Re: Great News!

[Guest guest]

In a message dated 8/30/99 6:27:04 PM Eastern Daylight Time,

schisum@... writes:

> I went to my ophthalmologist today, and my optic nerves have returned to

> " basically normal! " Zippedeedooodah!

>

> I last went 2 months post op and my optic nerves had not improved any. I

> had " pappiledema " or swelling of the optic nerve due to intracranial

> pressure.

Great news!! This question is for anyone that can answer. We know that

needs a bigger decompression and one of the symptoms that she deals

with on a daily basis is eye pain/pressure. But she has other eye problems

and already has damage to her optic nerves from other causes. While I

definitely believe that her eye pain is Chairi related, because of her

inability to really explain what she is feeling, it's really hard to say

100%. So, is there any different type of testing other than a normal eye exam

where your eyes are dialated to tell if there is optic nerve swelling? If she

already has damage to the optic nerves will they be able to tell if there is

swelling??

Guess I really need to find her another opthamologist - the one she has seen

forever and ever is one that told me in the beginning that Chiari wouldn't

cause eye pain, " because you know the Chiari Malformation is in the back of

the head and your eyes are in the front of the head " . Haven't brought her

back for her much overdue yearly eye exam, because his response was just

plain ole dumb!!

Tory ('s mom)

[Guest guest]

Absolutely brilliant! You're an inspiration to all the parents on this

group.

Parents should never listen to that nonsense.

--penumbra

> I was told he would never walk, talk, survive past 5 or 8 yrs old.