Guest guest Posted May 28, 2000 Report Share Posted May 28, 2000 I would love to hear from you in any form. cookie rsd To Everyone here at CRPS@egroups > To all members of the CRPSegroups: > > Please read this as if I were writing it just for you in a personal > email. > > I am still a relatively new member as we all are basically. I have been > reading the posts quietly to myself here lately without responding > because I do not know who likes to be emailed directly and who does not. > There are times when emailing the group is not appropriate. I will never > mail anyone a nasty (bad) email or put anyone down for their beliefs, > ideas, or even their thoughts. We all have the given right to our own > opinions, and I believe that we can learn from each other by expressing > ourselves. My email address set up just for RSD is raj@... I > would appreciate knowing if you would or would not like to be emailed > personally from time-to-time? > > About Myself: > > I am male, 35, extremely happily married, have two boys ages 10 and 12, > overweight (225), 6 foot 1 inches tall, and I have a million questions > about RSD and Fibromialgia. I also love to know about other places, > countries, states, it's scenery, etc. I live in Texas in-between Fort > Worth, Dallas, and Waco. > > I started having problems with my left hand, arm, and shoulder in 1995. > They were turning blue, swelling, and had a hot stinging pain that just > would not go away. This interfered with my profession of over 15 years > as a brick and stone mason to a point that I had to quit altogether. > > In May of 1996, I had my first ulnar nerve surgery. Soon afterwards the > rsd spread to my right arm and shoulder. My surgeon died a couple of > months later, so I had no doctor to explain why my right arm was acting > just like my left one. The same surgery was done in May of 97 by the > tallest doctor I have ever seen! The surgery spread the rsd to my hips > and both legs and feet. This doctor had no idea why I was not getting > better? > > Finally, in " MAY " of 98, I was diagnosed with rsd by a surgeon and > another pain specialist. I'm not a big fan of the month of May anymore! > I'm probably just like 99% of the rest of you out there, I had no idea > what RSD was, but I have been learning ever sense I found out that I > have it. In 99, my doctor suggested that I probably have Fibromialgia > too, and when she did the pressure point test I almost fell down when > she touched the one under my shoulder blades. Again, I was diagnosed > with another disease that I had never heard of. > > About Chat: > > I downloaded AOL instant messenger and also have Yahoo instant > messenger. I don't know how to use them right though. I can't chat on > Mondays and Wednesdays because my wife gets off work during the time the > chat is online, and I won't tie up our phone lines just in case she > needs to call home during this time. All the other nights are perfectly > all right to go to the chat, but I don't know how. (Oh yeah, my memory > is horrible, so if you have explained how to do this before - I don't > remember.) > > You curious new rsd member at CRPSegroups: > > > > > > > ------------------------------------------------------------------------ > Buy Long Distance with your GROUP and SAVE!!! > http://click./1/4123/0/_/706883/_/959532913/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2000 Report Share Posted May 29, 2000 : I also live in the Dallas FT-Worth area and look forward to hearing from you either way, via the group or personal e-mail. A FRIEND IN PAIN PJ - Re: rsd I would love to hear from you in any form. cookie rsd To Everyone here at CRPS@egroups > To all members of the CRPSegroups: > > Please read this as if I were writing it just for you in a personal > email. > > I am still a relatively new member as we all are basically. I have been > reading the posts quietly to myself here lately without responding > because I do not know who likes to be emailed directly and who does not. > There are times when emailing the group is not appropriate. I will never > mail anyone a nasty (bad) email or put anyone down for their beliefs, > ideas, or even their thoughts. We all have the given right to our own > opinions, and I believe that we can learn from each other by expressing > ourselves. My email address set up just for RSD is raj@... I > would appreciate knowing if you would or would not like to be emailed > personally from time-to-time? > > About Myself: > > I am male, 35, extremely happily married, have two boys ages 10 and 12, > overweight (225), 6 foot 1 inches tall, and I have a million questions > about RSD and Fibromialgia. I also love to know about other places, > countries, states, it's scenery, etc. I live in Texas in-between Fort > Worth, Dallas, and Waco. > > I started having problems with my left hand, arm, and shoulder in 1995. > They were turning blue, swelling, and had a hot stinging pain that just > would