Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 I wear pant suits, long skirts, and pants with blazers usually. Now that we have a modesty divider between the keyboard and the railing, I also wear shorter skirts when I can get into them. You would be dressed up more in dress pants and a nice blouse than 80% of the people in our church. The pastor's husband who is also a pastor shows up in jean shorts and flowered shirts when he isn't subbing for her. Things have changed. Jan > LOL > > I don't think I could attend church without wearing a dress and I don't > wear dresses. Ok, I might allow myself dress pants and a nice blouse; but, > certainly not jeans or shorts. That would just be too alien to me!! > > Gloria > > > > > ________________________________ > > > Yup, and though I seemed to be rebelling at the time, I still like to dress > up and am usually one of the most dressed up people at church even today. > Many people wear shorts to our church all year long, but I usually have on > either a suit of some kind or a blazer with high heels. Jan H > > > > > Jan > > > > Absolutely agree!! Except that my brothers were sent to church on a > Sunday > > (me in the lead) and I had white patent shoes in the spring summer. So, > > there was no parent to swat us; however, I swear that we were under pain > of > > death if we misbehaved. My brothers would be more in Sunday School > anyway > > and I could go back and forth. THE HATS!!! Wasn't that just a gas!! Of > > course, then there was the ultimate at Easter too. > > > > Gloria > > > > > > ________________________________ > > > > > > Gloria - motor mouth probably describes me too. If no one else is > around, > > I > > talk to myself, question and answer. When the kids were little and I was > a > > single mom, I said it was the only way I could have an intelligent > > conversation. Their dad wasn't much of a talker either. > > > > My mother used to tell me how frustrated she would get when she took me > to > > church. It was our custom to dress up, even little kids, so I had a hat > > and > > gloves, black patent shoes, white socks and a frilly dress. We would go > in > > and sit down and before church would start, I would have my hat and > gloves > > off, dirty socks and dress from crawling around on the floor. I just > > couldn't sit still. There was another custom in our church. If kids > > didn't behave during church, ( and just in case, mothers sat in the back > > with younger children) they were taken outside, and given a good swat > > followed by a scream heard by everybody in the church so the other people > > would know that mother had done her job. I agree with Dave, parents were > > quicker to stop the hyper activity, but that doesn't mean we didn't have > > the > > conditioin. Jan H > > > > On Thu, May 13, 2010 at 8:17 PM, Gloria > wrote: > > > > > Dave > > > > > > It was absolutely around when we were kids; but, like I was saying to > > Jan, > > > families dealt with it a whole site differently than today. At least, > > when > > > I was growing up, my mother was an at home mother. So rather than drug > > her > > > kids up, she just handled it. I don't know about you; but, I do > remember > > > that we were not taken to the Dr. for very much at all and so that > > brother's > > > hyperactivity was probably only spoken about once by my Mom. > > > > > > Look around when you are at a meeting. The more hyperactive a person > is, > > > the more intense they are either swing their leg or tapping on the > table > > or > > > having to get up and down. Lots of others are just slightly afflicted > > and > > > will just be moving in their seat quite often. > > > > > > When I used to suffer so bad and it seems to be coming back, I'd be the > > one > > > with a leg swinging or playing with anything on my wrist etc. I can > not > > > wear a watch to this day because if they had stretching bands I'd twist > > them > > > till they broke and if they didn't, it would just annoy me too much > that > > I > > > couldn't twist. Nowadays I wear cheap beaded bracelets and if they > > break, > > > nothing much lost. For me, it gets really really bad if I'm in > > unfamiliar > > > or scary territory!! The more uncomfortable I am, the more that my > motor > > > mouth will go faster and I just stay still. I've been accused of > showing > > > anger when this happens; but, it's not, I'm simply uncomfortable. > > > > > > Geez - I even have a motor mouth when talking on e-mails, can you > imagine > > > how it is actually talking to me?? LOL > > > > > > Gloria > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > That ADHD connection to folk with addictive problems does make a lot of > > > sense..I have never though of that, or even heard the connection, but > am > > > going to look into that. I really know very little about ADHD. It is > > > interesting to me though on many levels. It is a curiosity if this was > > > around when us baby boomers were lil' and just not diagnosed, or is it > > more > > > prevelant now. If more so now I would wonder about environmental > > > connection. I'm going to research this. > > > Dave > > > > > > ________________________________ > > > > > > To: livercirrhosissupport > > > Sent: Thu, May 13, 2010 9:07:12 PM > > > Subject: Re: Hi > > > > > > > > > When my children were in school, they spent about half the years in > > > church/Christian schools. We were moving my oldest daughter's school > and > > > everybody available was asked to help. Our family was assigned to pack > up > > > the books in the library. In the car, my oldest daughter told her > little > > > brother who had not been diagnosed yet, but had severe adhd, " don't be > > > normal today, act nice " It was embarrassing especially for her when he > > > would act out the adhd. My main frustration was when I had to tell him > to > > > do something. I couldn't tell him to take his winter outerwear off, I > had > > > to tell him to take off his mittens, take off his scarf, take off his > > hat, > > > take off his boots, take off his jacket and if he had them on to take > off > > > his snow pants, and then we went through the whole thing again when he > > was > > > supposed to put them away. Otherwise, I found him very interesting > > because > > > he was so curious about everything and always asking questions and > > > exploring > > > things like the inside of computer disks (remember the old ones). I > would > > > have like to have looked myself, but couldn't bring myself to tear > apart > > > something I had paid for and could still use. He also brought home an > old > > > calculator he found on the street and tore it apart. I have taken the > > adult > > > tests online and show as having add. It explains a lot of things which > > > happened in my life. I was impulsive. Didn't live up to my intellectual > > > potential, and other things I don't care to discuss here. I have 2 or 3 > > > grandsons I am sure have add at least if not adhd, one has been > diagnosed > > > but they aren't getting treatment because their parents, including the > > son > > > who has it, don't believe in it. When my son was on medication, it was > so > > > much easier to deal with him, he did better in school, didn't get so > > > frustrated, but he didn't like that slowed down feeling and when it > came > > > time for him to decide for himself, he refused the meds. > > > > > > Gloria, just so you know, you haven't annoyed everybody here. Jan H > > > > > > On Thu, May 13, 2010 at 6:06 PM, Gloria > > wrote: > > > > > > > Diane > > > > > > > > However, there would be nothing you could do about his drinking > anyway. > > > > It's always got to be up to the person that is addicted. > > > > > > > > Do you know, that a very high percentage of especially alcoholics, > > would > > > > also be diagnosed as ADHD. It's fun in a meeting to look around at > all > > > the > > > > " sober " ADHD people. You can even tell if they are low level or high > > > level. > > > > Before I was put on beta blockers, my ADHD would get so bad that it > > > annoyed > > > > me. Therefore, by that time, I'd already annoyed everyone around me > LOL > > > > I finally learned to do a simple meditation in order to slow myself > > down, > > > so > > > > I don't believe that I'm so bad now. > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > I think some people have to worry more about alcoholism than others. > I > > > > have > > > > a son who has adhd, won't take medication but drinks too much when he > > has > > > > the money. His father doesn't drink because his father was an > alcoholic > > > > and > > > > he could see himself starting to go down that road too. And there is > > also > > > > a > > > > great grandfather on that side of his family who was an alcoholic. My > > > > great > > > > grandfather and one of my brothers were/are alcoholics, so it really > > > > concerns me that my son drinks what is more than social drinking. And > > now > > > > with the genetic link to cirrhosis, he really has a triple whammy > ready > > > to > > > > hit him. Jan H > > > > > > > > On Wed, May 12, 2010 at 8:56 PM, Gloria > > > wrote: > > > > > > > > > Gehri > > > > > > > > > > I have to agree with Dave on all he has said!! > > > > > > > > > > The most horrible thing about alcoholism etc., is what it actually > > does > > > > to > > > > > those around that person. Even as a recovering alcoholic myself, I > > > > > occasionally get frustrated that others can not seem to find a good > > > > enough > > > > > reason to put the addiction aside and get the necessary help. Then, > > > > > hopefully, they would do it before getting as sick as your sister > is > > > now. > > > > > I'll just pray that she rallies from this and actually realizes how > > > much > > > > > you love her!!! It's definitely a difficult path for you, with no > > > doubt. > > > > > > > > > > Even at the level that your sister is at right now, there is a > whole > > > lot > > > > of > > > > > hope!! The hospital will fight hard to get this under control and > > > she'll > > > > > rebound, even though likely she will have to entirely change her > > > > lifestyle, > > > > > diet and all!! But the proof that it is absolutely possible, is in > > the > > > > > stories of a number of people in this site. I know for sure that I > am > > > > > honoured and awed by the fighting spirit here. I also feel sooo > > > grateful > > > > > that at this point, it appears that I may not have to lose my liver > > to > > > > > cirrhosis because of some top-notch help from the medical > community. > > > > > > > > > > Please, let us know how it is going for you, as well as your > sister. > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > She may have varices, but I have it and experience no pain from > > > it..even > > > > > when I've had bleeds I had no pain..others may be different > > > perhaps..her > > > > > pain may be from as- cites..hopefully they will get her amonia > levels > > > > down > > > > > and some clarity will return....others here have experience with > > > > > encephalopathy and can offer good advice..I would think much of her > > > > problems > > > > > are being caused by that..hang in there..peace and comfort to you > > all, > > > > > Dave > > > > > > > > > > ________________________________ > > > > > > > > > > To: livercirrhosissupport > > > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > > > > drinking a month or so before she fell ill. She is not at the point > > to > > > > do > > > > > the healthly lifestyle thing, as she's still in the hospital very > > sick > > > > and > > > > > not able to go to the bathroom on her own, hold her own cup, > > > > > walk...anything. She has been sick for a long time, but wouldn't go > > see > > > > > about it. This is her first hospitalization with this, and I'm just > > > > praying > > > > > she will be able to walk out of there, not die there. She was in > > denial > > > > > that something was wrong for so long, but if she had just gone > > earlier, > > > > she > > > > > may have been able to stop drinking, eat better, etc. Right now, I > > just > > > > > don't know. As of a few hours ago, her daughter told me they were > > > taking > > > > > her to x-ray her stomach to see why she's in so much pain...I pray > > it's > > > > not > > > > > varicies. You hang in there, too. I can only imagine the road > you've > > > > > traveled with this disease, and I hope you will be able to live a > > > > > productive, > > > > > healthier life. > > > > > > > > > > Blessings, > > > > > Gehri > > > > > > > > > > ____________ _________ _________ __ > > > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > I am sad for your sister and you. So far I have not developed > > > encephalop > > > > > athy and hope I do not..It is my greatest fear with this disease. > > ..it > > > > > seems many, perhaps most, who drink actively do bounce back from > > > > abstinance, > > > > > clean living, and the benefits of taking med's properly, eating > > proper, > > > > etc. > > > > > Hopefully she will quit drinking..likely she will improve if she > > does, > > > > but > > > > > for sure she will continue getting worse if she does not..hang in > > there > > > > > Gehri. She is lucky to have a caring sibling that is being there > for > > > > her. > > > > > Ultimately that is about all you can do, being there. The rest is > up > > to > > > > > her. > > > > > Dave > > > > > > > > > > ____________ _________ _________ __ > > > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > > > Subject: Hi > > > > > > > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > > > > diagnosed > > > > > with Cirrhosis from alcohol. She is very sick, and I don't know > what > > to > > > > > expect. She actually has not looked well for over a year, she's > lost > > a > > > > lot > > > > > of weight, tired all of the time, complained of stomach pain and > > > > > constipation. Finally, a trip to urgent care led to the er, which > led > > > to > > > > > hospitalization. Her eyes are yellow, she has ammonia in her blood, > > and > > > > they > > > > > are giving her lactulose to reduce it. Her speech has been slow, > but > > > when > > > > I > > > > > saw her the other day she couldn't speak at all, hold a pen, and > has > > > not > > > > > been able to go to the bathroom by herself. She is still not > eating, > > > and > > > > > continuing to lose weight. I need to know if she is going to > rebound > > > from > > > > > this. The hepatic encephalopathy is the most troubling, because > she's > > > > > altered, confused, and in and out of it most of the time. I feel so > > bad > > > > > because if she had addressed this a year ago, she would probably be > > > > better. > > > > > Anyone here with > > > > > experience with this, or has a loved one with this, please let me > > know > > > > what > > > > > to expect. > > > > > > > > > > Sorry So Long > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 I too grew up only wearing dresses to church and always the very best I had. However, I so over that now! I wear slacks and shirts. On Wednesday and Sunday evenings, I often wear jeans and a tee or capris and a tee in warmer weather. We are very casual and I like it like that. God couldn't care less what I'm wearing, He just enjoys it when I show up! > > > Yup, and though I seemed to be rebelling at the time, I still like to dress > up and am usually one of the most dressed up people at church even today. > Many people wear shorts to our church all year long, but I usually have on > either a suit of some kind or a blazer with high heels. Jan H > > On Fri, May 14, 2010 at 6:59 PM, Gloria <gadamscan@...<gadamscan%40yahoo.ca>> > wrote: > > > Jan > > > > Absolutely agree!! Except that my brothers were sent to church on a > Sunday > > (me in the lead) and I had white patent shoes in the spring summer. So, > > there was no parent to swat us; however, I swear that we were under pain > of > > death if we misbehaved. My brothers would be more in Sunday School anyway > > and I could go back and forth. THE HATS!!! Wasn't that just a gas!! Of > > course, then there was the ultimate at Easter too. > > > > Gloria > > > > > > ________________________________ > > > > > > Gloria - motor mouth probably describes me too. If no one else is around, > > I > > talk to myself, question and answer. When the kids were little and I was > a > > single mom, I said it was the only way I could have an intelligent > > conversation. Their dad wasn't much of a talker either. > > > > My mother used to tell me how frustrated she would get when she took me > to > > church. It was our custom to dress up, even little kids, so I had a hat > > and > > gloves, black patent shoes, white socks and a frilly dress. We would go > in > > and sit down and before church would start, I would have my hat and > gloves > > off, dirty socks and dress from crawling around on the floor. I just > > couldn't sit still. There was another custom in our church. If kids > > didn't behave during church, ( and just in case, mothers sat in the back > > with younger children) they were taken outside, and given a good swat > > followed by a scream heard by everybody in the church so the other people > > would know that mother had done her job. I agree with Dave, parents were > > quicker to stop the hyper activity, but that doesn't mean we didn't have > > the > > conditioin. Jan H > > > > On Thu, May 13, 2010 at 8:17 PM, Gloria <gadamscan@...<gadamscan%40yahoo.ca>> > wrote: > > > > > Dave > > > > > > It was absolutely around when we were kids; but, like I was saying to > > Jan, > > > families dealt with it a whole site differently than today. At least, > > when > > > I was growing up, my mother was an at home mother. So rather than drug > > her > > > kids up, she just handled it. I don't know about you; but, I do > remember > > > that we were not taken to the Dr. for very much at all and so that > > brother's > > > hyperactivity was probably only spoken about once by my Mom. > > > > > > Look around when you are at a meeting. The more hyperactive a person > is, > > > the more intense they are either swing their leg or tapping on the > table > > or > > > having to get up and down. Lots of others are just slightly afflicted > > and > > > will just be moving in their seat quite often. > > > > > > When I used to suffer so bad and it seems to be coming back, I'd be the > > one > > > with a leg swinging or playing with anything on my wrist etc. I can not > > > wear a watch to this day because if they had stretching bands I'd twist > > them > > > till they broke and if they didn't, it would just annoy me too much > that > > I > > > couldn't twist. Nowadays I wear cheap beaded bracelets and if they > > break, > > > nothing much lost. For me, it gets really really bad if I'm in > > unfamiliar > > > or scary territory!! The more uncomfortable I am, the more that my > motor > > > mouth will go faster and I just stay still. I've been accused of > showing > > > anger when this happens; but, it's not, I'm simply uncomfortable. > > > > > > Geez - I even have a motor mouth when talking on e-mails, can you > imagine > > > how it is actually talking to me?? LOL > > > > > > Gloria > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > That ADHD connection to folk with addictive problems does make a lot of > > > sense..I have never though of that, or even heard the connection, but > am > > > going to look into that. I really know very little about ADHD. It is > > > interesting to me though on many levels. It is a curiosity if this was > > > around when us baby boomers were lil' and just not diagnosed, or is it > > more > > > prevelant now. If more so now I would wonder about environmental > > > connection. I'm going to research this. > > > Dave > > > > > > ________________________________ > > > From: Jan Holman <janholman@... <janholman%40gmail.com>> > > > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > > > Sent: Thu, May 13, 2010 9:07:12 PM > > > Subject: Re: Hi > > > > > > > > > When my children were in school, they spent about half the years in > > > church/Christian schools. We were moving my oldest daughter's school > and > > > everybody available was asked to help. Our family was assigned to pack > up > > > the books in the library. In the car, my oldest daughter told her > little > > > brother who had not been diagnosed yet, but had severe adhd, " don't be > > > normal today, act nice " It was embarrassing especially for her when he > > > would act out the adhd. My main frustration was when I had to tell him > to > > > do something. I couldn't tell him to take his winter outerwear off, I > had > > > to tell him to take off his mittens, take off his scarf, take off his > > hat, > > > take off his boots, take off his jacket and if he had them on to take > off > > > his snow pants, and then we went through the whole thing again when he > > was > > > supposed to put them away. Otherwise, I found him very interesting > > because > > > he was so curious about everything and always asking questions and > > > exploring > > > things like the inside of computer disks (remember the old ones). I > would > > > have like to have looked myself, but couldn't bring myself to tear > apart > > > something I had paid for and could still use. He also brought home an > old > > > calculator he found on the street and tore it apart. I have taken the > > adult > > > tests online and show as having add. It explains a lot of things which > > > happened in my life. I was impulsive. Didn't live up to my intellectual > > > potential, and other things I don't care to discuss here. I have 2 or 3 > > > grandsons I am sure have add at least if not adhd, one has been > diagnosed > > > but they aren't getting treatment because their parents, including the > > son > > > who has it, don't believe in it. When my son was on medication, it was > so > > > much easier to deal with him, he did better in school, didn't get so > > > frustrated, but he didn't like that slowed down feeling and when it > came > > > time for him to decide for himself, he refused the meds. > > > > > > Gloria, just so you know, you haven't annoyed everybody here. Jan H > > > > > > On Thu, May 13, 2010 at 6:06 PM, Gloria <gadamscan@...