Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Hey Deb. It's Jody. I just wanted to let you know that I tried all the things you have just mentioned. I did the Ketamin, the lidocaine IV, and the mexitil. I just thought that was funny because I did them in the exact order you just mentioned. I didn't find that any of them worked for me, but that was just me. Although I did find that the mexitil made me very nauseous. (sp?) well, if you have any questions just give me a " ring. " The reason I say that is because I am not sure of you have been using these for a while or if they are still new to you. To many pain free days, Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2000 Report Share Posted June 9, 2000 Deb, Tell Happy Birthday for me. Hope she gets to go ride a horse to celebrate. I am so sad that you are in such pain. I wish I could help you with deciding about Ketamine but since I don't have a doctor right now I can't ask anyone that would know professionally. Please try and make it to chat tonight. I really need those names so that I can bring up the list and know if someone wants to chat. Last night since n either you or Jo where on I didn't have access to anyone so chat just sat and waited until almost 10. Hopefully tonight will be different. To help speed things up, if anyone wants to go to chat tonight just drop me a short note and I will add your name to my list. I guess I'm the chat momma. Deb? Jo? Do I have a tittle? Oh wait, I think you guys said the chat hostess. Felice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2000 Report Share Posted June 9, 2000 Deb, Please wish a belated happy birthday for me. I hope she had an enjoyable party. My daughter is having her 16th birthday tomorrow. She has invited 50 friends, all teenagers!!! Should be interesting. My new doctor mentioned this Kematin to me yesterday, too. If you find out anything on it, please let me know, okay. I hope you were able to sit out on the deck and relax some. Hoping you are feeling better today!!! Hugs, Tracey > [Original Message] > > To: <Crpsegroups> > Date: 6/8/00 8:14:47 AM > Subject: rsd Just Deb > > Hi Guys, > Well, today my baby is 13 years old! I am now officially the mother > of two teenagers! And all that at 24? > Amazing isn't it?( I was quite promiscuous in the play pen I guess.) Lol > > As I said in last nights posts I have not been on the computer much. I was > hoping that the lidocaine IVs would be the ticket for a long term solution. > Well, it isn't. I don't know exactly how much pain they have alleviated, or > if I am immune to them now. I am researching if I should try the Ketamin shot > one of my pain doctors suggested. > > The man who fills my compounding creams, Barry, and I were talking about the > Ketamin yesterday. He was saying how much it has helped with rsd. It is now > being used in a nasal spray form also. > He also said the mexitil is 'tough' drug. I think the only way to tell if the > lidocaine and mexitil is helping is to start weaning off it. I called my pain > clinic nurse and asked her how, she replied'you're in for the ride of your > life baby !' > is sure it has helped me too since we were without it for 3 days and > I was burning up. > I personally think that I was just having a bad 3 days and it was > coincidence, or I needed to go off slowly. There is no rhyme or reason to > this disease, > it is so insidious as I have said a million times before. > I do feel better today, not so much physically, but mentally. > It is in my other side totally now. My original rsd side actually doesn't > hurt as bad as the new rsd side. I am going to therapy to get some of the > muscles un-cramped and it seems to be alleviating some of the pain. > At least I m not in bed anymore. > > The sun is shining and its a beautiful day outside, I am going to sit out on > my deck and write. I hope you are all okay. > Hugs, > Deb > > ------------------------------------------------------------------------ > Free @Backup service! Click here for your free trial of @Backup. > @Backup is the most convenient way to securely protect and access > your files online. Try it now and receive 300 MyPoints. > http://click./1/4935/0/_/706883/_/960466484/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2000 Report Share Posted June 9, 2000 Deb, Please wish a belated happy birthday for me. I hope she had an enjoyable party. My daughter is having her 16th birthday tomorrow. She has invited 50 friends, all teenagers!!! Should be interesting. My new doctor mentioned this Kematin to me yesterday, too. If you find out anything on it, please let me know, okay. I hope you were able to sit out on the deck and relax some. Hoping you are feeling better today!!! Hugs, Tracey > [Original Message] > > To: <Crpsegroups> > Date: 6/8/00 8:14:47 AM > Subject: rsd Just Deb > > Hi Guys, > Well, today my baby is 13 years old! I am now officially the mother > of two teenagers! And all that at 24? > Amazing isn't it?