Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 I think that program is for the families of vets who were exposed to Agent Orange in Vietnam. There are also programs for them concerning diabetes and high blood pressure caused by Agent Orange. Information can be obtained through your city's Veteran's Affairs office, or Veteran's Hospital. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Yes, that's what my thought was - agent orange - I was just curious if there members who were born to vets that could possibly qualify for these programs that didn't know they were available. Kathy RE: > I think that program is for the families of vets who were exposed to Agent > Orange in Vietnam. There are also programs for them concerning diabetes and > high blood pressure caused by Agent Orange. Information can be obtained > through your city's Veteran's Affairs office, or Veteran's Hospital. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Do you mean Agent Orange Benefits? Or however they word it. I don't know much about it, but there are some Websites about it on my Site. http://www.mybookmarks.com/public/SB_Parents I wasn't born during that time myself, though. None of my close Family have served in the Arm Forces. Me Nebraska, USA mymocha@... > Does anyone know about the Government program available to children of > vietnam vets who had chidren with Spina Bifida? I just happened to come > across it while doing some research not even medically related. > > I was wondering how many people were born during these years (on the list) > and how many of these have a parent(s) that served during the Vietnam war? > --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.419 / Virus Database: 235 - Release Date: 11/13/2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 hmmm...lets see.. symptoms...keep in mind most everyone is diff in the way they feel.. Low back pain anbd stiffness,leg and back weakness, my legs tire very easily, i do not do much walking because of it. I have problems sitting for long stretches of time. I also get alot of upper body problems to like extreme rm weakness bilaterally, major head pain and lots of dizzyness, vision problems, head and neck numbness, major nausea...but i also have Arnold Chiari Malformation so i dont know how much of the upper symptoms are from that or the chord, i just tend to deal with em Hi, I am 47 and just found out that I have this. Can anyone tell me what symptoms they might be having as adults with this? Debbie ~whenever you hear music an angel is speaking to you~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2003 Report Share Posted March 1, 2003 Marissa, I hope you are able to get into Barrow's sooner...that is where my neurosurgeon is... Dr Rekate.....it is a great place...I know sometimes it takes a while to get in, but hang in there....where in AZ are you? > My update; > I saw the neurologist yesterday and he has scheduled an emg for the 28th of March. He is trying to get me in to see the neurosurgeons as soon as possible at Barrows Neurological Institute. (One would think that since I work for one of their sister hospitals that I would be seen sooner, but it doesn't work that way. If I even get hurt on the job and have to be seen in my ER, I still have to wait like everyone else *L*) My leg feels weak like it wants to give out on me, and I asked him if it would and he told me that it actually could. I can't bring myself to use a cane yet, though I did finally break down and get a handicapped placard. If the doctors want to operate on me, I don't know what I will do. > , congratulations on the great news! I hope everything goes smoothly for you....and if by chance you live in my neck of the woods and go into labor, feel free to drop by my work to have your baby *s* > Forgive my lousy memory (the doc says it's not due to the TCS) but I recall someone saying that a child would be having surgery very very soon...I'll keep my fingers crossed and whisper out a little prayer for her to the Man upstairs... > > Have a wonderful weekend > ~angelic hugs~ > Debbie aka Seraphina aka Marissa > ~whenever you hear music an angel is speaking to you~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2003 Report Share Posted March 1, 2003 Dr Rekate was recommended to me by a Neonatal Nurse Practioner. I heard that if one needs surgery, that you are better off having a pediatric neuro dr do it because they have more experience, and I was told that Dr Rekate does both children and adults. I'm hoping that if I can at least get in sooner, that I can switch later or at least get a second opinion. Did you have surgery and how did it go? Were you born with spina bifida or one of the other things? Or did you just discover this TSC as I did? I live in Mesa, but work in Chandler. > My update; > I saw the neurologist yesterday and he has scheduled an emg for the 28th of March. He is trying to get me in to see the neurosurgeons as soon as possible at Barrows Neurological Institute. (One would think that since I work for one of their sister hospitals that I would be seen sooner, but it doesn't work that way. If I even get hurt on the job and have to be seen in my ER, I still have to wait like everyone else *L*) My leg feels weak like it wants to