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Nadia - elevated aluminum: we think mercury toxication - chelation needed?

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Nadia -

just a word of caution about oral DMSA in particular (and any other

chelating protocols) - it's essential to get the gastrointestinal tract

clear before you start oral DMSA and to ensure there are no problems with

candida/yeast ...if your son has only been on a diet for 2 months am

wondering what else you have done to prepare him for chelation? is he

taking any probiotics? - sorry I don't know your child's history or age but

I do know several children who have regressed really badly on oral DMSA

because their gut was not fully prepared - oral DMSA has a history of

attracting yeast problems leading to severe gut dysbiosis ...do you have a

DAN doc at the helm? the good biomedical docs are usually very conservative

about introducing chelation protocols and try and ensure that the immune

system is viable enough to cope with chelation (in any form) ...your little

fellow is making good headway on the diet ...perhaps go into that a bit more

and maybe (if you have not already done so) remove colourings sugar

preservatives soy products - your boy may well be experiencing withdrawal

symtoms now that dairy and gluten have been removed (a bit like an addict

coming off drugs) and that may account for his mood swings - there may

be more dietry infactions which are adversely affecting him that you are not

yet aware of ... we are all so anxious to help our kids recover but to

" hasten slowly "

is a good guideline to give his body the chance to recover and build up his

immune

system before you do chelation ...

having lived through " regression " on oral DMSA I wouldn't want your boy

(or you) to experience the same ..our DAN no longer uses oral DMSA there

were too many problems ....just my thoughts born on experience .... best of

luck on your recovery walk -

jan brenton (biomedical autism group)

Hi list, dr McCandless,

we started chelating our son with oral dmsa last week. He has been on the

GF/CF diet for almost two months now but we don't know how his gut is.

Due to this diet, he seemed more happy, smiling a lot, hugging etc. But his

mood swings were more extreme, to the point that he started hitting kids in

school.

We also started supplementing him and chelating is the next step.

We use dmsa because of the lead but what should we do about the aluminum? We

didn't find any dietary intake yet, we read everywhere it should come down

on its own so this is really puzzling us.

thanks for letting us share our thoughts about this,

Glenn & Nadia

2005/12/22, nadiadiraa :

>

> Dear Dr. McCandless,

>

> First of all thanks for the wonderfull & informatif book you wrote !

> We are the parents of Staf, 8 years old , and diagnosed as " highly

> functional in the autisme spectrum " . He is now on the GF/CF diet &

> supplements, enzymes and probiotics and we see some improvements:

> motor skills and good mood.

> We did a hair test (for the results, see below) and were trying to

> do a right interpretation with Andy Cutlers book Hair Test

> Interpretation. The counting rules don't apply for his essential

> elements. But we found " indirect clues " . Page 87, Andy

> states " Alumnium may become elevated due to mercury induced

> derangement of mineral transport before the test meets a counting

> rule. Some suspicion regarding the prescence of mercury is

> appropriate in a test with elevated alumnium, especially if

> accompanied by one or more of antimony, nickel, tin or titanium. "

> There are three other reasons we think mercury is the problem

> (besides the high aluminum and lead)

> 1) When he is exited, he flaps with his hands and runs in

> patterns. There are other behaviors like extremely shy, no or less

> eye contact, etc . which we think are typical mercury induced.

> 2) He had many vaccinations with mercury. His mother has 7

> amalgam fillings. The last two vaccines, on the ages of 4,5 and 6

> year, contained aluminumhydroxide. Around this period he had the

> most clearly transition in " autisme spectrum " we believe, due to

> synergetic effects between the neurotoxins. Could it be that the

> high reading for aluminum in the hair test is from those vaccines 2

> years ago ?

> 3) Mercury runs in the family. I (his father) am currently

> recovering from amalgam illness (again with the help of Andy Cutlers

> book Amalgam Illness) and my mother (grandmother from Staf) is

> suffering from schizophrenia, wich first occurred shortly after her

> first amalgam fillings on the age of 30 years.

>

> All together we think we got a " high probability " for mercury. Do

> you agree ?

> We are currently in counseling with a toxicologue but the new

> paradigma on autism children is still not known in Belgium. We think

> that chelation with DMSA is appropriate, especially for lead. And if

> there's mercury it has to show up in the urine tests.

> We read that you can chelate aluminum with malic acid. Wich protocol

> do you use ? Is this like ALA, a few days every 3 hours and the same

> quantity in mg?

>

> I hope you can give us some advice on how we can help our son to

> become again the wonderful kid he was as a toddler.

> We also include the results of his hair test.