not go away. This interfered with my profession of over 15 years > as a brick and stone mason to a point that I had to quit altogether. > > In May of 1996, I had my first ulnar nerve surgery. Soon afterwards the > rsd spread to my right arm and shoulder. My surgeon died a couple of > months later, so I had no doctor to explain why my right arm was acting > just like my left one. The same surgery was done in May of 97 by the > tallest doctor I have ever seen! The surgery spread the rsd to my hips > and both legs and feet. This doctor had no idea why I was not getting > better? > > Finally, in " MAY " of 98, I was diagnosed with rsd by a surgeon and > another pain specialist. I'm not a big fan of the month of May anymore! > I'm probably just like 99% of the rest of you out there, I had no idea > what RSD was, but I have been learning ever sense I found out that I > have it. In 99, my doctor suggested that I probably have Fibromialgia > too, and when she did the pressure point test I almost fell down when > she touched the one under my shoulder blades. Again, I was diagnosed > with another disease that I had never heard of. > > About Chat: > > I downloaded AOL instant messenger and also have Yahoo instant > messenger. I don't know how to use them right though. I can't chat on > Mondays and Wednesdays because my wife gets off work during the time the > chat is online, and I won't tie up our phone lines just in case she > needs to call home during this time. All the other nights are perfectly > all right to go to the chat, but I don't know how. (Oh yeah, my memory > is horrible, so if you have explained how to do this before - I don't > remember.) > > You curious new rsd member at CRPSegroups: > > > > > > > ------------------------------------------------------------------------ > Buy Long Distance with your GROUP and SAVE!!! > http://click./1/4123/0/_/706883/_/959532913/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 I hear you!!!! about NO support. I was always the supporter in my family and friends and I think they don't know how to turn the table. I guess it's not really their fault (in my case) they don't understand constant pain and have always been the receiver not giver. Maybe it's true, we are to strong. Anytime you would like to hollow for support, DO IT, as you can tell I don't have support except here either. I am very sorry about your move but I do hope it will go as well as it can. your friend cookie Re: rsd ReFight > > > > ------------------------------------------------------------------------ > Would you like to save big on your phone bill -- and keep on saving > more each month? Join beMANY! Our huge buying group gives you Long Distance > rates which fall monthly, plus an extra $60 in FREE calls! > http://click./1/2567/0/_/706883/_/960495790/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 Thank you Margot, you made my morning start off with a huge grin~You should write professionally. Really. Lol Hugsssss, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2000 Report Share Posted June 19, 2000 , just wanted to say hi and hope you have a good day. your friend cookie ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2000 Report Share Posted June 20, 2000 Have I got a good one for you. Last week I was at a new DRS> office and MY dad was a patience of his also. My dad had passed away the week before I had my appointment, so I was telling them so they could clear his record and the receptions asked me (after I had said my dad) asked if he was my husband. I said no my father. We left there and went to a new restaurant and after ordering the waitress turned to me, bent down and asked me if I was 55 or older so she could give me the senior discount. I said no thank you anyway for trying, I'm only 48. The lady with me was older than me. At first I told the lady with me that I must look a lot older than I was, and she said what it is , you have gray hair. I guess that's true because I am completely gray and have been mostly gray since 20 years old. I didn't mind the salt and pepper look so much but now it's only SALT. But that's OK, I can live with it. I do wish you could explain to me about being able to except this RSD and mostly how it has changed my life so much as to what it was before. That's where I seem to be stuck and no matter how hard I have tried and how much counseling I've had, I just can't seem to except me now and my limitations. I want to go back to 20 or even 40 as to when I was living and loving my job and so happy. That time was life, this is not. I had the tiger and the whole world by the tail and just a swinging it.If you have only thoughts or suggestions, I would love to hear them. I am willing to try about anything to get to that point. You seem to have a head on and a handle on this. Thanks for your help and good luck with your problems. Any help I might be, all you have to do is write, I'll be here for you. your friend cookie