Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 I am sad for your sister and you. So far I have not developed encephalopathy and hope I do not..It is my greatest fear with this disease.  ..it seems many, perhaps most, who drink actively do bounce back from abstinance, clean living, and the benefits of taking med's properly, eating proper, etc. Hopefully she will quit drinking..likely she will improve if she does, but for sure she will continue getting worse if she does not..hang in there Gehri. She is lucky to have a caring sibling that is being there for her. Ultimately that is about all you can do, being there. The rest is up to her.   Dave ________________________________ To: livercirrhosissupport Sent: Wed, May 12, 2010 10:07:35 AM Subject: Hi  Hi, my name is Gehri, and my sister recently was hospitalized and diagnosed with Cirrhosis from alcohol. She is very sick, and I don't know what to expect. She actually has not looked well for over a year, she's lost a lot of weight, tired all of the time, complained of stomach pain and constipation. Finally, a trip to urgent care led to the er, which led to hospitalization. Her eyes are yellow, she has ammonia in her blood, and they are giving her lactulose to reduce it. Her speech has been slow, but when I saw her the other day she couldn't speak at all, hold a pen, and has not been able to go to the bathroom by herself. She is still not eating, and continuing to lose weight. I need to know if she is going to rebound from this. The hepatic encephalopathy is the most troubling, because she's altered, confused, and in and out of it most of the time. I feel so bad because if she had addressed this a year ago, she would probably be better. Anyone here with experience with this, or has a loved one with this, please let me know what to expect. Sorry So Long Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Hi Dave. Thank you for responding. My sister had actually stopped drinking a month or so before she fell ill. She is not at the point to do the healthly lifestyle thing, as she's still in the hospital very sick and not able to go to the bathroom on her own, hold her own cup, walk...anything. She has been sick for a long time, but wouldn't go see about it. This is her first hospitalization with this, and I'm just praying she will be able to walk out of there, not die there. She was in denial that something was wrong for so long, but if she had just gone earlier, she may have been able to stop drinking, eat better, etc. Right now, I just don't know. As of a few hours ago, her daughter told me they were taking her to x-ray her stomach to see why she's in so much pain...I pray it's not varicies. You hang in there, too. I can only imagine the road you've traveled with this disease, and I hope you will be able to live a productive, healthier life. Blessings, Gehri ________________________________ To: livercirrhosissupport Sent: Wed, May 12, 2010 2:35:27 PM Subject: Re: Hi  I am sad for your sister and you. So far I have not developed encephalop athy and hope I do not..It is my greatest fear with this disease.  ..it seems many, perhaps most, who drink actively do bounce back from abstinance, clean living, and the benefits of taking med's properly, eating proper, etc. Hopefully she will quit drinking..likely she will improve if she does, but for sure she will continue getting worse if she does not..hang in there Gehri. She is lucky to have a caring sibling that is being there for her. Ultimately that is about all you can do, being there. The rest is up to her.   Dave ____________ _________ _________ __ From: sisterlockqueen319 <sisterlockqueen319@ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wed, May 12, 2010 10:07:35 AM Subject: Hi  Hi, my name is Gehri, and my sister recently was hospitalized and diagnosed with Cirrhosis from alcohol. She is very sick, and I don't know what to expect. She actually has not looked well for over a year, she's lost a lot of weight, tired all of the time, complained of stomach pain and constipation. Finally, a trip to urgent care led to the er, which led to hospitalization. Her eyes are yellow, she has ammonia in her blood, and they are giving her lactulose to reduce it. Her speech has been slow, but when I saw her the other day she couldn't speak at all, hold a pen, and has not been able to go to the bathroom by herself. She is still not eating, and continuing to lose weight. I need to know if she is going to rebound from this. The hepatic encephalopathy is the most troubling, because she's altered, confused, and in and out of it most of the time. I feel so bad because if she had addressed this a year ago, she would probably be better. Anyone here with experience with this, or has a loved one with this, please let me know what to expect. Sorry So Long Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 She may have varices, but I have it and experience no pain from it..even when I've had bleeds I had no pain..others may be different perhaps..her pain may be from as- cites..hopefully they will get her amonia levels down and some clarity will return....others here have experience with encephalopathy and can offer good advice..I would think much of her problems are being caused by that..hang in there..peace and comfort to you all,  Dave ________________________________ To: livercirrhosissupport Sent: Wed, May 12, 2010 4:15:25 PM Subject: Re: Hi  Hi Dave. Thank you for responding. My sister had actually stopped drinking a month or so before she fell ill. She is not at the point to do the healthly lifestyle thing, as she's still in the hospital very sick and not able to go to the bathroom on her own, hold her own cup, walk...anything. She has been sick for a long time, but wouldn't go see about it. This is her first hospitalization with this, and I'm just praying she will be able to walk out of there, not die there. She was in denial that something was wrong for so long, but if she had just gone earlier, she may have been able to stop drinking, eat better, etc. Right now, I just don't know. As of a few hours ago, her daughter told me they were taking her to x-ray her stomach to see why she's in so much pain...I pray it's not varicies. You hang in there, too. I can only imagine the road you've traveled with this disease, and I hope you will be able to live a productive, healthier life. Blessings, Gehri ____________ _________ _________ __ From: dave dodds <daveliltoeyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wed, May 12, 2010 2:35:27 PM Subject: Re: Hi  I am sad for your sister and you. So far I have not developed encephalop athy and hope I do not..It is my greatest fear with this disease.  ..it seems many, perhaps most, who drink actively do bounce back from abstinance, clean living, and the benefits of taking med's properly, eating proper, etc. Hopefully she will quit drinking..likely she will improve if she does, but for sure she will continue getting worse if she does not..hang in there Gehri. She is lucky to have a caring sibling that is being there for her. Ultimately that is about all you can do, being there. The rest is up to her.   Dave ____________ _________ _________ __ From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wed, May 12, 2010 10:07:35 AM Subject: Hi  Hi, my name is Gehri, and my sister recently was hospitalized and diagnosed with Cirrhosis from alcohol. She is very sick, and I don't know what to expect. She actually has not looked well for over a year, she's lost a lot of weight, tired all of the time, complained of stomach pain and constipation. Finally, a trip to urgent care led to the er, which led to hospitalization. Her eyes are yellow, she has ammonia in her blood, and they are giving her lactulose to reduce it. Her speech has been slow, but when I saw her the other day she couldn't speak at all, hold a pen, and has not been able to go to the bathroom by herself. She is still not eating, and continuing to lose weight. I need to know if she is going to rebound from this. The hepatic encephalopathy is the most troubling, because she's altered, confused, and in and out of it most of the time. I feel so bad because if she had addressed this a year ago, she would probably be better. Anyone here with experience with this, or has a loved one with this, please let me know what to expect. Sorry So Long Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Gehri I have to agree with Dave on all he has said!! The most horrible thing about alcoholism etc., is what it actually does to those around that person. Even as a recovering alcoholic myself, I occasionally get frustrated that others can not seem to find a good enough reason to put the addiction aside and get the necessary help. Then, hopefully, they would do it before getting as sick as your sister is now. I'll just pray that she rallies from this and actually realizes how much you love her!!! It's definitely a difficult path for you, with no doubt. Even at the level that your sister is at right now, there is a whole lot of hope!! The hospital will fight hard to get this under control and she'll rebound, even though likely she will have to entirely change her lifestyle, diet and all!! But the proof that it is absolutely possible, is in the stories of a number of people in this site. I know for sure that I am honoured and awed by the fighting spirit here. I also feel sooo grateful that at this point, it appears that I may not have to lose my liver to cirrhosis because of some top-notch help from the medical community. Please, let us know how it is going for you, as well as your sister. Gloria ________________________________ She may have varices, but I have it and experience no pain from it..even when I've had bleeds I had no pain..others may be different perhaps..her pain may be from as- cites..hopefully they will get her amonia levels down and some clarity will return....others here have experience with encephalopathy and can offer good advice..I would think much of her problems are being caused by that..hang in there..peace and comfort to you all, Dave ________________________________ To: livercirrhosissupport Sent: Wed, May 12, 2010 4:15:25 PM Subject: Re: Hi Hi Dave. Thank you for responding. My sister had actually stopped drinking a month or so before she fell ill. She is not at the point to do the healthly lifestyle thing, as she's still in the hospital very sick and not able to go to the bathroom on her own, hold her own cup, walk...anything. She has been sick for a long time, but wouldn't go see about it. This is her first hospitalization with this, and I'm just praying she will be able to walk out of there, not die there. She was in denial that something was wrong for so long, but if she had just gone earlier, she may have been able to stop drinking, eat better, etc. Right now, I just don't know. As of a few hours ago, her daughter told me they were taking her to x-ray her stomach to see why she's in so much pain...I pray it's not varicies. You hang in there, too. I can only imagine the road you've traveled with this disease, and I hope you will be able to live a productive, healthier life. Blessings, Gehri ____________ _________ _________ __ From: dave dodds <daveliltoeyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wed, May 12, 2010 2:35:27 PM Subject: Re: Hi I am sad for your sister and you. So far I have not developed encephalop athy and hope I do not..It is my greatest fear with this disease. ..it seems many, perhaps most, who drink actively do bounce back from abstinance, clean living, and the benefits of taking med's properly, eating proper, etc. Hopefully she will quit drinking..likely she will improve if she does, but for sure she will continue getting worse if she does not..hang in there Gehri. She is lucky to have a caring sibling that is being there for her. Ultimately that is about all you can do, being there. The rest is up to her. Dave ____________ _________ _________ __ From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wed, May 12, 2010 10:07:35 AM Subject: Hi Hi, my name is Gehri, and my sister recently was hospitalized and diagnosed with Cirrhosis from alcohol. She is very sick, and I don't know what to expect. She actually has not looked well for over a year, she's lost a lot of weight, tired all of the time, complained of stomach pain and constipation. Finally, a trip to urgent care led to the er, which led to hospitalization. Her eyes are yellow, she has ammonia in her blood, and they are giving her lactulose to reduce it. Her speech has been slow, but when I saw her the other day she couldn't speak at all, hold a pen, and has not been able to go to the bathroom by herself. She is still not eating, and continuing to lose weight. I need to know if she is going to rebound from this. The hepatic encephalopathy is the most troubling, because she's altered, confused, and in and out of it most of the time. I feel so bad because if she had addressed this a year ago, she would probably be better. Anyone here with experience with this, or has a loved one with this, please let me know what to expect. Sorry So Long Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 I think some people have to worry more about alcoholism than others. I have a son who has adhd, won't take medication but drinks too much when he has the money. His father doesn't drink because his father was an alcoholic and he could see himself starting to go down that road too. And there is also a great grandfather on that side of his family who was an alcoholic. My great grandfather and one of my brothers were/are alcoholics, so it really concerns me that my son drinks what is more than social drinking. And now with the genetic link to cirrhosis, he really has a triple whammy ready to hit him. Jan H > Gehri > > I have to agree with Dave on all he has said!! > > The most horrible thing about alcoholism etc., is what it actually does to > those around that person. Even as a recovering alcoholic myself, I > occasionally get frustrated that others can not seem to find a good enough > reason to put the addiction aside and get the necessary help. Then, > hopefully, they would do it before getting as sick as your sister is now. > I'll just pray that she rallies from this and actually realizes how much > you love her!!! It's definitely a difficult path for you, with no doubt. > > Even at the level that your sister is at right now, there is a whole lot of > hope!! The hospital will fight hard to get this under control and she'll > rebound, even though likely she will have to entirely change her lifestyle, > diet and all!! But the proof that it is absolutely possible, is in the > stories of a number of people in this site. I know for sure that I am > honoured and awed by the fighting spirit here. I also feel sooo grateful > that at this point, it appears that I may not have to lose my liver to > cirrhosis because of some top-notch help from the medical community. > > Please, let us know how it is going for you, as well as your sister. > > Gloria > > > > > ________________________________ > > > She may have varices, but I have it and experience no pain from it..even > when I've had bleeds I had no pain..others may be different perhaps..her > pain may be from as- cites..hopefully they will get her amonia levels down > and some clarity will return....others here have experience with > encephalopathy and can offer good advice..I would think much of her problems > are being caused by that..hang in there..peace and comfort to you all, > Dave > > ________________________________ > > To: livercirrhosissupport > Sent: Wed, May 12, 2010 4:15:25 PM > Subject: Re: Hi > > > Hi Dave. Thank you for responding. My sister had actually stopped > drinking a month or so before she fell ill. She is not at the point to do > the healthly lifestyle thing, as she's still in the hospital very sick and > not able to go to the bathroom on her own, hold her own cup, > walk...anything. She has been sick for a long time, but wouldn't go see > about it. This is her first hospitalization with this, and I'm just praying > she will be able to walk out of there, not die there. She was in denial > that something was wrong for so long, but if she had just gone earlier, she > may have been able to stop drinking, eat better, etc. Right now, I just > don't know. As of a few hours ago, her daughter told me they were taking > her to x-ray her stomach to see why she's in so much pain...I pray it's not > varicies. You hang in there, too. I can only imagine the road you've > traveled with this disease, and I hope you will be able to live a > productive, > healthier life. > > Blessings, > Gehri > > ____________ _________ _________ __ > From: dave dodds <daveliltoeyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Wed, May 12, 2010 2:35:27 PM > Subject: Re: Hi > > > I am sad for your sister and you. So far I have not developed encephalop > athy and hope I do not..It is my greatest fear with this disease. ..it > seems many, perhaps most, who drink actively do bounce back from abstinance, > clean living, and the benefits of taking med's properly, eating proper, etc. > Hopefully she will quit drinking..likely she will improve if she does, but > for sure she will continue getting worse if she does not..hang in there > Gehri. She is lucky to have a caring sibling that is being there for her. > Ultimately that is about all you can do, being there. The rest is up to > her. > Dave > > ____________ _________ _________ __ > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Wed, May 12, 2010 10:07:35 AM > Subject: Hi > > > Hi, my name is Gehri, and my sister recently was hospitalized and diagnosed > with Cirrhosis from alcohol. She is very sick, and I don't know what to > expect. She actually has not looked well for over a year, she's lost a lot > of weight, tired all of the time, complained of stomach pain and > constipation. Finally, a trip to urgent care led to the er, which led to > hospitalization. Her eyes are yellow, she has ammonia in her blood, and they > are giving her lactulose to reduce it. Her speech has been slow, but when I > saw her the other day she couldn't speak at all, hold a pen, and has not > been able to go to the bathroom by herself. She is still not eating, and > continuing to lose weight. I need to know if she is going to rebound from > this. The hepatic encephalopathy is the most troubling, because she's > altered, confused, and in and out of it most of the time. I feel so bad > because if she had addressed this a year ago, she would probably be better. > Anyone here with > experience with this, or has a loved one with this, please let me know what > to expect. > > Sorry So Long > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Hi Gehri and welcome to the group. I have cirrhosis due to fatty liver disease and diabetes. My husband died on Jan 26, 2009 of the same thing. He suffered with encephalopathy and had the same symptoms you describe in your sister. Whether she can be pulled from the brink is anyone's guess right now. I would like to assure you and she will be fine, but that would be a lie because no one really knows at what point an individual crosses the precipice of no return. My husband had varices banded one time, had fluid drawn off one time and suffered many episodes of encephalopathy. He was in and out of the hospital many times and very sick for the last 6-12 months of his life. As much as I love him and miss him, I can not honestly say that I would never bring him back to have to live like that again. It would be pure selfishness in me. I am a realist. No one here can promise you your sister is going to improve. I pray she does and that she realizes that, like most of us, she is only killing herself by her bad choices. For your sister, it's alcohol. For me, it's foods that cause my diabetes to be out of control. There's no difference in us, we just have vices of a different source. Please know that both you and your sister are in my prayers. My sisters are now going through exactly what you're facing. Uncertainly and fearful of the future and what it may hold. I don't worry about myself, but I am so hurt for them. I've been where they are and it's much worse to have to watch someone you love declining with this disease than to actually have to live it yourself. Please keep us informed of your sister's condition. I don't mean to be a pessimist, but I firmly believe in looking at life sqaure in the face and accepting things for what they really are, not what we want or hope for them to be. May the Lord give you strength and comfort and may He give your sister healing in all the areas of her body that are now so sick. Many hugs............... Di On Wed, May 12, 2010 at 10:07 AM, sisterlockqueen319 < sisterlockqueen319@...