>

> Glenn & Nadia

>

> TOXIC RESULT for Staf, 8 yo, male

> REFERENCE PERCENTILE ELEMENTS µg/g RANGE 68th 95th

> Aluminum 20 < 8.0 yellow, almost red

> Antimony 0.032 < 0.066 green

> Arsenic 0.042 < 0.080 green

> Beryllium 0.01 < 0.020 no trace of it

> Bismuth 0.024 < 0.12 green

> Cadmium 0.028 < 0.15 green

> Lead 1.2 < 1.0 yellow (just over 68th percentile)

> Mercury 0.10 < 0.40 green

> Platinum < 0.003 < 0.005 no trace of it

> Thallium < 0.001 < 0.010 no trace of it

> Thorium < 0.001 < 0.005 no trace of it

> Uranium 0.005 < 0.060 green

> Nickel 0.24 < 0.40 green

> Silver 0.20 < 0.13 yellow (just over 68th percentile)

> Tin 0.16 < 0.30 green

> Titanium 0.33 < 1.0 green

> Total Toxic Representation yellow (just over 68th percentile)

> ESSENTIAL AND OTHER ELEMENTS

> RESULT REFERENCE PERCENTILE

> ELEMENTS µg/g RANGE 2.5th 16th 50th 84th 97.5th

> Calcium 349 160- 500 green to the left

> Magnesium 18 12- 50 green to the left

> Sodium 66 12- 90 green to the right

> Potassium 65 10- 40 yellow (84th percentile)

> Copper 8.9 9.0- 30 green (almost 16th percentile)

> Zinc 110 110- 190 green (almost 16th percentile)

> Manganese 0.18 0.18- 0.60 green (almost 16th percentile)

> Chromium 0.64 0.23- 0.50 yellow (cc. 90th percentile)

> Vanadium 0.075 0.025- 0.10 green to the right

> Molybdenum 0.063 0.040- 0.089 green to the right

> Boron 1.1 0.50- 3.5 green to the left

> Iodine 0.58 0.25- 1.3 white to the right

> Lithium 0.011 0.007- 0.023 white to the right

> Phosphorus 126 160- 250 yellow, almost to the 2.5th

> Selenium 0.65 0.95- 1.7 yellow, almost to the 2.5th

> Strontium 2.7 0.21- 2.1 yellow to the right

> Sulfur 46400 45500- 53000 green to the left

> Barium 0.52 0.19- 1.6 white to the left

> Cobalt 0.017 0.013- 0.035 green to the left

> Iron 16 6.0- 17 green to the right

> Germanium 0.040 0.045- 0.065 yellow to the left

> Rubidium 0.047 0.008- 0.080 green to the right

> Zirconium 0.089 0.060- 0.70 yellow to the left

>

>

>

>

>

>

> Many frequently asked questions and answers can be found at <

> http://forums.autism-rxguidebook.com/default.aspx>

>

>

>

>

>

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Nadia,

DMSA will remove other heavy metals beside lead (including mercury,

aluminum, ...). And based on your description, I don't think he

experienced any regresion (nor side effects). However, constipation

is a BIG problem and I would take care of it immediately (otherwise,

the toxins and metals will not get eliminated and also gut bugs will

become an issue). Our DAN told us that exema might be from

aluminium (and after the first round of chelation with oral DMSA, my

son's exema was gone).

Marin

>

> Hi Jan,

>

> tx for your reply. I will start with some more background for our

son who is

> 8yo and dx PDD - Asperger syndrome when he was 6yo. As a baby he

had severe

> intolerance for milk while I was breastfeeding so we both were on

a caseine

> free diet. This lasted till he was about 5 years but since he

never ate

> diary as a baby he doesn't like diary products a lot.

> The only thing we noticed is that he has eczema which worsenes

when taking

> colourings. So i think we managed to have our kids eat " healthy "

and we try

> to buy only organic products.

> Two months ago we started the GF diet and supplementing him. He is

more

> happier now and looks healthier. But there was no great

improvement in

> social interaction or attention.

> Because we found out that there was a lead intoxication due to

lead paint in

> the house, we decided to start with chelation via oral dmsa, low

doses of 33

> mg every 4 hours, a couple of days. During this days, we saw a

decrease in

> hyperactivity, no increase in other symptoms. So is this

regression only

> observable with mercury toxicity and not with lead?

> When do you notice a regression, immediately after starting with

chelation

> or afterwards?

> Considering his gut, the only problem we observed here is

constipation,

> which could be due to the lead intoxication?

>

> So how can we now when gut is really an issue? There are no Dan

doctors in

> Belgium as far as we know, our general practioner can't help us

because she

> is not trained for this kind of stuff, she says. Glenn has been

treated by a

> toxicologist who gave him DMPS IV which severely affected him, he

clearly

> 'regressed' to a state he never has been in befor.

> We're now following the protocol of Andy Cutler.

>

> We have been exploring all these things for 2 years now to find

help for our

> son, but so far we think we are on our own here in Belgium.