<gadamscan%40yahoo.ca> > > > > wrote: > > > > > > > Diane > > > > > > > > However, there would be nothing you could do about his drinking > anyway. > > > > It's always got to be up to the person that is addicted. > > > > > > > > Do you know, that a very high percentage of especially alcoholics, > > would > > > > also be diagnosed as ADHD. It's fun in a meeting to look around at > all > > > the > > > > " sober " ADHD people. You can even tell if they are low level or high > > > level. > > > > Before I was put on beta blockers, my ADHD would get so bad that it > > > annoyed > > > > me. Therefore, by that time, I'd already annoyed everyone around me > LOL > > > > I finally learned to do a simple meditation in order to slow myself > > down, > > > so > > > > I don't believe that I'm so bad now. > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > I think some people have to worry more about alcoholism than others. > I > > > > have > > > > a son who has adhd, won't take medication but drinks too much when he > > has > > > > the money. His father doesn't drink because his father was an > alcoholic > > > > and > > > > he could see himself starting to go down that road too. And there is > > also > > > > a > > > > great grandfather on that side of his family who was an alcoholic. My > > > > great > > > > grandfather and one of my brothers were/are alcoholics, so it really > > > > concerns me that my son drinks what is more than social drinking. And > > now > > > > with the genetic link to cirrhosis, he really has a triple whammy > ready > > > to > > > > hit him. Jan H > > > > > > > > On Wed, May 12, 2010 at 8:56 PM, Gloria <gadamscan@...<gadamscan%40yahoo.ca> > > > > > wrote: > > > > > > > > > Gehri > > > > > > > > > > I have to agree with Dave on all he has said!! > > > > > > > > > > The most horrible thing about alcoholism etc., is what it actually > > does > > > > to > > > > > those around that person. Even as a recovering alcoholic myself, I > > > > > occasionally get frustrated that others can not seem to find a good > > > > enough > > > > > reason to put the addiction aside and get the necessary help. Then, > > > > > hopefully, they would do it before getting as sick as your sister > is > > > now. > > > > > I'll just pray that she rallies from this and actually realizes how > > > much > > > > > you love her!!! It's definitely a difficult path for you, with no > > > doubt. > > > > > > > > > > Even at the level that your sister is at right now, there is a > whole > > > lot > > > > of > > > > > hope!! The hospital will fight hard to get this under control and > > > she'll > > > > > rebound, even though likely she will have to entirely change her > > > > lifestyle, > > > > > diet and all!! But the proof that it is absolutely possible, is in > > the > > > > > stories of a number of people in this site. I know for sure that I > am > > > > > honoured and awed by the fighting spirit here. I also feel sooo > > > grateful > > > > > that at this point, it appears that I may not have to lose my liver > > to > > > > > cirrhosis because of some top-notch help from the medical > community. > > > > > > > > > > Please, let us know how it is going for you, as well as your > sister. > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > She may have varices, but I have it and experience no pain from > > > it..even > > > > > when I've had bleeds I had no pain..others may be different > > > perhaps..her > > > > > pain may be from as- cites..hopefully they will get her amonia > levels > > > > down > > > > > and some clarity will return....others here have experience with > > > > > encephalopathy and can offer good advice..I would think much of her > > > > problems > > > > > are being caused by that..hang in there..peace and comfort to you > > all, > > > > > Dave > > > > > > > > > > ________________________________ > > > > > From: Gehren Standberry <sisterlockqueen319@...<sisterlockqueen319%40yahoo.com> > > > > > > > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > > > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > > > > drinking a month or so before she fell ill. She is not at the point > > to > > > > do > > > > > the healthly lifestyle thing, as she's still in the hospital very > > sick > > > > and > > > > > not able to go to the bathroom on her own, hold her own cup, > > > > > walk...anything. She has been sick for a long time, but wouldn't go > > see > > > > > about it. This is her first hospitalization with this, and I'm just > > > > praying > > > > > she will be able to walk out of there, not die there. She was in > > denial > > > > > that something was wrong for so long, but if she had just gone > > earlier, > > > > she > > > > > may have been able to stop drinking, eat better, etc. Right now, I > > just > > > > > don't know. As of a few hours ago, her daughter told me they were > > > taking > > > > > her to x-ray her stomach to see why she's in so much pain...I pray > > it's > > > > not > > > > > varicies. You hang in there, too. I can only imagine the road > you've > > > > > traveled with this disease, and I hope you will be able to live a > > > > > productive, > > > > > healthier life. > > > > > > > > > > Blessings, > > > > > Gehri > > > > > > > > > > ____________ _________ _________ __ > > > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > I am sad for your sister and you. So far I have not developed > > > encephalop > > > > > athy and hope I do not..It is my greatest fear with this disease. > > ..it > > > > > seems many, perhaps most, who drink actively do bounce back from > > > > abstinance, > > > > > clean living, and the benefits of taking med's properly, eating > > proper, > > > > etc. > > > > > Hopefully she will quit drinking..likely she will improve if she > > does, > > > > but > > > > > for sure she will continue getting worse if she does not..hang in > > there > > > > > Gehri. She is lucky to have a caring sibling that is being there > for > > > > her. > > > > > Ultimately that is about all you can do, being there. The rest is > up > > to > > > > > her. > > > > > Dave > > > > > > > > > > ____________ _________ _________ __ > > > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > > > Subject: Hi > > > > > > > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > > > > diagnosed > > > > > with Cirrhosis from alcohol. She is very sick, and I don't know > what > > to > > > > > expect. She actually has not looked well for over a year, she's > lost > > a > > > > lot > > > > > of weight, tired all of the time, complained of stomach pain and > > > > > constipation. Finally, a trip to urgent care led to the er, which > led > > > to > > > > > hospitalization. Her eyes are yellow, she has ammonia in her blood, > > and > > > > they > > > > > are giving her lactulose to reduce it. Her speech has been slow, > but > > > when > > > > I > > > > > saw her the other day she couldn't speak at all, hold a pen, and > has > > > not > > > > > been able to go to the bathroom by herself. She is still not > eating, > > > and > > > > > continuing to lose weight. I need to know if she is going to > rebound > > > from > > > > > this. The hepatic encephalopathy is the most troubling, because > she's > > > > > altered, confused, and in and out of it most of the time. I feel so > > bad > > > > > because if she had addressed this a year ago, she would probably be > > > > better. > > > > > Anyone here with > > > > > experience with this, or has a loved one with this, please let me > > know > > > > what > > > > > to expect. > > > > > > > > > > Sorry So Long > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 Diane - I know God doesn't care what we wear, but the idea of showing respect to him by dressing as nicely as possible is so engrained in me, it would be hard not to dress up. Besides, I love dressing up. I dress up to go to the doctor. I also was dressing up when I had to go into the food stamp office to apply, and someone told me I shouldn't do that because they give you more and faster if you look as if you really need it. For me, it is to help my self confidence to look my best when I have that type of appointment. I could care less what anyone else is wearing, but I feel best dressed up. Jan On Fri, May 14, 2010 at 9:11 PM, Diane Chandler <diane.chandler.75@... > wrote: > I too grew up only wearing dresses to church and always the very best I > had. However, I so over that now! I wear slacks and shirts. On Wednesday > and Sunday evenings, I often wear jeans and a tee or capris and a tee in > warmer weather. We are very casual and I like it like that. God couldn't > care less what I'm wearing, He just enjoys it when I show up! > > > > > > > > > > > > Yup, and though I seemed to be rebelling at the time, I still like to > dress > > up and am usually one of the most dressed up people at church even today. > > Many people wear shorts to our church all year long, but I usually have > on > > either a suit of some kind or a blazer with high heels. Jan H > > > > On Fri, May 14, 2010 at 6:59 PM, Gloria <gadamscan@... > <gadamscan%40yahoo.ca>> > > wrote: > > > > > Jan > > > > > > Absolutely agree!! Except that my brothers were sent to church on a > > Sunday > > > (me in the lead) and I had white patent shoes in the spring summer. So, > > > there was no parent to swat us; however, I swear that we were under > pain > > of > > > death if we misbehaved. My brothers would be more in Sunday School > anyway > > > and I could go back and forth. THE HATS!!! Wasn't that just a gas!! Of > > > course, then there was the ultimate at Easter too. > > > > > > Gloria > > > > > > > > > ________________________________ > > > > > > > > > Gloria - motor mouth probably describes me too. If no one else is > around, > > > I > > > talk to myself, question and answer. When the kids were little and I > was > > a > > > single mom, I said it was the only way I could have an intelligent > > > conversation. Their dad wasn't much of a talker either. > > > > > > My mother used to tell me how frustrated she would get when she took me > > to > > > church. It was our custom to dress up, even little kids, so I had a hat > > > and > > > gloves, black patent shoes, white socks and a frilly dress. We would go > > in > > > and sit down and before church would start, I would have my hat and > > gloves > > > off, dirty socks and dress from crawling around on the floor. I just > > > couldn't sit still. There was another custom in our church. If kids > > > didn't behave during church, ( and just in case, mothers sat in the > back > > > with younger children) they were taken outside, and given a good swat > > > followed by a scream heard by everybody in the church so the other > people > > > would know that mother had done her job. I agree with Dave, parents > were > > > quicker to stop the hyper activity, but that doesn't mean we didn't > have > > > the > > > conditioin. Jan H > > > > > > On Thu, May 13, 2010 at 8:17 PM, Gloria <gadamscan@... > <gadamscan%40yahoo.ca>> > > wrote: > > > > > > > Dave > > > > > > > > It was absolutely around when we were kids; but, like I was saying to > > > Jan, > > > > families dealt with it a whole site differently than today. At least, > > > when > > > > I was growing up, my mother was an at home mother. So rather than > drug > > > her > > > > kids up, she just handled it. I don't know about you; but, I do > > remember > > > > that we were not taken to the Dr. for very much at all and so that > > > brother's > > > > hyperactivity was probably only spoken about once by my Mom. > > > > > > > > Look around when you are at a meeting. The more hyperactive a person > > is, > > > > the more intense they are either swing their leg or tapping on the > > table > > > or > > > > having to get up and down. Lots of others are just slightly afflicted > > > and > > > > will just be moving in their seat quite often. > > > > > > > > When I used to suffer so bad and it seems to be coming back, I'd be > the > > > one > > > > with a leg swinging or playing with anything on my wrist etc. I can > not > > > > wear a watch to this day because if they had stretching bands I'd > twist > > > them > > > > till they broke and if they didn't, it would just annoy me too much > > that > > > I > > > > couldn't twist. Nowadays I wear cheap beaded bracelets and if they > > > break, > > > > nothing much lost. For me, it gets really really bad if I'm in > > > unfamiliar > > > > or scary territory!! The more uncomfortable I am, the more that my > > motor > > > > mouth will go faster and I just stay still. I've been accused of > > showing > > > > anger when this happens; but, it's not, I'm simply uncomfortable. > > > > > > > > Geez - I even have a motor mouth when talking on e-mails, can you > > imagine > > > > how it is actually talking to me?? LOL > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > That ADHD connection to folk with addictive problems does make a lot > of > > > > sense..I have never though of that, or even heard the connection, but > > am > > > > going to look into that. I really know very little about ADHD. It is > > > > interesting to me though on many levels. It is a curiosity if this > was > > > > around when us baby boomers were lil' and just not diagnosed, or is > it > > > more > > > > prevelant now. If more so now I would wonder about environmental > > > > connection. I'm going to research this. > > > > Dave > > > > > > > > ________________________________ > > > > From: Jan Holman <janholman@... <janholman%40gmail.com>> > > > > To: livercirrhosissupport <livercirrhosissupport% > 40yahoogroups.com> > > > > Sent: Thu, May 13, 2010 9:07:12 PM > > > > Subject: Re: Hi > > > > > > > > > > > > When my children were in school, they spent about half the years in > > > > church/Christian schools. We were moving my oldest daughter's school > > and > > > > everybody available was asked to help. Our family was assigned to > pack > > up > > > > the books in the library. In the car, my oldest daughter told her > > little > > > > brother who had not been diagnosed yet, but had severe adhd, " don't > be > > > > normal today, act nice " It was embarrassing especially for her when > he > > > > would act out the adhd. My main frustration was when I had to tell > him > > to > > > > do something. I couldn't tell him to take his winter outerwear off, I > > had > > > > to tell him to take off his mittens, take off his scarf, take off his > > > hat, > > > > take off his boots, take off his jacket and if he had them on to take > > off > > > > his snow pants, and then we went through the whole thing again when > he > > > was > > > > supposed to put them away. Otherwise, I found him very interesting > > > because > > > > he was so curious about everything and always asking questions and > > > > exploring > > > > things like the inside of computer disks (remember the old ones). I > > would > > > > have like to have looked myself, but couldn't bring myself to tear > > apart > > > > something I had paid for and could still use. He also brought home an > > old > > > > calculator he found on the street and tore it apart. I have taken the > > > adult > > > > tests online and show as having add. It explains a lot of things > which > > > > happened in my life. I was impulsive. Didn't live up to my > intellectual > > > > potential, and other things I don't care to discuss here. I have 2 or > 3 > > > > grandsons I am sure have add at least if not adhd, one has been > > diagnosed > > > > but they aren't getting treatment because their parents, including > the > > > son > > > > who has it, don't believe in it. When my son was on medication, it > was > > so > > > > much easier to deal with him, he did better in school, didn't get so > > > > frustrated, but he didn't like that slowed down feeling and when it > > came > > > > time for him to decide for himself, he refused the meds. > > > > > > > > Gloria, just so you know, you haven't annoyed everybody here. Jan H > > > > > > > > On Thu, May 13, 2010 at 6:06 PM, Gloria <gadamscan@... > <gadamscan%40yahoo.ca> > > > > > > wrote: > > > > > > > > > Diane > > > > > > > > > > However, there would be nothing you could do about his drinking > > anyway. > > > > > It's always got to be up to the person that is addicted. > > > > > > > > > > Do you know, that a very high percentage of especially alcoholics, > > > would > > > > > also be diagnosed as ADHD. It's fun in a meeting to look around at > > all > > > > the > > > > > " sober " ADHD people. You can even tell if they are low level or > high > > > > level. > > > > > Before I was put on beta blockers, my ADHD would get so bad that it > > > > annoyed > > > > > me. Therefore, by that time, I'd already annoyed everyone around me > > LOL > > > > > I finally learned to do a simple meditation in order to slow myself > > > down, > > > > so > > > > > I don't believe that I'm so bad now. > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > I think some people have to worry more about alcoholism than > others. > > I > > > > > have > > > > > a son who has adhd, won't take medication but drinks too much when > he > > > has > > > > > the money. His father doesn't drink because his father was an > > alcoholic > > > > > and > > > > > he could see himself starting to go down that road too. And there > is > > > also > > > > > a > > > > > great grandfather on that side of his family who was an alcoholic. > My > > > > > great > > > > > grandfather and one of my brothers were/are alcoholics, so it > really > > > > > concerns me that my son drinks what is more than social drinking. > And > > > now > > > > > with the genetic link to cirrhosis, he really has a triple whammy > > ready > > > > to > > > > > hit him. Jan H > > > > > > > > > > On Wed, May 12, 2010 at 8:56 PM, Gloria <gadamscan@... > <gadamscan%40yahoo.ca> > > > > > > > wrote: > > > > > > > > > > > Gehri > > > > > > > > > > > > I have to agree with Dave on all he has said!! > > > > > > > > > > > > The most horrible thing about alcoholism etc., is what it > actually > > > does > > > > > to > > > > > > those around that person. Even as a recovering alcoholic myself, > I > > > > > > occasionally get frustrated that others can not seem to find a > good > > > > > enough > > > > > > reason to put the addiction aside and get the necessary help. > Then, > > > > > > hopefully, they would do it before getting as sick as your sister > > is > > > > now. > > > > > > I'll just pray that she rallies from this and actually realizes > how > > > > much > > > > > > you love her!!! It's definitely a difficult path for you, with no > > > > doubt. > > > > > > > > > > > > Even at the level that your sister is at right now, there is a > > whole > > > > lot > > > > > of > > > > > > hope!! The hospital will fight hard to get this under control and > > > > she'll > > > > > > rebound, even though likely she will have to entirely change her > > > > > lifestyle, > > > > > > diet and all!! But the proof that it is absolutely possible, is > in > > > the > > > > > > stories of a number of people in this site. I know for sure that > I > > am > > > > > > honoured and awed by the fighting spirit here. I also feel sooo > > > > grateful > > > > > > that at this point, it appears that I may not have to lose my > liver > > > to > > > > > > cirrhosis because of some top-notch help from the medical > > community. > > > > > > > > > > > > Please, let us know how it is going for you, as well as your > > sister. > > > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > > > > She may have varices, but I have it and experience no pain from > > > > it..even > > > > > > when I've had bleeds I had no pain..others may be different > > > > perhaps..her > > > > > > pain may be from as- cites..hopefully they will get her amonia > > levels > > > > > down > > > > > > and some clarity will return....others here have experience with > > > > > > encephalopathy and can offer good advice..I would think much of > her > > > > > problems > > > > > > are being caused by that..hang in there..peace and comfort to you > > > all, > > > > > > Dave > > > > > > > > > > > > ________________________________ > > > > > > From: Gehren Standberry <sisterlockqueen319@... > <sisterlockqueen319%40yahoo.com> > > > > > > > > > To: livercirrhosissupport <livercirrhosissupport% > 40yahoogroups.com> > > > > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > > > > > drinking a month or so before she fell ill. She is not at the > point > > > to > > > > > do > > > > > > the healthly lifestyle thing, as she's still in the hospital very > > > sick > > > > > and > > > > > > not able to go to the bathroom on her own, hold her own cup, > > > > > > walk...anything. She has been sick for a long time, but wouldn't > go > > > see > > > > > > about it. This is her first hospitalization with this, and I'm > just > > > > > praying > > > > > > she will be able to walk out of there, not die there. She was in > > > denial > > > > > > that something was wrong for so long, but if she had just gone > > > earlier, > > > > > she > > > > > > may have been able to stop drinking, eat better, etc. Right now, > I > > > just > > > > > > don't know. As of a few hours ago, her daughter told me they were > > > > taking > > > > > > her to x-ray her stomach to see why she's in so much pain...I > pray > > > it's > > > > > not > > > > > > varicies. You hang in there, too. I can only imagine the road > > you've > > > > > > traveled with this disease, and I hope you will be able to live a > > > > > > productive, > > > > > > healthier