> wrote: > > > Hi, my name is Gehri, and my sister recently was hospitalized and diagnosed > with Cirrhosis from alcohol. She is very sick, and I don't know what to > expect. She actually has not looked well for over a year, she's lost a lot > of weight, tired all of the time, complained of stomach pain and > constipation. Finally, a trip to urgent care led to the er, which led to > hospitalization. Her eyes are yellow, she has ammonia in her blood, and they > are giving her lactulose to reduce it. Her speech has been slow, but when I > saw her the other day she couldn't speak at all, hold a pen, and has not > been able to go to the bathroom by herself. She is still not eating, and > continuing to lose weight. I need to know if she is going to rebound from > this. The hepatic encephalopathy is the most troubling, because she's > altered, confused, and in and out of it most of the time. I feel so bad > because if she had addressed this a year ago, she would probably be better. > Anyone here with experience with this, or has a loved one with this, please > let me know what to expect. > > Sorry So Long > > > -- Warm Hugs.......... Di http://auntdisexperimentallife.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Diane However, there would be nothing you could do about his drinking anyway. It's always got to be up to the person that is addicted. Do you know, that a very high percentage of especially alcoholics, would also be diagnosed as ADHD. It's fun in a meeting to look around at all the " sober " ADHD people. You can even tell if they are low level or high level. Before I was put on beta blockers, my ADHD would get so bad that it annoyed me. Therefore, by that time, I'd already annoyed everyone around me LOL I finally learned to do a simple meditation in order to slow myself down, so I don't believe that I'm so bad now. Gloria ________________________________ I think some people have to worry more about alcoholism than others. I have a son who has adhd, won't take medication but drinks too much when he has the money. His father doesn't drink because his father was an alcoholic and he could see himself starting to go down that road too. And there is also a great grandfather on that side of his family who was an alcoholic. My great grandfather and one of my brothers were/are alcoholics, so it really concerns me that my son drinks what is more than social drinking. And now with the genetic link to cirrhosis, he really has a triple whammy ready to hit him. Jan H > Gehri > > I have to agree with Dave on all he has said!! > > The most horrible thing about alcoholism etc., is what it actually does to > those around that person. Even as a recovering alcoholic myself, I > occasionally get frustrated that others can not seem to find a good enough > reason to put the addiction aside and get the necessary help. Then, > hopefully, they would do it before getting as sick as your sister is now. > I'll just pray that she rallies from this and actually realizes how much > you love her!!! It's definitely a difficult path for you, with no doubt. > > Even at the level that your sister is at right now, there is a whole lot of > hope!! The hospital will fight hard to get this under control and she'll > rebound, even though likely she will have to entirely change her lifestyle, > diet and all!! But the proof that it is absolutely possible, is in the > stories of a number of people in this site. I know for sure that I am > honoured and awed by the fighting spirit here. I also feel sooo grateful > that at this point, it appears that I may not have to lose my liver to > cirrhosis because of some top-notch help from the medical community. > > Please, let us know how it is going for you, as well as your sister. > > Gloria > > > > > ________________________________ > > > She may have varices, but I have it and experience no pain from it..even > when I've had bleeds I had no pain..others may be different perhaps..her > pain may be from as- cites..hopefully they will get her amonia levels down > and some clarity will return....others here have experience with > encephalopathy and can offer good advice..I would think much of her problems > are being caused by that..hang in there..peace and comfort to you all, > Dave > > ________________________________ > > To: livercirrhosissupport > Sent: Wed, May 12, 2010 4:15:25 PM > Subject: Re: Hi > > > Hi Dave. Thank you for responding. My sister had actually stopped > drinking a month or so before she fell ill. She is not at the point to do > the healthly lifestyle thing, as she's still in the hospital very sick and > not able to go to the bathroom on her own, hold her own cup, > walk...anything. She has been sick for a long time, but wouldn't go see > about it. This is her first hospitalization with this, and I'm just praying > she will be able to walk out of there, not die there. She was in denial > that something was wrong for so long, but if she had just gone earlier, she > may have been able to stop drinking, eat better, etc. Right now, I just > don't know. As of a few hours ago, her daughter told me they were taking > her to x-ray her stomach to see why she's in so much pain...I pray it's not > varicies. You hang in there, too. I can only imagine the road you've > traveled with this disease, and I hope you will be able to live a > productive, > healthier life. > > Blessings, > Gehri > > ____________ _________ _________ __ > From: dave dodds <daveliltoeyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Wed, May 12, 2010 2:35:27 PM > Subject: Re: Hi > > > I am sad for your sister and you. So far I have not developed encephalop > athy and hope I do not..It is my greatest fear with this disease. ..it > seems many, perhaps most, who drink actively do bounce back from abstinance, > clean living, and the benefits of taking med's properly, eating proper, etc. > Hopefully she will quit drinking..likely she will improve if she does, but > for sure she will continue getting worse if she does not..hang in there > Gehri. She is lucky to have a caring sibling that is being there for her. > Ultimately that is about all you can do, being there. The rest is up to > her. > Dave > > ____________ _________ _________ __ > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Wed, May 12, 2010 10:07:35 AM > Subject: Hi > > > Hi, my name is Gehri, and my sister recently was hospitalized and diagnosed > with Cirrhosis from alcohol. She is very sick, and I don't know what to > expect. She actually has not looked well for over a year, she's lost a lot > of weight, tired all of the time, complained of stomach pain and > constipation. Finally, a trip to urgent care led to the er, which led to > hospitalization. Her eyes are yellow, she has ammonia in her blood, and they > are giving her lactulose to reduce it. Her speech has been slow, but when I > saw her the other day she couldn't speak at all, hold a pen, and has not > been able to go to the bathroom by herself. She is still not eating, and > continuing to lose weight. I need to know if she is going to rebound from > this. The hepatic encephalopathy is the most troubling, because she's > altered, confused, and in and out of it most of the time. I feel so bad > because if she had addressed this a year ago, she would probably be better. > Anyone here with > experience with this, or has a loved one with this, please let me know what > to expect. > > Sorry So Long > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 OOOPS Jan not Diane ________________________________ I think some people have to worry more about alcoholism than others. I have a son who has adhd, won't take medication but drinks too much when he has the money. His father doesn't drink because his father was an alcoholic and he could see himself starting to go down that road too. And there is also a great grandfather on that side of his family who was an alcoholic. My great grandfather and one of my brothers were/are alcoholics, so it really concerns me that my son drinks what is more than social drinking. And now with the genetic link to cirrhosis, he really has a triple whammy ready to hit him. Jan H > Gehri > > I have to agree with Dave on all he has said!! > > The most horrible thing about alcoholism etc., is what it actually does to > those around that person. Even as a recovering alcoholic myself, I > occasionally get frustrated that others can not seem to find a good enough > reason to put the addiction aside and get the necessary help. Then, > hopefully, they would do it before getting as sick as your sister is now. > I'll just pray that she rallies from this and actually realizes how much > you love her!!! It's definitely a difficult path for you, with no doubt. > > Even at the level that your sister is at right now, there is a whole lot of > hope!! The hospital will fight hard to get this under control and she'll > rebound, even though likely she will have to entirely change her lifestyle, > diet and all!! But the proof that it is absolutely possible, is in the > stories of a number of people in this site. I know for sure that I am > honoured and awed by the fighting spirit here. I also feel sooo grateful > that at this point, it appears that I may not have to lose my liver to > cirrhosis because of some top-notch help from the medical community. > > Please, let us know how it is going for you, as well as your sister. > > Gloria > > > > > ________________________________ > > > She may have varices, but I have it and experience no pain from it..even > when I've had bleeds I had no pain..others may be different perhaps..her > pain may be from as- cites..hopefully they will get her amonia levels down > and some clarity will return....others here have experience with > encephalopathy and can offer good advice..I would think much of her problems > are being caused by that..hang in there..peace and comfort to you all, > Dave > > ________________________________ > > To: livercirrhosissupport > Sent: Wed, May 12, 2010 4:15:25 PM > Subject: Re: Hi > > > Hi Dave. Thank you for responding. My sister had actually stopped > drinking a month or so before she fell ill. She is not at the point to do > the healthly lifestyle thing, as she's still in the hospital very sick and > not able to go to the bathroom on her own, hold her own cup, > walk...anything. She has been sick for a long time, but wouldn't go see > about it. This is her first hospitalization with this, and I'm just praying > she will be able to walk out of there, not die there. She was in denial > that something was wrong for so long, but if she had just gone earlier, she > may have been able to stop drinking, eat better, etc. Right now, I just > don't know. As of a few hours ago, her daughter told me they were taking > her to x-ray her stomach to see why she's in so much pain...I pray it's not > varicies. You hang in there, too. I can only imagine the road you've > traveled with this disease, and I hope you will be able to live a > productive, > healthier life. > > Blessings, > Gehri > > ____________ _________ _________ __ > From: dave dodds <daveliltoeyahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Wed, May 12, 2010 2:35:27 PM > Subject: Re: Hi > > > I am sad for your sister and you. So far I have not developed encephalop > athy and hope I do not..It is my greatest fear with this disease. ..it > seems many, perhaps most, who drink actively do bounce back from abstinance, > clean living, and the benefits of taking med's properly, eating proper, etc. > Hopefully she will quit drinking..likely she will improve if she does, but > for sure she will continue getting worse if she does not..hang in there > Gehri. She is lucky to have a caring sibling that is being there for her. > Ultimately that is about all you can do, being there. The rest is up to > her. > Dave > > ____________ _________ _________ __ > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Wed, May 12, 2010 10:07:35 AM > Subject: Hi > > > Hi, my name is Gehri, and my sister recently was hospitalized and diagnosed > with Cirrhosis from alcohol. She is very sick, and I don't know what to > expect. She actually has not looked well for over a year, she's lost a lot > of weight, tired all of the time, complained of stomach pain and > constipation. Finally, a trip to urgent care led to the er, which led to > hospitalization. Her eyes are yellow, she has ammonia in her blood, and they > are giving her lactulose to reduce it. Her speech has been slow, but when I > saw her the other day she couldn't speak at all, hold a pen, and has not > been able to go to the bathroom by herself. She is still not eating, and > continuing to lose weight. I need to know if she is going to rebound from > this. The hepatic encephalopathy is the most troubling, because she's > altered, confused, and in and out of it most of the time. I feel so bad > because if she had addressed this a year ago, she would probably be better. > Anyone here with > experience with this, or has a loved one with this, please let me know what > to expect. > > Sorry So Long > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Gloria - I am frequently confused, but usually figure things out or come to the conclusion that it doesn't involve me so it doesn't matter. I have no idea what the ooops was for. Since I can't find anywhere where you wrote Diane instead of Jan, I am wondering if you are disputing my statements about the genetic link for alcoholism? If so, that is okay. [?] Jan H > > OOOPS Jan not Diane > > > > > ________________________________ > > > I think some people have to worry more about alcoholism than others. I > have > a son who has adhd, won't take medication but drinks too much when he has > the money. His father doesn't drink because his father was an alcoholic > and > he could see himself starting to go down that road too. And there is also > a > great grandfather on that side of his family who was an alcoholic. My > great > grandfather and one of my brothers were/are alcoholics, so it really > concerns me that my son drinks what is more than social drinking. And now > with the genetic link to cirrhosis, he really has a triple whammy ready to > hit him. Jan H > > > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 When my children were in school, they spent about half the years in church/Christian schools. We were moving my oldest daughter's school and everybody available was asked to help. Our family was assigned to pack up the books in the library. In the car, my oldest daughter told her little brother who had not been diagnosed yet, but had severe adhd, " don't be normal today, act nice " It was embarrassing especially for her when he would act out the adhd. My main frustration was when I had to tell him to do something. I couldn't tell him to take his winter outerwear off, I had to tell him to take off his mittens, take off his scarf, take off his hat, take off his boots, take off his jacket and if he had them on to take off his snow pants, and then we went through the whole thing again when he was supposed to put them away. Otherwise, I found him very interesting because he was so curious about everything and always asking questions and exploring things like the inside of computer disks (remember the old ones). I would have like to have looked myself, but couldn't bring myself to tear apart something I had paid for and could still use. He also brought home an old calculator he found on the street and tore it apart. I have taken the adult tests online and show as having add. It explains a lot of things which happened in my life. I was impulsive. Didn't live up to my intellectual potential, and other things I don't care to discuss here. I have 2 or 3 grandsons I am sure have add at least if not adhd, one has been diagnosed but they aren't getting treatment because their parents, including the son who has it, don't believe in it. When my son was on medication, it was so much easier to deal with him, he did better in school, didn't get so frustrated, but he didn't like that slowed down feeling and when it came time for him to decide for himself, he refused the meds. Gloria, just so you know, you haven't annoyed everybody here. Jan H > Diane > > However, there would be nothing you could do about his drinking anyway. > It's always got to be up to the person that is addicted. > > Do you know, that a very high percentage of especially alcoholics, would > also be diagnosed as ADHD. It's fun in a meeting to look around at all the > " sober " ADHD people. You can even tell if they are low level or high level. > Before I was put on beta blockers, my ADHD would get so bad that it annoyed > me. Therefore, by that time, I'd already annoyed everyone around me LOL > I finally learned to do a simple meditation in order to slow myself down, so > I don't believe that I'm so bad now. > > Gloria > > > > > ________________________________ > > > I think some people have to worry more about alcoholism than others. I > have > a son who has adhd, won't take medication but drinks too much when he has > the money. His father doesn't drink because his father was an alcoholic > and > he could see himself starting to go down that road too. And there is also > a > great grandfather on that side of his family who was an alcoholic. My > great > grandfather and one of my brothers were/are alcoholics, so it really > concerns me that my son drinks what is more than social drinking. And now > with the genetic link to cirrhosis, he really has a triple whammy ready to > hit him. Jan H > > > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Jan Just meaning that I was responding to your post about genetic