Guest guest Posted July 3, 2010 Report Share Posted July 3, 2010 caren: Your husband needs to get rid of that water retention. They know how to do that with medication and perhaps a simple needle to drain off fluids from his abdomen. I don't know about life expectancy, but it will surely be longer if he gets the fluid drained. Find a hospital that takes people regardless of money circumstances, and get it taken care of, otherwise you will likely loose him somewhat quickly I'm afraid. If he's drinking alcohol, he needs to stop. --Jim > > > Hi, i am new to all of this so please forgive my ignorance. My husband > is 53, and just has been diagnosised with cirrhosis of the liver. He was > working up in Penn, (we live in Tx) and had be taken of his job, and > rushed to the emergency room in WV. I with our 2 boys made it up to wv > to get him. I have never seen him so swollen and he is getting worse. > his face is swelling to the point his eyes are swollen and are black and > blue. by the way he wont go to the doctor now that he (we) is at staying > a friends house here in wv. he sleeps ALL the time, up long enough to > eat a bite and then lays back down to sleep, when he is up, to go to the > bathroom, his breathing is VERY labored, and has to lay back down. The > emergency room says he has ascites. He has no insurance, and no life > insurance due to his obesity befor all this. He also coughs alot like > something deep in his chest. i cant think of anything else except to ask > the hard question to you all, what can i expect from what i just told > you and how long does he have. > thanks so much, caren > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2010 Report Share Posted July 3, 2010 Caren, I lost my husband on Jan 26, 2009. He was 54. He was diagnosed with cirrhosis in 2006 and we were told he was terminal in Oct, 2007 and had no more than 6 months to live. He lived another 15 months. He decided very early on that he did not want to get a transplant and wanted to live his life the best that he could until the Lord called him home. I struggled to get him to keep doctor's appointments or even go to the ER. He was in and out of the hospital, but never until he had gotten so sick that he could not argue with me when I called 911. I'm sorry to have to say this, but it sounds to me like your husband is very near the end, especially if he refuses to see a doctor or go to the ER. No hosital can turn him away from the ER if he is in a life or death situation. It sounds to me like he is most definitely there. I understand the concerns about the financial costs and not having insurance as my husband and I lived most of our married life (over 33 years) without health insurance and paid thousands out of pocket over the years for various medical conditions. For him, it wasn't the cost, it was the fact that he simply did not want to be living on pills. He was already taking so much medication and couldn't stand the thought of all the drugs transplant required. He also could not come to terms with living due to someone else's pain and loss. I cannot tell you what to do. I told my husband early on that I would do whatever he wanted to do. If he wanted to fight, I'd help him fight till the death with any and everything I had. If he wanted to let nature take it's course, I would take as good care of him as I could and would be with him until the end. When the end came, he had home hospice care and died at home, just as was his wish. I don't regret doing it his way. Death if a highly personal matter. No one has to right to tell us we must fight. I have been where you are right now and I know how frightened you are. Please know I hold you in my heart and prayers; you as well as your sons and your husband. Many hugs..................... Diane C from TN http://auntdisexperimentallife.blogspot.com/ > > > Hi, i am new to all of this so please forgive my ignorance. My husband is > 53, and just has been diagnosised with cirrhosis of the liver. He was > working up in Penn, (we live in Tx) and had be taken of his job, and rushed > to the emergency room in WV. I with our 2 boys made it up to wv to get him. > I have never seen him so swollen and he is getting worse. his face is > swelling to the point his eyes are swollen and are black and blue. by the > way he wont go to the doctor now that he (we) is at staying a friends house > here in wv. he sleeps ALL the time, up long enough to eat a bite and then > lays back down to sleep, when he is up, to go to the bathroom, his breathing > is VERY labored, and has to lay back down. The emergency room says he has > ascites. He has no insurance, and no life insurance due to his obesity befor > all this. He also coughs alot like something deep in his chest. i cant think > of anything else except to ask the hard question to you all, what can i > expect from what i just told you and how long does he