life. > > > > > > > > > > > > Blessings, > > > > > > Gehri > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > > > > I am sad for your sister and you. So far I have not developed > > > > encephalop > > > > > > athy and hope I do not..It is my greatest fear with this disease. > > > ..it > > > > > > seems many, perhaps most, who drink actively do bounce back from > > > > > abstinance, > > > > > > clean living, and the benefits of taking med's properly, eating > > > proper, > > > > > etc. > > > > > > Hopefully she will quit drinking..likely she will improve if she > > > does, > > > > > but > > > > > > for sure she will continue getting worse if she does not..hang in > > > there > > > > > > Gehri. She is lucky to have a caring sibling that is being there > > for > > > > > her. > > > > > > Ultimately that is about all you can do, being there. The rest is > > up > > > to > > > > > > her. > > > > > > Dave > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > > > > Subject: Hi > > > > > > > > > > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > > > > > diagnosed > > > > > > with Cirrhosis from alcohol. She is very sick, and I don't know > > what > > > to > > > > > > expect. She actually has not looked well for over a year, she's > > lost > > > a > > > > > lot > > > > > > of weight, tired all of the time, complained of stomach pain and > > > > > > constipation. Finally, a trip to urgent care led to the er, which > > led > > > > to > > > > > > hospitalization. Her eyes are yellow, she has ammonia in her > blood, > > > and > > > > > they > > > > > > are giving her lactulose to reduce it. Her speech has been slow, > > but > > > > when > > > > > I > > > > > > saw her the other day she couldn't speak at all, hold a pen, and > > has > > > > not > > > > > > been able to go to the bathroom by herself. She is still not > > eating, > > > > and > > > > > > continuing to lose weight. I need to know if she is going to > > rebound > > > > from > > > > > > this. The hepatic encephalopathy is the most troubling, because > > she's > > > > > > altered, confused, and in and out of it most of the time. I feel > so > > > bad > > > > > > because if she had addressed this a year ago, she would probably > be > > > > > better. > > > > > > Anyone here with > > > > > > experience with this, or has a loved one with this, please let me > > > know > > > > > what > > > > > > to expect. > > > > > > > > > > > > Sorry So Long > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 To me, that's what the whole church experience is all about anyway, feeling as close to the Lord as you can and feeling Him close to you. That's why I like my church. Everyone does their own thing and no one gets offended. At my former church (the church where I was raised), if a woman came into the service with a pair of dress slacks and a nice blouse and blazer, she was considered as 'inappropriately dressed' as if she had entered in cut off blue jeans and a halter top! I say wear what makes you feel closest to the Lord, keeping modest and remembering where you are. I have seen women enter the sanctuary of the church in dresses that wouldn't have been considered decent in a nightclub! > > > Diane - I know God doesn't care what we wear, but the idea of showing > respect to him by dressing as nicely as possible is so engrained in me, it > would be hard not to dress up. Besides, I love dressing up. I dress up to > go to the doctor. I also was dressing up when I had to go into the food > stamp office to apply, and someone told me I shouldn't do that because they > give you more and faster if you look as if you really need it. For me, it > is to help my self confidence to look my best when I have that type of > appointment. I could care less what anyone else is wearing, but I feel best > dressed up. Jan > > On Fri, May 14, 2010 at 9:11 PM, Diane Chandler < > diane.chandler.75@... <diane.chandler.75%40gmail.com> > > wrote: > > > I too grew up only wearing dresses to church and always the very best I > > had. However, I so over that now! I wear slacks and shirts. On Wednesday > > and Sunday evenings, I often wear jeans and a tee or capris and a tee in > > warmer weather. We are very casual and I like it like that. God couldn't > > care less what I'm wearing, He just enjoys it when I show up! > > > > > > > > > > On Fri, May 14, 2010 at 10:03 PM, Jan Holman <janholman@...<janholman%40gmail.com>> > wrote: > > > > > > > > > > > Yup, and though I seemed to be rebelling at the time, I still like to > > dress > > > up and am usually one of the most dressed up people at church even > today. > > > Many people wear shorts to our church all year long, but I usually have > > on > > > either a suit of some kind or a blazer with high heels. Jan H > > > > > > On Fri, May 14, 2010 at 6:59 PM, Gloria <gadamscan@...<gadamscan%40yahoo.ca> > > <gadamscan%40yahoo.ca>> > > > wrote: > > > > > > > Jan > > > > > > > > Absolutely agree!! Except that my brothers were sent to church on a > > > Sunday > > > > (me in the lead) and I had white patent shoes in the spring summer. > So, > > > > there was no parent to swat us; however, I swear that we were under > > pain > > > of > > > > death if we misbehaved. My brothers would be more in Sunday School > > anyway > > > > and I could go back and forth. THE HATS!!! Wasn't that just a gas!! > Of > > > > course, then there was the ultimate at Easter too. > > > > > > > > Gloria > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > Gloria - motor mouth probably describes me too. If no one else is > > around, > > > > I > > > > talk to myself, question and answer. When the kids were little and I > > was > > > a > > > > single mom, I said it was the only way I could have an intelligent > > > > conversation. Their dad wasn't much of a talker either. > > > > > > > > My mother used to tell me how frustrated she would get when she took > me > > > to > > > > church. It was our custom to dress up, even little kids, so I had a > hat > > > > and > > > > gloves, black patent shoes, white socks and a frilly dress. We would > go > > > in > > > > and sit down and before church would start, I would have my hat and > > > gloves > > > > off, dirty socks and dress from crawling around on the floor. I just > > > > couldn't sit still. There was another custom in our church. If kids > > > > didn't behave during church, ( and just in case, mothers sat in the > > back > > > > with younger children) they were taken outside, and given a good swat > > > > followed by a scream heard by everybody in the church so the other > > people > > > > would know that mother had done her job. I agree with Dave, parents > > were > > > > quicker to stop the hyper activity, but that doesn't mean we didn't > > have > > > > the > > > > conditioin. Jan H > > > > > > > > On Thu, May 13, 2010 at 8:17 PM, Gloria <gadamscan@...<gadamscan%40yahoo.ca> > > <gadamscan%40yahoo.ca>> > > > wrote: > > > > > > > > > Dave > > > > > > > > > > It was absolutely around when we were kids; but, like I was saying > to > > > > Jan, > > > > > families dealt with it a whole site differently than today. At > least, > > > > when > > > > > I was growing up, my mother was an at home mother. So rather than > > drug > > > > her > > > > > kids up, she just handled it. I don't know about you; but, I do > > > remember > > > > > that we were not taken to the Dr. for very much at all and so that > > > > brother's > > > > > hyperactivity was probably only spoken about once by my Mom. > > > > > > > > > > Look around when you are at a meeting. The more hyperactive a > person > > > is, > > > > > the more intense they are either swing their leg or tapping on the > > > table > > > > or > > > > > having to get up and down. Lots of others are just slightly > afflicted > > > > and > > > > > will just be moving in their seat quite often. > > > > > > > > > > When I used to suffer so bad and it seems to be coming back, I'd be > > the > > > > one > > > > > with a leg swinging or playing with anything on my wrist etc. I can > > not > > > > > wear a watch to this day because if they had stretching bands I'd > > twist > > > > them > > > > > till they broke and if they didn't, it would just annoy me too much > > > that > > > > I > > > > > couldn't twist. Nowadays I wear cheap beaded bracelets and if they > > > > break, > > > > > nothing much lost. For me, it gets really really bad if I'm in > > > > unfamiliar > > > > > or scary territory!! The more uncomfortable I am, the more that my > > > motor > > > > > mouth will go faster and I just stay still. I've been accused of > > > showing > > > > > anger when this happens; but, it's not, I'm simply uncomfortable. > > > > > > > > > > Geez - I even have a motor mouth when talking on e-mails, can you > > > imagine > > > > > how it is actually talking to me?? LOL > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > That ADHD connection to folk with addictive problems does make a > lot > > of > > > > > sense..I have never though of that, or even heard the connection, > but > > > am > > > > > going to look into that. I really know very little about ADHD. It > is > > > > > interesting to me though on many levels. It is a curiosity if this > > was > > > > > around when us baby boomers were lil' and just not diagnosed, or is > > it > > > > more > > > > > prevelant now. If more so now I would wonder about environmental > > > > > connection. I'm going to research this. > > > > > Dave > > > > > > > > > > ________________________________ > > > > > From: Jan Holman <janholman@... <janholman%40gmail.com><janholman% > 40gmail.com>> > > > > > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > <livercirrhosissupport% > > 40yahoogroups.com> > > > > > Sent: Thu, May 13, 2010 9:07:12 PM > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > When my children were in school, they spent about half the years in > > > > > church/Christian schools. We were moving my oldest daughter's > school > > > and > > > > > everybody available was asked to help. Our family was assigned to > > pack > > > up > > > > > the books in the library. In the car, my oldest daughter told her > > > little > > > > > brother who had not been diagnosed yet, but had severe adhd, " don't > > be > > > > > normal today, act nice " It was embarrassing especially for her when > > he > > > > > would act out the adhd. My main frustration was when I had to tell > > him > > > to > > > > > do something. I couldn't tell him to take his winter outerwear off, > I > > > had > > > > > to tell him to take off his mittens, take off his scarf, take off > his > > > > hat, > > > > > take off his boots, take off his jacket and if he had them on to > take > > > off > > > > > his snow pants, and then we went through the whole thing again when > > he > > > > was > > > > > supposed to put them away. Otherwise, I found him very interesting > > > > because > > > > > he was so curious about everything and always asking questions and > > > > > exploring > > > > > things like the inside of computer disks (remember the old ones). I > > > would > > > > > have like to have looked myself, but couldn't bring myself to tear > > > apart > > > > > something I had paid for and could still use. He also brought home > an > > > old > > > > > calculator he found on the street and tore it apart. I have taken > the > > > > adult > > > > > tests online and show as having add. It explains a lot of things > > which > > > > > happened in my life. I was impulsive. Didn't live up to my > > intellectual > > > > > potential, and other things I don't care to discuss here. I have 2 > or > > 3 > > > > > grandsons I am sure have add at least if not adhd, one has been > > > diagnosed > > > > > but they aren't getting treatment because their parents, including > > the > > > > son > > > > > who has it, don't believe in it. When my son was on medication, it > > was > > > so > > > > > much easier to deal with him, he did better in school, didn't get > so > > > > > frustrated, but he didn't like that slowed down feeling and when it > > > came > > > > > time for him to decide for himself, he refused the meds. > > > > > > > > > > Gloria, just so you know, you haven't annoyed everybody here. Jan H > > > > > > > > > > On Thu, May 13, 2010 at 6:06 PM, Gloria <gadamscan@...<gadamscan%40yahoo.ca> > > <gadamscan%40yahoo.ca> > > > > > > > > wrote: > > > > > > > > > > > Diane > > > > > > > > > > > > However, there would be nothing you could do about his drinking > > > anyway. > > > > > > It's always got to be up to the person that is addicted. > > > > > > > > > > > > Do you know, that a very high percentage of especially > alcoholics, > > > > would > > > > > > also be diagnosed as ADHD. It's fun in a meeting to look around > at > > > all > > > > > the > > > > > > " sober " ADHD people. You can even tell if they are low level or > > high > > > > > level. > > > > > > Before I was put on beta blockers, my ADHD would get so bad that > it > > > > > annoyed > > > > > > me. Therefore, by that time, I'd already annoyed everyone around > me > > > LOL > > > > > > I finally learned to do a simple meditation in order to slow > myself > > > > down, > > > > > so > > > > > > I don't believe that I'm so bad now. > > > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > > > > I think some people have to worry more about alcoholism than > > others. > > > I > > > > > > have > > > > > > a son who has adhd, won't take medication but drinks too much > when > > he > > > > has > > > > > > the money. His father doesn't drink because his father was an > > > alcoholic > > > > > > and > > > > > > he could see himself starting to go down that road too. And there > > is > > > > also > > > > > > a > > > > > > great grandfather on that side of his family who was an > alcoholic. > > My > > > > > > great > > > > > > grandfather and one of my brothers were/are alcoholics, so it > > really > > > > > > concerns me that my son drinks what is more than social drinking. > > And > > > > now > > > > > > with the genetic link to cirrhosis, he really has a triple whammy > > > ready > > > > > to > > > > > > hit him. Jan H > > > > > > > > > > > > On Wed, May 12, 2010 at 8:56 PM, Gloria < > gadamscan@... <gadamscan%40yahoo.ca> > > <gadamscan%40yahoo.ca> > > > > > > > > > wrote: > > > > > > > > > > > > > Gehri > > > > > > > > > > > > > > I have to agree with Dave on all he has said!! > > > > > > > > > > > > > > The most horrible thing about alcoholism etc., is what it > > actually > > > > does > > > > > > to > > > > > > > those around that person. Even as a recovering alcoholic > myself, > > I > > > > > > > occasionally get frustrated that others can not seem to find a > > good > > > > > > enough > > > > > > > reason to put the addiction aside and get the necessary help. > > Then, > > > > > > > hopefully, they would do it before getting as sick as your > sister > > > is > > > > > now. > > > > > > > I'll just pray that she rallies from this and actually realizes > > how > > > > > much > > > > > > > you love her!!! It's definitely a difficult path for you, with > no > > > > > doubt. > > > > > > > > > > > > > > Even at the level that your sister is at right now, there is a > > > whole > > > > > lot > > > > > > of > > > > > > > hope!! The hospital will fight hard to get this under control > and > > > > > she'll > > > > > > > rebound, even though likely she will have to entirely change > her > > > > > > lifestyle, > > > > > > > diet and all!! But the proof that it is absolutely possible, is > > in > > > > the > > > > > > > stories of a number of people in this site. I know for sure > that > > I > > > am > > > > > > > honoured and awed by the fighting spirit here. I also feel sooo > > > > > grateful > > > > > > > that at this point, it appears that I may not have to lose my > > liver > > > > to > > > > > > > cirrhosis because of some top-notch help from the medical > > > community. > > > > > > > > > > > > > > Please, let us know how it is going for you, as well as your > > > sister. > > > > > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > > > > > > > She may have varices, but I have it and experience no pain from > > > > > it..even > > > > > > > when I've had bleeds I had no pain..others may be different > > > > > perhaps..her > > > > > > > pain may be from as- cites..hopefully they will get her amonia > > > levels > > > > > > down > > > > > > > and some clarity will return....others here have experience > with > > > > > > > encephalopathy and can offer good advice..I would think much of > > her > > > > > > problems > > > > > > > are being caused by that..hang in there..peace and comfort to > you > > > > all, > > > > > > > Dave > > > > > > > > > > > > > > ________________________________ > > > > > > > From: Gehren Standberry <sisterlockqueen319@...<sisterlockqueen319%40yahoo.com> > > <sisterlockqueen319%40yahoo.com> > > > > > > > > > > > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > <livercirrhosissupport% > > 40yahoogroups.com> > > > > > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually > stopped > > > > > > > drinking a month or so before she fell ill. She is not at the > > point > > > > to > > > > > > do > > > > > > > the healthly lifestyle thing, as she's still in the hospital > very > > > > sick > > > > > > and > > > > > > > not able to go to the bathroom on her own, hold her own cup, > > > > > > > walk...anything. She has been sick for a long time, but > wouldn't > > go > > > > see > > > > > > > about it. This is her first hospitalization with this, and I'm > > just > > > > > > praying > > > > > > > she will be able to walk out of there, not die there. She was > in > > > > denial > > > > > > > that something was wrong for so long, but if she had just gone > > > > earlier, > > > > > > she > > > > > > > may have been able to stop drinking, eat better, etc. Right > now, > > I > > > > just > > > > > > > don't know. As of a few hours ago, her daughter told me they > were > > > > > taking > > > > > > > her to x-ray her stomach to see why she's in so much pain...I > > pray > > > > it's > > > > > > not > > > > > > > varicies. You hang in there, too. I can only imagine the road > > > you've > > > > > > > traveled with this disease, and I hope you will be able to live > a > > > > > > > productive, > > > > > > > healthier life. > > > > > > > > > > > > > > Blessings, > > > > > > > Gehri > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > > > > > > > I am sad for your sister and you. So far I have not developed > > > > > encephalop > > > > > > > athy and hope I do not..It is my greatest fear with this > disease. > > > > ..it > > > > > > > seems many, perhaps most, who drink actively do bounce back > from > > > > > > abstinance, > > > > > > > clean living, and the benefits of taking med's properly, eating > > > > proper, > > > > > > etc. > > > > > > > Hopefully she will quit drinking..likely she will improve if > she > > > > does, > > > > > > but > > > > > > > for sure she will continue getting worse if she does not..hang > in > > > > there > > > > > > > Gehri. She is lucky to have a caring sibling that is being > there > > > for > > > > > > her. > > > > > > > Ultimately that is about all you can do, being there. The rest > is > > > up > > > > to > > > > > > > her. > > > > > > > Dave > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > > > > > Subject: Hi > > > > > > > > > > > > > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized > and > > > > > > diagnosed > > > > > > > with Cirrhosis from alcohol. She is very sick, and I don't know > > > what > > > > to > > > > > > > expect. She actually has not looked well for over a year, she's > > > lost > > > > a > > > > > > lot > > > > > > > of weight, tired all of the time, complained of stomach pain > and > > > > > > > constipation. Finally, a trip to urgent care led to the er, > which > > > led > > > > > to > > > > > > > hospitalization. Her eyes are yellow, she has ammonia in her > > blood, > > > > and > > > > > > they > > > > > > > are giving her lactulose to reduce it. Her speech has been > slow, > > > but > > > > > when > > > > > > I > > > > > > > saw her the other day she couldn't speak at all, hold a pen, > and > > > has > > > > > not > > > > > > > been able to go to the bathroom by herself. She is still not > > > eating, > > > > > and > > > > > > > continuing to lose weight. I need to know if she is going to > > > rebound > > > > > from > > > > > > > this. The hepatic encephalopathy is the most troubling, because > > > she's > > > > > > > altered, confused, and in and out of it most of the time. I > feel > > so > > > > bad > > > > > > > because if she had addressed this a year ago, she would > probably > > be > > > > > > better. > > > > > > > Anyone here with > > > > > > > experience with this, or has a loved one with this, please let > me > > > > know > > > > > > what > > > > > > > to expect. > > > > > > > > > > > > > > Sorry So Long > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 Amen Jan On Fri, May 14, 2010 at 9:58 PM, Diane Chandler <diane.chandler.75@... > wrote: > To me, that's what the whole church experience is all about anyway, feeling > as close to the Lord as you can and feeling Him close to you. That's why I > like my church. Everyone does their own thing and no one gets offended. > At > my former church (the church where I was raised), if a woman came into the > service with a pair of dress slacks and a nice blouse and blazer, she was > considered as 'inappropriately dressed' as if she had entered in cut off > blue jeans and a halter top! I say wear what makes you feel closest to the > Lord, keeping modest and remembering where you are. I have seen women > enter > the sanctuary of the church in dresses that wouldn't have been considered > decent in a nightclub! > > > > > > > > > > > > > Diane - I know God doesn't care what we wear, but the idea of showing > > respect to him by dressing