( I was quite promiscuous in the play pen I guess.) Lol > > As I said in last nights posts I have not been on the computer much. I was > hoping that the lidocaine IVs would be the ticket for a long term solution. > Well, it isn't. I don't know exactly how much pain they have alleviated, or > if I am immune to them now. I am researching if I should try the Ketamin shot > one of my pain doctors suggested. > > The man who fills my compounding creams, Barry, and I were talking about the > Ketamin yesterday. He was saying how much it has helped with rsd. It is now > being used in a nasal spray form also. > He also said the mexitil is 'tough' drug. I think the only way to tell if the > lidocaine and mexitil is helping is to start weaning off it. I called my pain > clinic nurse and asked her how, she replied'you're in for the ride of your > life baby !' > is sure it has helped me too since we were without it for 3 days and > I was burning up. > I personally think that I was just having a bad 3 days and it was > coincidence, or I needed to go off slowly. There is no rhyme or reason to > this disease, > it is so insidious as I have said a million times before. > I do feel better today, not so much physically, but mentally. > It is in my other side totally now. My original rsd side actually doesn't > hurt as bad as the new rsd side. I am going to therapy to get some of the > muscles un-cramped and it seems to be alleviating some of the pain. > At least I m not in bed anymore. > > The sun is shining and its a beautiful day outside, I am going to sit out on > my deck and write. I hope you are all okay. > Hugs, > Deb > > ------------------------------------------------------------------------ > Free @Backup service! Click here for your free trial of @Backup. > @Backup is the most convenient way to securely protect and access > your files online. Try it now and receive 300 MyPoints. > http://click./1/4935/0/_/706883/_/960466484/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2000 Report Share Posted June 9, 2000 Chat Momma sounds REALLY warm and friendly though Felice! Hugs Margot Re: rsd Just Deb > Deb, > Tell Happy Birthday for me. Hope she gets to go ride a horse to > celebrate. > I am so sad that you are in such pain. I wish I could help you with deciding > about Ketamine but since I don't have a doctor right now I can't ask anyone > that would know professionally. > Please try and make it to chat tonight. > I really need those names so that I can bring up the list and know if someone > wants to chat. Last night since n either you or Jo where on I didn't have > access to anyone so chat just sat and waited until almost 10. > Hopefully tonight will be different. > To help speed things up, if anyone wants to go to chat tonight just drop me a > short note and I will add your name to my list. > I guess I'm the chat momma. Deb? Jo? Do I have a tittle? Oh wait, I think > you guys said the chat hostess. > Felice > > ---------------------------------------------------------------------- -- > Accurate impartial advice on everything from laptops to table saws. > http://click./1/4634/0/_/706883/_/960555788/ > ---------------------------------------------------------------------- -- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 In a message dated 6/9/00 10:27:11 PM Eastern Daylight Time, tnhkrieg@... writes: << My daughter is having her 16th birthday tomorrow. She has invited 50 friends, all teenagers!!! Should be interesting. >> Hi Tracey, Please tell happy birthday for me. 50 children! Yikes! well, your a better man than I. Gungadin. Lol Hugs, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 Deb, It's 5pm and the party is over!! Turned out to be a hot, humid day. I guess it is actually 100 degrees today. Needless to say, I'm in the house now with a fan. I'd put the ac on but my house is actually cool. The party was a wonderful success. had a blast. Thank goodness I had Herb here. He and the kids did all the work. I got to take the pictures!! Hugs, Tracey > [Original Message] > > To: <CRPSegroups> > Date: 6/10/00 9:22:04 AM > Subject: Re: rsd Just Deb > > In a message dated 6/9/00 10:27:11 PM Eastern Daylight Time, > tnhkrieg@... writes: > > << My daughter is having her 16th birthday tomorrow. She > has invited 50 friends, all teenagers!!! Should be interesting. >> > Hi Tracey, > Please tell happy birthday for me. 50 children! Yikes! well, your a > better man than I. Gungadin. Lol > Hugs, > Deb > > ------------------------------------------------------------------------ > Never lose a file again. Protect yourself from accidental deletes, > overwrites, and viruses with @Backup. > Try @Backup it's easy, it's safe, and it's FREE! > Click here to receive 300 MyPoints just for trying @Backup. > http://click./1/4936/0/_/706883/_/960643323/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 Deb, It's 5pm and the party is over!! Turned out to be a hot, humid day. I guess it is actually 100 degrees today. Needless to say, I'm in the house now with a fan. I'd put the ac on but my house is actually cool. The party was a wonderful success. had a blast. Thank goodness I had Herb here. He and the kids did all the work. I got to take the pictures!! Hugs, Tracey > [Original Message] > > To: <CRPSegroups> > Date: 6/10/00 9:22:04 AM > Subject: Re: rsd Just Deb > > In a message dated 6/9/00 10:27:11 PM Eastern Daylight Time, > tnhkrieg@... writes: > > << My daughter is having her 16th birthday tomorrow. She > has invited 50 friends, all teenagers!!! Should be interesting. >> > Hi Tracey, > Please tell happy birthday for me. 50 children! Yikes! well, your a > better man than I. Gungadin. Lol > Hugs, > Deb > > ------------------------------------------------------------------------ > Never lose a file again. Protect yourself from accidental deletes, > overwrites, and viruses with @Backup. > Try @Backup it's easy, it's safe, and it's FREE! > Click here to receive 300 MyPoints just for trying @Backup. > http://click./1/4936/0/_/706883/_/960643323/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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