link and ADHD; but, accidentally opened it with " Diane " when it was your post. Gloria ________________________________ Gloria - I am frequently confused, but usually figure things out or come to the conclusion that it doesn't involve me so it doesn't matter. I have no idea what the ooops was for. Since I can't find anywhere where you wrote Diane instead of Jan, I am wondering if you are disputing my statements about the genetic link for alcoholism? If so, that is okay. [?] Jan H > > OOOPS Jan not Diane > > > > > ________________________________ > > > I think some people have to worry more about alcoholism than others. I > have > a son who has adhd, won't take medication but drinks too much when he has > the money. His father doesn't drink because his father was an alcoholic > and > he could see himself starting to go down that road too. And there is also > a > great grandfather on that side of his family who was an alcoholic. My > great > grandfather and one of my brothers were/are alcoholics, so it really > concerns me that my son drinks what is more than social drinking. And now > with the genetic link to cirrhosis, he really has a triple whammy ready to > hit him. Jan H > > > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 That ADHD connection to folk with addictive problems does make a lot of sense..I have never though of that, or even heard the connection, but am going to look into that. I really know very little about ADHD. It is interesting to me though on many levels. It is a curiosity if this was around when us baby boomers were lil' and just not diagnosed, or is it more prevelant now. If more so now I would wonder about environmental connection. I'm going to research this. Dave ________________________________ To: livercirrhosissupport Sent: Thu, May 13, 2010 9:07:12 PM Subject: Re: Hi  When my children were in school, they spent about half the years in church/Christian schools. We were moving my oldest daughter's school and everybody available was asked to help. Our family was assigned to pack up the books in the library. In the car, my oldest daughter told her little brother who had not been diagnosed yet, but had severe adhd, " don't be normal today, act nice " It was embarrassing especially for her when he would act out the adhd. My main frustration was when I had to tell him to do something. I couldn't tell him to take his winter outerwear off, I had to tell him to take off his mittens, take off his scarf, take off his hat, take off his boots, take off his jacket and if he had them on to take off his snow pants, and then we went through the whole thing again when he was supposed to put them away. Otherwise, I found him very interesting because he was so curious about everything and always asking questions and exploring things like the inside of computer disks (remember the old ones). I would have like to have looked myself, but couldn't bring myself to tear apart something I had paid for and could still use. He also brought home an old calculator he found on the street and tore it apart. I have taken the adult tests online and show as having add. It explains a lot of things which happened in my life. I was impulsive. Didn't live up to my intellectual potential, and other things I don't care to discuss here. I have 2 or 3 grandsons I am sure have add at least if not adhd, one has been diagnosed but they aren't getting treatment because their parents, including the son who has it, don't believe in it. When my son was on medication, it was so much easier to deal with him, he did better in school, didn't get so frustrated, but he didn't like that slowed down feeling and when it came time for him to decide for himself, he refused the meds. Gloria, just so you know, you haven't annoyed everybody here. Jan H > Diane > > However, there would be nothing you could do about his drinking anyway. > It's always got to be up to the person that is addicted. > > Do you know, that a very high percentage of especially alcoholics, would > also be diagnosed as ADHD. It's fun in a meeting to look around at all the > " sober " ADHD people. You can even tell if they are low level or high level. > Before I was put on beta blockers, my ADHD would get so bad that it annoyed > me. Therefore, by that time, I'd already annoyed everyone around me LOL > I finally learned to do a simple meditation in order to slow myself down, so > I don't believe that I'm so bad now. > > Gloria > > > > > ________________________________ > > > I think some people have to worry more about alcoholism than others. I > have > a son who has adhd, won't take medication but drinks too much when he has > the money. His father doesn't drink because his father was an alcoholic > and > he could see himself starting to go down that road too. And there is also > a > great grandfather on that side of his family who was an alcoholic. My > great > grandfather and one of my brothers were/are alcoholics, so it really > concerns me that my son drinks what is more than social drinking. And now > with the genetic link to cirrhosis, he really has a triple whammy ready to > hit him. Jan H > > > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 LOL Thank you for that Jan. Truly, I am a whole lot more slowed down than I used to be! I love that description of how you had to get your son out of his outerwear!! No one in a million years would have diagnosed my son as ADD or ADHD and yet, I had to do the exact same thing. " Shon, can you please get Mommy the Tylenol that is on the counter in the kitchen " All he heard was kitchen. He'd get there and have to ask what I wanted. Then of course, he'd have to ask where it was. Lawd help us all if they were in my purse on the counter in the kitchen!!!! I didn't realize until much much later that he does have a form of ADHD and always has. Physically, I believe the boy is going to be late for his own funeral; but, his brain just never shuts down!! Whether I'm talking to him on the phone or by the computer, I can tell when he has put his answer to me on a priority list that he can do mentally. Numerous mornings I've come back to my computer and there will be a message from him, answering something and I can't remember what the question was.... LOL One of my brothers was very Hyeractive and still is!! My mother tells us that she would be charged with child abuse by today's standards; but, she would have to tie him into a chair, so that he could get a 15 minute nap, that would slow him down a bit. She also would not hear of drugs. So far, he's the most successful one of the 5 of us and certainly leads an extremely busy life. I've always got away with my form of Hyperactivity because I'm also a blonde. So, I just make jokes about it and get everyone to laugh. Gloria ________________________________ When my children were in school, they spent about half the years in church/Christian schools. We were moving my oldest daughter's school and everybody available was asked to help. Our family was assigned to pack up the books in the library. In the car, my oldest daughter told her little brother who had not been diagnosed yet, but had severe adhd, " don't be normal today, act nice " It was embarrassing especially for her when he would act out the adhd. My main frustration was when I had to tell him to do something. I couldn't tell him to take his winter outerwear off, I had to tell him to take off his mittens, take off his scarf, take off his hat, take off his boots, take off his jacket and if he had them on to take off his snow pants, and then we went through the whole thing again when he was supposed to put them away. Otherwise, I found him very interesting because he was so curious about everything and always asking questions and exploring things like the inside of computer disks (remember the old ones). I would have like to have looked myself, but couldn't bring myself to tear apart something I had paid for and could still use. He also brought home an old calculator he found on the street and tore it apart. I have taken the adult tests online and show as having add. It explains a lot of things which happened in my life. I was impulsive. Didn't live up to my intellectual potential, and other things I don't care to discuss here. I have 2 or 3 grandsons I am sure have add at least if not adhd, one has been diagnosed but they aren't getting treatment because their parents, including the son who has it, don't believe in it. When my son was on medication, it was so much easier to deal with him, he did better in school, didn't get so frustrated, but he didn't like that slowed down feeling and when it came time for him to decide for himself, he refused the meds. Gloria, just so you know, you haven't annoyed everybody here. Jan H > Diane > > However, there would be nothing you could do about his drinking anyway. > It's always got to be up to the person that is addicted. > > Do you know, that a very high percentage of especially alcoholics, would > also be diagnosed as ADHD. It's fun in a meeting to look around at all the > " sober " ADHD people. You can even tell if they are low level or high level. > Before I was put on beta blockers, my ADHD would get so bad that it annoyed > me. Therefore, by that time, I'd already annoyed everyone around me LOL > I finally learned to do a simple meditation in order to slow myself down, so > I don't believe that I'm so bad now. > > Gloria > > > > > ________________________________ > > > I think some people have to worry more about alcoholism than others. I > have > a son who has adhd, won't take medication but drinks too much when he has > the money. His father doesn't drink because his father was an alcoholic > and > he could see himself starting to go down that road too. And there is also > a > great grandfather on that side of his family who was an alcoholic. My > great > grandfather and one of my brothers were/are alcoholics, so it really > concerns me that my son drinks what is more than social drinking. And now > with the genetic link to cirrhosis, he really has a triple whammy ready to > hit him. Jan H > > > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Dave It was absolutely around when we were kids; but, like I was saying to Jan, families dealt with it a whole site differently than today. At least, when I was growing up, my mother was an at home mother. So rather than drug her kids up, she just handled it. I don't know about you; but, I do remember that we were not taken to the Dr. for very much at all and so that brother's hyperactivity was probably only spoken about once by my Mom. Look around when you are at a meeting. The more hyperactive a person is, the more intense they are either swing their leg or tapping on the table or having to get up and down. Lots of others are just slightly afflicted and will just be moving in their seat quite often. When I used to suffer so bad and it seems to be coming back, I'd be the one with a leg swinging or playing with anything on my wrist etc. I can not wear a watch to this day because if they had stretching bands I'd twist them till they broke and if they didn't, it would just annoy me too much that I couldn't twist. Nowadays I wear cheap beaded bracelets and if they break, nothing much lost. For me, it gets really really bad if I'm in unfamiliar or scary territory!! The more uncomfortable I am, the more that my motor mouth will go faster and I just stay still. I've been accused of showing anger when this happens; but, it's not, I'm simply uncomfortable. Geez - I even have a motor mouth when talking on e-mails, can you imagine how it is actually talking to me?? LOL Gloria ________________________________ That ADHD connection to folk with addictive problems does make a lot of sense..I have never though of that, or even heard the connection, but am going to look into that. I really know very little about ADHD. It is interesting to me though on many levels. It is a curiosity if this was around when us baby boomers were lil' and just not diagnosed, or is it more prevelant now. If more so now I would wonder about environmental connection. I'm going to research this. Dave ________________________________ To: livercirrhosissupport Sent: Thu, May 13, 2010 9:07:12 PM Subject: Re: Hi When my children were in school, they spent about half the years in church/Christian schools. We were moving my oldest daughter's school and everybody available was asked to help. Our family was assigned to pack up the books in the library. In the car, my oldest daughter told her little brother who had not been diagnosed yet, but had severe adhd, " don't be normal today, act nice " It was embarrassing especially for her when he would act out the adhd. My main frustration was when I had to tell him to do something. I couldn't tell him to take his winter outerwear off, I had to tell him to take off his mittens, take off his scarf, take off his hat, take off his boots, take off his jacket and if he had them on to take off his snow pants, and then we went through the whole thing again when he was supposed to put them away. Otherwise, I found him very interesting because he was so curious about everything and always asking questions and exploring things like the inside of computer disks (remember the old ones). I would have like to have looked myself, but couldn't bring myself to tear apart something I had paid for and could still use. He also brought home an old calculator he found on the street and tore it apart. I have taken the adult tests online and show as having add. It explains a lot of things which happened in my life. I was impulsive. Didn't live up to my intellectual potential, and other things I don't care to discuss here. I have 2 or 3 grandsons I am sure have add at least if not adhd, one has been diagnosed but they aren't getting treatment because their parents, including the son who has it, don't believe in it. When my son was on medication, it was so much easier to deal with him, he did better in school, didn't get so frustrated, but he didn't like that slowed down feeling and when it came time for him to decide for himself, he refused the meds. Gloria, just so you know, you haven't annoyed everybody here. Jan H > Diane > > However, there would be nothing you could do about his drinking anyway. > It's always got to be up to the person that is addicted. > > Do you know, that a very high percentage of especially alcoholics, would > also be diagnosed as ADHD. It's fun in a meeting to look around at all the > " sober " ADHD people. You can even tell if they are low level or high level. > Before I was put on beta blockers, my ADHD would get so bad that it annoyed > me. Therefore, by that time, I'd already annoyed everyone around me LOL > I finally learned to do a simple meditation in order to slow myself down, so > I don't believe that I'm so bad now. > > Gloria > > > > > ________________________________ > > > I think some people have to worry more about alcoholism than others. I > have > a son who has adhd, won't take medication but drinks too much when he has > the money. His father doesn't drink because his father was an alcoholic > and > he could see himself starting to go down that road too. And there is also > a > great grandfather on that side of his family who was an alcoholic. My > great > grandfather and one of my brothers were/are alcoholics, so it really > concerns me that my son drinks what is more than social drinking. And now > with the genetic link to cirrhosis, he really has a triple whammy ready to > hit him. Jan H > > > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Gloria - motor mouth probably describes me too. If no one else is around, I talk to myself, question and answer. When the kids were little and I was a single mom, I said it was the only way I could have an intelligent conversation. Their dad wasn't much of a talker either. My mother used to tell me how frustrated she would get when she took me to church. It was our custom to dress up, even little kids, so I had a hat and gloves, black patent shoes, white socks and a frilly dress. We would go in and sit down and before church would start, I would have my hat and gloves off, dirty socks and dress from crawling around on the floor. I just couldn't sit still. There was another custom in our church. If kids didn't behave during church, ( and just in case, mothers sat in the back with younger children) they were taken outside, and given a good swat followed by a scream heard by everybody in the church so the other people would know that mother had done her job. I agree with Dave, parents were quicker to stop the hyper activity, but that doesn't mean we didn't have the conditioin. Jan H > Dave > > It was absolutely around when we were kids; but, like I was saying to Jan, > families dealt with it a whole site differently than today. At least, when > I was growing up, my mother was an at home mother. So rather than drug her > kids up, she just handled it. I don't know about you; but, I do remember > that we were not taken to the Dr. for very much at all and so that brother's > hyperactivity was probably only spoken about once by my Mom. > > Look around when you are at a meeting. The more hyperactive a person is, > the more intense they are either swing their leg or tapping on the table or > having to get up and down. Lots of others are just slightly afflicted and > will just be moving in their seat quite often. > > When I used to suffer so bad and it seems to be coming back, I'd be the one > with a leg swinging or playing with anything on my wrist etc. I can not > wear a watch to this day because if they had stretching bands I'd twist them > till they broke and if they didn't, it would just annoy me too much that I > couldn't twist. Nowadays I wear cheap beaded bracelets and if they break, > nothing much lost. For me, it gets really really bad if I'm in unfamiliar > or scary territory!! The more uncomfortable I am, the more that my motor > mouth will go faster and I just stay still. I've been accused of showing > anger when this happens; but, it's not, I'm simply uncomfortable. > > Geez - I even have a motor mouth when talking on e-mails, can you imagine > how it is actually talking to me?? LOL > > Gloria > > > > > ________________________________ > > > That ADHD connection to folk with addictive problems does make a lot of > sense..I have never though of that, or even heard the connection, but am > going to look into that. I really know very little about ADHD. It is > interesting to me though on many levels. It is a curiosity if this was > around when us baby boomers were lil' and just not diagnosed, or is it more > prevelant now. If more so now I would wonder about environmental > connection. I'm going to research this. > Dave > > ________________________________ > > To: livercirrhosissupport > Sent: Thu, May 13, 2010 9:07:12 PM > Subject: Re: Hi > > > When my children were in school, they spent about half the years in > church/Christian schools. We were moving my oldest daughter's school and > everybody available was asked to help. Our family was assigned to pack up > the books in the library. In the car, my oldest daughter told her little > brother who had not been diagnosed yet, but had severe adhd, " don't be > normal today, act nice " It was embarrassing especially for her when he > would act out the adhd. My main frustration was when I had to tell him to > do something. I couldn't tell him to take his winter outerwear off, I had > to tell him to take off his mittens, take off his scarf, take off his hat, > take off his boots, take off his jacket and if he had them on to take off > his snow pants, and then we went through the whole thing again when he was > supposed to put them away. Otherwise, I found him very interesting because > he was so curious about everything and always asking questions and > exploring > things like the inside of computer disks (remember the old ones). I would > have like to have looked myself, but couldn't bring myself to tear apart > something I had paid for and could still use. He also brought home an old > calculator he found on the street and tore it apart. I have taken the adult > tests online and show as having add. It explains a lot of things which > happened in my life. I was impulsive. Didn't live up to my intellectual > potential, and other things I don't care to discuss here. I have 2 or 3 > grandsons I am sure have add at least if not adhd, one has been diagnosed > but they aren't getting treatment because their parents, including the son > who has it, don't believe in it. When my son was on medication, it was so > much easier to deal with him, he did better in school, didn't get so > frustrated, but he didn't like that slowed down feeling and when it came > time for him to decide for himself, he refused the meds. > > Gloria, just so you know, you haven't annoyed everybody here. Jan H > > > > > Diane > > > > However, there would be nothing you could do about his drinking anyway. > > It's always got to be up to the person that is addicted. > > > > Do you know, that a very high percentage of especially alcoholics, would > > also be diagnosed as ADHD. It's fun in a meeting to look around at all > the > > " sober " ADHD people. You can even tell if they are low level or high > level. > > Before I was put on beta blockers, my ADHD would get so bad that it > annoyed > > me. Therefore, by that time, I'd already annoyed everyone around me LOL > > I finally learned to do a simple meditation in order to slow myself down, > so > > I don't believe that I'm so bad now. