Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 My best friend was admitted to ICU a month ago. She had toxic levels of ammonia,should of died...It was caused I believe because she was seeing two different doctors about two different things. She has 20% liver function and was doing really well until on a check up for a inner ear they saw what they thought was a brain tumor on a MRI, the Dr (brain). at UCLA started giving her high dose type of cortisone, which we know damages the liver, it put her in a coma within a weeks time and also a diabetic state as well.Tumor turns out to be blood clot. The BIG most horrible thing that has come of this is she is losing her mind, she was recently admitted to a mental hospital on a 51/50 being a danger to herself and others. Anyone know is she can come back mentally from the two toxic ammonia comas? I'm sooooo sad to see her this way as my closest friend for 40+ years.Her husband had to arrange a sting operation to get her back to a hospital and she can be lucid but has paranoia and anger problems. Most of her anger is towards her family that wants to help her. She wants to go home and thinks if she plays this game of acting o.k. while anybody,her nurses are looking that she will get out. do any of you know if someone CAN she come back mentally after this??? I'm so sad I have never felt this sad before. TIA, Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Kristy, I am so sorry your friend is going through this and that you are having to watch it. Encephalopathy is a horrid experience,both for the individual with the disease and those who love that individual. My husband had several extreme episodes, but he never became either self destructive or angry enough to want to harm someone else. As with dealing with any mental instability, so much of how the individual deals with it has to do with their state of mind prior to the episode. My late husband had reached the stage of life where he was very calm and gentle. The few outbreaks of anger brought on by his encephalopathy were very mild because he just didn't have anger in him anymore. I think perhaps he worked all that out in his youth! The most traumatizing thing for me during his episodes was the fact that he just became so dependant, could do nothing for himself. He would be so confused he didn't know where he was, when it was or what was going on around him. During one episode, he thought there were men working on the roof in a thunderstorm and kept insisting that I make them come in before they got struck by lightening. At the time, he was on the 2nd floor of the hospital in ICU; the hospital had 10 floors! Then, he thought all the nurses walking around outside his room in those yellow isolation gowns and caps were firemen and his house was on fire. Because I couldn't be with him around the clock, he would ask me every time I went into his room " Where did you go " and would be upset because he didn't want me to " go to town without him " . As for what your friend's prospects of full mental recovery are, all I can tell you is what was told to me about my husband. His doctors told me that each time he has an episode, his mind slips slightly farther into a sort of oblivion and each return will be less complete. I found that to be true. By the time he was nearing death, he no longer understood how to help himself toilet, nor did he know how to feed himself. I am so sorry for all you are facing with your friend and I am so sorry she has to go through all of this. Please know my prayers are with you all. Many hugs.................. Diane > > > My best friend was admitted to ICU a month ago. She had toxic levels of > ammonia,should of died...It was caused I believe because she was seeing two > different doctors about two different things. She has 20% liver function and > was doing really well until on a check up for a inner ear they saw what they > thought was a brain tumor on a MRI, the Dr (brain). at UCLA started giving > her high dose type of cortisone, which we know damages the liver, it put her > in a coma within a weeks time and also a diabetic state as well.Tumor turns > out to be blood clot. > The BIG most horrible thing that has come of this is she is losing her > mind, she was recently admitted to a mental hospital on a 51/50 being a > danger to herself and others. Anyone know is she can come back mentally from > the two toxic ammonia comas? I'm sooooo sad to see her this way as my > closest friend for 40+ years.Her husband had to arrange a sting operation to > get her back to a hospital and she can be lucid but has paranoia and anger > problems. Most of her anger is towards her family that wants to help her. > She wants to go home and thinks if she plays this game of acting o.k. while > anybody,her nurses are looking that she will get out. > do any of you know if someone CAN she come back mentally after this??? > I'm so sad I have never felt this sad before. > TIA, > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 Thankyou Diane for your info < My friend was released yesterday home but,I haven't been able to speak with her...her choice. but she did call and leave me a message while i was at work. Would it be o.k. to talk with her about how she was when this episode was happening?? She and I have shared lots of medical opinions together about ourselves and our show dogs for years.Your husbands thoughts in the ICU are very similar to things my friend thought were going on.Thankyou from the bottom of my heart. Kristy > Kristy, > > I am so sorry your friend is going through this and that you are having to > watch it. Encephalopathy is a horrid experience,both for the individual > with the disease and those who love that individual. My husband had several > extreme episodes, but he never became either self destructive or angry > enough to want to harm someone else. As with dealing with any mental > instability, so much of how the individual deals with it has to do with > their state of mind prior to the episode. My late husband had reached the > stage of life where he was very calm and gentle. The few outbreaks of anger > brought on by his encephalopathy were very mild because he just didn't have > anger in him anymore. I think perhaps he worked all that out in his youth! > > > The most traumatizing thing for me during his episodes was the fact that he > just became so dependant, could do nothing for himself. He would be so > confused he didn't know where he was, when it was or what was going on > around him. During one episode, he thought there were men working on the > roof in a thunderstorm and kept insisting that I make them come in before > they got struck by lightening. At the time, he was on the 2nd floor of the > hospital in ICU; the hospital had 10 floors! Then, he thought all the > nurses walking around outside his room in those yellow isolation gowns and > caps were firemen and his house was on fire. Because I couldn't be with him > around the clock, he would ask me every time I went into his room " Where did > you go " and would be upset because he didn't want me to " go to town without > him " . > > As for what your friend's prospects of full mental recovery are, all I can > tell you is what was told to me about my husband. His doctors told me that > each time he has an episode, his mind slips slightly farther into a sort of > oblivion and each return will be less complete. I found that to be true. > By the time he was nearing death, he no longer understood how to help > himself toilet, nor did he know how to feed himself. I am so sorry for all > you are facing with your friend and I am so sorry she has to go through all > of this. Please know my prayers are with you all. > > Many hugs.................. > > Diane > > > > > > > >> >> >> My best friend was admitted to ICU a month ago. She had toxic levels of >> ammonia,should of died...It was caused I believe because she was seeing two >> different doctors about two different things. She has 20% liver function and >> was doing really well until on a check up for a inner ear they saw what they >> thought was a brain tumor on a MRI, the Dr (brain). at UCLA started giving >> her high dose type of cortisone, which we know damages the liver, it put her >> in a coma within a weeks time and also a diabetic state as well.Tumor turns >> out to be blood clot. >> The BIG most horrible thing that has come of this is she is losing her >> mind, she was recently admitted to a mental hospital on a 51/50 being a >> danger to herself and others. Anyone know is she can come back mentally from >> the two toxic ammonia comas? I'm sooooo sad to see her this way as my >> closest friend for 40+ years.Her husband had to arrange a sting operation to >> get her back to a hospital and she can be lucid but has paranoia and anger >> problems. Most of her anger is towards her family that wants to help her. >> She wants to go home and thinks if she plays this game of acting o.k. while >> anybody,her nurses are looking that she will get out. >> do any of you know if someone CAN she come back mentally after this??? >> I'm so sad I have never felt this sad before. >> TIA, >> Kristy >> >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 Kristy, I see no reason why you should not speak with your friend regarding the way she was while in ICU. Sometimes, helping someone understand what they really went through can help them deal better with their disease so as not to put themselves into that place again. It's very improtant that she understand as much as she possibly can about how her disease is affecting not only her, but those who love her as well. So much of how we take care of ourselves really is about the people we love because they are the ones who give our lives meaning. Please know I continue to pray for both your friend and for you. I am always here if you need me. Many hugs.................. Diane On Thu, Jun 10, 2010 at 9:53 AM, Kristy Kenyon wrote: > > > Thankyou Diane for your info < My friend was released yesterday home but,I > haven't been able to speak with her...her choice. but she did call and leave > me a message while i was at work. > Would it be o.k. to talk with her about how she was when this episode was > happening?? > She and I have shared lots of medical opinions together about ourselves and > our show dogs for years.Your husbands thoughts in the ICU are very similar > to things my friend thought were going on.Thankyou from the bottom of my > heart. > Kristy > > > Kristy, > > > > I am so sorry your friend is going through this and that you are having > to > > watch it. Encephalopathy is a horrid experience,both for the individual > > with the disease and those who love that individual. My husband had > several > > extreme episodes, but he never became either self destructive or angry > > enough to want to harm someone else. As with dealing with any mental > > instability, so much of how the individual deals with it has to do with > > their state of mind prior to the episode. My late husband had reached the > > stage of life where he was very calm and gentle. The few outbreaks of > anger > > brought on by his encephalopathy were very mild because he just didn't > have > > anger in him anymore. I think perhaps he worked all that out in his > youth! > > > > > > The most traumatizing thing for me during his episodes was the fact that > he > > just became so dependant, could do nothing for himself. He would be so > > confused he didn't know where he was, when it