 9:07:15 PM Central Standard Time, writes: > Message: 1 > Date: Mon, 12 Jan 2004 01:23:35 EST > From: ANJILLAH@... > Subject: Re: Re: I'm new too! TONI > > DEar Toni: > I won't tell you what to do, but I feel I should tell you a little about > myself. I can't take the meds that everyone else is on because I have a > kidney > transplant and they can make my kidney reject. Because I can't take those > meds > my fingers are now all deformed and my nails are not normal either. The > nails > are very short and don't grow normally. They are lifted up so I can't even > put on fake nails cause they don't look right and there is not enough nail > there either. I am in severe pain all the time and have to be on narcotics > because there is nothing else that will help. I am also unable to use any > aspirin, > or aspirin products, which wouldn't help much anyway. I have a dowanger > hump > back due to long use of prednisone. At least the other drugs don't do that > and that is after long use. > If you think your Dr is a jerk find another one. I am sure they know their > subject or they wouldn't be able to be licensed to practice it. > ANjillah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 I've read that some ethnic groups tend to have bigger bones with greater bone mass. For example, African Americans tend to have higher bone mass. In contrast, many East Asian people tend to be smaller and have lower bone mass. The incidences of osteoporosis is lower in African Americans and higher in Asian Americans. There is no known linkage directly to skin color that I know of, it's just the different starting skeletal mass of adults in those groups. I'm so glad you had a good visit with your doctor. Communication between doctor and patient make an enormous difference in the quality of care. It can be difficult to find a doctor that you can easily communicate with, but sometimes it just takes time to get to know each other. a > Anjillah, > > Sorry to hear about you difficulties with meds. I am curious if you doctor > put you on calcium/vit D supplment while you were on the long term steriod > treatment? > > My doc demands that I take 1500mg of calcium with vit d in it every day that > I take prednisone. He also wants me on a good multi-vit suppliment. > > As far as the dowengers hump. I don't know your racial background but black > people rarely have problems with osteoporosis as white and asian people do. I > do not know the reason why but I have had many docs tell me that. I went for > one a full work-up about two years ago to a womens specialist. She sent me > for bone density studies. The tech and the doc in the clinic sort of laughed > at me when I reported cause they said this is mostly a white/asian problem. I > told them I was just following orders. I guess the doc wanted a > baseline...she also told me my results were being entered into a study and > paper she was > doing. > > I learned a lot about my doc at my last visit from his nurse. He really is > not a jerk...just very shy and overwhelmed. We have one Rheummatologist within > 100 miles that accepts most insurance. We have another major medical center > within blocks but it takes a year to get a new rheummy appnt and they take > there own HMO patients first. They have three docs. So there are no other > options > for Rheummy docs here. I use to drive over 100 miles to see my old doc after > he moved away. It got far too expensive as my insurance refused to pay for > the visits or even pay for any bloodwork from the visit. He moved out of my > network of docs. > > I went with a list and made him sit and listen. He did and complied with all > my requests. The past visits I have been so scattered brained and foggy that > I basicly just sat there...then after I walked out and go to the car was > totally pissed on the long drive home! > As far as my doc knowing his area of expertise, I'm sure he does...but > education with out the ability to communicate still makes you pretty useless > to the > the people that you are sworn to help. It makes me wonder about docs that > prescribe long term steriods without monitoring bone denisty or using calcium > suppliments. > > Ahhh, the things that make you go Hmmmm..... Quote Link to comment Share on other sites More sharing options...
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