have. > thanks so much, caren > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2010 Report Share Posted July 3, 2010 Thank you Diane for your response. I am very sorry for your loss also. I really do appreciate your letter to me. If it is ok, i will keep your email in case of any other questions i might have. Again thanks so much Caren Dodd > > > Hi, i am new to all of this so please forgive my ignorance. My husband is > 53, and just has been diagnosised with cirrhosis of the liver. He was > working up in Penn, (we live in Tx) and had be taken of his job, and rushed > to the emergency room in WV. I with our 2 boys made it up to wv to get him. > I have never seen him so swollen and he is getting worse. his face is > swelling to the point his eyes are swollen and are black and blue. by the > way he wont go to the doctor now that he (we) is at staying a friends house > here in wv. he sleeps ALL the time, up long enough to eat a bite and then > lays back down to sleep, when he is up, to go to the bathroom, his breathing > is VERY labored, and has to lay back down. The emergency room says he has > ascites. He has no insurance, and no life insurance due to his obesity befor > all this. He also coughs alot like something deep in his chest. i cant think > of anything else except to ask the hard question to you all, what can i > expect from what i just told you and how long does he have. > thanks so much, caren > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2010 Report Share Posted July 3, 2010 Caren, I'm not sure what part of Texas your in but if your near Houston I'd say take him to St Luke's Hospital. My husband has the same thing. We took him there back in Sept 09. His ammonia level was so high they said if we hadn't gotten him there then he wouldn't of made it another week.Of course he is still very sick but has medication now to help keep the fluid down and medicine that helps him poop 3 times aday which is also very important. The ammonia builds up and gets to the brain and will make him confussed. When my husband started gettibg like that I automaticly thought he was drunk, but he hadn't drank. So long story short our daughter finally got him to go to Houston. He was there for 2 weeks. He has good days and bad days. Let him know if he doesn't see a Dr soon he will die. That is the only thing that finally woke my husband up. He hasn't drank since Sept. You said he won't go to Dr, Well as his wife I think you have a say in this. Plain truth is he will die soon if he doesn't get help soon. Tell him you love him,and you'll be with him all the way,you need him to do this for you and the kids, but mostly for him self. You came to the right place, we might be very good spellers (lol)here but we get the point out. I know your under alot of stress as well. There will be days that you'll be so mad at him for doing this to you and that anger is ok cause deep in your heart you know he didn't do it on purpose. Take care of yourself too. > > Hi, i am new to all of this so please forgive my ignorance. My husband is 53, and just has been diagnosised with cirrhosis of the liver. He was working up in Penn, (we live in Tx) and had be taken of his job, and rushed to the emergency room in WV. I with our 2 boys made it up to wv to get him. I have never seen him so swollen and he is getting worse. his face is swelling to the point his eyes are swollen and are black and blue. by the way he wont go to the doctor now that he (we) is at staying a friends house here in wv. he sleeps ALL the time, up long enough to eat a bite and then lays back down to sleep, when he is up, to go to the bathroom, his breathing is VERY labored, and has to lay back down. The emergency room says he has ascites. He has no insurance, and no life insurance due to his obesity befor all this. He also coughs alot like something deep in his chest. i cant think of anything else except to ask the hard question to you all, what can i expect from what i just told you and how long does he have. > thanks so much, caren > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2010 Report Share Posted July 4, 2010 Caren, please contact me any time you feel the need to. You may call me at or on my cell at at any time, day or night and I mean that ANY TIME. I know how it is to be alone in the wee hours and feel so desperate for someone to talk to. Please, call me. If you can't afford the call, just call me, tell me who you are and your number and I'll call you back. I'd be more than happy to pay for the call. My husband's cirrhosis was the result of type II diabetes, a genetic disorder and a battle with sepsis which poisoned every cell in his body in Feb, 2006. He was all but dead at that time and I was told he could not survive the infection. God had other plans. In Apr, 2000, he was hospitalized after a car accident for nearly 5 months and another 9 months of out patient physical