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > I think some people have to worry more about alcoholism than others. I > > have > > a son who has adhd, won't take medication but drinks too much when he has > > the money. His father doesn't drink because his father was an alcoholic > > and > > he could see himself starting to go down that road too. And there is also > > a > > great grandfather on that side of his family who was an alcoholic. My > > great > > grandfather and one of my brothers were/are alcoholics, so it really > > concerns me that my son drinks what is more than social drinking. And now > > with the genetic link to cirrhosis, he really has a triple whammy ready > to > > hit him. Jan H > > > > On Wed, May 12, 2010 at 8:56 PM, Gloria > wrote: > > > > > Gehri > > > > > > I have to agree with Dave on all he has said!! > > > > > > The most horrible thing about alcoholism etc., is what it actually does > > to > > > those around that person. Even as a recovering alcoholic myself, I > > > occasionally get frustrated that others can not seem to find a good > > enough > > > reason to put the addiction aside and get the necessary help. Then, > > > hopefully, they would do it before getting as sick as your sister is > now. > > > I'll just pray that she rallies from this and actually realizes how > much > > > you love her!!! It's definitely a difficult path for you, with no > doubt. > > > > > > Even at the level that your sister is at right now, there is a whole > lot > > of > > > hope!! The hospital will fight hard to get this under control and > she'll > > > rebound, even though likely she will have to entirely change her > > lifestyle, > > > diet and all!! But the proof that it is absolutely possible, is in the > > > stories of a number of people in this site. I know for sure that I am > > > honoured and awed by the fighting spirit here. I also feel sooo > grateful > > > that at this point, it appears that I may not have to lose my liver to > > > cirrhosis because of some top-notch help from the medical community. > > > > > > Please, let us know how it is going for you, as well as your sister. > > > > > > Gloria > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > She may have varices, but I have it and experience no pain from > it..even > > > when I've had bleeds I had no pain..others may be different > perhaps..her > > > pain may be from as- cites..hopefully they will get her amonia levels > > down > > > and some clarity will return....others here have experience with > > > encephalopathy and can offer good advice..I would think much of her > > problems > > > are being caused by that..hang in there..peace and comfort to you all, > > > Dave > > > > > > ________________________________ > > > > > > To: livercirrhosissupport > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > Subject: Re: Hi > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > > drinking a month or so before she fell ill. She is not at the point to > > do > > > the healthly lifestyle thing, as she's still in the hospital very sick > > and > > > not able to go to the bathroom on her own, hold her own cup, > > > walk...anything. She has been sick for a long time, but wouldn't go see > > > about it. This is her first hospitalization with this, and I'm just > > praying > > > she will be able to walk out of there, not die there. She was in denial > > > that something was wrong for so long, but if she had just gone earlier, > > she > > > may have been able to stop drinking, eat better, etc. Right now, I just > > > don't know. As of a few hours ago, her daughter told me they were > taking > > > her to x-ray her stomach to see why she's in so much pain...I pray it's > > not > > > varicies. You hang in there, too. I can only imagine the road you've > > > traveled with this disease, and I hope you will be able to live a > > > productive, > > > healthier life. > > > > > > Blessings, > > > Gehri > > > > > > ____________ _________ _________ __ > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > Subject: Re: Hi > > > > > > > > > I am sad for your sister and you. So far I have not developed > encephalop > > > athy and hope I do not..It is my greatest fear with this disease. ..it > > > seems many, perhaps most, who drink actively do bounce back from > > abstinance, > > > clean living, and the benefits of taking med's properly, eating proper, > > etc. > > > Hopefully she will quit drinking..likely she will improve if she does, > > but > > > for sure she will continue getting worse if she does not..hang in there > > > Gehri. She is lucky to have a caring sibling that is being there for > > her. > > > Ultimately that is about all you can do, being there. The rest is up to > > > her. > > > Dave > > > > > > ____________ _________ _________ __ > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > Subject: Hi > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > > diagnosed > > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > > expect. She actually has not looked well for over a year, she's lost a > > lot > > > of weight, tired all of the time, complained of stomach pain and > > > constipation. Finally, a trip to urgent care led to the er, which led > to > > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > > they > > > are giving her lactulose to reduce it. Her speech has been slow, but > when > > I > > > saw her the other day she couldn't speak at all, hold a pen, and has > not > > > been able to go to the bathroom by herself. She is still not eating, > and > > > continuing to lose weight. I need to know if she is going to rebound > from > > > this. The hepatic encephalopathy is the most troubling, because she's > > > altered, confused, and in and out of it most of the time. I feel so bad > > > because if she had addressed this a year ago, she would probably be > > better. > > > Anyone here with > > > experience with this, or has a loved one with this, please let me know > > what > > > to expect. > > > > > > Sorry So Long > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 As you mention some of the signs I wonder if my daughter might have ADHD and myself..the other day my daughter was fidgeting her foot back and forth real fast like she has for yrs. My grandson that is 2 and 1/2 reached over and touched her leg and said 'stop it'...she did and told him 'I can't help it'. Kind of like it was a normal thing for him to tell her. I bet he has picked that up from his Dad, maybe.     Dave ________________________________ To: livercirrhosissupport Sent: Thu, May 13, 2010 10:17:41 PM Subject: Re: Hi  Dave It was absolutely around when we were kids; but, like I was saying to Jan, families dealt with it a whole site differently than today. At least, when I was growing up, my mother was an at home mother. So rather than drug her kids up, she just handled it. I don't know about you; but, I do remember that we were not taken to the Dr. for very much at all and so that brother's hyperactivity was probably only spoken about once by my Mom. Look around when you are at a meeting. The more hyperactive a person is, the more intense they are either swing their leg or tapping on the table or having to get up and down. Lots of others are just slightly afflicted and will just be moving in their seat quite often. When I used to suffer so bad and it seems to be coming back, I'd be the one with a leg swinging or playing with anything on my wrist etc. I can not wear a watch to this day because if they had stretching bands I'd twist them till they broke and if they didn't, it would just annoy me too much that I couldn't twist. Nowadays I wear cheap beaded bracelets and if they break, nothing much lost. For me, it gets really really bad if I'm in unfamiliar or scary territory!! The more uncomfortable I am, the more that my motor mouth will go faster and I just stay still. I've been accused of showing anger when this happens; but, it's not, I'm simply uncomfortable. Geez - I even have a motor mouth when talking on e-mails, can you imagine how it is actually talking to me?? LOL Gloria ________________________________ That ADHD connection to folk with addictive problems does make a lot of sense..I have never though of that, or even heard the connection, but am going to look into that. I really know very little about ADHD. It is interesting to me though on many levels. It is a curiosity if this was around when us baby boomers were lil' and just not diagnosed, or is it more prevelant now. If more so now I would wonder about environmental connection. I'm going to research this. Dave ________________________________ To: livercirrhosissupport Sent: Thu, May 13, 2010 9:07:12 PM Subject: Re: Hi When my children were in school, they spent about half the years in church/Christian schools. We were moving my oldest daughter's school and everybody available was asked to help. Our family was assigned to pack up the books in the library. In the car, my oldest daughter told her little brother who had not been diagnosed yet, but had severe adhd, " don't be normal today, act nice " It was embarrassing especially for her when he would act out the adhd. My main frustration was when I had to tell him to do something. I couldn't tell him to take his winter outerwear off, I had to tell him to take off his mittens, take off his scarf, take off his hat, take off his boots, take off his jacket and if he had them on to take off his snow pants, and then we went through the whole thing again when he was supposed to put them away. Otherwise, I found him very interesting because he was so curious about everything and always asking questions and exploring things like the inside of computer disks (remember the old ones). I would have like to have looked myself, but couldn't bring myself to tear apart something I had paid for and could still use. He also brought home an old calculator he found on the street and tore it apart. I have taken the adult tests online and show as having add. It explains a lot of things which happened in my life. I was impulsive. Didn't live up to my intellectual potential, and other things I don't care to discuss here. I have 2 or 3 grandsons I am sure have add at least if not adhd, one has been diagnosed but they aren't getting treatment because their parents, including the son who has it, don't believe in it. When my son was on medication, it was so much easier to deal with him, he did better in school, didn't get so frustrated, but he didn't like that slowed down feeling and when it came time for him to decide for himself, he refused the meds. Gloria, just so you know, you haven't annoyed everybody here. Jan H > Diane > > However, there would be nothing you could do about his drinking anyway. > It's always got to be up to the person that is addicted. > > Do you know, that a very high percentage of especially alcoholics, would > also be diagnosed as ADHD. It's fun in a meeting to look around at all the > " sober " ADHD people. You can even tell if they are low level or high level. > Before I was put on beta blockers, my ADHD would get so bad that it annoyed > me. Therefore, by that time, I'd already annoyed everyone around me LOL > I finally learned to do a simple meditation in order to slow myself down, so > I don't believe that I'm so bad now. > > Gloria > > > > > ________________________________ > > > I think some people have to worry more about alcoholism than others. I > have > a son who has adhd, won't take medication but drinks too much when he has > the money. His father doesn't drink because his father was an alcoholic > and > he could see himself starting to go down that road too. And there is also > a > great grandfather on that side of his family who was an alcoholic. My > great > grandfather and one of my brothers were/are alcoholics, so it really > concerns me that my son drinks what is more than social drinking. And now > with the genetic link to cirrhosis, he really has a triple whammy ready to > hit him. Jan H > > > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 That disability is a tricky thing..I think there are variables that probably shouldn't be there..like if the doctor responds to letters from Social Services..the doc's do not have to and my lawyer said that only about 50% do. He said they just don't want to get involved.And the judge you get I think can make a huge difference..definitely the more documentation the better..the more visits to the doc. the better.. not missing appts...and being totally up front and honest with the questions asked..these judges usually can tell if you are inflating your health issues or whatever..answering the questions honestly,, even when another answer would seem to help your case more, is important. Not that anyone here would embelish their condition, but for sure it happens and is understandable.  Dave ________________________________ To: livercirrhosissupport Sent: Thu, May 13, 2010 9:21:42 PM Subject: Re: Hi  Jan Just meaning that I was responding to your post about genetic link and ADHD; but, accidentally opened it with " Diane " when it was your post. Gloria ________________________________ Gloria - I am frequently confused, but usually figure things out or come to the conclusion that it doesn't involve me so it doesn't matter. I have no idea what the ooops was for. Since I can't find anywhere where you wrote Diane instead of Jan, I am wondering if you are disputing my statements about the genetic link for alcoholism? If so, that is okay. [?] Jan H > > OOOPS Jan not Diane > > > > > ________________________________ > > > I think some people have to worry more about alcoholism than others. I > have > a son who has adhd, won't take medication but drinks too much when he has > the money. His father doesn't drink because his father was an alcoholic > and > he could see himself starting to go down that road too. And there is also > a > great grandfather on that side of his family who was an alcoholic. My > great > grandfather and one of my brothers were/are alcoholics, so it really > concerns me that my son drinks what is more than social drinking. And now > with the genetic link to cirrhosis, he really has a triple whammy ready to > hit him. Jan H > > > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 Boy wouldn't we want to inflate this health issue.? Thanks for this day and for my tomorrows .  Love, Lyncia   > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 Sorry Lyncia,,..I was just advising those that may have not yet had a hearing. Not that I'm in a position to give advice. Meant to send the mail to the group in general, not specific to any one person. Dave ________________________________ To: livercirrhosissupport Sent: Fri, May 14, 2010 4:02:42 PM Subject: Re: Hi  Boy wouldn't we want to inflate this health issue.? Thanks for this day and for my tomorrows .  