Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Nadia - just a word of caution about oral DMSA in particular (and any other chelating protocols) - it's essential to get the gastrointestinal tract clear before you start oral DMSA and to ensure there are no problems with candida/yeast ...if your son has only been on a diet for 2 months am wondering what else you have done to prepare him for chelation? is he taking any probiotics? - sorry I don't know your child's history or age but I do know several children who have regressed really badly on oral DMSA because their gut was not fully prepared - oral DMSA has a history of attracting yeast problems leading to severe gut dysbiosis ...do you have a DAN doc at the helm? the good biomedical docs are usually very conservative about introducing chelation protocols and try and ensure that the immune system is viable enough to cope with chelation (in any form) ...your little fellow is making good headway on the diet ...perhaps go into that a bit more and maybe (if you have not already done so) remove colourings sugar preservatives soy products - your boy may well be experiencing withdrawal symtoms now that dairy and gluten have been removed (a bit like an addict coming off drugs) and that may account for his mood swings - there may be more dietry infactions which are adversely affecting him that you are not yet aware of ... we are all so anxious to help our kids recover but to " hasten slowly " is a good guideline to give his body the chance to recover and build up his immune system before you do chelation ... having lived through " regression " on oral DMSA I wouldn't want your boy (or you) to experience the same ..our DAN no longer uses oral DMSA there were too many problems ....just my thoughts born on experience .... best of luck on your recovery walk - jan brenton (biomedical autism group) Hi list, dr McCandless, we started chelating our son with oral dmsa last week. He has been on the GF/CF diet for almost two months now but we don't know how his gut is. Due to this diet, he seemed more happy, smiling a lot, hugging etc. But his mood swings were more extreme, to the point that he started hitting kids in school. We also started supplementing him and chelating is the next step. We use dmsa because of the lead but what should we do about the aluminum? We didn't find any dietary intake yet, we read everywhere it should come down on its own so this is really puzzling us. thanks for letting us share our thoughts about this, Glenn & Nadia 2005/12/22, nadiadiraa : > > Dear Dr. McCandless, > > First of all thanks for the wonderfull & informatif book you wrote ! > We are the parents of Staf, 8 years old , and diagnosed as " highly > functional in the autisme spectrum " . He is now on the GF/CF diet & > supplements, enzymes and probiotics and we see some improvements: > motor skills and good mood. > We did a hair test (for the results, see below) and were trying to > do a right interpretation with Andy Cutlers book Hair Test > Interpretation. The counting rules don't apply for his essential > elements. But we found " indirect clues " . Page 87, Andy > states " Alumnium may become elevated due to mercury induced > derangement of mineral transport before the test meets a counting > rule. Some suspicion regarding the prescence of mercury is > appropriate in a test with elevated alumnium, especially if > accompanied by one or more of antimony, nickel, tin or titanium. " > There are three other reasons we think mercury is the problem > (besides the high aluminum and lead) > 1) When he is exited, he flaps with his hands and runs in > patterns. There are other behaviors like extremely shy, no or less > eye contact, etc . which we think are typical mercury induced. > 2) He had many vaccinations with mercury. His mother has 7 > amalgam fillings. The last two vaccines, on the ages of 4,5 and 6 > year, contained aluminumhydroxide. Around this period he had the > most clearly transition in " autisme spectrum " we believe, due to > synergetic effects between the neurotoxins. Could it be that the > high reading for aluminum in the hair test is from those vaccines 2 > years ago ? > 3) Mercury runs in the family. I (his father) am currently > recovering from amalgam illness (again with the help of Andy Cutlers > book Amalgam Illness) and my mother (grandmother from Staf) is > suffering from schizophrenia, wich first occurred shortly after her > first amalgam fillings on the age of 30 years. > > All together we think we got a " high probability " for mercury. Do > you agree ? > We are currently in counseling with a toxicologue but the new > paradigma on autism children is still not known