Guest guest Posted June 21, 2000 Report Share Posted June 21, 2000 First off, I want to apologize about not posting recently. I've been reading everyone's messages and have just been absorbing all the great information. At any rate, I'm from Fountain Valley, CA. My 6 month old daughter has now been in a helmet for 1 week. Thanks to all the wonderful information from this group, casting was not a shock to me and Casey is doing okay. We struggled with band/helmet, but went with the helmet, because we were able to get a prescription for it and didn't want to waste anymore time waiting for a prescription for a DOC band. Plus Beverly Hills Prothetics gave us a break on the cost, so that was nice (our insurance didn't cover, but they gave us a 50% discount since we were with Kaiser, Kaiser gives them a lot of referrals). The first day was hard for Casey. She was really fussy and unhappy. When I came home from work later that day, I thought, hey I'll wear a helmet too. That way she won't feel punished or isolated. That night, we went to sport mart. I found a white skate board helmet with holes in it, very similar to hers. As soon as I put it on, her eyes lit up... " Mommy has to wear one too " . So now, I wear the helmet at home when she's awake and even when we venture out. We've even went out to lunch with both of us wearing helmets on Father's Day. People stare and have even laughed and asked me questions. It makes me angry inside but I think I'd rather people gaze at me and think I'm mentally challenged then my baby girl. Casey senses when something is not right, when people stare, etc. I want her to feel proud and think she's normal rather than feel abnormal. Babies are babies, but they are very smart. At any rate, maybe some of you think I'm silly. But I love my daughter that much and it hurts me when people make all the comments they do, so if people want to gaze and criticize, they can stare at me. Well, have to run. Just thought I'd throw that idea out to any of you. It may work for those of you whose little ones want to always do what Mommy is doing. Now that I've gone through the casting and am officially going through helmet therapy, I feel a little more knowledgeable to share some of the things I've learned. Thanks, in Fountain Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 You are such a great mom! For whatever reason, I have been lucky venturing out with my son in his band as I have not really noticed any blatant staring. The only comment that I have heard was from a little girl at my son's daycare center who said " look mom at that cute baby, he's wearing a little helmet! " I guess from there on I have just assumed everyone was thinking the same thing! > First off, I want to apologize about not posting recently. I've been reading > everyone's messages and have just been absorbing all the great information. > > At any rate, I'm from Fountain Valley, CA. My 6 month old daughter > has now been in a helmet for 1 week. Thanks to all the wonderful information > from this group, casting was not a shock to me and Casey is doing okay. > > We struggled with band/helmet, but went with the helmet, because we were able > to get a prescription for it and didn't want to waste anymore time waiting > for a prescription for a DOC band. Plus Beverly Hills Prothetics gave us a > break on the cost, so that was nice (our insurance didn't cover, but they > gave us a 50% discount since we were with Kaiser, Kaiser gives them a lot of > referrals). > > The first day was hard for Casey. She was really fussy and unhappy. When I > came home from work later that day, I thought, hey I'll wear a helmet too. > That way she won't feel punished or isolated. That night, we went to sport > mart. I found a white skate board helmet with holes in it, very similar to > hers. As soon as I put it on, her eyes lit up... " Mommy has to wear one too " . > > So now, I wear the helmet at home when she's awake and even when we venture > out. We've even went out to lunch with both of us wearing helmets on Father's > Day. People stare and have even laughed and asked me questions. It makes > me angry inside but I think I'd rather people gaze at me and think I'm > mentally challenged then my baby girl. > > Casey senses when something is not right, when people stare, etc. I want her > to feel proud and think she's normal rather than feel abnormal. Babies are > babies, but they are very smart. > > At any rate, maybe some of you think I'm silly. But I love my daughter that > much and it hurts me when people make all the comments they do, so if people > want to gaze and criticize, they can stare at me. > > Well, have to run. Just thought I'd throw that idea out to any of you. It > may work for those of you whose little ones want to always do what Mommy is > doing. > > Now that I've gone through the casting and am officially going through helmet > therapy, I feel a little more knowledgeable to share some of the things I've > learned. > > Thanks, > in Fountain Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 : Thanks so much for the sweet words. I'm glad you haven't experienced any negative vibes. Maybe it's the area I live in...people are a little more judgemental...who knows? I had a feeling this would happen though. The day we got Casey casted, we were starving after the appt. so we went to El Torito Grill to eat dinner. Well, since Casey was just casted she had some