Love, Lyncia   > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 Jan Absolutely agree!! Except that my brothers were sent to church on a Sunday (me in the lead) and I had white patent shoes in the spring summer. So, there was no parent to swat us; however, I swear that we were under pain of death if we misbehaved. My brothers would be more in Sunday School anyway and I could go back and forth. THE HATS!!! Wasn't that just a gas!! Of course, then there was the ultimate at Easter too. Gloria ________________________________ Gloria - motor mouth probably describes me too. If no one else is around, I talk to myself, question and answer. When the kids were little and I was a single mom, I said it was the only way I could have an intelligent conversation. Their dad wasn't much of a talker either. My mother used to tell me how frustrated she would get when she took me to church. It was our custom to dress up, even little kids, so I had a hat and gloves, black patent shoes, white socks and a frilly dress. We would go in and sit down and before church would start, I would have my hat and gloves off, dirty socks and dress from crawling around on the floor. I just couldn't sit still. There was another custom in our church. If kids didn't behave during church, ( and just in case, mothers sat in the back with younger children) they were taken outside, and given a good swat followed by a scream heard by everybody in the church so the other people would know that mother had done her job. I agree with Dave, parents were quicker to stop the hyper activity, but that doesn't mean we didn't have the conditioin. Jan H > Dave > > It was absolutely around when we were kids; but, like I was saying to Jan, > families dealt with it a whole site differently than today. At least, when > I was growing up, my mother was an at home mother. So rather than drug her > kids up, she just handled it. I don't know about you; but, I do remember > that we were not taken to the Dr. for very much at all and so that brother's > hyperactivity was probably only spoken about once by my Mom. > > Look around when you are at a meeting. The more hyperactive a person is, > the more intense they are either swing their leg or tapping on the table or > having to get up and down. Lots of others are just slightly afflicted and > will just be moving in their seat quite often. > > When I used to suffer so bad and it seems to be coming back, I'd be the one > with a leg swinging or playing with anything on my wrist etc. I can not > wear a watch to this day because if they had stretching bands I'd twist them > till they broke and if they didn't, it would just annoy me too much that I > couldn't twist. Nowadays I wear cheap beaded bracelets and if they break, > nothing much lost. For me, it gets really really bad if I'm in unfamiliar > or scary territory!! The more uncomfortable I am, the more that my motor > mouth will go faster and I just stay still. I've been accused of showing > anger when this happens; but, it's not, I'm simply uncomfortable. > > Geez - I even have a motor mouth when talking on e-mails, can you imagine > how it is actually talking to me?? LOL > > Gloria > > > > > ________________________________ > > > That ADHD connection to folk with addictive problems does make a lot of > sense..I have never though of that, or even heard the connection, but am > going to look into that. I really know very little about ADHD. It is > interesting to me though on many levels. It is a curiosity if this was > around when us baby boomers were lil' and just not diagnosed, or is it more > prevelant now. If more so now I would wonder about environmental > connection. I'm going to research this. > Dave > > ________________________________ > > To: livercirrhosissupport > Sent: Thu, May 13, 2010 9:07:12 PM > Subject: Re: Hi > > > When my children were in school, they spent about half the years in > church/Christian schools. We were moving my oldest daughter's school and > everybody available was asked to help. Our family was assigned to pack up > the books in the library. In the car, my oldest daughter told her little > brother who had not been diagnosed yet, but had severe adhd, " don't be > normal today, act nice " It was embarrassing especially for her when he > would act out the adhd. My main frustration was when I had to tell him to > do something. I couldn't tell him to take his winter outerwear off, I had > to tell him to take off his mittens, take off his scarf, take off his hat, > take off his boots, take off his jacket and if he had them on to take off > his snow pants, and then we went through the whole thing again when he was > supposed to put them away. Otherwise, I found him very interesting because > he was so curious about everything and always asking questions and > exploring > things like the inside of computer disks (remember the old ones). I would > have like to have looked myself, but couldn't bring myself to tear apart > something I had paid for and could still use. He also brought home an old > calculator he found on the street and tore it apart. I have taken the adult > tests online and show as having add. It explains a lot of things which > happened in my life. I was impulsive. Didn't live up to my intellectual > potential, and other things I don't care to discuss here. I have 2 or 3 > grandsons I am sure have add at least if not adhd, one has been diagnosed > but they aren't getting treatment because their parents, including the son > who has it, don't believe in it. When my son was on medication, it was so > much easier to deal with him, he did better in school, didn't get so > frustrated, but he didn't like that slowed down feeling and when it came > time for him to decide for himself, he refused the meds. > > Gloria, just so you know, you haven't annoyed everybody here. Jan H > > > > > Diane > > > > However, there would be nothing you could do about his drinking anyway. > > It's always got to be up to the person that is addicted. > > > > Do you know, that a very high percentage of especially alcoholics, would > > also be diagnosed as ADHD. It's fun in a meeting to look around at all > the > > " sober " ADHD people. You can even tell if they are low level or high > level. > > Before I was put on beta blockers, my ADHD would get so bad that it > annoyed > > me. Therefore, by that time, I'd already annoyed everyone around me LOL > > I finally learned to do a simple meditation in order to slow myself down, > so > > I don't believe that I'm so bad now. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > I think some people have to worry more about alcoholism than others. I > > have > > a son who has adhd, won't take medication but drinks too much when he has > > the money. His father doesn't drink because his father was an alcoholic > > and > > he could see himself starting to go down that road too. And there is also > > a > > great grandfather on that side of his family who was an alcoholic. My > > great > > grandfather and one of my brothers were/are alcoholics, so it really > > concerns me that my son drinks what is more than social drinking. And now > > with the genetic link to cirrhosis, he really has a triple whammy ready > to > > hit him. Jan H > > > > On Wed, May 12, 2010 at 8:56 PM, Gloria > wrote: > > > > > Gehri > > > > > > I have to agree with Dave on all he has said!! > > > > > > The most horrible thing about alcoholism etc., is what it actually does > > to > > > those around that person. Even as a recovering alcoholic myself, I > > > occasionally get frustrated that others can not seem to find a good > > enough > > > reason to put the addiction aside and get the necessary help. Then, > > > hopefully, they would do it before getting as sick as your sister is > now. > > > I'll just pray that she rallies from this and actually realizes how > much > > > you love her!!! It's definitely a difficult path for you, with no > doubt. > > > > > > Even at the level that your sister is at right now, there is a whole > lot > > of > > > hope!! The hospital will fight hard to get this under control and > she'll > > > rebound, even though likely she will have to entirely change her > > lifestyle, > > > diet and all!! But the proof that it is absolutely possible, is in the > > > stories of a number of people in this site. I know for sure that I am > > > honoured and awed by the fighting spirit here. I also feel sooo > grateful > > > that at this point, it appears that I may not have to lose my liver to > > > cirrhosis because of some top-notch help from the medical community. > > > > > > Please, let us know how it is going for you, as well as your sister. > > > > > > Gloria > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > She may have varices, but I have it and experience no pain from > it..even > > > when I've had bleeds I had no pain..others may be different > perhaps..her > > > pain may be from as- cites..hopefully they will get her amonia levels > > down > > > and some clarity will return....others here have experience with > > > encephalopathy and can offer good advice..I would think much of her > > problems > > > are being caused by that..hang in there..peace and comfort to you all, > > > Dave > > > > > > ________________________________ > > > > > > To: livercirrhosissupport > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > Subject: Re: Hi > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > > drinking a month or so before she fell ill. She is not at the point to > > do > > > the healthly lifestyle thing, as she's still in the hospital very sick > > and > > > not able to go to the bathroom on her own, hold her own cup, > > > walk...anything. She has been sick for a long time, but wouldn't go see > > > about it. This is her first hospitalization with this, and I'm just > > praying > > > she will be able to walk out of there, not die there. She was in denial > > > that something was wrong for so long, but if she had just gone earlier, > > she > > > may have been able to stop drinking, eat better, etc. Right now, I just > > > don't know. As of a few hours ago, her daughter told me they were > taking > > > her to x-ray her stomach to see why she's in so much pain...I pray it's > > not > > > varicies. You hang in there, too. I can only imagine the road you've > > > traveled with this disease, and I hope you will be able to live a > > > productive, > > > healthier life. > > > > > > Blessings, > > > Gehri > > > > > > ____________ _________ _________ __ > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > Subject: Re: Hi > > > > > > > > > I am sad for your sister and you. So far I have not developed > encephalop > > > athy and hope I do not..It is my greatest fear with this disease. ..it > > > seems many, perhaps most, who drink actively do bounce back from > > abstinance, > > > clean living, and the benefits of taking med's properly, eating proper, > > etc. > > > Hopefully she will quit drinking..likely she will improve if she does, > > but > > > for sure she will continue getting worse if she does not..hang in there > > > Gehri. She is lucky to have a caring sibling that is being there for > > her. > > > Ultimately that is about all you can do, being there. The rest is up to > > > her. > > > Dave > > > > > > ____________ _________ _________ __ > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > Subject: Hi > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > > diagnosed > > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > > expect. She actually has not looked well for over a year, she's lost a > > lot > > > of weight, tired all of the time, complained of stomach pain and > > > constipation. Finally, a trip to urgent care led to the er, which led > to > > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > > they > > > are giving her lactulose to reduce it. Her speech has been slow, but > when > > I > > > saw her the other day she couldn't speak at all, hold a pen, and has > not > > > been able to go to the bathroom by herself. She is still not eating, > and > > > continuing to lose weight. I need to know if she is going to rebound > from > > > this. The hepatic encephalopathy is the most troubling, because she's > > > altered, confused, and in and out of it most of the time. I feel so bad > > > because if she had addressed this a year ago, she would probably be > > better. > > > Anyone here with > > > experience with this, or has a loved one with this, please let me know > > what > > > to expect. > > > > > > Sorry So Long > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 Jan Absolutely agree!! Except that my brothers were sent to church on a Sunday (me in the lead) and I had white patent shoes in the spring summer. So, there was no parent to swat us; however, I swear that we were under pain of death if we misbehaved. My brothers would be more in Sunday School anyway and I could go back and forth. THE HATS!!! Wasn't that just a gas!! Of course, then there was the ultimate at Easter too. Gloria ________________________________ Gloria - motor mouth probably describes me too. If no one else is around, I talk to myself, question and answer. When the kids were little and I was a single mom, I said it was the only way I could have an intelligent conversation. Their dad wasn't much of a talker either. My mother used to tell me how frustrated she would get when she took me to church. It was our custom to dress up, even little kids, so I had a hat and gloves, black patent shoes, white socks and a frilly dress. We would go in and sit down and before church would start, I would have my hat and gloves off, dirty socks and dress from crawling around on the floor. I just couldn't sit still. There was another custom in our church. If kids didn't behave during church, ( and just in case, mothers sat in the back with younger children) they were taken outside, and given a good swat followed by a scream heard by everybody in the church so the other people would know that mother had done her job. I agree with Dave, parents were quicker to stop the hyper activity, but that doesn't mean we didn't have the conditioin. Jan H > Dave > > It was absolutely around when we were kids; but, like I was saying to Jan, > families dealt with it a whole site differently than today. At least, when > I was growing up, my mother was an at home mother. So rather than drug her > kids up, she just handled it. I don't know about you; but, I do remember > that we were not taken to the Dr. for very much at all and so that brother's > hyperactivity was probably only spoken about once by my Mom. > > Look around when you are at a meeting. The more hyperactive a person is, > the more intense they are either swing their leg or tapping on the table or > having to get up and down. Lots of others are just slightly afflicted and > will just be moving in their seat quite often. > > When I used to suffer so bad and it seems to be coming back, I'd be the one > with a leg swinging or playing with anything on my wrist etc. I can not > wear a watch to this day because if they had stretching bands I'd twist them > till they broke and if they didn't, it would just annoy me too much that I > couldn't twist. Nowadays I wear cheap beaded bracelets and if they break, > nothing much lost. For me, it gets really really bad if I'm in unfamiliar > or scary territory!! The more uncomfortable I am, the more that my motor > mouth will go faster and I just stay still. I've been accused of showing > anger when this happens; but, it's not, I'm simply uncomfortable. > > Geez - I even have a motor mouth when talking on e-mails, can you imagine > how it is actually talking to me?? LOL > > Gloria > > > > > ________________________________ > > > That ADHD connection to folk with addictive problems does make a lot of > sense..I have never though of that, or even heard the connection, but am > going to look into that. I really know very little about ADHD. It is > interesting to me though on many levels. It is a curiosity if this was > around when us baby boomers were lil' and just not diagnosed, or is it more > prevelant now. If more so now I would wonder about environmental > connection. I'm going to research this. > Dave > > ________________________________ > > To: livercirrhosissupport > Sent: Thu, May 13, 2010 9:07:12 PM > Subject: Re: Hi > > > When my children were in school, they spent about half the years in > church/Christian schools. We were moving my oldest daughter's school and > everybody available was asked to help. Our family was assigned to pack up > the books in the library. In the car, my oldest daughter told her little > brother who had not been diagnosed yet, but had severe adhd, " don't be > normal today, act nice " It was embarrassing especially for her when he > would act out the adhd. My main frustration was when I had to tell him to > do something. I couldn't tell him to take his winter outerwear off, I had > to tell him to take off his mittens, take off his scarf, take off his hat, > take off his boots, take off his jacket and if he had them on to take off > his snow pants, and then we went through the whole thing again when he was > supposed to put them away. Otherwise, I found him very interesting because > he was so curious about everything and always asking questions and > exploring > things like the inside of computer disks (remember the old ones). I would > have like to have looked myself, but couldn't bring myself to tear apart > something I had paid for and could still use. He also brought home an old > calculator he found on the street and tore it apart. I have taken the adult > tests online and show as having add. It explains a lot of things which > happened in my life. I was impulsive. Didn't live up to my intellectual > potential, and other things I don't care to discuss here. I have 2 or 3 > grandsons I am sure have add at least if not adhd, one has been diagnosed > but they aren't getting treatment because their parents, including the son > who has it, don't believe in it. When my son was on medication, it was so > much easier to deal with him, he did better in school, didn't get so > frustrated, but he didn't like that slowed down feeling and when it came > time for him to decide for himself, he refused the meds. > > Gloria, just so you know, you haven't annoyed everybody here. Jan H > > > > > Diane > > > > However, there would be nothing you could do about his drinking anyway. > > It's always got to be up to the person that is addicted. > > > > Do you know, that a very high percentage of especially alcoholics, would > > also be diagnosed as ADHD. It's fun in a meeting to look around at all > the > > " sober " ADHD people. You can even tell if they are low level or high > level. > > Before I was put on beta blockers, my ADHD would get so bad that it > annoyed > > me. Therefore, by that time, I'd already annoyed everyone around me LOL > > I finally learned to do a simple meditation in order to slow myself down, > so > > I don't believe that I'm so bad now. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > I think some people have to worry more about alcoholism than others. I > > have > > a son who has adhd, won't take medication but drinks too much when he has > > the money. His father doesn't drink because his father was an alcoholic > > and > > he could see himself starting to go down that road too. And there is also > > a > > great grandfather on that side of his family who was an alcoholic. My > > great > > grandfather and one of my brothers were/are alcoholics, so it really > > concerns me that my son drinks what is more than social drinking. And now > > with the genetic link to cirrhosis, he really has a triple whammy ready > to > > hit him. Jan H > > > > On Wed, May 12, 2010 at 8:56 PM, Gloria > wrote: > > > > > Gehri > > > > > > I have to agree with Dave on all he has said!! > > > > > > The most horrible thing about alcoholism etc., is what it actually does > > to > > > those around that person. Even as a recovering alcoholic myself, I > > > occasionally get frustrated that others can not seem to find a good > > enough > > > reason to put the addiction aside and get the necessary help. Then, > > > hopefully, they would do it before getting as sick as your sister is > now. > > > I'll just pray that she rallies from this and actually realizes how > much > > > you love her!!! It's definitely a difficult path for you, with no > doubt. > > > > > > Even at the level that your sister is at right now, there is a whole > lot > > of > > > hope!! The hospital will fight hard to get this under control and > she'll > > > rebound, even though likely she will have to entirely change her > > lifestyle, > > > diet and all!! But the proof that it is absolutely possible, is in the > > > stories of a number of people in this site. I know for sure that I am > > > honoured and awed by the fighting spirit here. I also feel sooo > grateful > > > that at this point, it appears that I may not have to lose my liver to > > > cirrhosis because of some top-notch help from the medical community. > > > > > > Please, let us know how it is going for you, as well as your sister. > > > > > > Gloria > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > She may have varices, but I have it and experience no pain from > it..even > > > when I've had bleeds I had no pain..others may be different > perhaps..her > > > pain may be from as- cites..hopefully they will get her amonia levels > > down > > > and some clarity will return....others here have experience with > > > encephalopathy and can offer good advice..I would think much of her > > problems > > > are being caused by that..hang in there..peace and comfort to you all, > > > Dave > > > > > > ________________________________ > > > > > > To: livercirrhosissupport > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > Subject: Re: Hi > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > > drinking a month or so before she fell ill. She is not at the point to > > do > > > the healthly lifestyle thing, as she's still in the hospital very sick > > and > > > not able to go to the bathroom on her own, hold her own cup, > > > walk...anything. She has been sick for a long time, but wouldn't go see > > > about it. This is her first hospitalization with this, and I'm just > > praying > > > she will be able to walk out of there, not die there. She was in denial > > > that something was wrong for so long, but if she had just gone earlier, > > she > > > may have been able to stop drinking, eat better, etc. Right now, I just > > > don't know. As of a few hours ago, her daughter told me they were > taking > > > her to x-ray her stomach to see why she's in so much pain...I pray it's > > not > > > varicies. You hang in there, too. I can only imagine the road you've > > > traveled with this disease, and I hope you will be able to live a > > > productive, > > > healthier life. > > > > > > Blessings, > > > Gehri > > > > > > ____________ _________ _________ __ > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > Subject: Re: Hi > > > > > > > > > I am sad for your sister and you. So far I have not developed > encephalop > > > athy and hope I do not..It is my greatest fear with this disease. ..it > > > seems many, perhaps most, who drink actively do bounce back from > > abstinance, > > > clean living, and the benefits of taking med's properly, eating proper, > > etc. > > > Hopefully she will quit drinking..likely she will improve if she does, > > but > > > for sure she will continue getting worse if she does not..hang in there > > > Gehri. She is lucky to have a caring sibling that is being there for > > her. > > > Ultimately that is about all you can do, being there. The rest is up to > > > her. > > > Dave > > > > > > ____________ _________ _________ __ > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > Subject: Hi > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > > diagnosed > > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > > expect. She actually has not looked well for over a year, she's lost a > > lot > > > of weight, tired all of the time, complained of stomach pain and > > > constipation. Finally, a trip to urgent care led to the er, which led > to > > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > > they > > > are giving her lactulose to reduce it. Her speech has been slow, but > when > > I > > > saw her the other day she couldn't speak at all, hold a pen, and has > not > > > been able to go to the bathroom by herself. She is still not eating, > and > > > continuing to lose weight. I need to know if she is going to rebound > from > > > this. The hepatic encephalopathy is the most troubling, because she's > > > altered, confused, and in and out of it most of the time. I feel so bad > > > because if she had addressed this a year ago, she would probably be > > better. > > > Anyone here with > > > experience with this, or has a loved one with this, please let me know > > what > > > to expect. > > > > > > Sorry So Long > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 LOL There's one of the most common traits of hyperactivity. Does she tend to talk really fast and doesn't finish all of her sentences??? Gloria ________________________________ As you mention some of the signs I wonder if my daughter might have ADHD and myself..the other day my daughter was fidgeting her foot back and forth real fast like she has for yrs. My grandson that is 2 and 1/2 reached over and touched her leg and said 'stop it'...she did and told him 'I can't help it'. Kind of like it was a normal thing for him to tell her. I bet he has picked that up from his Dad, maybe. Dave ________________________________ To: livercirrhosissupport Sent: Thu, May 13, 2010 10:17:41 PM Subject: Re: Hi Dave It was absolutely around when we were kids; but, like I was saying to Jan, families dealt with it a whole site differently than today. At least, when I was growing up, my mother was an at home mother. So rather than drug her kids up, she just handled it. I don't know about you; but, I do remember that we were not taken to the Dr. for very much at all and so that brother's hyperactivity was probably only spoken about once by my Mom. Look around when you are at a meeting. The more hyperactive a person is, the more intense they are either swing their leg or tapping on the table or having to get up and down. Lots of others are just slightly afflicted and will just be moving in their seat quite often. When I used to suffer so bad and it seems to be coming back, I'd be the one with a leg swinging or playing with anything on my wrist etc. I can not wear a watch to this day because if they had stretching bands I'd twist them till they broke and if they didn't, it would just annoy me too much that I couldn't twist. Nowadays I wear cheap beaded bracelets and if they break, nothing much lost. For me, it gets really really bad if I'm in unfamiliar or scary territory!! The more uncomfortable I am, the more that my motor mouth will go faster and I just stay still. I've been accused of showing anger when this happens; but, it's not, I'm simply uncomfortable. Geez - I even have a motor mouth when talking on e-mails, can you imagine how it is actually talking to me?? LOL Gloria ________________________________ That ADHD connection to folk with addictive problems does make a lot of sense..I have never though of that, or even heard the connection, but am going to look into that. I really know very little about ADHD. It is interesting to me though on many levels. It is a curiosity if this was around when us baby boomers were lil' and just not diagnosed, or is it more prevelant now. If more so now I would wonder about environmental connection. I'm going to research this. Dave ________________________________ To: livercirrhosissupport Sent: Thu, May 13, 2010 9:07:12 PM Subject: Re: Hi When my children were in school, they spent about half the years in church/Christian schools. We were moving my oldest daughter's school and everybody available was asked to help. Our family was assigned to pack up the books in the library. In the car, my oldest daughter told her little brother who had not been diagnosed yet, but had severe adhd, " don't be normal today, act nice " It was embarrassing especially for her when he would act out the adhd. My main frustration was when I had to tell him to do something. I couldn't tell him to take his winter outerwear off, I had to tell him to take off his mittens, take off his scarf, take off his hat, take off his boots, take off his jacket and if he had them on to take off his snow pants, and then we went through the whole thing again when he was supposed to put them away. Otherwise, I found him very interesting because he was so curious about everything and always asking questions and exploring things like the inside of computer disks (remember the old ones). I would have like to have looked myself, but couldn't bring myself to tear apart something I had paid for and could still use. He also brought home an old calculator he found on the street and tore it apart. I have taken the adult tests online and show as having add. It explains a lot of things which happened in my life. I was impulsive. Didn't live up to my intellectual potential, and other things I don't care to discuss here. I have 2 or 3 grandsons I am sure have add at least if not adhd, one has been diagnosed but they aren't getting treatment because their parents, including the son who has it, don't believe in it. When my son was on medication, it was so much easier to deal with him, he did better in school, didn't get so frustrated, but he didn't like that slowed down feeling and when it came time for him to decide for himself, he refused the meds. Gloria, just so you know, you haven't annoyed everybody here. Jan H > Diane > > However, there would be nothing you could do about his drinking anyway. > It's always got to be up to the person that is addicted. > > Do you know, that a very high percentage of especially alcoholics, would > also be diagnosed as ADHD. It's fun in a meeting to look around at all the > " sober " ADHD people. You can even tell if they are low level or high level. > Before I was put on beta blockers, my ADHD would get so bad that it annoyed > me. Therefore, by that time, I'd already annoyed everyone around me LOL > I finally learned to do a simple meditation in order to slow myself down, so > I don't believe that I'm so bad now. > > Gloria > > > > > ________________________________ > > > I think some people have to worry more about alcoholism than others. I > have > a son who has adhd, won't take medication but drinks too much when he has > the money. His father doesn't drink because his father was an alcoholic > and > he could see himself starting to go down that road too. And there is also > a > great grandfather on that side of his family who was an alcoholic. My > great > grandfather and one of my brothers were/are alcoholics, so it really > concerns me that my son drinks what is more than social drinking. And now > with the genetic link to cirrhosis, he really has a triple whammy ready to > hit him. Jan H > > > > > Gehri > > > > I have to agree with Dave on all he has said!! > > > > The most horrible thing about alcoholism etc., is what it actually does > to > > those around that person. Even as a recovering alcoholic myself, I > > occasionally get frustrated that others can not seem to find a good > enough > > reason to put the addiction aside and get the necessary help. Then, > > hopefully, they would do it before getting as sick as your sister is now. > > I'll just pray that she rallies from this and actually realizes how much > > you love her!!! It's definitely a difficult path for you, with no doubt. > > > > Even at the level that your sister is at right now, there is a whole lot > of > > hope!! The hospital will fight hard to get this under control and she'll > > rebound, even though likely she will have to entirely change her > lifestyle, > > diet and all!! But the proof that it is absolutely possible, is in the > > stories of a number of people in this site. I know for sure that I am > > honoured and awed by the fighting spirit here. I also feel sooo grateful > > that at this point, it appears that I may not have to lose my liver to > > cirrhosis because of some top-notch help from the medical community. > > > > Please, let us know how it is going for you, as well as your sister. > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > She may have varices, but I have it and experience no pain from it..even > > when I've had bleeds I had no pain..others may be different perhaps..her > > pain may be from as- cites..hopefully they will get her amonia levels > down > > and some clarity will return....others here have experience with > > encephalopathy and can offer good advice..I would think much of her > problems > > are being caused by that..hang in there..peace and comfort to you all, > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Wed, May 12, 2010 4:15:25 PM > > Subject: Re: Hi > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > drinking a month or so before she fell ill. She is not at the point to > do > > the healthly lifestyle thing, as she's still in the hospital very sick > and > > not able to go to the bathroom on her own, hold her own cup, > > walk...anything. She has been sick for a long time, but wouldn't go see > > about it. This is her first hospitalization with this, and I'm just > praying > > she will be able to walk out of there, not die there. She was in denial > > that something was wrong for so long, but if she had just gone earlier, > she > > may have been able to stop drinking, eat better, etc. Right now, I just > > don't know. As of a few hours ago, her daughter told me they were taking > > her to x-ray her stomach to see why she's in so much pain...I pray it's > not > > varicies. You hang in there, too. I can only imagine the road you've > > traveled with this disease, and I hope you will be able to live a > > productive, > > healthier life. > > > > Blessings, > > Gehri > > > > ____________ _________ _________ __ > > From: dave dodds <daveliltoeyahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 2:35:27 PM > > Subject: Re: Hi > > > > > > I am sad for your sister and you. So far I have not developed encephalop > > athy and hope I do not..It is my greatest fear with this disease. ..it > > seems many, perhaps most, who drink actively do bounce back from > abstinance, > > clean living, and the benefits of taking med's properly, eating proper, > etc. > > Hopefully she will quit drinking..likely she will improve if she does, > but > > for sure she will continue getting worse if she does not..hang in there > > Gehri. She is lucky to have a caring sibling that is being there for > her. > > Ultimately that is about all you can do, being there. The rest is up to > > her. > > Dave > > > > ____________ _________ _________ __ > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Wed, May 12, 2010 10:07:35 AM > > Subject: Hi > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > diagnosed > > with Cirrhosis from alcohol. She is very sick, and I don't know what to > > expect. She actually has not looked well for over a year, she's lost a > lot > > of weight, tired all of the time, complained of stomach pain and > > constipation. Finally, a trip to urgent care led to the er, which led to > > hospitalization. Her eyes are yellow, she has ammonia in her blood, and > they > > are giving her lactulose to reduce it. Her speech has been slow, but when > I > > saw her the other day she couldn't speak at all, hold a pen, and has not > > been able to go to the bathroom by herself. She is still not eating, and > > continuing to lose weight. I need to know if she is going to rebound from > > this. The hepatic encephalopathy is the most troubling, because she's > > altered, confused, and in and out of it most of the time. I feel so bad > > because if she had addressed this a year ago, she would probably be > better. > > Anyone here with > > experience with this, or has a loved one with this, please let me know > what > > to expect. > > > > Sorry So Long > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 Yup, and though I seemed to be rebelling at the time, I still like to dress up and am usually one of the most dressed up people at church even today. Many people wear shorts to our church all year long, but I usually have on either a suit of some kind or a blazer with high heels. Jan H > Jan > > Absolutely agree!! Except that my brothers were sent to church on a Sunday > (me in the lead) and I had white patent shoes in the spring summer. So, > there was no parent to swat us; however, I swear that we were under pain of > death if we misbehaved. My brothers would be more in Sunday School anyway > and I could go back and forth. THE HATS!!! Wasn't that just a gas!! Of > course, then there was the ultimate at Easter too. > > Gloria > > > ________________________________ > > > Gloria - motor mouth probably describes me too. If no one else is around, > I > talk to myself, question and answer. When the kids were little and I was a > single mom, I said it was the only way I could have an intelligent > conversation. Their dad wasn't much of a talker either. > > My mother used to tell me how frustrated she would get when she took me to > church. It was our custom to dress up, even little kids, so I had a hat > and > gloves, black patent shoes, white socks and a frilly dress. We would go in > and sit down and before church would start, I would have my hat and gloves > off, dirty socks and dress from crawling around on the floor. I just > couldn't sit still. There was another custom in our church. If kids > didn't behave during church, ( and just in case, mothers sat in the back > with younger children) they were taken outside, and given a good swat > followed by a scream heard by everybody in the church so the other people > would know that mother had done her job. I agree with Dave, parents were > quicker to stop the hyper activity, but that doesn't mean we didn't have > the > conditioin. Jan H > > > > > Dave > > > > It was absolutely around when we were kids; but, like I was saying to > Jan, > > families dealt with it a whole site differently than today. At least, > when > > I was growing up, my mother was an at home mother. So rather than drug > her > > kids up, she just handled it. I don't know about you; but, I do remember > > that we were not taken to the Dr. for very much at all and so that > brother's > > hyperactivity was probably only spoken about once by my Mom. > > > > Look around when you are at a meeting. The more hyperactive a person is, > > the more intense they are either swing their leg or tapping on the table > or > > having to get up and down. Lots of others are just slightly afflicted > and > > will just be moving in their seat quite often. > > > > When I used to suffer so bad and it seems to be coming back, I'd be the > one > > with a leg swinging or playing with anything on my wrist etc. I can not > > wear a watch to this day because if they had stretching bands I'd twist > them > > till they broke and if they didn't, it would just annoy me too much that > I > > couldn't twist. Nowadays I wear cheap beaded bracelets and if they > break, > > nothing much lost. For me, it gets really really bad if I'm in > unfamiliar > > or scary territory!! The more uncomfortable I am, the more that my motor > > mouth will go faster and I just stay still. I've been accused of showing > > anger when this happens; but, it's not, I'm simply uncomfortable. > > > > Geez - I even have a motor mouth when talking on e-mails, can you imagine > > how it is actually talking to me?? LOL > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > That ADHD connection to folk with addictive problems does make a lot of > > sense..I have never though of that, or even heard the connection, but am > > going to look into that. I really know very little about ADHD. It is > > interesting to me though on many levels. It is a curiosity if this was > > around when us baby boomers were lil' and just not diagnosed, or is it > more > > prevelant now. If more so now I would wonder about environmental > > connection. I'm going to research this. > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Thu, May 13, 2010 9:07:12 PM > > Subject: Re: Hi > > > > > > When my children were in school, they spent about half the years in > > church/Christian schools. We were moving my oldest daughter's school and > > everybody available was asked to help. Our family was assigned to pack up > > the books in the library. In the car, my oldest daughter told her little > > brother who had not been diagnosed yet, but had severe adhd, " don't be > > normal today, act nice " It was embarrassing especially for her when he > > would act out the adhd. My main frustration was when I had to tell him to > > do something. I couldn't tell him to take his winter outerwear off, I had > > to tell him to take off his mittens, take off his scarf, take off his > hat, > > take off his boots, take off his jacket and if he had them on to take off > > his snow pants, and then we went through the whole thing again when he > was > > supposed to put them away. Otherwise, I found him very interesting > because > > he was so curious about everything and always asking questions and > > exploring > > things like the inside of computer disks (remember the old ones). I would > > have like to have looked myself, but couldn't bring myself to tear apart > > something I had paid for and could still use. He also brought home an old > > calculator he found on the street and tore it apart. I have taken the > adult > > tests online and show as having add. It explains a lot of things which > > happened in my life. I was impulsive. Didn't live up to my intellectual > > potential, and other things I don't care to discuss here. I have 2 or 3 > > grandsons I am sure have add at least if not adhd, one has been diagnosed > > but they aren't getting treatment because their parents, including the > son > > who has it, don't believe in it. When my son was on medication, it was so > > much easier to deal with him, he did better in school, didn't get so > > frustrated, but he didn't like that slowed down feeling and when it came > > time for him to decide for himself, he refused the meds. > > > > Gloria, just so you know, you haven't annoyed everybody here. Jan H > > > > On Thu, May 13, 2010 at 6:06 PM, Gloria > wrote: > > > > > Diane > > > > > > However, there would be nothing you could do about his drinking anyway. > > > It's always got to be up to the person that is addicted. > > > > > > Do you know, that a very high percentage of especially alcoholics, > would > > > also be diagnosed as ADHD. It's fun in a meeting to look around at all > > the > > > " sober " ADHD people. You can even tell if they are low level or high > > level. > > > Before I was put on beta blockers, my ADHD would get so bad that it > > annoyed > > > me. Therefore, by that time, I'd already annoyed everyone around me LOL > > > I finally learned to do a simple meditation in order to slow myself > down, > > so > > > I don't believe that I'm so bad now. > > > > > > Gloria > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > I think some people have to worry more about alcoholism than others. I > > > have > > > a son who has adhd, won't take medication but drinks too much when he > has > > > the money. His father doesn't drink because his father was an alcoholic > > > and > > > he could see himself starting to go down that road too. And there is > also > > > a > > > great grandfather on that side of his family who was an alcoholic. My > > > great > > > grandfather and one of my brothers were/are alcoholics, so it really > > > concerns me that my son drinks what is more than social drinking. And > now > > > with the genetic link to cirrhosis, he really has a triple whammy ready > > to > > > hit him. Jan H > > > > > > On Wed, May 12, 2010 at 8:56 PM, Gloria > > wrote: > > > > > > > Gehri > > > > > > > > I have to agree with Dave on all he has said!! > > > > > > > > The most horrible thing about alcoholism etc., is what it actually > does > > > to > > > > those around that person. Even as a recovering alcoholic myself, I > > > > occasionally get frustrated that others can not seem to find a good > > > enough > > > > reason to put the addiction aside and get the necessary help. Then, > > > > hopefully, they would do it before getting as sick as your sister is > > now. > > > > I'll just pray that she rallies from this and actually realizes how > > much > > > > you love her!!! It's definitely a difficult path for you, with no > > doubt. > > > > > > > > Even at the level that your sister is at right now, there is a whole > > lot > > > of > > > > hope!! The hospital will fight hard to get this under control and > > she'll > > > > rebound, even though likely she will have to entirely change her > > > lifestyle, > > > > diet and all!! But the proof that it is absolutely possible, is in > the > > > > stories of a number of people in this site. I know for sure that I am > > > > honoured and awed by the fighting spirit here. I also feel sooo > > grateful > > > > that at this point, it appears that I may not have to lose my liver > to > > > > cirrhosis because of some top-notch help from the medical community. > > > > > > > > Please, let us know how it is going for you, as well as your sister. > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > She may have varices, but I have it and experience no pain from > > it..even > > > > when I've had bleeds I had no pain..others may be different > > perhaps..her > > > > pain may be from as- cites..hopefully they will get her amonia levels > > > down > > > > and some clarity will return....others here have experience with > > > > encephalopathy and can offer good advice..I would think much of her > > > problems > > > > are being caused by that..hang in there..peace and comfort to you > all, > > > > Dave > > > > > > > > ________________________________ > > > > > > > > To: livercirrhosissupport > > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > > Subject: Re: Hi > > > > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > > > drinking a month or so before she fell ill. She is not at the point > to > > > do > > > > the healthly lifestyle thing, as she's still in the hospital very > sick > > > and > > > > not able to go to the bathroom on her own, hold her own cup, > > > > walk...anything. She has been sick for a long time, but wouldn't go > see > > > > about it. This is her first hospitalization with this, and I'm just > > > praying > > > > she will be able to walk out of there, not die there. She was in > denial > > > > that something was wrong for so long, but if she had just gone > earlier, > > > she > > > > may have been able to stop drinking, eat better, etc. Right now, I > just > > > > don't know. As of a few hours ago, her daughter told me they were > > taking > > > > her to x-ray her stomach to see why she's in so much pain...I pray > it's > > > not > > > > varicies. You hang in there, too. I can only imagine the road you've > > > > traveled with this disease, and I hope you will be able to live a > > > > productive, > > > > healthier life. > > > > > > > > Blessings, > > > > Gehri > > > > > > > > ____________ _________ _________ __ > > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > > Subject: Re: Hi > > > > > > > > > > > > I am sad for your sister and you. So far I have not developed > > encephalop > > > > athy and hope I do not..It is my greatest fear with this disease. > ..it > > > > seems many, perhaps most, who drink actively do bounce back from > > > abstinance, > > > > clean living, and the benefits of taking med's properly, eating > proper, > > > etc. > > > > Hopefully she will quit drinking..likely she will improve if she > does, > > > but > > > > for sure she will continue getting worse if she does not..hang in > there > > > > Gehri. She is lucky to have a caring sibling that is being there for > > > her. > > > > Ultimately that is about all you can do, being there. The rest is up > to > > > > her. > > > > Dave > > > > > > > > ____________ _________ _________ __ > > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > > Subject: Hi > > > > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > > > diagnosed > > > > with Cirrhosis from alcohol. She is very sick, and I don't know what > to > > > > expect. She actually has not looked well for over a year, she's lost > a > > > lot > > > > of weight, tired all of the time, complained of stomach pain and > > > > constipation. Finally, a trip to urgent care led to the er, which led > > to > > > > hospitalization. Her eyes are yellow, she has ammonia in her blood, > and > > > they > > > > are giving her lactulose to reduce it. Her speech has been slow, but > > when > > > I > > > > saw her the other day she couldn't speak at all, hold a pen, and has > > not > > > > been able to go to the bathroom by herself. She is still not eating, > > and > > > > continuing to lose weight. I need to know if she is going to rebound > > from > > > > this. The hepatic encephalopathy is the most troubling, because she's > > > > altered, confused, and in and out of it most of the time. I feel so > bad > > > > because if she had addressed this a year ago, she would probably be > > > better. > > > > Anyone here with > > > > experience with this, or has a loved one with this, please let me > know > > > what > > > > to expect. > > > > > > > > Sorry So Long > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 I am always being told that I talk too fast, and that people can't understand me. And half the sentences I start, I forget what I was going to say or why I was saying it, supposed to in response to something someone else had said before. For instance, I had to go back to see what you had said because I knew there was a second part I was going to respond to, and couldn't remember what it was. I tell people that at least when I keep forgetting things that I will never run out of things to learn. When someone wants to sing a song at church with a lot of flats or sharps, they say oh, it has ..... flats/sharps, meaning it will be hard to play. I tell them I can forget the key of C as easily as a key with lots of sharps or flats. I constantly have to look back to see what the key is. Jan H > Yup, and though I seemed to be rebelling at the time, I still like to dress > up and am usually one of the most dressed up people at church even today. > Many people wear shorts to our church all year long, but I usually have on > either a suit of some kind or a blazer with high heels. Jan H > > > >> Jan >> >> Absolutely agree!! Except that my brothers were sent to church on a >> Sunday (me in the lead) and I had white patent shoes in the spring summer. >> So, there was no parent to swat us; however, I swear that we were under >> pain of death if we misbehaved. My brothers would be more in Sunday School >> anyway and I could go back and forth. THE HATS!!! Wasn't that just a gas!! >> Of course, then there was the ultimate at Easter too. >> >> Gloria >> >> >> ________________________________ >> >> >> Gloria - motor mouth probably describes me too. If no one else is around, >> I >> talk to myself, question and answer. When the kids were little and I was >> a >> single mom, I said it was the only way I could have an intelligent >> conversation. Their dad wasn't much of a talker either. >> >> My mother used to tell me how frustrated she would get when she took me to >> church. It was our custom to dress up, even little kids, so I had a hat >> and >> gloves, black patent shoes, white socks and a frilly dress. We would go >> in >> and sit down and before church would start, I would have my hat and gloves >> off, dirty socks and dress from crawling around on the floor. I just >> couldn't sit still. There was another custom in our church. If kids >> didn't behave during church, ( and just in case, mothers sat in the back >> with younger children) they were taken outside, and given a good swat >> followed by a scream heard by everybody in the church so the other people >> would know that mother had done her job. I agree with Dave, parents were >> quicker to stop the hyper activity, but that doesn't mean we didn't have >> the >> conditioin. Jan H >> >> >> >> > Dave >> > >> > It was absolutely around when we were kids; but, like I was saying to >> Jan, >> > families dealt with it a whole site differently than today. At least, >> when >> > I was growing up, my mother was an at home mother. So rather than drug >> her >> > kids up, she just handled it. I don't know about you; but, I do remember >> > that we were not taken to the Dr. for very much at all and so that >> brother's >> > hyperactivity was probably only spoken about once by my Mom. >> > >> > Look around when you are at a meeting. The more hyperactive a person >> is, >> > the more intense they are either swing their leg or tapping on the table >> or >> > having to get up and down. Lots of others are just slightly afflicted >> and >> > will just be moving in their seat quite often. >> > >> > When I used to suffer so bad and it seems to be coming back, I'd be the >> one >> > with a leg swinging or playing with anything on my wrist etc. I can not >> > wear a watch to this day because if they had stretching bands I'd twist >> them >> > till they broke and if they didn't, it would just annoy me too much that >> I >> > couldn't twist. Nowadays I wear cheap beaded bracelets and if they >> break, >> > nothing much lost. For me, it gets really really bad if I'm in >> unfamiliar >> > or scary territory!! The more uncomfortable I am, the more that my >> motor >> > mouth will go faster and I just stay still. I've been accused of >> showing >> > anger when this happens; but, it's not, I'm simply uncomfortable. >> > >> > Geez - I even have a motor mouth when talking on e-mails, can you >> imagine >> > how it is actually talking to me?? LOL >> > >> > Gloria >> > >> > >> > >> > >> > ________________________________ >> > >> > >> > That ADHD connection to folk with addictive problems does make a lot of >> > sense..I have never though of that, or even heard the connection, but am >> > going to look into that. I really know very little about ADHD. It is >> > interesting to me though on many levels. It is a curiosity if this was >> > around when us baby boomers were lil' and just not diagnosed, or is it >> more >> > prevelant now. If more so now I would wonder about environmental >> > connection. I'm going to research this. >> > Dave >> > >> > ________________________________ >> > >> > To: livercirrhosissupport >> > Sent: Thu, May 13, 2010 9:07:12 PM >> > Subject: Re: Hi >> > >> > >> > When my children were in school, they spent about half the years in >> > church/Christian schools. We were moving my oldest daughter's school and >> > everybody available was asked to help. Our family was assigned to pack >> up >> > the books in the library. In the car, my oldest daughter told her little >> > brother who had not been diagnosed yet, but had severe adhd, " don't be >> > normal today, act nice " It was embarrassing especially for her when he >> > would act out the adhd. My main frustration was when I had to tell him >> to >> > do something. I couldn't tell him to take his winter outerwear off, I >> had >> > to tell him to take off his mittens, take off his scarf, take off his >> hat, >> > take off his boots, take off his jacket and if he had them on to take >> off >> > his snow pants, and then we went through the whole thing again when he >> was >> > supposed to put them away. Otherwise, I found him very interesting >> because >> > he was so curious about everything and always asking questions and >> > exploring >> > things like the inside of computer disks (remember the old ones). I >> would >> > have like to have looked myself, but couldn't bring myself to tear apart >> > something I had paid for and could still use. He also brought home an >> old >> > calculator he found on the street and tore it apart. I have taken the >> adult >> > tests online and show as having add. It explains a lot of things which >> > happened in my life. I was impulsive. Didn't live up to my intellectual >> > potential, and other things I don't care to discuss here. I have 2 or 3 >> > grandsons I am sure have add at least if not adhd, one has been >> diagnosed >> > but they aren't getting treatment because their parents, including the >> son >> > who has it, don't believe in it. When my son was on medication, it was >> so >> > much easier to deal with him, he did better in school, didn't get so >> > frustrated, but he didn't like that slowed down feeling and when it came >> > time for him to decide for himself, he refused the meds. >> > >> > Gloria, just so you know, you haven't annoyed everybody here. Jan H >> > >> > On Thu, May 13, 2010 at 6:06 PM, Gloria >> wrote: >> > >> > > Diane >> > > >> > > However, there would be nothing you could do about his drinking >> anyway. >> > > It's always got to be up to the person that is addicted. >> > > >> > > Do you know, that a very high percentage of especially alcoholics, >> would >> > > also be diagnosed as ADHD. It's fun in a meeting to look around at all >> > the >> > > " sober " ADHD people. You can even tell if they are low level or high >> > level. >> > > Before I was put on beta blockers, my ADHD would get so bad that it >> > annoyed >> > > me. Therefore, by that time, I'd already annoyed everyone around me >> LOL >> > > I finally learned to do a simple meditation in order to slow myself >> down, >> > so >> > > I don't believe that I'm so bad now. >> > > >> > > Gloria >> > > >> > > >> > > >> > > >> > > ________________________________ >> > > >> > > >> > > I think some people have to worry more about alcoholism than others. I >> > > have >> > > a son who has adhd, won't take medication but drinks too much when he >> has >> > > the money. His father doesn't drink because his father was an >> alcoholic >> > > and >> > > he could see himself starting to go down that road too. And there is >> also >> > > a >> > > great grandfather on that side of his family who was an alcoholic. My >> > > great >> > > grandfather and one of my brothers were/are alcoholics, so it really >> > > concerns me that my son drinks what is more than social drinking. And >> now >> > > with the genetic link to cirrhosis, he really has a triple whammy >> ready >> > to >> > > hit him. Jan H >> > > >> > > On Wed, May 12, 2010 at 8:56 PM, Gloria >> > wrote: >> > > >> > > > Gehri >> > > > >> > > > I have to agree with Dave on all he has said!! >> > > > >> > > > The most horrible thing about alcoholism etc., is what it actually >> does >> > > to >> > > > those around that person. Even as a recovering alcoholic myself, I >> > > > occasionally get frustrated that others can not seem to find a good >> > > enough >> > > > reason to put the addiction aside and get the necessary help. Then, >> > > > hopefully, they would do it before getting as sick as your sister is >> > now. >> > > > I'll just pray that she rallies from this and actually realizes how >> > much >> > > > you love her!!! It's definitely a difficult path for you, with no >> > doubt. >> > > > >> > > > Even at the level that your sister is at right now, there is a whole >> > lot >> > > of >> > > > hope!! The hospital will fight hard to get this under control and >> > she'll >> > > > rebound, even though likely she will have to entirely change her >> > > lifestyle, >> > > > diet and all!! But the proof that