Re: Very poor muscle tone.

[Guest guest]

> Might be worth a try to see if I see any results. Has your son

> been scoped and biopsied? Just wondering.

no, never.

[Guest guest]

Hi ,We were in the same boat for a lot. The best treatment that is VERY effective is getting your son into OT (Occupational Therapy) and PT (Physical Therapy). You will be amazed at the difference. My son was hypotonic and after six months of therapy he was able to walk up steps.

Hi All,

My some is taking many supplements, enzymes, amino acids, probiotics,

CLO, etc. He is on SCD diet.

I have posted before that he has not been growing. We finally saw a

doctor recently (Dr. Harum in NC) that we think can help figure out

his growth issues.

But beyond just growth he also has very poor muscle tone and is

relatively week for a 2.5yr old. He still cannot really step up a

step without help. I have read latent virus issues can cause this.

He is taking Valtrex with no apparent gains. Has anyone else been

successful treating weakness and poor muscle tone? If so, how did you

do it?

Thanks,

[Guest guest]

Chiming in with my 2 cents.

We did 80 rounds of Hard HBOT the past year. Our daugther, age 14, had

chronic constipation issues from birth! She is NOW pooping everyday.

SHe is also in her fourth month of LDN. SHe takes 2 different

probiotics. I also have had her on a prescription anti fungal since

June of last year. There is NO doubt in my mind that HBOT helped her.

She was born with low muscle tone, macrocephaly, & lethargy. She has

grown more than 2 inches since last summer (her first round of 40

dives)! We are already planning another round of 40 this coming

summer. It has only been this past week that she is pooping everyday

and more than once a day now! THANK GOD & Biomedical!

Shanna

[Guest guest]

My daughter apparently has low growth hormone. Could it be because of other issues or do you think this is just this, low growth hormone?

Ginger (Mom of Nyla -16 yrs old with autism)

Very poor muscle tone.

Hi All,My some is taking many supplements, enzymes, amino acids, probiotics,CLO, etc. He is on SCD diet.I have posted before that he has not been growing. We finally saw adoctor recently (Dr. Harum in NC) that we think can help figure outhis growth issues.But beyond just growth he also has very poor muscle tone and isrelatively week for a 2.5yr old. He still cannot really step up astep without help. I have read latent virus issues can cause this. He is taking Valtrex with no apparent gains. Has anyone else beensuccessful treating weakness and poor muscle tone? If so, how did youdo it?Thanks,

No virus found in this incoming message.Checked by AVG. Version: 7.5.552 / Virus Database: 270.11.3 - Release Date: 2/22/2009 12:00 AM

[Guest guest]

Hi Christy,During our first appointment Dr Harum said she thought she would be able to help our son grow but she didn't speculate how or what might be going on. She ordered a bunch of tests and we will go over all of the test results next month with her. I will let you know what she says and if she has any ideas on how to help him grow.Subject: Re: Very poor muscle tone.To: mb12 valtrex Date: Tuesday, February 24, 2009, 8:47 PM

I'm sure it has to do with his malabsorption/ digestive gut issues that he can't absorb foods thereby not gain wt or grow in height....i just want to know what Dr. HArum thought she could do for this, ya know?From: Virginia <virginiasmith@ rogers.com>To: mb12 valtrex@ yahoogroups. comSent: Tuesday, February 24, 2009 2:46:49 PMSubject: Re: Very poor muscle tone.

My daughter apparently has low growth hormone. Could it be because of other issues or do you think this is just this, low growth hormone?

Ginger (Mom of Nyla -16 yrs old with autism)

Very poor muscle tone.

Hi All,My some is taking many supplements, enzymes, amino acids, probiotics,CLO, etc. He is on SCD diet.I have posted before that he has not been growing. We finally saw adoctor recently (Dr. Harum in NC) that we think can help figure outhis growth issues.But beyond just growth he also has very poor muscle tone and isrelatively week for a 2.5yr old. He still cannot really step up astep without help. I have read latent virus issues can cause this. He is taking Valtrex with no apparent gains. Has anyone else beensuccessful treating weakness and poor muscle tone? If so, how did youdo it?Thanks,

No virus found in this incoming message.Checked by AVG. Version: 7.5.552 / Virus Database: 270.11.3 - Release Date: 2/22/2009 12:00 AM

[Guest guest]

What is the difference btween L-Carnitine and Acetyl Carnitine? We

started L-Carnitine on either Feb 9 or Feb 11 - 250 mg 2x a day.

