Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Hello Everyone: got his new liver on May 26th. Everything was going fine. The new liver is still working very well. During the surgery they found a blood clot in his portal vein so they thought it would be a good idea to put him on blood thinners. (emphasis on the word 'thought') He was coming along really great and we had thought we would be going home. The night before (2 nights ago) he didn't feel good and he began getting very weak. By the next morning he couldn't even stand or sit, or he would pass out. They took him back to i.c.u. and they found that he had bleeding in his abdominal area. They opened him back up and found that the bleeding was in the area where they cut the old liver out. It's not an area that you can stitch because it's like an abrasion. They took him off blood thinners and had to give him more blood products. His color looks better, so I'm hoping it's working. They have him heavily sedated and are watching him very closely. We have a long road to travel yet before things become normal again. Does anyone here have any experience with something like this? I'd love to hear some input. Thanks, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Jackie, I am so sorry for the setback. I have no experience but just wanted you to know that I continue to pray daily for 's healing and your soon return to your home. This is all such an experiment, even after all these years. But, it is an opportunity to have a second chance. I pray they get things worked out for very soon. Many hugs........................ Diane > > > Hello Everyone: got his new liver on May 26th. Everything was going > fine. The new liver is still working very well. During the surgery they > found a blood clot in his portal vein so they thought it would be a good > idea to put him on blood thinners. (emphasis on the word 'thought') He was > coming along really great and we had thought we would be going home. The > night before (2 nights ago) he didn't feel good and he began getting very > weak. By the next morning he couldn't even stand or sit, or he would pass > out. They took him back to i.c.u. and they found that he had bleeding in his > abdominal area. They opened him back up and found that the bleeding was in > the area where they cut the old liver out. It's not an area that you can > stitch because it's like an abrasion. They took him off blood thinners and > had to give him more blood products. His color looks better, so I'm hoping > it's working. They have him heavily sedated and are watching him very > closely. We have a long road to travel yet before things become normal > again. Does anyone here have any experience with something like this? I'd > love to hear some input. Thanks, Jackie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Jackie I sure don't have any experience to share; but, I am sending along all my very best thoughts for you and . Please keep in touch the best you can and let us know how it is going. Gloria ________________________________ Hello Everyone: got his new liver on May 26th. Everything was going fine. The new liver is still working very well. During the surgery they found a blood clot in his portal vein so they thought it would be a good idea to put him on blood thinners. (emphasis on the word 'thought') He was coming along really great and we had thought we would be going home. The night before (2 nights ago) he didn't feel good and he began getting very weak. By the next morning he couldn't even stand or sit, or he would pass out. They took him back to i.c.u. and they found that he had bleeding in his abdominal area. They opened him back up and found that the bleeding was in the area where they cut the old liver out. It's not an area that you can stitch because it's like an abrasion. They took him off blood thinners and had to give him more blood products. His color looks better, so I'm hoping it's working. They have him heavily sedated and are watching him very closely. We have a long road to travel yet before things become normal again. Does anyone here have any experience with something like this? I'd love to hear some input. Thanks, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 I'm so sorry for the setback. I don't have any experience in that since I didn't have any complications when I had my liver transplant, but I hope things get better for him soon. Penny > > Hello Everyone: got his new liver on May 26th. Everything was going fine. The new liver is still working very well. During the surgery they found a blood clot in his portal vein so they thought it would be a good idea to put him on blood thinners. (emphasis on the word 'thought') He was coming along really great and we had thought we would be going home. The night before (2 nights ago) he didn't feel good and he began getting very weak. By the next morning he couldn't even stand or sit, or he would pass out. They took him back to i.c.u. and they found that he had bleeding in his abdominal area. They opened him back up and found that the bleeding was in the area where they cut the old liver out. It's not an area that you can stitch because it's like an abrasion. They took him off blood thinners and had to give him more blood products. His color looks better, so I'm hoping it's working. They have him heavily sedated and are watching him very closely. We have a long road to travel yet before things become normal again. Does anyone here have any experience with something like