as nicely as possible is so engrained in me, > it > > would be hard not to dress up. Besides, I love dressing up. I dress up to > > go to the doctor. I also was dressing up when I had to go into the food > > stamp office to apply, and someone told me I shouldn't do that because > they > > give you more and faster if you look as if you really need it. For me, it > > is to help my self confidence to look my best when I have that type of > > appointment. I could care less what anyone else is wearing, but I feel > best > > dressed up. Jan > > > > On Fri, May 14, 2010 at 9:11 PM, Diane Chandler < > > diane.chandler.75@... <diane.chandler.75%40gmail.com> > > > wrote: > > > > > I too grew up only wearing dresses to church and always the very best I > > > had. However, I so over that now! I wear slacks and shirts. On > Wednesday > > > and Sunday evenings, I often wear jeans and a tee or capris and a tee > in > > > warmer weather. We are very casual and I like it like that. God > couldn't > > > care less what I'm wearing, He just enjoys it when I show up! > > > > > > > > > > > > > > > On Fri, May 14, 2010 at 10:03 PM, Jan Holman <janholman@... > <janholman%40gmail.com>> > > wrote: > > > > > > > > > > > > > > > Yup, and though I seemed to be rebelling at the time, I still like to > > > dress > > > > up and am usually one of the most dressed up people at church even > > today. > > > > Many people wear shorts to our church all year long, but I usually > have > > > on > > > > either a suit of some kind or a blazer with high heels. Jan H > > > > > > > > On Fri, May 14, 2010 at 6:59 PM, Gloria <gadamscan@... > <gadamscan%40yahoo.ca> > > > <gadamscan%40yahoo.ca>> > > > > wrote: > > > > > > > > > Jan > > > > > > > > > > Absolutely agree!! Except that my brothers were sent to church on a > > > > Sunday > > > > > (me in the lead) and I had white patent shoes in the spring summer. > > So, > > > > > there was no parent to swat us; however, I swear that we were under > > > pain > > > > of > > > > > death if we misbehaved. My brothers would be more in Sunday School > > > anyway > > > > > and I could go back and forth. THE HATS!!! Wasn't that just a gas!! > > Of > > > > > course, then there was the ultimate at Easter too. > > > > > > > > > > Gloria > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > Gloria - motor mouth probably describes me too. If no one else is > > > around, > > > > > I > > > > > talk to myself, question and answer. When the kids were little and > I > > > was > > > > a > > > > > single mom, I said it was the only way I could have an intelligent > > > > > conversation. Their dad wasn't much of a talker either. > > > > > > > > > > My mother used to tell me how frustrated she would get when she > took > > me > > > > to > > > > > church. It was our custom to dress up, even little kids, so I had a > > hat > > > > > and > > > > > gloves, black patent shoes, white socks and a frilly dress. We > would > > go > > > > in > > > > > and sit down and before church would start, I would have my hat and > > > > gloves > > > > > off, dirty socks and dress from crawling around on the floor. I > just > > > > > couldn't sit still. There was another custom in our church. If kids > > > > > didn't behave during church, ( and just in case, mothers sat in the > > > back > > > > > with younger children) they were taken outside, and given a good > swat > > > > > followed by a scream heard by everybody in the church so the other > > > people > > > > > would know that mother had done her job. I agree with Dave, parents > > > were > > > > > quicker to stop the hyper activity, but that doesn't mean we didn't > > > have > > > > > the > > > > > conditioin. Jan H > > > > > > > > > > On Thu, May 13, 2010 at 8:17 PM, Gloria <gadamscan@... > <gadamscan%40yahoo.ca> > > > <gadamscan%40yahoo.ca>> > > > > wrote: > > > > > > > > > > > Dave > > > > > > > > > > > > It was absolutely around when we were kids; but, like I was > saying > > to > > > > > Jan, > > > > > > families dealt with it a whole site differently than today. At > > least, > > > > > when > > > > > > I was growing up, my mother was an at home mother. So rather than > > > drug > > > > > her > > > > > > kids up, she just handled it. I don't know about you; but, I do > > > > remember > > > > > > that we were not taken to the Dr. for very much at all and so > that > > > > > brother's > > > > > > hyperactivity was probably only spoken about once by my Mom. > > > > > > > > > > > > Look around when you are at a meeting. The more hyperactive a > > person > > > > is, > > > > > > the more intense they are either swing their leg or tapping on > the > > > > table > > > > > or > > > > > > having to get up and down. Lots of others are just slightly > > afflicted > > > > > and > > > > > > will just be moving in their seat quite often. > > > > > > > > > > > > When I used to suffer so bad and it seems to be coming back, I'd > be > > > the > > > > > one > > > > > > with a leg swinging or playing with anything on my wrist etc. I > can > > > not > > > > > > wear a watch to this day because if they had stretching bands I'd > > > twist > > > > > them > > > > > > till they broke and if they didn't, it would just annoy me too > much > > > > that > > > > > I > > > > > > couldn't twist. Nowadays I wear cheap beaded bracelets and if > they > > > > > break, > > > > > > nothing much lost. For me, it gets really really bad if I'm in > > > > > unfamiliar > > > > > > or scary territory!! The more uncomfortable I am, the more that > my > > > > motor > > > > > > mouth will go faster and I just stay still. I've been accused of > > > > showing > > > > > > anger when this happens; but, it's not, I'm simply uncomfortable. > > > > > > > > > > > > Geez - I even have a motor mouth when talking on e-mails, can you > > > > imagine > > > > > > how it is actually talking to me?? LOL > > > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > > > > That ADHD connection to folk with addictive problems does make a > > lot > > > of > > > > > > sense..I have never though of that, or even heard the connection, > > but > > > > am > > > > > > going to look into that. I really know very little about ADHD. It > > is > > > > > > interesting to me though on many levels. It is a curiosity if > this > > > was > > > > > > around when us baby boomers were lil' and just not diagnosed, or > is > > > it > > > > > more > > > > > > prevelant now. If more so now I would wonder about environmental > > > > > > connection. I'm going to research this. > > > > > > Dave > > > > > > > > > > > > ________________________________ > > > > > > From: Jan Holman <janholman@... <janholman%40gmail.com > ><janholman% > > 40gmail.com>> > > > > > > To: livercirrhosissupport <livercirrhosissupport% > 40yahoogroups.com> > > <livercirrhosissupport% > > > 40yahoogroups.com> > > > > > > Sent: Thu, May 13, 2010 9:07:12 PM > > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > > > > When my children were in school, they spent about half the years > in > > > > > > church/Christian schools. We were moving my oldest daughter's > > school > > > > and > > > > > > everybody available was asked to help. Our family was assigned to > > > pack > > > > up > > > > > > the books in the library. In the car, my oldest daughter told her > > > > little > > > > > > brother who had not been diagnosed yet, but had severe adhd, > " don't > > > be > > > > > > normal today, act nice " It was embarrassing especially for her > when > > > he > > > > > > would act out the adhd. My main frustration was when I had to > tell > > > him > > > > to > > > > > > do something. I couldn't tell him to take his winter outerwear > off, > > I > > > > had > > > > > > to tell him to take off his mittens, take off his scarf, take off > > his > > > > > hat, > > > > > > take off his boots, take off his jacket and if he had them on to > > take > > > > off > > > > > > his snow pants, and then we went through the whole thing again > when > > > he > > > > > was > > > > > > supposed to put them away. Otherwise, I found him very > interesting > > > > > because > > > > > > he was so curious about everything and always asking questions > and > > > > > > exploring > > > > > > things like the inside of computer disks (remember the old ones). > I > > > > would > > > > > > have like to have looked myself, but couldn't bring myself to > tear > > > > apart > > > > > > something I had paid for and could still use. He also brought > home > > an > > > > old > > > > > > calculator he found on the street and tore it apart. I have taken > > the > > > > > adult > > > > > > tests online and show as having add. It explains a lot of things > > > which > > > > > > happened in my life. I was impulsive. Didn't live up to my > > > intellectual > > > > > > potential, and other things I don't care to discuss here. I have > 2 > > or > > > 3 > > > > > > grandsons I am sure have add at least if not adhd, one has been > > > > diagnosed > > > > > > but they aren't getting treatment because their parents, > including > > > the > > > > > son > > > > > > who has it, don't believe in it. When my son was on medication, > it > > > was > > > > so > > > > > > much easier to deal with him, he did better in school, didn't get > > so > > > > > > frustrated, but he didn't like that slowed down feeling and when > it > > > > came > > > > > > time for him to decide for himself, he refused the meds. > > > > > > > > > > > > Gloria, just so you know, you haven't annoyed everybody here. Jan > H > > > > > > > > > > > > On Thu, May 13, 2010 at 6:06 PM, Gloria < > gadamscan@...<gadamscan%40yahoo.ca> > > > <gadamscan%40yahoo.ca> > > > > > > > > > > wrote: > > > > > > > > > > > > > Diane > > > > > > > > > > > > > > However, there would be nothing you could do about his drinking > > > > anyway. > > > > > > > It's always got to be up to the person that is addicted. > > > > > > > > > > > > > > Do you know, that a very high percentage of especially > > alcoholics, > > > > > would > > > > > > > also be diagnosed as ADHD. It's fun in a meeting to look around > > at > > > > all > > > > > > the > > > > > > > " sober " ADHD people. You can even tell if they are low level or > > > high > > > > > > level. > > > > > > > Before I was put on beta blockers, my ADHD would get so bad > that > > it > > > > > > annoyed > > > > > > > me. Therefore, by that time, I'd already annoyed everyone > around > > me > > > > LOL > > > > > > > I finally learned to do a simple meditation in order to slow > > myself > > > > > down, > > > > > > so > > > > > > > I don't believe that I'm so bad now. > > > > > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > > > > > > > I think some people have to worry more about alcoholism than > > > others. > > > > I > > > > > > > have > > > > > > > a son who has adhd, won't take medication but drinks too much > > when > > > he > > > > > has > > > > > > > the money. His father doesn't drink because his father was an > > > > alcoholic > > > > > > > and > > > > > > > he could see himself starting to go down that road too. And > there > > > is > > > > > also > > > > > > > a > > > > > > > great grandfather on that side of his family who was an > > alcoholic. > > > My > > > > > > > great > > > > > > > grandfather and one of my brothers were/are alcoholics, so it > > > really > > > > > > > concerns me that my son drinks what is more than social > drinking. > > > And > > > > > now > > > > > > > with the genetic link to cirrhosis, he really has a triple > whammy > > > > ready > > > > > > to > > > > > > > hit him. Jan H > > > > > > > > > > > > > > On Wed, May 12, 2010 at 8:56 PM, Gloria < > > gadamscan@... <gadamscan%40yahoo.ca> > > > <gadamscan%40yahoo.ca> > > > > > > > > > > > wrote: > > > > > > > > > > > > > > > Gehri > > > > > > > > > > > > > > > > I have to agree with Dave on all he has said!! > > > > > > > > > > > > > > > > The most horrible thing about alcoholism etc., is what it > > > actually > > > > > does > > > > > > > to > > > > > > > > those around that person. Even as a recovering alcoholic > > myself, > > > I > > > > > > > > occasionally get frustrated that others can not seem to find > a > > > good > > > > > > > enough > > > > > > > > reason to put the addiction aside and get the necessary help. > > > Then, > > > > > > > > hopefully, they would do it before getting as sick as your > > sister > > > > is > > > > > > now. > > > > > > > > I'll just pray that she rallies from this and actually > realizes > > > how > > > > > > much > > > > > > > > you love her!!! It's definitely a difficult path for you, > with > > no > > > > > > doubt. > > > > > > > > > > > > > > > > Even at the level that your sister is at right now, there is > a > > > > whole > > > > > > lot > > > > > > > of > > > > > > > > hope!! The hospital will fight hard to get this under control > > and > > > > > > she'll > > > > > > > > rebound, even though likely she will have to entirely change > > her > > > > > > > lifestyle, > > > > > > > > diet and all!! But the proof that it is absolutely possible, > is > > > in > > > > > the > > > > > > > > stories of a number of people in this site. I know for sure > > that > > > I > > > > am > > > > > > > > honoured and awed by the fighting spirit here. I also feel > sooo > > > > > > grateful > > > > > > > > that at this point, it appears that I may not have to lose my > > > liver > > > > > to > > > > > > > > cirrhosis because of some top-notch help from the medical > > > > community. > > > > > > > > > > > > > > > > Please, let us know how it is going for you, as well as your > > > > sister. > > > > > > > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > > > > > > > > > > She may have varices, but I have it and experience no pain > from > > > > > > it..even > > > > > > > > when I've had bleeds I had no pain..others may be different > > > > > > perhaps..her > > > > > > > > pain may be from as- cites..hopefully they will get her > amonia > > > > levels > > > > > > > down > > > > > > > > and some clarity will return....others here have experience > > with > > > > > > > > encephalopathy and can offer good advice..I would think much > of > > > her > > > > > > > problems > > > > > > > > are being caused by that..hang in there..peace and comfort to > > you > > > > > all, > > > > > > > > Dave > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > From: Gehren Standberry <sisterlockqueen319@... > <sisterlockqueen319%40yahoo.com> > > > <sisterlockqueen319%40yahoo.com> > > > > > > > > > > > > > To: livercirrhosissupport > <livercirrhosissupport%40yahoogroups.com> > > <livercirrhosissupport% > > > 40yahoogroups.com> > > > > > > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually > > stopped > > > > > > > > drinking a month or so before she fell ill. She is not at the > > > point > > > > > to > > > > > > > do > > > > > > > > the healthly lifestyle thing, as she's still in the hospital > > very > > > > > sick > > > > > > > and > > > > > > > > not able to go to the bathroom on her own, hold her own cup, > > > > > > > > walk...anything. She has been sick for a long time, but > > wouldn't > > > go > > > > > see > > > > > > > > about it. This is her first hospitalization with this, and > I'm > > > just > > > > > > > praying > > > > > > > > she will be able to walk out of there, not die there. She was > > in > > > > > denial > > > > > > > > that something was wrong for so long, but if she had just > gone > > > > > earlier, > > > > > > > she > > > > > > > > may have been able to stop drinking, eat better, etc. Right > > now, > > > I > > > > > just > > > > > > > > don't know. As of a few hours ago, her daughter told me they > > were > > > > > > taking > > > > > > > > her to x-ray her stomach to see why she's in so much pain...I > > > pray > > > > > it's > > > > > > > not > > > > > > > > varicies. You hang in there, too. I can only imagine the road > > > > you've > > > > > > > > traveled with this disease, and I hope you will be able to > live > > a > > > > > > > > productive, > > > > > > > > healthier life. > > > > > > > > > > > > > > > > Blessings, > > > > > > > > Gehri > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > > > > > > > > > > I am sad for your sister and you. So far I have not developed > > > > > > encephalop > > > > > > > > athy and hope I do not..It is my greatest fear with this > > disease. > > > > > ..it > > > > > > > > seems many, perhaps most, who drink actively do bounce back > > from > > > > > > > abstinance, > > > > > > > > clean living, and the benefits of taking med's properly, > eating > > > > > proper, > > > > > > > etc. > > > > > > > > Hopefully she will quit drinking..likely she will improve if > > she > > > > > does, > > > > > > > but > > > > > > > > for sure she will continue getting worse if she does > not..hang > > in > > > > > there > > > > > > > > Gehri. She is lucky to have a caring sibling that is being > > there > > > > for > > > > > > > her. > > > > > > > > Ultimately that is about all you can do, being there. The > rest > > is > > > > up > > > > > to > > > > > > > > her. > > > > > > > > Dave > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > > > > > > Subject: Hi > > > > > > > > > > > > > > > > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized > > and > > > > > > > diagnosed > > > > > > > > with Cirrhosis from alcohol. She is very sick, and I don't > know > > > > what > > > > > to > > > > > > > > expect. She actually has not looked well for over a year, > she's > > > > lost > > > > > a > > > > > > > lot > > > > > > > > of weight, tired all of the time, complained of stomach pain > > and > > > > > > > > constipation. Finally, a trip to urgent care led to the er, > > which > > > > led > > > > > > to > > > > > > > > hospitalization. Her eyes are yellow, she has ammonia in her > > > blood, > > > > > and > > > > > > > they > > > > > > > > are giving her lactulose to reduce it. Her speech has been > > slow, > > > > but > > > > > > when > > > > > > > I > > > > > > > > saw her the other day she couldn't speak at all, hold a pen, > > and > > > > has > > > > > > not > > > > > > > > been able to go to the bathroom by herself. She is still not > > > > eating, > > > > > > and > > > > > > > > continuing to lose weight. I need to know if she is going to > > > > rebound > > > > > > from > > > > > > > > this. The hepatic encephalopathy is the most troubling, > because > > > > she's > > > > > > > > altered, confused, and in and out of it most of the time. I > > feel > > > so > > > > > bad > > > > > > > > because if she had addressed this a year ago, she would > > probably > > > be > > > > > > > better. > > > > > > > > Anyone here with > > > > > > > > experience with this, or has a loved one with this, please > let > > me > > > > > know > > > > > > > what > > > > > > > > to expect. > > > > > > > > > > > > > > > > Sorry So Long > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 I am the jeasn type of girl.. I have beer using the krisotole. Thanks for this day and for my tomorrows .  