> >

> > Hi

> ,

> >

> > I'm sorry to bug you about this again. But, we are

> going back to

> see Dr. Harum again this Friday in Wilmington and am very

> curious as

> to what course of action she said she was going to take to

> figure out

> your son's growth issues. As I stated before, my son Hayden,

> hasn't

> really grown in the last 10 months either and I really want to

>

> address this problem.

> >

> > Thank you for your

> time~Christy

> >

> >

> >

> >

> >

> ____________ _________ _________ __

> > From: Heidi

> <hmwjohnson@ ...>

> > To: mb12 valtrex@ yahoogroups. com

> >

> Sent: Sunday, February 15, 2009 9:21:28 PM

> > Subject: Very

> poor muscle tone.

> >

> >

> > Ok -

> > here's my theory on

> muscle tone. I believe it relates to the

> mitochondria

> > and an

> immature nervous sytem. I also think that when a child's

> nutrition

>

> > is out of balance, not necessarily from poor food intake but

rather

>

> with

> > digestion, etc., that the child will not have proper

> availability

> of nutrients

> > to support energy expenditure. My son

> was low tone and low

> endurance for

> > years when he was little and

> he was very skinny. OT didn't help

> > much. He wouldn't ride a bike

> uphill or push himself at all. If

> he

> > became winded, he would stop

> any activity (except the trampoline)

> As we

> > progressed with biomed

> and healing him, and a shot of puberty, this

> began to

> > change.

> However, we also made a huge effort to keep him active and

> in

> >

> sports. He swims, skiis and works out with a personal trainer two

> days per

>

> > week. This is when we saw the biggest gains. As he began to

>

> workout,

> > his stamina grew slowly. Then he began to gain muscle.

> Now he

> > actually looks forward to working out and challenges himself.

> Many

> adults

> > with autism advocate for frequent exercise for people

> with autism.

> It's

> > great for them in many ways. Regarding the

> nervous system, I

> > believe that our kids do not have the communication

> between the

> brain and

> > muscles when they are young due to

> underdevelopment of the nervous

> system.

> > As they mature, and with

> lots of biomed, the nervous system can

> mature and

> > regulate. We

> saw this with my son's hearing, sense of touch and

> > smell. As he

> matured, these all regulated out to almost

> > normal. Hope this helps,

> Heidi

> >

> >

> >

> Very poor muscle tone.

> >

> >

> > Hi All,

> > My some is

> taking many supplements, enzymes, amino acids,

> probiotics,

> > CLO,

> etc. He is on SCD diet.

> >

> > I have posted before that he has not

> been growing. We finally saw a

> > doctor recently (Dr. Harum in NC) that

> we think can help figure out

> > his growth issues.

> >

> > But

> beyond just growth he also has very poor muscle tone and is

> > relatively

> week for a 2.5yr old. He still cannot really step up a

> > step without

> help. I have read latent virus issues can cause this.

> > He is taking

> Valtrex with no apparent gains. Has anyone else been

> > successful

> treating weakness and poor muscle tone? If so, how did

> you

> > do

> it?

> >

> > Thanks,

> >

> >

>

>

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG -

> www.avg.com

> Version: 8.0.237 / Virus Database: 270.11.3/1970 - Release

> Date: 02/24/09 13:35:00

>

[Guest guest]

Okay with foods. Very good to know. I can change that easily.

Oh is that for both Acetyl Carnitine AND L-Carnitine?

What do you consider Working your way up? Like increasing every week or

two weeks? We are 500 L-Carnitine a day - We are on week 2.

Oh and Thank you for perhaps the 554th time. lol.

>

> you want it WITH foods, with oils and protiens for best results. and

try and work up to the 1000 mgs for max dose

>

[Guest guest]

Thanks so much. I cut and pasted that into my notes. We have just

started so we are clearly not up to LDM yet. We just did our first VitA

last weekend.

I dont even know what EFA or monolaurin is either but I guess I will

get to know those too at some point.

>

> LDM-100 is an Herbal Anti-Viral, Anti-Fungal, Anti-Bacterial.

> (Lomatium dissectum) by Barlow Herbals www.barlowherbal.com

> It's an Organic herb used by Native Americans for 100+ years (see

> Barlow Herbal website for more really good info on the herb/the

> Recap below has info on the herb w/our ASD kids).

>

> There is an LDM-100 Recap in the group Files with information from

> our Washington ASD recovery group who spear-headed it's use with our

> herbalist (MS in herbology) & our ASD docs. I highly recommend you

> check the Files for more information...and it is NOT a front-line

> anti-viral, it is very strong....our docs recommend things like Vit

> A, monolaurin, EFA's or olive leaf 1st and to get metals, gut/yeast

> under control 1st.

> All my best,

> Rita