in Belgium. We think > that chelation with DMSA is appropriate, especially for lead. And if > there's mercury it has to show up in the urine tests. > We read that you can chelate aluminum with malic acid. Wich protocol > do you use ? Is this like ALA, a few days every 3 hours and the same > quantity in mg? > > I hope you can give us some advice on how we can help our son to > become again the wonderful kid he was as a toddler. > We also include the results of his hair test. > > Glenn & Nadia > > TOXIC RESULT for Staf, 8 yo, male > REFERENCE PERCENTILE ELEMENTS µg/g RANGE 68th 95th > Aluminum 20 < 8.0 yellow, almost red > Antimony 0.032 < 0.066 green > Arsenic 0.042 < 0.080 green > Beryllium 0.01 < 0.020 no trace of it > Bismuth 0.024 < 0.12 green > Cadmium 0.028 < 0.15 green > Lead 1.2 < 1.0 yellow (just over 68th percentile) > Mercury 0.10 < 0.40 green > Platinum < 0.003 < 0.005 no trace of it > Thallium < 0.001 < 0.010 no trace of it > Thorium < 0.001 < 0.005 no trace of it > Uranium 0.005 < 0.060 green > Nickel 0.24 < 0.40 green > Silver 0.20 < 0.13 yellow (just over 68th percentile) > Tin 0.16 < 0.30 green > Titanium 0.33 < 1.0 green > Total Toxic Representation yellow (just over 68th percentile) > ESSENTIAL AND OTHER ELEMENTS > RESULT REFERENCE PERCENTILE > ELEMENTS µg/g RANGE 2.5th 16th 50th 84th 97.5th > Calcium 349 160- 500 green to the left > Magnesium 18 12- 50 green to the left > Sodium 66 12- 90 green to the right > Potassium 65 10- 40 yellow (84th percentile) > Copper 8.9 9.0- 30 green (almost 16th percentile) > Zinc 110 110- 190 green (almost 16th percentile) > Manganese 0.18 0.18- 0.60 green (almost 16th percentile) > Chromium 0.64 0.23- 0.50 yellow (cc. 90th percentile) > Vanadium 0.075 0.025- 0.10 green to the right > Molybdenum 0.063 0.040- 0.089 green to the right > Boron 1.1 0.50- 3.5 green to the left > Iodine 0.58 0.25- 1.3 white to the right > Lithium 0.011 0.007- 0.023 white to the right > Phosphorus 126 160- 250 yellow, almost to the 2.5th > Selenium 0.65 0.95- 1.7 yellow, almost to the 2.5th > Strontium 2.7 0.21- 2.1 yellow to the right > Sulfur 46400 45500- 53000 green to the left > Barium 0.52 0.19- 1.6 white to the left > Cobalt 0.017 0.013- 0.035 green to the left > Iron 16 6.0- 17 green to the right > Germanium 0.040 0.045- 0.065 yellow to the left > Rubidium 0.047 0.008- 0.080 green to the right > Zirconium 0.089 0.060- 0.70 yellow to the left > > > > > > > Many frequently asked questions and answers can be found at < > http://forums.autism-rxguidebook.com/default.aspx> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Nadia, DMSA will remove other heavy metals beside lead (including mercury, aluminum, ...). And based on your description, I don't think he experienced any regresion (nor side effects). However, constipation is a BIG problem and I would take care of it immediately (otherwise, the toxins and metals will not get eliminated and also gut bugs will become an issue). Our DAN told us that exema might be from aluminium (and after the first round of chelation with oral DMSA, my son's exema was gone). Marin > > Hi Jan, > > tx for your reply. I will start with some more background for our son who is > 8yo and dx PDD - Asperger syndrome when he was 6yo. As a baby he had severe > intolerance for milk while I was breastfeeding so we both were on a caseine > free diet. This lasted till he was about 5 years but since he never ate > diary as a baby he doesn't like diary products a lot. > The only thing we noticed is that he has eczema which worsenes when taking > colourings. So i think we managed to have our kids eat " healthy " and we try > to buy only organic products. > Two months ago we started the GF diet and supplementing him. He is more > happier now and looks healthier. But there was no great improvement in > social interaction or attention. > Because we found out that there was a lead intoxication due to lead paint in > the house, we decided to start with chelation via oral dmsa, low doses of 33 > mg every 4 hours, a couple of days. During this days, we saw a decrease in > hyperactivity, no increase in other symptoms. So is this regression only > observable with mercury toxicity and not with lead? > When do you notice a regression, immediately after starting with chelation > or afterwards? > Considering his gut, the only problem we observed here is constipation, > which could be due to the lead intoxication? > > So how can we now when gut is really an issue? There are no Dan doctors in > Belgium as far as we know, our general practioner can't help us because she > is not trained for this kind of stuff, she says. Glenn has been treated by a > toxicologist who gave him DMPS IV which severely affected him, he clearly > 'regressed' to a state he never has been in befor. > We're now following the protocol of Andy Cutler. > > We have been exploring all these things for 2 years now to find help for our > son, but so far we think we are on our own here in Belgium. > > Nadia & Glenn > > > 2006/1/4, Jan Brenton <janbrenton@i...