Love, Lyncia   > > > > > > > > > > > Gehri > > > > > > > > > > > > I have to agree with Dave on all he has said!! > > > > > > > > > > > > The most horrible thing about alcoholism etc., is what it > actually > > > does > > > > > to > > > > > > those around that person. Even as a recovering alcoholic myself, > I > > > > > > occasionally get frustrated that others can not seem to find a > good > > > > > enough > > > > > > reason to put the addiction aside and get the necessary help. > Then, > > > > > > hopefully, they would do it before getting as sick as your sister > > is > > > > now. > > > > > > I'll just pray that she rallies from this and actually realizes > how > > > > much > > > > > > you love her!!! It's definitely a difficult path for you, with no > > > > doubt. > > > > > > > > > > > > Even at the level that your sister is at right now, there is a > > whole > > > > lot > > > > > of > > > > > > hope!! The hospital will fight hard to get this under control and > > > > she'll > > > > > > rebound, even though likely she will have to entirely change her > > > > > lifestyle, > > > > > > diet and all!! But the proof that it is absolutely possible, is > in > > > the > > > > > > stories of a number of people in this site. I know for sure that > I > > am > > > > > > honoured and awed by the fighting spirit here. I also feel sooo > > > > grateful > > > > > > that at this point, it appears that I may not have to lose my > liver > > > to > > > > > > cirrhosis because of some top-notch help from the medical > > community. > > > > > > > > > > > > Please, let us know how it is going for you, as well as your > > sister. > > > > > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > > > > > > > She may have varices, but I have it and experience no pain from > > > > it..even > > > > > > when I've had bleeds I had no pain..others may be different > > > > perhaps..her > > > > > > pain may be from as- cites..hopefully they will get her amonia > > levels > > > > > down > > > > > > and some clarity will return....others here have experience with > > > > > > encephalopathy and can offer good advice..I would think much of > her > > > > > problems > > > > > > are being caused by that..hang in there..peace and comfort to you > > > all, > > > > > > Dave > > > > > > > > > > > > ________________________________ > > > > > > From: Gehren Standberry <sisterlockqueen319@... > <sisterlockqueen319%40yahoo.com> > > > > > > > > > To: livercirrhosissupport <livercirrhosissupport% > 40yahoogroups.com> > > > > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > > > > > drinking a month or so before she fell ill. She is not at the > point > > > to > > > > > do > > > > > > the healthly lifestyle thing, as she's still in the hospital very > > > sick > > > > > and > > > > > > not able to go to the bathroom on her own, hold her own cup, > > > > > > walk...anything. She has been sick for a long time, but wouldn't > go > > > see > > > > > > about it. This is her first hospitalization with this, and I'm > just > > > > > praying > > > > > > she will be able to walk out of there, not die there. She was in > > > denial > > > > > > that something was wrong for so long, but if she had just gone > > > earlier, > > > > > she > > > > > > may have been able to stop drinking, eat better, etc. Right now, > I > > > just > > > > > > don't know. As of a few hours ago, her daughter told me they were > > > > taking > > > > > > her to x-ray her stomach to see why she's in so much pain...I > pray > > > it's > > > > > not > > > > > > varicies. You hang in there, too. I can only imagine the road > > you've > > > > > > traveled with this disease, and I hope you will be able to live a > > > > > > productive, > > > > > > healthier life. > > > > > > > > > > > > Blessings, > > > > > > Gehri > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > > > > Subject: Re: Hi > > > > > > > > > > > > > > > > > > I am sad for your sister and you. So far I have not developed > > > > encephalop > > > > > > athy and hope I do not..It is my greatest fear with this disease. > > > ..it > > > > > > seems many, perhaps most, who drink actively do bounce back from > > > > > abstinance, > > > > > > clean living, and the benefits of taking med's properly, eating > > > proper, > > > > > etc. > > > > > > Hopefully she will quit drinking..likely she will improve if she > > > does, > > > > > but > > > > > > for sure she will continue getting worse if she does not..hang in > > > there > > > > > > Gehri. She is lucky to have a caring sibling that is being there > > for > > > > > her. > > > > > > Ultimately that is about all you can do, being there. The rest is > > up > > > to > > > > > > her. > > > > > > Dave > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > > > > Subject: Hi > > > > > > > > > > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > > > > > diagnosed > > > > > > with Cirrhosis from alcohol. She is very sick, and I don't know > > what > > > to > > > > > > expect. She actually has not looked well for over a year, she's > > lost > > > a > > > > > lot > > > > > > of weight, tired all of the time, complained of stomach pain and > > > > > > constipation. Finally, a trip to urgent care led to the er, which > > led > > > > to > > > > > > hospitalization. Her eyes are yellow, she has ammonia in her > blood, > > > and > > > > > they > > > > > > are giving her lactulose to reduce it. Her speech has been slow, > > but > > > > when > > > > > I > > > > > > saw her the other day she couldn't speak at all, hold a pen, and > > has > > > > not > > > > > > been able to go to the bathroom by herself. She is still not > > eating, > > > > and > > > > > > continuing to lose weight. I need to know if she is going to > > rebound > > > > from > > > > > > this. The hepatic encephalopathy is the most troubling, because > > she's > > > > > > altered, confused, and in and out of it most of the time. I feel > so > > > bad > > > > > > because if she had addressed this a year ago, she would probably > be > > > > > better. > > > > > > Anyone here with > > > > > > experience with this, or has a loved one with this, please let me > > > know > > > > > what > > > > > > to expect. > > > > > > > > > > > > Sorry So Long > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 did you have esld when you had the surgery done??? > > > > > > With the hand surgeries does he get put to sleep or just a local? I need > > surgery > > > and was told that it was to dangerous to be knocked out as the liver > > would > > > suffer to much damage trying to process the drugs needed. Let me know. > > Thanks > > > Joan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 no i did not. ________________________________ To: livercirrhosissupport Sent: Wed, November 3, 2010 1:41:06 PM Subject: Re: hi did you have esld when you had the surgery done??? > > > > > > With the hand surgeries does he get put to sleep or just a local? I need > > surgery > > > and was told that it was to dangerous to be knocked out as the liver > > would > > > suffer to much damage trying to process the drugs needed. Let me know. > > Thanks > > > Joan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 Hi all, havent been on in a while. Hubby's MELD went from a 14 to a 15, he is in the hospital as we speak because he is having gallbladder isssues. The surgeon wants to send him to the Lahey Clinic as he feels they are more qualified. Apparently he has a lot of complications. Hep C, and stuff, anyone know about the lahey clinic? They want him to have the surgery but not here. any advice? ________________________________ To: livercirrhosissupport Sent: Wed, November 3, 2010 2:41:06 PM Subject: Re: hi  did you have esld when you had the surgery done??? > > > > > > With the hand surgeries does he get put to sleep or just a local? I need > > surgery > > > and was told that it was to dangerous to be knocked out as the liver > > would > > > suffer to much damage trying to process the drugs needed. Let me know. > > Thanks > > > Joan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 hi ron welcome! you've come to a great place for info and support, my husband suffers from the same, he takes norco now. i think its like lortab without so much tylenol in it. it helps very little, he also has a heated belt her wears around his lower torso, which helps provide some relief also. i cant tell you where to get one, my sister ordered it off the internet for him. i hope this helps you, dont know anything about tramadol,sorry. god bless barby > > New to group, and thank you for all the info you post on here.I have liver cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is what to take for spleen pain,I have Tramadol 50 mg but that was for my back,has anyone took tramadol for spleen pain. Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 Hello, my name is Bobby. I am a group moderator , and a male 46, w/cirrhosis from alcoholism. In 2006, pain in my upper left quad as well as pain in the upper right quad drove me to sobriety, and eventually a pain doctor. A pain doctor is the ONLY way to recieve non toxic pain relief. Poppies are non poisionous. Almost every other type of pain relief is made in a test tube. Poppies are also the most hated things on the planet, even as they are the only thing that will bond with the MU opioid receptor and relieve the pain. The war on drugs has caused several synthetic and semi synthetics to be invented, all in the hopes of removing the addictive potential from the drugs. Some people get a bang out of eating, or sex or drinking, or gambling, many things can cause actual addiction. Poppies will cause actual addiction too, but ONLY IF INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you disturb them. You have to GO LOOKING. Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. Schedule 3 drugs are made to be poisiounous so that a regular doctor can write prescriptions for them. They cannot be abused with out killing your liver. Pain doctors have a whole inventory from which they can prescribe any of about 17 different alkaloids from poppies that do not have any tylenol and there for are non toxic, and much much safer for someone with liver disease, not to mention that they will relieve your pain. There is a hand book for intractable pain survivors on our files section., You can download it. inside it are the instructions on how to legally obtain pain medicine and how to use it effectively. Staying out of the orange jumpsuit is a trickier matter. I guess it all depends on how much radiology you have to back up your claim of being in pain. the more the better. They see all kinds of folks with hundreds of kinds of " algias " , and little radioligical evidence. Try to keep in mind that these doctors are getting locked up every day. The are under tremendous pressure from patients as well as the D.E.A. . They are going to want proof, so be prepared to produce your medical records. Good luck, and welcome to our group. Bobby ________________________________ To: livercirrhosissupport Sent: Tue, November 9, 2010 11:07:13 PM Subject: Hi New to group, and thank you for all the info you post on here.I have liver cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is what to take for spleen pain,I have Tramadol 50 mg but that was for my back,has anyone took tramadol for spleen pain. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2010 Report Share Posted November 11, 2010 Hey Bobby, I was on here before and I just moved from Texas back to Maine. my husband is 54 and he is now in the hospital for the 5th day with gallstones. The surgeon has consulted with the gastroenterologist and they feel that he should not have the surgery in this " small town " hospital as they put it. So, the surgeon and gastro feel that since he has a 30 percent chance of mortality if he has that surgery, that he should go to the Lahey clinic in Massachusetts. They are keeping him in here until they transport him via ambulance within the next few days. They at this time are not doing the gallbladder removal either here or there, but will be evaluated for the liver. I have very little money to stay there and am hoping that there is a place within the clinic that I may stay since it is so far from my home. Please anyone, if I can get some advice, I would welcome it. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Wed, November 10, 2010 12:11:26 PM Subject: Re: Hi  Hello, my name is Bobby. I am a group moderator , and a male 46, w/cirrhosis from alcoholism. In 2006, pain in my upper left quad as well as pain in the upper right quad drove me to sobriety, and eventually a pain doctor. A pain doctor is the ONLY way to recieve non toxic pain relief. Poppies are non poisionous. Almost every other type of pain relief is made in a test tube. Poppies are also the most hated things on the planet, even as they are the only thing that will bond with the MU opioid receptor and relieve the pain. The war on drugs has caused several synthetic and semi synthetics to be invented, all in the hopes of removing the addictive potential from the drugs. Some people get a bang out of eating, or sex or drinking, or gambling, many things can cause actual addiction. Poppies will cause actual addiction too, but ONLY IF INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you disturb them. You have to GO LOOKING. Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. Schedule 3 drugs are made to be poisiounous so that a regular doctor can write prescriptions for them. They cannot be abused with out killing your liver. Pain doctors have a whole inventory from which they can prescribe any of about 17 different alkaloids from poppies that do not have any tylenol and there for are non toxic, and much much safer for someone with liver disease, not to mention that they will relieve your pain. There is a hand book for intractable pain survivors on our files section., You can download it. inside it are the instructions on how to legally obtain pain medicine and how to use it effectively. Staying out of the orange jumpsuit is a trickier matter. I guess it all depends on how much radiology you have to back up your claim of being in pain. the more the better. They see all kinds of folks with hundreds of kinds of " algias " , and little radioligical evidence. Try to keep in mind that these doctors are getting locked up every day. The are under tremendous pressure from patients as well as the D.E.A. . They are going to want proof, so be prepared to produce your medical records. Good luck, and welcome to our group. Bobby ________________________________ To: livercirrhosissupport Sent: Tue, November 9, 2010 11:07:13 PM Subject: Hi New to group, and thank you for all the info you post on here.I have liver cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is what to take for spleen pain,I have Tramadol 50 mg but that was for my back,has anyone took tramadol for spleen pain. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 I am curious about something. Has your husband been seen by a hepatologist at a transplant center? I made the mistake of letting a general surgeon take out my gallbladder. I did this because I was mislead by our family doctor. She was waaaayyy over her head with my diagnosis, which has always puzzled even the smartest specialists out here. One of the foremost doctors in the entire hepatology field was stumped by my case. My body is making a lot of fools. They say everything looks real good, and then retract like crazy because they are missing things. " Mr. Aragon, you are fine...scratch that, you have a fatal disease. This statment has been made to me no less than THREE times!!!! I have a bone lesion now, which might indicate metastisized cancer in late stages. Or not. You husband probably needs the best hepatologist he can find. That is my advise. Love Bobby > > Hey Bobby, I was on here before and I just moved from Texas back to Maine. my > husband is 54 and he is now in the hospital for the 5th day with gallstones. > The surgeon has consulted with the gastroenterologist and they feel that he > should not have the surgery in this " small town " hospital as they put it. So, > the surgeon and gastro feel that since he has a 30 percent chance of mortality > if he has that surgery, that he should go to the Lahey clinic in Massachusetts. > They are keeping him in here until they transport him via ambulance within the > next few days. They at this time are not doing the gallbladder removal either > here or there, but will be evaluated for the liver. I have very little money to > stay there and am hoping that there is a place within the clinic that I may stay > since it is so far from my home. Please anyone, if I can get some advice, I > would welcome it. Thanks Bonnie > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Wed, November 10, 2010 12:11:26 PM > Subject: Re: Hi > >  > Hello, my name is Bobby. I am a group moderator , and a male 46, w/cirrhosis > from alcoholism. In 2006, pain in my upper left quad as well as pain in the > upper right quad drove me to sobriety, and eventually a pain doctor. A pain > doctor is the ONLY way to recieve non toxic pain relief. Poppies are non > poisionous. Almost every other type of pain relief is made in a test tube. > Poppies are also the most hated things on the planet, even as they are the only > thing that will bond with the MU opioid receptor and relieve the pain. The war > on drugs has caused several synthetic and semi synthetics to be invented, all in > > the hopes of removing the addictive potential from the drugs. Some people get a > bang out of eating, or sex or drinking, or gambling, many things can cause > actual addiction. Poppies will cause actual addiction too, but ONLY IF > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you disturb > them. You have to GO LOOKING. > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. Schedule 3 > drugs are made to be poisiounous so that a regular doctor can write > prescriptions for them. They cannot be abused with out killing your liver. Pain > doctors have a whole inventory from which they can prescribe any of about 17 > different alkaloids from poppies that do not have any tylenol and there for are > non toxic, and much much safer for someone with liver disease, not to mention > that they will relieve your pain. There is a hand book for intractable pain > survivors on our files section., You can download it. inside it are the > instructions on how to legally obtain pain medicine and how to use it > effectively. Staying out of the orange jumpsuit is a trickier matter. I guess it > > all depends on how much radiology you have to back up your claim of being in > pain. the more the better. They see all kinds of folks with hundreds of kinds of > > " algias " , and little radioligical evidence. Try to keep in mind that these > doctors are getting locked up every day. The are under tremendous pressure from > patients as well as the D.E.A. . > They are going to want proof, so be prepared to produce your medical records. > Good luck, and welcome to our group. Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, November 9, 2010 11:07:13 PM > Subject: Hi > > New to group, and thank you for all the info you post on here.I have liver > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is what > to take for spleen pain,I have Tramadol 50 mg but that was for my back,has > anyone took tramadol for spleen pain. Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 He was transported to the Lahey clinic in Massachusetts today. That is a transplant center. I will be going up tomorrow. This was after he had been in the hospital for 6 days. The surgeon felt that he should be there to be evaluated. He seems to think it is more the liver than the gall bladder that is causing his pain. I am hoping that he gets the best care there. They may not even take the gall bladder, but he will be in there for atleast 5 days and I will keep u updated. This is the first response I have gotten to my questions, maybe i just needed to verify my email or something. Cuz usually I get alot of feedback from u all. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, November 12, 2010 9:12:05 PM Subject: Re: Hi I am curious about something. Has your husband been seen by a hepatologist at a transplant center? I made the mistake of letting a general surgeon take out my gallbladder. I did this because I was mislead by our family doctor. She was waaaayyy over her head with my diagnosis, which has always puzzled even the smartest specialists out here. One of the foremost doctors in the entire hepatology field was stumped by my case. My body is making a lot of fools. They say everything looks real good, and then retract like crazy because they are missing things. " Mr. Aragon, you are fine...scratch that, you have a fatal disease. This statment has been made to me no less than THREE times!!!! I have a bone lesion now, which might indicate metastisized cancer in late stages. Or not. You husband probably needs the best hepatologist he can find. That is my advise. Love Bobby > > Hey Bobby, I was on here before and I just moved from Texas back to Maine. my > > husband is 54 and he is now in the hospital for the 5th day with gallstones. > The surgeon has consulted with the gastroenterologist and they feel that he > should not have the surgery in this " small town " hospital as they put it. So, > the surgeon and gastro feel that since he has a 30 percent chance of mortality > if he has that surgery, that he should go to the Lahey clinic in >Massachusetts. > > They are keeping him in here until they transport him via ambulance within the > next few days. They at this time are not doing the gallbladder removal either > > here or there, but will be evaluated for the liver. I have very little money >to > > stay there and am hoping that there is a place within the clinic that I may >stay > > since it is so far from my home. Please anyone, if I can get some advice, I > would welcome it. Thanks Bonnie > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Wed, November 10, 2010 12:11:26 PM > Subject: Re: Hi > >  > Hello, my name is Bobby. I am a group moderator , and a male 46, w/cirrhosis > from alcoholism. In 2006, pain in my upper left quad as well as pain in the > upper right quad drove me to sobriety, and eventually a pain doctor. A pain > doctor is the ONLY way to recieve non toxic pain relief. Poppies are non > poisionous. Almost every other type of pain relief is made in a test tube. > Poppies are also the most hated things on the planet, even as they are the only > > thing that will bond with the MU opioid receptor and relieve the pain. The war > on drugs has caused several synthetic and semi synthetics to be invented, all >in > > > the hopes of removing the addictive potential from the drugs. Some people get a > > bang out of eating, or sex or drinking, or gambling, many things can cause > actual addiction. Poppies will cause actual addiction too, but ONLY IF > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you disturb > them. You have to GO LOOKING. > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. Schedule 3 > > drugs are made to be poisiounous so that a regular doctor can write > prescriptions for them. They cannot be abused with out killing your liver. Pain > > doctors have a whole inventory from which they can prescribe any of about 17 > different alkaloids from poppies that do not have any tylenol and there for are > > non toxic, and much much safer for someone with liver disease, not to mention > that they will relieve your pain. There is a hand book for intractable pain > survivors on our files section., You can download it. inside it are the > instructions on how to legally obtain pain medicine and how to use it > effectively. Staying out of the orange jumpsuit is a trickier matter. I guess >it > > > all depends on how much radiology you have to back up your claim of being in > pain. the more the better. They see all kinds of folks with hundreds of kinds >of > > > " algias " , and little radioligical evidence. Try to keep in mind that these > doctors are getting locked up every day. The are under tremendous pressure from > > patients as well as the D.E.A. . > They are going to want proof, so be prepared to produce your medical records. > Good luck, and welcome to our group. Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, November 9, 2010 11:07:13 PM > Subject: Hi > > New to group, and thank you for all the info you post on here.I have liver > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is what > to take for spleen pain,I have Tramadol 50 mg but that was for my back,has > anyone took tramadol for spleen pain. Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 bonnie, good luck to you and your husband.hope they can figure out whats going on.my prayers are with you both. god bless bev,tx ________________________________ To: livercirrhosissupport Sent: Fri, November 12, 2010 10:34:06 PM Subject: Re: Hi He was transported to the Lahey clinic in Massachusetts today. That is a transplant center. I will be going up tomorrow. This was after he had been in the hospital for 6 days. The surgeon felt that he should be there to be evaluated. He seems to think it is more the liver than the gall bladder that is causing his pain. I am hoping that he gets the best care there. They may not even take the gall bladder, but he will be in there for atleast 5 days and I will keep u updated. This is the first response I have gotten to my questions, maybe i just needed to verify my email or something. Cuz usually I get alot of feedback from u all. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, November 12, 2010 9:12:05 PM Subject: Re: Hi I am curious about something. Has your husband been seen by a hepatologist at a transplant center? I made the mistake of letting a general surgeon take out my gallbladder. I did this because I was mislead by our family doctor. She was waaaayyy over her head with my diagnosis, which has always puzzled even the smartest specialists out here. One of the foremost doctors in the entire hepatology field was stumped by my case. My body is making a lot of fools. They say everything looks real good, and then retract like crazy because they are missing things. " Mr. Aragon, you are fine...scratch that, you have a fatal disease. This statment has been made to me no less than THREE times!!!! I have a bone lesion now, which might indicate metastisized cancer in late stages. Or not. You husband probably needs the best hepatologist he can find. That is my advise. Love Bobby > > Hey Bobby, I was on here before and I just moved from Texas back to Maine. my > > > husband is 54 and he is now in the hospital for the 5th day with gallstones. > The surgeon has consulted with the gastroenterologist and they feel that he > should not have the surgery in this " small town " hospital as they put it. So, > the surgeon and gastro feel that since he has a 30 percent chance of mortality > if he has that surgery, that he should go to the Lahey clinic in >Massachusetts. > > They are keeping him in here until they transport him via ambulance within the > next few days. They at this time are not doing the gallbladder removal either > > > here or there, but will be evaluated for the liver. I have very little money >to > > stay there and am hoping that there is a place within the clinic that I may >stay > > since it is so far from my home. Please anyone, if I can get some advice, I > would welcome it. Thanks Bonnie > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Wed, November 10, 2010 12:11:26 PM > Subject: Re: Hi > >  > Hello, my name is Bobby. I am a group moderator , and a male 46, w/cirrhosis > from alcoholism. In 2006, pain in my upper left quad as well as pain in the > upper right quad drove me to sobriety, and eventually a pain doctor. A pain > doctor is the ONLY way to recieve non toxic pain relief. Poppies are non > poisionous. Almost every other type of pain relief is made in a test tube. > Poppies are also the most hated things on the planet, even as they are the only > > > thing that will bond with the MU opioid receptor and relieve the pain. The war > on drugs has caused several synthetic and semi synthetics to be invented, all >in > > > the hopes of removing the addictive potential from the drugs. Some people get a > > > bang out of eating, or sex or drinking, or gambling, many things can cause > actual addiction. Poppies will cause actual addiction too, but ONLY IF > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you disturb > them. You have to GO LOOKING. > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. Schedule 3 > > > drugs are made to be poisiounous so that a regular doctor can write > prescriptions for them. They cannot be abused with out killing your liver. Pain > > > doctors have a whole inventory from which they can prescribe any of about 17 > different alkaloids from poppies that do not have any tylenol and there for are > > > non toxic, and much much safer for someone with liver disease, not to mention > that they will relieve your pain. There is a hand book for intractable pain > survivors on our files section., You can download it. inside it are the > instructions on how to legally obtain pain medicine and how to use it > effectively. Staying out of the orange jumpsuit is a trickier matter. I guess >it > > > all depends on how much radiology you have to back up your claim of being in > pain. the more the better. They see all kinds of folks with hundreds of kinds >of > > > " algias " , and little radioligical evidence. Try to keep in mind that these > doctors are getting locked up every day. The are under tremendous pressure from > > > patients as well as the D.E.A. . > They are going to want proof, so be prepared to produce your medical records. > Good luck, and welcome to our group. Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, November 9, 2010 11:07:13 PM > Subject: Hi > > New to group, and thank you for all the info you post on here.I have liver > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is what > to take for spleen pain,I have Tramadol 50 mg but that was for my back,has > anyone took tramadol for spleen pain. Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2010 Report Share Posted November 13, 2010 Bonnie sorry I haven't been posting much, Can't seem to find the time to get down to it, and then when I do, I write another chapter in my " book " I know from personal experience it makes it harder for the doctors to try and figure out what is going on when it might be more than one thing. I ended up in the hospital once, on the monitors they were going crazy, nurse called a doctor, he called some others and I ended up with four of them in my room trying to figure out what was causing the monitors to show like that. It was rather interesting to sit up in the bed and listen to them suggesting things, and then, say no because some other symptoms should be showing, and I certainly shouldn'e be sitting up in bed reading a book with the way the lines were on the monitor. It was almost like tv doctors shows where they all get together and try to figure it out. By the time my blood work came back, it was all explained, and they took me off one and put me back on another. And sent me home as soon as they had cleared the bad meds out of my system. I hope you found a place to stay up there, I know that was a concern for you. Most hospitals let the spouse stay in the room during the night, but then they get all tired out, Most of them I know will alternate staying in a motel so they can sleep better part of the time. My heart hospital has futons in each room for family to use. Will be waiting to hear what they have to say. Jan On Fri, Nov 12, 2010 at 9:34 PM, Bonnie Lee wrote: > He was transported to the Lahey clinic in Massachusetts today. That is a > transplant center. I will be going up tomorrow. This was after he had been > in > the hospital for 6 days. The surgeon felt that he should be there to be > evaluated. He seems to think it is more the liver than the gall bladder > that is > causing his pain. I am hoping that he gets the best care there. They may > not > even take the gall bladder, but he will be in there for atleast 5 days and > I > will keep u updated. This is the first response I have gotten to my > questions, > maybe i just needed to verify my email or something. Cuz usually I get alot > of > feedback from u all. Thanks Bonnie > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, November 12, 2010 9:12:05 PM > Subject: Re: Hi > > > I am curious about something. Has your husband been seen by a hepatologist > at a > transplant center? I made the mistake of letting a general surgeon take out > my > gallbladder. I did this because I was mislead by our family doctor. She was > waaaayyy over her head with my diagnosis, which has always puzzled even the > smartest specialists out here. One of the foremost doctors in the entire > hepatology field was stumped by my case. My body is making a lot of fools. > They > say everything looks real good, and then retract like crazy because they > are > missing things. " Mr. Aragon, you are fine...scratch that, you have a > fatal > disease. This statment has been made to me no less than THREE times!!!! I > have a > bone lesion now, which might indicate metastisized cancer in late stages. > Or > not. > You husband probably needs the best hepatologist he can find. That is my > advise. > Love Bobby > > > > > > Hey Bobby, I was on here before and I just moved from Texas back to > Maine. my > > > > husband is 54 and he is now in the hospital for the 5th day with > gallstones. > > > The surgeon has consulted with the gastroenterologist and they feel that > he > > should not have the surgery in this " small town " hospital as they put it. > So, > > the surgeon and gastro feel that since he has a 30 percent chance of > mortality > > > if he has that surgery, that he should go to the Lahey clinic in > >Massachusetts. > > > > They are keeping him in here until they transport him via ambulance > within the > > > next few days. They at this time are not doing the gallbladder removal > either > > > > here or there, but will be evaluated for the liver. I have very little > money > >to > > > > stay there and am hoping that there is a place within the clinic that I > may > >stay > > > > since it is so far from my home. Please anyone, if I can get some > advice, I > > would welcome it. Thanks Bonnie > > > > > > > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, November 10, 2010 12:11:26 PM > > Subject: Re: Hi > > > >  > > Hello, my name is Bobby. I am a group moderator , and a male 46, > w/cirrhosis > > from alcoholism. In 2006, pain in my upper left quad as well as pain in > the > > upper right quad drove me to sobriety, and eventually a pain doctor. A > pain > > doctor is the ONLY way to recieve non toxic pain relief. Poppies are non > > poisionous. Almost every other type of pain relief is made in a test > tube. > > Poppies are also the most hated things on the planet, even as they are > the only > > > > thing that will bond with the MU opioid receptor and relieve the pain. > The war > > > on drugs has caused several synthetic and semi synthetics to be invented, > all > >in > > > > > > the hopes of removing the addictive potential from the drugs. Some people > get a > > > > bang out of eating, or sex or drinking, or gambling, many things can > cause > > actual addiction. Poppies will cause actual addiction too, but ONLY IF > > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you > disturb > > them. You have to GO LOOKING. > > > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. > Schedule 3 > > > > drugs are made to be poisiounous so that a regular doctor can write > > prescriptions for them. They cannot be abused with out killing your > liver. Pain > > > > doctors have a whole inventory from which they can prescribe any of about > 17 > > different alkaloids from poppies that do not have any tylenol and there > for are > > > > non toxic, and much much safer for someone with liver disease, not to > mention > > that they will relieve your pain. There is a hand book for intractable > pain > > survivors on our files section., You can download it. inside it are the > > instructions on how to legally obtain pain medicine and how to use it > > effectively. Staying out of the orange jumpsuit is a trickier matter. I > guess > >it > > > > > > all depends on how much radiology you have to back up your claim of being > in > > pain. the more the better. They see all kinds of folks with hundreds of > kinds > >of > > > > > > " algias " , and little radioligical evidence. Try to keep in mind that > these > > doctors are getting locked up every day. The are under tremendous > pressure from > > > > patients as well as the D.E.A. . > > They are going to want proof, so be prepared to produce your medical > records. > > Good luck, and welcome to our group. Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Tue, November 9, 2010 11:07:13 PM > > Subject: Hi > > > > New to group, and thank you for all the info you post on here.I have > liver > > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is > what > > > to take for spleen pain,I have Tramadol 50 mg but that was for my > back,has > > anyone took tramadol for spleen pain. Thank you > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2010 Report Share Posted November 13, 2010 jan, i do the samething and it drives my family crazy.but i guess its got sometihing todo with my illness i speak and don't care if anyone likes it.my drs know to be prepared when come because am learning more everyday question everything.if we don't the dr's will kill us. keep it bev ________________________________ To: livercirrhosissupport Sent: Sat, November 13, 2010 11:50:32 PM Subject: Re: Hi Jackie - you don't need to tell me about the dangers of high potassium. I went to my pcp, actually she was a nurse practicioner for something minor,she ordered some blood work. That clinic is actually an outreach for the local hospital 35 miles away, so they sent the blood work there that day/night. The next morning I get a call to come in right away for a redo on the blood work as there must have been something wrong with the sample, potassium was showing over 7 and 7.5 is as high as it gets. So, I drive myself to the clinic about a mile away as I had done the day before, they take the sample, rush it in to the lab, I get a call later that day and am told to have someone pickup a prescripton for me 35 miles away at the closest pharmacy at that time asap as most people who have potassium levels that high are diagnosed after going to the er by ambulance. I was feeling pretty good. But, I did get rid of that np later. I went online to check on my meds to see if they could be causing the problem after I had to be treated twice for it. And if I remember right the treatment must be something like lactulose. I found that a number of my meds were prone to dump potassium into my blood stream from the holding cell where it is supposed to stay until you need it. I printed it all out, brought it to her and asked if some of my meds should be changed. She told me to shut up , quit looking all this stuff up and do as I was told. I found a different doctor. Then I showed the same list to my cardio and he immediately changed my meds. I was just telling a friend on Tuesdaynight that I used to be a shy little thing, just took things as they came, my mother was always embarrassed when I did speak up. But, I have changed in the last years, and now speak up for myself and sometimes for others. When I met Ed, if he got a bad meal in restaurant, even if he had been there many times before, he would never say anything. He just never went back. But, when I started complaining for him, and sometimes for both of us, and we were given free meals and offered free dessert, he learned that it can help to open your mouth sometimes where it can make a difference, I have actually thought of writing a record of my life and raising my kids so they will have it after I have gone to look at and remember that even when I was a little rough, it was because I loved them. Another story for another place. Jan On Sat, Nov 13, 2010 at 10:00 AM, Jackie Ellermann wrote: > Hi Jan: Interesting story you told on here. I love your " book " . I'm > actually writing one too. On Nov. 1st we went for a consult with the kidney > drs at the transplant center. Not that my husband needs a kidney but they > want to make sure it stays that way. Some of those anti-rejection meds do a > number on the kidneys, and his potassium level keeps going up and down. We > figured as long as it was Monday and he was due for labs we would have his > bloodwork done at their lab. While we were sitting in the dr's office I got > a call from the transplant coordinator telling me that I have to get him to > the e.r. I said " why. He feels fine. " She told me his potassium was up to > 6.7 and the dr's nurse brought in a wheelchair and promptly wheeled us over > to the e.r. They gave him some meds in an IV and put a mask over his face > with a vapor for him to breathe in. It made his heart race and darn near > gave him a heart attack. They admitted him, > gave him 3 doses of K-exolate to bring down the potassium and were ready > to let us go home the next morning. Here's where it gets like an episode of > House, M.D. : As long as we were there I asked them if they could do the > scheduled CT scan of his chest and MRI of his abdomen and pelvis that they > had originally scheduled for Nov. 16th. " Sure, no problem " they said, and > proceeded to do so. The CT scan came back showing an air pocket in the > portal area of the liver and the MRI showed more air and thickening of the > colon. They called in colo-rectal specialists who wanted to do a > colonoscopy and possibly remove part of his colon. They also consulted with > an infectious disease group who tested him for CMV or C-Diff, both of which > came back negative 2 days later. Thank God his hepatologist stepped in and > put his foot down. He would not let these drs do a colonoscopy or even a > sigmoidoscopy for fear of an infection spreading. Being on > immuni-suppressants he would have no immune system to fight off > infection. To make a long story short, we were holed up there for a whole > week, finally came home Nov. 7th, before they let us out of there. We have > to go back to clinic on the 19th & these drs are gonna get a stern talking > to from me about having their heads up their asses! Thank God for the > hepatologist (who they all think is a geek, by the way). I always liked > that little geek! Hoping things will get back to normal around here now. > Jackie > > > > > He was transported to the Lahey clinic in Massachusetts today. That is a > > transplant center. I will be going up tomorrow. This was after he had > been > > in > > the hospital for 6 days. The surgeon felt that he should be there to be > > evaluated. He seems to think it is more the liver than the gall bladder > > that is > > causing his pain. I am hoping that he gets the best care there. They may > > not > > even take the gall bladder, but he will be in there for atleast 5 days > and > > I > > will keep u updated. This is the first response I have gotten to my > > questions, > > maybe i just needed to verify my email or something. Cuz usually I get > alot > > of > > feedback from u all. Thanks Bonnie > > > > > > > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Fri, November 12, 2010 9:12:05 PM > > Subject: Re: Hi > > > > > > I am curious about something. Has your husband been seen by a > hepatologist > > at a > > transplant center? I made the mistake of letting a general surgeon take > out > > my > > gallbladder. I did this because I was mislead by our family doctor. She > was > > waaaayyy over her head with my diagnosis, which has always puzzled even > the > > smartest specialists out here. One of the foremost doctors in the entire > > hepatology field was stumped by my case. My body is making a lot of > fools. > > They > > say everything looks real good, and then retract like crazy because they > > are > > missing things. " Mr. Aragon, you are fine...scratch that, you have a > > fatal > > disease. This statment has been made to me no less than THREE times!!!! I > > have a > > bone lesion now, which might indicate metastisized cancer in late stages. > > Or > > not. > > You husband probably needs the best hepatologist he can find. That is my > > advise. > > Love Bobby > > > > > > > > > > Hey Bobby, I was on here before and I just moved from Texas back to > > Maine. my > > > > > > husband is 54 and he is now in the hospital for the 5th day with > > gallstones. > > > > > The surgeon has consulted with the gastroenterologist and they feel > that > > he > > > should not have the surgery in this " small town " hospital as they put > it. > > So, > > > the surgeon and gastro feel that since he has a 30 percent chance of > > mortality > > > > > if he has that surgery, that he should go to the Lahey clinic in > > >Massachusetts. > > > > > > They are keeping him in here until they transport him via ambulance > > within the > > > > > next few days. They at this time are not doing the gallbladder removal > > either > > > > > > here or there, but will be evaluated for the liver. I have very little > > money > > >to > > > > > > stay there and am hoping that there is a place within the clinic that I > > may > > >stay > > > > > > since it is so far from my home. Please anyone, if I can get some > > advice, I > > > would welcome it. Thanks Bonnie > > > > > > > > > > > > > > > ________________________________ > > > > > > To: livercirrhosissupport > > > Sent: Wed, November 10, 2010 12:11:26 PM > > > Subject: Re: Hi > > > > > >  > > > Hello, my name is Bobby. I am a group moderator , and a male 46, > > w/cirrhosis > > > from alcoholism. In 2006, pain in my upper left quad as well as pain in > > the > > > upper right quad drove me to sobriety, and eventually a pain doctor. A > > pain > > > doctor is the ONLY way to recieve non toxic pain relief. Poppies are > non > > > poisionous. Almost every other type of pain relief is made in a test > > tube. > > > Poppies are also the most hated things on the planet, even as they are > > the only > > > > > > thing that will bond with the MU opioid receptor and relieve the pain. > > The war > > > > > on drugs has caused several synthetic and semi synthetics to be > invented, > > all > > >in > > > > > > > > > the hopes of removing the addictive potential from the drugs. Some > people > > get a > > > > > > bang out of eating, or sex or drinking, or gambling, many things can > > cause > > > actual addiction. Poppies will cause actual addiction too, but ONLY IF > > > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you > > disturb > > > them. You have to GO LOOKING. > > > > > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. > > Schedule 3 > > > > > > drugs are made to be poisiounous so that a regular doctor can write > > > prescriptions for them. They cannot be abused with out killing your > > liver. Pain > > > > > > doctors have a whole inventory from which they can prescribe any of > about > > 17 > > > different alkaloids from poppies that do not have any tylenol and there > > for are > > > > > > non toxic, and much much safer for someone with liver disease, not to > > mention > > > that they will relieve your pain. There is a hand book for intractable > > pain > > > survivors on our files section., You can download it. inside it are the > > > instructions on how to legally obtain pain medicine and how to use it > > > effectively. Staying out of the orange jumpsuit is a trickier matter. I > > guess > > >it > > > > > > > > > all depends on how much radiology you have to back up your claim of > being > > in > > > pain. the more the better. They see all kinds of folks with hundreds of > > kinds > > >of > > > > > > > > > " algias " , and little radioligical evidence. Try to keep in mind that > > these > > > doctors are getting locked up every day. The are under tremendous > > pressure from > > > > > > patients as well as the D.E.A. . > > > They are going to want proof, so be prepared to produce your medical > > records. > > > Good luck, and welcome to our group. Bobby > > > > > > ________________________________ > > > > > > To: livercirrhosissupport > > > Sent: Tue, November 9, 2010 11:07:13 PM > > > Subject: Hi > > > > > > New to group, and thank you for all the info you post on here.I have > > liver > > > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know > is > > what > > > > > to take for spleen pain,I have Tramadol 50 mg but that was for my > > back,has > > > anyone took tramadol for spleen pain. Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2010 Report Share Posted November 14, 2010 Hi everyone. Okay, my husband was released from Lahey Clinic in Mass today. he had many doctors overseeing the care. the first issue was removing his gall bladder. the surgeon said that he could remove it tomorrow, but if something were to go wrong with the liver and since he isnt on the transplant wait list, then it would be better to wait until he is. He will need to wait a couple of months to go before the transplant team. They feel that if his liver decompensates it may be better to wait til after hes approved. They also suggested he undergo alcohol counseling prior to meeting with the team. He will go back to mass in one month to meet with the doctor there, and then they will schedule him to undergo two days of testing. His Meld is 14, category B. He also has hep c. They say he has Liver Portal hypertension too. They sent him home with percocet without tylenol in it, and say that if his gall bladder hurts to take them. in the small hospital the docs said he has a thirty percent mortality rate if they take his gall bladder, but at Lahey clinic they say its only a ten percent. Also, they did set up a cot for me in his room, and parking was eight dollars a day. Thanks to everyone for being here to answer questions and for offering good wishes. Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, November 12, 2010 11:43:50 PM Subject: Re: Hi bonnie, good luck to you and your husband.hope they can figure out whats going on.my prayers are with you both. god bless bev,tx ________________________________ To: livercirrhosissupport Sent: Fri, November 12, 2010 10:34:06 PM Subject: Re: Hi He was transported to the Lahey clinic in Massachusetts today. That is a transplant center. I will be going up tomorrow. This was after he had been in the hospital for 6 days. The surgeon felt that he should be there to be evaluated. He seems to think it is more the liver than the gall bladder that is causing his pain. I am hoping that he gets the best care there. They may not even take the gall bladder, but he will be in there for atleast 5 days and I will keep u updated. This is the first response I have gotten to my questions, maybe i just needed to verify my email or something. Cuz usually I get alot of feedback from u all. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, November 12, 2010 9:12:05 PM Subject: Re: Hi I am curious about something. Has your husband been seen by a hepatologist at a transplant center? I made the mistake of letting a general surgeon take out my gallbladder. I did this because I was mislead by our family doctor. She was waaaayyy over her head with my diagnosis, which has always puzzled even the smartest specialists out here. One of the foremost doctors in the entire hepatology field was stumped by my case. My body is making a lot of fools. They say everything looks real good, and then retract like crazy because they are missing things. " Mr. Aragon, you are fine...scratch that, you have a fatal disease. This statment has been made to me no less than THREE times!!!! I have a bone lesion now, which might indicate metastisized cancer in late stages. Or not. You husband probably needs the best hepatologist he can find. That is my advise. Love Bobby > > Hey Bobby, I was on here before and I just moved from Texas back to Maine. my > > > > husband is 54 and he is now in the hospital for the 5th day with gallstones. > The surgeon has consulted with the gastroenterologist and they feel that he > should not have the surgery in this " small town " hospital as they put it. So, > the surgeon and gastro feel that since he has a 30 percent chance of mortality > if he has that surgery, that he should go to the Lahey clinic in >Massachusetts. > > They are keeping him in here until they transport him via ambulance within the > next few days. They at this time are not doing the gallbladder removal either > > > > here or there, but will be evaluated for the liver. I have very little money >to > > stay there and am hoping that there is a place within the clinic that I may >stay > > since it is so far from my home. Please anyone, if I can get some advice, I > would welcome it. Thanks Bonnie > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Wed, November 10, 2010 12:11:26 PM > Subject: Re: Hi > >  > Hello, my name is Bobby. I am a group moderator , and a male 46, w/cirrhosis > from alcoholism. In 2006, pain in my upper left quad as well as pain in the > upper right quad drove me to sobriety, and eventually a pain doctor. A pain > doctor is the ONLY way to recieve non toxic pain relief. Poppies are non > poisionous. Almost every other type of pain relief is made in a test tube. > Poppies are also the most hated things on the planet, even as they are the only > > > > thing that will bond with the MU opioid receptor and relieve the pain. The war > on drugs has caused several synthetic and semi synthetics to be invented, all >in > > > the hopes of removing the addictive potential from the drugs. Some people get a > > > > bang out of eating, or sex or drinking, or gambling, many things can cause > actual addiction. Poppies will cause actual addiction too, but ONLY IF > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you disturb > them. You have to GO LOOKING. > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. Schedule 3 > > > > drugs are made to be poisiounous so that a regular doctor can write > prescriptions for them. They cannot be abused with out killing your liver. Pain > > > > doctors have a whole inventory from which they can prescribe any of about 17 > different alkaloids from poppies that do not have any tylenol and there for are > > > > non toxic, and much much safer for someone with liver disease, not to mention > that they will relieve your pain. There is a hand book for intractable pain > survivors on our files section., You can download it. inside it are the > instructions on how to legally obtain pain medicine and how to use it > effectively. Staying out of the orange jumpsuit is a trickier matter. I guess >it > > > all depends on how much radiology you have to back up your claim of being in > pain. the more the better. They see all kinds of folks with hundreds of kinds >of > > > " algias " , and little radioligical evidence. Try to keep in mind that these > doctors are getting locked up every day. The are under tremendous pressure from > > > > patients as well as the D.E.A. . > They are going to want proof, so be prepared to produce your medical records. > Good luck, and welcome to our group. Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, November 9, 2010 11:07:13 PM > Subject: Hi > > New to group, and thank you for all the info you post on here.I have liver > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is what > to take for spleen pain,I have Tramadol 50 mg but that was for my back,has > anyone took tramadol for spleen pain. Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2010 Report Share Posted November 14, 2010 Bonnie Lee, glad he was able to come home, but sounds like he is going to have some rough going for a while. You didn't say it specifically, but sounds as if they are planning to take out the gall bladder at the same time they do the transplant. Hope that gets done soon. My liver problems were confirmed when I had a tube and overy removed and the doctor examined them and then I was referred to a gastrologist for a biopsy. Praying everything goes like clockwork for both of you. Jan On Sun, Nov 14, 2010 at 9:15 PM, Bonnie Lee wrote: > Hi everyone. Okay, my husband was released from Lahey Clinic in Mass > today. he > had many doctors overseeing the care. the first issue was removing his gall > bladder. the surgeon said that he could remove it tomorrow, but if > something > were to go wrong with the liver and since he isnt on the transplant wait > list, > then it would be better to wait until he is. He will need to wait a couple > of > months to go before the transplant team. They feel that if his liver > decompensates it may be better to wait til after hes approved. They also > suggested he undergo alcohol counseling prior to meeting with the team. He > will > go back to mass in one month to meet with the doctor there, and then they > will > schedule him to undergo two days of testing. His Meld is 14, category B. > He > also has hep c. They say he has Liver Portal hypertension too. They sent > him > home with percocet without tylenol in it, and say that if his gall bladder > hurts > to take them. in the small hospital the docs said he has a thirty percent > mortality rate if they take his gall bladder, but at Lahey clinic they say > its > only a ten percent. Also, they did set up a cot for me in his room, and > parking > was eight dollars a day. Thanks to everyone for being here to answer > questions > and for offering good wishes. Bonnie > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, November 12, 2010 11:43:50 PM > Subject: Re: Hi > > > bonnie, > good luck to you and your husband.hope they can figure out whats going > on.my > prayers are with you both. > > god bless > > bev,tx > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, November 12, 2010 10:34:06 PM > Subject: Re: Hi > > He was transported to the Lahey clinic in Massachusetts today. That is a > transplant center. I will be going up tomorrow. This was after he had been > in > the hospital for 6 days. The surgeon felt that he should be there to be > evaluated. He seems to think it is more the liver than the gall bladder > that is > > > causing his pain. I am hoping that he gets the best care there. They may > not > even take the gall bladder, but he will be in there for atleast 5 days and > I > will keep u updated. This is the first response I have gotten to my > questions, > maybe i just needed to verify my email or something. Cuz usually I get alot > of > feedback from u all. Thanks Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, November 12, 2010 9:12:05 PM > Subject: Re: Hi > > I am curious about something. Has your husband been seen by a hepatologist > at a > transplant center? I made the mistake of letting a general surgeon take out > my > gallbladder. I did this because I was mislead by our family doctor. She was > waaaayyy over her head with my diagnosis, which has always puzzled even the > smartest specialists out here. One of the foremost doctors in the entire > hepatology field was stumped by my case. My body is making a lot of fools. > They > > > say everything looks real good, and then retract like crazy because they > are > missing things. " Mr. Aragon, you are fine...scratch that, you have a > fatal > disease. This statment has been made to me no less than THREE times!!!! I > have a > > > bone lesion now, which might indicate metastisized cancer in late stages. > Or > not. > You husband probably needs the best hepatologist he can find. That is my > advise. > > > Love Bobby > > > > > > Hey Bobby, I was on here before and I just moved from Texas back to > Maine. my > > > > > > > > husband is 54 and he is now in the hospital for the 5th day with > gallstones. > > > The surgeon has consulted with the gastroenterologist and they feel that > he > > should not have the surgery in this " small town " hospital as they put it. > So, > > the surgeon and gastro feel that since he has a 30 percent chance of > mortality > > > > if he has that surgery, that he should go to the Lahey clinic in > >Massachusetts. > > > > They are keeping him in here until they transport him via ambulance > within the > > > > next few days. They at this time are not doing the gallbladder removal > either > > > > > > > > here or there, but will be evaluated for the liver. I have very little > money > > > >to > > > > stay there and am hoping that there is a place within the clinic that I > may > >stay > > > > since it is so far from my home. Please anyone, if I can get some > advice, I > > would welcome it. Thanks Bonnie > > > > > > > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, November 10, 2010 12:11:26 PM > > Subject: Re: Hi > > > >  > > Hello, my name is Bobby. I am a group moderator , and a male 46, > w/cirrhosis > > from alcoholism. In 2006, pain in my upper left quad as well as pain in > the > > upper right quad drove me to sobriety, and eventually a pain doctor. A > pain > > doctor is the ONLY way to recieve non toxic pain relief. Poppies are non > > poisionous. Almost every other type of pain relief is made in a test > tube. > > Poppies are also the most hated things on the planet, even as they are > the only > > > > > > > > thing that will bond with the MU opioid receptor and relieve the pain. > The war > > > > on drugs has caused several synthetic and semi synthetics to be invented, > all > >in > > > > > > the hopes of removing the addictive potential from the drugs. Some people > get a > > > > > > > > bang out of eating, or sex or drinking, or gambling, many things can > cause > > actual addiction. Poppies will cause actual addiction too, but ONLY IF > > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you > disturb > > them. You have to GO LOOKING. > > > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. > Schedule 3 > > > > > > > > drugs are made to be poisiounous so that a regular doctor can write > > prescriptions for them. They cannot be abused with out killing your > liver. Pain > > > > > > > > doctors have a whole inventory from which they can prescribe any of about > 17 > > different alkaloids from poppies that do not have any tylenol and there > for are > > > > > > > > non toxic, and much much safer for someone with liver disease, not to > mention > > that they will relieve your pain. There is a hand book for intractable > pain > > survivors on our files section., You can download it. inside it are the > > instructions on how to legally obtain pain medicine and how to use it > > effectively. Staying out of the orange jumpsuit is a trickier matter. I > guess > >it > > > > > > all depends on how much radiology you have to back up your claim of being > in > > pain. the more the better. They see all kinds of folks with hundreds of > kinds > >of > > > > > > " algias " , and little radioligical evidence. Try to keep in mind that > these > > doctors are getting locked up every day. The are under tremendous > pressure from > > > > > > > > patients as well as the D.E.A. . > > They are going to want proof, so be prepared to produce your medical > records. > > Good luck, and welcome to our group. Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Tue, November 9, 2010 11:07:13 PM > > Subject: Hi > > > > New to group, and thank you for all the info you post on here.I have > liver > > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is > what > > > > to take for spleen pain,I have Tramadol 50 mg but that was for my > back,has > > anyone took tramadol for spleen pain. Thank you > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2010 Report Share Posted November 14, 2010 no, once he get on the list for the transplant, then they will take out the gall bladder, this is in case the liver fails after taking out the gall bladder they want to have him already on the list. yeah a lot of " stuff " happening. 3 hours drive and no money to spare. grrr. I will just put it all in God's hands. :0) ________________________________ To: livercirrhosissupport Sent: Sun, November 14, 2010 11:30:45 PM Subject: Re: Hi Bonnie Lee, glad he was able to come home, but sounds like he is going to have some rough going for a while. You didn't say it specifically, but sounds as if they are planning to take out the gall bladder at the same time they do the transplant. Hope that gets done soon. My liver problems were confirmed when I had a tube and overy removed and the doctor examined them and then I was referred to a gastrologist for a biopsy. Praying everything goes like clockwork for both of you. Jan On Sun, Nov 14, 2010 at 9:15 PM, Bonnie Lee wrote: > Hi everyone. Okay, my husband was released from Lahey Clinic in Mass > today. he > had many doctors overseeing the care. the first issue was removing his gall > bladder. the surgeon said that he could remove it tomorrow, but if > something > were to go wrong with the liver and since he isnt on the transplant wait > list, > then it would be better to wait until he is. He will need to wait a couple > of > months to go before the transplant team. They feel that if his liver > decompensates it may be better to wait til after hes approved. They also > suggested he undergo alcohol counseling prior to meeting with the team. He > will > go back to mass in one month to meet with the doctor there, and then they > will > schedule him to undergo two days of testing. His Meld is 14, category B. > He > also has hep c. They say he has Liver Portal hypertension too. They sent > him > home with percocet without tylenol in it, and say that if his gall bladder > hurts > to take them. in the small hospital the docs said he has a thirty percent > mortality rate if they take his gall bladder, but at Lahey clinic they say > its > only a ten percent. Also, they did set up a cot for me in his room, and > parking > was eight dollars a day. Thanks to everyone for being here to answer > questions > and for offering good wishes. Bonnie > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, November 12, 2010 11:43:50 PM > Subject: Re: Hi > > > bonnie, > good luck to you and your husband.hope they can figure out whats going > on.my > prayers are with you both. > > god bless > > bev,tx > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, November 12, 2010 10:34:06 PM > Subject: Re: Hi > > He was transported to the Lahey clinic in Massachusetts today. That is a > transplant center. I will be going up tomorrow. This was after he had been > in > the hospital for 6 days. The surgeon felt that he should be there to be > evaluated. He seems to think it is more the liver than the gall bladder > that is > > > causing his pain. I am hoping that he gets the best care there. They may > not > even take the gall bladder, but he will be in there for atleast 5 days and > I > will keep u updated. This is the first response I have gotten to my > questions, > maybe i just needed to verify my email or something. Cuz usually I get alot > of > feedback from u all. Thanks Bonnie > > ________________________________ > > To: livercirrhosissupport > Sent: Fri, November 12, 2010 9:12:05 PM > Subject: Re: Hi > > I am curious about something. Has your husband been seen by a hepatologist > at a > transplant center? I made the mistake of letting a general surgeon take out > my > gallbladder. I did this because I was mislead by our family doctor. She was > waaaayyy over her head with my diagnosis, which has always puzzled even the > smartest specialists out here. One of the foremost doctors in the entire > hepatology field was stumped by my case. My body is making a lot of fools. > They > > > say everything looks real good, and then retract like crazy because they > are > missing things. " Mr. Aragon, you are fine...scratch that, you have a > fatal > disease. This statment has been made to me no less than THREE times!!!! I > have a > > > bone lesion now, which might indicate metastisized cancer in late stages. > Or > not. > You husband probably needs the best hepatologist he can find. That is my > advise. > > > Love Bobby > > > > > > Hey Bobby, I was on here before and I just moved from Texas back to > Maine. my > > > > > > > > husband is 54 and he is now in the hospital for the 5th day with > gallstones. > > > The surgeon has consulted with the gastroenterologist and they feel that > he > > should not have the surgery in