>

> Nadia & Glenn

>

>

> 2006/1/4, Jan Brenton <janbrenton@i...>:

> >

> > Nadia -

> >

> > just a word of caution about oral DMSA in particular (and any

other

> > chelating protocols) - it's essential to get the

gastrointestinal tract

> > clear before you start oral DMSA and to ensure there are no

problems with

> > candida/yeast ...if your son has only been on a diet for 2

months am

> > wondering what else you have done to prepare him for chelation?

is he

> > taking any probiotics? - sorry I don't know your child's

history or age

> > but

> > I do know several children who have regressed really badly on

oral DMSA

> > because their gut was not fully prepared - oral DMSA has a

history of

> > attracting yeast problems leading to severe gut dysbiosis ...do

you have a

> > DAN doc at the helm? the good biomedical docs are usually very

> > conservative

> > about introducing chelation protocols and try and ensure that

the immune

> > system is viable enough to cope with chelation (in any

form) ...your

> > little

> > fellow is making good headway on the diet ...perhaps go into

that a bit

> > more

> > and maybe (if you have not already done so) remove colourings

sugar

> > preservatives soy products - your boy may well be experiencing

> > withdrawal

> > symtoms now that dairy and gluten have been removed (a bit like

an addict

> > coming off drugs) and that may account for his mood swings -

there may

> > be more dietry infactions which are adversely affecting him that

you are

> > not

> > yet aware of ... we are all so anxious to help our kids recover

but to

> > " hasten slowly "

> > is a good guideline to give his body the chance to recover and

build up

> > his

> > immune

> > system before you do chelation ...

> >

> > having lived through " regression " on oral DMSA I wouldn't want

your boy

> > (or you) to experience the same ..our DAN no longer uses oral

DMSA there

> > were too many problems ....just my thoughts born on

experience .... best

> > of

> > luck on your recovery walk -

> >

> > jan brenton (biomedical autism group)

> >

> >

> >

> > From: " Nadia Diraä " <diraa.nadia@g...>

> >

> >

> >

> > Hi list, dr McCandless,

> >

> > we started chelating our son with oral dmsa last week. He has

been on the

> > GF/CF diet for almost two months now but we don't know how his

gut is.

> > Due to this diet, he seemed more happy, smiling a lot, hugging

etc. But

> > his

> > mood swings were more extreme, to the point that he started

hitting kids

> > in

> > school.

> > We also started supplementing him and chelating is the next step.

> > We use dmsa because of the lead but what should we do about the

aluminum?

> > We

> > didn't find any dietary intake yet, we read everywhere it should

come down

> > on its own so this is really puzzling us.

> >

> > thanks for letting us share our thoughts about this,

> >

> > Glenn & Nadia

> >

> >

> >

> > 2005/12/22, nadiadiraa <diraa.nadia@g...>:

> > >

> > > Dear Dr. McCandless,

> > >

> > > First of all thanks for the wonderfull & informatif book you

wrote !

> > > We are the parents of Staf, 8 years old , and diagnosed

as " highly

> > > functional in the autisme spectrum " . He is now on the GF/CF

diet &

> > > supplements, enzymes and probiotics and we see some

improvements:

> > > motor skills and good mood.

> > > We did a hair test (for the results, see below) and were

trying to

> > > do a right interpretation with Andy Cutlers book Hair Test

> > > Interpretation. The counting rules don't apply for his

essential

> > > elements. But we found " indirect clues " . Page 87, Andy

> > > states " Alumnium may become elevated due to mercury induced

> > > derangement of mineral transport before the test meets a

counting

> > > rule. Some suspicion regarding the prescence of mercury is

> > > appropriate in a test with elevated alumnium, especially if

> > > accompanied by one or more of antimony, nickel, tin or

titanium. "

> > > There are three other reasons we think mercury is the problem

> > > (besides the high aluminum and lead)

> > > 1) When he is exited, he flaps with his hands and runs in

> > > patterns. There are other behaviors like extremely shy, no or

less

> > > eye contact, etc . which we think are typical mercury induced.

> > > 2) He had many vaccinations with mercury. His mother has 7

> > > amalgam fillings. The last two vaccines, on the ages of 4,5

and 6

> > > year, contained aluminumhydroxide. Around this period he had

the

> > > most clearly transition in " autisme spectrum " we believe, due

to

> > > synergetic effects between the neurotoxins. Could it be that

the

> > > high reading for aluminum in the hair test is from those

vaccines 2

> > > years ago ?

> > > 3) Mercury runs in the family. I (his father) am

currently

> > > recovering from amalgam illness (again with the help of Andy

Cutlers

> > > book Amalgam Illness) and my mother (grandmother from Staf) is

> > > suffering from schizophrenia, wich first occurred shortly

after her

> > > first amalgam fillings on the age of 30 years.