was or what was going on > > around him. During one episode, he thought there were men working on the > > roof in a thunderstorm and kept insisting that I make them come in before > > they got struck by lightening. At the time, he was on the 2nd floor of > the > > hospital in ICU; the hospital had 10 floors! Then, he thought all the > > nurses walking around outside his room in those yellow isolation gowns > and > > caps were firemen and his house was on fire. Because I couldn't be with > him > > around the clock, he would ask me every time I went into his room " Where > did > > you go " and would be upset because he didn't want me to " go to town > without > > him " . > > > > As for what your friend's prospects of full mental recovery are, all I > can > > tell you is what was told to me about my husband. His doctors told me > that > > each time he has an episode, his mind slips slightly farther into a sort > of > > oblivion and each return will be less complete. I found that to be true. > > By the time he was nearing death, he no longer understood how to help > > himself toilet, nor did he know how to feed himself. I am so sorry for > all > > you are facing with your friend and I am so sorry she has to go through > all > > of this. Please know my prayers are with you all. > > > > Many hugs.................. > > > > Diane > > > > > > > > > > > > On Wed, Jun 9, 2010 at 9:18 AM, kristy <kenyon.hounds@...<kenyon.hounds%40verizon.net>> > wrote: > > > >> > >> > >> My best friend was admitted to ICU a month ago. She had toxic levels of > >> ammonia,should of died...It was caused I believe because she was seeing > two > >> different doctors about two different things. She has 20% liver function > and > >> was doing really well until on a check up for a inner ear they saw what > they > >> thought was a brain tumor on a MRI, the Dr (brain). at UCLA started > giving > >> her high dose type of cortisone, which we know damages the liver, it put > her > >> in a coma within a weeks time and also a diabetic state as well.Tumor > turns > >> out to be blood clot. > >> The BIG most horrible thing that has come of this is she is losing her > >> mind, she was recently admitted to a mental hospital on a 51/50 being a > >> danger to herself and others. Anyone know is she can come back mentally > from > >> the two toxic ammonia comas? I'm sooooo sad to see her this way as my > >> closest friend for 40+ years.Her husband had to arrange a sting > operation to > >> get her back to a hospital and she can be lucid but has paranoia and > anger > >> problems. Most of her anger is towards her family that wants to help > her. > >> She wants to go home and thinks if she plays this game of acting o.k. > while > >> anybody,her nurses are looking that she will get out. > >> do any of you know if someone CAN she come back mentally after this??? > >> I'm so sad I have never felt this sad before. > >> TIA, > >> Kristy > >> > >> > >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 Thanks again!! She came home from the behavior unit on tuesday she called me today and we had a long talk. She's back for now!! THANKYOU for all your kind words. best, Kristy > Kristy, > > I see no reason why you should not speak with your friend regarding the way > she was while in ICU. Sometimes, helping someone understand what they > really went through can help them deal better with their disease so as not > to put themselves into that place again. It's very improtant that she > understand as much as she possibly can about how her disease is affecting > not only her, but those who love her as well. So much of how we take care > of ourselves really is about the people we love because they are the ones > who give our lives meaning. Please know I continue to pray for both your > friend and for you. I am always here if you need me. > > Many hugs.................. > > Diane > > > > > > On Thu, Jun 10, 2010 at 9:53 AM, Kristy Kenyon wrote: > >> >> >> Thankyou Diane for your info < My friend was released yesterday home but,I >> haven't been able to speak with her...her choice. but she did call and leave >> me a message while i was at work. >> Would it be o.k. to talk with her about how she was when this episode was >> happening?? >> She and I have shared lots of medical opinions together about ourselves and >> our show dogs for years.Your husbands thoughts in the ICU are very similar >> to things my friend thought were going on.Thankyou from the bottom of my >> heart. >> Kristy >> >>> Kristy, >>> >>> I am so sorry your friend is going through this and that you are having >> to >>> watch it. Encephalopathy is a horrid experience,both for the individual >>> with the disease and those who love that individual. My husband had >> several >>> extreme episodes, but he never became either self destructive or angry >>> enough to want to harm someone else. As with dealing with any mental >>> instability, so much of how the individual deals with it has to do with >>> their state of mind prior to the episode. My late husband had reached the >>> stage of life where he was very calm and gentle. The few outbreaks of >> anger >>> brought on by his encephalopathy were very mild because he just didn't >> have >>> anger in him anymore. I think perhaps he worked all that out in his >> youth! >>> >>> >>> The most traumatizing thing for me during his episodes was the fact that >> he >>> just became so dependant, could do nothing for himself. He would be so >>> confused he didn't know where he was, when it was or what was going on >>> around him. During one episode, he thought there were men working on the >>> roof in a thunderstorm and kept insisting that I make them come in before >>> they got struck by lightening. At the time, he was on the 