Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Dear , Hello my name is Christy. Our son Carson has Selective IgA Deficiency , Asthma , ADHD , and a Heart Murmur . He has been sick his whole life with chronic infections Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Dear , I'm sorry I did not get to finish my last email . Something came up and I hit send now instead of send later . ( ooops) As I was saying our son Carson has Selective IgA Deficiency , Asthma , ADHD, and a Heart Murmur. He has had chronic infections his whole life , but his IgA level was not tested until he was 5. That was 10 months ago. His IgA level is 2 . Since then I have done my own research on IgA Deficiency. I did not get alot of information from Carson's Doctor. The best place I have found is the the IMMUNE DEFICIENCY FOUNDATION .( www.PRIMARYIMMUNE.ORG) It is a great web site. You can also receive a free patient and family handbook and a free children's book . I can tell you my experiences , what I have learned about IgA ,and I can be hear for you when you need to " vent '' about something because I might have been through the same thing. I hope to hear from you soon. Take Care, Christy Carson age 5 : Selective IgA Deficiency ,Asthma ,ADHD, Heart Murmur. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 Links to articles/summaries on selective IgA deficiency: From IconData.com, " Selective IgA Deficiency " : http://www.icondata.com/health/pedbase/files/SELECTIV.HTM Article on IgA deficiency from Infusion Network Systems: http://www.infusionsystems.net/article-igadeficiency.html " Selective deficiency of IgA " from MEDLINEplus: http://www.nlm.nih.gov/medlineplus/ency/article/001476.htm A short chapter on selective IgA deficiency from PrimaryImmune.org: http://www.primaryimmune.org/pubs/book_pats/e_ch04.pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Don't stress about it too much . The point is that it is still the same illness and the same diagnosis " Selective IgA Deficiency " whether you are 0 IgA or below the standard amount of IgA. Whether they drop the selective or not doesn't matter -- it is still PID and the treatment is the same, antibiotic treatment and being a total neat freak. I'm sorry if I worried you. Just never mind that blurb from my post, it may have done more harm than good. /Dayann > When was diagnosed, she had " Selective IgA Deficiency " . I'm not sure if there is any difference ... but I know she has SOME IgA ... they just can't give me a more definitive number than " less than 4 " . I'm not even sure what exactly that means. > > I myself have always dropped the " Selective " . It's never meant anything to me, but maybe there is some definition to it? But I don't think it's that there is " some " vs. " none " , unless her initial diagnosis was written incorrectly? Now you've got me wondering! > > , Mom to , 4, IgA Deficient, Asthma, Chronic ear/sinus infections and Connor, 6, home with strep throat > . > > > Perhaps doctors use two different terms when they talk among each > other to show which kids have more severe cases of IgA and which kids > have milder cases. Although I am completely new to this entire > thing, I usually see and hear doctors using " IgA Deficiency " for > those kids who make SOME but still very low amounts of IgA > and " SELECTIVE IgA " for those who don't make ANY IgA, and perhaps > that is where the confusion came from. You know, shop talk as > opposed to textbook definitions? Happens all the time in every > profession.... > > /Dayann > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Don't stress about it too much . The point is that it is still the same illness and the same diagnosis " Selective IgA Deficiency " whether you are 0 IgA or below the standard amount of IgA. Whether they drop the selective or not doesn't matter -- it is still PID and the treatment is the same, antibiotic treatment and being a total neat freak. I'm sorry if I worried you. Just never mind that blurb from my post, it may have done more harm than good. /Dayann > When was diagnosed, she had " Selective IgA Deficiency " . I'm not sure if there is any difference ... but I know she has SOME IgA ... they just can't give me a more definitive number than " less than 4 " . I'm not even sure what exactly that means. > > I myself have always dropped the " Selective " . It's never meant anything to me, but maybe there is some definition to it? But I don't think it's that there is " some " vs. " none " , unless her initial diagnosis was written incorrectly? Now you've got me wondering! > > , Mom to , 4, IgA Deficient, Asthma, Chronic ear/sinus infections and Connor, 6, home with strep throat > . > > > Perhaps doctors use two different terms when they talk among each > other to show which kids have more severe cases of IgA and which kids > have milder cases. Although I am completely new to this entire > thing, I usually see and hear doctors using " IgA Deficiency " for > those kids who make SOME but still very low amounts of IgA > and " SELECTIVE IgA " for those who don't make ANY IgA, and perhaps > that is where the confusion came from. You know, shop talk as > opposed to textbook definitions? Happens all the time in every > profession.... > > /Dayann > > > > > > Quote Link to comment Share on other sites More sharing options...
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