give out on me, and I asked him if it would and he told me that it actually could. I can't bring myself to use a cane yet, though I did finally break down and get a handicapped placard. If the doctors want to operate on me, I don't know what I will do. > , congratulations on the great news! I hope everything goes smoothly for you....and if by chance you live in my neck of the woods and go into labor, feel free to drop by my work to have your baby *s* > Forgive my lousy memory (the doc says it's not due to the TCS) but I recall someone saying that a child would be having surgery very very soon...I'll keep my fingers crossed and whisper out a little prayer for her to the Man upstairs... > > Have a wonderful weekend > ~angelic hugs~ > Debbie aka Seraphina aka Marissa > ~whenever you hear music an angel is speaking to you~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2003 Report Share Posted March 1, 2003 Marissa, I was diagnosed with Spina Bifida Occulta and Tethered Cord and Meningocele in July of 2002..My Neurosurgeon here in Prescott sent me to Barrows and they to Dr Rekate....I had my surgery this past Sept and I am doing great...I was out shoveling snow yesterday...I do have some little problems but not anything like I had before my surgery........Dr Rekate did a wonderful job and I can't speak highly enough about him. -- Original Message ----- To: <tetheredspinalcord > Sent: Friday, February 28, 2003 8:32 PM Subject: Re: > Dr Rekate was recommended to me by a Neonatal Nurse Practioner. I heard that if one needs surgery, that you are better off having a pediatric neuro dr do it because they have more experience, and I was told that Dr Rekate does both children and adults. I'm hoping that if I can at least get in sooner, that I can switch later or at least get a second opinion. Did you have surgery and how did it go? Were you born with spina bifida or one of the other things? Or did you just discover this TSC as I did? I live in Mesa, but work in Chandler. > > > > > > My update; > > I saw the neurologist yesterday and he has scheduled an emg for the > 28th of March. He is trying to get me in to see the neurosurgeons as soon > as possible at Barrows Neurological Institute. (One would think that since > I work for one of their sister hospitals that I would be seen sooner, but it > doesn't work that way. If I even get hurt on the job and have to be seen in > my ER, I still have to wait like everyone else *L*) My leg feels weak like > it wants to give out on me, and I asked him if it would and he told me that > it actually could. I can't bring myself to use a cane yet, though I did > finally break down and get a handicapped placard. If the doctors want to > operate on me, I don't know what I will do. > > , congratulations on the great news! I hope everything goes > smoothly for you....and if by chance you live in my neck of the woods and go > into labor, feel free to drop by my work to have your baby *s* > > Forgive my lousy memory (the doc says it's not due to the TCS) but I > recall someone saying that a child would be having surgery very very > soon...I'll keep my fingers crossed and whisper out a little prayer for her > to the Man upstairs... > > > > Have a wonderful weekend > > ~angelic hugs~ > > Debbie aka Seraphina aka Marissa > > ~whenever you hear music an angel is speaking to you~ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Hi Marissa, Sorry I'm late in answering, needless to say I am way behind on my email's. Yes there are people who just had TSC and not SB. I do and yes I had surgery 4/02. I'd be happy to answer any questions. I have found this group to be very knowledgeable and helpful with all aspects of TC. Central New York > It seems the more I read the more confused I get. > Does anyone have pain in their leg while sleeping? > I tend to get a sharp pain in my leg that starts in > my thigh while sleeping. The only way I can describe > it would be as if someone were to drive a butcher knife > deep into your thigh and then start dragging it downward. > Outside of drugs, is there anything that anyone has found > that eases the pain? such as more exercise, lying down > as opposed to sitting up? I haven't had any luck yet. > I did speak to the neurologist about the weakness in my > leg. I wanted him to tell me that my leg would not give > out on me while walking, which of course he would not > do, in fact, he did the opposite. So I have finally given > in and gotten a handicapped placard for my vehicle. I > can't bring myself to use a cane. Stubborn as I am, I > probably will fight it til the day the leg does give out and > I fall flat on my face *L* > Still no word on when they are going to get me into see > the neurosurgeons at Barrows. > I do appreciate all the information that everyone is so kind > about sharing in this group. I will admit to being confused > though and not being able to keep all the stories straight. > Is there anyone who just had the TSC and not spina bifida > or any of the other problems and had the surgery to fix it? > > Thanks ever so much > Marissa > ~whenever you hear music an angel is speaking to you~ > > Quote Link to comment Share on other sites More sharing options...
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