plaster left in her hair (NOT MUCH though), people at the restraunt stared at her and ME as if we were a dirty two some. I was annoyed at all the glares. We just couldn't get all the plaster off at the helmet place and my husband and I couldn't wait any longer for dinner, so we sent and she had stuff in her hair. After that I knew the helmet would draw attention. Again, thanks for the kind words and I'm glad your not experiencing any negative vibes. in Fountain Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 I think that is GREAT! How old is your little one? Laurie in Tuscaloosa '' > First off, I want to apologize about not posting recently. I've been reading > everyone's messages and have just been absorbing all the great information. > > At any rate, I'm from Fountain Valley, CA. My 6 month old daughter > has now been in a helmet for 1 week. Thanks to all the wonderful information > from this group, casting was not a shock to me and Casey is doing okay. > > We struggled with band/helmet, but went with the helmet, because we were able > to get a prescription for it and didn't want to waste anymore time waiting > for a prescription for a DOC band. Plus Beverly Hills Prothetics gave us a > break on the cost, so that was nice (our insurance didn't cover, but they > gave us a 50% discount since we were with Kaiser, Kaiser gives them a lot of > referrals). > > The first day was hard for Casey. She was really fussy and unhappy. When I > came home from work later that day, I thought, hey I'll wear a helmet too. > That way she won't feel punished or isolated. That night, we went to sport > mart. I found a white skate board helmet with holes in it, very similar to > hers. As soon as I put it on, her eyes lit up... " Mommy has to wear one too " . > > So now, I wear the helmet at home when she's awake and even when we venture > out. We've even went out to lunch with both of us wearing helmets on Father's > Day. People stare and have even laughed and asked me questions. It makes > me angry inside but I think I'd rather people gaze at me and think I'm > mentally challenged then my baby girl. > > Casey senses when something is not right, when people stare, etc. I want her > to feel proud and think she's normal rather than feel abnormal. Babies are > babies, but they are very smart. > > At any rate, maybe some of you think I'm silly. But I love my daughter that > much and it hurts me when people make all the comments they do, so if people > want to gaze and criticize, they can stare at me. > > Well, have to run. Just thought I'd throw that idea out to any of you. It > may work for those of you whose little ones want to always do what Mommy is > doing. > > Now that I've gone through the casting and am officially going through helmet > therapy, I feel a little more knowledgeable to share some of the things I've > learned. > > Thanks, > in Fountain Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2000 Report Share Posted June 29, 2000 : Sorry it took so long to write back. Thanks so much for your kind words, I'm so happy that you don't get too many stares when you venture out. We're doing well, helmet therapy has shown dramatic improvements in 1 week. I was nervous with the helmet because it sounded like the band was more effective. At any rate, thanks again for you nice words. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 I doubt it has been shown clinically that the BAND is more effective at all....with the helmet atleast air bladders can be filled where needed and the doc can see thru the device...we have been in the helmet and have one of the areas TOP neurologists....and have seen wonderful results..... JenMetrose@... wrote: > : > > Sorry it took so long to write back. Thanks so much for your kind words, I'm > so happy that you don't get too many stares when you venture out. We're > doing well, helmet therapy has shown dramatic improvements in 1 week. I was > nervous with the helmet because it sounded like the band was more effective. > > At any rate, thanks again for you nice words. > > > > ------------------------------------------------------------------------ > Special Offer-Earn 300 Points from MyPoints.com for trying @Backup > Get automatic protection and access to your important computer files. > Install today: > 1/5667/5/_/689409/_/962323487/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 YEAH FOR THE HELMET :) JenMetrose@... wrote: > : > > Sorry it took so long to write back. Thanks so much for your kind words, I'm > so happy that you don't get too many stares when you venture out. We're > doing well, helmet therapy has shown dramatic improvements in 1 week. I was > nervous with the helmet because it sounded like the band was more effective. > > At any rate, thanks again for you nice words. > > > > ------------------------------------------------------------------------ > Special Offer-Earn 300 Points from MyPoints.com for trying @Backup > Get automatic protection and access to your important computer files. > Install today: > 1/5667/5/_/689409/_/962323487/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 I'm glad to hear your positive words. It just appeared as if more people preferred the band. At any rate, I really like the helmet. Casey isuse to it and it's working great. Have a great 4th. Quote Link to comment Share on other sites More sharing options...
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