this? I'd love to hear some input. Thanks, Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 hi jackie i mispoke, i had just skimmed the posts before i posted, then went back to read them in full.i am praying for you and john that the recovery goes well and they get the bleeding stopped. much love barby > > > > Hello Everyone: got his new liver on May 26th. Everything was going fine. The new liver is still working very well. During the surgery they found a blood clot in his portal vein so they thought it would be a good idea to put him on blood thinners. (emphasis on the word 'thought') He was coming along really great and we had thought we would be going home. The night before (2 nights ago) he didn't feel good and he began getting very weak. By the next morning he couldn't even stand or sit, or he would pass out. They took him back to i.c.u. and they found that he had bleeding in his abdominal area. They opened him back up and found that the bleeding was in the area where they cut the old liver out. It's not an area that you can stitch because it's like an abrasion. They took him off blood thinners and had to give him more blood products. His color looks better, so I'm hoping it's working. They have him heavily sedated and are watching him very closely. We have a long road to travel yet before things become normal again. Does anyone here have any experience with something like this? I'd love to hear some input. Thanks, Jackie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 Dear Jackie, I am happy to hear about the liver, and wanted to share my own knowledge about what he is going through. There is a little girl in Normal Ill. who had a similar experience. Annika Tiede was born with bilary atresia, and had a liver transplant soon after birth. The graft was damaged because of a blood clot in her portal vein, and she had to have a second transplant. Just over a year and a half ago, her second graft failed, and she had to undergo a third transplant. They saw number three coming for months, but when it came, it was very difficult surgery, her blood vessels had grown all over in there, and the doctors had a really hard time hooking her back up. . Then she was put on blood thinners because a known blood clot had ruined her second liver, and they worried that history would repeat itself. What complicated it was that two different sets of doctors were fighting over her, a brain doctor who was concerned about the amounts of blood thinners, because she had developed a slight brain bleed, , and the liver transplant team, who said that they were NOT going to lose this liver to a clot. So far , she is fine, and I believe has turned 10, if I am not mistaken. Her mom skipped a whol bunch of time on her blog, and my heart skipped a beat, not knowing what was happening. The main point here is that I have heard of liver transplant being complicated by coumadin, and that Annika's story is so far a success. Hang in there, Jackie. You are one remarkable lady, you are very strong, and stubborn in a good way, and I am sure that you are doing all you can to make this a big success. Love, Bobby http://www.lifegoeson.com/posters/tiede-bloomington.pdf http://moreena.typepad.com/ Democracy is two wolves and a lamb voting on what to have for lunch. Liberty is a well armed lamb contesting the vote. - lin ________________________________ To: livercirrhosissupport Sent: Tue, June 8, 2010 5:07:42 PM Subject: Update on Hello Everyone: got his new liver on May 26th. Everything was going fine. The new liver is still working very well. During the surgery they found a blood clot in his portal vein so they thought it would be a good idea to put him on blood thinners. (emphasis on the word 'thought') He was coming along really great and we had thought we would be going home. The night before (2 nights ago) he didn't feel good and he began getting very weak. By the next morning he couldn't even stand or sit, or he would pass out. They took him back to i.c.u. and they found that he had bleeding in his abdominal area. They opened him back up and found that the bleeding was in the area where they cut the old liver out. It's not an area that you can stitch because it's like an abrasion. They took him off blood thinners and had to give him more blood products. His color looks better, so I'm hoping it's working. They have him heavily sedated and are watching him very closely. We have a long road to travel yet before things become normal again. Does anyone here have any experience with something like this? I'd love to hear some input. Thanks, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2010 Report Share Posted June 11, 2010 Jackie, just want you to know that Ill be putting on the prayer chain tomorrow. Im praying for the both of you. God bless, Debra > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2010 Report Share Posted June 11, 2010 thank you, Debra. is out of i.c.u. Still not feeling well but it's gonna take awhile. The dr was just in & said he had lost alot of blood and it will take awhile for him to feel like he's making progress. Thanks for your prayers. There is nothing like the power of prayer! Jackie Subject: Re: Update on To: livercirrhosissupport Date: Friday, June 11, 2010, 4:02 AM  Jackie, just want you to know that Ill be putting on the prayer chain tomorrow. Im praying for the both of you. God bless, Debra > > Quote Link to comment Share on other sites More sharing options...
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