>: > > > > Nadia - > > > > just a word of caution about oral DMSA in particular (and any other > > chelating protocols) - it's essential to get the gastrointestinal tract > > clear before you start oral DMSA and to ensure there are no problems with > > candida/yeast ...if your son has only been on a diet for 2 months am > > wondering what else you have done to prepare him for chelation? is he > > taking any probiotics? - sorry I don't know your child's history or age > > but > > I do know several children who have regressed really badly on oral DMSA > > because their gut was not fully prepared - oral DMSA has a history of > > attracting yeast problems leading to severe gut dysbiosis ...do you have a > > DAN doc at the helm? the good biomedical docs are usually very > > conservative > > about introducing chelation protocols and try and ensure that the immune > > system is viable enough to cope with chelation (in any form) ...your > > little > > fellow is making good headway on the diet ...perhaps go into that a bit > > more > > and maybe (if you have not already done so) remove colourings sugar > > preservatives soy products - your boy may well be experiencing > > withdrawal > > symtoms now that dairy and gluten have been removed (a bit like an addict > > coming off drugs) and that may account for his mood swings - there may > > be more dietry infactions which are adversely affecting him that you are > > not > > yet aware of ... we are all so anxious to help our kids recover but to > > " hasten slowly " > > is a good guideline to give his body the chance to recover and build up > > his > > immune > > system before you do chelation ... > > > > having lived through " regression " on oral DMSA I wouldn't want your boy > > (or you) to experience the same ..our DAN no longer uses oral DMSA there > > were too many problems ....just my thoughts born on experience .... best > > of > > luck on your recovery walk - > > > > jan brenton (biomedical autism group) > > > > > > > > From: " Nadia Diraä " <diraa.nadia@g...> > > > > > > > > Hi list, dr McCandless, > > > > we started chelating our son with oral dmsa last week. He has been on the > > GF/CF diet for almost two months now but we don't know how his gut is. > > Due to this diet, he seemed more happy, smiling a lot, hugging etc. But > > his > > mood swings were more extreme, to the point that he started hitting kids > > in > > school. > > We also started supplementing him and chelating is the next step. > > We use dmsa because of the lead but what should we do about the aluminum? > > We > > didn't find any dietary intake yet, we read everywhere it should come down > > on its own so this is really puzzling us. > > > > thanks for letting us share our thoughts about this, > > > > Glenn & Nadia > > > > > > > > 2005/12/22, nadiadiraa <diraa.nadia@g...>: > > > > > > Dear Dr. McCandless, > > > > > > First of all thanks for the wonderfull & informatif book you wrote ! > > > We are the parents of Staf, 8 years old , and diagnosed as " highly > > > functional in the autisme spectrum " . He is now on the GF/CF diet & > > > supplements, enzymes and probiotics and we see some improvements: > > > motor skills and good mood. > > > We did a hair test (for the results, see below) and were trying to > > > do a right interpretation with Andy Cutlers book Hair Test > > > Interpretation. The counting rules don't apply for his essential > > > elements. But we found " indirect clues " . Page 87, Andy > > > states " Alumnium may become elevated due to mercury induced > > > derangement of mineral transport before the test meets a counting > > > rule. Some suspicion regarding the prescence of mercury is > > > appropriate in a test with elevated alumnium, especially if > > > accompanied by one or more of antimony, nickel, tin or titanium. " > > > There are three other reasons we think mercury is the problem > > > (besides the high aluminum and lead) > > > 1) When he is exited, he flaps with his hands and runs in > > > patterns. There are other behaviors like extremely shy, no or less > > > eye contact, etc . which we think are typical mercury induced. > > > 2) He had many vaccinations with mercury. His mother has 7 > > > amalgam fillings. The last two vaccines, on the ages of 4,5 and 6 > > > year, contained aluminumhydroxide. Around this