2nd floor of >> the >>> hospital in ICU; the hospital had 10 floors! Then, he thought all the >>> nurses walking around outside his room in those yellow isolation gowns >> and >>> caps were firemen and his house was on fire. Because I couldn't be with >> him >>> around the clock, he would ask me every time I went into his room " Where >> did >>> you go " and would be upset because he didn't want me to " go to town >> without >>> him " . >>> >>> As for what your friend's prospects of full mental recovery are, all I >> can >>> tell you is what was told to me about my husband. His doctors told me >> that >>> each time he has an episode, his mind slips slightly farther into a sort >> of >>> oblivion and each return will be less complete. I found that to be true. >>> By the time he was nearing death, he no longer understood how to help >>> himself toilet, nor did he know how to feed himself. I am so sorry for >> all >>> you are facing with your friend and I am so sorry she has to go through >> all >>> of this. Please know my prayers are with you all. >>> >>> Many hugs.................. >>> >>> Diane >>> >>> >>> >>> >>> >>> On Wed, Jun 9, 2010 at 9:18 AM, kristy <kenyon.hounds@...<kenyon.hounds%40verizon.net>> >> wrote: >>> >>>> >>>> >>>> My best friend was admitted to ICU a month ago. She had toxic levels of >>>> ammonia,should of died...It was caused I believe because she was seeing >> two >>>> different doctors about two different things. She has 20% liver function >> and >>>> was doing really well until on a check up for a inner ear they saw what >> they >>>> thought was a brain tumor on a MRI, the Dr (brain). at UCLA started >> giving >>>> her high dose type of cortisone, which we know damages the liver, it put >> her >>>> in a coma within a weeks time and also a diabetic state as well.Tumor >> turns >>>> out to be blood clot. >>>> The BIG most horrible thing that has come of this is she is losing her >>>> mind, she was recently admitted to a mental hospital on a 51/50 being a >>>> danger to herself and others. Anyone know is she can come back mentally >> from >>>> the two toxic ammonia comas? I'm sooooo sad to see her this way as my >>>> closest friend for 40+ years.Her husband had to arrange a sting >> operation to >>>> get her back to a hospital and she can be lucid but has paranoia and >> anger >>>> problems. Most of her anger is towards her family that wants to help >> her. >>>> She wants to go home and thinks if she plays this game of acting o.k. >> while >>>> anybody,her nurses are looking that she will get out. >>>> do any of you know if someone CAN she come back mentally after this??? >>>> I'm so sad I have never felt this sad before. >>>> TIA, >>>> Kristy >>>> >>>> >>>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 My dear friends, i have hepc, i have wrote to you many times for help, i am having bleeding trouble, it seem that every 5 month are so , i am gong to the emgency room, i 'll tell you it gets damn confusing. today in the next few hours, i will be going to the emergency room again for gi bleeding, it is so damn nerve wrecking, i hate like hell getting stuck with needles. i am pretting weak, so i am sad, just hate like hell what i am about to go through, i will probably be in the hospital for a few days, with specail testing, i pray they find the source of my bleeding. There is more one liver doctor talked about by passing some vien through the liver making new pathways for blood to flow, but i am not that stage yet. 50 opinions is better than one fatal mistakes. alright " i am out, will talk to you guys, soon. Love ya, in chicago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Good luck to you. Please keep us updated on how it goes. --Diane >> My dear friends, > i have hepc, i have wrote to you many times for help, i am > having bleeding > trouble, it seem that every 5 month are so , i am > gong to the emgency > room, i 'll tell you it gets damn confusing. today in > the next few hours, i > will be going to the emergency room again for gi bleeding, > it is so damn > nerve wrecking, i hate like hell getting stuck with > needles. i am pretting > weak, so i am sad, just hate like hell what i am > about to go through, i will > probably be in the hospital for a few days, with > specail testing, i pray they > find the source of my bleeding. There is more > one liver doctor talked > about by passing some vien through the liver making > new pathways for blood to > flow, but i am not that stage yet. 50 opinions > is better than one fatal > mistakes.   alright "  i am out, will > talk to you guys, soon. Love ya,   > in chicago > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Praying for you . Hope it all goes well. Many hugs............ Diane C from TN > > > My dear friends, > i have hepc, i have wrote to you many times for help, i am having bleeding > trouble, it seem that every 5 month are so , i am gong to the emgency > room, i 'll tell you it gets damn confusing. today in the next few hours, i > > will be going to the emergency room again for gi bleeding, it is so damn > nerve wrecking, i hate like hell getting stuck with needles. i am pretting > weak, so i am sad, just hate like hell what i am about to go through, i > will > probably be in the hospital for a few days, with specail testing, i pray > they > find the source of my bleeding. There is more one liver doctor talked > about by passing some vien through the liver making new pathways for blood > to > flow, but i am not that stage yet. 50 opinions is better than one fatal > mistakes. alright " i am out, will talk to you guys, soon. Love ya, > in chicago > > Quote Link to comment Share on other sites More sharing options...
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