Re: [CRPS]rsd about that's weird

[Guest guest]

I understand too. I have had DRS and PT " S to look at me like I'm crazy and

to tell me they don't know what I talking about . I think that's why my RSD

got to the 4th stage, I was telling them it felt like it was itching deep

inside, of course it was to sensitive to touch, but they could not put 2 and

2 together even tho I had been told I had RSD and was taking blocks before

PT. I over heard another lady one day talk about burning feeling and they

understood her, so that night I thought about it and decided it was a

burning, next day I said burning and from that day they treated me like they

understood. I guess like Jo said, if it's not in the medical book like you

say it, then they think WE are the crazy ones. Boy, have WE got a surprise

for them. Take care of your pain as best as you can. your friend

cookie

Re: rsd Do you understand?

> Hi PJ!

> Of course, we understand. I get much the same from my family, Much as I

try

> to explain, I get blank stares most of the time. I listen to myself

> sometimes and think this sounds so silly. I have things happening to my

body

> that no one who doesn't have this couldn't fathom happening to their

bodies.

> I'm off to the ortho today, I've had a great deal of trouble recently with

my

> spine/back. When I called my PCP, and explained the pain/burning/numbness

he

> said (and I am quoting) " Wow, that's really weird.

> Weird! I'm changing primary care Dr. When I asked him what type of Dr.

> should look at my spine/back, he had not a clue, since my symptoms didn't

> conform to any textbook symptoms of any one malady. I've decided if I

have

> to drive the 70 miles into NYC to find a decent internist, that's what

I'll

> do. I hate to have to drive that far for a flu shot or something, but I

> can't entrust my health to someone who thinks my symptoms are " weird. "

> This ortho dx my husband's cervical spinal cord tumor, so I think we can

> trust him.

> I can't even explain some of the sensations/pain/sensitivity, etc. out

loud

> to most people, try telling someone that you feel like you have a spiked

> collar inside out really tightly around your ankle and see what happens!

Or

> that you always feel as if you've had a raindrop just fall on your head in

> one spot, etc., etc.

> Well, you can tell us, we do understand. You've been very honest with

your

> family, and there isn't much more you can do. I know it's difficult to

keep

> doing things regardless of pain, since I try to continue doing everything

> myself. I am getting to the point where I can't drive, either, but I

refuse

> to sell my car until at least the summer is over, knowing that selling my

car

> means a large admission of what this monster is doing to me.

> And, I read your entire post and did not see an ounce of self pity. I

hear a

> little anger, but no self pity. We're here to listen to your anger (and

self

> pity if it comes to that).

> Just be sure that you don't get on the ice to show your son how he should

be

> playing!

> Hugs,

> Jo

>

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