P.S. I forgot to tell you, I have RSD in the right side of my face, it hasn't changed my looks at all. Re: rsd Reminder - 's Birthday >HI guys, > Thanks for reminding everyone deb, but please do me a favor okay? I am >going though a very very bad depression right now. Please, no ecards okay? I >just want to forget about tommrow. I hate my birthday usually anyway, but >especially this one. I have been insulted a few times by people thinking i'm >toms mother and the girls grandma. The latest being this morn. > To top it all off, even though dad is gone and some of the stress is >elieveated, I called him yesterday to wish him a happy fathers day. He said >he was so bored down there and there is so much work to be done up here, that >he's cutting the vacation short and coming home this sat. or sun. so much for >my 2 weeks in the sun. (not that we've had any sun either. 1 day of sun and 3 >days of rain.) > I'm financially broke again, and my birthday just seems like a waste of >time and money. I don't expect anything from anyone here and i just want to >forget about it. > My face seems to be healing, but the dr. is sure that the RSD will >attack shortly. It hasn't even been 2 full weeks i don't think. I can't >remember shit like i used to. But my face was my only " somewhat good " >feature, my best feature was my legs. I had a great pair of legs. Knock your >socks off type. I used to wear white shorts with a dark tan. (short shorts) >That was the first day i met tom. He still remembers how i looked back then. >Now, well........ > I sat online with trish (tdbearangl) last nite. I think we were both >contemplating sucide. Obviously neither of us did, but the thought seemed so >nice. Please don't tell me about counceling, been there done that. I'm on >anti depressents, maybe i'll ask for an increase. Alot of this is situaional. >I have to accept RSD all over again. I got to a point in my life where i >accepted that i would have it forever, but could deal with it. I fought off a >wheelchair and won 90 per cent of the time. But now my face. I can't handle >this. Well i could, and i know i will cz i'm a suvivor, I've survived an >abusive alcoholic ex husband for the 11 years we were married. I suvived >being molested at 11. I suvived waking up while under general ansestia during >a c-sec. I suvived being raped. I have suvived this and so very much more. I >guess haveing RSD in my face should be a peice of cake. But i still have some >vanity left. > I guess what it comes down to is i don't want to be 44 years old. I want >to be like 32. Thats when john and i ended our marriage. I was free. I was in >love with a hot guy who was engaged to someone else. I was a size 10. I was >fun loving, happy, carefree (even with 3 kids). I would have a great time >during weekends when the kids were with john. I was active in alanon then. I >would get all dressed up and go out with friends then. I was president of the >PTA. I had 2 lives. One during the week, and one on weekends. I was >invinsable. I loved freedom, looking like 21, going to bars, being with >friends, spending time with my kids during the summer and still having my >weekends for me. I could wear a bikini. I had the world by the balls and i >wasn't letting go. Then tom came into my life and we got into a " normal " >lifestyle. Still had a lot of fun. But now, well my life just sucks. Anyway, >thanks for all the well wishes, but please respect mine and forget my >birthday. And to all of you who got to the end of this very long sappy post. >Thank you and God bless you. I love each and everyone of you. Hugs, > >------------------------------------------------------------------------ >Need to allergy-proof your bedroom? Pristine mattress >encasements form a breathable barrier that protects your family from >common allergens. Order one today and get two pillow encasements FREE! >http://click./1/5493/0/_/706883/_/961437653/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 Carolyn, By now you have privately received my letter to . NOW, Can we end it? I did not ever, ever call her those things, as you can now see. OMG, I am not judge and jury here! You now have all, except the letter I wrote, with care and thought about asking her back. When I went to send it, it was rejected. She had blocked my mail. Not even 24 hrs. later! Oh, well. I NEVER have deleted anyone's mail. I have read all posts. If we deleted them, why write to each other? Why would I start a list? So I can delete what I don't want to read? Everyone is entitled to their opinion. I REALLY, do not want to discuss this anymore. Thank you. You care I know, as do I. I did try, and failed. I feel bad, but I have to let it go. Hopefully, anyone who wants to discuss this with me, will have the sense not to YELL at the whole list. Please, quietly email me. Hugs, Deb Quote Link to comment Share on other sites More sharing options...
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