this " small town " hospital as they put it. > So, > > the surgeon and gastro feel that since he has a 30 percent chance of > mortality > > > > if he has that surgery, that he should go to the Lahey clinic in > >Massachusetts. > > > > They are keeping him in here until they transport him via ambulance > within the > > > > next few days. They at this time are not doing the gallbladder removal > either > > > > > > > > here or there, but will be evaluated for the liver. I have very little > money > > > >to > > > > stay there and am hoping that there is a place within the clinic that I > may > >stay > > > > since it is so far from my home. Please anyone, if I can get some > advice, I > > would welcome it. Thanks Bonnie > > > > > > > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, November 10, 2010 12:11:26 PM > > Subject: Re: Hi > > > >  > > Hello, my name is Bobby. I am a group moderator , and a male 46, > w/cirrhosis > > from alcoholism. In 2006, pain in my upper left quad as well as pain in > the > > upper right quad drove me to sobriety, and eventually a pain doctor. A > pain > > doctor is the ONLY way to recieve non toxic pain relief. Poppies are non > > poisionous. Almost every other type of pain relief is made in a test > tube. > > Poppies are also the most hated things on the planet, even as they are > the only > > > > > > > > thing that will bond with the MU opioid receptor and relieve the pain. > The war > > > > on drugs has caused several synthetic and semi synthetics to be invented, > all > >in > > > > > > the hopes of removing the addictive potential from the drugs. Some people > get a > > > > > > > > bang out of eating, or sex or drinking, or gambling, many things can > cause > > actual addiction. Poppies will cause actual addiction too, but ONLY IF > > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you > disturb > > them. You have to GO LOOKING. > > > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. > Schedule 3 > > > > > > > > drugs are made to be poisiounous so that a regular doctor can write > > prescriptions for them. They cannot be abused with out killing your > liver. Pain > > > > > > > > doctors have a whole inventory from which they can prescribe any of about > 17 > > different alkaloids from poppies that do not have any tylenol and there > for are > > > > > > > > non toxic, and much much safer for someone with liver disease, not to > mention > > that they will relieve your pain. There is a hand book for intractable > pain > > survivors on our files section., You can download it. inside it are the > > instructions on how to legally obtain pain medicine and how to use it > > effectively. Staying out of the orange jumpsuit is a trickier matter. I > guess > >it > > > > > > all depends on how much radiology you have to back up your claim of being > in > > pain. the more the better. They see all kinds of folks with hundreds of > kinds > >of > > > > > > " algias " , and little radioligical evidence. Try to keep in mind that > these > > doctors are getting locked up every day. The are under tremendous > pressure from > > > > > > > > patients as well as the D.E.A. . > > They are going to want proof, so be prepared to produce your medical > records. > > Good luck, and welcome to our group. Bobby > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Tue, November 9, 2010 11:07:13 PM > > Subject: Hi > > > > New to group, and thank you for all the info you post on here.I have > liver > > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is > what > > > > to take for spleen pain,I have Tramadol 50 mg but that was for my > back,has > > anyone took tramadol for spleen pain. Thank you > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2010 Report Share Posted November 15, 2010 There does seem to be some kind of breakdown in our communication, it seems as if you might not get our replies. Several people responded to you in the past, but you seemd to not be getting thier message. We have not hear from you in a while. I am so glad that your husband is going to a transplant center. They will follow the standard of care, and give him the very best chanced at survival. We are here to support you, Bonnie. Our thoughts and prayers are with you right now. Please keep us informed... even though I might not be able to answer right away, I try to keep up with the messages. I have been under the weather lately, and my wife and I are going through a lot, with my impending biopsy and tests and her MRI and possible neck fusion, and maybe even trans oral brain surgery(through the roof of her mouth). Love, Bobby ________________________________ To: livercirrhosissupport Sent: Fri, November 12, 2010 9:34:06 PM Subject: Re: Hi He was transported to the Lahey clinic in Massachusetts today. That is a transplant center. I will be going up tomorrow. This was after he had been in the hospital for 6 days. The surgeon felt that he should be there to be evaluated. He seems to think it is more the liver than the gall bladder that is causing his pain. I am hoping that he gets the best care there. They may not even take the gall bladder, but he will be in there for atleast 5 days and I will keep u updated. This is the first response I have gotten to my questions, maybe i just needed to verify my email or something. Cuz usually I get alot of feedback from u all. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, November 12, 2010 9:12:05 PM Subject: Re: Hi I am curious about something. Has your husband been seen by a hepatologist at a transplant center? I made the mistake of letting a general surgeon take out my gallbladder. I did this because I was mislead by our family doctor. She was waaaayyy over her head with my diagnosis, which has always puzzled even the smartest specialists out here. One of the foremost doctors in the entire hepatology field was stumped by my case. My body is making a lot of fools. They say everything looks real good, and then retract like crazy because they are missing things. " Mr. Aragon, you are fine...scratch that, you have a fatal disease. This statment has been made to me no less than THREE times!!!! I have a bone lesion now, which might indicate metastisized cancer in late stages. Or not. You husband probably needs the best hepatologist he can find. That is my advise. Love Bobby > > Hey Bobby, I was on here before and I just moved from Texas back to Maine. my > > > husband is 54 and he is now in the hospital for the 5th day with gallstones. > The surgeon has consulted with the gastroenterologist and they feel that he > should not have the surgery in this " small town " hospital as they put it. So, > the surgeon and gastro feel that since he has a 30 percent chance of mortality > if he has that surgery, that he should go to the Lahey clinic in >Massachusetts. > > They are keeping him in here until they transport him via ambulance within the > next few days. They at this time are not doing the gallbladder removal either > > > here or there, but will be evaluated for the liver. I have very little money >to > > stay there and am hoping that there is a place within the clinic that I may >stay > > since it is so far from my home. Please anyone, if I can get some advice, I > would welcome it. Thanks Bonnie > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Wed, November 10, 2010 12:11:26 PM > Subject: Re: Hi > >  > Hello, my name is Bobby. I am a group moderator , and a male 46, w/cirrhosis > from alcoholism. In 2006, pain in my upper left quad as well as pain in the > upper right quad drove me to sobriety, and eventually a pain doctor. A pain > doctor is the ONLY way to recieve non toxic pain relief. Poppies are non > poisionous. Almost every other type of pain relief is made in a test tube. > Poppies are also the most hated things on the planet, even as they are the only > > > thing that will bond with the MU opioid receptor and relieve the pain. The war > on drugs has caused several synthetic and semi synthetics to be invented, all >in > > > the hopes of removing the addictive potential from the drugs. Some people get a > > > bang out of eating, or sex or drinking, or gambling, many things can cause > actual addiction. Poppies will cause actual addiction too, but ONLY IF > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you disturb > them. You have to GO LOOKING. > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. Schedule 3 > > > drugs are made to be poisiounous so that a regular doctor can write > prescriptions for them. They cannot be abused with out killing your liver. Pain > > > doctors have a whole inventory from which they can prescribe any of about 17 > different alkaloids from poppies that do not have any tylenol and there for are > > > non toxic, and much much safer for someone with liver disease, not to mention > that they will relieve your pain. There is a hand book for intractable pain > survivors on our files section., You can download it. inside it are the > instructions on how to legally obtain pain medicine and how to use it > effectively. Staying out of the orange jumpsuit is a trickier matter. I guess >it > > > all depends on how much radiology you have to back up your claim of being in > pain. the more the better. They see all kinds of folks with hundreds of kinds >of > > > " algias " , and little radioligical evidence. Try to keep in mind that these > doctors are getting locked up every day. The are under tremendous pressure from > > > patients as well as the D.E.A. . > They are going to want proof, so be prepared to produce your medical records. > Good luck, and welcome to our group. Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, November 9, 2010 11:07:13 PM > Subject: Hi > > New to group, and thank you for all the info you post on here.I have liver > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is what > to take for spleen pain,I have Tramadol 50 mg but that was for my back,has > anyone took tramadol for spleen pain. Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2010 Report Share Posted November 15, 2010 i got that one bobby, sorry to hear about all of the crap u have to endure. thanks to all of you for ur help and advice. Bonnie ________________________________ To: livercirrhosissupport Sent: Mon, November 15, 2010 10:11:51 AM Subject: Re: Hi There does seem to be some kind of breakdown in our communication, it seems as if you might not get our replies. Several people responded to you in the past, but you seemd to not be getting thier message. We have not hear from you in a while. I am so glad that your husband is going to a transplant center. They will follow the standard of care, and give him the very best chanced at survival. We are here to support you, Bonnie. Our thoughts and prayers are with you right now. Please keep us informed... even though I might not be able to answer right away, I try to keep up with the messages. I have been under the weather lately, and my wife and I are going through a lot, with my impending biopsy and tests and her MRI and possible neck fusion, and maybe even trans oral brain surgery(through the roof of her mouth). Love, Bobby ________________________________ To: livercirrhosissupport Sent: Fri, November 12, 2010 9:34:06 PM Subject: Re: Hi He was transported to the Lahey clinic in Massachusetts today. That is a transplant center. I will be going up tomorrow. This was after he had been in the hospital for 6 days. The surgeon felt that he should be there to be evaluated. He seems to think it is more the liver than the gall bladder that is causing his pain. I am hoping that he gets the best care there. They may not even take the gall bladder, but he will be in there for atleast 5 days and I will keep u updated. This is the first response I have gotten to my questions, maybe i just needed to verify my email or something. Cuz usually I get alot of feedback from u all. Thanks Bonnie ________________________________ To: livercirrhosissupport Sent: Fri, November 12, 2010 9:12:05 PM Subject: Re: Hi I am curious about something. Has your husband been seen by a hepatologist at a transplant center? I made the mistake of letting a general surgeon take out my gallbladder. I did this because I was mislead by our family doctor. She was waaaayyy over her head with my diagnosis, which has always puzzled even the smartest specialists out here. One of the foremost doctors in the entire hepatology field was stumped by my case. My body is making a lot of fools. They say everything looks real good, and then retract like crazy because they are missing things. " Mr. Aragon, you are fine...scratch that, you have a fatal disease. This statment has been made to me no less than THREE times!!!! I have a bone lesion now, which might indicate metastisized cancer in late stages. Or not. You husband probably needs the best hepatologist he can find. That is my advise. Love Bobby > > Hey Bobby, I was on here before and I just moved from Texas back to Maine. my > > > > husband is 54 and he is now in the hospital for the 5th day with gallstones. > The surgeon has consulted with the gastroenterologist and they feel that he > should not have the surgery in this " small town " hospital as they put it. So, > the surgeon and gastro feel that since he has a 30 percent chance of mortality > if he has that surgery, that he should go to the Lahey clinic in >Massachusetts. > > They are keeping him in here until they transport him via ambulance within the > next few days. They at this time are not doing the gallbladder removal either > > > > here or there, but will be evaluated for the liver. I have very little money >to > > stay there and am hoping that there is a place within the clinic that I may >stay > > since it is so far from my home. Please anyone, if I can get some advice, I > would welcome it. Thanks Bonnie > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Wed, November 10, 2010 12:11:26 PM > Subject: Re: Hi > >  > Hello, my name is Bobby. I am a group moderator , and a male 46, w/cirrhosis > from alcoholism. In 2006, pain in my upper left quad as well as pain in the > upper right quad drove me to sobriety, and eventually a pain doctor. A pain > doctor is the ONLY way to recieve non toxic pain relief. Poppies are non > poisionous. Almost every other type of pain relief is made in a test tube. > Poppies are also the most hated things on the planet, even as they are the only > > > > thing that will bond with the MU opioid receptor and relieve the pain. The war > on drugs has caused several synthetic and semi synthetics to be invented, all >in > > > the hopes of removing the addictive potential from the drugs. Some people get a > > > > bang out of eating, or sex or drinking, or gambling, many things can cause > actual addiction. Poppies will cause actual addiction too, but ONLY IF > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you disturb > them. You have to GO LOOKING. > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. Schedule 3 > > > > drugs are made to be poisiounous so that a regular doctor can write > prescriptions for them. They cannot be abused with out killing your liver. Pain > > > > doctors have a whole inventory from which they can prescribe any of about 17 > different alkaloids from poppies that do not have any tylenol and there for are > > > > non toxic, and much much safer for someone with liver disease, not to mention > that they will relieve your pain. There is a hand book for intractable pain > survivors on our files section., You can download it. inside it are the > instructions on how to legally obtain pain medicine and how to use it > effectively. Staying out of the orange jumpsuit is a trickier matter. I guess >it > > > all depends on how much radiology you have to back up your claim of being in > pain. the more the better. They see all kinds of folks with hundreds of kinds >of > > > " algias " , and little radioligical evidence. Try to keep in mind that these > doctors are getting locked up every day. The are under tremendous pressure from > > > > patients as well as the D.E.A. . > They are going to want proof, so be prepared to produce your medical records. > Good luck, and welcome to our group. Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, November 9, 2010 11:07:13 PM > Subject: Hi > > New to group, and thank you for all the info you post on here.I have liver > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is what > to take for spleen pain,I have Tramadol 50 mg but that was for my back,has > anyone took tramadol for spleen pain. Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2010 Report Share Posted November 15, 2010 I'm glad he is able to get back home. I hope they do the evaluation for a liver transplant soon. I had my umbilical hernia fixed before my transplant and I was already on the list so I was in the transplant section when I had it done. I was already decompensated, but that little surgery seemed to make things worse, so I went home for a day but had to go back the next day, and stay until I got my transplant. Those little surgeries can make things worse for your liver so they want to make sure you are on the list before doing them. They always take the gallbladder out anyway when you get a liver transplant. Mine was taken out and I never had any problems with it. The gallbladder is tucked right under so close to the liver. Penny > > > > > > Hey Bobby, I was on here before and I just moved from Texas back to > > Maine. my > > > > > > > > > > > > husband is 54 and he is now in the hospital for the 5th day with > > gallstones. > > > > > The surgeon has consulted with the gastroenterologist and they feel that > > he > > > should not have the surgery in this " small town " hospital as they put it. > > So, > > > the surgeon and gastro feel that since he has a 30 percent chance of > > mortality > > > > > > > if he has that surgery, that he should go to the Lahey clinic in > > >Massachusetts. > > > > > > They are keeping him in here until they transport him via ambulance > > within the > > > > > > > next few days. They at this time are not doing the gallbladder removal > > either > > > > > > > > > > > > here or there, but will be evaluated for the liver. I have very little > > money > > > > > > >to > > > > > > stay there and am hoping that there is a place within the clinic that I > > may > > >stay > > > > > > since it is so far from my home. Please anyone, if I can get some > > advice, I > > > would welcome it. Thanks Bonnie > > > > > > > > > > > > > > > ________________________________ > > > From: Bob Aragon <robwalkingeagle@> > > > To: livercirrhosissupport > > > Sent: Wed, November 10, 2010 12:11:26 PM > > > Subject: Re: Hi > > > > > >  > > > Hello, my name is Bobby. I am a group moderator , and a male 46, > > w/cirrhosis > > > from alcoholism. In 2006, pain in my upper left quad as well as pain in > > the > > > upper right quad drove me to sobriety, and eventually a pain doctor. A > > pain > > > doctor is the ONLY way to recieve non toxic pain relief. Poppies are non > > > poisionous. Almost every other type of pain relief is made in a test > > tube. > > > Poppies are also the most hated things on the planet, even as they are > > the only > > > > > > > > > > > > thing that will bond with the MU opioid receptor and relieve the pain. > > The war > > > > > > > on drugs has caused several synthetic and semi synthetics to be invented, > > all > > >in > > > > > > > > > the hopes of removing the addictive potential from the drugs. Some people > > get a > > > > > > > > > > > > bang out of eating, or sex or drinking, or gambling, many things can > > cause > > > actual addiction. Poppies will cause actual addiction too, but ONLY IF > > > INTENTIONALLY ABUSED. Kind of like some snakes will only bite if you > > disturb > > > them. You have to GO LOOKING. > > > > > > Norco, vicodin, lortab, percocet, all of these drugs are schedule 3. > > Schedule 3 > > > > > > > > > > > > drugs are made to be poisiounous so that a regular doctor can write > > > prescriptions for them. They cannot be abused with out killing your > > liver. Pain > > > > > > > > > > > > doctors have a whole inventory from which they can prescribe any of about > > 17 > > > different alkaloids from poppies that do not have any tylenol and there > > for are > > > > > > > > > > > > non toxic, and much much safer for someone with liver disease, not to > > mention > > > that they will relieve your pain. There is a hand book for intractable > > pain > > > survivors on our files section., You can download it. inside it are the > > > instructions on how to legally obtain pain medicine and how to use it > > > effectively. Staying out of the orange jumpsuit is a trickier matter. I > > guess > > >it > > > > > > > > > all depends on how much radiology you have to back up your claim of being > > in > > > pain. the more the better. They see all kinds of folks with hundreds of > > kinds > > >of > > > > > > > > > " algias " , and little radioligical evidence. Try to keep in mind that > > these > > > doctors are getting locked up every day. The are under tremendous > > pressure from > > > > > > > > > > > > patients as well as the D.E.A. . > > > They are going to want proof, so be prepared to produce your medical > > records. > > > Good luck, and welcome to our group. Bobby > > > > > > ________________________________ > > > From: Ron <rondogg61@> > > > To: livercirrhosissupport > > > Sent: Tue, November 9, 2010 11:07:13 PM > > > Subject: Hi > > > > > > New to group, and thank you for all the info you post on here.I have > > liver > > > cirrhosiss with Hep c enlarged liver and spleen. What I wanted to know is > > what > > > > > > > to take for spleen pain,I have Tramadol 50 mg but that was for my > > back,has > > > anyone took tramadol for spleen pain. Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
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