> > >

> > > All together we think we got a " high probability " for mercury.

Do

> > > you agree ?

> > > We are currently in counseling with a toxicologue but the new

> > > paradigma on autism children is still not known in Belgium. We

think

> > > that chelation with DMSA is appropriate, especially for lead.

And if

> > > there's mercury it has to show up in the urine tests.

> > > We read that you can chelate aluminum with malic acid. Wich

protocol

> > > do you use ? Is this like ALA, a few days every 3 hours and

the same

> > > quantity in mg?

> > >

> > > I hope you can give us some advice on how we can help our son

to

> > > become again the wonderful kid he was as a toddler.

> > > We also include the results of his hair test.

> > >

> > > Glenn & Nadia

> > >

> > > TOXIC RESULT for Staf, 8 yo, male

> > > REFERENCE PERCENTILE ELEMENTS µg/g RANGE 68th 95th

> > > Aluminum 20 < 8.0 yellow, almost red

> > > Antimony 0.032 < 0.066 green

> > > Arsenic 0.042 < 0.080 green

> > > Beryllium 0.01 < 0.020 no trace of it

> > > Bismuth 0.024 < 0.12 green

> > > Cadmium 0.028 < 0.15 green

> > > Lead 1.2 < 1.0 yellow (just over 68th percentile)

> > > Mercury 0.10 < 0.40 green

> > > Platinum < 0.003 < 0.005 no trace of it

> > > Thallium < 0.001 < 0.010 no trace of it

> > > Thorium < 0.001 < 0.005 no trace of it

> > > Uranium 0.005 < 0.060 green

> > > Nickel 0.24 < 0.40 green

> > > Silver 0.20 < 0.13 yellow (just over 68th percentile)

> > > Tin 0.16 < 0.30 green

> > > Titanium 0.33 < 1.0 green

> > > Total Toxic Representation yellow (just over 68th percentile)

> > > ESSENTIAL AND OTHER ELEMENTS

> > > RESULT REFERENCE PERCENTILE

> > > ELEMENTS µg/g RANGE 2.5th 16th 50th 84th 97.5th

> > > Calcium 349 160- 500 green to the left

> > > Magnesium 18 12- 50 green to the left

> > > Sodium 66 12- 90 green to the right

> > > Potassium 65 10- 40 yellow (84th percentile)

> > > Copper 8.9 9.0- 30 green (almost 16th percentile)

> > > Zinc 110 110- 190 green (almost 16th percentile)

> > > Manganese 0.18 0.18- 0.60 green (almost 16th percentile)

> > > Chromium 0.64 0.23- 0.50 yellow (cc. 90th percentile)

> > > Vanadium 0.075 0.025- 0.10 green to the right

> > > Molybdenum 0.063 0.040- 0.089 green to the right

> > > Boron 1.1 0.50- 3.5 green to the left

> > > Iodine 0.58 0.25- 1.3 white to the right

> > > Lithium 0.011 0.007- 0.023 white to the right

> > > Phosphorus 126 160- 250 yellow, almost to the 2.5th

> > > Selenium 0.65 0.95- 1.7 yellow, almost to the 2.5th

> > > Strontium 2.7 0.21- 2.1 yellow to the right

> > > Sulfur 46400 45500- 53000 green to the left

> > > Barium 0.52 0.19- 1.6 white to the left

> > > Cobalt 0.017 0.013- 0.035 green to the left

> > > Iron 16 6.0- 17 green to the right

> > > Germanium 0.040 0.045- 0.065 yellow to the left

> > > Rubidium 0.047 0.008- 0.080 green to the right

> > > Zirconium 0.089 0.060- 0.70 yellow to the left

> > >

> > >

> > >

> > >

> > >

> > >

> > > Many frequently asked questions and answers can be found at <

> > > http://forums.autism-rxguidebook.com/default.aspx>

> > >

> > >

> > >

> > >

> > >

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Nadia,

About finding equivalent probiotics and other supplements in Europe:

I would compare the ingredients and decide the equivalence based on

that (or you can send an email, list the ingredients of a supplement

and ask for advice). For example, you can download the Kirkman

catalog from: http://www.kirkmanlabs.com/catalog.html and you can

check the ingredients. For a probiotic I would look at how many

strands it has and at the potency per capsule (some have about 20

bilions of bacteria per capsule). For constipation, you may try

Swedish Bitters or other laxative herbs.

Marin

>

> I sure hope the DMSA would also help for aluminum, till now I only

heard of

> malic acid for aluminum.

> We're giving him probiotics but we're not sure if it is a good

one. We're

> still looking to find the right supplements, everything's having

different

> names, sometimes it's hard to find it over here.

>

> Nadia

>

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