it is absolutely possible, is in >> the >> > > > stories of a number of people in this site. I know for sure that I >> am >> > > > honoured and awed by the fighting spirit here. I also feel sooo >> > grateful >> > > > that at this point, it appears that I may not have to lose my liver >> to >> > > > cirrhosis because of some top-notch help from the medical community. >> > > > >> > > > Please, let us know how it is going for you, as well as your sister. >> > > > >> > > > Gloria >> > > > >> > > > >> > > > >> > > > >> > > > ________________________________ >> > > > >> > > > >> > > > She may have varices, but I have it and experience no pain from >> > it..even >> > > > when I've had bleeds I had no pain..others may be different >> > perhaps..her >> > > > pain may be from as- cites..hopefully they will get her amonia >> levels >> > > down >> > > > and some clarity will return....others here have experience with >> > > > encephalopathy and can offer good advice..I would think much of her >> > > problems >> > > > are being caused by that..hang in there..peace and comfort to you >> all, >> > > > Dave >> > > > >> > > > ________________________________ >> > > > >> > > > To: livercirrhosissupport >> > > > Sent: Wed, May 12, 2010 4:15:25 PM >> > > > Subject: Re: Hi >> > > > >> > > > >> > > > Hi Dave. Thank you for responding. My sister had actually stopped >> > > > drinking a month or so before she fell ill. She is not at the point >> to >> > > do >> > > > the healthly lifestyle thing, as she's still in the hospital very >> sick >> > > and >> > > > not able to go to the bathroom on her own, hold her own cup, >> > > > walk...anything. She has been sick for a long time, but wouldn't go >> see >> > > > about it. This is her first hospitalization with this, and I'm just >> > > praying >> > > > she will be able to walk out of there, not die there. She was in >> denial >> > > > that something was wrong for so long, but if she had just gone >> earlier, >> > > she >> > > > may have been able to stop drinking, eat better, etc. Right now, I >> just >> > > > don't know. As of a few hours ago, her daughter told me they were >> > taking >> > > > her to x-ray her stomach to see why she's in so much pain...I pray >> it's >> > > not >> > > > varicies. You hang in there, too. I can only imagine the road you've >> > > > traveled with this disease, and I hope you will be able to live a >> > > > productive, >> > > > healthier life. >> > > > >> > > > Blessings, >> > > > Gehri >> > > > >> > > > ____________ _________ _________ __ >> > > > From: dave dodds <daveliltoeyahoo (DOT) com> >> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com >> > > > Sent: Wed, May 12, 2010 2:35:27 PM >> > > > Subject: Re: Hi >> > > > >> > > > >> > > > I am sad for your sister and you. So far I have not developed >> > encephalop >> > > > athy and hope I do not..It is my greatest fear with this disease. >> ..it >> > > > seems many, perhaps most, who drink actively do bounce back from >> > > abstinance, >> > > > clean living, and the benefits of taking med's properly, eating >> proper, >> > > etc. >> > > > Hopefully she will quit drinking..likely she will improve if she >> does, >> > > but >> > > > for sure she will continue getting worse if she does not..hang in >> there >> > > > Gehri. She is lucky to have a caring sibling that is being there for >> > > her. >> > > > Ultimately that is about all you can do, being there. The rest is up >> to >> > > > her. >> > > > Dave >> > > > >> > > > ____________ _________ _________ __ >> > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> >> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com >> > > > Sent: Wed, May 12, 2010 10:07:35 AM >> > > > Subject: Hi >> > > > >> > > > >> > > > Hi, my name is Gehri, and my sister recently was hospitalized and >> > > diagnosed >> > > > with Cirrhosis from alcohol. She is very sick, and I don't know what >> to >> > > > expect. She actually has not looked well for over a year, she's lost >> a >> > > lot >> > > > of weight, tired all of the time, complained of stomach pain and >> > > > constipation. Finally, a trip to urgent care led to the er, which >> led >> > to >> > > > hospitalization. Her eyes are yellow, she has ammonia in her blood, >> and >> > > they >> > > > are giving her lactulose to reduce it. Her speech has been slow, but >> > when >> > > I >> > > > saw her the other day she couldn't speak at all, hold a pen, and has >> > not >> > > > been able to go to the bathroom by herself. She is still not eating, >> > and >> > > > continuing to lose weight. I need to know if she is going to rebound >> > from >> > > > this. The hepatic encephalopathy is the most troubling, because >> she's >> > > > altered, confused, and in and out of it most of the time. I feel so >> bad >> > > > because if she had addressed this a year ago, she would probably be >> > > better. >> > > > Anyone here with >> > > > experience with this, or has a loved one with this, please let me >> know >> > > what >> > > > to expect. >> > > > >> > > > Sorry So Long >> > > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 LOL I don't think I could attend church without wearing a dress and I don't wear dresses. Ok, I might allow myself dress pants and a nice blouse; but, certainly not jeans or shorts. That would just be too alien to me!! Gloria ________________________________ Yup, and though I seemed to be rebelling at the time, I still like to dress up and am usually one of the most dressed up people at church even today. Many people wear shorts to our church all year long, but I usually have on either a suit of some kind or a blazer with high heels. Jan H > Jan > > Absolutely agree!! Except that my brothers were sent to church on a Sunday > (me in the lead) and I had white patent shoes in the spring summer. So, > there was no parent to swat us; however, I swear that we were under pain of > death if we misbehaved. My brothers would be more in Sunday School anyway > and I could go back and forth. THE HATS!!! Wasn't that just a gas!! Of > course, then there was the ultimate at Easter too. > > Gloria > > > ________________________________ > > > Gloria - motor mouth probably describes me too. If no one else is around, > I > talk to myself, question and answer. When the kids were little and I was a > single mom, I said it was the only way I could have an intelligent > conversation. Their dad wasn't much of a talker either. > > My mother used to tell me how frustrated she would get when she took me to > church. It was our custom to dress up, even little kids, so I had a hat > and > gloves, black patent shoes, white socks and a frilly dress. We would go in > and sit down and before church would start, I would have my hat and gloves > off, dirty socks and dress from crawling around on the floor. I just > couldn't sit still. There was another custom in our church. If kids > didn't behave during church, ( and just in case, mothers sat in the back > with younger children) they were taken outside, and given a good swat > followed by a scream heard by everybody in the church so the other people > would know that mother had done her job. I agree with Dave, parents were > quicker to stop the hyper activity, but that doesn't mean we didn't have > the > conditioin. Jan H > > > > > Dave > > > > It was absolutely around when we were kids; but, like I was saying to > Jan, > > families dealt with it a whole site differently than today. At least, > when > > I was growing up, my mother was an at home mother. So rather than drug > her > > kids up, she just handled it. I don't know about you; but, I do remember > > that we were not taken to the Dr. for very much at all and so that > brother's > > hyperactivity was probably only spoken about once by my Mom. > > > > Look around when you are at a meeting. The more hyperactive a person is, > > the more intense they are either swing their leg or tapping on the table > or > > having to get up and down. Lots of others are just slightly afflicted > and > > will just be moving in their seat quite often. > > > > When I used to suffer so bad and it seems to be coming back, I'd be the > one > > with a leg swinging or playing with anything on my wrist etc. I can not > > wear a watch to this day because if they had stretching bands I'd twist > them > > till they broke and if they didn't, it would just annoy me too much that > I > > couldn't twist. Nowadays I wear cheap beaded bracelets and if they > break, > > nothing much lost. For me, it gets really really bad if I'm in > unfamiliar > > or scary territory!! The more uncomfortable I am, the more that my motor > > mouth will go faster and I just stay still. I've been accused of showing > > anger when this happens; but, it's not, I'm simply uncomfortable. > > > > Geez - I even have a motor mouth when talking on e-mails, can you imagine > > how it is actually talking to me?? LOL > > > > Gloria > > > > > > > > > > ________________________________ > > > > > > That ADHD connection to folk with addictive problems does make a lot of > > sense..I have never though of that, or even heard the connection, but am > > going to look into that. I really know very little about ADHD. It is > > interesting to me though on many levels. It is a curiosity if this was > > around when us baby boomers were lil' and just not diagnosed, or is it > more > > prevelant now. If more so now I would wonder about environmental > > connection. I'm going to research this. > > Dave > > > > ________________________________ > > > > To: livercirrhosissupport > > Sent: Thu, May 13, 2010 9:07:12 PM > > Subject: Re: Hi > > > > > > When my children were in school, they spent about half the years in > > church/Christian schools. We were moving my oldest daughter's school and > > everybody available was asked to help. Our family was assigned to pack up > > the books in the library. In the car, my oldest daughter told her little > > brother who had not been diagnosed yet, but had severe adhd, " don't be > > normal today, act nice " It was embarrassing especially for her when he > > would act out the adhd. My main frustration was when I had to tell him to > > do something. I couldn't tell him to take his winter outerwear off, I had > > to tell him to take off his mittens, take off his scarf, take off his > hat, > > take off his boots, take off his jacket and if he had them on to take off > > his snow pants, and then we went through the whole thing again when he > was > > supposed to put them away. Otherwise, I found him very interesting > because > > he was so curious about everything and always asking questions and > > exploring > > things like the inside of computer disks (remember the old ones). I would > > have like to have looked myself, but couldn't bring myself to tear apart > > something I had paid for and could still use. He also brought home an old > > calculator he found on the street and tore it apart. I have taken the > adult > > tests online and show as having add. It explains a lot of things which > > happened in my life. I was impulsive. Didn't live up to my intellectual > > potential, and other things I don't care to discuss here. I have 2 or 3 > > grandsons I am sure have add at least if not adhd, one has been diagnosed > > but they aren't getting treatment because their parents, including the > son > > who has it, don't believe in it. When my son was on medication, it was so > > much easier to deal with him, he did better in school, didn't get so > > frustrated, but he didn't like that slowed down feeling and when it came > > time for him to decide for himself, he refused the meds. > > > > Gloria, just so you know, you haven't annoyed everybody here. Jan H > > > > On Thu, May 13, 2010 at 6:06 PM, Gloria > wrote: > > > > > Diane > > > > > > However, there would be nothing you could do about his drinking anyway. > > > It's always got to be up to the person that is addicted. > > > > > > Do you know, that a very high percentage of especially alcoholics, > would > > > also be diagnosed as ADHD. It's fun in a meeting to look around at all > > the > > > " sober " ADHD people. You can even tell if they are low level or high > > level. > > > Before I was put on beta blockers, my ADHD would get so bad that it > > annoyed > > > me. Therefore, by that time, I'd already annoyed everyone around me LOL > > > I finally learned to do a simple meditation in order to slow myself > down, > > so > > > I don't believe that I'm so bad now. > > > > > > Gloria > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > I think some people have to worry more about alcoholism than others. I > > > have > > > a son who has adhd, won't take medication but drinks too much when he > has > > > the money. His father doesn't drink because his father was an alcoholic > > > and > > > he could see himself starting to go down that road too. And there is > also > > > a > > > great grandfather on that side of his family who was an alcoholic. My > > > great > > > grandfather and one of my brothers were/are alcoholics, so it really > > > concerns me that my son drinks what is more than social drinking. And > now > > > with the genetic link to cirrhosis, he really has a triple whammy ready > > to > > > hit him. Jan H > > > > > > On Wed, May 12, 2010 at 8:56 PM, Gloria > > wrote: > > > > > > > Gehri > > > > > > > > I have to agree with Dave on all he has said!! > > > > > > > > The most horrible thing about alcoholism etc., is what it actually > does > > > to > > > > those around that person. Even as a recovering alcoholic myself, I > > > > occasionally get frustrated that others can not seem to find a good > > > enough > > > > reason to put the addiction aside and get the necessary help. Then, > > > > hopefully, they would do it before getting as sick as your sister is > > now. > > > > I'll just pray that she rallies from this and actually realizes how > > much > > > > you love her!!! It's definitely a difficult path for you, with no > > doubt. > > > > > > > > Even at the level that your sister is at right now, there is a whole > > lot > > > of > > > > hope!! The hospital will fight hard to get this under control and > > she'll > > > > rebound, even though likely she will have to entirely change her > > > lifestyle, > > > > diet and all!! But the proof that it is absolutely possible, is in > the > > > > stories of a number of people in this site. I know for sure that I am > > > > honoured and awed by the fighting spirit here. I also feel sooo > > grateful > > > > that at this point, it appears that I may not have to lose my liver > to > > > > cirrhosis because of some top-notch help from the medical community. > > > > > > > > Please, let us know how it is going for you, as well as your sister. > > > > > > > > Gloria > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > > > > > > She may have varices, but I have it and experience no pain from > > it..even > > > > when I've had bleeds I had no pain..others may be different > > perhaps..her > > > > pain may be from as- cites..hopefully they will get her amonia levels > > > down > > > > and some clarity will return....others here have experience with > > > > encephalopathy and can offer good advice..I would think much of her > > > problems > > > > are being caused by that..hang in there..peace and comfort to you > all, > > > > Dave > > > > > > > > ________________________________ > > > > > > > > To: livercirrhosissupport > > > > Sent: Wed, May 12, 2010 4:15:25 PM > > > > Subject: Re: Hi > > > > > > > > > > > > Hi Dave. Thank you for responding. My sister had actually stopped > > > > drinking a month or so before she fell ill. She is not at the point > to > > > do > > > > the healthly lifestyle thing, as she's still in the hospital very > sick > > > and > > > > not able to go to the bathroom on her own, hold her own cup, > > > > walk...anything. She has been sick for a long time, but wouldn't go > see > > > > about it. This is her first hospitalization with this, and I'm just > > > praying > > > > she will be able to walk out of there, not die there. She was in > denial > > > > that something was wrong for so long, but if she had just gone > earlier, > > > she > > > > may have been able to stop drinking, eat better, etc. Right now, I > just > > > > don't know. As of a few hours ago, her daughter told me they were > > taking > > > > her to x-ray her stomach to see why she's in so much pain...I pray > it's > > > not > > > > varicies. You hang in there, too. I can only imagine the road you've > > > > traveled with this disease, and I hope you will be able to live a > > > > productive, > > > > healthier life. > > > > > > > > Blessings, > > > > Gehri > > > > > > > > ____________ _________ _________ __ > > > > From: dave dodds <daveliltoeyahoo (DOT) com> > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > Sent: Wed, May 12, 2010 2:35:27 PM > > > > Subject: Re: Hi > > > > > > > > > > > > I am sad for your sister and you. So far I have not developed > > encephalop > > > > athy and hope I do not..It is my greatest fear with this disease. > ..it > > > > seems many, perhaps most, who drink actively do bounce back from > > > abstinance, > > > > clean living, and the benefits of taking med's properly, eating > proper, > > > etc. > > > > Hopefully she will quit drinking..likely she will improve if she > does, > > > but > > > > for sure she will continue getting worse if she does not..hang in > there > > > > Gehri. She is lucky to have a caring sibling that is being there for > > > her. > > > > Ultimately that is about all you can do, being there. The rest is up > to > > > > her. > > > > Dave > > > > > > > > ____________ _________ _________ __ > > > > From: sisterlockqueen319 <sisterlockqueen319 @ yahoo.com> > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > Sent: Wed, May 12, 2010 10:07:35 AM > > > > Subject: Hi > > > > > > > > > > > > Hi, my name is Gehri, and my sister recently was hospitalized and > > > diagnosed > > > > with Cirrhosis from alcohol. She is very sick, and I don't know what > to > > > > expect. She actually has not looked well for over a year, she's lost > a > > > lot > > > > of weight, tired all of the time, complained of stomach pain and > > > > constipation. Finally, a trip to urgent care led to the er, which led > > to > > > > hospitalization. Her eyes are yellow, she has ammonia in her blood, > and > > > they > > > > are giving her lactulose to reduce it. Her speech has been slow, but > > when > > > I > > > > saw her the other day she couldn't speak at all, hold a pen, and has > > not > > > > been able to go to the bathroom by herself. She is still not eating, > > and > > > > continuing to lose weight. I need to know if she is going to rebound > > from > > > > this. The hepatic encephalopathy is the most troubling, because she's > > > > altered, confused, and in and out of it most of the time. I feel so > bad > > > > because if she had addressed this a year ago, she would probably be > > > better. > > > > Anyone here with > > > > experience with this, or has a loved one with this, please let me > know > > > what > > > > to expect. > > > > > > > > Sorry So Long > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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