therapy. He was told he would never walk again. God had different plans. That's why it was so easy for him, and for me, to trust the Lord's will for his life when the cirrhosis diagnosis came. Although he did not want to leave me, he had such perfect peace about going home with the Lord. I miss him every minute of every day, but I am so thankful he never has to suffer again. No more needles and pills and procedures; no more struggling with keeping one thing under control while another rages out of control. He was the love of my life and I will never get over losing him. We were together from the time we first met when I was 15-1/2. We married the month after I graduated from high school. We weathered many storms together but cirrhosis was to be the storm we could not weather. Yet, we did not lose; our love now lives on in eternity and we will be together again some day and this time there will be no more seperation. Please contact me any time you need a friend, a shoulder, an ear. I am here and I am available. You and your family remain in my prayers. Many hugs............. Diane C from TN http://auntdisexperimentallife.blogspot.com/ P.S. You can email me privately if you like. My email is diane.chandler.75@... > > > Thank you Diane for your response. I am very sorry for your loss also. I > really do appreciate your letter to me. If it is ok, i will keep your email > in case of any other questions i might have. > Again thanks so much > > Caren Dodd > > > > > > > > > Hi, i am new to all of this so please forgive my ignorance. My husband is > > 53, and just has been diagnosised with cirrhosis of the liver. He was > > working up in Penn, (we live in Tx) and had be taken of his job, and > rushed > > to the emergency room in WV. I with our 2 boys made it up to wv to get > him. > > I have never seen him so swollen and he is getting worse. his face is > > swelling to the point his eyes are swollen and are black and blue. by the > > way he wont go to the doctor now that he (we) is at staying a friends > house > > here in wv. he sleeps ALL the time, up long enough to eat a bite and then > > lays back down to sleep, when he is up, to go to the bathroom, his > breathing > > is VERY labored, and has to lay back down. The emergency room says he has > > ascites. He has no insurance, and no life insurance due to his obesity > befor > > all this. He also coughs alot like something deep in his chest. i cant > think > > of anything else except to ask the hard question to you all, what can i > > expect from what i just told you and how long does he have. > > thanks so much, caren > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2011 Report Share Posted August 8, 2011 annie i am so sorry for your loss,you and your family are in my prayers. may god bless you in your time of need, amen. > > > Just a note to let you know My husband of almost 52 years (this month)Passed away this morning from a heart attack;;I love him so much and I am going to miss him desperatelyplease pray for me and our kids and family Thank you > > Annie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2011 Report Share Posted August 8, 2011 You and your family are in our thoughts and prayers. I am so sorry for your loss. MaC - > > > Just a note to let you know My husband of almost 52 years (this month)Passed away this morning from a heart attack;;I love him so much and I am going to miss him desperatelyplease pray for me and our kids and family Thank you > > Annie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2011 Report Share Posted August 10, 2011 Annie, I am so sorry for you and your children. My aunt passed away last week, not sure what caused it. Her son is feeling so guilty that he hadn't done more to make sure she was okay. He called or stopped by, or someone in the family did every day at least. But when she didn't answer the phone he figured as did his kids and the neighbors that she was out doing something as she usually was. Please don't feel guilty. It wasn't his fault and it isn't your fault. It was just his time to go. I know you will miss him, I still have times when I break up from losing my mother in May. It is great that you still loved your husband so much after more than 50 years together. Hold on to those memories and he will never completely leave you. I learned so much about my mother going through her things after she died. Made me love her more. I have asked God to put his loving arms around you and give you and your family peace and to help you through this time. Jan > > Just a note to let you know My husband of almost 52 years (this month)Passed > away this morning from a heart attack;;I love him so much and I am going to > miss him desperatelyplease pray for me and our kids and family Thank you > > Annie > > Quote Link to comment Share on other sites More sharing options...
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