period he had the > > > most clearly transition in " autisme spectrum " we believe, due to > > > synergetic effects between the neurotoxins. Could it be that the > > > high reading for aluminum in the hair test is from those vaccines 2 > > > years ago ? > > > 3) Mercury runs in the family. I (his father) am currently > > > recovering from amalgam illness (again with the help of Andy Cutlers > > > book Amalgam Illness) and my mother (grandmother from Staf) is > > > suffering from schizophrenia, wich first occurred shortly after her > > > first amalgam fillings on the age of 30 years. > > > > > > All together we think we got a " high probability " for mercury. Do > > > you agree ? > > > We are currently in counseling with a toxicologue but the new > > > paradigma on autism children is still not known in Belgium. We think > > > that chelation with DMSA is appropriate, especially for lead. And if > > > there's mercury it has to show up in the urine tests. > > > We read that you can chelate aluminum with malic acid. Wich protocol > > > do you use ? Is this like ALA, a few days every 3 hours and the same > > > quantity in mg? > > > > > > I hope you can give us some advice on how we can help our son to > > > become again the wonderful kid he was as a toddler. > > > We also include the results of his hair test. > > > > > > Glenn & Nadia > > > > > > TOXIC RESULT for Staf, 8 yo, male > > > REFERENCE PERCENTILE ELEMENTS µg/g RANGE 68th 95th > > > Aluminum 20 < 8.0 yellow, almost red > > > Antimony 0.032 < 0.066 green > > > Arsenic 0.042 < 0.080 green > > > Beryllium 0.01 < 0.020 no trace of it > > > Bismuth 0.024 < 0.12 green > > > Cadmium 0.028 < 0.15 green > > > Lead 1.2 < 1.0 yellow (just over 68th percentile) > > > Mercury 0.10 < 0.40 green > > > Platinum < 0.003 < 0.005 no trace of it > > > Thallium < 0.001 < 0.010 no trace of it > > > Thorium < 0.001 < 0.005 no trace of it > > > Uranium 0.005 < 0.060 green > > > Nickel 0.24 < 0.40 green > > > Silver 0.20 < 0.13 yellow (just over 68th percentile) > > > Tin 0.16 < 0.30 green > > > Titanium 0.33 < 1.0 green > > > Total Toxic Representation yellow (just over 68th percentile) > > > ESSENTIAL AND OTHER ELEMENTS > > > RESULT REFERENCE PERCENTILE > > > ELEMENTS µg/g RANGE 2.5th 16th 50th 84th 97.5th > > > Calcium 349 160- 500 green to the left > > > Magnesium 18 12- 50 green to the left > > > Sodium 66 12- 90 green to the right > > > Potassium 65 10- 40 yellow (84th percentile) > > > Copper 8.9 9.0- 30 green (almost 16th percentile) > > > Zinc 110 110- 190 green (almost 16th percentile) > > > Manganese 0.18 0.18- 0.60 green (almost 16th percentile) > > > Chromium 0.64 0.23- 0.50 yellow (cc. 90th percentile) > > > Vanadium 0.075 0.025- 0.10 green to the right > > > Molybdenum 0.063 0.040- 0.089 green to the right > > > Boron 1.1 0.50- 3.5 green to the left > > > Iodine 0.58 0.25- 1.3 white to the right > > > Lithium 0.011 0.007- 0.023 white to the right > > > Phosphorus 126 160- 250 yellow, almost to the 2.5th > > > Selenium 0.65 0.95- 1.7 yellow, almost to the 2.5th > > > Strontium 2.7 0.21- 2.1 yellow to the right > > > Sulfur 46400 45500- 53000 green to the left > > > Barium 0.52 0.19- 1.6 white to the left > > > Cobalt 0.017 0.013- 0.035 green to the left > > > Iron 16 6.0- 17 green to the right > > > Germanium 0.040 0.045- 0.065 yellow to the left > > > Rubidium 0.047 0.008- 0.080 green to the right > > > Zirconium 0.089 0.060- 0.70 yellow to the left > > > > > > > > > > > > > > > > > > > > > Many frequently asked questions and answers can be found at < > > > http://forums.autism-rxguidebook.com/default.aspx> > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Nadia, About finding equivalent probiotics and other supplements in Europe: I would compare the ingredients and decide the equivalence based on that (or you can send an email, list the ingredients of a supplement and ask for advice). For example, you can download the Kirkman catalog from: http://www.kirkmanlabs.com/catalog.html and you can check the ingredients. For a probiotic I would look at how many strands it has and at the potency per capsule (some have about 20 bilions of bacteria per capsule). For constipation, you may try Swedish Bitters or other laxative herbs. Marin > > I sure hope the DMSA would also help for aluminum, till now I only heard of > malic acid for aluminum. > We're giving him probiotics but we're not sure if it is a good one. We're > still looking to find the right supplements, everything's having different > names, sometimes it's hard to find it over here. > > Nadia > Quote Link to comment Share on other sites More sharing options...
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